Cipriano Martinez, (WA AIDS Council) describes a half day workshop that helps peole living with HIV better engage with the online environment to access treatments & health information. This presentation was given at the AFAO/NAPWA Gay Men's HIV Health Promotion Conference in May 2012.
3. Rational/Objectives
HIV Futures Six (Grierson et al, 2009) approximately 36.5% of respondents
source HIV treatment and living information from the internet.
Many services for people living with HIV are overtime slowly progressing to the
online environment e.g. treatment information and management of side
effects.
Communities are increasingly using the online environment to organise and
engage with its members e.g. Facebook groups.
E-health record is the most efficient and likely way that health information will
be stored and exchanged in the near future.
To identify and access online HIV peer support 24/7, HIV treatment and side
effect management resources.
To explore websites with quality of life enhancing potential.
4.
5. Websites
www.poz.com – US
based, forums, personals, treatments, side effect
management
www.thebody.com – US
based, forums, treatments, side effect management
www.aidsmap.com- UK based, treatments, side effect
management, charting, resources
www.gaydar.com.au – International gay online live
chat
www.napwa.org.au – Australian treatment and
advocacy sites provided on handout.
6.
7. Websites
www.Google.com – searching , maps,
www.Facebook.com – contact with friends, community
engagement,
www.Youtube.com – learn from the web, connect with
others, creative fun
www.Ted.com - be inspired by the world’s best speakers
www.skype.com – Free international calls (also MSN, FBK,)
www.dropbox.com – Store access and share your files
photos, videos
www.wordpress.com – create your own website or blogg
8.
9. Feedback
Which websites do you enjoy learning about the most and why?
-Poz websites – very informative and supportive
-I found the whole range, as covered, where all relevant to what I
wish to do.
-I found learning about Word press interesting as it is something I
have been considering doing this some time.
Comments on anything regarding the days activity?
I had a great time- learnt a lot today
Very informative, there is a need for some basic computer training
if you are a bit uncomputer wise.
All really useful and will change my online skills for the better!!!
I got a lot out of the day, will enhance my computer skills, thank
you.
10.
11. Where to next?
Continue to review HIV and life enhancing websites,
identify which are best/most valuable and why e.g.
Kickstarter
Monitoring tools ? (what’s accessed and why)
Skills assessment ?(fit for purpose e.g. socialising online)
E-Health/online self Mgmt- preparing individuals
Service through dominant platforms (FCBK), shift as
required.