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ASD Screening and Diagnosis: 
 Increasing Capacity in Community 
      Primary Care Providers


        Elizabeth Caronna, MD
Boston University/Boston Medical Center
  Developmental Behavioral Pediatrics
Screening for ASD in Massachusetts
• Since December, 2007 mandated screening for 
  developmental and behavioral problems with 
  approved screening tools for children 
  receiving Medicaid, as part of routine EPSDT 
  visits linked to reimbursement
• Developmental screening follows 
  recommendations from American Academy of 
  Pediatrics (Pediatrics, 2006, 2007), except 
  choice of specific measures are mandated 
  from approved list
Screening for ASD in Massachusetts
• M‐CHAT screening now widely used in 
  pediatric practices throughout the state
• Limitations of the M‐CHAT screener result in 
  increased referrals to specialists on basis of 
  “failed M‐CHAT”
• Delays between parental/primary care 
  provider (PCP) concern and evaluation by 
  specialist 
Barriers to Timely Diagnosis/Treatment
 • Many PCPs do not
   – Feel confident in their ability to identify warning signs 
     of ASD, or 
   – Know how to help families access services, even 
     when they are certain child has ASD
 • Disparity by SES apparent as level of parental 
   concern may influence PCPs’ referrals
 • Diagnosis by a specialist approved by Dept of 
   Public Health required to access intensive 
   services for children receiving Early Intervention
Increasing Capacity of PCPs
• Partnership with PCPs from community health 
  centers with ties to Boston Medical Center
• Goals
  – Improve clinical skills to identify subtle and overt 
    signs of ASD in conjunction with use of screeners
  – Educate PCPs about how to refer children for 
    treatment, available community resources
  – Decrease delay in diagnosis and treatment of ASD
DBP “Mini Fellowship”
• 8 hours per week of DBP time
• Formal clinical ADOS training
• Weekly clinic session (autism‐specific or  
  general DBP clinic), evaluating patients with 
  direct supervision by DBP attending
• Weekly afternoon didactic session with DBP 
  fellows
• Weekly one on one case and topic review with 
  DBP attending 
Training Results to Date
•   First two mini fellows completed program
    – MD from health center with large Spanish‐speaking 
      population 
    – NP practicing at Boston Medical Center to increase 
      links to primary care community
• Since completing program, health center MD can 
  provide initial diagnosis for children under 3 to 
  facilitate immediate initiation of intensive Early 
  Intervention (prior to evaluation by specialist)
• NP is first line provider to interact with PCPs who 
  refer patients for evaluation of ASD,  prioritizes 
  evaluations
Future Plans
• Continue “Mini Fellowship” and target specific 
  health centers to increase capacity in
  – Bilingual providers
  – Nurse practitioners
• Current mini fellows
  – 2 NPs from community health center serving 
    largely Vietnamese speaking population to 
    increase community linkage
Future Plans  
• Expand training in health centers regarding 
  how to access services and how to advocate 
  for children with ASD
• Increase links with NP training programs to 
  enhance DBP as part of their curriculum

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ASD Screening and Diagnosis: Increasing Capacity in Community Primary Care Providers

  • 1. ASD Screening and Diagnosis:  Increasing Capacity in Community  Primary Care Providers Elizabeth Caronna, MD Boston University/Boston Medical Center Developmental Behavioral Pediatrics
  • 2. Screening for ASD in Massachusetts • Since December, 2007 mandated screening for  developmental and behavioral problems with  approved screening tools for children  receiving Medicaid, as part of routine EPSDT  visits linked to reimbursement • Developmental screening follows  recommendations from American Academy of  Pediatrics (Pediatrics, 2006, 2007), except  choice of specific measures are mandated  from approved list
  • 3. Screening for ASD in Massachusetts • M‐CHAT screening now widely used in  pediatric practices throughout the state • Limitations of the M‐CHAT screener result in  increased referrals to specialists on basis of  “failed M‐CHAT” • Delays between parental/primary care  provider (PCP) concern and evaluation by  specialist 
  • 4. Barriers to Timely Diagnosis/Treatment • Many PCPs do not – Feel confident in their ability to identify warning signs  of ASD, or  – Know how to help families access services, even  when they are certain child has ASD • Disparity by SES apparent as level of parental  concern may influence PCPs’ referrals • Diagnosis by a specialist approved by Dept of  Public Health required to access intensive  services for children receiving Early Intervention
  • 5. Increasing Capacity of PCPs • Partnership with PCPs from community health  centers with ties to Boston Medical Center • Goals – Improve clinical skills to identify subtle and overt  signs of ASD in conjunction with use of screeners – Educate PCPs about how to refer children for  treatment, available community resources – Decrease delay in diagnosis and treatment of ASD
  • 6. DBP “Mini Fellowship” • 8 hours per week of DBP time • Formal clinical ADOS training • Weekly clinic session (autism‐specific or   general DBP clinic), evaluating patients with  direct supervision by DBP attending • Weekly afternoon didactic session with DBP  fellows • Weekly one on one case and topic review with  DBP attending 
  • 7. Training Results to Date • First two mini fellows completed program – MD from health center with large Spanish‐speaking  population  – NP practicing at Boston Medical Center to increase  links to primary care community • Since completing program, health center MD can  provide initial diagnosis for children under 3 to  facilitate immediate initiation of intensive Early  Intervention (prior to evaluation by specialist) • NP is first line provider to interact with PCPs who  refer patients for evaluation of ASD,  prioritizes  evaluations
  • 8. Future Plans • Continue “Mini Fellowship” and target specific  health centers to increase capacity in – Bilingual providers – Nurse practitioners • Current mini fellows – 2 NPs from community health center serving  largely Vietnamese speaking population to  increase community linkage
  • 9. Future Plans   • Expand training in health centers regarding  how to access services and how to advocate  for children with ASD • Increase links with NP training programs to  enhance DBP as part of their curriculum