2. Overview
State Implementation Grants for
Improving Services for Children
and Youth with Autism Spectrum
Disorder (ASD) and other
Developmental Disabilities
5. Overview
Panelists
Illinois and Wisconsin
Alaska and Washington
Missouri and Utah
Format
Model/Collaborators
National Performance Measures
Successes and Challenges
7. Collaborators
Illinois – Wisconsin –
The Autism Program of IL Title V
(TAP)
Partnership with the
12 TAP Centers across Illinois University of Wisconsin’s
Universities Waisman Center
Agencies Five Regional Centers for
Other Agencies & Programs CYSHCN
ARC of Illinois MCHB Partners
DSCC MCH LEND
HFS Family to Family Health
ICAAP Information Centers
8. National Performance Measure #1
Families will partner in decision making
Illinois Wisconsin
Illinois developed a Partners with ASD specific
curriculum for families to family organizations, Family
enhance the Family/Physician Voices and Parent to Parent
partnership of ARC Family to Parents actively participate in
Family all aspects of grant including
Families assisted in creating a a parent of a young child with
link to their Primary Care ASD is the training and
Physicians outreach coordinator for the
grant
9. National Performance Measure #2
CYSHCN will have access to medical home
Illinois Wisconsin
Early Autism and Referral Training and Technical
training provided to Primary Assistance to Primary Care
Care physicians Providers to spread Medical
Medical Home information Home quality improvements
provided to physicians through:
Early developmental screening
6 Primary Care practices will
ASQ-3 and MCHAT
initiate a Medical Home with Linking to community resources
monthly Quality Follow-up technical assistance
Improvement Team meetings
10. Successes
Illinois Wisconsin
Increased linkage between The establishment of the
system components – Wisconsin Community of
Families/Medical Community/ Practice on ASD and other
Professional Community Developmental Disabilities
Families and the Medical (CoP-ASD/DD); an approach
community have increased to increasing collaboration
awareness of available across key partners.
systems of care Regional Resource Mapping is
The Medical and Professional strengthening state resource
Communities are rallying database and regional
around Autism partnerships
11. Challenges
Illinois Wisconsin
Need to expand access to Some advocates question
appropriate services, balanced whether CAAI truly addresses
by a focus on quality the needs of “other
This results in questions developmental disabilities,”
regarding the level of and Wisconsin looks for ways
expertise required to provide to assure that our work
diagnostics, treatment, and impacts the broader CYSHCN
education population including ASD
Questions are being posed in a
system lacking appropriate
ASD expertise
13. Collaborators
Alaska – Washington–
Title V (Div. of Public Health) Title V (Dept. of Health)
Partners: Partners:
Governor’s Council on Disabilities & UW LEND Program
Ed. (Autism Ad Hoc Committee) Autism Society of Washington
University of Alaska Three State Children’s Hospitals
Center for Excellence in DD UW Autism Center
State Agencies Disability Council
Infant Learning Program/Behavioral
Health/Disabilities Services, etc. Schools
Families Birth to Three
Tribal Health Organizations Military
Health Providers (including Autism Coalitions
Children’s Hospital at Providence) Multiple local organizations
Child Care Providers
Multiple local organizations
14. National Performance Measure #3
CYSHCN will have adequate insurance
Alaska Washington
House Bill 187 Collaborate with parents
Governor’s Council & providers
Initiative – supported by Improve access to:
CAAI & committees Evidence-based medicine
Public Resource Systems of care
Medical education & licensure
Collaboration standards
Public Assistance/Medicaid
15. National Performance Measure #4
Children will be screened early and continuously
Alaska Washington
Train multidisciplinary Subcommittee work:
providers Community asset mapping
Develop & deliver provider Capacity building
specific trainings CAAI, LEND & expert
Streamline screening &
mentors provide TA
referral process (rural focus)
EPSDT collaboration
Public Health Nursing
Headstart
16. Successes
Alaska Washington
New and renewed connections LEND/CAAI Advisory Council
with Tribal Health partnership
Organizations and other Stakeholder investment is
statewide health and autism rich and diverse
resources Local communities excited to
Rapid Workforce engage on many levels
Development planning Screening
Tailored trainings for health Training
care workers (rural focus) Capacity
17. Challenges
Alaska Washington
Geographic and cultural Large interest and Council
differences membership
Rural/Bush communities are Control of process and
extremely isolated (no road system) communication
with limited health resources
New Staff Hiring Process
In-state travel costly and difficult
Timeliness/team building
“Silo” agencies Economic barriers (time, regulations,
Need increased knowledge of other contracts, etc.)
provider roles/resources
Geographic (large state)
Lack of service providers Travel costly and time consuming
Urban and Rural issue
19. Collaborators
Missouri – Utah –
University of Missouri Title V
Partners: Partners:
Department of Health/Title V UT State Univ. Center for Persons
Department of Mental Health/ with Disabilities
Developmental Disabilities Univ. of UT Health Sciences
UCEDD/UMKC/LEND Center, Dept of Pediatrics
MO-FEAT, MO Family Voices UT Family Voices
MO Centers for Autism & DDs UT Pediatric Partnership to
Improve Healthcare Quality
20. National Performance Measure #5
Community-based services will be organized
Missouri Utah
ASD care coordination Enhanced evidence-
program expanded to based information
3 sites available on Medical
Dissemination of MO Home website:
ASD Navigation guide medicalhomeportal.org
21. National Performance Measure #6
CYSHCN will receive the services necessary to transition
Missouri Utah
Autism Intervention Trained Family
Conference featured Navigators to support
transition workshops families
Statewide Youth Family conference
Advisory Council and regarding Utah
ASD Youth Coalition systems of care
22. Successes
Missouri Utah
ASD training module Medical Home
online Learning
Family Mentoring Collaboratives:
expansion Completed for medical
Missouri Autism teams and scheduled
Guidelines Initiative for dental teams
23. Challenges
Missouri Utah
Role of Title V Recruiting family
program physicians for Medical
Home Learning
Collaboratives