"Early detection, better diagnostic tools, and more effective treatments are resulting in long-term cancer survivorship, with 62% of adults and 77% of pediatric cancer patients now living more than 5 years beyond their initial diagnosis. While survival rates are rising…according to the National Cancer Institute there are nearly 12 million cancer survivors in the United States. The hurdle now facing many cancer survivors is how to achieve long-term quality of life after treatment has ended. According to the National Action Plan for Cancer Survivorship, fully one-third of survivors say they experience ongoing physical, psychological, or financial consequences of their cancer diagnosis and treatment. Recognizing the need for a comprehensive approach to long-term survivorship care, many academic medical centers, community hospitals and oncologists in private practices are developing survivorship care programs to manage the ongoing care of their patients. In planning survivorship services, however, we need to delineate survivorship from other periods of care, so we take a pragmatic approach and define survivorship as the period in which patients treated with curative intent have completed their initial therapy and require follow-up care.”

1. How bad will the economy get, and how long will the crisis last? Is the economic recovery program going to help or hurt healthcare?
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BEST PRACTICES IN
CANCER SURVIVORSHIP AND SUPPORTIVE CARE
JULY 28 – JULY 29, 2011 – BALTIMORE, MARYLAND
Highlighting the modern trends, pioneering strategies and best case studies from leading healthcare organizations that have
implemented successful Cancer Survivorship and Supportive Care Programs geared at increasing cancer survivor
survival rates with the use of better diagnostic tools, more effective treatments, and early detection strategies with the major
goal of achieving long-term quality of life after treatment has ended.
Confirmed Speakers Confirmed Speakers
5 Reasons To Attend
Lillie Shockney, RN, BS, MAS Mandi Pratt-Chapman, MA
Event Chairperson  Outstanding Case-Study Presentations Director, Division of Cancer Survivorship/Co-
Director of Breast Center, University Director, Center for the Advancement of Cancer
Distinguished Service Associate Professor of  Leading-Edge Techniques & Solutions Survivorship, Navigation & Policy
Breast Cancer, JHU School of Medicine GW CANCER INSTITUTE
JOHNS HOPKINS AVON FOUNDATION  Exclusive Speaker Face-to-Face Time
BREAST CENTER Julie Silver, MD
 Excellent Networking Opportunities Assistant Professor
Deborah Boyle, RN, MSN, AOCNS, FAAN HARVARD MEDICAL SCHOOL
Oncology Clinical Nurse Specialist  Learn From Top Facilities & Health Systems
BOYLE CONSULTING
Gary Deng, MD, PhD
Kenneth D. Miller, MD President, Society for Integrative Oncology,
Co-Director, Perini Family Survivors' Center; Integrative Medicine Service
Director, Lance Armstrong Adult Cancer
Available via Downloadable Link MEMORIAL SLOAN-KETTERING CANCER
Survivorship Program CENTER
DANA-FARBER CANCER INSTITUTE • Speaker Presentations
Elizabeth Wiley, MS, CGC
Tanya Abreu • Event Handouts Certified Genetic Counselor
President and National Program Director • Sponsor Brochures JOHNS HOPKINS HOSPITAL
SPIRIT OF WOMEN
Steve Bonner
Paul Pugsley Username: CSSC1 President and Chief Executive Officer
Director of Oncology Services Password: e6tn2jf6au CANCER TREATMENT CENTERS OF AMERICA
PRIORITY CONSULT
ONSITE CONTACTS: Akin Akinsanya – (414) 349-3142 OR Brian Zech – (414) 405-1710
Event Partners & Sponsors
CONFERENCE DAY 1:
8:00 AM – 8:30 AM Registration, Continental Breakfast & Exhibits
8:30 AM – 8:45 AM Chairperson’s Welcoming Remarks: Lillie Shockney, RN, BS, MAS
8:45 AM – 9:45 AM PREPARING FOR THE PARADIGM SHIFT- WHO WILL TAKE CARE OF THE CANCER SURVIVORS AT YOUR
CANCER CENTER?
Lillie Shockney, RN, BS, MAS, University Distinguished Service Assistant Professor of Breast Cancer, Administrative Director of
Breast Center Assistant Professor, Dept of Surgery, Assistant Professor, Dept of Obstetrics and Gynecology, JHU School of
Medicine Assistant Professor, JOHNS HOPKINS AVON FOUNDATION BREAST CENTER

2. (Case-Study Focused)
It has been projected that by the year 2020 there will be a 41-48% deficit of oncology specialists in the United States. This is due
to a steady increase in the number of people being diagnosed with cancer while at the same time there is a steady decrease in
the number of healthcare professionals choosing oncology as their specialty. Survivorship care is paramount and cannot be
ignored. The necessity to develop and implement a plan now to address the needs of long term survivorship care is critical for the
success of any comprehensive cancer program. Additionally it no longer is “enough” for a patient to survive their cancer; the
patient also wants to have good quality of life as a survivor.
• Understand the Cause of the Impending Shortage of Oncology Specialist in the US
• Identify the Key Factors that Survivors are Dealing with Related to Long Term Side Effects/Development of the New
Cancers
• Learn How Johns Hopkins Has Addressed This Issue For Breast Cancer Survivors With A “Shared Care Model” Along
With a “Transitional Survivorship Consultation”
• Understand the Necessity of Partnering with PCPS and Gynecologist as Well as Advance Practice Nurses in Your
Community to Educate Them About Survivorship Care Needs
• Learn Some Methods of Incorporating Survivorship Care Into the Nursing School and Medical Residency Curriculum
Including Fellowship Training Programs
9:45 AM – 10:45 AM CANCER REHABILITATION: THE NEXT FRONTIER IN SURVIVORSHIP CARE
Julie Silver, MD, Assistant Professor, HARVARD MEDICAL SCHOOL
(Case-Study Focused)
Cancer rehabilitation is an emerging part of the cancer care continuum. Similar to other rehabilitation models, cancer rehab
should involve a multi-disciplinary team with core rehab professionals including physicians (physiatrists), nurses and
physical/occupational/speech therapists. Though cancer survivors are often counseled to “accept a new normal” this may come at
a time when there is still healing that may be accomplished. Rehabilitation interventions are typically part of the care continuum
for other serious illnesses and injuries such as stroke, spinal cord injury, traumatic brain injury, orthopedic and cardiac conditions
and trauma. This presentation will cover the evidence-based benefits of cancer rehab and how it can be inserted effectively into
the cancer care continuum—helping survivors to heal optimally before accepting a new normal.
• Identify the 10 Key Recommendations From the Institute of Medicine’s Report “From Cancer Patient to Cancer Survivor:
Lost in Transition”
• List the Steps Needed to Develop a Multidisciplinary Cancer Survivorship Team That Includes Cancer Rehabilitation
• Cite Barriers to Implement Cancer Rehabilitation Care
• Describe Specific Examples of Evidence-Based Care in Cancer Rehabilitation
• Energy Length of Stays as it Relates to Patient Outcomes
• Energy Management – Demand Side vs. Supply Side
10:45 AM – 11:00 AM Morning Break & Refreshments
11:00 AM – 12:00 PM THE ROLE OF CANCER GENETICS – IDENTIFY AND MANAGE THOSE AT HIGH RISK
Elizabeth Wiley, MS, CGC, Certified Genetic Counselor, JOHNS HOPKINS HOSPITAL
(Case-Study Focused)
Approximately 5-10% of cancers are hereditary, and genetic testing is an increasingly significant component of prevention, early
detection, and treatment of cancers. Certified genetic counselors play an important role in cancer centers by counseling and
educating individuals at risk for a hereditary cancer syndrome, facilitating genetic testing, and coordinating follow-up care. There
are various approaches to implementing genetic programs, so medical centers are able to integrate genetic counselors in a
manner that complements their healthcare delivery model.
• Overview of Cancer Genetics
• How Genetic Testing Plays a Role in Cancer Prevention and Early Detection
• Benefit of Utilizing a Certified Genetic Counselor to Perform Genetic Counseling and Facilitate Genetic Testing
• Review Models of Implementing Cancer Genetics Programs in Hospitals
12:00 PM – 1:00 PM Networking Luncheon
1:00 PM – 1:50 PM INTEGRATIVE MEDICINE AND CANCER SURVIVORSHIP: WHAT PATIENTS CAN DO FOR THEMSELVES
Gary Deng, MD, PhD, President, Society for Integrative Oncology, Integrative Medicine Service, MEMORIAL SLOAN-
KETTERING CANCER CENTER
(Case-Study Focused)
Many cancer survivors are interested in exploring complementary and alternative therapies. What are the underlying psychological
needs? How should we guide patients to take advantage of some of those therapies while avoiding harm? What more can we do
to promote health and wellness in body, mind, spirit in cancer survivors? These are the issues which will be discussed in this
session.
• Recognize Cancer Survivor’s Needs to Explore Complementary and Alternative Medicine
• Identify Common Complementary Therapies Relevant to Cancer Care
• Define the Key Principles of Integrative Medicine in the Context of Cancer Survivorship
• Describe How Integrative Medicine Can Facilitate Self-Care

3. • Understand the Added Value and the Perceived Barriers of an Integrative Oncology Program
1:50 PM – 2:40 PM SURVIVORSHIP NAVIGATION: CORE OUTCOMES AND SUCCESS STORIES
Mandi Pratt-Chapman, MA, Director, Division of Cancer Survivorship/Co-Director, Center for the Advancement of Cancer
Survivorship, Navigation & Policy, GW CANCER INSTITUTE
(Case-Study Focused)
The George Washington Cancer Institute (GWCI) is a leader in the fields of patient navigation and cancer survivorship. Through
the 2010 patient navigation leadership summit coordinated by the American Cancer Society (ACS), GWCI spearheaded efforts to
establish common outcome measures for patient navigation in the post-treatment period (Survivorship Navigation). Through
GWCI’s Center for Advancement of Cancer Survivorship, navigation and policy and the work of the National Cancer Survivorship
Resource Center (NCSRC) – A collaboration between the ACS and GWCI, funded by a 5 year cooperative agreement between
the ACS and the Centers for Disease Control and Prevention – GWCI provides training for other navigators to expand navigation
through the post-treatment transition. This presentation will outline core measures of survivorship navigation and ongoing
activities of the NCSRC to ensure optimal access to care for cancer survivors at a national level. The session will invite questions
and engagement from the audience to assess how best to catalyze survivorship navigation as a field and appropriately train
navigators for this special role.
• Describe the Role of The Survivorship Navigator
• List Core Outcomes of Survivorship Navigation
• Describe Success Stories of Survivorship Navigation
• Contribute to an Assessment of Ongoing Training Needs to be Considered by the NCSRC
2:40 PM – 3:00 PM Afternoon Break & Refreshments
3:00 PM – 4:30 PM PANEL DISCUSSION: INTERDISCIPLINARY ENGAGEMENT: WHO SHOULD BE ‘AT THE TABLE’
Session Moderator: Lillie Shockney, RN, BS, MAS, JOHNS HOPKINS AVON FOUNDATION BREAST CENTER
Session Panelists:
• Deborah Boyle, RN, MSN, AOCNS, FAAN, Boyle Consulting
• Gary Deng, MD, PhD, Memorial Sloan-Kettering Cancer Center
• Anne Willis, MA, The George Washington University Medical Center Cancer Institute
A lively, thorough exploration into healthcare through an interactive panel discussion will focus on measuring and benchmarking
cancer survivorship best practices. This session will discuss methods and case examples that focus on understanding
Interdisciplinary Engagement and who needs to be involved. Collaborate amongst each other to decipher and implement best
practices centered at quality patient care delivery.
Topics of Discussion:
• Streamlined Ways to Develop Survivorship Care Plans
• Best Practices for Cancer Rehabilitation Care
• Motivating Survivorship Stakeholders at a National Level
4:30 PM – 4:45 PM DAY 1 RECAP – Led By: Lillie Shockney, RN, BS, MAS – END OF DAY 1
CONFERENCE DAY 2:
8:00 AM – 9:30 AM Registration, Continental Breakfast & Exhibits
8:30 AM – 8:45 AM Chairperson’s Day 2 Opening Remarks: Lillie Shockney, RN, BS, MAS
8:45 AM – 9:45 AM PROCESSES, PROGRAMS AND PRACTICALITIES TO GENERATE EXEMPLARY CANCER SURVIVORSHIP CARE
Deborah Boyle, RN, MSN, AOCNS, FAAN, Oncology Clinical Nurse Specialist, BOYLE CONSULTING
(Case-Study Focused)
Based on the presenter’s decades-long research, advocacy and program planning experiences, this presentation will share key
considerations for developing novel cancer survivorship initiatives. Session participants will hear recommendations specific to
process enhancements, programmatic elements for inclusion in a comprehensive ‘menu’ of offerings, and practical suggestions
for contemporary program development. Emphasis will be placed on the creation of an individualized endeavor unique to specific
markets and consumer needs.
• Strategy Suggestions Unique to Preliminary and Early Phase Program planning
• Two Process Considerations For Use During Initial Survivorship Endeavor Deliberations
• Key Components of an Initiative Matrix Based on Evidence-Based Survivor Needs Assessment
• Two Elements of a Future’s-Oriented Cancer Survivorship Care Delivery Model
9:45 AM – 10:45 AM “SEASONS OF SURVIVORSHIP”- OPTIMIZING CANCER SURVIVORSHIP CARE
Kenneth D. Miller, MD, Co-Director, Perini Family Survivors' Center; Director, Lance Armstrong Adult Cancer Survivorship
Program, DANA-FARBER CANCER INSTITUTE
(Case-Study Focused)
There are 12 million cancer survivors in the U.S. now and that number is expected to increase to 20 million by 2020. This will be a
review of the natural history of cancer survivorship including during treatment, transitioning back to a “new normal”, surveillance,
and then permanent survivorship. In addition, we will discuss the specific medical, psychosocial, and “practical” needs of cancer

4. survivors during each season and care models for providing this care. The need for a coordinated care approach involving both
oncologists and primary care provides will be discussed as well.
• Identify Some of the Common Long-Term Toxicities of cancer Treatment
• Discuss Some Strategies for Early Identification of Long-Term Effects
• Discuss the Natural History of Cancer Survivorship
• Discuss the Integration of Oncology and Primary Care
10:45 AM – 11:00 AM Morning Break & Refreshments
11:00 AM – 12:00 PM WHEN TO MOVE THE HEALING FROM THE HOSPITAL TO THE HOME: LESSONS IN SURVIVAL, CANCER CARE
MARKETING AND HOSPITAL BUSINESS
Tanya Abreu, President and National Program Director, SPIRIT OF WOMEN
Presentation will utilize research, cancer program case studies, and interactive discussion. Attendees will explore, discuss, and
design models for extended cancer care outside of the clinical setting that:
• Improve Survivor Outcomes
• Enhance Cancer Program Brand and Reputation
• Contribute to the Science of Healing
12:00 PM – 1:00 PM Networking Luncheon
1:00 PM – 1:50 PM CTCA AND PATIENT EMPOWERED CARE – FROM OUR PATIENT’S PERSPECTIVE
Steve Bonner, President and Chief Executive Officer, SPIRIT OF WOMEN
(Case-Study Focused)
Introduction to CTCA and patient empowered care. Steve will introduce one of our patients, Jayne Ragner and describe her
journey with cancer and her journey as a survivor with CTCA; What is CTCA doing to support her both while at CTCA and as a
patient in remission; and how does this add to the national dialogue and initiative.
• Patient Empowered Medicine
• How Treating the Whole Person is Important in Cancer Care and Survivorship
• What Does Quality Look Like in Cancer Care
• What Are Our National Thought Leaders Are Saying
1:50 PM – 2:50 PM RETREATS FOR CANCER PATIENTS AND SURVIVORS
Lillie Shockney, RN, BS, MAS, University Distinguished Service Assistant Professor of Breast Cancer, Administrative Director of
Breast Center Assistant Professor, Dept of Surgery, Assistant Professor, Dept of Obstetrics and Gynecology, JHU School of
Medicine Assistant Professor, JOHNS HOPKINS AVON FOUNDATION BREAST CENTER
Two types of retreats will be presented -- one on survivor retreats for patients who have completed their acute treatment and are
having difficulty re-engaging in their lives emotionally healthy again. The second retreat described will be for those with metastatic
cancer and living with their disease for several years to even a decade or more -- what are best termed as the "forgotten
survivors." These individuals and their families need special support and time to connect with others in the same situation,
discuss fears regarding the future and make plans for what lies ahead while still maintaining a sense of hope -- being optimistic for
as long as it is realistic, and having their voice heard as a patient who is living with cancer.
Survivor Retreats:
• Recognize the Psychosocial Issues and Long Term Side Effects Impacting Patients Ability to Move Forward in Life and
Believe They Are "Survivors" of Their Cancer
• Understand the Severity for Some Patients of Fear of Recurrence and Its Ability to Paralyze a Patient From Enjoying Life
Cancer Free
• Learn Successful Ways to Create and Executive Retreats That Facilitate Cancer Survivors in Moving Forward in Their Lives
and Ready to Support Someone Else in the Future Newly Diagnosed
Metastatic Retreats:
• Understand the Sense of Displacement Cancer Patients with Metastatic Disease Feel When in the Presence of Others
Who are Cancer Survivors
• Recognize the Importance of Serving as a Patient Advocate for Patients Who Are Not Able for Any Reason to Express
Their Needs and Desires Including Quality of Life Expectations
• Recognize the Impact Metastatic Disease Has on Family Care Givers and Friends
2:50 PM – 3:00 PM Afternoon Break & Refreshments
3:00 PM – 4:30 PM GROUP DISCUSSION: A BLUEPRINT FOR SUCCESS: DEVELOPING & GROWING CANCER SURVIVORSHIP
PROGRAMS
Session Moderator: Anne Willis, MA, THE GEORGE WASHINGTON UNIVERSITY MEDICAL CENTER CANCER INSTITUTE
This interactive group discussion will openly discuss what is needed to develop and grow a Cancer Survivorship Program and
what factors that have the greatest impact on the development and excellence of your programs. ***Audience Participation Is
Highly Encouraged.