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Motor Neurone Disease Pain and Associated Psychological  Perspectives in Terminal Illness BEGIN Click for Full Text
[object Object],[object Object],Instructions The audio is synched to run with the slides and any information on the slides will automatically progress with the audio. At the end of each slide you will be able to either go back to the previous slide, replay the current slide or progress to the next slide using the navigation buttons on the bottom of the page. ,[object Object],Next Previous Replay
[object Object],[object Object],[object Object],Defining Terminal Illness “ Terminal illness is an irreversible illness that, without life sustaining procedures, will result in death in the near future.”   (Terminal Illness Law and Legal Definition, 2011)   ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Next Previous Replay
Defining Pain ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],An unpleasant sensory & emotional experience associated with actual or potential tissue damage Next Previous Replay
Defining Motor  Neurone Disease MND is a disabling and ultimately fatal disease that has few effective treatments  ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Next Previous Replay
Pain Associated with MND ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Next Previous Replay
Pain Associated with MND -  Physical Next Previous Replay
Management of Pain Associated with MND -  Physical ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Next Previous Replay
Pain Associated with MND -  P sychological ,[object Object],[object Object],[object Object],[object Object],[object Object],Physicians and others involved in the care of patients with MND need to be aware that depression associated with pain is a significant problem irrespective of the level of physical disability   Tedman, Young & Williams, 1997 Next Previous Replay
Measurement of Depression Associated With Pain in MND ,[object Object],[object Object],Next Previous Replay
Measurement of Depression Associated With Pain in MND  cont… ,[object Object],[object Object],Next Previous Replay
Management of Pain Associated with MND -  Psychological Next Previous Replay
Comorbidity Factors   (Desire for Death & Suicidal Thoughts)   ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],“ Hope and hopelessness are important issues for MND patients, with hopelessness contributing significantly to suffering and for some a desire for hastened death” (McLeod & Clarke, 2007) Next Previous Replay
Suicide Vulnerability  Factors ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Next Previous Replay
Suicide Facts According to  Maytal and Stern, 2006 ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Next Previous Replay
Summary ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Next Previous Replay
Summary cont… ,[object Object],[object Object],[object Object],[object Object],[object Object],Next Previous Replay
Evaluation & Suggestions ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Next Previous Replay
Final Thoughts ,[object Object],Next Previous Replay
References Return to 1 st  Slide Albert, S. M., Whitaker, A., Rabkin, J. G., del Bene, M., Tider, T., O’Sullivan, & Mitsumoto, H. (2009). Medical and Supportive Care among People with ALS in the Months before Death or Tracheostomy. Journal of Pain and Symptom Management. Vol. 38, No.4, 546 – 553. Anand, K.J.S., Craig, K.D. (1996).  New Perspectives on the definition of pain.  Pain. Vol. 67, Issue 1. P.3-6 Bohannon, R.W., DePasquale, L. (2010).  Physical Functioning Scale of the Short-Form (SF)36: Internal Consistency and Validity with Older Adults.  Journal of Geriatric Physical Therapy. Vol.33, Issue1, p.16-18 Brunner, L., S. & Smeltzer, S., C., O. (2010). Brunner & Suddarth’s textbook of medical-surgical nursing. Wolters Kluwer Health/Lippincott Williams & Wilkins: Philadelphia. DeLisa, J. A. Gans, B. M. & Walsh, N. E. (2005). Physical medicine and rehabilitation: principles and practice. Lippincott Williams & Wilkins: Philadelphia. Dobratz, M.C. (1990).  The Life Closure Scale: a measure of psychological adaptation in death and dying.  Hosp. J; Vol. 6. Issue 3. P. 1-15 Ganzini, L., Silveira, M. J. & Johnston, W.S. (2002). Predictors and Correlates of Interest in Assisted Suicide in the Final Month of Life Among ALS Patients in Oregon and Washington. Journal of Pain and Symptom Management. Vol. 24, No.3, 312 – 317. Knight, K., L. & Draper, D., O. (2008). Therapeutic modalities: the art and the science. Lippincott Williams & Wilkins: Baltimore, MD. Lautenbacher, S. & Filingim, R., B. (2004). Pathophysiology of pain perception. Kluwer Academic /Plenum: New York. Lindner, M. D., Bourin, C., Chen, P., McElroy, J. F., Leet, J. E., Hogan, J. B., Stock, D. A. & Machet, F. (2006). Adverse Effects of Gabapentin and Lack of Anti-Allodynic Efficacy of Amitriptyline in the Streptozotocin Model of Painful Diabetic Neuropathy. Experimental and Clinical Psychopharmacology. Vol. 14, No. 1, 42 – 51.  Lloyd-Williams, M. & Riddleston, H. (2002). The Stability of Depression Scores in Patients Who Are Receiving Palliative Care. Journal of Pain and Symptom Management. Vol. 24, No. 6, 593 – 597. Mancini, R., L. (2008). Motor neuron disease research progress.  Nova Biomedical Books: New York. Marcus, D., A. (2009). Chronic pain: a primary care guide to practical management. Humana Press, cop.: New York, NY. Maytal, G., Stern, T.A. 2006.  The Desire for death in the setting of terminal illness: A case discussion.  Primary Care Companion Journal of Psychiatry. Vol. 8. Issue 5. McLeod, J.E. & Clarke, D.M. (2007).  A review of psychosocial aspects of motor neurone disease.  Journal of Neurological Science, 258 (1-2) 4-10 Merskey, H. (1991).  The Definition of Pain.  European Psychiatry. Vol. 6, Issue 4. p.153-159 Miller, R.G., Mitchell, J.D., Lyon, M., Moore, D.H. (2007).  Riluzole for Amyotrophic Lateral Sclerosis (ALS)/Motor Neurone Disease (MND).  Cochrane Database System Review. 2007 Jan 24; (1); CD1001447 Mitsumoto, H. (2009). Amyotrophic lateral sclerosis: a guide for patients and families. New York : Demos Health.  Moore, C., McDermott, C.J., Shaw, P.J. (2008).  Clinical aspects of Motor Neurone Disease.  Medicine. Vol. 36, Issue 12. P.640-645 McLeod, J.E., Clark, D.M. (2007).  A Review of psychosocial aspects of Motor Neurone Disease.  Journal of the Neurological Sciences. Vol. 258 p.4-10 Ng, L., Khan, F. & Mathers, S. (2009). Multidisciplinary Care for Adults with Amyotrophic Lateral Sclerosis or Motor Neuron Disease. Cochrane Database of Systematic Reviews: Issue 4, Art No. CD007425. The Cochrane Collaboration. Pub by John Wiley & Sons, Ltd Serpell, M. G. (2002). Gabapentin in Neuropathic Pain Syndromes: A Randomized, Double-Blind, Placebo-Controlled Trial. Pain. 99, 557 – 566. Stiel, S., Hollberg, C., Pestinger, M., Ostgathe, C., Friedemann, N., Lindena, G., Elsner, F.,  Radbruch, L. and the Members of the HOPE Steering Group. (2011). Subjective Definitions of Problems and Symptoms in Palliative Care. Palliative Care: Research and Treatment. 5, 1 – 7. Tang, N.K.Y., & Crane, C. (2006).  Suicidality in chronic pain: a review of the prevalence, risk factors and psychological links.  Psychological Medicine. Vol. 36. P. 575-586 Tedman, B.M., Young, C.A. & Williams, I.R. (1997).  Assessment of depression in patients with motor neurone disease and other neurologically disabiling illness.  Journal of Neurological Sciences. 152. Supp 1:S75-9 Terminal  Illness Law & Legal Definition (2011).  Retrieved on 13th May 2011 from http://definitions.uslegal.com/t/terminal-illness/ Zatzick, D. F. & Dimsdale, J. E. (1990). Cultural Variations in Response to Painful Stimuli. Psychosomatic Medicine. 52: 544 – 557.

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Pain in MND

  • 1. Motor Neurone Disease Pain and Associated Psychological Perspectives in Terminal Illness BEGIN Click for Full Text
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  • 7. Pain Associated with MND - Physical Next Previous Replay
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  • 12. Management of Pain Associated with MND - Psychological Next Previous Replay
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  • 20. References Return to 1 st Slide Albert, S. M., Whitaker, A., Rabkin, J. G., del Bene, M., Tider, T., O’Sullivan, & Mitsumoto, H. (2009). Medical and Supportive Care among People with ALS in the Months before Death or Tracheostomy. Journal of Pain and Symptom Management. Vol. 38, No.4, 546 – 553. Anand, K.J.S., Craig, K.D. (1996). New Perspectives on the definition of pain. Pain. Vol. 67, Issue 1. P.3-6 Bohannon, R.W., DePasquale, L. (2010). Physical Functioning Scale of the Short-Form (SF)36: Internal Consistency and Validity with Older Adults. Journal of Geriatric Physical Therapy. Vol.33, Issue1, p.16-18 Brunner, L., S. & Smeltzer, S., C., O. (2010). Brunner & Suddarth’s textbook of medical-surgical nursing. Wolters Kluwer Health/Lippincott Williams & Wilkins: Philadelphia. DeLisa, J. A. Gans, B. M. & Walsh, N. E. (2005). Physical medicine and rehabilitation: principles and practice. Lippincott Williams & Wilkins: Philadelphia. Dobratz, M.C. (1990). The Life Closure Scale: a measure of psychological adaptation in death and dying. Hosp. J; Vol. 6. Issue 3. P. 1-15 Ganzini, L., Silveira, M. J. & Johnston, W.S. (2002). Predictors and Correlates of Interest in Assisted Suicide in the Final Month of Life Among ALS Patients in Oregon and Washington. Journal of Pain and Symptom Management. Vol. 24, No.3, 312 – 317. Knight, K., L. & Draper, D., O. (2008). Therapeutic modalities: the art and the science. Lippincott Williams & Wilkins: Baltimore, MD. Lautenbacher, S. & Filingim, R., B. (2004). Pathophysiology of pain perception. Kluwer Academic /Plenum: New York. Lindner, M. D., Bourin, C., Chen, P., McElroy, J. F., Leet, J. E., Hogan, J. B., Stock, D. A. & Machet, F. (2006). Adverse Effects of Gabapentin and Lack of Anti-Allodynic Efficacy of Amitriptyline in the Streptozotocin Model of Painful Diabetic Neuropathy. Experimental and Clinical Psychopharmacology. Vol. 14, No. 1, 42 – 51. Lloyd-Williams, M. & Riddleston, H. (2002). The Stability of Depression Scores in Patients Who Are Receiving Palliative Care. Journal of Pain and Symptom Management. Vol. 24, No. 6, 593 – 597. Mancini, R., L. (2008). Motor neuron disease research progress. Nova Biomedical Books: New York. Marcus, D., A. (2009). Chronic pain: a primary care guide to practical management. Humana Press, cop.: New York, NY. Maytal, G., Stern, T.A. 2006. The Desire for death in the setting of terminal illness: A case discussion. Primary Care Companion Journal of Psychiatry. Vol. 8. Issue 5. McLeod, J.E. & Clarke, D.M. (2007). A review of psychosocial aspects of motor neurone disease. Journal of Neurological Science, 258 (1-2) 4-10 Merskey, H. (1991). The Definition of Pain. European Psychiatry. Vol. 6, Issue 4. p.153-159 Miller, R.G., Mitchell, J.D., Lyon, M., Moore, D.H. (2007). Riluzole for Amyotrophic Lateral Sclerosis (ALS)/Motor Neurone Disease (MND). Cochrane Database System Review. 2007 Jan 24; (1); CD1001447 Mitsumoto, H. (2009). Amyotrophic lateral sclerosis: a guide for patients and families. New York : Demos Health. Moore, C., McDermott, C.J., Shaw, P.J. (2008). Clinical aspects of Motor Neurone Disease. Medicine. Vol. 36, Issue 12. P.640-645 McLeod, J.E., Clark, D.M. (2007). A Review of psychosocial aspects of Motor Neurone Disease. Journal of the Neurological Sciences. Vol. 258 p.4-10 Ng, L., Khan, F. & Mathers, S. (2009). Multidisciplinary Care for Adults with Amyotrophic Lateral Sclerosis or Motor Neuron Disease. Cochrane Database of Systematic Reviews: Issue 4, Art No. CD007425. The Cochrane Collaboration. Pub by John Wiley & Sons, Ltd Serpell, M. G. (2002). Gabapentin in Neuropathic Pain Syndromes: A Randomized, Double-Blind, Placebo-Controlled Trial. Pain. 99, 557 – 566. Stiel, S., Hollberg, C., Pestinger, M., Ostgathe, C., Friedemann, N., Lindena, G., Elsner, F., Radbruch, L. and the Members of the HOPE Steering Group. (2011). Subjective Definitions of Problems and Symptoms in Palliative Care. Palliative Care: Research and Treatment. 5, 1 – 7. Tang, N.K.Y., & Crane, C. (2006). Suicidality in chronic pain: a review of the prevalence, risk factors and psychological links. Psychological Medicine. Vol. 36. P. 575-586 Tedman, B.M., Young, C.A. & Williams, I.R. (1997). Assessment of depression in patients with motor neurone disease and other neurologically disabiling illness. Journal of Neurological Sciences. 152. Supp 1:S75-9 Terminal Illness Law & Legal Definition (2011). Retrieved on 13th May 2011 from http://definitions.uslegal.com/t/terminal-illness/ Zatzick, D. F. & Dimsdale, J. E. (1990). Cultural Variations in Response to Painful Stimuli. Psychosomatic Medicine. 52: 544 – 557.