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Enhancing carers' and cared for people's quality of
life through developing carers’ digital and caring
skills -The DISCOVER project
Dr Verina Waights,
The Open University
DISCOVER
Pilot Site
Pilot Site
Pilot Site
Pilot Site
Partners: Greece (1), Spain (2), Holland (1), UK (3), and Ireland (1).
Family carers
 Caring for family, friends
or neighbours
 not defined by gender,
age, race, ethnicity, culture or
economic grouping
 Long standing physical health
problems, stress, anxiety and
depression (Pinquart & Sorensen; 2003, Mencap 2013)
 Likely to be financially less well off or living in poverty
 Likely to be socially isolated due to caring role
The Skills Zone
Local and National Services
My map of local services
Websites of national organisations
Using the web
Quick reads and videos
Reducing the risk of falls
Findings: knowledge and recommendations
0
20
40
60
80
100
more
supported
carer/care
worker
cared-for
person
employer
Carers (%)
Carers feel more supported/would recommend DISCOVER
Family
Employed
0
20
40
60
80
100
services websites computing
skills
technologies
for care
health
Carers (%)
Carers new knowledge
Family
Employed
Carer and Stakeholder views
The amount of information in the resources is impressive… I will definitely be
using it in my caring role Granddaughter carer, UK
All of these [topics] are good for beginners [new carers]… these will help to solve
problems as they arise. Older family carer, Netherlands
It is an amazing concept, bringing it [Services etc] all together
Carer outreach worker, UK
DISCOVER can improve caregivers’ skills and the quality of the services
Care manager, Spain
I have learned a great deal of new information [about] the condition of the
person I care for Caregiver, Greece
Findings -wellbeing
Statement
Over the last two weeks…
Carers who felt this
all or most of the
time
Carers who felt this
only some of the
time or never
Family
carers
Employed
carers
Family
carers
Employed
carers
I have felt cheerful and in good spirits
I have felt calm and relaxed
I have felt active and vigorous
I woke up feeling fresh and rested
My daily life has been filled with things that
interest me
44%
44%
39%
25%
35%
48%
43%
58%
26%
59%
26%
12%
13%
21%
17%
1%
8%
1%
1%
3%
Moving forward
DISCOVER
 Core shape but flexibility to be tailored for each
country
 Working with other organisations that support
formal and informal carers
 Providing a specialist service that complements
existing provision and can be embedded by provider
Challenges
 Improving confidence of carers to use technologies
 Raising awareness of opportunities from being
online/using telehealth and telecare
Using DISCOVER

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Enhancing carers' quality of life through digital skills

  • 1. Enhancing carers' and cared for people's quality of life through developing carers’ digital and caring skills -The DISCOVER project Dr Verina Waights, The Open University
  • 2. DISCOVER Pilot Site Pilot Site Pilot Site Pilot Site Partners: Greece (1), Spain (2), Holland (1), UK (3), and Ireland (1).
  • 3. Family carers  Caring for family, friends or neighbours  not defined by gender, age, race, ethnicity, culture or economic grouping  Long standing physical health problems, stress, anxiety and depression (Pinquart & Sorensen; 2003, Mencap 2013)  Likely to be financially less well off or living in poverty  Likely to be socially isolated due to caring role
  • 5. Local and National Services My map of local services Websites of national organisations
  • 8. Reducing the risk of falls
  • 9. Findings: knowledge and recommendations 0 20 40 60 80 100 more supported carer/care worker cared-for person employer Carers (%) Carers feel more supported/would recommend DISCOVER Family Employed 0 20 40 60 80 100 services websites computing skills technologies for care health Carers (%) Carers new knowledge Family Employed
  • 10. Carer and Stakeholder views The amount of information in the resources is impressive… I will definitely be using it in my caring role Granddaughter carer, UK All of these [topics] are good for beginners [new carers]… these will help to solve problems as they arise. Older family carer, Netherlands It is an amazing concept, bringing it [Services etc] all together Carer outreach worker, UK DISCOVER can improve caregivers’ skills and the quality of the services Care manager, Spain I have learned a great deal of new information [about] the condition of the person I care for Caregiver, Greece
  • 11. Findings -wellbeing Statement Over the last two weeks… Carers who felt this all or most of the time Carers who felt this only some of the time or never Family carers Employed carers Family carers Employed carers I have felt cheerful and in good spirits I have felt calm and relaxed I have felt active and vigorous I woke up feeling fresh and rested My daily life has been filled with things that interest me 44% 44% 39% 25% 35% 48% 43% 58% 26% 59% 26% 12% 13% 21% 17% 1% 8% 1% 1% 3%
  • 12. Moving forward DISCOVER  Core shape but flexibility to be tailored for each country  Working with other organisations that support formal and informal carers  Providing a specialist service that complements existing provision and can be embedded by provider Challenges  Improving confidence of carers to use technologies  Raising awareness of opportunities from being online/using telehealth and telecare

Notes de l'éditeur

  1. List of partners and their roles in the DISCOVER project A strong consortium of partners from five countries United Kingdom, Greece, Holland, Spain and Ireland Within the lifetime of the project we aim to have: Up to 120 carers testing in phase 1 + 400 carers trained across four countries in phase 2; United Kingdom, Holland, Spain and Greece, some carers become digital skills mentors for the older people they care for reaching approximately 200 older people. 1 -5 training organisations per country engaged 5-10 care organisations (third sector, commercial or municipal) per country engaged Using Living Lab methodology for consistent user-driven and iterative design
  2. burden of care significantly limits opportunities to engage in non-care activities mental health problems, higher rate of physical illnesses) Mencap 8 /10 caring for someone with LD experience high levels of stress 8/10 don’t get short breaks Limited time for non care activities (reduced work hours, unemployment, reduced career chances). Social isolation as not part of professional community Online information, advice and guidance and access to a community of peers and experts can help reduce this isolation eurostats However older people’s platform age einclusion maginalising people without compute literacy For informal carers particularly, the shear burden of care significantly limits opportunities to engage in non-care activities and they can experience feelings of isolation because they are not part of a professional community [1]. Online information, advice and guidance and access to a community of peers and experts can help reduce this isolation [1]. However, the European Older People’s Platform (AGE) commenting on future e-inclusion policy [6] specifically raised the issues of the maginalisation of people without the computer literacy to access services that are increasingly only accessed online and the need for constant renewal of knowledge driven by changing technologies and services.