ocial support and long term care for older people – Ghenta

The MOPACT Coordination Team
The University of Sheffield
Department of Sociological Studies
Northumberland Road
Sheffield, S10 2TU, UK
T: +44 (0)114 222 6458
F: +44 (0)114 276 8125
E: mopact@sheffield.ac.uk
www.mopact.group.shef.ac.uk
This project has received funding from the European Union’s Seventh Framework Programme for research,
technological development and demonstration under grant agreement no 320333
Social Support and Long-term Care for Older People –
Potentials for Social Innovation and Active Ageing
The CARER+ Final Conference Paris
27 March 2015

• Objectives of research
• Background and definitions
• The status of social support and long-term care
for older people in different ‘care regimes’
• Potential and innovative practice
• Future research
Contents

• To analyse the status quo of active ageing
strategies in long-term care
• To identify potentials for, drivers of and
barriers to social innovation in long-term care
– quantitative: financial incentives
– qualitative: case studies of innovative practices
• To provide indicators for active ageing
scenarios
Objectives

Active Ageing as the process of optimising opportunities for
health, participation and security in order to enhance quality
of life as people age. It allows people to realise their potential
for wellbeing throughout their lives and to participate in
society according to their needs, desires and capabilities,
while providing them with adequate protection, security and
care when they need assistance” (WHO, 2002: 12).
Long-term care (LTC) as a system at the interface between
health and social care, and between formal and informal care,
is only just emerging as a specific area of social protection and
support (Leichsenring et al., 2013).
Active Ageing and LTC – the often
omitted part of ‘Active Ageing’

Informal carers:
family, friends …
Social care
system
Services
Residential care
Providers
Professions
Methods
Legal Framework
Policies
The health-social care divide
Long-term care
linked-in, co-ordinated,
integrated?
Users
Identity - Policies - Structures -
Functions - Processes -
Resources/Funding
Volunteers
The formal –
informal divide
Health care
system
Hospitals - Services
Providers - Professions
GPs - Methods
Legal Framework
Policies
Social support and long-term care
Source: http://interlinks.euro.centre.org; Leichsenring et al. (2013)

Linking active ageing & long-term
care
• A large number of older people are already very active
in caring for a partner with LTC needs.
• Access to prevention, rehabilitation and other formal
care services is unevenly distributed among European
countries.
• Active ageing in the context of LTC is highly dependent
on social investment strategies across a range of policy
fields.

‘Social Innovation’ in the context of
long-term care
• They are oriented towards exceptional societal challenges/social issues.
• They suggest new solutions in the respective societal, cultural and economic
context.
• They create new patterns of social practices to overcome shortcomings of
traditional arrangements.
• They tend to overcome the traditional dichotomy between technological and
social innovations.
• They promote the integration and/or collaboration of heterogeneous stakeholders
that have hitherto not co-operated.
• They include reflective and multidisciplinary approaches towards the key goal of
societal usefulness.
• They create structures and processes that are sustainable and realise new growth
potentials in terms of regular employment.
• It involves end-users as co-producers of services or products. (cf. Heinze and
Naegele, 2012)

Long-term care
policies and practice in
national contexts
Social
Innovation
new ideas,
social ties and
collaborations
Active ageing
realising potential
for well-being
Testing potential of active ageing
strategies in social innovation

A typology of European long-term
care regimes
• Governance
• Needs and coverage
• Agency
Preliminary clusters of care regimes:
• Care mix (Western): AT, DE, FR, UK
• Universal (Nordic): DK, FI, SE, NL
• Family-based (Mediterranean): EL, ES, IT, PT
• Transition (Central and East Europe, New Member
States): BG, CZ, EE, HU, LT, LV, SK, RO

Huge differences in establishing long-
term care regimes
Source: Eurostat, [hlth_sha_ltc]

Potential and innovative practice
The methodological process has three different steps:
1. Literature review and social innovation initiatives overview:
• A literature review was carried out in order to provide an overview of
country-specific, regional and international sources contributing to the
discourse on the key factors, drivers and barriers in social innovation in
long-term care.
• 18 innovative initiatives representing 12 EU countries were analyzed
individually to determine the drivers of and barriers to its development. In a
later stage, in the course of a collaborative workshop in which the work
package partners participated, these barriers and drivers were grouped into
key themes/factors.

Key-factors in Social Innovation
Key factors Drivers Barriers
Coordination/inte
gration
Uses integrated care model Structural fragmentation of LTC system; Lack of
coordination between partners
Design Evaluation is incorporated into design; Efficient use of ICT; Universal access;
Expert input and feedback; Successful dissemination; Quality management
system is incorporated; Rigorous evidence base
Lack of underlying incentive structure; Difficulties recruiting
participants; Difficulties evaluating the initiative; Design is
ill-suited to meet needs
Framework/struc
tural conditions
Legislative foundation/recognition of services provided; Draws on existing
resources (e.g. human resources, existing built infrastructure); Autonomy of
affiliate organizations;
Unfavorable framework/structural conditions; Lack of
harmonised data; Ill-defined identity of the initiative (e.g.
legal status); Disinterest on the part of policymakers
Funding Affordability for the end user; Raising private funds; Public sector co-
financing; EU-level funding;
User payment required; Insufficient funding (public or
private); No public funding; High implementation costs;
Difficulties securing transition from EU- to public funding
Leadership Institutional leadership (often by an organisation in the third sector)
Local/community
focus
Adapted to meet local needs and contexts; Strong sense of community
ownership; Broad community involvement
LTC specificity Incorporates a community care model; Case management component;
Incorporates individualized, user-centered care plan
Network Well-established/active stakeholder network; Public-private partnership;
Contributions of volunteers; Formalized institutional partnerships; Multi-
actor/multi-sector cooperation
Sustainability Successful transition from pilot program; Integration of services into
publicly-provided services
Short duration leading to lack of continuity and
sustainability; Lack of dissemination/awareness-raising
Target group Restricted coverage; Resistance to participation; Lack of
computer literacy
User involvement User-led components; User input and feedback during development and
implementation
Workforce Multi-disciplinary project team; Built-in element to ensure workforce
sustainability
Unskilled/ill-supported informal care workforce; Insufficient
(human) resources

Curent research
2. Analysis of implementation at national level
• To verify whether and how the key factors typologies identified in the
previous step are applied in each different care regime area.
• Consultation of experts and relevant stakeholders at national level (only in
partner countries).
• This consultation is carried out by focus groups/expert interviews or via the
contribution of the mushrooming ‘innovation hubs’, to check out whether LTC
is on their radar and how they address it in terms of drivers and barriers.
3. Analysis of the implementation at a European level
• Same methodology as that applied for the national level.
• Consultation with case experts and stakeholder representatives selected among
organisations and professionals operating at European level.
• This consultation is carried out during the recurrent stakeholders forum (April
2015).

Building future scenarios
Integration of qualitative and quantitative analyses into a limited number of highly
innovative and realistically implementable scenarios of social support and long-
term care in EU Member states.
Targets:
• The reduction of poverty risks and social exclusion caused by long-term care
needs in older family members
• The quantitative increase of employed and unpaid carers of older people
• The improvement of health and quality of life of older people in need of care
and their caregivers
• The quality and integration of social, health and long-term care services,
including a more user-centred implementation of new technologies.

Thank you for your attention!

ocial support and long term care for older people – Ghenta

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