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Great Ormond Street Hospital for Children
NHS Trust
Joint Web Project
Autumn 2002
Second Year of Project
Institute ojChild Health
Great Ormond Street Hospital for Children
About Us
Contact Us
Sfte Map
Staff Directories:
COSH | ICH
Patients and Families
Kids and Teens
How To G« Here
When Your Child is
Admitted
International and Private
Patients
Health Professionals
Clinical Services
Nursing and Family
Services
Recrutmert
Welcome to the new joint uvehsite of Great Ormond Street
Children's Hospital and the institute ol Child Health
Research
Research Themes
Academic Units
Educational
Opportunities
R S D Office
Library
Research Review
The Research Review
is jam-packed with
stories about our
research and
achievements. Read
moft
GOSH launches first-
ever child-friendly
hearth site
GOSHKids-the lirst
truly ehild-triendry
hospSal site P.tj<i
mote:
A UK first: child cured
by gene therapy A
child has been cured of
a fatal genetic condition,
X-SCID, by gene
therapy at GOSH R«a<i
more.
ICH heads genetics
knowledge park ICH
deem David Latchmar* is
to lead C3 million London
IDEAS Park R«sd
wore
Clinical improvement
for a better hospital
A six-month review has
started to produce a
new action plan tor
GOSH Rtidmorc
MMR GOSH says "MMR
is best and safest option
for our children1
* R«jd
more
(Search the site K-
Email: mfo&qosh.nhs.uk
Ouick search
[Please select
Jack was born with acyst
on his brain which caused
uncontrollable seizures and
weakened Ihe left side ol his
body. RwJmort
Learning Events
Fundrarsing Events
[Courses
Institute of Child Health
Great Ormond Street Hospital for Children
MHS Trull
Patients and Families Health Professionals Research Cli
& P a t i e n t s and f a m i l i e s
Blfe^ilC^»CI»H.init-4iiM«M.t.«JT3T»»ii.TT:mir.l..l.r.ii.l.^
About us|Contactus
(Search the site
tirnl T *mity Into
Comingto GOSH
How to Get Here
rthen your CMd is
International and Private
3
atients
health information Centre
• '
KHK .mil Teen*
GOSHTotS
;T
GOSHKids
Hospital Tour
Hospital School
Radio Gosh
AHe4GOSH
Getting Help
Bereavement Services
haplaincy
Child DeathHelpline
r
amily Advocates
:ocia< Work
f -sillily I *i isho.-t*
Tests and Procedures
Directorate of Nursing and Family Services
Hnirv White underwent
pioneering surgery *t GOSH
.ilti i 4 bum %c«n xhtiwed
stir had muyo moy«
Use this page as a gateway to our many
support services, or try exploring our many fact
sheets on medical procedures, ailments and
diseases. We have a lively range of support
services for children and teens, including our
radio station (Radio Gosh) and children's
school
j^ Ui > "ins column
OrJmrw "nlii,.-Popular Times
CotUra... column dispenses (argon-
S free advice
* A-Z ol CMd Com^aints
*w lIMt-S Artictes
""•--^ Ftctsheets lor families
Large archive developed
by our medical and
research teams. Read
more.
Joint website purls the
hiiit 1st st Check out our
new Teens and Tots
International
& Private
Patients
referring an Internationalor
'rivate Patient
MtMoftgoshnns.uk
[i!i£t30845
D/rect4647
NHS Direa onlme healh
encyclopedia
Institute of Child Health
Great Ormond Street Hospital for Children
th Professionals Research Clinical Services GOSH Internationa! Press Qffici
Health Professionals
About us|Contaci u£
(Search the site L-IJM
Services
Nursinc; and Family Directorate
Clinical Services
Recrutaiert
Clinical
CMdren's P«n Assessmert
HoiptmWaiting Tim
Inalnule of Child He»Hh
Academic Untt
^earning Events
Educational Opporlunlies
International
& Private
Patients
Referring an Irtlernatiorwil or
Private Patient
Search here to explore our services, make a
referral, attend a course or conference, and
connect with our researchers.
Stacey-Jane Panther had
surgery «t GOSH to correct
the effects of Perthes
disease, which interrupts
the blood supply to the head
of the femur (thigh-bone)
and makes hip movement
painful. Readmore about
Holly and others in this
year's Aitnuif report
( Patient and family
factsheet*
Download our many
lactsheets to distribute to
lamiiies
Check out our library,
I selected by the BMJ as an
excellent source of
paediatric resources.
Clinical improvement
A six-month review has
started to produce a new
action plan for GOSH. Rtad
Resources
Library
tULH
Family Factsheets
Centre for Evidence-Based
Child Health
Publications
• , • i ••
RSD Bulletin
AnnualReport
Clinical Governance Report
NHS Local Mormabon
Database
NHSinformation Authority
wwwnhs.uk
Department ol Heath
Institute of Child Health
Great Ormond Street Hospital for Children
NKS Trull
nal Press Office Campaigns
Research
About us | Contact u
[Search the site
Instrtute of Child HeaKh
About us
Academe unit
Research Themes
Research Review 2001
Courses
ConferenceServices
Recruitmert
RSO Office
RSD Builetin
ewrntng Events
Together, the Hospital and the Institute of Child
Health offer a rich source of knowledge on child
health, Explore our research themes, linkwith
colleagues or conduct a search.
Ellie (above) from Chmgford,
fcast London suffers from a
iare neonataldisorder,PHHI,
which has puzzled doctors
• tti'i scientists for years.
Read more about Etlfe in this
year's Research Review.
More research links
I Research Review 2001
The Research Review is >am-
| packedwith stories about our
research and achievements. R«std
ICH heads genetics
knowledge park ICH dean David
Latchman is to lead C3 miflion
London IDEAS Park. Read mor*.,.
Cancer gene breakthrough
ICH scientists have identified five
genes that are expressed in
embryo andcancer eels ftestf
Institute of Child Health
Great Ormond Street Hospital for Children
MHS In.n
GOSH International Press Office Campaigns
H$ £About us| Contact u
(Search Ihe site
ent f irmly Info
Coming to GOSH
How to Get Here
rthen your Chid is Admitted
nrternational andPrivate
Patients
Health Information Centre
HospitalWartimes
Kids and Teens
GOSHTotS
GT
GOSHKids
HospitalTour
Hospital School
RtrftoGosh
AHMOOSM
.fitting Help
Bereavement Services
Chaptwncy
ChiW Death Helpline
Family Advocates
SocialWork
Family Factsheets
Tests and Procedures
Prince Harry visits GOSH
Prince Harry recently paid GOSH a special visit The
affable Prince, who turned 18 on Sunday 15 September,
toured the hospital's chapel and met patients on the
oncology and dialysis wards Read more
Discussing the changes ,it GOSH
Last month's staff open forum brought about much
debate. Jane Collins stressed at the outset that the
changes lo the hospital slructure, which are currently
underway, are designed to ensure that staff are supported
in takingon their new roles and responsibilities. Resa
MQT& .
Hghttmj Fluin 2002
Influenza is a highly infectious illness caused by avirus.
Symptoms include fever, chills, headache, aching
muscles, cough and sore throat But you can be
vaccinated against it. Read more .
Junior doctors ejet tiew representdtion
Five GOSH lunior doctors are teaming up to help ensure
that their peers and colleagues'training and development
Clinical Services
[Please select
Reterrmg InternationaifPrivate
Patients
Consultants' Emails
Directorate of Nursing andFamily
Services
CATS
Academic
Support Sevnces
Conference Services
Joint Services
Library
Recruitment
General enquiries:
mfo@9osh.nhs.uk
tntri national diid Pi ivate
Patients:
prrvatenlo@gosh.nhs uk
Institute of Child Health
Great Ormond Street Hospital for Children
Press Office150 y<M<• c(tfen.
• ! ' f <*U> OU
«: (020) 78298671
birthday!
tional Press Office Campaigns
[Search the site
More about GOSH
Publications and Downloads
Press Release Archive
Statement Archive
Backgrounders
Setoil through our statements, publications and
press releases, or learn more about the rich
history of ourwork We have been in the
forefront of child health for over 150 years
Contact us at(020) 7829 8671
LONDON
IDEAS
Hew hope or a load of
hype?
Public conference aims
to explain genetics and
our health Read mor«
GOSH launches first
ewer child-friendly
hearth site
GOSHKids-the first
truly child-friendly
hospital sNe was
launched by GOSH
React mom..
Babies'ability to
recognise faces
"tunes in" on humans
A six-month old baby is
3 October 2SQ2
Successful gene therapy trials
continue Read more
News Archive
27 September 200?
GOSHto celebrate 10 years and
200 cochleer implants with
Legotend party React mof«
24 September 200?
Elevated teptin inteens linked
with dangerous artery changes
16 September ?80?
Prince Harry at GOSH Reid
3O August 2002
Ahmad & Muhamed Rosli
Conjomed twins from Malaysia
Institute of Child Health
Great Ormond Street Hospital for Children
MHS Trvwl
Patients and Famili
CampaignsI ISO years of caring iot skk children.
n us throughout 2Q02 at we celfbr. [Search the site I
n»v.
.
Birthday
GOSH Charity
Events Catendar
Votunteers
Gosh Shop
Jeans for Genes
Schools
The Firtuie
OOS2000
Puliltf jtioris
Downloads andguidelines
Cutting edge treatment and research does not
come cheap For our supporters we nave put
together an active schedule of activities across the
country Scroll through our campaigns and findout
more about our work, and pick yout favourite way to
help us.
i *frr
'<
Muhammad Juma was born
with no extra thumb on his
fight hand and anodule that
w«m the beginning of an
addHiontJ nmjei. Both mere
remawed under gencfat
anaesthetic at GOSH. Read
more abairt Muhammeri and
others in this yea
Prince H-uiyur, .
Prince Harry recently paid
GOSH a special vist. Read
more...
tun and get involved n
•<y-p»cked calendar ot
no events
You can now help us by
shopping or*>e!
To celebrate we are
offering Family Group
membership of the
Friends Scheme at •
discounted price of £25.00
when you join by standing
order (usual price OO.OO)!
Offer 4f>ptte$ to famifies
joining dating 2002 only
To join at this special rale
call the Friend!; office on
020 /404 2708
Institute of Child Health («)ifi)(8)(SI)....; ,- ci..._ J r. ' , ti.^:. .1 *' *"1.:/J_^. vj;^ r , V_X V_V ^S^ %IL/
About Us
Contact Us
Site Map
ICH Intranet
ICH Staff Directories
Recruitment
Research
Research Themes
Academic Units
R & D Office
Library
Students
Research Degrees
Taught Ofsduate
i,i n
Clinical Fellowships
Courses
Ihrou(|h it •: innovative research and its hicih quality training programmes,
the Instrtute of Child Health has created a world class centre for the study
and treatment ot childhood disease. Together with Great Orniond Street
Hospital, it has made a major contribution to the health and well tieimj of
r hiltli rm anil their families worldwide.
Research Review
2001 The Research
Review is jam-
packed with stories
about our research
and achievements.
Readmort..
Nepali mothers in
spotlight Survey 01
perinatal hearth n
over 29.000 women
completed in
Mshwanpyr, Nepal
• • •
5" research at the
Institute ICH has
been awarded 5*Tor
its research,the
majority being judged
of intetnationa)
significance. Read
more.
ICH Dean David
Latchman
appointed Master
of Birkbeck. .-'•.<-•,«.•
Research Themes and Academic Units
| Please select
[Search the site CO»
Major child health
symposium report in.
Read more..
Events
[please select
Institute of Child Health
Great Ormond Street Hospital for Children CZ23
About us I Contact us
Patients and families
Palientffamilylnfo
Coming to GOSH
HOW to Get Here
n your Child is Admitted
International andPrivate
Patients
Health Information Centre
HasprtalWadifig Times
Kids and Teens
OOSHTots
OT
GOSHKids
Hospdal Tow
Hosprtal School
Radio Gosh
Getting Help
Bereavement Services
Chaplaincy
Child Death Helpline
Family Advocates
Social WDrk
Family P»ctsheeis
Tests and Procedures
Operations
•nesses and Diseases
Drugs
Ask Dr Jane Collins...
A-Z of child complaints
a Till-; --Via;TIMES
A-Z of child complaints
Up to 35 per cent of 12 to 25 year olds suffer from spots Boys and girls are
equally affected They usually appear at puberty and reach their peak at 17-21 If
untreated, persistent spots or acne, can cause scarring but prompt treatment
minimises this Acne is caused by over-production of oil from the sebaceous
glands in the skin mainly on the face, chest arid back in response to normal
levels of sex hormones Oil blocks the duels to the surface of the skin allowing
waste cells to accumulate under the skin's surface forming a plug Bacteria
also play a part Teenage girls often report a flare-up before menstruation
Some find stress and certain foods, especially fast food and chocolate, make
acne worse although there is no scientific evidencefor this Some cosmetics
provoke spots especially those containing oils, fatty acids andwaxes Acne is
not infectious or contagious
Symptoms: Oily skin with red lumps, yellow spots, blackheads and whrteheads
Teenagers with black skin often find that spots make their skin darker and this
pigmentation can last for months
DDQDQQD
QQQQQ
Institute of Child Health
Great Ormond Street Hospital for Children
and Families Health Profes:
information forfamilies Genetics and inheritance
[search the site
Please use the indexes
below to find the lactsheet
you need.
Or search the full
alphabetical index.
aununun
DDDBDCaD
QDDDDDD
DDDDD
Contents
Background
What are genes''
How can genetic disorders be inherited'?
Is it always possible to make a genetic diagnosis?
How can genetic abnormalities be detected?
Contact information
Background
Many immunodeficiency disorders are the result of defects in an individual's
genetic makeup. These are mistakes which occur in genes and are passed from
generation to generation Sometimes a genetic mistake (mutation) can occur for
the first time In an infant or child when no-one else in the family has had the
problem, but tn other situations there may be family members who have suffered
from the same or similar problems. There are several ways m which mutations
can be inherited - these are explained below, In an increasing number of
immunodeficiency disorders Ihe precise mistake in the relevant gene can now »e
identified in the laboratory, and this means that accurate counselling can be
offered to the family, and screening tests can be offered in pregnancyif requested
Wnat are genes?
Great Ormond Street Hospital (or Children ll1
/'^
Institute a/ Chita Health *m^a
Feedback/Contact us
Contact MormMim Welcome t
Freqijentl/ Asked have a que
Questions answer cst
Who ere we?
About the sue We are una
nuc*™ cona
"lons
website m
outourfam
paediatnc
dispensing
Subject
YOIK
name
Your
email
Message
[Search the srte FEES
Great Ormond Street Children's Hospital/Institute of Child Health if you
;(ion, please look through the Frequently Asked Questions to see if the 'V>'i
iere If not, please use Ihe form onthis page to contact us. ^^—
ole to answer queries or offer advice about specific patients and/or their
htough the. website At the same time, we recognize that visitors to our ^^L
y require information about particular paediatric health issues. Please chect
IY factsheets for information ontests, procedures, operations, andvarious • Hfll
onditions You can also read ourarchive of DrJane Collins' Times column, ^^^Hj
iargon-free advice on a wide range of paediatric topics
Choose a subiett
a
j
 Institute ofC.lrilil Health
Great Ormond Street Hospital for Children
Information for families The Activities Centre
[search thesue EEQ
Please use the indexes
below to find the factsheet
you need
Or search the full
alphabetical index
nununun
DDDDBDD
QDDQD
Download PDF ot 'The Activities Centre' lactsheet
Contents
What is the Activities Centre?
Where is the Activities Centre?
Who can use the Activities Centre?
Who runs the Activities Centre?
What is there to do in the Aclivilies Centre"?
What happens when I bring my child to theActivies Centre"?
When is the Actiwities Centre open?
Special needs therapy session
Youth Group
junior youth group
The Den
This u<«jetefls you about the ActMties Centre at Great Ormond Street Hospital.
What is the Activities Centre?
it's a placewhere inpafients at Great Ormond Street Hospital can get away from the
medical environment oftheir ward for a wtiiie and have some fun, it's bright and
colourful, full of things to do and gives children at the hospital an opportunity to meet
other people their own age
X Institute of Child Health Great
°rmondStreet Hospital for Children
««OSW1CH Trust 2002
Oreat Ormond Sired Hospital for Children NHS Trust. Great Ormond Street. London WC1N 3JH
Tel: •*» (0)20 710S 8200. Fax: »44 00)20 7829 8643
and The Institute of Child Health. 30 Guilford Street. London WCIN 1EH
Tel *44 r012D 724? Q7S9 Fax *44 rtTQO 7831 0489
hf.
Institute of Child Health
Great Ormond Street Hospital for Children
NHS Imn
The Great Ormond Street
Children's Writing Prize 2003
Wrrte4GOSH marks the 150th birthday of Great
Ormond Street Children's Hospital by bringing
together stones andexperiences from children
across the country. Find out more about the
competition »
v.write4£osh
.nhs.uk
children's author Jacqueline Wilson
launchedWrrtc4COSH with a special workshop for;
young writers.
•"f ** ,^H
Parents il VONwould
like to supfjort the work
of GOSH please visit out-
charity website
Hie Great Ormond
Street Children's
writing prltt
Chanty
No 23S825
Institute of Child Health
Great Ormond Street Hospital for Children
NHS Ttuit
Patients and families Health Professionals Research Clinical Services GOSH International Press Office Campaigns
, www.goshkids.nhs.uk
WekometoGOSH
© GOSH/ICH Trust 2002
ftrsat Ormond Street Hospital lor Children NHS Trust. Oreat Oimond Street. London WC1N 3JH
institute of('/iild Health
Great Ormond Street Hospital for Children
NHS Trusl
i Patients and families Health Professionals Research Clinical Services GOSH International Press Office Campaigns
www.goshkids.nhs.uk
H Trusl 2002
Oi«at Otmoncf StisBt Hospitj! 101 Childitn NHS Trust. Oi«Jt Ormond Strtct. London WC1N 3JH
Ttl +44(012074059200. Fax +44(012078298643
Institute of Child Health
Great Ormond Street Hospital for Children
HH$ Inm
Patients and families Health Professionals Research Oinkal Services GOSH international Press Office Campaigns!
your diary
ask doc
your body
dictionary
hey kids!
irs easy to worry about
coming into hospital. What
will it be like? What willthe
people be like? How will my
treatment go? GOSHKids is
here to help you find outIt's
somewhere you can tell
your story too • Welcome to
GOSHKidsi
win!»OS'S
games
Find outabout ^ y
Write4GOSH
rn -i Great Ormond Street Hospital forChildren
 Institute oj Child Health „„„„„
Ml Patients and families Health Professionals Research Clinical Services GOSH International Press Office Campaigns
what's up?
real stories
your diary
ask doc
your body
dictionary
body tour
gosh toons
Heard a word you ilonl Know? Check nut the online dictionary
 Institute of Child Health
Great Ormond Street Hospital for Children
NHS rruit
! Patients and families HealthProfessionals Research Oinkal Services GOSH International Press Office Campaigns
6T - Moung Rdulrs andteens Health
N ASSOCIATION WffH BDCi
Find out about
your body.
Problem? Check
out the problem
page.
win! »085n
CMATROOMS
www.OO9nfeon9.nTii.uk jjIIH^ir
Get the
lowdown on
hospital life.
Jenna talks
about life with
arthritis.
Tests, and
what they're Iwftnt new feature
really all about. ® |would you most like
to see?
Find our abour MrireueoSH
MAL STORIES:
Enter your e-mail
address to get our
newsletter
 hisfit utc of Child Ilculth
6T - Uoung Rdutra andTeens Healrh
Great Ormond Street Hospital for Children |
NHS Tru»t
teen species
IN ASSOCIATtOM WfTH BBCi www.gosnfeens.nhs.uk
Find out about your body with Teen Species, and then tell us about
your teen life.
What's happtning to my
body? Find out why
,~~~ teenagers grow taller,
get spots and sprout
hair.
Growth| Spots | Hair
Interactive body
i i Take an interactive tour
J | ofthe teenage body.
Art t6*i>ag«r& natty
mwe moody? Why do
they r>$eef more s/eep?
Here's the low-down on
life as a teenager.
Moods | Rows | Steep
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GOSH Child Health Portal Project Phase 2b

  • 1. Great Ormond Street Hospital for Children NHS Trust Joint Web Project Autumn 2002 Second Year of Project
  • 2. Institute ojChild Health Great Ormond Street Hospital for Children About Us Contact Us Sfte Map Staff Directories: COSH | ICH Patients and Families Kids and Teens How To G« Here When Your Child is Admitted International and Private Patients Health Professionals Clinical Services Nursing and Family Services Recrutmert Welcome to the new joint uvehsite of Great Ormond Street Children's Hospital and the institute ol Child Health Research Research Themes Academic Units Educational Opportunities R S D Office Library Research Review The Research Review is jam-packed with stories about our research and achievements. Read moft GOSH launches first- ever child-friendly hearth site GOSHKids-the lirst truly ehild-triendry hospSal site P.tj<i mote: A UK first: child cured by gene therapy A child has been cured of a fatal genetic condition, X-SCID, by gene therapy at GOSH R«a<i more. ICH heads genetics knowledge park ICH deem David Latchmar* is to lead C3 million London IDEAS Park R«sd wore Clinical improvement for a better hospital A six-month review has started to produce a new action plan tor GOSH Rtidmorc MMR GOSH says "MMR is best and safest option for our children1 * R«jd more (Search the site K- Email: mfo&qosh.nhs.uk Ouick search [Please select Jack was born with acyst on his brain which caused uncontrollable seizures and weakened Ihe left side ol his body. RwJmort Learning Events Fundrarsing Events [Courses Institute of Child Health Great Ormond Street Hospital for Children MHS Trull Patients and Families Health Professionals Research Cli & P a t i e n t s and f a m i l i e s Blfe^ilC^»CI»H.init-4iiM«M.t.«JT3T»»ii.TT:mir.l..l.r.ii.l.^ About us|Contactus (Search the site tirnl T *mity Into Comingto GOSH How to Get Here rthen your CMd is International and Private 3 atients health information Centre • ' KHK .mil Teen* GOSHTotS ;T GOSHKids Hospital Tour Hospital School Radio Gosh AHe4GOSH Getting Help Bereavement Services haplaincy Child DeathHelpline r amily Advocates :ocia< Work f -sillily I *i isho.-t* Tests and Procedures Directorate of Nursing and Family Services Hnirv White underwent pioneering surgery *t GOSH .ilti i 4 bum %c«n xhtiwed stir had muyo moy« Use this page as a gateway to our many support services, or try exploring our many fact sheets on medical procedures, ailments and diseases. We have a lively range of support services for children and teens, including our radio station (Radio Gosh) and children's school j^ Ui > "ins column OrJmrw "nlii,.-Popular Times CotUra... column dispenses (argon- S free advice * A-Z ol CMd Com^aints *w lIMt-S Artictes ""•--^ Ftctsheets lor families Large archive developed by our medical and research teams. Read more. Joint website purls the hiiit 1st st Check out our new Teens and Tots International & Private Patients referring an Internationalor 'rivate Patient MtMoftgoshnns.uk [i!i£t30845 D/rect4647 NHS Direa onlme healh encyclopedia Institute of Child Health Great Ormond Street Hospital for Children th Professionals Research Clinical Services GOSH Internationa! Press Qffici Health Professionals About us|Contaci u£ (Search the site L-IJM Services Nursinc; and Family Directorate Clinical Services Recrutaiert Clinical CMdren's P«n Assessmert HoiptmWaiting Tim Inalnule of Child He»Hh Academic Untt ^earning Events Educational Opporlunlies International & Private Patients Referring an Irtlernatiorwil or Private Patient Search here to explore our services, make a referral, attend a course or conference, and connect with our researchers. Stacey-Jane Panther had surgery «t GOSH to correct the effects of Perthes disease, which interrupts the blood supply to the head of the femur (thigh-bone) and makes hip movement painful. Readmore about Holly and others in this year's Aitnuif report ( Patient and family factsheet* Download our many lactsheets to distribute to lamiiies Check out our library, I selected by the BMJ as an excellent source of paediatric resources. Clinical improvement A six-month review has started to produce a new action plan for GOSH. Rtad Resources Library tULH Family Factsheets Centre for Evidence-Based Child Health Publications • , • i •• RSD Bulletin AnnualReport Clinical Governance Report NHS Local Mormabon Database NHSinformation Authority wwwnhs.uk Department ol Heath Institute of Child Health Great Ormond Street Hospital for Children NKS Trull nal Press Office Campaigns Research About us | Contact u [Search the site Instrtute of Child HeaKh About us Academe unit Research Themes Research Review 2001 Courses ConferenceServices Recruitmert RSO Office RSD Builetin ewrntng Events Together, the Hospital and the Institute of Child Health offer a rich source of knowledge on child health, Explore our research themes, linkwith colleagues or conduct a search. Ellie (above) from Chmgford, fcast London suffers from a iare neonataldisorder,PHHI, which has puzzled doctors • tti'i scientists for years. Read more about Etlfe in this year's Research Review. More research links I Research Review 2001 The Research Review is >am- | packedwith stories about our research and achievements. R«std ICH heads genetics knowledge park ICH dean David Latchman is to lead C3 miflion London IDEAS Park. Read mor*.,. Cancer gene breakthrough ICH scientists have identified five genes that are expressed in embryo andcancer eels ftestf
  • 3. Institute of Child Health Great Ormond Street Hospital for Children MHS In.n GOSH International Press Office Campaigns H$ £About us| Contact u (Search Ihe site ent f irmly Info Coming to GOSH How to Get Here rthen your Chid is Admitted nrternational andPrivate Patients Health Information Centre HospitalWartimes Kids and Teens GOSHTotS GT GOSHKids HospitalTour Hospital School RtrftoGosh AHMOOSM .fitting Help Bereavement Services Chaptwncy ChiW Death Helpline Family Advocates SocialWork Family Factsheets Tests and Procedures Prince Harry visits GOSH Prince Harry recently paid GOSH a special visit The affable Prince, who turned 18 on Sunday 15 September, toured the hospital's chapel and met patients on the oncology and dialysis wards Read more Discussing the changes ,it GOSH Last month's staff open forum brought about much debate. Jane Collins stressed at the outset that the changes lo the hospital slructure, which are currently underway, are designed to ensure that staff are supported in takingon their new roles and responsibilities. Resa MQT& . Hghttmj Fluin 2002 Influenza is a highly infectious illness caused by avirus. Symptoms include fever, chills, headache, aching muscles, cough and sore throat But you can be vaccinated against it. Read more . Junior doctors ejet tiew representdtion Five GOSH lunior doctors are teaming up to help ensure that their peers and colleagues'training and development Clinical Services [Please select Reterrmg InternationaifPrivate Patients Consultants' Emails Directorate of Nursing andFamily Services CATS Academic Support Sevnces Conference Services Joint Services Library Recruitment General enquiries: mfo@9osh.nhs.uk tntri national diid Pi ivate Patients: prrvatenlo@gosh.nhs uk Institute of Child Health Great Ormond Street Hospital for Children Press Office150 y<M<• c(tfen. • ! ' f <*U> OU «: (020) 78298671 birthday! tional Press Office Campaigns [Search the site More about GOSH Publications and Downloads Press Release Archive Statement Archive Backgrounders Setoil through our statements, publications and press releases, or learn more about the rich history of ourwork We have been in the forefront of child health for over 150 years Contact us at(020) 7829 8671 LONDON IDEAS Hew hope or a load of hype? Public conference aims to explain genetics and our health Read mor« GOSH launches first ewer child-friendly hearth site GOSHKids-the first truly child-friendly hospital sNe was launched by GOSH React mom.. Babies'ability to recognise faces "tunes in" on humans A six-month old baby is 3 October 2SQ2 Successful gene therapy trials continue Read more News Archive 27 September 200? GOSHto celebrate 10 years and 200 cochleer implants with Legotend party React mof« 24 September 200? Elevated teptin inteens linked with dangerous artery changes 16 September ?80? Prince Harry at GOSH Reid 3O August 2002 Ahmad & Muhamed Rosli Conjomed twins from Malaysia Institute of Child Health Great Ormond Street Hospital for Children MHS Trvwl Patients and Famili CampaignsI ISO years of caring iot skk children. n us throughout 2Q02 at we celfbr. [Search the site I n»v. . Birthday GOSH Charity Events Catendar Votunteers Gosh Shop Jeans for Genes Schools The Firtuie OOS2000 Puliltf jtioris Downloads andguidelines Cutting edge treatment and research does not come cheap For our supporters we nave put together an active schedule of activities across the country Scroll through our campaigns and findout more about our work, and pick yout favourite way to help us. i *frr '< Muhammad Juma was born with no extra thumb on his fight hand and anodule that w«m the beginning of an addHiontJ nmjei. Both mere remawed under gencfat anaesthetic at GOSH. Read more abairt Muhammeri and others in this yea Prince H-uiyur, . Prince Harry recently paid GOSH a special vist. Read more... tun and get involved n •<y-p»cked calendar ot no events You can now help us by shopping or*>e! To celebrate we are offering Family Group membership of the Friends Scheme at • discounted price of £25.00 when you join by standing order (usual price OO.OO)! Offer 4f>ptte$ to famifies joining dating 2002 only To join at this special rale call the Friend!; office on 020 /404 2708 Institute of Child Health («)ifi)(8)(SI)....; ,- ci..._ J r. ' , ti.^:. .1 *' *"1.:/J_^. vj;^ r , V_X V_V ^S^ %IL/ About Us Contact Us Site Map ICH Intranet ICH Staff Directories Recruitment Research Research Themes Academic Units R & D Office Library Students Research Degrees Taught Ofsduate i,i n Clinical Fellowships Courses Ihrou(|h it •: innovative research and its hicih quality training programmes, the Instrtute of Child Health has created a world class centre for the study and treatment ot childhood disease. Together with Great Orniond Street Hospital, it has made a major contribution to the health and well tieimj of r hiltli rm anil their families worldwide. Research Review 2001 The Research Review is jam- packed with stories about our research and achievements. Readmort.. Nepali mothers in spotlight Survey 01 perinatal hearth n over 29.000 women completed in Mshwanpyr, Nepal • • • 5" research at the Institute ICH has been awarded 5*Tor its research,the majority being judged of intetnationa) significance. Read more. ICH Dean David Latchman appointed Master of Birkbeck. .-'•.<-•,«.• Research Themes and Academic Units | Please select [Search the site CO» Major child health symposium report in. Read more.. Events [please select
  • 4. Institute of Child Health Great Ormond Street Hospital for Children CZ23 About us I Contact us Patients and families Palientffamilylnfo Coming to GOSH HOW to Get Here n your Child is Admitted International andPrivate Patients Health Information Centre HasprtalWadifig Times Kids and Teens OOSHTots OT GOSHKids Hospdal Tow Hosprtal School Radio Gosh Getting Help Bereavement Services Chaplaincy Child Death Helpline Family Advocates Social WDrk Family P»ctsheeis Tests and Procedures Operations •nesses and Diseases Drugs Ask Dr Jane Collins... A-Z of child complaints a Till-; --Via;TIMES A-Z of child complaints Up to 35 per cent of 12 to 25 year olds suffer from spots Boys and girls are equally affected They usually appear at puberty and reach their peak at 17-21 If untreated, persistent spots or acne, can cause scarring but prompt treatment minimises this Acne is caused by over-production of oil from the sebaceous glands in the skin mainly on the face, chest arid back in response to normal levels of sex hormones Oil blocks the duels to the surface of the skin allowing waste cells to accumulate under the skin's surface forming a plug Bacteria also play a part Teenage girls often report a flare-up before menstruation Some find stress and certain foods, especially fast food and chocolate, make acne worse although there is no scientific evidencefor this Some cosmetics provoke spots especially those containing oils, fatty acids andwaxes Acne is not infectious or contagious Symptoms: Oily skin with red lumps, yellow spots, blackheads and whrteheads Teenagers with black skin often find that spots make their skin darker and this pigmentation can last for months DDQDQQD QQQQQ Institute of Child Health Great Ormond Street Hospital for Children and Families Health Profes: information forfamilies Genetics and inheritance [search the site Please use the indexes below to find the lactsheet you need. Or search the full alphabetical index. aununun DDDBDCaD QDDDDDD DDDDD Contents Background What are genes'' How can genetic disorders be inherited'? Is it always possible to make a genetic diagnosis? How can genetic abnormalities be detected? Contact information Background Many immunodeficiency disorders are the result of defects in an individual's genetic makeup. These are mistakes which occur in genes and are passed from generation to generation Sometimes a genetic mistake (mutation) can occur for the first time In an infant or child when no-one else in the family has had the problem, but tn other situations there may be family members who have suffered from the same or similar problems. There are several ways m which mutations can be inherited - these are explained below, In an increasing number of immunodeficiency disorders Ihe precise mistake in the relevant gene can now »e identified in the laboratory, and this means that accurate counselling can be offered to the family, and screening tests can be offered in pregnancyif requested Wnat are genes? Great Ormond Street Hospital (or Children ll1 /'^ Institute a/ Chita Health *m^a Feedback/Contact us Contact MormMim Welcome t Freqijentl/ Asked have a que Questions answer cst Who ere we? About the sue We are una nuc*™ cona "lons website m outourfam paediatnc dispensing Subject YOIK name Your email Message [Search the srte FEES Great Ormond Street Children's Hospital/Institute of Child Health if you ;(ion, please look through the Frequently Asked Questions to see if the 'V>'i iere If not, please use Ihe form onthis page to contact us. ^^— ole to answer queries or offer advice about specific patients and/or their htough the. website At the same time, we recognize that visitors to our ^^L y require information about particular paediatric health issues. Please chect IY factsheets for information ontests, procedures, operations, andvarious • Hfll onditions You can also read ourarchive of DrJane Collins' Times column, ^^^Hj iargon-free advice on a wide range of paediatric topics Choose a subiett a j Institute ofC.lrilil Health Great Ormond Street Hospital for Children Information for families The Activities Centre [search thesue EEQ Please use the indexes below to find the factsheet you need Or search the full alphabetical index nununun DDDDBDD QDDQD Download PDF ot 'The Activities Centre' lactsheet Contents What is the Activities Centre? Where is the Activities Centre? Who can use the Activities Centre? Who runs the Activities Centre? What is there to do in the Aclivilies Centre"? What happens when I bring my child to theActivies Centre"? When is the Actiwities Centre open? Special needs therapy session Youth Group junior youth group The Den This u<«jetefls you about the ActMties Centre at Great Ormond Street Hospital. What is the Activities Centre? it's a placewhere inpafients at Great Ormond Street Hospital can get away from the medical environment oftheir ward for a wtiiie and have some fun, it's bright and colourful, full of things to do and gives children at the hospital an opportunity to meet other people their own age
  • 5. X Institute of Child Health Great °rmondStreet Hospital for Children ««OSW1CH Trust 2002 Oreat Ormond Sired Hospital for Children NHS Trust. Great Ormond Street. London WC1N 3JH Tel: •*» (0)20 710S 8200. Fax: »44 00)20 7829 8643 and The Institute of Child Health. 30 Guilford Street. London WCIN 1EH Tel *44 r012D 724? Q7S9 Fax *44 rtTQO 7831 0489 hf. Institute of Child Health Great Ormond Street Hospital for Children NHS Imn The Great Ormond Street Children's Writing Prize 2003 Wrrte4GOSH marks the 150th birthday of Great Ormond Street Children's Hospital by bringing together stones andexperiences from children across the country. Find out more about the competition » v.write4£osh .nhs.uk children's author Jacqueline Wilson launchedWrrtc4COSH with a special workshop for; young writers. •"f ** ,^H Parents il VONwould like to supfjort the work of GOSH please visit out- charity website Hie Great Ormond Street Children's writing prltt Chanty No 23S825 Institute of Child Health Great Ormond Street Hospital for Children NHS Ttuit Patients and families Health Professionals Research Clinical Services GOSH International Press Office Campaigns , www.goshkids.nhs.uk WekometoGOSH © GOSH/ICH Trust 2002 ftrsat Ormond Street Hospital lor Children NHS Trust. Oreat Oimond Street. London WC1N 3JH institute of('/iild Health Great Ormond Street Hospital for Children NHS Trusl i Patients and families Health Professionals Research Clinical Services GOSH International Press Office Campaigns www.goshkids.nhs.uk H Trusl 2002 Oi«at Otmoncf StisBt Hospitj! 101 Childitn NHS Trust. Oi«Jt Ormond Strtct. London WC1N 3JH Ttl +44(012074059200. Fax +44(012078298643
  • 6. Institute of Child Health Great Ormond Street Hospital for Children HH$ Inm Patients and families Health Professionals Research Oinkal Services GOSH international Press Office Campaigns! your diary ask doc your body dictionary hey kids! irs easy to worry about coming into hospital. What will it be like? What willthe people be like? How will my treatment go? GOSHKids is here to help you find outIt's somewhere you can tell your story too • Welcome to GOSHKidsi win!»OS'S games Find outabout ^ y Write4GOSH rn -i Great Ormond Street Hospital forChildren Institute oj Child Health „„„„„ Ml Patients and families Health Professionals Research Clinical Services GOSH International Press Office Campaigns what's up? real stories your diary ask doc your body dictionary body tour gosh toons Heard a word you ilonl Know? Check nut the online dictionary Institute of Child Health Great Ormond Street Hospital for Children NHS rruit ! Patients and families HealthProfessionals Research Oinkal Services GOSH International Press Office Campaigns 6T - Moung Rdulrs andteens Health N ASSOCIATION WffH BDCi Find out about your body. Problem? Check out the problem page. win! »085n CMATROOMS www.OO9nfeon9.nTii.uk jjIIH^ir Get the lowdown on hospital life. Jenna talks about life with arthritis. Tests, and what they're Iwftnt new feature really all about. ® |would you most like to see? Find our abour MrireueoSH MAL STORIES: Enter your e-mail address to get our newsletter hisfit utc of Child Ilculth 6T - Uoung Rdutra andTeens Healrh Great Ormond Street Hospital for Children | NHS Tru»t teen species IN ASSOCIATtOM WfTH BBCi www.gosnfeens.nhs.uk Find out about your body with Teen Species, and then tell us about your teen life. What's happtning to my body? Find out why ,~~~ teenagers grow taller, get spots and sprout hair. Growth| Spots | Hair Interactive body i i Take an interactive tour J | ofthe teenage body. Art t6*i>ag«r& natty mwe moody? Why do they r>$eef more s/eep? Here's the low-down on life as a teenager. Moods | Rows | Steep