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Gregg Skall National Capital Lyme and Tick-Borne Disease Association October 12, 2010 The Patient Perspective Definitional Term: “ Lyme”  is used to signify the complex of Lyme & co-infections
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Treat the patient not the test  (Olano)
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[For a child] long term effects last 50-70 years  (Jacobs)
[object Object],[object Object],[object Object],The hardest thing to say to a parent is “I don’t know” (Jacobs) Everyone is studying the early stage of this infection, no one is studying the persistent phase of the infection  (Barthold)
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],You do not require an antibody response to develop the disease  -  Weis How a disease is defined often defines the winners and the losers  -  Aronowitz
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],“ How can you say, ‘I’ve treated you for 4 weeks and therefore you no longer have Lyme disease.’ The fact is ,  we don’t know!  (Donta)
[object Object],[object Object],[object Object],[object Object],We need direct antigen detection,  I’m not keen on antibody tests  (Donta)
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Underpowered studies which purport to demonstrate universal efficacy need to be viewed with circumspection  (Luft)
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],All that shouting drowns out all the complexity and the nuance and the work that needs to be done  (Pam Weintraub)
[object Object],[object Object],[object Object],[object Object],[object Object],Lyme disease is a clinical diagnosis
[object Object],[object Object],[object Object],[object Object],Science is not belief;  but the will to find out! (Luft)
It’s About the Patient

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The patient perspective_v3_final

  • 1. Gregg Skall National Capital Lyme and Tick-Borne Disease Association October 12, 2010 The Patient Perspective Definitional Term: “ Lyme” is used to signify the complex of Lyme & co-infections
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  • 14. It’s About the Patient

Editor's Notes

  1. DO NOT REQUIRE an antibody response to develop the disease Seen pathenogenesis, debris: do not contain the infectious spirochete