Sharing Expertise Between Doctors and Patient Organisations

•Télécharger en tant que PPT, PDF•

0 j'aime•574 vues

Workshop 6 - Brainstorming & Policy Development session: Training, information and education of MDs "Sharing expertise: transfer of experience from patient organizations to doctors and between patient organisations" Rainald von Gizycki, Retina Europe, Germany

Sharing Expertise: Transfer of Experience from Patient Organisations to Doctors and Between Patient Organisations Dr. Rainald von Gizycki, Charité clinics Berlin / Retina Europe

Overview of slides ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

The Project ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Transfer of experience ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Cooperation of PO with doctors ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

What transfer activities with doctors are PO involved in? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

PO with highest transfer experience ,[object Object],[object Object],[object Object]

Conclusions Phase I ,[object Object],[object Object],[object Object]

Phase II: Supported educational activities of PO ,[object Object],[object Object],[object Object],[object Object],[object Object]

Three-Step Methodology ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Toolbox for educational activities of PO ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Objectives of Transfer Circles ,[object Object],[object Object],[object Object]

Existing transfer circles ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]

Major Transfer Obstacles ,[object Object],[object Object],[object Object],[object Object]

Conclusions ,[object Object],[object Object],[object Object],[object Object],[object Object]

Contenu connexe

Tendances

Workshop 5 - "The Norwegian Model" EURORDIS - Rare Diseases Europe

Conference 4 - The patient experience in the development and implementation ...EURORDIS - Rare Diseases Europe

Workshop 2 - "EURORDIS Policy recommendations based on EURORDIS Declaration, ...EURORDIS - Rare Diseases Europe

Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...EURORDIS - Rare Diseases Europe

Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"EURORDIS - Rare Diseases Europe

Workshop 4 - "Feedback from the 15 National Conferences on Research policy"EURORDIS - Rare Diseases Europe

Workshop 4 - "EURORDIS Research Policy recommendation"EURORDIS - Rare Diseases Europe

Workshop 4 - "Presentation of the RD Platform fact finding study on the trend...EURORDIS - Rare Diseases Europe

Workshop 3 - "Presentation of the Epi-Rare project"EURORDIS - Rare Diseases Europe

Workshop 3 - "Presentation of the concept, definitions and terminology"EURORDIS - Rare Diseases Europe

Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"EURORDIS - Rare Diseases Europe

Workshop 7 - "Presentation of the International Federation for Spina Bifida a...EURORDIS - Rare Diseases Europe

Jornadas #PatientInHTA · Tamas BereczkyInstituto Aragonés de Ciencias de la Salud - IACS

Introduction to the breakout sessions & case studies presentationsEUPATI

Good practices in patient involvement in HTAEUPATI

EUPATI 2013 Conference: Vision on Patient involvement in medicines R&D: Here...EUPATI

EUPATI 2013 Conference: Building Knowledge & Competences for Patients’ Involv...EUPATI

Workshop 7 - "Folic acid prevents neural tubes defect"EURORDIS - Rare Diseases Europe

Similarities and differences between Rare Cancers and Rare Diseasesjangeissler

The Networked Patient Group: How technology changes the face of patient advocacyjangeissler

Tendances (20)

Workshop 5 - "The Norwegian Model"

Conference 4 - The patient experience in the development and implementation ...

Workshop 2 - "EURORDIS Policy recommendations based on EURORDIS Declaration, ...

Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...

Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"

Workshop 4 - "Feedback from the 15 National Conferences on Research policy"

Workshop 4 - "EURORDIS Research Policy recommendation"

Workshop 4 - "Presentation of the RD Platform fact finding study on the trend...

Workshop 3 - "Presentation of the Epi-Rare project"

Workshop 3 - "Presentation of the concept, definitions and terminology"

Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"

Workshop 7 - "Presentation of the International Federation for Spina Bifida a...

Jornadas #PatientInHTA · Tamas Bereczky

Introduction to the breakout sessions & case studies presentations

Good practices in patient involvement in HTA

EUPATI 2013 Conference: Vision on Patient involvement in medicines R&D: Here...

EUPATI 2013 Conference: Building Knowledge & Competences for Patients’ Involv...

Workshop 7 - "Folic acid prevents neural tubes defect"

Similarities and differences between Rare Cancers and Rare Diseases

The Networked Patient Group: How technology changes the face of patient advocacy

Similaire à Sharing Expertise Between Doctors and Patient Organisations

Changes in patient organisations - and how this changes the medical worldjangeissler

Workshop Training, Information and Education of MDsJustine Eurordis

Models of Access and Clinical Service Delivery for People with HIV in Austral...Australian Federation of AIDS Organisations

EUPATI patient expert training course and its relevance for patient involvementEUPATI

Integrating prevention into primary healthcare - Jan SavageAustralian Federation of AIDS Organisations

Changes in patient organisations - and how this changes the medical worldjangeissler

Strategy For Evidence Based Health ServicesØystein Eiring

Webinar: EUPATI Update to participants of the EUPATI Focus Groups - 4 Nov 2013EUPATI

Shared Care Plan Trials - Progress to DateHealth Informatics New Zealand

Introducing Advanced Nursing Practice in Oman Dr. Majid Al-Maqbali

ENCA 2016 - Genoa - Bas Vastertanton gruss

06 Trend in health professions education東京大学医学系研究科医学教育国際研究センター

Spinger2Moohlan Ilada

OUIDA CARR PICOClassCruise

EcoHealth-OneHealth Resource Centre Chiang Mai UniversityILRI

Cochrane reviews and guideline development: Is there anything new under the sun?Health Informatics New Zealand

Presentatie svin deneckere_itineraeventItinera Institute

Cadth 2015 d7 presentation 2015 14 apr15CADTH Symposium

Introduction Lecture for Implementation ScienceMartha Seife

Similaire à Sharing Expertise Between Doctors and Patient Organisations (20)

Changes in patient organisations - and how this changes the medical world

Workshop Training, Information and Education of MDs

Models of Access and Clinical Service Delivery for People with HIV in Austral...

EUPATI patient expert training course and its relevance for patient involvement

Integrating prevention into primary healthcare - Jan Savage

Changes in patient organisations - and how this changes the medical world

Strategy For Evidence Based Health Services

Webinar: EUPATI Update to participants of the EUPATI Focus Groups - 4 Nov 2013

Shared Care Plan Trials - Progress to Date

Introducing Advanced Nursing Practice in Oman

ENCA 2016 - Genoa - Bas Vastert

06 Trend in health professions education

Spinger2

OUIDA CARR PICO

EcoHealth-OneHealth Resource Centre Chiang Mai University

Cochrane reviews and guideline development: Is there anything new under the sun?

Presentatie svin deneckere_itineraevent

Cadth 2015 d7 presentation 2015 14 apr15

Introduction Lecture for Implementation Science

Plus de EURORDIS - Rare Diseases Europe

RareConnect.org webinar How to use Twitter to build your online rare disease ...EURORDIS - Rare Diseases Europe

RareConnect.org Update 2016EURORDIS - Rare Diseases Europe

RareConnect.org webinar: How to start an awareness day for your rare diseaseEURORDIS - Rare Diseases Europe

Living with TRAPS poll resultsEURORDIS - Rare Diseases Europe

Pitt Hopkins syndrome community on RareConnect.orgEURORDIS - Rare Diseases Europe

The Value of Online CommunitiesEURORDIS - Rare Diseases Europe

Updates to RareConnect.org in 2014EURORDIS - Rare Diseases Europe

Update on the Mysasthenia Gravis community on RareConnect.orgEURORDIS - Rare Diseases Europe

Surveys and polls: The RareConnect.org ExperienceEURORDIS - Rare Diseases Europe

RareConnect.org - Connecting Rare Disease Patients GloballyEURORDIS - Rare Diseases Europe

Rare disease day 2011 highlightsEURORDIS - Rare Diseases Europe

Results of Survey on the role of Patient Groups in Research and their priorit...EURORDIS - Rare Diseases Europe

Results of a survey on the role of Patient Groups in Research and their prio...EURORDIS - Rare Diseases Europe

Conference 3 "Outcomes of 15 National Conferences, "EURORDIS - Rare Diseases Europe

Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe" EURORDIS - Rare Diseases Europe

Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"EURORDIS - Rare Diseases Europe

Conference 5 - “Patient’s Experience in the Development and Implementation of...EURORDIS - Rare Diseases Europe

Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop on registries"EURORDIS - Rare Diseases Europe

Plus de EURORDIS - Rare Diseases Europe (19)

RareConnect.org webinar How to use Twitter to build your online rare disease ...

RareConnect.org Update 2016

RareConnect.org webinar: How to start an awareness day for your rare disease

Living with TRAPS poll results

Pitt Hopkins syndrome community on RareConnect.org

The Value of Online Communities

Updates to RareConnect.org in 2014

Update on the Mysasthenia Gravis community on RareConnect.org

Surveys and polls: The RareConnect.org Experience

RareConnect.org - Connecting Rare Disease Patients Globally

Rare disease day 2011 highlights

Results of Survey on the role of Patient Groups in Research and their priorit...

Results of a survey on the role of Patient Groups in Research and their prio...

Conference 3 "Outcomes of 15 National Conferences, "

Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"

Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"

Conference 5 - “Patient’s Experience in the Development and Implementation of...

Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop on registries"