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                              Phillip Inman | Unpunished and                                            Paul Richards | Every now & then parties           paulinlancs | Mid-Staffs and the call for          Royal Holloway calls for Philip Ham m ond to                   Iain Martin | W hich RBS bank er
                              unreform ed, the bank ers have got away with                              select an unsuitable by-election candidate,        m oral outrage                                     resign over hom ophobic com m ents                             Tyrie sum m on nex t?
                              it | Phillip Inm an                                                       giving ...
                                                                                                                                                                        10:47 Though Cowards Flinch              10:45 National Campaign A gain...                              10:42 Telegraph politics blog
                                                          10:50 Comment is Free                            10:49 Paul Richards

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                                                                                                                                                                                        Bupa CEO
                                                                                                                                                                                        pledges to
                                                                                                                                                                                        create UK's                                 Central Lobby
                                                                                                                                                                                        first 'teaching'                            CentralLobby
       Cheap vitamin could prevent birth defects                                                                                                                                        dementia care
                                                                                                                                                                                        home                              BayanRahman This month marks 25th
8th February 2013                                                                                                                                                                                                         anniversary of start of Anfal genocide operation
                                                                                                                                                                                                                          against Kurds in Iraq. Time to end the silence
                                                                                                                                                                                                                          epetitions.direct.gov.uk/petitions/31014
                                                                                                                                                                                                                          18 hours ago · reply · retw eet · fav orite
Politicians need to help tackle the common misconception that taking folic acid during pregnancy is
optional, writes Jackie Bland, chief executive of SHINE.                                                                                                                                                                  BayanRahman Big thank you to British MPs
                                                                                                                                                                                                                          @nadhimzahaw i @megmunn @halfon4harlow MP
                                                                                                                                                                                        One in three                      and others w ho are seeking debate on Kurdish
Spina bifida is the most severe congenital abnormality compatible with life, yet it still affects 1 in 1000 pregnancies in                                                              Brits are                         genocide in UK parliament
                                                                                                                                                                                                                          18 hours ago · reply · retw eet · fav orite
the UK (900 per year). Not usually detected until a 20 week scan, approximately 80% of these pregnancies result in                                                                      nervous about
                                                                                                                                                                                        speaking to                       DarrenFShine Big @GoFolicUK story of the DAY -
traumatic, late terminations at 20 weeks +. Yet, we have known since 1991 that up to 72% of cases of Neural Tube                                                                        people who                        "Cheap vitamin could prevent birth defects"
Defects (NTDs), like spina bifida and anencephaly, could be prevented with a simple and cheap vitamin supplement,                                                                       have dementia                     #FolicAcid -
folic acid (vitamin B9).                                                                                                                                                                                                  centrallobby.politicshome.com/latestnew s/art…
                                                                                                                                                                                                                          pic.tw itter.com/6ueOZL93
                                                                                                                                                                                                                          35 minutes ago · reply · retw eet · fav orite

Official statistics focus on live births (approx 200 per year) providing a false impression of the scale of the                                                                                                           ShineRBarnatt Promoting folic acid use could
devastating effects of these severe congenital abnormalities, leading them to being described as a ‘manageable                                                                                                            reduce incidence of NTDs like spina bifida- pls RT
                                                                                                                                                                                                                          centrallobby.politicshome.com/latestnew s/art…
problem’. Termination must not be viewed as a means by which to ‘manage’ any disability, but particularly in the                                                                        Dementia                                                        Join the conversation
case of Neural Tube Defects when so many cases could so easily be prevented.                                                                                                            Patients Need
                                                                                                                                                                                        Urgent Support
                                                                                                                                                                                        After Diagnosis
Awareness of folic acid is now lower than it was in the early 1990’s. In response to this SHINE (Spina bifida.
Hydrocephlaus. Information. Networking. Equality) launched its own awareness campaign Go Folic! in 2010. Despite
the campaign’s growing success, charity funding alone cannot reach the number of women necessary, nor should it
need to.
Much needless suffering and long term costs to families, the NHS and the Department for Work and Pensions (DWP)
could be prevented through investing in primary prevention, rather than ‘managing’ the consequences of a lack of                                                                        Marie Fleming
education and awareness. A small investment could lead to an enormous long-term saving in both the lifetime costs                                                                       loses legal case
                                                                                                                                                                                        challenging
of raising a child with a multifaceted disability, and the psychological trauma of so many avoidable late terminations.                                                                 Irish laws
                                                                                                                                                                                        prohibiting
                                                                                                                                                                                        assisted dying
The long term costs associated with living with spina bifida include: repeated complex surgeries affecting the spine,
brain, legs, feet, kidneys, bladder, bowel; immobility, shunt malfunction, epilepsy, kidney failure, osteoarthritis,
scoliosis, organ compression, skin breakdown, ongoing pain management (including medication), specialist
equipment (wheelchairs, orthotics, catheters, cars) and treatment for stress and depression. All this is before we
even consider social care and welfare benefits.
                                                                                                                                                                                        Unicef UK calls
The majority of women are still not taking folic acid prior to and during pregnancy, and of those that do only 5.5%                                                                     for more
                                                                                                                                                                                        support for
take it at the correct dose and time for it to be effective. Sadly, there is a widespread misconception that folic acid is                                                              mothers
something optional that can be taken during pregnancy because it is ‘good for the baby’, rather than something that
is essentialto help prevent very serious consequences. This misconception mustchange if women are to take the
Department of Health’s recommendations seriously. The only way that this will be achieved is through on-going
education and health promotion.

Every politician in the UK, at both national and local level needs to understand the lifelong impact of these severe
disabilities regardlessof whether an affected pregnancy results in a live birth or termination. We need to ensure
that policies are implemented to support effective and on-going awarenessraising amongst all womenof a
childbearing agealong with good preconception health promotion. We need to be proactive not reactive if we
are to bring about the reduction in the number of pregnancies affected by Neural Tube Defects that we know is
possible.

Go Folic!




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Cheap vitamin could prevent birth defects

  • 1. Log In Sign Up RSS Phillip Inman | Unpunished and Paul Richards | Every now & then parties paulinlancs | Mid-Staffs and the call for Royal Holloway calls for Philip Ham m ond to Iain Martin | W hich RBS bank er unreform ed, the bank ers have got away with select an unsuitable by-election candidate, m oral outrage resign over hom ophobic com m ents Tyrie sum m on nex t? it | Phillip Inm an giving ... 10:47 Though Cowards Flinch 10:45 National Campaign A gain... 10:42 Telegraph politics blog 10:50 Comment is Free 10:49 Paul Richards Polit ic s Hom e. All Todays Polit ic s I n One Pla c e Search Home Category Culture & Home Economy & Education Energy & Foreign & Health & Local & Party Transport PH PRO On The GO About Us Contact Hub Media Affairs Work Environment Defence Care Regional Politics Us/Help Central Lobby Member Directory Waugh Room The House Magazine Political Pulse Story Tracker Today's Events The Green Box Today's Top Ten Today's Front Pages Newsmakers Dot Commons' Diary You are here: Central Lobby / Article Detail Further Reading Go Folic! Member News Bupa CEO pledges to create UK's Central Lobby first 'teaching' CentralLobby Cheap vitamin could prevent birth defects dementia care home BayanRahman This month marks 25th 8th February 2013 anniversary of start of Anfal genocide operation against Kurds in Iraq. Time to end the silence epetitions.direct.gov.uk/petitions/31014 18 hours ago · reply · retw eet · fav orite Politicians need to help tackle the common misconception that taking folic acid during pregnancy is optional, writes Jackie Bland, chief executive of SHINE. BayanRahman Big thank you to British MPs @nadhimzahaw i @megmunn @halfon4harlow MP One in three and others w ho are seeking debate on Kurdish Spina bifida is the most severe congenital abnormality compatible with life, yet it still affects 1 in 1000 pregnancies in Brits are genocide in UK parliament 18 hours ago · reply · retw eet · fav orite the UK (900 per year). Not usually detected until a 20 week scan, approximately 80% of these pregnancies result in nervous about speaking to DarrenFShine Big @GoFolicUK story of the DAY - traumatic, late terminations at 20 weeks +. Yet, we have known since 1991 that up to 72% of cases of Neural Tube people who "Cheap vitamin could prevent birth defects" Defects (NTDs), like spina bifida and anencephaly, could be prevented with a simple and cheap vitamin supplement, have dementia #FolicAcid - folic acid (vitamin B9). centrallobby.politicshome.com/latestnew s/art… pic.tw itter.com/6ueOZL93 35 minutes ago · reply · retw eet · fav orite Official statistics focus on live births (approx 200 per year) providing a false impression of the scale of the ShineRBarnatt Promoting folic acid use could devastating effects of these severe congenital abnormalities, leading them to being described as a ‘manageable reduce incidence of NTDs like spina bifida- pls RT centrallobby.politicshome.com/latestnew s/art… problem’. Termination must not be viewed as a means by which to ‘manage’ any disability, but particularly in the Dementia Join the conversation case of Neural Tube Defects when so many cases could so easily be prevented. Patients Need Urgent Support After Diagnosis Awareness of folic acid is now lower than it was in the early 1990’s. In response to this SHINE (Spina bifida. Hydrocephlaus. Information. Networking. Equality) launched its own awareness campaign Go Folic! in 2010. Despite the campaign’s growing success, charity funding alone cannot reach the number of women necessary, nor should it need to. Much needless suffering and long term costs to families, the NHS and the Department for Work and Pensions (DWP) could be prevented through investing in primary prevention, rather than ‘managing’ the consequences of a lack of Marie Fleming education and awareness. A small investment could lead to an enormous long-term saving in both the lifetime costs loses legal case challenging of raising a child with a multifaceted disability, and the psychological trauma of so many avoidable late terminations. Irish laws prohibiting assisted dying The long term costs associated with living with spina bifida include: repeated complex surgeries affecting the spine, brain, legs, feet, kidneys, bladder, bowel; immobility, shunt malfunction, epilepsy, kidney failure, osteoarthritis, scoliosis, organ compression, skin breakdown, ongoing pain management (including medication), specialist equipment (wheelchairs, orthotics, catheters, cars) and treatment for stress and depression. All this is before we even consider social care and welfare benefits. Unicef UK calls The majority of women are still not taking folic acid prior to and during pregnancy, and of those that do only 5.5% for more support for take it at the correct dose and time for it to be effective. Sadly, there is a widespread misconception that folic acid is mothers something optional that can be taken during pregnancy because it is ‘good for the baby’, rather than something that is essentialto help prevent very serious consequences. This misconception mustchange if women are to take the Department of Health’s recommendations seriously. The only way that this will be achieved is through on-going education and health promotion. Every politician in the UK, at both national and local level needs to understand the lifelong impact of these severe disabilities regardlessof whether an affected pregnancy results in a live birth or termination. We need to ensure that policies are implemented to support effective and on-going awarenessraising amongst all womenof a childbearing agealong with good preconception health promotion. We need to be proactive not reactive if we are to bring about the reduction in the number of pregnancies affected by Neural Tube Defects that we know is possible. Go Folic! converted by Web2PDFConvert.com