Presentation given by Fernando Martin-Sanchez and Kathleen Gray at IBES (Institute for the Broadband-Enabled Society) Annual Symposium - Sept 2011

1. IBES Annual Symposium 2011
Health and Wellbeing
14 September 2011
Prof. Fernando Martin-Sanchez & Dr. Kathleen Gray
Health and Biomedical Informatics Research Unit

2. Outline
• Youth Mental Health
• Telemedicine
• Electronic Health
Records
• Health and Biomedical
Informatics Research

3. Introduc)on
• Broadband
can
provide
many
opportuni)es
for
the
health
sector:
– Monitoring
health
condi)ons
– enabling
shared
electronic
health
records
– Improving
youth
mental
health
services
• Broadband
technologies
are
revolu)onising
the
delivery
of
medicine.

4. Youth
Mental
Health
• Providing
opportuni)es
for
young
people
who
are
socially
isolated
to
develop
online
networks
and
ac)vi)es
that
connect
them
with
peers,
clinicians
and
the
broader
social
community.

5. Youth
Mental
Health
Projects
– Promo%ng
Guideline
Concordant
Care
for
Young
People
with
Depressive
Disorders
– Social
Networking
Applica%ons
for
Young
People
with
Disabili%es
from
Ethnic
Communi%es
– HORYZONS:
broadband
for
first
episode
psychosis

6. Telemedicine
• The
delivery
of
healthcare
remotely
opens
up
a
number
of
opportuni)es
for
people
to
engage
with
their
prac))oners
over
a
broadband
connec)on.

7. Telemedicine
Projects
– The
Telestroke
Solu%on
to
Rural
Thrombolysis
– Hap%c
Tele-­‐Rehabilita%on:
Latency
implica%ons
for
system
stability
and
clinical
communica%on
– Concordance
between
real-­‐%me
teleden%stry
assessments
and
face-­‐to-­‐face
examina%on
– Virtual
visits:
Inves%ga%ng
the
acceptability
of
webcam
consulta%ons
for
young
adults’
sexual
health
– Wireless
broadband
monitoring
of
knee
osteoarthri%s
– Overcoming
geographical
barriers
for
community
health
through
3D

8. Electronic
Health
Records
• Electronic
health
records
are
transforming
healthcare,
altering
doctor-­‐pa)ent
rela)onships
and
empowering
individuals
to
take
a
more
proac)ve
approach
towards
their
health.

9. Electronic
Health
Records
Projects
– Mul%-­‐site
records
for
immigrants
and
refugees
requiring
specialist
care
– Making
Pathology
Reports
Smarter
– Ethical
and
Social
Issues

10. Health and Biomedical
Informatics Research

11. Health
and
biomedical
informa)cs
• The
science
and
prac)ce
around
informa)on
in
health
that
leads
to
informed
and
assisted
healthcare
(Health
Informa)cs
Society
of
Australia,
2010).
• It
is
the
body
of
knowledge
that
concerns
the
acquisi)on,
storage,
retrieval
and
use
of
informa)on
in,
about
and
for
human
health,
and
the
design
and
management
of
related
informa)on
systems
to
advance
the
understanding
and
prac)ce
of
healthcare.

12. Synergies
between
Health
and
Biomedical
Informa)cs
and
the
NBN

13. Health
and
biomedical
informa)cs
and
the
NBN
• Health
and
biomedical
informa)cs
is
underpinned
by
the
availability
of
ultra-­‐high-­‐
speed,
high-­‐capacity,
ubiquitous,
‘always-­‐on’
broadband
connec)vity
that
enables
the
transmission
of
health
informa)on
between
different
points
in
the
healthcare
system.

14. Public
health
informa)cs
• Tracking
outbreaks
• Real-­‐)me
health
surveillance
• Emergency
preparedness
and
disasters
response
• Recent
examples
with
outbreak
of
Shiga
toxin-­‐
producing
E.
coli
in
Germany.
Open
source
genome
sequencing
and
data
sharing.

15. Social
media
and
biomedical
and
clinical
research
• Social
media
as
a
research
tool
• Clinical
Research
with
the
pa)ents,
not
on
the
pa)ents
• Examples
– 23andMe
–
Parkinson’s
Disease
–
PLoS
Gene)cs,
2
new
gene)c
associa)ons
– Pa)entsLikeMe
–
Nature
Biotech.
Self-­‐reported
data
from
600
pa)ents
on
the
use
of
lithium
for
Amyotrophic
Lateral
Sclerosis
(ALS)
– Genomera,
CollabRX,
– Gene)c
Alliance,
SAGE
– DIYGenomics

16. Digitally
enabled
personalised
medicine
• Personalized
medicine
refers
to
the
tailoring
of
medical
treatment
to
groups
of
pa)ents
with
similar
gene)c
or
molecular
profiles.
• Enabling
technologies:
– personal
genome
sequencing
– integrated
personal
health
records
and
– sensor
technology.
• Ultra
high
speed
broadband
networks
will
be
required
to
transmit
enormous
volumes
of
data
from
pa)ents’
homes
to
health
prac))oners
and
vice
versa
in
a
)mely
manner,
and
to
enable
the
processing
of
this
deluge
of
data.
• Personalised
medicine
offers
enormous
opportuni)es
for
improving
preven)ve,
diagnos)c
and
therapeu)c
solu)ons
à
improving
healthcare
outcomes,
reducing
costs
and
increasing
pa)ent
safety.

17. Remote
pa)ent
data
monitoring
and
data
collec)on
Environmental sensors Genomic sensors
Phenomic sensors
Environmental risk factors Biomarkers (DNA sequence,
(pollution, radiation, toxic agents, …) proteins, gene expression, epigenetics
Physiological, biochemical parameters
(cholesterol, temperature, glucose, heart rate…)
Integrated personal health record

18. Data
flows
across
the
NBN
to
facilitate
personalised
medicine

19. NBN
and
pa)ent
empowerment
Current
NBN-­‐enabled
Driving
forces:
pa;ent
empowerment,
networks
personalized
medicine,
social
networks
EHR
–
Electronic
Personally
Ci)zens
are
able
to
maintain
and
control
their
Health
Record
Controlled
EHR
own
health
informa)on
Gene-­‐disease
Personal
Ci)zens
ask
for
gene)c
analysis
of
their
DNA
associa)on
genomics
through
the
Internet
and
receive
reports
on
studies
various
aspects
of
their
health
Clinical
trials
Crowdsourced
The
pa)ent
voluntarily
shares
informa)on
on
clinical
trials
treatments
and
evolu)on
of
his/her
illness
with
other
pa)ents

20. Model
for
the
Centre
for
HBIR
@UniMelb
Academic
home
Funding
Agencies
(competitive
Grants)
Foundational Foundational
Contributing Contributing
member member
Support of specific activities Liaison with medical specialties

21. Thank you for your
attention!