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Poster Booklet 
WHO ID Topic 
C101-C109 Committees & Reference Groups 
C201-C219 WHO Collaborating Centres 
C301-C321 ICD-11 
C401-C438 ICD-10 
C501-C541 ICF 
C601-C610 ICHI 
C701-C722 Other
C101-Committees & Reference Groups 
109 
WHO ID Title Authors 
C101 Report from the WHO-FIC Network 
Advisory Council 
Berg; Hargreaves 
C102 Family Development Committee 
Annual Report 2014 
Hargreaves; Ten Napel; 
Macpherson 
C103 Informatics and Terminology 
Committee (ITC) Annual Report 
Carvell; Della Mea 
C104 EIC annual report Buchalla; Walker 
C105 URC Annual Report Vogel; Gongolo; Moskal 
C106 Functioning and Disability Reference 
Group Annual Report 2013-2014 
Sykes; Martinuzzi 
C107 Mortality Reference Group: Annual 
Report, 2013-2014 
Hoyert; Wood; Johansson 
C108 Work plan update - Functioning Topic 
Advisory Group (fTAG) 
Selb; Stucki; Kennedy 
C109 Quality & Safety TAG Southern; Quan; Ghali
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
Abstract During the 2007 annual meeting of the Network, a WHO-FIC Council was established to accommodate the need 
for broader participation in the core decision-making processes of the WHO-FIC Network and, in 2013, role of the Advisory 
Council was confirmed in the Network’s ‘Conduct of the WHO Family of International Classifications Network’ paper. 
The functions of the Council are 1) to develop a Strategic Work Plan for the Network, which is presented at the annual 
WHO-FIC Network meeting, 2) to monitor and follow up progress of the Strategic Work Plan, 3) to establish and revise, as 
needed, procedures for the conduct of annual meetings of the Network, 4) to participate in planning the annual meetings, 
and 5) to review action items from each meeting and address new action items that arise. 
Introduction 
Report from the Council 
During 2008, the Council agreed to 
establish a Small Executive Group 
(SEG) to prepare recommendations for 
discussion by the Council and identify 
other issues for Council discussion and 
decision. 
The SEG includes the co-chairs of the 
Council, two additional committee or 
reference group co-chairs (Andrea 
Martinuzzi and Patricia Wood), a 
network member nominated by the 
WHO (Lyn Hanmer) and WHO 
Headquarters staff. 
11-17 October 2014 
Barcelona, Spain 
C101 
Authors: Lars Berg and Jenny Hargreaves 
Co-Chairs 
Work during the last year 
ICD revision 
Both Council Co-Chairs are members 
of the Revision Steering Group (RSG) 
of the ICD Revision towards ICD-11. 
Monthly Telephone Conferences of the 
RSG were attended by both co-chairs. 
One Co-chair (Lars Berg) joined phone 
Conferences and face-to-face meetings 
of the RSG-SEG. 
The SEG provided advice to the WHO 
about engagement of the Network in 
the process and on WHO plans to 
evaluate country transition 
requirements. 
Acknowledgements 
The Council convened twice during the 
annual WHO FIC Network meeting in 
Beijing in October 2013. 
Stefanie Weber had served two 
consecutive terms as council co-chair 
and was not available for re-election. 
The Council elected Jenny Hargreaves 
as a new Council co-chair and Lars 
Berg was re-elected, both for a two-year 
period. 
During the working period October 
2013 - September 2014 the Council 
conducted three telephone 
conferences, in February, April and 
September 2014. 
The Small Executive Group (SEG) meet 
in monthly teleconferences, and also 
face-to-face at WHO in Geneva in April 
2014. The principal focuses of these 
meetings were to follow up on action 
items from the Beijing meeting, to 
review the status of the Strategic Work 
Plan and to explore ways to enhance 
participation in the Network. 
The SEG and Council focus has been: 
A. Paper on Conduct of the WHO-FIC 
Network: 
The paper is a compilation of existing 
and approved papers about the 
Network. In an interactive process the 
paper was compiled, aligned and 
updated in 2013 and presented in the 
Annual Network meeting in Beijing. 
The compiled paper was approved by 
the Council in Beijing October 18 2013, 
subject to some minor corrections and 
a final review by the WHO 
Headquarters. The final paper 
Development of ICHI 
Acknowledgements to Stefanie Weber 
for her excellent 4-year period as 
Council Chair, ending in Beijing 2013. 
(Conduct_of_WHO-FIC_Network-version1. 
pdf) was posted on the WHO 
web site 17 February 2014. 
The document is open for changes at 
the annual meeting every year. 
Proposals for changes to the 
governance document should be 
submitted before the September 
teleconference of the Council. 
Track changes will be circulated in the 
future to the council members for 
transparency, whereas online only a 
final version is posted. 
B. Alignment of the Strategic Work 
Plan (SWP): 
During 2013 teleconferences with the 
six committees/reference group co-chairs 
were undertaken. The Strategic 
Work Plan (SWP) for the WHO-FIC 
Network was reviewed in order to align 
it to a complete and comprehensive 
Work Plan that reflects the full work of 
the Network. The work plans were 
compiled into one single sheet in Excel. 
As a continuation of this work the 
Center Heads, the WHO Regional 
Advisors and the WHO-FIC 
Headquarter staff had a pre-meeting in 
Beijing 11 October before the Annual 
Meeting 2013 to better align the WHO 
Collaborating Centre’s resources with 
the WHO-FIC Network’s SWP. 
Further alignment and updates to the 
SWP for committees and reference 
groups were undertaken at the mid-year 
meetings in 2014. 
Important aspects are the items 
included in the workplan, how they link 
to the different committees and 
groups, and what resources are 
available. It was clarified that SWPs 
considered at mid-year meetings and 
presented at each annual Network 
meeting should be for the workplan for 
the year following the annual meeting. 
C. Election rules 
Due to the change of committee 
structure 2012 there are WHO-FIC 
committees having both co-chairs 
coming to the end of their second 
terms of office in 2014. Current WHO-FIC 
rules do not allow co-chairs to 
serve more than two two-year terms. 
There may be also other reasons that 
would result in change of both co-chairs 
of one committee or reference 
group. In such cases, the Council 
decided that pragmatic mechanisms 
will ensure continuity rather than rule 
changes: 
- Former co-chairs are available for 
consultation 
- Former co-chairs acting as a 
secretariat 
- WHO focal point providing continuity 
ICF ontology 
The Council and SEG, with the FDRG, 
FDC and ITC, have liaised with WHO 
about the need to proceed with 
systematic ontological work on ICF 
with the goal of improving integration 
of ICF with other health information 
systems and harmonization with the 
other WHO classifications. Liaison has 
focussed on the WHO's work towards 
establishing a project to meet these 
needs, and Network support of the 
project. 
The Council and SEG, with the FDC, 
provided advice to the WHO for its 
work towards development of an 
International Classification of Health 
Interventions, as the work moves from 
a pilot alpha development to a formal 
WHO project. Advice has included 
mechanisms for continuing use of the 
technical expertise of all the teams 
from the WHO-FIC network thus far 
involved.
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
Family Development Committee 
Jenny Hargreaves (Co-chair, Australian Collaborating Centre); Huib Ten Napel 
(Co-chair, Netherlands Collaborating Centre); Brooke Macpherson (Secretary, 
Australian Collaborating Centre) 
Introduction 
The Family Development Committee 
(FDC) was established in 1999 to 
ensure the WHO-FIC has a logical 
structure with health classifications 
identified for each health parameter 
and setting within the health system. 
The Committee met twice during the 
year, in October at the Annual Meeting 
in Beijing, China, and then again in 
June for the mid-year meeting in 
Chicago, USA. The mid-year meeting 
was held in conjunction with meetings 
to progress work on the International 
Classification of Health Interventions 
(ICHI) convened by the WHO and 
hosted by the American Medical 
Association. The photo on this poster is 
a view of the central area of Chicago 
near to the meeting venue. 
The FDC co-chairs would like to thank 
all the FDC members for their valuable 
contributions to the FDC work-plan 
activities during the year. 
Progress against each of the Strategic 
work plan activities is outlined here. 
Annual Report 2014 
11-17 October 2014 
Barcelona, Spain 
C102 
Abstract 
The Family Development Committee aims to develop the World Health Organization’s Family of International Classifications 
(WHO-FIC) as an integrated and comprehensive suite of classifications. It also aims to ensure that the WHO-FIC has a 
logical structure so that the classifications needed for each component and setting within the health system can be 
identified. This poster presents a summary of the activities of the FDC from October 2013 – September 2014. 
Title 
Strategic Work Plan review 
Task 3: Applications of the 
The Committee had opportunities to WHO-FIC 
review the Strategic Work Plan at both 
FDC meetings this year. Changes to 
wording and focus areas were agreed 
to by members based on discussion 
and feedback at these meetings. 
The agreed future work plan is to be 
tabled with Council at the Annual 
meeting in Barcelona. 
As part of the Committee’s work on 
applications of the WHO-FIC, a 
stocktake of the use of the WHO-FIC 
being used in casemix systems around 
the world was undertaken. 
Responses from different nations were 
collated and results presented to the 
Committee at the mid-year meeting in 
Chicago, USA. Responses showed 
varying practices amongst countries, 
and identified gaps in classification 
usage, especially around measuring 
functioning. 
The FDC used these responses to 
influence the development of ‘draft 
principles for an international casemix 
classification system’. This draft 
document contains potential 
considerations of a framework for an 
international grouper, that could be 
used for international comparisons and 
as a basis of more detailed, national 
groupers, used for funding and other 
management processes. 
Chicago, USA 
Task 4: WHO-FIC support for 
Universal Health Coverage (UHC) 
After consideration of how the WHO-FIC 
could support the WHO’s UHC 
initiative, the FDC investigated the 
extent to which the classifications 
could support measurement of certain 
indicators for the UHC initiative. 
At the mid-year meeting in Chicago, 
the ability to capture the WHO-World 
Bank’s 12 illustrative UHC prevention 
and treatment indicators using the 
WHO-FIC reference classifications was 
assessed. Results highlighted that 
there were gaps in the classifications 
that made coding difficult, and 
incomplete aspects of the definitions of 
the indicators also affected the ability 
to code accurately. 
The results of the analysis will be fed 
back to the WHO and relevant Network 
committees. 
Task 2: Integration of the Family 
For this task the FDC progressed the 
re-drafting of the 2007 WHO Family 
paper, which describes the Family, 
principles of classifications and the 
processes of adding, updating and 
maintaining classifications in the 
Family. 
The Annual meeting saw the 
agreement of FDC members on a new 
document structure for the paper. The 
new structure was used to present a 
new draft to members at the mid-year 
meeting in Chicago. Discussion of the 
new draft focussed on the need to 
reflect a shift to a more unified 
approach – how the classifications link 
together and are harmonised through 
comparisons of content models and 
ontologies, but with the paper still 
retaining the essence of what “the 
family” is. Further work was also done 
on the nature and place of ‘related’ 
and ‘derived’ classifications in the 
family. 
The revised draft family paper will be 
presented to Council at the Annual 
meeting in Barcelona. 
Task 5: Assess the need for 
additional members of the 
Family 
Task 1: International 
Classification of Health 
Interventions (ICHI) 
As the Focal Point for the WHO-FIC 
Network for the ongoing ICHI 
development work, the FDC held 
coordination meetings for ICHI. These 
meetings ran in conjunction with the 
FDC’s Annual meeting in Beijing, China 
and, as noted above, with the mid-year 
meeting in Chicago, USA. 
The meetings provided an opportunity 
for the ICHI development teams to 
report details of work undertaken, for 
FDC to provide advice, and for joint 
work between the project and FDC. 
The FDC gave consideration to the 
inclusion of the Dutch Institute of 
Logopedics and Phoniatrics’ ICF-logopedie 
as a national or specialty 
linearisation of ICF. Members also 
suggested that the additional content 
could be added to the URC update 
process for ICF. 
Task 6: Alignment of members of 
the Family 
FDC considered a report on progress 
towards harmonisation of the ICF 
environmental factors with ISO 9999. 
The work was reported to have been 
completed by the relevant ISO group 
and the FDC will now seek a copy of it 
for review.
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
Abstract 
This poster presents annual report of the Informatics and Terminology Committee (ITC), highligting activities of since the 
Beijing meeting in October 2013. 
Introduction 
Title 
The Informatics and Terminology 
Committee (ITC) was established in 
2010, combining the Electronic Tools 
Committee and the Terminology 
Reference Group into one WHO-FIC 
committee. 
. 
INFORMATICS AND TERMINOLOY 
COMMITTEE - ANNUAL REPORT 
11-17 October 2014 
Barcelona, Spain 
Karen Carvell1, Vincenzo Della Mea2 
1Canadian Institute for Health Information and North-American Collaborating Center; 
2University of Udine, Italy and Italian Collaborating Center 
Title 
Classifications and 
Revision Platforms 
A multi-language framework is 
required to enable the translation of 
content of WHO classifications. 
WHO HQ has developed a tool for this 
and the seven WHO languages have 
been loaded into memory. It features a 
translation memory to track movement 
in the classification and enables 
workflow for approval and comment on 
another person’s translation. 
In parallel to this effort, the Korean 
Collaborating Centre continues to work 
on the translation of ICD-11 to Korean 
and Chinese. 
Another focus of the ITC is to enhance 
formal knowledge representation of 
WHO classifications and their linkages 
to related terminologies. This is a 
multilateral item requiring coordination 
with other committees, reference 
groups, and external participants. 
There were several activities in the 
area over the past year: 
WHO-IHTSDO harmonization 
process – A number of ITC members 
are also members of the WHO-IHTSDO 
Joint Advisory Group (JAG). During the 
last year, JAG refined the architecture 
for harmonization and carried out the 
mapping of equivalences between 
ICD11 and SNOMED-CT in the 
Circulatory System chapter, and then 
started with a number of other 
chapters, as a preliminary work 
towards the Common Ontology. 
ICF Ontology – ITC Co Chairs 
participated in the FDRG mid-year 
meeting to begin discussions and work 
on the development of an ontology for 
ICF. 
Acknowledgements 
Multilingual Support 
WHO headquarters and collaborating 
centres work to enable standardized 
maintenance, update and revision of 
WHO classifications. 
Priorities in this area include 
maintaining and enhancing browsers 
for ICD, ICF and ICHI. Work has 
continued on the classification update 
platforms and on the ICD Revision 
Platform, which now provides a section 
for proposals. 
Formal Knowledge 
Representation 
ITC wishes to acknowledge the work of 
the WHO HQ and collaborating centres 
for their contributions over the past 
year. 
Standards 
Administration 
Technical standards are developed to 
enable the electronic exchange of WHO 
classifications. In 2013 the WHO 
developed a Uniform Resource 
Identifies (URI) scheme to identify 
ICD-11 entitles and a web interface. 
The URI API has been further 
consolidated and now also includes 
proposals. Correspondingly, the social 
apps used as a test case for the API 
have been updated to also publish 
proposals on Facebook and Twitter. 
The German Collaborating Centre has 
finalized the ICD-O-3 stylesheets and 
published the German version online. 
It is also possible to generate pdf, 
ClaML and Metadata. It is fully 
implemented in CTK and can be used 
by other Collaborating Centres, if 
needed, as well as by WHO. 
Other Activities 
1. The web site for poster submission 
has been maintained the 2014 WHO-FIC 
meeting. 
2. During the mid-year FDRG meeting, 
preliminary work was carried out on 
the mICF project, aimed at the 
development of a mobile app for ICF. 
3. Work is in progress on a web-based 
system for the ICD11 field trials. 
Ad-hoc meetings of the co-chairs have 
throughout the year; however, due to 
the lack of resources, no face to face 
mid-year meeting could be held. 
An ITC web page was developed by the 
Italian Collaborating Centre 
to contain documents and basic 
information on the committee such as 
minutes, membership, reports, etc. 
This would enhance communication for 
the committee and other members of 
the WHO-FIC network. 
http://mitel.dimi.uniud.it/who-fic-itc . 
A mailing list for ITC members has also 
been set up. 
The Strategic Workplan was updated 
following the Beijing meeting to 
include feedback from Council. This 
poster highlights work completed in 
the past year and underway within 
each of the ITC strategic priorities. 
C103
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
The EIC aims to improve the quality of health data and the use of the WHO Family of International classifications. Activities 
related to these objectives, and listed in the EIC strategic work plan, are reported according to their level of development. 
Introduction 
The EIC Resources for the 
Title 
The Education and Implementation 
Committee was created in 1999 and 
since this time has been working to 
improve the level of classification use 
and the quality of coded health data. 
During 2013-2014 the EIC had two 
teleconferences (February and 
September) and a face-to-face 
meeting in April in Lyon, France. The 
status of the EIC activities for this 
period is presented here. 
WHO-FIC Network 
Abstract 
11-17 October 2014 
Barcelona, Spain 
C104 
Cassia Maria Buchalla, Sue Walker and the Education and 
Implementation Committee members 
Title 
WHO-FIC database 
The EIC has worked on standard exam 
questions to allow testing of the 
knowledge of morbidity and mortality 
coders who use the WHO version of 
the ICD-10. 
The exams are available to Ministries 
of Health, Collaborating Centres and 
other Organisations. 
There is a requirement that the exams 
are offered under the terms and 
conditions established by the EIC. 
Although no certification is possible for 
individuals who pass the exam, coders 
interested assessing in their skills 
against an international coding 
benchmark will be issued letters of 
acknowledgement. Where to find EIC Products 
The EIC supports the development 
and completion of data in the WHO-FIC 
implementation database. 
During this period the tool has been 
improved and it being populated by 
countries. WHO Regional offices are 
also supporting the data collection. 
The aim of the database is to provide 
information to support the Global 
Health Observatory (GHO) by 
providing metadata about the 
classifications used to populate the 
GHO. 
The EIC has been asked to support 
the level of completion and currency 
of the data in the database. 
Materials will be developed to support 
user completion of the database. 
The current version of the database is 
available at http://beta.who-fic.nl 
Best Practices 
INFORMATION SHEETS (IS)- the 
following IS are available: 
•Training and Certification to Promote High 
Quality Data 
•International Statistical Classification of 
Diseases and Related Health Problems,10th 
Revision (ICD-10) 
•International Classification of Functioning, 
Disability and Health –ICF 
•What You Should Know about Clinical 
Documentation in Acute Care Hospitals 
•Uses of Coded Clinical Data 
•Mortality (Cause of Death) Data 
•Civil Registration and Vital Statistics 
•International Classification of Diseases 
(ICD) and Standard Clinical Reference 
Terminologies: A 21st Century Informatics 
Solution 
The following are being created: 
•Automated Systems for Coding Cause-of- 
Death Data 
•New International Death Certificate 
•ICHI 
•ICD and ICF Implementation Database 
BRIEFING KIT (BK) 
A collection of updated documents 
regarding the WHO FIC network has 
been created for new Collaborating 
Centers. 
This kit includes the EIC products, 
information on all designated 
Collaborating Centers and other useful 
information for those who are new to 
the WHO FIC Network. 
The ICF e-learning tool has been 
finalised and will be available soon. It 
has been developed as an introductory 
training package with further 
educational materials planned. 
The current version is available at 
http://icf.ideaday.de/ 
ICF PRACTICAL MANUAL 
This important product on ICF was 
made available for 12 months on the 
WHO website as an exposure draft. 
Feedback has been incorporated and 
the Manual is now updated and 
available as version 1. 
Educational Material 
TRAINING TOOLS 
The EIC has been engaged in the 
development of web-based training 
tools for both the ICD and ICF. 
The ICD-10 Training tool has 
recently been updated with more 
international coding examples, and 
is available at: 
http://apps.who.int/classifications/a 
pps/icd/icd10training/ 
The EIC also provides a training tool 
support group that allows users of 
the ICD training tool to submit 
questions relating to the training 
materials. 
Assessment materials 
ICD -11 
The EIC has provided case 
summaries for both the training 
for the ICD-11 field trials and for 
the field trials themselves. 
The EIC also discussed the need 
for ICD-11 implementation 
support documents. 
http://www.cdc.gov/nchs/icd/nacc_ed 
ucation_committee.htm
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
Abstract This poster represents the Update and Revision Committee (URC) 2014 annual report as submitted September 5, 2014 for the 
Barcelona WHO-FIC annual meeting. 
Introduction 
Title 
Purpose of the Update and Revision 
Committee (URC) is to support WHO and 
WHO-FIC Network in keeping the WHO 
Family of International Classifications 
“Reference Classifications” up to date in line 
with current knowledge. The functions of 
the URC are the development of Update 
policies, Update coordination & decision 
making and the participation in the revision 
work in order to ensure synchronization 
from one revision to the other and 
consistency within the members of Family of 
International Classifications. 
11-17 October 2014 
Barcelona, Spain 
C105 
Methods & Materials 
Annual updates: the URC ratified 121 
recommendations at the WHO-FIC Network 
2013 Annual Meeting held in Beijing, China 
for updating the ICD-10 and 40 
recommendations for updating the ICF (Fig. 
1 and 2). At the moment, in 2014, 74 
proposals have been moderated for ICD and 
48 proposals have been reviewed and put to 
vote for ICF. Functions, activities and 
completeness of deliverables are 
represented in the latest version of the 
Strategic Work Plan submitted to the WHO-FIC 
Council (Tab 1). 
An intensive restructuring of the content of 
the ICF update platform was carried out in 
coordination with FDRG. Using the features 
of the ICF update platform, all the proposals 
in the Open Discussion Layer were checked 
for consistency and then clustered together 
according to the relevant topic/block. Under 
every cluster, all the comments related to 
the different proposals were compiled and 
edited thus greatly simplifying the work of 
updating ICF carried out by the URC. 
The achievements of the Committee, made 
possible by the generous efforts of members 
and relative institutions, show an increasing 
engagement of the Collaborating Centres 
both in maintaining the ICD-10, particularly 
in view of the synchronization from one 
revision to the other, and in realizing a 
foundation ICF, with the implementation of 
the update proposals coming from the ICF-CY. 
Acknowledgements 
Results 
The URC work currently focuses on the 
10th Revision of the International 
Classification of Diseases (ICD-10) and the 
International Classification of Functioning 
Disability and Health (ICF) and is mainly 
conducted through the update and revision 
platforms. These platforms are workflow 
engines designed to facilitate 
communication within expert workgroups 
and ensure transparency of the processes. 
Work and communication is also carried out 
via e-mail, conference calls and meetings, 
including an annual meeting during the 
WHO-FIC Annual Meeting. The key 
deliverable of the URC work is the lists of 
annual updates for WHO-FIC member 
classifications. 
Conclusions 
Members of the Committee: 
R. Anderson, S. Bang, C. Barral, H. Brear, A. 
Brooke, D. Caulfeild, L. Clarke, T. Crawford, 
V. Dimitropoulos, C. Van Gool, H. Di Nubila, 
A. Elsworthy, L. Frattura, Olivier Guye, J. 
Hargreaves, D. Hoyert, R. Jakob, J. Jelsma, 
L.A. Johansson, J. Kasamatsu, N. 
Kostanjsek, R. Laurenti, R. Madden, D. 
Murphy, E. Oikawa, D. Pickett, M. Renahan, 
M. Robinson, H. Rocha, J. Rust, E. Sauls, P. 
Saxena, K. Seo, O. Steinum, H. Ten Napel, 
P. Tonel, U. Trinks, M. Virtanen, P. Wood, Y. 
References 
1. Terms of Reference for WHO FIC Update and 
Revision Committee (URC) version Dec 2012 
2. URC SWP, March 4, 2013 
3. The WHO Updating & Revision Committee 
http://www.who.int/classifications/committees/UR 
C.pdf 
4. The ICD update platform 
https://extranet.who.int/icdrevision/nr/login.aspx?ReturnU 
rl=%2Ficdrevision%2FDefault.aspx 
5. The ICF update platform 
https://extranet.who.int/icfrevision/nr/loginICF.aspx 
DIGITAL, MOBILE, NOW! 
Scan this to get a digital version 
URC Annual Report 
Gongolo F.1, Vogel U.2, Moskal L.3 
1 Central Health Directorate of Friuli Venezia Giulia Region – Italian WHO-FIC Collaborating Centre 
URC Co-chair; 2German Institute of Medical Documentation and Information (DIMDI) German 
WHO-FIC Collaborating Centre – URC Co-chair; 3Canadian Institute for Health Information (CIHI) 
– North American WHO-FIC Collaborating Centre, URC Secretariat. 
Proposal ID 
& update type 
Affected 
Code 
Original version Update version 
ID # 55 
Major: Addition 
of a new code 
and addition of 
exclusion 
b114 
Orientatio 
n 
functions 
b1565 Visuospatial perception 
Mental function involved in 
distinguishing by sight the 
relative position of objects in 
the environment or in relation 
to oneself. 
b1143 Orientation to objects 
Mental functions that produce 
awareness of objects or 
features of objects. 
b1565 Visuospatial perception 
Mental function involved in 
distinguishing by sight the 
relative position of objects in 
the environment or in relation 
to oneself. 
Exclusion: orientation to 
objects (b1143) 
ID # 56 
Major: Addition 
of a new code 
b114 
Orientatio 
n 
functions 
b1144 Orientation to space 
Mental functions that produce 
awareness of one’s body in 
relation to the immediate 
physical space. 
ID # 64 
Major: Addition 
of a new code 
b1670 
Reception 
of 
language 
b16703 Reception of body 
language 
Mental functions of decoding 
messages in body gestures 
made by hands and other 
movements, in order to obtain 
their meaning. 
ID # 65 
Major: Addition 
of a new code 
b1671 
Expressio 
n of 
language 
b16713 Expression of body 
language 
Mental functions necessary to 
produce messages using body 
gestures made by hands and 
other movements. 
Fig. 2 – Snap shot from the ICF annual 
updates document v. 2014 
Deliverable Activities Start 
Date 
End 
Date 
(plan) 
Tab. 1 – The URC relevant part of the WHO-FIC 
SWP (August 22,2013 v, simplified): 
% 
Annual updates 
to ICD-10 
Submission, review, decision 
and implementation of update 
proposals for ICD-10. 
nov-13 oct-14 0,8 
Realize a 
Foundation ICF 
implementation 
of ICF proposals 
Submission, review, decision 
and implementation of ICF-CY 
related update proposals for 
ICF. Due to the difference in 
submission process and lack of 
supporting rationale additional 
work is required. 
nov-10 oct-12 0,8 
Provide annual 
updates to ICF 
Submission, review, decision 
and implementation of update 
proposals for ICF. 
nov-12 oct-13 0,8 
Overall 
coordination of 
the update 
process 
Secretariat. Participation in the 
works, meetings and 
teleconferences of Initial 
Review Group and FDRG. 
nov-12 oct-13 0,8 
ICD-10 related items 
ICD-11 related items 
ICF related items 
overall coordination 
Instruction Tabular list entries Source 
URC # 
Appr. 
Date 
Major 
/ 
Minor 
Sugg. 
impl. 
Date 
Revise list of 
three character 
categories 
Arthropod-borne viral fevers and viral 
haemorrhagic fevers (A90A92-A99) 
A90 Dengue fever [classical dengue] 
A91 Dengue haemorrhagic fever 
A97 Dengue 
1971 
WHO 
October 
2013 
Major January 
2016 
Revise list of 
three character 
categories 
Exposure to inanimate mechanical forces 
(W20-W49) 
… 
W26 Contact with knife, sword or dagger 
other sharp 
objects 
2001 
Australia 
October 
2013 
Major January 
2016 
Delete 
categories at 
chapter level 
Arthropod-borne viral fevers and viral 
haemorrhagic fevers (A90A92-A99) 
A90 Dengue fever [classical dengue] 
Excl.: dengue haemorrhagic fever 
(A91) 
A91 Dengue haemorrhagic fever 
1971 
WHO 
October 
2013 
Major January 
2016 
Add categories, 
codes and text 
Revise code in 
excludes note 
A97 Dengue 
Dengue is a viral disease transmitted 
by bite of 
mosquito infected by dengue viruses. It 
is one disease entity with different 
clinical presentations and often with 
unpredictable clinical evolution and 
outcome. Most patients recover 
following a self-limiting non severe 
clinical course like nausea, vomiting, 
rash, aches and pains, but a small 
proportion progress to severe disease, 
mostly characterized by plasma leakage 
with or without haemorrhage, although 
severe haemorrhages or severe organ 
impairment can occur, with or without 
dengue shock. 
A97.0 Dengue without warning signs 
Dengue fever (DF)Dengue 
haemorrhagic fever Grades 1 and 2 
Dengue haemorrhagic fever without 
warning signs 
A97.1 Dengue with warning signs 
Clinical warning signs are: abdominal 
pain or tenderness, mucosal bleeding, 
lethargy and /or restlessness, rapid 
decrease in platelet count, increase in 
hematocrit. Other signs can include: 
persistent vomiting, visible fluid 
accumulation, liver enlargement more 
than 2 cm. 
Dengue haemorrhagic fever with 
warning signs 
A97.2 Severe Dengue 
Clinical signs include: 1. Severe plasma 
leakage leading to shock (Dengue shock 
syndrome - DSS) and/or fluid 
accumulation with respiratory distress; 
2. Severe bleeding as evaluated by 
clinician; 3. Severe organ involvement: 
Liver AST or ALT >=1000, CNS: 
impaired consciousness (encephalitis), 
involvement of other organs, as 
myocarditis or nephritis 
Severe Dengue fever 
Severe Dengue haemorrhagic fever 
A98 Other viral haemorrhagic fevers, 
not elsewhere 
classified 
Excl.: chikungunya haemorrhagic 
fever (A92.0) 
dengue haemorrhagic fever 
(A91A97.-) 
1971 
WHO 
October 
2013 
Major January 
2016 
Fig. 2 – Snap shot from the ICD annual 
updates document v. 2014
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2013 
This poster describes the activities of the Functioning and Disability Reference Group in the 12 months from October 2013 
to October 2014. Four main streams of work are reported; 1 ICF updates, 2 ICF education, 3 Measurement, 4 
Harmonisation and development. 
Background 
Summary of ICF updates in 2013-2014 
Title 
Title 
The items on the FDRG component of the WHO-FIC strategic plan are reported on below. The co-chairs met bi-monthly by 
teleconference. FDRG members and collaborators were informed of progress on the projects during the year and met by 
teleconference in March, July and September. A mid-year meeting was held from 1-3 May 2014 at the WCPT offices in 
London, attended by 30 participants from collaborating centres. 
Conclusions 
FDRG Annual Report 
Abstract 
C106 
Catherine Sykes^, Andrea Martinuzzi* 
^World Confederation for Physical Therapy (WCPT), United Kingdom 
* E. Medea Insitute, Research Branch of the Italian Collaborating Centre, Italy 
ICF Ontology 
Towards a common ontology for ICF 
The acknowledgment that work towards an ICF Ontology 
is needed and that this is the time to act was shared by 
WHO Title 
and by the relevant committees (ITC, FDC). 
The effort aims at a more ambitious project towards a 
common seamless integration of all health information to 
allow complete representation of health and functioning in 
the digitalized world. 
Building blocks in the project will be: 
•Leadership of the project will sit in WHO, but FDRG will 
substantially contribute to its realization. Possible initial 
steps involving FDRG will include: 
•shortlisting of ICF use cases 
•Stocktake/term beating for functioning relevant terms 
and concepts 
•Contribute to the model development 
Title 
ICF Updates 
Harmonization and development 
• Modelling 
• Content linkages 
• Terminology linkages 
• Content development 
• Review of qualifiers 
Measurement 
ICF Practical Manual 
Collaborative work 
between URC and IRG 
moderators to cluster 84 
proposals to have 26 new 
proposals, and updates 
workshops, have been 
instrumental in the 
progress on ICF updates. 
A total of 41 proposals 
were passed to the URC 
for voting. Only 11 
proposals remain in the 
Open Discussion Layer. 
Comments on the exposure draft of the ICF practical 
manual were accepted between October 2013 and May 
2014. These have been considered and, where practicable 
without major redrafting, incorporated. Substantial 
comments have been retained for subsequent editions. 
The ICF Practical Manual exposure draft will be remain on 
the WHO web site until WHO has completed the final 
internal publications process. There will be no printed 
copies of the publication. 
Collaborating Centres are encouraged to translate the 
practical manual. 
The writing group led by Ros Madden and including Andrea 
Martinuzzi, Judith Hollenweger, Diane Caulfeild, Jennifer 
Madans and Mitch Loeb are thanked for their tireless efforts 
to produce the manual. Thanks also go to those members 
of FDRG and EIC who commented on drafts and to WHO 
staff for their input. 
Education and Implementation Committee (EIC) 
A survey intended to find out about the ICF education needs 
of FDRG members and collaborators was carried out in the 
first quarter of 2014. The results were reported to EIC and 
the FRDG mid-year meetings. The results indicate the 
direction for a future education strategy for ICF. 
Interested WHO-FIC delegates are requested to attend the 
EIC session dedicated to ICF education to work on the 
strategy. The results of the survey are reported in a 
separate poster. 
ICHI development group 
Andrea Martinuzzi chairs the technical working group for 
functioning interventions. FDRG members and collaborators 
have contributed to the development of the axes and tabular 
list of functioning interventions in an updated Alpha 2. New 
developments in the ICHI project will be reported in 
separate posters. 
Informatics and Terminology Committee (ITC) 
In addition to working on ontology development the FDRG is 
working with ITC on a mobile application, named mICF, for 
the collection of functional status data. The mICF project will 
be reported in separate posters. 
Building on the work of John Hough in 2013, see posters at 
http://www.who.int/classifications/network/meeting2013/en/ 
a small group has been working on a paper on the criteria for 
selecting quality ICF literature. Significant progress was made 
during the mid-year meeting and is reported in a separate 
poster. The draft paper will be considered during the annual 
meeting, after which this project will be dropped from the 
WHO-FIC strategic work plan. The paper is due to be 
completed for publication by the end of 2014. 
11 – 17 October 2014 
Barcelona, Spain 
For further information contact the co-chairs: Andrea 
Martinuzzi [andrea.martinuzzi@lanostrafamiglia.it] and 
Catherine Sykes [csykes@wcpt.org] or the Secretariat 
Stefanus Snyman [ssnyman@sun.ac.za].
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
Abstract This poster presents the activities and status of the Mortality Reference Group (MRG) for 2013-2014. The WHO 
created the MRG as a component of the International Classification of Diseases (ICD) updating process. Comprised of 
members from Collaborating Centres and regional offices, the MRG meets in person to review problems faced in the 
application of ICD to mortality. In its 16th year, the MRG deliberated about 80 issues related to both updates to ICD-10 and 
development of the ICD-11 revision and made recommendations to the Update and Revision Committee for further action. 
Introduction 
Mortality Reference Group 
Annual Report, 2013-2014 
In the 16 years (1998-2014), the MRG reached over 500 decisions. The left 
panel of the graph shows the subset of the decisions that were sent on to the 
URC for information as well as for voting. The MRG forwarded 349 decisions to 
the URC: 238 recommendations for changes in the ICD and 111 decisions 
requiring no change in the ICD. The total number of issues either withdrawn by 
the MRG, referred back by the URC for additional work, or rejected by the URC 
during the first 16 years was 18 and is shown in the right panel of the graph. 
Title 
This is the 16th annual report of the 
Mortality Reference Group (MRG), 
established at the 1997 meeting of the 
Centre Heads as part of an updating 
mechanism for ICD-10. 
The MRG has dealt with hundreds of 
issues related to updating and clarifying 
ICD-10 as it applies to mortality 
classification and coding. The MRG has 
settled over 500 issues selected largely 
from the Mortality Forum (an 
international mortality classification 
discussion network) and submitted 349 
recommendations to the Update and 
Revision Committee (URC) for 
consideration. 
This report describes the background of 
the MRG and the issues decided in the 
16th year. 
11-17 October 2014 
Barcelona, Spain 
C107 
DL Hoyert1, P. Wood2, LA Johansson3 
(1) NCHS, (2) Statistics Canada, (3) Swedish Board of Health and Welfare 
Title 
Basis for the MRG 
The MRG met in Lyon, France, April 2-4, and 
in Barcelona, Spain, October 11-12, 2014. A 
smaller table group also met around then to 
work through issues concerning ACME 
decision tables where MRG decisions left 
details open. 
The MRG conferred about 80 issues, and 
submitted 36 recommendations (20 major 
and 16 minor) to the URC (Table). 
Conclusions 
Decisions during the 16th year 
Provisions for the MRG are described in 
two documents: the WHO long-term 
strategy document (WHO/HST/ICD/ 
C/97.39) and the Centre Heads’ Report 
for 1997 (WHO/HST/ICD/C/97.65). 
Briefly, for updating ICD-10, WHO- - 
working with the Centre Heads- - 
established two separate bodies: the 
MRG and URC. The MRG discusses 
issues raised in the Mortality Forum or 
those referred from other sources 
including the Centre Heads and WHO. 
The MRG can make decisions regarding 
the application and interpretation of 
ICD to mortality and submit a subset 
as recommendations to the URC for a 
vote on ICD updates and changes. 
The decisions requiring no change in 
the ICD are forwarded for the URC's 
information and for documentation. 
Decisions during the full 16 years 
In the 16th year, the MRG met in 
April and in October, 
communicated by e-mail, posted 
proposals and comments on the 
ICD-10+ Platform, did considerable 
work on a number of issues 
outside the committee meetings, 
circulated documentation for issues 
under consideration; and 
comprehensively documented all 
activities. During the sixteenth 
year, a total of about 80 issues 
were reviewed by the MRG and 
about 140 issues were reviewed by 
the MRG’s Table Group. Closure 
was reached for many of these and 
36 decisions were submitted to the 
URC in 2014. All of these were 
recommendations for change.
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
Abstract This poster reports on the ongoing work of the functioning Topic Advisory Group or fTAG. The main 
areas of fTAG work are populating functioning properties, identifying and reconciling mirror coding between 
ICF and ICD, providing a paper arguing for ICD-ICF joint use that includes use cases, and suggesting possible 
a structural and content revision of the Z-codes. This poster provides an overview of fTAG’s 2013-2014 
activities. 
Introduction 
Work Plan Update – Functioning 
Topic Advisory Group (fTAG) 
Title 
The functioning Topic Advisory Group 
(fTAG) was formed by WHO in 2010 
and is currently made up of 10 
members including two Co-chairs and 
a Managing Editor. 
At the fTAG meeting held during the 
2013 WHO-FIC meeting in Beijing, 26 
enthusiastic participants addressed the 
work plan tasks on populating 
functioning properties, mirror-coding 
and z-codes. 
In addition, regular executive group 
and periodic fTAG teleconferences were 
held. fTAG has been represented at 
regular Revision Steering Group (RSG) 
teleconferences throughout the year. 
11-17 October 2014 
Barcelona, Spain 
C108 
Selb M1,2, Stucki G1,2,3, Kennedy C4 
1ICF Research Branch in cooperation with the WHO-FIC CC in Germany (at DIMDI), Nottwil, Switzerland; 
2Swiss Paraplegic Research, Nottwil, Switzerland; 
3 Department of Health Sciences & Health Policy, University of Lucerne, Lucerne & Nottwil, Switzerland; 
4 Office of the Assistant Secretary for Planning and Evaluation, Department of Health and Human Services, 
Washington DC, USA 
Possible mirror coding i.e. conceptual 
and terminological overlaps between 
disease entities in the ICD-11 beta-version 
with the ICF, has been 
examined for: 
• Disorders Title 
of vision and visual 
functioning 
• Deafness 
• Disorders of intellectual develop-ment 
• Developmental learning disorders 
• Tetraplegia 
Two fTAG members independently 
reviewed the ICD-11 codes for the 
One task of the fTAG is to “populate” 
or identify functioning properties (FPs) 
i.e. ICF categories in the component of 
activities & participation for selected 
health conditions. 
Based on discussions at and after the 
2013 Beijing meeting, the list of health 
conditions designated for populating 
FPs was re-evaluated and adjusted and 
a suggestion for clustering the health 
conditions was implemented. 
Subsequently, FPs for 101 health 
conditions were entered into the ICD- 
11 revision electronic system called 
iCAT, and since March 2014 these FPs 
have been visible in the ICD-11 beta-browser. 
fTAG has been coordinating 
with WHO to optimize the visualization 
of the FPs in the ICD-11 betabrowser. 
An example of acquired hearing loss is 
given in figure 1. The poster entitled 
“Functioning properties - A first step 
toward ICD-ICF joint use” provides 
more detailed information on 
populating on FPs. 
A paper following up on the 2012 
publication Towards the joint use of 
ICD and ICF: A call for contribution has 
been submitted to a peer-review 
journal. 
aforementioned health conditions for 
mirror coding with relevant ICF 
categories and, after comparison of 
their respective results, came to a 
consensus on whether mirror coding 
exists. 
Question: Does mirror coding exist? 
Total 
impairment 
of visual 
acuity 
b2100 
Visual 
acuity 
functions 
Decision: Yes, terminological mirror coding exists, 
but only when the ICF category is quantified with a 
qualifier of 4 (complete impairment). Since no 
description is given for the ICD-11 code, no 
decision about conceptual mirror coding was made. 
One challenge faced by the fTAG was 
the ever-changing linearization of the 
selected health conditions in the beta-browser. 
For example, paraplegia was 
initially designated for the mirror 
coding task. Until mid-2014 paraplegia 
was not found on the beta-browser, 
but re-appeared in September 2014. 
The outcome of the consensus 
discussion will be presented at the 
fTAG meeting in Barcelona. 
Conclusions 
Examples of non-US application of the 
ICF was integrated in a revised version 
of the paper that will be sent to WHO 
for approval after getting final 
feedback at the Barcelona meeting. 
At the 2013 Beijing meeting the Z-codes 
working group presented 
possible re-assignment of former Z-codes 
to either contextual factors, 
ICHI-related categories or ICD-11 
post-coordination. Codes that were not 
re-assigned was reviewed by the 
meeting participants and feedback was 
given. Since then WHO reorganized the 
structure of the Z-codes based on 
ICPC-2, the feedback from Beijing and 
internal discussions. This new structure 
can now be seen on the ICD-11 beta-browser. 
Figure 1: Functioning properties in the ICD- 
11 beta-browser for acquired hearing loss 
Task 1: Populating 
Functioning Properties 
Task 2: Mirror Coding 
Task 3: Paper “Case for 
ICD-ICF Joint Use” 
Task 4: Evaluation of Z-Codes 
fTAG Members: Solvejg Bang, Francesco Gongolo, Cille Kennedy (Co-chair), Haejung Lee, John Melvin, Jane Millar, Marcelo Riberto, Melissa Selb (Managing 
Editor), Gerold Stucki (Co-chair) and Catherine Sykes; WHO Liaison to fTAG: Molly Meri Robinson Nicol
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
The Quality and Patient Safety TAG is charged with reviewing ICD-10, ICD-10CM and progressive drafts of 
ICD-11 to inform the development of the ICD-11, focusing on identifying practical modifications for ICD 11 drafts that 
would enable better measurement of quality and safety. Ultimately, an enhanced classification system will permit 
expanded use of coded health data for large-scale quality and safety surveillance in health care systems internationally. 
TASKS 
Quality & Safety TAG 
Title 
Abstract 
• Horizontally crossing all ICD-11 
chapters to advise on optimizing the 
entire classification’s content, 
structure and coding rules for 
enhanced application in both 
existing. 
• Developing an inventory of existing 
quality of care and patient safety 
indicators and potentially novel 
quality and safety indicators. 
• Assessing potential uses of ICD-11 
for health services, quality and 
patient-centered outcomes research. 
• Reviewing and critiquing the ICD-11 
beta draft from the perspective of 
the quality and safety use case. 
• Reviewing and critiquing Volume II 
work from the perspective of quality 
and safety use case. 
• Designing field trials for the beta 
version of ICD-11. 
11-17 October 2014 
Barcelona, Spain 
C109 
Authors: Danielle Southern, Hude Quan, William Ghali 
for the Quality & Safety TAG 
Title 
MEETING ATTENDEES 
We have held meetings in both New 
York, NY and Washington, D.C. US 
• Reviewed the status of discussions 
around coding rules (main condition, 
diagnosis timing, coding field). 
• Reviewed chapter 19&20 content 
and associated clustering 
mechanisms and presented these 
concepts in emails to WHO. 
• Prepared to undertake a granular 
review of the content in chapters 1- 
20 and will devise a committee work 
plan to do this. 
Published Manuscripts 
Overview TAG 
Main Condition 
Number of diagnoses fields 
Progressing Manuscripts 
The editorial team of the International 
Journal for Quality in Health Care is 
welcoming a series submission (i.e. 
intermittent submission of papers as 
they are completed). 
Timing of diagnosis 
New PSI project 
19&20/concepts 
Completed Field Trials 
Survey 
With the overriding goal for the TAG (& 
thus the WHO) to collect info on user 
needs from ICD-11 in advance of the 
next TAG meeting (in September) to 
inform ICD-11 refinements. We 
developed and executed a survey for 
the field trial. A manuscript or the 
results has been drafted and circulated 
for TAG member comments. 
Progressing Field Trials 
The QS-TAG has devised a matrix 
model for considering potential ICD-11 
field trials. The matrix categorizes 
cross-tabulates topic areas (e.g., 
validity of coded concepts, 
completeness of capture of critical 
patient safety and quality concepts, 
reliability and feasibility of various 
coding rules, opinions of stakeholders 
on various issues) against the 
methodologies that would be used for 
the field trials (i.e., code-recode 
studies using real medical records, 
coding studies assessing completeness 
of capture of key safety/quality 
concepts, surveys of stakeholders, 
heuristic evaluations of ICD-11 on 
various user interfaces, etc). 
Mapping of existing patient safety 
indicator 
We have begun a mapping exercise, 
whereby we have attempted to map 
the Calgary PSI list, the International 
ICD-10 AHRQ PSI list as well as Patient 
Safety concepts in ICD-11-Beta. 
Code-recode testing 
Objectives 
• To assess, from a healthcare 
leader’s perspective, the utility of 
patient safety information encoded 
using the following classification 
systems: AHRQ Common Format, 
WHO-ICD 10-CA, and WHO-ICD11 
(Beta) 
• To evaluate the inter-rater reliability 
of raters classifying patient safety 
events 
• To determine the face validity of 
event classification 
• To assess the coding practice for 
classifying patient safety events 
ACKNOWLEDGEMENTS 
ACTIVITIES 
Australia: James Harrison, Vijaya 
Sundararajan 
US: Marilyn Allen, Chris Chute, Ginger 
Cox, Donna Pickett, Harold Pincus,, 
Patrick Romano, Brigitta Spaeth- 
Rublee, 
Canada: Susan Brien, Alan Forster, 
William Ghali, Yana Gurevich, Lori 
Moskal, Hude Quan, Danielle Southern 
Switzerland: Bernard Burnand, Jean- 
Marie Januel 
France: Cyrille Colin 
Germany: Saskia Droesler 
WHO: Nenad Kostanjsek, Bedirhan 
Ustun. 
Conclusions 
Q&S TAG was funded by the Agency 
for Healthcare Research and Quality 
(AHRQ), Canadian Institute of Health 
Canadian Patient Safety Institute 
(CPSI), and Canadian Institute for 
Health Information (CIHI).
C201-220 WHO Collaborating Centres 
WHO ID Title Authors 
C201 Australian Collaborating Centre Annual Report 
2014 
Hargreaves; Metz; Macpherson; 
Njeru 
C202 WHO Collaborating Centre for the FIC in Brazil- 
Annual Report 
Buchalla; Laurenti; Di Nubila 
C203 2013-2014 activity report of the CC Inserm-EHESP 
for the WHO-FIC in French 
Lamarche-Vadel; Cuenot; 
Rodrigues 
C204 Report from the German Collaborating Centre Weber 
C205 Human Resource Development for effective 
implementation of FIC (ICD-10 & ICF) In India by 
Central Bureau of Health Intelligence 
Raikwar; Singh; Sharma; Prasad 
C206 Updates on the performance monitoring plan of 
the Italian WHO-FIC Collaborating Centre: a new 
reporting way on annual activities 
Frattura 
C207 Korean Collaborating Centre Annual Report 2014 Park; Hur; Roh; Kim 
C208 Annual Report from the Mexican Collaborating 
Centre (CEMECE) Jan 2013-Jan 2014 
Torres; Jimenez; Navarro; Yañez 
C209 Dutch WHO-FIC Collaborating Centre annual report 
2013-2014 
van Gool; ten Napel 
C210 WHO-FIC Collaborating Centre for North America Pickett; Renahan; Wood 
C211 Annual report from the Nordic WHO-FIC 
Collaborating Centre 2013 
Berg 
C212 WHO-FIC COLLABORATING CENTRE IN SOUTH 
AFRICA: 2014 REPORT 
Hanmer; Bradshaw 
C213 THAI WHO-FIC CC Annual Report 2014 Paoin; Yuenyongsuwan; 
Suvapan 
C214 Activities of the WHO-FIC Asia-Pacific Network Endo; Kim; Paoin; 
Yuenyongsuwan; Hong; et al. 
C215 A NETWORK WITHIN A NETWORK: THE 
IBEROAMERICAN EXPERIENCE 
Giusti; Jimenéz 
C216 Building ICD-11 Terminology Services Using the 
CTS2 Standard 
Jiang; Solbrig; Chute 
C217 Activities of the Stanford WHO Collaborating 
Center 
Musen; Nyulas; Tudorache; Tu 
C218 WHO Collaborating Centre in Calgary, Canada Quan, Ghali 
C219 WHO Collaborating Centre in Venezuela - CEVECE: 
Towards their sixty years 
Cordero; Villegas; Ortega; 
Regalado; Moreno; et al. 
C220 Activity Report from the WHO-FIC in Japan ICD Office Japan
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
Australian Collaborating 
Centre Annual Report 2014 
Abstract 
The Australian Institute of Health and Welfare has hosted the WHO-FIC Australian Collaborating Centre since 1991. The 
membership of the ACC is Australian organisations that have an interest and experience in working with classifications. 
This poster summarises the activities of the Australian Collaborating Centre that occurred between October 2013 and 
October 2014. 
Introduction 
The Australian Institute of Health and 
Welfare (AIHW) in Canberra, Australia, 
has hosted the ACC since April 1991. 
Re-designation of the ACC for a four-year 
period occurred on 7 May 2014. 
The Head of the Centre is Jenny 
Hargreaves, Senior Executive, 
Hospitals, Classifications and 
Performance Group at the AIHW. 
The ACC is a collaboration of Australian 
and New Zealand experts and 
organisations with an interest in 
classifications. Through the combined 
efforts of the organisational and 
individual members of the ACC, the 
use of the International Classification 
of Disease (ICD), the International 
Classification of Functioning, Disability 
and Health (ICF), the International 
Classification of External Causes of 
Injury (ICECI) and the International 
Classification for Primary Care, Version 
2 (ICPC-2) is facilitated. 
Thank you to all the ACC members and 
organisations for their valuable 
contributions to the ACC work-plan 
activities during 2013- 2014. Many of 
the activities occur through in-kind 
support from these individuals and 
organisations. 
11-17 October 2014 
Barcelona, Spain 
C201 
Jenny Hargreaves (Centre Head) and Katie Metz, Brooke 
Macpherson and Jodee Njeru (ACC Secretariat) 
Other contributions by ACC members 
to committees included: 
• Mortality Reference Group - Sue 
Walker and James Eynstone-Hinkins 
• Education and Implementation 
Committee – Sue Walker (co-chair) 
and Ros Madden 
• Revision Steering Group - Richard 
Madden and James Harrison 
• Family Development Committee 
- Richard Madden, Megan 
Cumerlato, Brooke Macpherson 
(Secretary), Nicola Fortune and Luis 
Salvador-Carulla 
• Functioning and Disability 
Reference Group – Ros Madden, 
Xing-yan Wen 
• ICHI Development advisory 
group - Richard Madden (Co-Chair) 
• Update and Revision Committee 
Ros Madden and Anne Elsworthy 
Contributions to WHO and 
Network committees 
The Head of the ACC served as Co- 
Chair of the WHO-FIC Network’s 
Advisory Council and of the Council’s 
Small Executive Group (SEG), as Co-chair 
of the Family Development 
Committee and a member of the 
Revision Steering Group (RSG). She 
also participated in the WHO’s informal 
ICHI development advisory group. 
Ros Madden facilitated the workshop, 
which provided an opportunity for 
people familiar with the ICF and 
interested in contributing to its 
updating and improvement to discuss 
the proposed updates and to 
contribute to the ICF updates process. 
The next day, an ‘ICF Network forum’ 
was convened with people interested in 
the use of ICF. Presentations were 
made about current uses of ICF in 
Australia and discussions were held 
about how to improve dissemination 
and exchange of information about ICF 
in Australia. 
Conclusions 
This is the annual report of the ACC to 
the Network and summarises activities 
which occurred during the period of 
October 2013 to October 2014. 
It incorporates information relevant to 
the ACC Terms of Reference as agreed 
with the WHO, and information on 
specific activities of the ACC and its 
member organisations. 
ICD 
The National Centre for Health 
Information Research and Training 
hosts the Australasian Mortality Data 
Interest Group. The Group held its 
annual workshop in November 2013 
with the theme of ‘Bringing Mortality 
Data to Life’. It was hosted by the 
Australian Bureau of Statistics and the 
Australian National University in 
conjunction with the National Centre 
for Classification in Health, University 
of Sydney. 
The workshop aims included 
highlighting advances in data methods 
and data linkage; identifying 
international developments in mortality 
data; and highlighting the links 
between research and the 
development of health policy. 
The National Centre for Classification 
in Health progressed work on the ninth 
edition of ICD-10-AM, and members of 
the ACC collaborated to provide 
comments for the URC’s ICD update 
process. 
ICF 
A ICF updates workshop was hosted by 
the University of Sydney, in 
collaboration with the ACC in Sydney on 
5 June 2014. 
ICHI 
Richard Madden has continued to 
provide leadership for the 
development activities relating to the 
ICHI. Several staff of the University 
of Sydney have provided valuable 
inputs. 
International Group for Indigenous 
Health Measurement 
The IGIHM is holding a meeting in 
Vancouver, Canada in early October 
2014 to focus on progressing measures 
of infant and child mortality, Indigenous 
identification, maternal mortality and 
indicators of wellbeing from an 
Indigenous perspective in the four 
countries (Australia, Canada, New 
Zealand, and the United States ). 
The AIHW will be presenting on the 
infant mortality estimates and mapping 
of primary health care services and 
Indigenous populations in Australia. 
The ACC continues to actively 
promote the development and use of 
the WHO classifications in Australia, 
and through contributions to the 
WHO-FIC Network. In addition to the 
activities described above, the ACC 
provides information and updates to 
relevant government agencies in 
Australia, including through the 
AIHW’s newly established Australian 
Health Classifications Advisory 
Committee. This will ensure that 
Australia is well placed to continue 
participation in development and 
implementation of the WHO-FIC into 
the future.
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
WHO Collaborating Centre for the FIC 
in Brazil –Annual Report 
Abstract The activities developed during the period of 2013- 2014 in the training area, include ICD-10 courses, as well as 
the quality of health statistics in the country, and the improvement in the ICF dissemination by lectures, researches and 
conferences at Seminars and Congress. The Brazilian CC has had many activities in order to implement the FIC in Brazil, 
and has a routine activity with Mortality Information Systems in Brazil. 
Activity 1 – Work on Revision of ICD 11 Conclusions 
Title 
11-17 October 2014 
Barcelona, Spain 
C202 
Brazilian CC for WHOFIC, University of Sao Paulo, Brazil 
Title 
. regular encounters (each 2-3 months) with 
Health Surveillance Secretary of Ministry of 
Health, together with some collaborators of 
State Health Secretaries of Rio de 
Janeiro(SouthEast Region), Mato Grosso do Sul 
(CentralWest Region), Alagoas and Bahia 
(NorthEast Region), and Municipalty Health 
Secretary of São Paulo (PRO-AIM – Programa 
de Aprimoramento das Informações em 
Mortalidade – Program for Improvement of 
Mortality Informations) - “Health Statistics 
Nucleus” 
. participation in Committees and Reference 
Groups – MRG, FDRG, ICD-URC and ICF-URC, 
EIC, and FDC 
. contributions to EIC - protocols for coding 
more complex situations for coders (as Maternal 
deaths, Perinatal Deaths, Procedures 
Complications, Cancer and External Causes), 
translating and reviewing the New “ICF Practical 
Manual” and the ICF e-Learning tool translation 
in progress. 
.m-TAG and GURM-TAG 
.meetings with Brazilian Ministry of Health 
regarding how to proceed with ICD-11 
translation and participation in the field trials. 
.Ibero-American Workshop on Interoperable 
Systems for Health - February 201- Ribeirao 
Preto Faculty of Medicine – University of Sao 
Paulo: presentation on what is expected for 
ICD-11. 
. “ Binomial Mother-Children” study - 
Morbidity and Mortality in pregnant women 
and newborns 
. contact with the coders of causes of death, 
through Health Surveillance Secretary / 
Ministry of Health regarding correct coding 
of fetal/ perinatal and neonatal deaths 
. evaluation of the registers of ill-defined 
causes or incomplete diagnoses in the death 
certificates 
.results presented in meetings, conferences 
and discussions with the Regional Councils of 
Medicine 
. researches/studies to evaluate the question 
whether external causes, specially accidents, 
could be consequences of natural causes. 
. “Instructions Manual” for national use - 
coding cancer and complications of 
procedures for mortality coders 
. Collaboration with Health Surveillance 
Secretary, and heads of State and 
Municipality Health Secretaries - to evaluate 
the quality of Health Information Systems 
for Mortality-SIM and Liveborns-SINASC 
(SIM – Sistema de Informação sobre 
Mortalidade and SINASC – Sistema de 
Informação sobre Nascidos Vivos) 
Activity 6 –Strengthening of national 
workgroups and WHO-FIC network 
activities 
Activity 4 - Improving quality of vital 
statistics using ICD 
Activity 2 – Implementation support for 
WHO-FIC in Brazil and other countries 
. program “IRIS” dictionary of medical terms 
in Portuguese and their respective ICD-10 
codes - Doctorat work of the post-graduation 
student Renata Martins (code and select the 
underlying cause of death in 96% death 
certificates) 
. workgroups to provide to the Ministry of 
Health subsides for improving the SCB 
(software SCB / Seletor da Causa Básica – 
Underlying Cause Selector) 
.evaluation of Consistency Tables for 
Mortality 
. workgroups for evaluation of coders and 
others. 
. PAHO / RELACSIS (Red Latinoamericana y 
Caribeña para el Fortalecimiento de los 
Sistemas de Información de Salud – Latin 
American and Caribean Network for 
Enhancing Health Information Systems). 
. review and validation of the SCB (Underlying 
Cause Selector) software and its decision tables 
used in Brazil 
. Work with Health Surveillance Secretary of 
Brazilian Ministry of Health, and collaborators of 
State Health Secretaries of Rio de Janeiro, Mato 
Grosso do Sul, Alagoas and Bahia, and 
Municipalty Health Secretary of São Paulo 
(PRO-AIM – Programa de Aprimoramento das 
Informações em Mortalidade – Program for 
Improvement of Mortality Informations) - 
“Health Statistics Nucleus” 
. project using ICF concepts and framework for 
identification of disabilities in an area of São 
Paulo city - Foundation for Support to Research 
of São Paulo State (FAPESP) 
. concluded a study on odonthological 
absenteeism using ICF 
. support for a study using ICF codes for 
projects on Deafness in aged people and 
children 
. acquisition of new version of software 
Lectora 
.looking for solution on how to include the 
translation files 
. EIC activities in person meetings and also by 
teleconference, by skype and by e-mail 
meetings during 2013. 
. courses in Training for Coders in the use of 
ICD-10 for Morbidity and Mortality 
. training of coders and multipliers, and a 
Forum for questions and discussion about 
coding with coders and other users of ICD-10 
- activity with the Brazilian Ministry of Health 
. training and use of ICF - workshops for the 
Education area; work meetings with Social 
Security Ministry about ICF definitions of 
impairment/disability; roundtables about 
possible uses of ICF in Social Security Work 
Disability evaluations; habitual lectures about 
ICF in Work Medicine Specialization Course; 
courses and workshops about ICF and ICF-CY 
. routine activity in the area of evaluation and 
validation of information in the Mortality 
Information Systems in Brazil (Sistema de 
Informação em Mortalidade-SIM) 
Activity 5 –Coordination of national WHO 
FIC activities 
Activity 3 – Work Groups and PAHO 
collaboration 
Activity 5 –Coordination of national WHO 
FIC activities
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
2013-2014 activity report of the CC 
Inserm-EHESP for the WHO-FIC in France 
Abstract This poster presents the highlights of the annual report of the Collaborating Center Inserm-EHESP for the WHO-FIC 
in French. Two main organizations, based in France, fulfill the missions of the French CC: the Inserm-CépiDc (French 
National Institute on Health and Medical Research, since 1967) working on the ICD and the EHESP-MSSH (French National 
School of Public Health, since 1989) working on the ICF. Collaborations with the ATIH (technical agency for the data 
management in hospitals) and the University of Saint-Etienne also allow contributions to the works done on morbidity, and 
ontology. The collaborating center works at several levels: French, French-speaking and international. 
Introduction 
11-17 October 2014 
Barcelona, Spain 
C203 
Agathe Lamarche-Vadel1, Marie Cuenot2, Jean-Marie Rodrigues3 
1CépiDc-Inserm (France), 2EHESP-MSSH (France), 
3 University of Saint-Etienne (France) 
The ICD-11 related activities of the 
Center are as follows: 
Promotion of the ICD-11 in 
French (in France and European 
French-speaking countries): 
Dr Nassim Douali coordinates the 
translation of ICD-11 on the WHO 
platform, starting with the current 
version of ICD-11. This work is based 
on existing translation of ICD-10 and 
uses modern French reference 
terminology. A call for contributors 
has been posted on the French 
Collaborating Center website 
(http://www.cepidc.inserm.fr/site4/in 
dex.php?p=oms) 
WHO-FIC related activities: 
-As Co-head of the MTAG, Gerard 
Pavillon continued participating to 
the ICD Revision Process until the 
Geneva meeting on the Review of the 
Common Linearization for Mortality 
and Morbidity (December 2013). 
Sandra Gomez participated In 
MbTAG. 
-Jean-Marie Rodrigues and Nassim 
Douali worked in the Joint Advisory 
Group WHO IHTSDO on 
Harmonisation with IHTSDO; and in 
the Joint Working Group IHTSDO on 
the Common Ontology ICD-11 
SNOMED CT. 
Jean-Marie Rodrigues worked on the 
Mapping ICD 9 CM – ICHI. 
ICF related activities 
The ICF-related activities of the Center 
are as follows: 
Promotion of the ICF in French (in 
France and European French-speaking 
countries): 
-Courses on the ICF and the conceptual 
models of disability in master programs 
in social policies, educational sciences, 
physical medicine and rehabilitation, 
public health, special education 
management, in the Master degree 
“Situations de handicap et participation 
sociale” (EHESP-Rennes 1 & 2) 
-Participation in a 2012-2014 European 
Union Leonardo program (Belgium, 
France, Romania, Switzerland) to 
develop an educational material on the 
social participation of persons with 
disabilities 
-Participation in the commission for the 
monitoring of the implementation of the 
UN Convention on the rights of people 
with disabilities (2006) in France 
- Expertise on ‘rare disabilities’ 
- Maintenance of the CC website 
(http://mssh.ehesp.fr/international/cent 
re-collaborateur-oms/ ) and the 
bibliographic watch. 
WHO-FIC related activities: 
Participation in the works and meetings 
of the EIC (e-learning tool, 
implementation database), URC and 
FDRG with a particular involvement in 
the ICF updates review process (co-moderation 
of the Initial Review Group). 
Publications 
Barral C., Winance M. (2013). 
Définitions et classifications, in 
INSERM. Handicaps rares. Contextes, 
enjeux et perspectives. Collection 
Expertise collective, Inserm, Paris. 
The 2013-2014 activities of the CC for 
the WHO-FIC in French are presented 
here: the main activities are related to 
the ICD and the ICF. Some 
collaborations allow works on the 
ICHI. 
I ICD-10 related activities 
I ICD-11 related activities 
ICHI related activities 
The ICD-10 related activities of the 
Center are as follows: 
Promotion of the ICD-10 in French 
(in France and French-speaking 
countries): 
-A new edition of ICD-10-FM Volume 1 
has been undertaken by the ATIH in 
order to provide an updated version 
accounting for the modifications made 
since the 2008 edition. 
-The Center collaborates with the 
Moroccan Ministry of Health and the 
NCHS CDC’s collaborating organization 
in the North Africa-Middle East region, 
(EMPHNET- Eastern Mediterranean 
Public Health Network) to design a 
standard information system in line 
with WHO standards in Morocco, in 
order to improve cause of death data in 
Morocco. In this context, the Center 
has organized a one month training to 
mortality coding in France to provide 
expertise to the two persons who will 
direct coding units in Morocco. 
-WHO-FIC related activities: 
Participation in the works and meetings 
of the MRG, Table Group and URC. This 
allowed the Center to give its position 
on the ICD updates presented during 
this periods and to provide expertise in 
fields where it is experimented 
Contact details: 
agathe.lamarche-vadel@inserm.fr 
marie.cuenot@ehesp.fr
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
Abstract The German Collaborating Centre (CC) is a designated WHO-FIC Collaborating Centre since 2003. Part of the 
German CC are the ICF Research Branch and Experts from the University of Freiburg, Germany. This poster reports on the 
activities that took place since the last WHO-FIC-Meeting in 2013 
Introduction 
Report from the German 
Collaborating Centre 
Title 
After its initial designation in 2003 the 
German Collaborating Centre was 
again re-designated in 2012. 
The German Collaborating Centre is 
located at DIMDI. 
For the ICF work the ICF Research 
branch is joining the work of DIMDI. 
Twice a year DIMDI and the ICF 
Research branch meet to discuss the 
on-going and planned work. 
For the work on the new procedure 
classification ICHI the University of 
Freiburg is joining the work of DIMDI. 
11-17 October 2014 
Barcelona, Spain 
C204 
DIMDI, ICF Research Branch and University of Freiburg, 
Germany 
Title 
Work at DIMDI 
ICD-11 Revision/fTAG: Since the 
2013 WHO-FIC meeting in Beijing, the 
list of health conditions (HCs) 
designated for populating FPs was 
adjusted, a suggestion for clustering 
the HCs was implemented and the FPs 
for 101 HCs were entered into ICD-11 
revision electronic system, iCAT. 
Although FPs have been visible in the 
ICD-11 betabrowser since March 2014, 
work on optimizing the visualization is 
ongoing. Consultation within fTAG on 
mirror coding has also been provided. 
Other activities include organizing and 
leading monthly teleconferences and 
participating in the monthly RSG 
teleconferences providing input where 
appropriate. A paper following up on a 
2012 publication on the FPs work will 
be submitted to a peer-review journal 
by the Barcelona meeting. 
ICF eLearning Tool: The status of the 
ICF eLearning tool revision was 
presented at the Beijing Meeting and 
at the 2014 EIC mid-year meeting. 
Activities included coordination with 
WHO, EIC and the Collaborating 
Centres willing to translate the tool in 
their respective languages, finalizing 
the content revisions and coordinating 
the search for new software. In June 
2014 WHO approved the revised 
version of the tool and the acquisition 
of Articulate Storyline, the new 
software that will be used to 
implement the revised version of the 
ICF eLearning tool. The revised tool is 
expected to be available on the WHO 
website by the beginning of 2015. 
ICF Training: Since Beijing, ICF 
workshops have been held in China, 
India, Finland, Palestine, Poland and 
Switzerland. Online tutorials on the ICF 
linking methodology as well as on 
conducting ICF-based case studies 
have been conducted. 
ICF Updates within FDRG: Input on 
update proposals were given including 
more intensive involvement in the 
update process within the Initial 
Review Group. 
ICF Practical Manual within FDRG: 
Feedback on the exposure draft of the 
Manual was provided in May 2014. A 
Steering Group member has been 
involved in finalizing changes based on 
the discussions during the 2014 mid-year 
meeting in London. 
ICF Core Set work: ICF Core Sets for 
cerebral palsy are now available. 
Other activities: See posters on the 
1) system-wide implementation of the 
ICF in clinical & rehabilitation practice, 
2) enhanced informed decision-making 
in the health system using the ICF as a 
reporting standard and 3) develop-ment 
of the Model Disability Survey. 
Conclusions 
Work of the ICF research branch 
ICD-10: In 2014 DIMDI worked on the 
adaptation and translation of the 2015 
updates from WHO and their 
implementation into ICD-10-GM 2015 
together with requirements from the 
national annual submission process. 
Release of the pre-version of ICD-10- 
GM 2015 was in end of July and of the 
official version at the end of 
September, for implementation into 
health care systems until January 1st 
2015. As usual, results from the 
discussions with national experts 
where fed back to the URC as well as 
into the Revision process. For WHO 
DIMDI implements the updates to ICD- 
10 into the ClaML database to enable 
WHO to generate a version 2014 in 
English language. 
ICD-O-3: Translation and 
implementation of the 2012 updates of 
ICD-O-3 has been worked out in 
cooperation with (legal) authorities of 
the national cancer registries 
(epidemiological and clinical) and of 
Robert-Koch-Institute as the national 
German Center for Cancer Registry 
Data. The German version of ICD-O-3 
including the updates was published in 
march 2014 in print format as well as 
in a browser version. 
ICF: DIMDI continued in 2014 with 
national consultations on the planned 
updates for ICF. The ICF-working 
group convened in DIMDI in March to 
discuss the updates for ICF. Results of 
this meeting were presented in the 
Update workshop of FDRG in London 
right after. 
Mortality Coding: DIMDI trained all 
german mortality coders on the use of 
ICD-10 with a focus in 2014 on 
electronic coding of cause of death. 
Since the last Network meeting the 
work of the German Collaborating 
Centre continued. The existing 
Collaboration of DIMDI, the ICF 
Research Branch and the University of 
Freiburg proved well suited for the 
successful fulfilment of the Work plan 
as agreed with WHO. 
Committee work: The head of the 
German Centre stepped down as 
Council Co-chair at the meeting in 
Beijing. Ulrich Vogel serves as URC Co- 
Chair since the Brasilia meeting. In this 
capacity he manages the update 
process of ICD-10 for the Committee. 
Active participation in person or via 
phone conference as well was 
conducted for Mortality Reference 
Group, Family Development 
Committee, Update and Revision 
Committee for ICF purposes and other 
WHO-FIC groups. Additionally DIMDI 
assisted in the ICD Revision, especially 
in the Revision Steering Group, the 
Morbidity TAG and the Neoplasms TAG. 
As the Beta Release became available, 
DIMDI announced this to the general 
public and solicited participation from 
the German users. 
Work at the University of 
Freiburg 
ICHI: The University of Freiburg is 
supporting the developmental work on 
ICHI by contributing especially on the 
structure and content of the 
classification axes, and the 
maintenance of an annually published 
database. Focus in 2014 lay on the 
rearrangement of the values of the 
ICHI axes for the Alpha-2-Version. 
ICD-10 Alphabetic Index: The 
annual work on the quality of the index 
terms for the German Modification 
(ICD-10-GM) results in proposals for 
improvements eventually impacting 
the international version.
MEETING OF THE WHO COLLABORATING CENTRES FOR THE FAMILY OF INTERNATIONAL CLASSIFICATIONS 
11 – 17October, 2014 
Barcelona, Spain 
Human Resource Development for effective implementation of FIC (ICD-10 & 
ICF) In India by Central Bureau of Health Intelligence 
M. Raikwar*, Umed Singh*, R. K. Sharma* and Jagdish Prasad** 
*Central Bureau of Health Intelligence (CBHI), WHO CC on Family of International 
Classifications (ICD -10 & ICF) in India, Directorate General of Health Services; **DGHS, 
Ministry of Health & Family Welfare, (Govt. of India), New Delhi. 
C205 
– Human Resource Development for effective implementation of FIC (ICD-10 & ICF) by 
Collaborating Centre on WHO-FIC in India during last one year period from September, 2013 to 
August, 2014 have been described is this poster. 
Introduction 
No. of participants attended workshops 
800 
700 
600 
500 
400 
300 
200 
100 
on ICD-10 & ICF 
TOTAL NUMBER OF TRAINING CONDUCTED AND 
MAN- POWER TRAINED 
Result 
From September 2013 till 
August, 2014, CBHI has conducted 
18 Batches of Trainings on ICD – 
14 & ICF and in these trainings 
225 persons were trained. 
Conducted 4 trainings for Master 
trainers on ICD – 10 & ICF and 46 
more trainers were added in 
creating a pool of master trainers 
In India 
Conducted 29 batches of 
sensitization Workshops during the 
year to promote the use of ICD – 
10 in Tertiary Care Hospitals & 
Medical Colleges (both in 
Government & private sector) and 
in these Workshops, 2617 persons 
sensitized about ICD - 10. 
No. of Participants attended ICD-10 
Training Programme 
Conclusion 
Central Bureau of Health 
Intelligence (CBHI), New Delhi 
under Dte. General of Health 
Services in the Ministry of Health & 
Family Welfare (Govt. of India) has 
been functioning as WHO CC on 
FIC in India from September, 2008 
onwards. It has been actively 
involved in human resource 
development for effective 
Implementation of WHO-FIC (ICD - 
10 and ICF) in India since then. 
This Descriptive Study of the 
human resource development for 
FIC, Performed by CBHI, was done 
using the documents available at 
the CBHI headquarters and Field 
Survey Units as well as Training 
Centres. 
Training Reports, Office Files & 
Reports of the various trainings/ 
workshops conducted in 2013-14 
by CBHI were studied 
retrospectively, using Checklists 
designed for the purpose. 
70 
60 
50 
40 
30 
20 
10 
Through its sustained efforts, CBHI 
has been able to create a pool of 
master trainers, medical officers 
and paramedics trained in FIC to 
initiate and effectively implement 
the activities towards use of FIC by 
developing human resources in 
India. CBHI has also been providing 
collaboration and support to its 
neighbouring countries of South 
East Asia and WHO – SEARO. CBHI 
is committed towards its mandate 
for the use of WHO FIC. It hopes to 
continue these activities in the 
period of re-designation with 
renewed vigour. 
Abstract 
Methods & Material 
Peer Review of WHO Training 
Manuals on “Hospital 
Information System” done by 
experts in India conducted at 
FSU, Bangalore in march, 2014. 
Head of the WHO 
Collaborating Centre on FIC in 
India along with one expert on 
ICF attended WHO-FIC Network 
Annual Meeting at Brasilia, 
Brazil from 13th – 19th October, 
2012. 
693 
455 
337 
290 
406 436 
0 
No. of Participants 
Training Centres 
34 
29 32 
41 
33 
42 
60 
0 
No. of Participants 
Training Centres 
Training Center ICD-10 Workshops on ICD – 10 & 
Training ICF 
Total No. of 
Trainings Participant Workshops Participants 
Bengaluru 2 34 6 693 
Bhopal 2 29 5 455 
Bhubneshwer 3 32 4 337 
Jaipur 2 41 4 290 
Lucknow 2 33 4 406 
Patna 3 42 6 436 
RHSTC, Mohali 4 60 0 0 
18 271 29 2617
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
Updates on the performance monitoring plan 
of the Italian WHO-FIC Collaborating Centre: a 
Abstract Moving from the 2011-2015 terms of reference (TORs) of the Italian WHO-FIC CC, a performance monitoring plan was defined 
to yearly assess the CC’s performance. The aim of this work is to present the third-year results of the performance monitoring plan of the 
Italian WHO-FIC Collaborating Centre (CC). 
Introduction 
new reporting way on annual activities 
The aim of this work is to present the third-year 
results of the performance monitoring 
plan of the Italian WHO-FIC Collaborating 
Centre (CC) using the content of the CC 
annual report [1] and the Italian posters 
submitted at Barcelona Annual meeting. 
11-17 October 2014 
Barcelona, Spain 
C206 
Frattura L. on behalf ot the WHO-FIC Italian collaborating centre network 
Central Health Directorate, Classification Area, Friuli Venezia Giulia Region, IT WHO-FIC CC 
Methods & Materials 
Moving from the 2011-2015 terms of 
reference (TORs) of the Italian WHO-FIC CC, 
a performance monitoring plan was defined 
to yearly assess the CC’s performance. Five 
main criteria were used: (i) adherence to 
the relevant lines of work of the WHO-FIC 
Strategic Work Plan (SWP); (ii) outcomes of 
the activities; (iii) new partnerships; (iv) 
communication power; and (v) resource 
consumption. 
of and active participation in mICF; 
involvement in SNOMED-CT and ICF 
common ontology efforts; ISO9999 mapping 
to ICF; translation into Italian of the 
WHODAS 2.0 Manual; translation into Italian 
of the ICD-10 Training tool; translation into 
Italian the ICD-10 1996-2013 cumulative 
updates; transcoding administrative 
discharge data from ICD9-CM to ICD-10 
using a new software, developed by the 
Italian WHO-FIC CC. Updates at national 
level: the CC is formally engaged, as leader 
of the ICD-10-related line of work, in the 
national project of revision of the Italian 
case-mix system (IT-DRG project); ICD-10 
cumulative updates were translated into 
Italian and the relevant ClaML file was 
maintained both in English and Italian 
through the Italian Portal of Classifications, 
which was restyled. Updates at regional 
level: a third VilmaFABER field trial was 
carried out in the Friuli Venezia Giulia 
Region and a fourth field test was started in 
ICD line ICF line IT line Implementation line Disability policies line 
the Liguria Region. VilmaFABER has been 
published on the web (Figure 2) [2]. 
The communication power was evaluated 
considering presentations, seminar and 
meeting organization, and active users of 
the Italian Portal of Classifications (Figure 
3). 
Results Acknowledgements 
In the third year (21 July 2013-21 July 
2014), the Italian WHO-FIC CC was active 
on five lines of work at international, 
national and regional level: (i) revision of 
the International Classification of Diseases; 
(ii) IT and ontological development for WHO 
FIC; (iii) coordination and management of 
the ICD-10 and ICF update process; (iv) 
national work on WHO-FIC; and (v) 
awareness building and implementation 
support of WHO-FIC in WHO regions. Some 
results are presented in an interactive map 
(QR accessible) that allows browsing 
through all the posters presented by the CC 
at the 2014 WHO-FIC annual meeting 
(Figure 1). 
New projects inside the WHO-FIC network: 
launch of the WFABER project; coordination 
Conclusions 
References 
DIGITAL, MOBILE, NOW! 
Web tools and services 
to translate, update, 
browse, and publish 
ICD-10 
How to deal with 
meaning ambiguity in 
international 
classifications on 
disability in five 
different languages 
Italian WHO-FIC CC 
Annual Report 
Shift from ICD-9CM to 
ICD-10 in morbidity 
coding 
Workplace description 
using and expanding 
the ICF Environmental 
Factors component 
WFABER multicenter 
project on 
determinants of 
outcomes 
“Web Activity and 
Participation 
Performance 
Inventory” (WAPP.In). 
How to combine 
standard 
terminologies and ICF 
in epidemiological 
studies 
ISO9999 mapping to 
ICF 
ITC Report 
Architecture for ICD 
11 and SNOMED CT 
Harmonization 
Developing a mobile 
application for ICF 
ICDfit: a web-based 
system for ICD11 field 
trials 
URC Report 
WHODAS 2.0 in 
Philippines 
The activities of the Italian Collaborating 
Centre are linked to the relevant lines of 
work of the WHO-FIC SWP according to the 
CC’s TORs. All activities of the Centre were 
made possible thanks to regional and 
national funding. 
Figure 3 – The new Italian Portal of Classifications 
as a strategic communication tool of the Italian CC 
Figure 1 – The Barcelona Subway Interactive Map of the Italian WHO-FIC CC 2013-2014 activities (each station is a downloadable WHO-FIC 2014 Meeting poster) 
All activities carried out by the Centre were possible thanks 
to the deep understanding and concrete funding by Friuli 
Venezia Giulia Regional Administration, national and other 
regional institutions and authorities. 
1. Agreement between Italian Ministry of Health and Friuli 
Venezia Giulia Region, 2010-2012; 2013-2015 
2. “Progetto It.DRG”, founded by National Health Service 
2004 to realize strategical objectives under the National 
Haalth Plan, accortding to art. 1, comma 34, Law n. 
662/1996 (CIPE Decision 23 March 2012 for assigning to 
the Emilia Romagna region the amount allocated for the 
realization of the "It.Drg Project"). 
1. Italian WHO-FIC annual report, Udine 3 Sept. 2014 
2. www.vilmafaber.eu 
FDRG Report 
Grouping Body 
Functions (BF) and 
Activity and 
Participation (AP) 
categories in children 
functioning 
assessment 
Scan this to get a digital 
INTERACTIVE version 
Figure 2 – The VilmaFABER logo
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
Abstract The Korea Health and Welfare Information Service(KHWIS) has hosted and operated the WHO-FIC Korean Collaborating Centre 
since December 2012 and act as a mediator to improve interoperability of domestic and international healthcare information. To 
achieve this, KCC is :  developing and dissemination of national healthcare information standardization and WHO Family of 
International Classification, Terminologies, and Standards  operating network across the country  cooperating with WHO and 
other WHO-FIC CC. This poster described the activities of KCC between October 2013 and September 2014. 
Introduction 
Korean Collaborating 
Centre Annual Report 2014 
Kwangwoo Park, Sangsung Hur, Seonock Roh, Taehoon Kim 
Korea Health and Welfare Information Service(KHWIS), Seoul, Korea 
• The Korean government has been 
standardizing terminology, business and 
technology since 2004 for healthcare service 
improvement. Work involving terminology 
standardization in Korea was first presented 
at the 2006 WHO-FIC Annual Meeting in 
Tunis. The Korean government has been 
pursuing collaborative work with WHO-FIC 
since then. 
• The Korea Health and Welfare Information 
Service(KHWIS) has hosted and operated 
the Korean WHO-FIC Collaborating Center 
since December 2012. KHWIS is a health 
welfare organization working to improve 
healthcare and welfare informatization, via 
standardization, management of information 
systems, policy research, and more. 
• In order to carry out effective work by 
KCC, KHWIS has established collaborative 
relationships with government offices, such 
as the Ministry of Health and Welfare and 
Statistics Korea, as well as with medical 
and academic communities. It is now 
working to improve interoperability of domestic 
and international health information via the 
development and dissemination of WHO-FIC 
and the Korean health terminology Standard 
among others. 
11-17 October 2014 
Barcelona, Spain 
C207 
Methods & Materials 
Acknowledgements or Notes 
Results 
 Cross-national collaboration system 
KCC has organized, and is managing, the 
Council for ‘Standardization of Healthcare 
Information’, a cross-national council for 
discussion among standardization specialists 
in the country. The council is comprised of 89 
specialists in 10 different areas of healthcare, 
such as diagnosis and practice. 
Conclusions 
 Online standard platform 
Without temporal or spatial constraints, it 
facilitates standardization by supplying 
information regarding revision proposals and 
votes, as well as domestic and international 
standardization data. 
 Collaboration with WHO and ISO 
Besides collaboration with WHO, the KCC 
is actively working with the ISO. Alongside 
establishing international terminology 
standards via participating in the 
development of WHO’s ICD, ICF, ICHI and 
ICTM the KCC is collaborating with 
ISO/TC215(Technical Committee on health 
informatics within ISO) to work on 
international standardization in document 
formatting and technical fields. 
 ICD 
Supported by Korea’s advanced IT workforce, 
the ICD-11 multilingual support platform 
was developed to facilitate the translation 
of ICD terms in Asian countries. Using the 
platform, 3,701 ICD-11 cases have been 
adapted to Korean. 
 ICF 
Based on the latest version (including updates 
in 2014) of ICF, about 1,500 codes were 
adapted into Korean, and field tests were 
conducted for the clinical onsite application 
of ICF. Opinions of 151 clinician from 19 
institutions were collected, mainly from 
university and rehabilitation hospitals. 
Clinical application cases connecting EMR 
information with ICF between orthopedics, 
neurosurgery, and rehabilitation departments 
were developed. 
 ICTM 
Following WHO’s plans to include the field 
of traditional medicine into WHO-FIC, the KCC 
is actively participating in the development of 
ICTM with China and Japan. In particular, 
the KCC developed guidelines for coding 
the beta version of ICTM and connection 
frequency analysis charts for ICTM-WHOIST, 
and produced sample videos for the field 
testing and submitted it to WHO. 
 ICHI 
Currently, a redefinition of health intervention 
classification is taking place in Korea, and, 
due to the interchangeability between this 
classification and ICHI, the three axes of 
ICHI(Target, Means, Action) were applied. 
 Korean terminology standardization 
With the development of IT, the healthcare 
service industry in Korea is increasingly 
interested in offering an information 
service that combines health data and IT. 
Healthcare terminology standard is the 
core element in the provision of such 
information services, KCC announced a 
national standard on September 2014. 
Approximately 180,000 terms from nine 
categories as well as 340 types of 
anatomy illustrations, can be used digitally 
in EMR and will be used as the basis for 
such technologies as EMR, EHR, PHR. 
While maximizing synergy by gathering all 
Korean healthcare information standardization 
activities in a single place, the KCC is also 
working as a mediator that can increase 
the interoperability of Korean standards 
with international ones. It will certainly act 
as a catalyst for the provision of high-quality 
healthcare services, such as EHR 
and PHR, for Korean citizens, and actively 
continue its work. 
We would like to thank the 
Ministry of Health and 
Welfare, Statistics Korea, 
the Health Insurance Review 
& Assessment Service, the 
Korean Medical Association, 
and related institutions 
and specialists. 
• Mental and behavioral disorders 1,483 
• Diseases of ear and mastoid process 356 
• Diseases of the musculoskeletal system 
and connective tissue 1,862
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 
Annual Report from the Mexican Collaborating 
The Mexican Collaborating Center of the WHO-FIC (CEMECE) was designated in January 2008. As every year, 
the CEMECE has continued promoting the use of International Classifications in Health in Mexico and Latin 
America, in coordination with PAHO / WHO. These activities are so important to personal who works in the 
offices of statistics in all Region. This poster briefly describes the main work and the results. 
Introduction 
Centre (CEMECE), Jan 2013-Jan 2014 
Title 
Abstract 
CEMECE has continued promoting the 
use of International Classifications in 
Health in Latin America, in 
coordination with PAHO / WHO through 
various projects, both training and 
design and implementation of training 
materials on the Classifications and 
filling death certificates by physicians. 
The most relevant training projects 
during 2013 were: 
11-17 October 2014 
Barcelona, Spain 
C208 
Authors: Torres L., Jimenez A., Navarro A., Yañez M. 
Mexican WHO FIC Collaborative Center, Mexico (CEMECE) 
Title 
Methods & Materials 
Online course on ICD-10: During 2013 
CEMECE concluded the ICD-10 training 
tool (2008 Edition), sponsored by the 
Ministry of Health of Mexico. Currently, 
the course is available on the Virtual 
Campus of Public Health of the Pan 
American Health Organization 
(PAHO/WHO). The course is open to all 
interested people in the follow web 
site: 
www.cursospaises.campusvirtualsp.org 
Also during 2013 the CEMECE 
translated updates to ICD-10 until 
2012 and sent the translation to PAHO/ 
WHO for distribution to Latin America. 
The CEMECE sent comments to the 
Education and Implementation 
Committee (EIC) about the contents of 
the information sheets designed by 
this committee on important aspects 
about the family of classifications. 
During 2013, CEMECE sent information 
to WHO on the state that holds the 
implementation of each of the 
International Health Classifications 
within the country. 
For eleventh year CEMECE coordinated 
the intentional search and 
reclassification of Maternal Deaths in 
Mexico (BIRMM) in order to correct the 
misclassification and improve the 
quality of Maternal Deaths information. 
The Center attended the WHO FIC 
Network Annual Meeting in October in 
Beijing, China. The Center requested 
officially to be considered as the host 
country to the WHO FIC Network 
Annual Meeting in 2017. 
On the other hand, two CEMECE 
members attended the MRG and EIC 
midyear meetings from 17th to 25th 
April, hosted by PAHO/WHO 
(headquarters Washington D.C). 
Training course for trainers in the use 
of the ICF: With the technical support 
of PAHO / WHO in Mexico and 
PAHO/WHO Headquarters (Washington 
D.C), in May 20th to 31st CEMECE 
developed the second international 
training course of 80 hours, for ICF 
instructors. The course was held in 
Mexico City and was attended by 
physicians and another health 
professional from: Chile (National 
Centre of Reference), Colombia, Cuba, 
Ecuador (National Centre of 
Reference), El Salvador and Mexico. 
The ICF training tool (developed by the 
WHO FIC Network) was tested in the 
first phase of the course (virtual 
phase). In addition to the concepts, 
structure and how to use the ICF, a 
specific module about ICF instruments 
(WHO-DAS 2.0, ICF-Core Sets) and 
ICF implementation projects were 
included in the core curriculum. This 
strategy yielded observations to 
correct some editing problems 
identified by students and instructors 
in the ICF training tool, which were 
sent to PAHO / WHO. 
Training coders in ICD-10 and medical 
procedures of the ICD-9CM in Mexico: 
20 courses on ICD-10 coding and 
medical procedures using ICD- 9-CM 
were given with 832 coders, medical 
and statistical staff in several states of 
Mexico. 
With the support of PAHO/WHO, 
CEMECE attended the meeting of Latin 
American and Caribbean Network for 
Strengthening Health Information 
Systems (RELACSIS) from 5th to 
February 7th, in Buenos Aires, 
Argentina, where the annual plan of 
the Network was agreed, including the 
following projects: 
1) Development of a Regional ICD-10 
e–learning training tool, based on two 
online courses: CEMECE’s ICD-10 
course and the training module 
developed by the National Center for 
ICD from Argentina (CACE); 2) Online 
course on how fill out the death 
certificate for physicians, developed by 
Uruguay, Chile and México; 3) 
Dissemination and implementation of 
automated coding of causes of death 
adapted by the National Institute of 
Statistics and Geography (INEGI) from 
Mexico. Focused on eight Latin 
American countries. 
www.relacsis.org 
Conclusions 
As every year, the CEMECE keeps 
working in topics related with WHO-FIC. 
The most important activities 
have been: training and research and 
nowadays the important participation 
with different countries. More 
information: 
www.cemece.salud.gob.mx
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mICF poster 6 (joanne) micf cost and impact evaluation
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Fdrg bcn-006 - barcelona poster booklet

  • 1. Poster Booklet WHO ID Topic C101-C109 Committees & Reference Groups C201-C219 WHO Collaborating Centres C301-C321 ICD-11 C401-C438 ICD-10 C501-C541 ICF C601-C610 ICHI C701-C722 Other
  • 2.
  • 3. C101-Committees & Reference Groups 109 WHO ID Title Authors C101 Report from the WHO-FIC Network Advisory Council Berg; Hargreaves C102 Family Development Committee Annual Report 2014 Hargreaves; Ten Napel; Macpherson C103 Informatics and Terminology Committee (ITC) Annual Report Carvell; Della Mea C104 EIC annual report Buchalla; Walker C105 URC Annual Report Vogel; Gongolo; Moskal C106 Functioning and Disability Reference Group Annual Report 2013-2014 Sykes; Martinuzzi C107 Mortality Reference Group: Annual Report, 2013-2014 Hoyert; Wood; Johansson C108 Work plan update - Functioning Topic Advisory Group (fTAG) Selb; Stucki; Kennedy C109 Quality & Safety TAG Southern; Quan; Ghali
  • 4. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 Abstract During the 2007 annual meeting of the Network, a WHO-FIC Council was established to accommodate the need for broader participation in the core decision-making processes of the WHO-FIC Network and, in 2013, role of the Advisory Council was confirmed in the Network’s ‘Conduct of the WHO Family of International Classifications Network’ paper. The functions of the Council are 1) to develop a Strategic Work Plan for the Network, which is presented at the annual WHO-FIC Network meeting, 2) to monitor and follow up progress of the Strategic Work Plan, 3) to establish and revise, as needed, procedures for the conduct of annual meetings of the Network, 4) to participate in planning the annual meetings, and 5) to review action items from each meeting and address new action items that arise. Introduction Report from the Council During 2008, the Council agreed to establish a Small Executive Group (SEG) to prepare recommendations for discussion by the Council and identify other issues for Council discussion and decision. The SEG includes the co-chairs of the Council, two additional committee or reference group co-chairs (Andrea Martinuzzi and Patricia Wood), a network member nominated by the WHO (Lyn Hanmer) and WHO Headquarters staff. 11-17 October 2014 Barcelona, Spain C101 Authors: Lars Berg and Jenny Hargreaves Co-Chairs Work during the last year ICD revision Both Council Co-Chairs are members of the Revision Steering Group (RSG) of the ICD Revision towards ICD-11. Monthly Telephone Conferences of the RSG were attended by both co-chairs. One Co-chair (Lars Berg) joined phone Conferences and face-to-face meetings of the RSG-SEG. The SEG provided advice to the WHO about engagement of the Network in the process and on WHO plans to evaluate country transition requirements. Acknowledgements The Council convened twice during the annual WHO FIC Network meeting in Beijing in October 2013. Stefanie Weber had served two consecutive terms as council co-chair and was not available for re-election. The Council elected Jenny Hargreaves as a new Council co-chair and Lars Berg was re-elected, both for a two-year period. During the working period October 2013 - September 2014 the Council conducted three telephone conferences, in February, April and September 2014. The Small Executive Group (SEG) meet in monthly teleconferences, and also face-to-face at WHO in Geneva in April 2014. The principal focuses of these meetings were to follow up on action items from the Beijing meeting, to review the status of the Strategic Work Plan and to explore ways to enhance participation in the Network. The SEG and Council focus has been: A. Paper on Conduct of the WHO-FIC Network: The paper is a compilation of existing and approved papers about the Network. In an interactive process the paper was compiled, aligned and updated in 2013 and presented in the Annual Network meeting in Beijing. The compiled paper was approved by the Council in Beijing October 18 2013, subject to some minor corrections and a final review by the WHO Headquarters. The final paper Development of ICHI Acknowledgements to Stefanie Weber for her excellent 4-year period as Council Chair, ending in Beijing 2013. (Conduct_of_WHO-FIC_Network-version1. pdf) was posted on the WHO web site 17 February 2014. The document is open for changes at the annual meeting every year. Proposals for changes to the governance document should be submitted before the September teleconference of the Council. Track changes will be circulated in the future to the council members for transparency, whereas online only a final version is posted. B. Alignment of the Strategic Work Plan (SWP): During 2013 teleconferences with the six committees/reference group co-chairs were undertaken. The Strategic Work Plan (SWP) for the WHO-FIC Network was reviewed in order to align it to a complete and comprehensive Work Plan that reflects the full work of the Network. The work plans were compiled into one single sheet in Excel. As a continuation of this work the Center Heads, the WHO Regional Advisors and the WHO-FIC Headquarter staff had a pre-meeting in Beijing 11 October before the Annual Meeting 2013 to better align the WHO Collaborating Centre’s resources with the WHO-FIC Network’s SWP. Further alignment and updates to the SWP for committees and reference groups were undertaken at the mid-year meetings in 2014. Important aspects are the items included in the workplan, how they link to the different committees and groups, and what resources are available. It was clarified that SWPs considered at mid-year meetings and presented at each annual Network meeting should be for the workplan for the year following the annual meeting. C. Election rules Due to the change of committee structure 2012 there are WHO-FIC committees having both co-chairs coming to the end of their second terms of office in 2014. Current WHO-FIC rules do not allow co-chairs to serve more than two two-year terms. There may be also other reasons that would result in change of both co-chairs of one committee or reference group. In such cases, the Council decided that pragmatic mechanisms will ensure continuity rather than rule changes: - Former co-chairs are available for consultation - Former co-chairs acting as a secretariat - WHO focal point providing continuity ICF ontology The Council and SEG, with the FDRG, FDC and ITC, have liaised with WHO about the need to proceed with systematic ontological work on ICF with the goal of improving integration of ICF with other health information systems and harmonization with the other WHO classifications. Liaison has focussed on the WHO's work towards establishing a project to meet these needs, and Network support of the project. The Council and SEG, with the FDC, provided advice to the WHO for its work towards development of an International Classification of Health Interventions, as the work moves from a pilot alpha development to a formal WHO project. Advice has included mechanisms for continuing use of the technical expertise of all the teams from the WHO-FIC network thus far involved.
  • 5. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 Family Development Committee Jenny Hargreaves (Co-chair, Australian Collaborating Centre); Huib Ten Napel (Co-chair, Netherlands Collaborating Centre); Brooke Macpherson (Secretary, Australian Collaborating Centre) Introduction The Family Development Committee (FDC) was established in 1999 to ensure the WHO-FIC has a logical structure with health classifications identified for each health parameter and setting within the health system. The Committee met twice during the year, in October at the Annual Meeting in Beijing, China, and then again in June for the mid-year meeting in Chicago, USA. The mid-year meeting was held in conjunction with meetings to progress work on the International Classification of Health Interventions (ICHI) convened by the WHO and hosted by the American Medical Association. The photo on this poster is a view of the central area of Chicago near to the meeting venue. The FDC co-chairs would like to thank all the FDC members for their valuable contributions to the FDC work-plan activities during the year. Progress against each of the Strategic work plan activities is outlined here. Annual Report 2014 11-17 October 2014 Barcelona, Spain C102 Abstract The Family Development Committee aims to develop the World Health Organization’s Family of International Classifications (WHO-FIC) as an integrated and comprehensive suite of classifications. It also aims to ensure that the WHO-FIC has a logical structure so that the classifications needed for each component and setting within the health system can be identified. This poster presents a summary of the activities of the FDC from October 2013 – September 2014. Title Strategic Work Plan review Task 3: Applications of the The Committee had opportunities to WHO-FIC review the Strategic Work Plan at both FDC meetings this year. Changes to wording and focus areas were agreed to by members based on discussion and feedback at these meetings. The agreed future work plan is to be tabled with Council at the Annual meeting in Barcelona. As part of the Committee’s work on applications of the WHO-FIC, a stocktake of the use of the WHO-FIC being used in casemix systems around the world was undertaken. Responses from different nations were collated and results presented to the Committee at the mid-year meeting in Chicago, USA. Responses showed varying practices amongst countries, and identified gaps in classification usage, especially around measuring functioning. The FDC used these responses to influence the development of ‘draft principles for an international casemix classification system’. This draft document contains potential considerations of a framework for an international grouper, that could be used for international comparisons and as a basis of more detailed, national groupers, used for funding and other management processes. Chicago, USA Task 4: WHO-FIC support for Universal Health Coverage (UHC) After consideration of how the WHO-FIC could support the WHO’s UHC initiative, the FDC investigated the extent to which the classifications could support measurement of certain indicators for the UHC initiative. At the mid-year meeting in Chicago, the ability to capture the WHO-World Bank’s 12 illustrative UHC prevention and treatment indicators using the WHO-FIC reference classifications was assessed. Results highlighted that there were gaps in the classifications that made coding difficult, and incomplete aspects of the definitions of the indicators also affected the ability to code accurately. The results of the analysis will be fed back to the WHO and relevant Network committees. Task 2: Integration of the Family For this task the FDC progressed the re-drafting of the 2007 WHO Family paper, which describes the Family, principles of classifications and the processes of adding, updating and maintaining classifications in the Family. The Annual meeting saw the agreement of FDC members on a new document structure for the paper. The new structure was used to present a new draft to members at the mid-year meeting in Chicago. Discussion of the new draft focussed on the need to reflect a shift to a more unified approach – how the classifications link together and are harmonised through comparisons of content models and ontologies, but with the paper still retaining the essence of what “the family” is. Further work was also done on the nature and place of ‘related’ and ‘derived’ classifications in the family. The revised draft family paper will be presented to Council at the Annual meeting in Barcelona. Task 5: Assess the need for additional members of the Family Task 1: International Classification of Health Interventions (ICHI) As the Focal Point for the WHO-FIC Network for the ongoing ICHI development work, the FDC held coordination meetings for ICHI. These meetings ran in conjunction with the FDC’s Annual meeting in Beijing, China and, as noted above, with the mid-year meeting in Chicago, USA. The meetings provided an opportunity for the ICHI development teams to report details of work undertaken, for FDC to provide advice, and for joint work between the project and FDC. The FDC gave consideration to the inclusion of the Dutch Institute of Logopedics and Phoniatrics’ ICF-logopedie as a national or specialty linearisation of ICF. Members also suggested that the additional content could be added to the URC update process for ICF. Task 6: Alignment of members of the Family FDC considered a report on progress towards harmonisation of the ICF environmental factors with ISO 9999. The work was reported to have been completed by the relevant ISO group and the FDC will now seek a copy of it for review.
  • 6. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 Abstract This poster presents annual report of the Informatics and Terminology Committee (ITC), highligting activities of since the Beijing meeting in October 2013. Introduction Title The Informatics and Terminology Committee (ITC) was established in 2010, combining the Electronic Tools Committee and the Terminology Reference Group into one WHO-FIC committee. . INFORMATICS AND TERMINOLOY COMMITTEE - ANNUAL REPORT 11-17 October 2014 Barcelona, Spain Karen Carvell1, Vincenzo Della Mea2 1Canadian Institute for Health Information and North-American Collaborating Center; 2University of Udine, Italy and Italian Collaborating Center Title Classifications and Revision Platforms A multi-language framework is required to enable the translation of content of WHO classifications. WHO HQ has developed a tool for this and the seven WHO languages have been loaded into memory. It features a translation memory to track movement in the classification and enables workflow for approval and comment on another person’s translation. In parallel to this effort, the Korean Collaborating Centre continues to work on the translation of ICD-11 to Korean and Chinese. Another focus of the ITC is to enhance formal knowledge representation of WHO classifications and their linkages to related terminologies. This is a multilateral item requiring coordination with other committees, reference groups, and external participants. There were several activities in the area over the past year: WHO-IHTSDO harmonization process – A number of ITC members are also members of the WHO-IHTSDO Joint Advisory Group (JAG). During the last year, JAG refined the architecture for harmonization and carried out the mapping of equivalences between ICD11 and SNOMED-CT in the Circulatory System chapter, and then started with a number of other chapters, as a preliminary work towards the Common Ontology. ICF Ontology – ITC Co Chairs participated in the FDRG mid-year meeting to begin discussions and work on the development of an ontology for ICF. Acknowledgements Multilingual Support WHO headquarters and collaborating centres work to enable standardized maintenance, update and revision of WHO classifications. Priorities in this area include maintaining and enhancing browsers for ICD, ICF and ICHI. Work has continued on the classification update platforms and on the ICD Revision Platform, which now provides a section for proposals. Formal Knowledge Representation ITC wishes to acknowledge the work of the WHO HQ and collaborating centres for their contributions over the past year. Standards Administration Technical standards are developed to enable the electronic exchange of WHO classifications. In 2013 the WHO developed a Uniform Resource Identifies (URI) scheme to identify ICD-11 entitles and a web interface. The URI API has been further consolidated and now also includes proposals. Correspondingly, the social apps used as a test case for the API have been updated to also publish proposals on Facebook and Twitter. The German Collaborating Centre has finalized the ICD-O-3 stylesheets and published the German version online. It is also possible to generate pdf, ClaML and Metadata. It is fully implemented in CTK and can be used by other Collaborating Centres, if needed, as well as by WHO. Other Activities 1. The web site for poster submission has been maintained the 2014 WHO-FIC meeting. 2. During the mid-year FDRG meeting, preliminary work was carried out on the mICF project, aimed at the development of a mobile app for ICF. 3. Work is in progress on a web-based system for the ICD11 field trials. Ad-hoc meetings of the co-chairs have throughout the year; however, due to the lack of resources, no face to face mid-year meeting could be held. An ITC web page was developed by the Italian Collaborating Centre to contain documents and basic information on the committee such as minutes, membership, reports, etc. This would enhance communication for the committee and other members of the WHO-FIC network. http://mitel.dimi.uniud.it/who-fic-itc . A mailing list for ITC members has also been set up. The Strategic Workplan was updated following the Beijing meeting to include feedback from Council. This poster highlights work completed in the past year and underway within each of the ITC strategic priorities. C103
  • 7. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 The EIC aims to improve the quality of health data and the use of the WHO Family of International classifications. Activities related to these objectives, and listed in the EIC strategic work plan, are reported according to their level of development. Introduction The EIC Resources for the Title The Education and Implementation Committee was created in 1999 and since this time has been working to improve the level of classification use and the quality of coded health data. During 2013-2014 the EIC had two teleconferences (February and September) and a face-to-face meeting in April in Lyon, France. The status of the EIC activities for this period is presented here. WHO-FIC Network Abstract 11-17 October 2014 Barcelona, Spain C104 Cassia Maria Buchalla, Sue Walker and the Education and Implementation Committee members Title WHO-FIC database The EIC has worked on standard exam questions to allow testing of the knowledge of morbidity and mortality coders who use the WHO version of the ICD-10. The exams are available to Ministries of Health, Collaborating Centres and other Organisations. There is a requirement that the exams are offered under the terms and conditions established by the EIC. Although no certification is possible for individuals who pass the exam, coders interested assessing in their skills against an international coding benchmark will be issued letters of acknowledgement. Where to find EIC Products The EIC supports the development and completion of data in the WHO-FIC implementation database. During this period the tool has been improved and it being populated by countries. WHO Regional offices are also supporting the data collection. The aim of the database is to provide information to support the Global Health Observatory (GHO) by providing metadata about the classifications used to populate the GHO. The EIC has been asked to support the level of completion and currency of the data in the database. Materials will be developed to support user completion of the database. The current version of the database is available at http://beta.who-fic.nl Best Practices INFORMATION SHEETS (IS)- the following IS are available: •Training and Certification to Promote High Quality Data •International Statistical Classification of Diseases and Related Health Problems,10th Revision (ICD-10) •International Classification of Functioning, Disability and Health –ICF •What You Should Know about Clinical Documentation in Acute Care Hospitals •Uses of Coded Clinical Data •Mortality (Cause of Death) Data •Civil Registration and Vital Statistics •International Classification of Diseases (ICD) and Standard Clinical Reference Terminologies: A 21st Century Informatics Solution The following are being created: •Automated Systems for Coding Cause-of- Death Data •New International Death Certificate •ICHI •ICD and ICF Implementation Database BRIEFING KIT (BK) A collection of updated documents regarding the WHO FIC network has been created for new Collaborating Centers. This kit includes the EIC products, information on all designated Collaborating Centers and other useful information for those who are new to the WHO FIC Network. The ICF e-learning tool has been finalised and will be available soon. It has been developed as an introductory training package with further educational materials planned. The current version is available at http://icf.ideaday.de/ ICF PRACTICAL MANUAL This important product on ICF was made available for 12 months on the WHO website as an exposure draft. Feedback has been incorporated and the Manual is now updated and available as version 1. Educational Material TRAINING TOOLS The EIC has been engaged in the development of web-based training tools for both the ICD and ICF. The ICD-10 Training tool has recently been updated with more international coding examples, and is available at: http://apps.who.int/classifications/a pps/icd/icd10training/ The EIC also provides a training tool support group that allows users of the ICD training tool to submit questions relating to the training materials. Assessment materials ICD -11 The EIC has provided case summaries for both the training for the ICD-11 field trials and for the field trials themselves. The EIC also discussed the need for ICD-11 implementation support documents. http://www.cdc.gov/nchs/icd/nacc_ed ucation_committee.htm
  • 8. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 Abstract This poster represents the Update and Revision Committee (URC) 2014 annual report as submitted September 5, 2014 for the Barcelona WHO-FIC annual meeting. Introduction Title Purpose of the Update and Revision Committee (URC) is to support WHO and WHO-FIC Network in keeping the WHO Family of International Classifications “Reference Classifications” up to date in line with current knowledge. The functions of the URC are the development of Update policies, Update coordination & decision making and the participation in the revision work in order to ensure synchronization from one revision to the other and consistency within the members of Family of International Classifications. 11-17 October 2014 Barcelona, Spain C105 Methods & Materials Annual updates: the URC ratified 121 recommendations at the WHO-FIC Network 2013 Annual Meeting held in Beijing, China for updating the ICD-10 and 40 recommendations for updating the ICF (Fig. 1 and 2). At the moment, in 2014, 74 proposals have been moderated for ICD and 48 proposals have been reviewed and put to vote for ICF. Functions, activities and completeness of deliverables are represented in the latest version of the Strategic Work Plan submitted to the WHO-FIC Council (Tab 1). An intensive restructuring of the content of the ICF update platform was carried out in coordination with FDRG. Using the features of the ICF update platform, all the proposals in the Open Discussion Layer were checked for consistency and then clustered together according to the relevant topic/block. Under every cluster, all the comments related to the different proposals were compiled and edited thus greatly simplifying the work of updating ICF carried out by the URC. The achievements of the Committee, made possible by the generous efforts of members and relative institutions, show an increasing engagement of the Collaborating Centres both in maintaining the ICD-10, particularly in view of the synchronization from one revision to the other, and in realizing a foundation ICF, with the implementation of the update proposals coming from the ICF-CY. Acknowledgements Results The URC work currently focuses on the 10th Revision of the International Classification of Diseases (ICD-10) and the International Classification of Functioning Disability and Health (ICF) and is mainly conducted through the update and revision platforms. These platforms are workflow engines designed to facilitate communication within expert workgroups and ensure transparency of the processes. Work and communication is also carried out via e-mail, conference calls and meetings, including an annual meeting during the WHO-FIC Annual Meeting. The key deliverable of the URC work is the lists of annual updates for WHO-FIC member classifications. Conclusions Members of the Committee: R. Anderson, S. Bang, C. Barral, H. Brear, A. Brooke, D. Caulfeild, L. Clarke, T. Crawford, V. Dimitropoulos, C. Van Gool, H. Di Nubila, A. Elsworthy, L. Frattura, Olivier Guye, J. Hargreaves, D. Hoyert, R. Jakob, J. Jelsma, L.A. Johansson, J. Kasamatsu, N. Kostanjsek, R. Laurenti, R. Madden, D. Murphy, E. Oikawa, D. Pickett, M. Renahan, M. Robinson, H. Rocha, J. Rust, E. Sauls, P. Saxena, K. Seo, O. Steinum, H. Ten Napel, P. Tonel, U. Trinks, M. Virtanen, P. Wood, Y. References 1. Terms of Reference for WHO FIC Update and Revision Committee (URC) version Dec 2012 2. URC SWP, March 4, 2013 3. The WHO Updating & Revision Committee http://www.who.int/classifications/committees/UR C.pdf 4. The ICD update platform https://extranet.who.int/icdrevision/nr/login.aspx?ReturnU rl=%2Ficdrevision%2FDefault.aspx 5. The ICF update platform https://extranet.who.int/icfrevision/nr/loginICF.aspx DIGITAL, MOBILE, NOW! Scan this to get a digital version URC Annual Report Gongolo F.1, Vogel U.2, Moskal L.3 1 Central Health Directorate of Friuli Venezia Giulia Region – Italian WHO-FIC Collaborating Centre URC Co-chair; 2German Institute of Medical Documentation and Information (DIMDI) German WHO-FIC Collaborating Centre – URC Co-chair; 3Canadian Institute for Health Information (CIHI) – North American WHO-FIC Collaborating Centre, URC Secretariat. Proposal ID & update type Affected Code Original version Update version ID # 55 Major: Addition of a new code and addition of exclusion b114 Orientatio n functions b1565 Visuospatial perception Mental function involved in distinguishing by sight the relative position of objects in the environment or in relation to oneself. b1143 Orientation to objects Mental functions that produce awareness of objects or features of objects. b1565 Visuospatial perception Mental function involved in distinguishing by sight the relative position of objects in the environment or in relation to oneself. Exclusion: orientation to objects (b1143) ID # 56 Major: Addition of a new code b114 Orientatio n functions b1144 Orientation to space Mental functions that produce awareness of one’s body in relation to the immediate physical space. ID # 64 Major: Addition of a new code b1670 Reception of language b16703 Reception of body language Mental functions of decoding messages in body gestures made by hands and other movements, in order to obtain their meaning. ID # 65 Major: Addition of a new code b1671 Expressio n of language b16713 Expression of body language Mental functions necessary to produce messages using body gestures made by hands and other movements. Fig. 2 – Snap shot from the ICF annual updates document v. 2014 Deliverable Activities Start Date End Date (plan) Tab. 1 – The URC relevant part of the WHO-FIC SWP (August 22,2013 v, simplified): % Annual updates to ICD-10 Submission, review, decision and implementation of update proposals for ICD-10. nov-13 oct-14 0,8 Realize a Foundation ICF implementation of ICF proposals Submission, review, decision and implementation of ICF-CY related update proposals for ICF. Due to the difference in submission process and lack of supporting rationale additional work is required. nov-10 oct-12 0,8 Provide annual updates to ICF Submission, review, decision and implementation of update proposals for ICF. nov-12 oct-13 0,8 Overall coordination of the update process Secretariat. Participation in the works, meetings and teleconferences of Initial Review Group and FDRG. nov-12 oct-13 0,8 ICD-10 related items ICD-11 related items ICF related items overall coordination Instruction Tabular list entries Source URC # Appr. Date Major / Minor Sugg. impl. Date Revise list of three character categories Arthropod-borne viral fevers and viral haemorrhagic fevers (A90A92-A99) A90 Dengue fever [classical dengue] A91 Dengue haemorrhagic fever A97 Dengue 1971 WHO October 2013 Major January 2016 Revise list of three character categories Exposure to inanimate mechanical forces (W20-W49) … W26 Contact with knife, sword or dagger other sharp objects 2001 Australia October 2013 Major January 2016 Delete categories at chapter level Arthropod-borne viral fevers and viral haemorrhagic fevers (A90A92-A99) A90 Dengue fever [classical dengue] Excl.: dengue haemorrhagic fever (A91) A91 Dengue haemorrhagic fever 1971 WHO October 2013 Major January 2016 Add categories, codes and text Revise code in excludes note A97 Dengue Dengue is a viral disease transmitted by bite of mosquito infected by dengue viruses. It is one disease entity with different clinical presentations and often with unpredictable clinical evolution and outcome. Most patients recover following a self-limiting non severe clinical course like nausea, vomiting, rash, aches and pains, but a small proportion progress to severe disease, mostly characterized by plasma leakage with or without haemorrhage, although severe haemorrhages or severe organ impairment can occur, with or without dengue shock. A97.0 Dengue without warning signs Dengue fever (DF)Dengue haemorrhagic fever Grades 1 and 2 Dengue haemorrhagic fever without warning signs A97.1 Dengue with warning signs Clinical warning signs are: abdominal pain or tenderness, mucosal bleeding, lethargy and /or restlessness, rapid decrease in platelet count, increase in hematocrit. Other signs can include: persistent vomiting, visible fluid accumulation, liver enlargement more than 2 cm. Dengue haemorrhagic fever with warning signs A97.2 Severe Dengue Clinical signs include: 1. Severe plasma leakage leading to shock (Dengue shock syndrome - DSS) and/or fluid accumulation with respiratory distress; 2. Severe bleeding as evaluated by clinician; 3. Severe organ involvement: Liver AST or ALT >=1000, CNS: impaired consciousness (encephalitis), involvement of other organs, as myocarditis or nephritis Severe Dengue fever Severe Dengue haemorrhagic fever A98 Other viral haemorrhagic fevers, not elsewhere classified Excl.: chikungunya haemorrhagic fever (A92.0) dengue haemorrhagic fever (A91A97.-) 1971 WHO October 2013 Major January 2016 Fig. 2 – Snap shot from the ICD annual updates document v. 2014
  • 9. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2013 This poster describes the activities of the Functioning and Disability Reference Group in the 12 months from October 2013 to October 2014. Four main streams of work are reported; 1 ICF updates, 2 ICF education, 3 Measurement, 4 Harmonisation and development. Background Summary of ICF updates in 2013-2014 Title Title The items on the FDRG component of the WHO-FIC strategic plan are reported on below. The co-chairs met bi-monthly by teleconference. FDRG members and collaborators were informed of progress on the projects during the year and met by teleconference in March, July and September. A mid-year meeting was held from 1-3 May 2014 at the WCPT offices in London, attended by 30 participants from collaborating centres. Conclusions FDRG Annual Report Abstract C106 Catherine Sykes^, Andrea Martinuzzi* ^World Confederation for Physical Therapy (WCPT), United Kingdom * E. Medea Insitute, Research Branch of the Italian Collaborating Centre, Italy ICF Ontology Towards a common ontology for ICF The acknowledgment that work towards an ICF Ontology is needed and that this is the time to act was shared by WHO Title and by the relevant committees (ITC, FDC). The effort aims at a more ambitious project towards a common seamless integration of all health information to allow complete representation of health and functioning in the digitalized world. Building blocks in the project will be: •Leadership of the project will sit in WHO, but FDRG will substantially contribute to its realization. Possible initial steps involving FDRG will include: •shortlisting of ICF use cases •Stocktake/term beating for functioning relevant terms and concepts •Contribute to the model development Title ICF Updates Harmonization and development • Modelling • Content linkages • Terminology linkages • Content development • Review of qualifiers Measurement ICF Practical Manual Collaborative work between URC and IRG moderators to cluster 84 proposals to have 26 new proposals, and updates workshops, have been instrumental in the progress on ICF updates. A total of 41 proposals were passed to the URC for voting. Only 11 proposals remain in the Open Discussion Layer. Comments on the exposure draft of the ICF practical manual were accepted between October 2013 and May 2014. These have been considered and, where practicable without major redrafting, incorporated. Substantial comments have been retained for subsequent editions. The ICF Practical Manual exposure draft will be remain on the WHO web site until WHO has completed the final internal publications process. There will be no printed copies of the publication. Collaborating Centres are encouraged to translate the practical manual. The writing group led by Ros Madden and including Andrea Martinuzzi, Judith Hollenweger, Diane Caulfeild, Jennifer Madans and Mitch Loeb are thanked for their tireless efforts to produce the manual. Thanks also go to those members of FDRG and EIC who commented on drafts and to WHO staff for their input. Education and Implementation Committee (EIC) A survey intended to find out about the ICF education needs of FDRG members and collaborators was carried out in the first quarter of 2014. The results were reported to EIC and the FRDG mid-year meetings. The results indicate the direction for a future education strategy for ICF. Interested WHO-FIC delegates are requested to attend the EIC session dedicated to ICF education to work on the strategy. The results of the survey are reported in a separate poster. ICHI development group Andrea Martinuzzi chairs the technical working group for functioning interventions. FDRG members and collaborators have contributed to the development of the axes and tabular list of functioning interventions in an updated Alpha 2. New developments in the ICHI project will be reported in separate posters. Informatics and Terminology Committee (ITC) In addition to working on ontology development the FDRG is working with ITC on a mobile application, named mICF, for the collection of functional status data. The mICF project will be reported in separate posters. Building on the work of John Hough in 2013, see posters at http://www.who.int/classifications/network/meeting2013/en/ a small group has been working on a paper on the criteria for selecting quality ICF literature. Significant progress was made during the mid-year meeting and is reported in a separate poster. The draft paper will be considered during the annual meeting, after which this project will be dropped from the WHO-FIC strategic work plan. The paper is due to be completed for publication by the end of 2014. 11 – 17 October 2014 Barcelona, Spain For further information contact the co-chairs: Andrea Martinuzzi [andrea.martinuzzi@lanostrafamiglia.it] and Catherine Sykes [csykes@wcpt.org] or the Secretariat Stefanus Snyman [ssnyman@sun.ac.za].
  • 10. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 Abstract This poster presents the activities and status of the Mortality Reference Group (MRG) for 2013-2014. The WHO created the MRG as a component of the International Classification of Diseases (ICD) updating process. Comprised of members from Collaborating Centres and regional offices, the MRG meets in person to review problems faced in the application of ICD to mortality. In its 16th year, the MRG deliberated about 80 issues related to both updates to ICD-10 and development of the ICD-11 revision and made recommendations to the Update and Revision Committee for further action. Introduction Mortality Reference Group Annual Report, 2013-2014 In the 16 years (1998-2014), the MRG reached over 500 decisions. The left panel of the graph shows the subset of the decisions that were sent on to the URC for information as well as for voting. The MRG forwarded 349 decisions to the URC: 238 recommendations for changes in the ICD and 111 decisions requiring no change in the ICD. The total number of issues either withdrawn by the MRG, referred back by the URC for additional work, or rejected by the URC during the first 16 years was 18 and is shown in the right panel of the graph. Title This is the 16th annual report of the Mortality Reference Group (MRG), established at the 1997 meeting of the Centre Heads as part of an updating mechanism for ICD-10. The MRG has dealt with hundreds of issues related to updating and clarifying ICD-10 as it applies to mortality classification and coding. The MRG has settled over 500 issues selected largely from the Mortality Forum (an international mortality classification discussion network) and submitted 349 recommendations to the Update and Revision Committee (URC) for consideration. This report describes the background of the MRG and the issues decided in the 16th year. 11-17 October 2014 Barcelona, Spain C107 DL Hoyert1, P. Wood2, LA Johansson3 (1) NCHS, (2) Statistics Canada, (3) Swedish Board of Health and Welfare Title Basis for the MRG The MRG met in Lyon, France, April 2-4, and in Barcelona, Spain, October 11-12, 2014. A smaller table group also met around then to work through issues concerning ACME decision tables where MRG decisions left details open. The MRG conferred about 80 issues, and submitted 36 recommendations (20 major and 16 minor) to the URC (Table). Conclusions Decisions during the 16th year Provisions for the MRG are described in two documents: the WHO long-term strategy document (WHO/HST/ICD/ C/97.39) and the Centre Heads’ Report for 1997 (WHO/HST/ICD/C/97.65). Briefly, for updating ICD-10, WHO- - working with the Centre Heads- - established two separate bodies: the MRG and URC. The MRG discusses issues raised in the Mortality Forum or those referred from other sources including the Centre Heads and WHO. The MRG can make decisions regarding the application and interpretation of ICD to mortality and submit a subset as recommendations to the URC for a vote on ICD updates and changes. The decisions requiring no change in the ICD are forwarded for the URC's information and for documentation. Decisions during the full 16 years In the 16th year, the MRG met in April and in October, communicated by e-mail, posted proposals and comments on the ICD-10+ Platform, did considerable work on a number of issues outside the committee meetings, circulated documentation for issues under consideration; and comprehensively documented all activities. During the sixteenth year, a total of about 80 issues were reviewed by the MRG and about 140 issues were reviewed by the MRG’s Table Group. Closure was reached for many of these and 36 decisions were submitted to the URC in 2014. All of these were recommendations for change.
  • 11. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 Abstract This poster reports on the ongoing work of the functioning Topic Advisory Group or fTAG. The main areas of fTAG work are populating functioning properties, identifying and reconciling mirror coding between ICF and ICD, providing a paper arguing for ICD-ICF joint use that includes use cases, and suggesting possible a structural and content revision of the Z-codes. This poster provides an overview of fTAG’s 2013-2014 activities. Introduction Work Plan Update – Functioning Topic Advisory Group (fTAG) Title The functioning Topic Advisory Group (fTAG) was formed by WHO in 2010 and is currently made up of 10 members including two Co-chairs and a Managing Editor. At the fTAG meeting held during the 2013 WHO-FIC meeting in Beijing, 26 enthusiastic participants addressed the work plan tasks on populating functioning properties, mirror-coding and z-codes. In addition, regular executive group and periodic fTAG teleconferences were held. fTAG has been represented at regular Revision Steering Group (RSG) teleconferences throughout the year. 11-17 October 2014 Barcelona, Spain C108 Selb M1,2, Stucki G1,2,3, Kennedy C4 1ICF Research Branch in cooperation with the WHO-FIC CC in Germany (at DIMDI), Nottwil, Switzerland; 2Swiss Paraplegic Research, Nottwil, Switzerland; 3 Department of Health Sciences & Health Policy, University of Lucerne, Lucerne & Nottwil, Switzerland; 4 Office of the Assistant Secretary for Planning and Evaluation, Department of Health and Human Services, Washington DC, USA Possible mirror coding i.e. conceptual and terminological overlaps between disease entities in the ICD-11 beta-version with the ICF, has been examined for: • Disorders Title of vision and visual functioning • Deafness • Disorders of intellectual develop-ment • Developmental learning disorders • Tetraplegia Two fTAG members independently reviewed the ICD-11 codes for the One task of the fTAG is to “populate” or identify functioning properties (FPs) i.e. ICF categories in the component of activities & participation for selected health conditions. Based on discussions at and after the 2013 Beijing meeting, the list of health conditions designated for populating FPs was re-evaluated and adjusted and a suggestion for clustering the health conditions was implemented. Subsequently, FPs for 101 health conditions were entered into the ICD- 11 revision electronic system called iCAT, and since March 2014 these FPs have been visible in the ICD-11 beta-browser. fTAG has been coordinating with WHO to optimize the visualization of the FPs in the ICD-11 betabrowser. An example of acquired hearing loss is given in figure 1. The poster entitled “Functioning properties - A first step toward ICD-ICF joint use” provides more detailed information on populating on FPs. A paper following up on the 2012 publication Towards the joint use of ICD and ICF: A call for contribution has been submitted to a peer-review journal. aforementioned health conditions for mirror coding with relevant ICF categories and, after comparison of their respective results, came to a consensus on whether mirror coding exists. Question: Does mirror coding exist? Total impairment of visual acuity b2100 Visual acuity functions Decision: Yes, terminological mirror coding exists, but only when the ICF category is quantified with a qualifier of 4 (complete impairment). Since no description is given for the ICD-11 code, no decision about conceptual mirror coding was made. One challenge faced by the fTAG was the ever-changing linearization of the selected health conditions in the beta-browser. For example, paraplegia was initially designated for the mirror coding task. Until mid-2014 paraplegia was not found on the beta-browser, but re-appeared in September 2014. The outcome of the consensus discussion will be presented at the fTAG meeting in Barcelona. Conclusions Examples of non-US application of the ICF was integrated in a revised version of the paper that will be sent to WHO for approval after getting final feedback at the Barcelona meeting. At the 2013 Beijing meeting the Z-codes working group presented possible re-assignment of former Z-codes to either contextual factors, ICHI-related categories or ICD-11 post-coordination. Codes that were not re-assigned was reviewed by the meeting participants and feedback was given. Since then WHO reorganized the structure of the Z-codes based on ICPC-2, the feedback from Beijing and internal discussions. This new structure can now be seen on the ICD-11 beta-browser. Figure 1: Functioning properties in the ICD- 11 beta-browser for acquired hearing loss Task 1: Populating Functioning Properties Task 2: Mirror Coding Task 3: Paper “Case for ICD-ICF Joint Use” Task 4: Evaluation of Z-Codes fTAG Members: Solvejg Bang, Francesco Gongolo, Cille Kennedy (Co-chair), Haejung Lee, John Melvin, Jane Millar, Marcelo Riberto, Melissa Selb (Managing Editor), Gerold Stucki (Co-chair) and Catherine Sykes; WHO Liaison to fTAG: Molly Meri Robinson Nicol
  • 12. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 The Quality and Patient Safety TAG is charged with reviewing ICD-10, ICD-10CM and progressive drafts of ICD-11 to inform the development of the ICD-11, focusing on identifying practical modifications for ICD 11 drafts that would enable better measurement of quality and safety. Ultimately, an enhanced classification system will permit expanded use of coded health data for large-scale quality and safety surveillance in health care systems internationally. TASKS Quality & Safety TAG Title Abstract • Horizontally crossing all ICD-11 chapters to advise on optimizing the entire classification’s content, structure and coding rules for enhanced application in both existing. • Developing an inventory of existing quality of care and patient safety indicators and potentially novel quality and safety indicators. • Assessing potential uses of ICD-11 for health services, quality and patient-centered outcomes research. • Reviewing and critiquing the ICD-11 beta draft from the perspective of the quality and safety use case. • Reviewing and critiquing Volume II work from the perspective of quality and safety use case. • Designing field trials for the beta version of ICD-11. 11-17 October 2014 Barcelona, Spain C109 Authors: Danielle Southern, Hude Quan, William Ghali for the Quality & Safety TAG Title MEETING ATTENDEES We have held meetings in both New York, NY and Washington, D.C. US • Reviewed the status of discussions around coding rules (main condition, diagnosis timing, coding field). • Reviewed chapter 19&20 content and associated clustering mechanisms and presented these concepts in emails to WHO. • Prepared to undertake a granular review of the content in chapters 1- 20 and will devise a committee work plan to do this. Published Manuscripts Overview TAG Main Condition Number of diagnoses fields Progressing Manuscripts The editorial team of the International Journal for Quality in Health Care is welcoming a series submission (i.e. intermittent submission of papers as they are completed). Timing of diagnosis New PSI project 19&20/concepts Completed Field Trials Survey With the overriding goal for the TAG (& thus the WHO) to collect info on user needs from ICD-11 in advance of the next TAG meeting (in September) to inform ICD-11 refinements. We developed and executed a survey for the field trial. A manuscript or the results has been drafted and circulated for TAG member comments. Progressing Field Trials The QS-TAG has devised a matrix model for considering potential ICD-11 field trials. The matrix categorizes cross-tabulates topic areas (e.g., validity of coded concepts, completeness of capture of critical patient safety and quality concepts, reliability and feasibility of various coding rules, opinions of stakeholders on various issues) against the methodologies that would be used for the field trials (i.e., code-recode studies using real medical records, coding studies assessing completeness of capture of key safety/quality concepts, surveys of stakeholders, heuristic evaluations of ICD-11 on various user interfaces, etc). Mapping of existing patient safety indicator We have begun a mapping exercise, whereby we have attempted to map the Calgary PSI list, the International ICD-10 AHRQ PSI list as well as Patient Safety concepts in ICD-11-Beta. Code-recode testing Objectives • To assess, from a healthcare leader’s perspective, the utility of patient safety information encoded using the following classification systems: AHRQ Common Format, WHO-ICD 10-CA, and WHO-ICD11 (Beta) • To evaluate the inter-rater reliability of raters classifying patient safety events • To determine the face validity of event classification • To assess the coding practice for classifying patient safety events ACKNOWLEDGEMENTS ACTIVITIES Australia: James Harrison, Vijaya Sundararajan US: Marilyn Allen, Chris Chute, Ginger Cox, Donna Pickett, Harold Pincus,, Patrick Romano, Brigitta Spaeth- Rublee, Canada: Susan Brien, Alan Forster, William Ghali, Yana Gurevich, Lori Moskal, Hude Quan, Danielle Southern Switzerland: Bernard Burnand, Jean- Marie Januel France: Cyrille Colin Germany: Saskia Droesler WHO: Nenad Kostanjsek, Bedirhan Ustun. Conclusions Q&S TAG was funded by the Agency for Healthcare Research and Quality (AHRQ), Canadian Institute of Health Canadian Patient Safety Institute (CPSI), and Canadian Institute for Health Information (CIHI).
  • 13. C201-220 WHO Collaborating Centres WHO ID Title Authors C201 Australian Collaborating Centre Annual Report 2014 Hargreaves; Metz; Macpherson; Njeru C202 WHO Collaborating Centre for the FIC in Brazil- Annual Report Buchalla; Laurenti; Di Nubila C203 2013-2014 activity report of the CC Inserm-EHESP for the WHO-FIC in French Lamarche-Vadel; Cuenot; Rodrigues C204 Report from the German Collaborating Centre Weber C205 Human Resource Development for effective implementation of FIC (ICD-10 & ICF) In India by Central Bureau of Health Intelligence Raikwar; Singh; Sharma; Prasad C206 Updates on the performance monitoring plan of the Italian WHO-FIC Collaborating Centre: a new reporting way on annual activities Frattura C207 Korean Collaborating Centre Annual Report 2014 Park; Hur; Roh; Kim C208 Annual Report from the Mexican Collaborating Centre (CEMECE) Jan 2013-Jan 2014 Torres; Jimenez; Navarro; Yañez C209 Dutch WHO-FIC Collaborating Centre annual report 2013-2014 van Gool; ten Napel C210 WHO-FIC Collaborating Centre for North America Pickett; Renahan; Wood C211 Annual report from the Nordic WHO-FIC Collaborating Centre 2013 Berg C212 WHO-FIC COLLABORATING CENTRE IN SOUTH AFRICA: 2014 REPORT Hanmer; Bradshaw C213 THAI WHO-FIC CC Annual Report 2014 Paoin; Yuenyongsuwan; Suvapan C214 Activities of the WHO-FIC Asia-Pacific Network Endo; Kim; Paoin; Yuenyongsuwan; Hong; et al. C215 A NETWORK WITHIN A NETWORK: THE IBEROAMERICAN EXPERIENCE Giusti; Jimenéz C216 Building ICD-11 Terminology Services Using the CTS2 Standard Jiang; Solbrig; Chute C217 Activities of the Stanford WHO Collaborating Center Musen; Nyulas; Tudorache; Tu C218 WHO Collaborating Centre in Calgary, Canada Quan, Ghali C219 WHO Collaborating Centre in Venezuela - CEVECE: Towards their sixty years Cordero; Villegas; Ortega; Regalado; Moreno; et al. C220 Activity Report from the WHO-FIC in Japan ICD Office Japan
  • 14. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 Australian Collaborating Centre Annual Report 2014 Abstract The Australian Institute of Health and Welfare has hosted the WHO-FIC Australian Collaborating Centre since 1991. The membership of the ACC is Australian organisations that have an interest and experience in working with classifications. This poster summarises the activities of the Australian Collaborating Centre that occurred between October 2013 and October 2014. Introduction The Australian Institute of Health and Welfare (AIHW) in Canberra, Australia, has hosted the ACC since April 1991. Re-designation of the ACC for a four-year period occurred on 7 May 2014. The Head of the Centre is Jenny Hargreaves, Senior Executive, Hospitals, Classifications and Performance Group at the AIHW. The ACC is a collaboration of Australian and New Zealand experts and organisations with an interest in classifications. Through the combined efforts of the organisational and individual members of the ACC, the use of the International Classification of Disease (ICD), the International Classification of Functioning, Disability and Health (ICF), the International Classification of External Causes of Injury (ICECI) and the International Classification for Primary Care, Version 2 (ICPC-2) is facilitated. Thank you to all the ACC members and organisations for their valuable contributions to the ACC work-plan activities during 2013- 2014. Many of the activities occur through in-kind support from these individuals and organisations. 11-17 October 2014 Barcelona, Spain C201 Jenny Hargreaves (Centre Head) and Katie Metz, Brooke Macpherson and Jodee Njeru (ACC Secretariat) Other contributions by ACC members to committees included: • Mortality Reference Group - Sue Walker and James Eynstone-Hinkins • Education and Implementation Committee – Sue Walker (co-chair) and Ros Madden • Revision Steering Group - Richard Madden and James Harrison • Family Development Committee - Richard Madden, Megan Cumerlato, Brooke Macpherson (Secretary), Nicola Fortune and Luis Salvador-Carulla • Functioning and Disability Reference Group – Ros Madden, Xing-yan Wen • ICHI Development advisory group - Richard Madden (Co-Chair) • Update and Revision Committee Ros Madden and Anne Elsworthy Contributions to WHO and Network committees The Head of the ACC served as Co- Chair of the WHO-FIC Network’s Advisory Council and of the Council’s Small Executive Group (SEG), as Co-chair of the Family Development Committee and a member of the Revision Steering Group (RSG). She also participated in the WHO’s informal ICHI development advisory group. Ros Madden facilitated the workshop, which provided an opportunity for people familiar with the ICF and interested in contributing to its updating and improvement to discuss the proposed updates and to contribute to the ICF updates process. The next day, an ‘ICF Network forum’ was convened with people interested in the use of ICF. Presentations were made about current uses of ICF in Australia and discussions were held about how to improve dissemination and exchange of information about ICF in Australia. Conclusions This is the annual report of the ACC to the Network and summarises activities which occurred during the period of October 2013 to October 2014. It incorporates information relevant to the ACC Terms of Reference as agreed with the WHO, and information on specific activities of the ACC and its member organisations. ICD The National Centre for Health Information Research and Training hosts the Australasian Mortality Data Interest Group. The Group held its annual workshop in November 2013 with the theme of ‘Bringing Mortality Data to Life’. It was hosted by the Australian Bureau of Statistics and the Australian National University in conjunction with the National Centre for Classification in Health, University of Sydney. The workshop aims included highlighting advances in data methods and data linkage; identifying international developments in mortality data; and highlighting the links between research and the development of health policy. The National Centre for Classification in Health progressed work on the ninth edition of ICD-10-AM, and members of the ACC collaborated to provide comments for the URC’s ICD update process. ICF A ICF updates workshop was hosted by the University of Sydney, in collaboration with the ACC in Sydney on 5 June 2014. ICHI Richard Madden has continued to provide leadership for the development activities relating to the ICHI. Several staff of the University of Sydney have provided valuable inputs. International Group for Indigenous Health Measurement The IGIHM is holding a meeting in Vancouver, Canada in early October 2014 to focus on progressing measures of infant and child mortality, Indigenous identification, maternal mortality and indicators of wellbeing from an Indigenous perspective in the four countries (Australia, Canada, New Zealand, and the United States ). The AIHW will be presenting on the infant mortality estimates and mapping of primary health care services and Indigenous populations in Australia. The ACC continues to actively promote the development and use of the WHO classifications in Australia, and through contributions to the WHO-FIC Network. In addition to the activities described above, the ACC provides information and updates to relevant government agencies in Australia, including through the AIHW’s newly established Australian Health Classifications Advisory Committee. This will ensure that Australia is well placed to continue participation in development and implementation of the WHO-FIC into the future.
  • 15. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 WHO Collaborating Centre for the FIC in Brazil –Annual Report Abstract The activities developed during the period of 2013- 2014 in the training area, include ICD-10 courses, as well as the quality of health statistics in the country, and the improvement in the ICF dissemination by lectures, researches and conferences at Seminars and Congress. The Brazilian CC has had many activities in order to implement the FIC in Brazil, and has a routine activity with Mortality Information Systems in Brazil. Activity 1 – Work on Revision of ICD 11 Conclusions Title 11-17 October 2014 Barcelona, Spain C202 Brazilian CC for WHOFIC, University of Sao Paulo, Brazil Title . regular encounters (each 2-3 months) with Health Surveillance Secretary of Ministry of Health, together with some collaborators of State Health Secretaries of Rio de Janeiro(SouthEast Region), Mato Grosso do Sul (CentralWest Region), Alagoas and Bahia (NorthEast Region), and Municipalty Health Secretary of São Paulo (PRO-AIM – Programa de Aprimoramento das Informações em Mortalidade – Program for Improvement of Mortality Informations) - “Health Statistics Nucleus” . participation in Committees and Reference Groups – MRG, FDRG, ICD-URC and ICF-URC, EIC, and FDC . contributions to EIC - protocols for coding more complex situations for coders (as Maternal deaths, Perinatal Deaths, Procedures Complications, Cancer and External Causes), translating and reviewing the New “ICF Practical Manual” and the ICF e-Learning tool translation in progress. .m-TAG and GURM-TAG .meetings with Brazilian Ministry of Health regarding how to proceed with ICD-11 translation and participation in the field trials. .Ibero-American Workshop on Interoperable Systems for Health - February 201- Ribeirao Preto Faculty of Medicine – University of Sao Paulo: presentation on what is expected for ICD-11. . “ Binomial Mother-Children” study - Morbidity and Mortality in pregnant women and newborns . contact with the coders of causes of death, through Health Surveillance Secretary / Ministry of Health regarding correct coding of fetal/ perinatal and neonatal deaths . evaluation of the registers of ill-defined causes or incomplete diagnoses in the death certificates .results presented in meetings, conferences and discussions with the Regional Councils of Medicine . researches/studies to evaluate the question whether external causes, specially accidents, could be consequences of natural causes. . “Instructions Manual” for national use - coding cancer and complications of procedures for mortality coders . Collaboration with Health Surveillance Secretary, and heads of State and Municipality Health Secretaries - to evaluate the quality of Health Information Systems for Mortality-SIM and Liveborns-SINASC (SIM – Sistema de Informação sobre Mortalidade and SINASC – Sistema de Informação sobre Nascidos Vivos) Activity 6 –Strengthening of national workgroups and WHO-FIC network activities Activity 4 - Improving quality of vital statistics using ICD Activity 2 – Implementation support for WHO-FIC in Brazil and other countries . program “IRIS” dictionary of medical terms in Portuguese and their respective ICD-10 codes - Doctorat work of the post-graduation student Renata Martins (code and select the underlying cause of death in 96% death certificates) . workgroups to provide to the Ministry of Health subsides for improving the SCB (software SCB / Seletor da Causa Básica – Underlying Cause Selector) .evaluation of Consistency Tables for Mortality . workgroups for evaluation of coders and others. . PAHO / RELACSIS (Red Latinoamericana y Caribeña para el Fortalecimiento de los Sistemas de Información de Salud – Latin American and Caribean Network for Enhancing Health Information Systems). . review and validation of the SCB (Underlying Cause Selector) software and its decision tables used in Brazil . Work with Health Surveillance Secretary of Brazilian Ministry of Health, and collaborators of State Health Secretaries of Rio de Janeiro, Mato Grosso do Sul, Alagoas and Bahia, and Municipalty Health Secretary of São Paulo (PRO-AIM – Programa de Aprimoramento das Informações em Mortalidade – Program for Improvement of Mortality Informations) - “Health Statistics Nucleus” . project using ICF concepts and framework for identification of disabilities in an area of São Paulo city - Foundation for Support to Research of São Paulo State (FAPESP) . concluded a study on odonthological absenteeism using ICF . support for a study using ICF codes for projects on Deafness in aged people and children . acquisition of new version of software Lectora .looking for solution on how to include the translation files . EIC activities in person meetings and also by teleconference, by skype and by e-mail meetings during 2013. . courses in Training for Coders in the use of ICD-10 for Morbidity and Mortality . training of coders and multipliers, and a Forum for questions and discussion about coding with coders and other users of ICD-10 - activity with the Brazilian Ministry of Health . training and use of ICF - workshops for the Education area; work meetings with Social Security Ministry about ICF definitions of impairment/disability; roundtables about possible uses of ICF in Social Security Work Disability evaluations; habitual lectures about ICF in Work Medicine Specialization Course; courses and workshops about ICF and ICF-CY . routine activity in the area of evaluation and validation of information in the Mortality Information Systems in Brazil (Sistema de Informação em Mortalidade-SIM) Activity 5 –Coordination of national WHO FIC activities Activity 3 – Work Groups and PAHO collaboration Activity 5 –Coordination of national WHO FIC activities
  • 16. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 2013-2014 activity report of the CC Inserm-EHESP for the WHO-FIC in France Abstract This poster presents the highlights of the annual report of the Collaborating Center Inserm-EHESP for the WHO-FIC in French. Two main organizations, based in France, fulfill the missions of the French CC: the Inserm-CépiDc (French National Institute on Health and Medical Research, since 1967) working on the ICD and the EHESP-MSSH (French National School of Public Health, since 1989) working on the ICF. Collaborations with the ATIH (technical agency for the data management in hospitals) and the University of Saint-Etienne also allow contributions to the works done on morbidity, and ontology. The collaborating center works at several levels: French, French-speaking and international. Introduction 11-17 October 2014 Barcelona, Spain C203 Agathe Lamarche-Vadel1, Marie Cuenot2, Jean-Marie Rodrigues3 1CépiDc-Inserm (France), 2EHESP-MSSH (France), 3 University of Saint-Etienne (France) The ICD-11 related activities of the Center are as follows: Promotion of the ICD-11 in French (in France and European French-speaking countries): Dr Nassim Douali coordinates the translation of ICD-11 on the WHO platform, starting with the current version of ICD-11. This work is based on existing translation of ICD-10 and uses modern French reference terminology. A call for contributors has been posted on the French Collaborating Center website (http://www.cepidc.inserm.fr/site4/in dex.php?p=oms) WHO-FIC related activities: -As Co-head of the MTAG, Gerard Pavillon continued participating to the ICD Revision Process until the Geneva meeting on the Review of the Common Linearization for Mortality and Morbidity (December 2013). Sandra Gomez participated In MbTAG. -Jean-Marie Rodrigues and Nassim Douali worked in the Joint Advisory Group WHO IHTSDO on Harmonisation with IHTSDO; and in the Joint Working Group IHTSDO on the Common Ontology ICD-11 SNOMED CT. Jean-Marie Rodrigues worked on the Mapping ICD 9 CM – ICHI. ICF related activities The ICF-related activities of the Center are as follows: Promotion of the ICF in French (in France and European French-speaking countries): -Courses on the ICF and the conceptual models of disability in master programs in social policies, educational sciences, physical medicine and rehabilitation, public health, special education management, in the Master degree “Situations de handicap et participation sociale” (EHESP-Rennes 1 & 2) -Participation in a 2012-2014 European Union Leonardo program (Belgium, France, Romania, Switzerland) to develop an educational material on the social participation of persons with disabilities -Participation in the commission for the monitoring of the implementation of the UN Convention on the rights of people with disabilities (2006) in France - Expertise on ‘rare disabilities’ - Maintenance of the CC website (http://mssh.ehesp.fr/international/cent re-collaborateur-oms/ ) and the bibliographic watch. WHO-FIC related activities: Participation in the works and meetings of the EIC (e-learning tool, implementation database), URC and FDRG with a particular involvement in the ICF updates review process (co-moderation of the Initial Review Group). Publications Barral C., Winance M. (2013). Définitions et classifications, in INSERM. Handicaps rares. Contextes, enjeux et perspectives. Collection Expertise collective, Inserm, Paris. The 2013-2014 activities of the CC for the WHO-FIC in French are presented here: the main activities are related to the ICD and the ICF. Some collaborations allow works on the ICHI. I ICD-10 related activities I ICD-11 related activities ICHI related activities The ICD-10 related activities of the Center are as follows: Promotion of the ICD-10 in French (in France and French-speaking countries): -A new edition of ICD-10-FM Volume 1 has been undertaken by the ATIH in order to provide an updated version accounting for the modifications made since the 2008 edition. -The Center collaborates with the Moroccan Ministry of Health and the NCHS CDC’s collaborating organization in the North Africa-Middle East region, (EMPHNET- Eastern Mediterranean Public Health Network) to design a standard information system in line with WHO standards in Morocco, in order to improve cause of death data in Morocco. In this context, the Center has organized a one month training to mortality coding in France to provide expertise to the two persons who will direct coding units in Morocco. -WHO-FIC related activities: Participation in the works and meetings of the MRG, Table Group and URC. This allowed the Center to give its position on the ICD updates presented during this periods and to provide expertise in fields where it is experimented Contact details: agathe.lamarche-vadel@inserm.fr marie.cuenot@ehesp.fr
  • 17. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 Abstract The German Collaborating Centre (CC) is a designated WHO-FIC Collaborating Centre since 2003. Part of the German CC are the ICF Research Branch and Experts from the University of Freiburg, Germany. This poster reports on the activities that took place since the last WHO-FIC-Meeting in 2013 Introduction Report from the German Collaborating Centre Title After its initial designation in 2003 the German Collaborating Centre was again re-designated in 2012. The German Collaborating Centre is located at DIMDI. For the ICF work the ICF Research branch is joining the work of DIMDI. Twice a year DIMDI and the ICF Research branch meet to discuss the on-going and planned work. For the work on the new procedure classification ICHI the University of Freiburg is joining the work of DIMDI. 11-17 October 2014 Barcelona, Spain C204 DIMDI, ICF Research Branch and University of Freiburg, Germany Title Work at DIMDI ICD-11 Revision/fTAG: Since the 2013 WHO-FIC meeting in Beijing, the list of health conditions (HCs) designated for populating FPs was adjusted, a suggestion for clustering the HCs was implemented and the FPs for 101 HCs were entered into ICD-11 revision electronic system, iCAT. Although FPs have been visible in the ICD-11 betabrowser since March 2014, work on optimizing the visualization is ongoing. Consultation within fTAG on mirror coding has also been provided. Other activities include organizing and leading monthly teleconferences and participating in the monthly RSG teleconferences providing input where appropriate. A paper following up on a 2012 publication on the FPs work will be submitted to a peer-review journal by the Barcelona meeting. ICF eLearning Tool: The status of the ICF eLearning tool revision was presented at the Beijing Meeting and at the 2014 EIC mid-year meeting. Activities included coordination with WHO, EIC and the Collaborating Centres willing to translate the tool in their respective languages, finalizing the content revisions and coordinating the search for new software. In June 2014 WHO approved the revised version of the tool and the acquisition of Articulate Storyline, the new software that will be used to implement the revised version of the ICF eLearning tool. The revised tool is expected to be available on the WHO website by the beginning of 2015. ICF Training: Since Beijing, ICF workshops have been held in China, India, Finland, Palestine, Poland and Switzerland. Online tutorials on the ICF linking methodology as well as on conducting ICF-based case studies have been conducted. ICF Updates within FDRG: Input on update proposals were given including more intensive involvement in the update process within the Initial Review Group. ICF Practical Manual within FDRG: Feedback on the exposure draft of the Manual was provided in May 2014. A Steering Group member has been involved in finalizing changes based on the discussions during the 2014 mid-year meeting in London. ICF Core Set work: ICF Core Sets for cerebral palsy are now available. Other activities: See posters on the 1) system-wide implementation of the ICF in clinical & rehabilitation practice, 2) enhanced informed decision-making in the health system using the ICF as a reporting standard and 3) develop-ment of the Model Disability Survey. Conclusions Work of the ICF research branch ICD-10: In 2014 DIMDI worked on the adaptation and translation of the 2015 updates from WHO and their implementation into ICD-10-GM 2015 together with requirements from the national annual submission process. Release of the pre-version of ICD-10- GM 2015 was in end of July and of the official version at the end of September, for implementation into health care systems until January 1st 2015. As usual, results from the discussions with national experts where fed back to the URC as well as into the Revision process. For WHO DIMDI implements the updates to ICD- 10 into the ClaML database to enable WHO to generate a version 2014 in English language. ICD-O-3: Translation and implementation of the 2012 updates of ICD-O-3 has been worked out in cooperation with (legal) authorities of the national cancer registries (epidemiological and clinical) and of Robert-Koch-Institute as the national German Center for Cancer Registry Data. The German version of ICD-O-3 including the updates was published in march 2014 in print format as well as in a browser version. ICF: DIMDI continued in 2014 with national consultations on the planned updates for ICF. The ICF-working group convened in DIMDI in March to discuss the updates for ICF. Results of this meeting were presented in the Update workshop of FDRG in London right after. Mortality Coding: DIMDI trained all german mortality coders on the use of ICD-10 with a focus in 2014 on electronic coding of cause of death. Since the last Network meeting the work of the German Collaborating Centre continued. The existing Collaboration of DIMDI, the ICF Research Branch and the University of Freiburg proved well suited for the successful fulfilment of the Work plan as agreed with WHO. Committee work: The head of the German Centre stepped down as Council Co-chair at the meeting in Beijing. Ulrich Vogel serves as URC Co- Chair since the Brasilia meeting. In this capacity he manages the update process of ICD-10 for the Committee. Active participation in person or via phone conference as well was conducted for Mortality Reference Group, Family Development Committee, Update and Revision Committee for ICF purposes and other WHO-FIC groups. Additionally DIMDI assisted in the ICD Revision, especially in the Revision Steering Group, the Morbidity TAG and the Neoplasms TAG. As the Beta Release became available, DIMDI announced this to the general public and solicited participation from the German users. Work at the University of Freiburg ICHI: The University of Freiburg is supporting the developmental work on ICHI by contributing especially on the structure and content of the classification axes, and the maintenance of an annually published database. Focus in 2014 lay on the rearrangement of the values of the ICHI axes for the Alpha-2-Version. ICD-10 Alphabetic Index: The annual work on the quality of the index terms for the German Modification (ICD-10-GM) results in proposals for improvements eventually impacting the international version.
  • 18. MEETING OF THE WHO COLLABORATING CENTRES FOR THE FAMILY OF INTERNATIONAL CLASSIFICATIONS 11 – 17October, 2014 Barcelona, Spain Human Resource Development for effective implementation of FIC (ICD-10 & ICF) In India by Central Bureau of Health Intelligence M. Raikwar*, Umed Singh*, R. K. Sharma* and Jagdish Prasad** *Central Bureau of Health Intelligence (CBHI), WHO CC on Family of International Classifications (ICD -10 & ICF) in India, Directorate General of Health Services; **DGHS, Ministry of Health & Family Welfare, (Govt. of India), New Delhi. C205 – Human Resource Development for effective implementation of FIC (ICD-10 & ICF) by Collaborating Centre on WHO-FIC in India during last one year period from September, 2013 to August, 2014 have been described is this poster. Introduction No. of participants attended workshops 800 700 600 500 400 300 200 100 on ICD-10 & ICF TOTAL NUMBER OF TRAINING CONDUCTED AND MAN- POWER TRAINED Result From September 2013 till August, 2014, CBHI has conducted 18 Batches of Trainings on ICD – 14 & ICF and in these trainings 225 persons were trained. Conducted 4 trainings for Master trainers on ICD – 10 & ICF and 46 more trainers were added in creating a pool of master trainers In India Conducted 29 batches of sensitization Workshops during the year to promote the use of ICD – 10 in Tertiary Care Hospitals & Medical Colleges (both in Government & private sector) and in these Workshops, 2617 persons sensitized about ICD - 10. No. of Participants attended ICD-10 Training Programme Conclusion Central Bureau of Health Intelligence (CBHI), New Delhi under Dte. General of Health Services in the Ministry of Health & Family Welfare (Govt. of India) has been functioning as WHO CC on FIC in India from September, 2008 onwards. It has been actively involved in human resource development for effective Implementation of WHO-FIC (ICD - 10 and ICF) in India since then. This Descriptive Study of the human resource development for FIC, Performed by CBHI, was done using the documents available at the CBHI headquarters and Field Survey Units as well as Training Centres. Training Reports, Office Files & Reports of the various trainings/ workshops conducted in 2013-14 by CBHI were studied retrospectively, using Checklists designed for the purpose. 70 60 50 40 30 20 10 Through its sustained efforts, CBHI has been able to create a pool of master trainers, medical officers and paramedics trained in FIC to initiate and effectively implement the activities towards use of FIC by developing human resources in India. CBHI has also been providing collaboration and support to its neighbouring countries of South East Asia and WHO – SEARO. CBHI is committed towards its mandate for the use of WHO FIC. It hopes to continue these activities in the period of re-designation with renewed vigour. Abstract Methods & Material Peer Review of WHO Training Manuals on “Hospital Information System” done by experts in India conducted at FSU, Bangalore in march, 2014. Head of the WHO Collaborating Centre on FIC in India along with one expert on ICF attended WHO-FIC Network Annual Meeting at Brasilia, Brazil from 13th – 19th October, 2012. 693 455 337 290 406 436 0 No. of Participants Training Centres 34 29 32 41 33 42 60 0 No. of Participants Training Centres Training Center ICD-10 Workshops on ICD – 10 & Training ICF Total No. of Trainings Participant Workshops Participants Bengaluru 2 34 6 693 Bhopal 2 29 5 455 Bhubneshwer 3 32 4 337 Jaipur 2 41 4 290 Lucknow 2 33 4 406 Patna 3 42 6 436 RHSTC, Mohali 4 60 0 0 18 271 29 2617
  • 19. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 Updates on the performance monitoring plan of the Italian WHO-FIC Collaborating Centre: a Abstract Moving from the 2011-2015 terms of reference (TORs) of the Italian WHO-FIC CC, a performance monitoring plan was defined to yearly assess the CC’s performance. The aim of this work is to present the third-year results of the performance monitoring plan of the Italian WHO-FIC Collaborating Centre (CC). Introduction new reporting way on annual activities The aim of this work is to present the third-year results of the performance monitoring plan of the Italian WHO-FIC Collaborating Centre (CC) using the content of the CC annual report [1] and the Italian posters submitted at Barcelona Annual meeting. 11-17 October 2014 Barcelona, Spain C206 Frattura L. on behalf ot the WHO-FIC Italian collaborating centre network Central Health Directorate, Classification Area, Friuli Venezia Giulia Region, IT WHO-FIC CC Methods & Materials Moving from the 2011-2015 terms of reference (TORs) of the Italian WHO-FIC CC, a performance monitoring plan was defined to yearly assess the CC’s performance. Five main criteria were used: (i) adherence to the relevant lines of work of the WHO-FIC Strategic Work Plan (SWP); (ii) outcomes of the activities; (iii) new partnerships; (iv) communication power; and (v) resource consumption. of and active participation in mICF; involvement in SNOMED-CT and ICF common ontology efforts; ISO9999 mapping to ICF; translation into Italian of the WHODAS 2.0 Manual; translation into Italian of the ICD-10 Training tool; translation into Italian the ICD-10 1996-2013 cumulative updates; transcoding administrative discharge data from ICD9-CM to ICD-10 using a new software, developed by the Italian WHO-FIC CC. Updates at national level: the CC is formally engaged, as leader of the ICD-10-related line of work, in the national project of revision of the Italian case-mix system (IT-DRG project); ICD-10 cumulative updates were translated into Italian and the relevant ClaML file was maintained both in English and Italian through the Italian Portal of Classifications, which was restyled. Updates at regional level: a third VilmaFABER field trial was carried out in the Friuli Venezia Giulia Region and a fourth field test was started in ICD line ICF line IT line Implementation line Disability policies line the Liguria Region. VilmaFABER has been published on the web (Figure 2) [2]. The communication power was evaluated considering presentations, seminar and meeting organization, and active users of the Italian Portal of Classifications (Figure 3). Results Acknowledgements In the third year (21 July 2013-21 July 2014), the Italian WHO-FIC CC was active on five lines of work at international, national and regional level: (i) revision of the International Classification of Diseases; (ii) IT and ontological development for WHO FIC; (iii) coordination and management of the ICD-10 and ICF update process; (iv) national work on WHO-FIC; and (v) awareness building and implementation support of WHO-FIC in WHO regions. Some results are presented in an interactive map (QR accessible) that allows browsing through all the posters presented by the CC at the 2014 WHO-FIC annual meeting (Figure 1). New projects inside the WHO-FIC network: launch of the WFABER project; coordination Conclusions References DIGITAL, MOBILE, NOW! Web tools and services to translate, update, browse, and publish ICD-10 How to deal with meaning ambiguity in international classifications on disability in five different languages Italian WHO-FIC CC Annual Report Shift from ICD-9CM to ICD-10 in morbidity coding Workplace description using and expanding the ICF Environmental Factors component WFABER multicenter project on determinants of outcomes “Web Activity and Participation Performance Inventory” (WAPP.In). How to combine standard terminologies and ICF in epidemiological studies ISO9999 mapping to ICF ITC Report Architecture for ICD 11 and SNOMED CT Harmonization Developing a mobile application for ICF ICDfit: a web-based system for ICD11 field trials URC Report WHODAS 2.0 in Philippines The activities of the Italian Collaborating Centre are linked to the relevant lines of work of the WHO-FIC SWP according to the CC’s TORs. All activities of the Centre were made possible thanks to regional and national funding. Figure 3 – The new Italian Portal of Classifications as a strategic communication tool of the Italian CC Figure 1 – The Barcelona Subway Interactive Map of the Italian WHO-FIC CC 2013-2014 activities (each station is a downloadable WHO-FIC 2014 Meeting poster) All activities carried out by the Centre were possible thanks to the deep understanding and concrete funding by Friuli Venezia Giulia Regional Administration, national and other regional institutions and authorities. 1. Agreement between Italian Ministry of Health and Friuli Venezia Giulia Region, 2010-2012; 2013-2015 2. “Progetto It.DRG”, founded by National Health Service 2004 to realize strategical objectives under the National Haalth Plan, accortding to art. 1, comma 34, Law n. 662/1996 (CIPE Decision 23 March 2012 for assigning to the Emilia Romagna region the amount allocated for the realization of the "It.Drg Project"). 1. Italian WHO-FIC annual report, Udine 3 Sept. 2014 2. www.vilmafaber.eu FDRG Report Grouping Body Functions (BF) and Activity and Participation (AP) categories in children functioning assessment Scan this to get a digital INTERACTIVE version Figure 2 – The VilmaFABER logo
  • 20. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 Abstract The Korea Health and Welfare Information Service(KHWIS) has hosted and operated the WHO-FIC Korean Collaborating Centre since December 2012 and act as a mediator to improve interoperability of domestic and international healthcare information. To achieve this, KCC is :  developing and dissemination of national healthcare information standardization and WHO Family of International Classification, Terminologies, and Standards  operating network across the country  cooperating with WHO and other WHO-FIC CC. This poster described the activities of KCC between October 2013 and September 2014. Introduction Korean Collaborating Centre Annual Report 2014 Kwangwoo Park, Sangsung Hur, Seonock Roh, Taehoon Kim Korea Health and Welfare Information Service(KHWIS), Seoul, Korea • The Korean government has been standardizing terminology, business and technology since 2004 for healthcare service improvement. Work involving terminology standardization in Korea was first presented at the 2006 WHO-FIC Annual Meeting in Tunis. The Korean government has been pursuing collaborative work with WHO-FIC since then. • The Korea Health and Welfare Information Service(KHWIS) has hosted and operated the Korean WHO-FIC Collaborating Center since December 2012. KHWIS is a health welfare organization working to improve healthcare and welfare informatization, via standardization, management of information systems, policy research, and more. • In order to carry out effective work by KCC, KHWIS has established collaborative relationships with government offices, such as the Ministry of Health and Welfare and Statistics Korea, as well as with medical and academic communities. It is now working to improve interoperability of domestic and international health information via the development and dissemination of WHO-FIC and the Korean health terminology Standard among others. 11-17 October 2014 Barcelona, Spain C207 Methods & Materials Acknowledgements or Notes Results  Cross-national collaboration system KCC has organized, and is managing, the Council for ‘Standardization of Healthcare Information’, a cross-national council for discussion among standardization specialists in the country. The council is comprised of 89 specialists in 10 different areas of healthcare, such as diagnosis and practice. Conclusions  Online standard platform Without temporal or spatial constraints, it facilitates standardization by supplying information regarding revision proposals and votes, as well as domestic and international standardization data.  Collaboration with WHO and ISO Besides collaboration with WHO, the KCC is actively working with the ISO. Alongside establishing international terminology standards via participating in the development of WHO’s ICD, ICF, ICHI and ICTM the KCC is collaborating with ISO/TC215(Technical Committee on health informatics within ISO) to work on international standardization in document formatting and technical fields.  ICD Supported by Korea’s advanced IT workforce, the ICD-11 multilingual support platform was developed to facilitate the translation of ICD terms in Asian countries. Using the platform, 3,701 ICD-11 cases have been adapted to Korean.  ICF Based on the latest version (including updates in 2014) of ICF, about 1,500 codes were adapted into Korean, and field tests were conducted for the clinical onsite application of ICF. Opinions of 151 clinician from 19 institutions were collected, mainly from university and rehabilitation hospitals. Clinical application cases connecting EMR information with ICF between orthopedics, neurosurgery, and rehabilitation departments were developed.  ICTM Following WHO’s plans to include the field of traditional medicine into WHO-FIC, the KCC is actively participating in the development of ICTM with China and Japan. In particular, the KCC developed guidelines for coding the beta version of ICTM and connection frequency analysis charts for ICTM-WHOIST, and produced sample videos for the field testing and submitted it to WHO.  ICHI Currently, a redefinition of health intervention classification is taking place in Korea, and, due to the interchangeability between this classification and ICHI, the three axes of ICHI(Target, Means, Action) were applied.  Korean terminology standardization With the development of IT, the healthcare service industry in Korea is increasingly interested in offering an information service that combines health data and IT. Healthcare terminology standard is the core element in the provision of such information services, KCC announced a national standard on September 2014. Approximately 180,000 terms from nine categories as well as 340 types of anatomy illustrations, can be used digitally in EMR and will be used as the basis for such technologies as EMR, EHR, PHR. While maximizing synergy by gathering all Korean healthcare information standardization activities in a single place, the KCC is also working as a mediator that can increase the interoperability of Korean standards with international ones. It will certainly act as a catalyst for the provision of high-quality healthcare services, such as EHR and PHR, for Korean citizens, and actively continue its work. We would like to thank the Ministry of Health and Welfare, Statistics Korea, the Health Insurance Review & Assessment Service, the Korean Medical Association, and related institutions and specialists. • Mental and behavioral disorders 1,483 • Diseases of ear and mastoid process 356 • Diseases of the musculoskeletal system and connective tissue 1,862
  • 21. WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2014 Annual Report from the Mexican Collaborating The Mexican Collaborating Center of the WHO-FIC (CEMECE) was designated in January 2008. As every year, the CEMECE has continued promoting the use of International Classifications in Health in Mexico and Latin America, in coordination with PAHO / WHO. These activities are so important to personal who works in the offices of statistics in all Region. This poster briefly describes the main work and the results. Introduction Centre (CEMECE), Jan 2013-Jan 2014 Title Abstract CEMECE has continued promoting the use of International Classifications in Health in Latin America, in coordination with PAHO / WHO through various projects, both training and design and implementation of training materials on the Classifications and filling death certificates by physicians. The most relevant training projects during 2013 were: 11-17 October 2014 Barcelona, Spain C208 Authors: Torres L., Jimenez A., Navarro A., Yañez M. Mexican WHO FIC Collaborative Center, Mexico (CEMECE) Title Methods & Materials Online course on ICD-10: During 2013 CEMECE concluded the ICD-10 training tool (2008 Edition), sponsored by the Ministry of Health of Mexico. Currently, the course is available on the Virtual Campus of Public Health of the Pan American Health Organization (PAHO/WHO). The course is open to all interested people in the follow web site: www.cursospaises.campusvirtualsp.org Also during 2013 the CEMECE translated updates to ICD-10 until 2012 and sent the translation to PAHO/ WHO for distribution to Latin America. The CEMECE sent comments to the Education and Implementation Committee (EIC) about the contents of the information sheets designed by this committee on important aspects about the family of classifications. During 2013, CEMECE sent information to WHO on the state that holds the implementation of each of the International Health Classifications within the country. For eleventh year CEMECE coordinated the intentional search and reclassification of Maternal Deaths in Mexico (BIRMM) in order to correct the misclassification and improve the quality of Maternal Deaths information. The Center attended the WHO FIC Network Annual Meeting in October in Beijing, China. The Center requested officially to be considered as the host country to the WHO FIC Network Annual Meeting in 2017. On the other hand, two CEMECE members attended the MRG and EIC midyear meetings from 17th to 25th April, hosted by PAHO/WHO (headquarters Washington D.C). Training course for trainers in the use of the ICF: With the technical support of PAHO / WHO in Mexico and PAHO/WHO Headquarters (Washington D.C), in May 20th to 31st CEMECE developed the second international training course of 80 hours, for ICF instructors. The course was held in Mexico City and was attended by physicians and another health professional from: Chile (National Centre of Reference), Colombia, Cuba, Ecuador (National Centre of Reference), El Salvador and Mexico. The ICF training tool (developed by the WHO FIC Network) was tested in the first phase of the course (virtual phase). In addition to the concepts, structure and how to use the ICF, a specific module about ICF instruments (WHO-DAS 2.0, ICF-Core Sets) and ICF implementation projects were included in the core curriculum. This strategy yielded observations to correct some editing problems identified by students and instructors in the ICF training tool, which were sent to PAHO / WHO. Training coders in ICD-10 and medical procedures of the ICD-9CM in Mexico: 20 courses on ICD-10 coding and medical procedures using ICD- 9-CM were given with 832 coders, medical and statistical staff in several states of Mexico. With the support of PAHO/WHO, CEMECE attended the meeting of Latin American and Caribbean Network for Strengthening Health Information Systems (RELACSIS) from 5th to February 7th, in Buenos Aires, Argentina, where the annual plan of the Network was agreed, including the following projects: 1) Development of a Regional ICD-10 e–learning training tool, based on two online courses: CEMECE’s ICD-10 course and the training module developed by the National Center for ICD from Argentina (CACE); 2) Online course on how fill out the death certificate for physicians, developed by Uruguay, Chile and México; 3) Dissemination and implementation of automated coding of causes of death adapted by the National Institute of Statistics and Geography (INEGI) from Mexico. Focused on eight Latin American countries. www.relacsis.org Conclusions As every year, the CEMECE keeps working in topics related with WHO-FIC. The most important activities have been: training and research and nowadays the important participation with different countries. More information: www.cemece.salud.gob.mx