20140521 orcid outreach_meeting_jlyle

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FAIRsharing is an informative and educational resource on interlinked standards, databases and policies, three key elements of the FAIR ecosystem. FAIRsharing is adopted by funders, publishers and communities across all research disciplines. It promotes the existence and value of these resources to aid data sharing and consequently requires a high standard of curation to ensure accurate and timely information is provided for all of our stakeholder groups. Here we discuss the methods employed and challenges faced during curation and maintenance of existing content as well as the introduction of new features. We will describe how our curation team uses a blend of manual and semi-automated curation to work on individual records and across large subsets of the registry. We also will discuss the benefits of both in-house curation and community-driven curation provided by our stakeholder groups.

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Talk at Bio IT World 2018 FAIR Data for Genomic Applications track. Implementation of the FAIR Data Principles is a crucial step for all organizations pursuing a (biomedical) data-driven strategy, both to improve the effectiveness of scientists and doctors as well as computerized aides and autonomous programs. This talk will provide a number of concrete examples of how various customers of The Hyve, including large pharma companies, biobanks and registries and national health data sharing initiatives, have employed data FAIRification strategies to improve the (re)usability of their healthcare and biology data, and of the open source software tools and standards that are used and being further developed for that purpose.

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MedInfo Lyon 2019: FAIR Health Data Sharing Initiatives in Europe: Opportunities and Challenges for international cooperation (Ulli Prokosch, Thomas Ganslandt, Ulrich Sax, Christian Lovis, Carlos Luis Parra Calderón, Peter Rijnbeek, Nigel Hughes, Wiro Niessen, Barend Mons, Kees Van Bochove) In the data-driven age of medical research many initiatives and projects focus on data linkage and functional integration as well as data reuse. Providing “FAIR data” is a common challenge for all of them. For this workshop leaders of six nation-wide and European initiatives/projects have joined in order to identify the major concepts, challenges and hurdles. This presentation was used to provide the business context of FAIR data in health data networks.

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Universities and postdoctoral affairs offices also have challenges of collecting meaningful data about the outcomes of their students and trainees. Early career researchers also face the challenge of not having their work discovered and recognized because of name ambiguity problems: common, changed, or misspelled names. Melanie Sinche, Harvard University From Webinar 4/23/14, https://orcid.org/content/identification-early-career-researchers-how-universities-and-funding-organizations-are-using

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ORCID iDs in Publication Rebecca Barr, Ingrid McNamara, Nature Publishing Group Learn about the process that NPG is using to integrate ORCID iDs in their publishing workflow. Hear about the challenges that they faced, and what they learned along the way. Also see the choices that they made in displaying ORCID iDs to authors and others. See related presentations: https://orcid.org/about/events/orcid-implementation-workshop-publishers-sept-19-2013

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Funding agencies, universities, and research institutes all face challenges of reliably identifying their researchers and monitoring outcomes over time. All researchers—and especially early career researchers seeking to establish their careers—need to be reliably connected to their research outputs, without the confusion common, changeable names creates. Graduate students and postdoctoral researchers supported by grants also have specific challenges: if they are not the PI, they are not included in grant information; they may not even know which grant(s) they are supported by; and as a result, the existing challenges of reliably tying publications to grant funding are even more problematic. The use of the unique, persistent ORCID identifier can help support outcomes tracking and evaluation. In 2012, the U.S. National Institutes of Health Biomedical Research Workforce Working Group made recommendations that the NIH should take to support a sustainable biomedical research workforce in the U.S. In the course of its study, working group members were “frustrated and sometimes stymied” by the lack of quality, comprehensive data about biomedical researchers. In response, NIH has recommended the development of a simple, comprehensive tracking system for trainees, implemented a shared, voluntary researcher profile system called the Science Experts Network Curriculum Vitae (SciENcv), and encouraged the adoption of unique, persistent ORCID identifiers for researchers. Additionally, NIH has begun collecting data about individuals in graduate and undergraduate student project roles who are supported by NIH grants. Research universities like Texas A&M are also responding by incorporating the ORCID identifier into their systems, enabling the improved identification, data collection, and career outcome tracking of students and postdoctoral researchers--and educating these early career researchers about the benefits they will receive from a unique, persistent research identifier. They are also beginning to link Electronic Theses and Dissertations (ETDs) to early career researchers' ORCID records. ORCID is an independent, non-profit organization that provides an open registry of unique and persistent identifiers for researchers and scholars. ORCID collaborates with the community to integrate ORCID identifiers into research systems and workflows, improving data management and accuracy across systems. ORCID enables interoperability between research systems worldwide, ensuring that researchers are correctly and automatically linked to their contributions. Since its launch in October 2012, ORCID has seen rapid adoption by more than 670,000 researchers and 130+ member organizations. From Webinar 4/23/14, https://orcid.org/content/identification-early-career-researchers-how-universities-and-funding-organizations-are-using

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