20150918 In control of my healthcare enterprise data using GEA v3

39In control of my healthcare enterprise data. GEA sessie 23 september 2015.
In control of my healthcare enterpise
DATA
Can we use GEA?
GEA sessie 23 september 2015

Agenda
 Visie op control van healthcare enterprise data
 GEA: Data als assets toegepast op 3 niveaus van
organisatie
 Roadmap

39
Summary of major trends
 From big data to big dating. Trust and collaboration
will link citizen, patient, professionals, institutes and
governments and their data
 Cloud services will create value in
municipal/regional eco-systems that are connected
to international market places
 The user (market) and it's value creation will drive
the eco-system (not the suppliers)
My vision: Data sharing will be the key with a long
term datarentmeester (custodian) principle instead
of ownership
In control of my healthcare enterprise data. GEA sessie 23 september 2015.

Big Data to Big
Dating requires
action &
cooperation
from 5
stakeholders

Old IT vs New Data Services
5
Old IT
(Product push)
New Data Service
(End-user need market pull)
Big Data
Value
Impossible data locked in application
silo's controlled by vendors and local
admins
Data independent and access/re-use controlled
by data collection governors. Data-mining and
sharing with peers/communities
Data
service
delivery
As IT implementation project that
stops after installation & training
As continuous process for new service delivery
and improvement
Data
services
catalogue
Not possible only application
'spaghetti'
Vendor neutral based on standard interfaces
and pay per use with Service Level Contracts
Software
Apps
Limited to one institute's IT support
resources
Unlimited driven by end-user (communities)
needs and delivered value
Data Locked in application silo's without
end-user governance/custodianship
Depending on vendor under client governor
control or locked in or even worse owned by
vendor (FaceBook)
IT-infra Limited to one institute's resources Private cloud. Pay per use flexible and scalable

Peter Walgemoed & Carelliance
Vision: Trust in Medical Communications Electronic (Data) (a)lliance. Founded in 2000.

39
(Gebrek aan) trust voor EPD
Landelijk Schakelpunt (LSP/Aorta)
Regionaal Schakelpunt (XDS)
Directe communicatie (XDR) en cloud services
Register
Register

39
Healthcare Data challenge

39
Carelliance Daterentmeester
Managed Service Concept
App
IT-infra
Data
Data Independence
Data met opslag media eigendom van
business/instelling met cloud
geoptimaliseerde data kopieën
Archival Information Package (Container)
Standaard
 Data Assets +
 Metadata
Managed service met datarentmeester SLA
 Governance & stewardship
 Privacy by design

39
Carelliance Data Service model

Data Value Creation
Data Assets
IT-infrastructure
> Power
Applications
>Processing
End User Value
>USE Data
Data Assets

MyCees
“Give me my damn data”
Shared Zorgcase decision making

Epatient Dave 3 years on
Give me my damn data
 e-Patient Dave blog. September 17, 2012 at 4:27 p
 Doctor's view: Patient’s will “know too much” about
their health/disease that they are not equipped to
deal with
 Epatient- Dave: It astounds me how many people in
the medical “arts” form opinions without evidence. It
reminds me of the old “expert based medicine” as
opposed to the more modern evidence-based
medicine.
http://www.epatientdave.com/2012/09/14/crowdsource-a-keynote-gimme-my-damn-data-three-years-on/
https://www.youtube.com/watch?v=iqJKTWYHf4s

Epatient Dave about Open Notes project
I can’t emphasize enough the importance of the
study’s design:
Evidence of patient engagement has constantly
been met with “My patients are different,” “My
patients are poorer,” “You guys are all urban
geeks,” “Your n is too small,” etc.
So this study is large (over a hundred docs and
nearly 20,000 patients), and in three very
different settings

Study Result
“99% of patients wanted open notes to continue
and no doctor elected to stop.”
Dr. Sands
“How can patients participate if they can’t see
what I see??”

Epatient Dave about Open Notes project
Extended to 1.000.000 patients!

Medical Dashboard Services
Patient Care professionals
Shared Case
Decision Making
Data
Smart Device
Data
Clinical Data
(CDR/EPD)
Patient Data
(PHR/PGD)
(Clinical)
Research and
Public Health
Data

39
Medical Dashboard already exist!
LUMC Nephrology example

39
Rotterdam Smart Data Haven positioning
Program Smart Region
assigns
Smart Data
Haven
Board
Program & Eco-system
Rotterdam Smart Data Haven
Cross Sector
Data Innovation
Cloud Services &
Smart City Development
Rotterdam
Citizen Value
Develops Smart Data
Strategy linking
Program
Den Haag Cybersecurity
Program
X
Coalition of the willing

39
Image
VNA
UNIVERSAL
VIEWER
Data Analytics Services
TEAM
COMM
Pseudo
DICOM
Image
DATA
TRUST
CaseID
Hospital
Push
Research
Data Analytics
Case Team
Eye
Analytics
Mammo
Analytics
X
Analytics
Genetic
DATA
Clinical
DATA
Genetic
Cloud
Clinical
DR
Open Data
GEO & Municpal
& Research
Data
Repositories
Analytics Apps
Open
DR
Open Data
API
Presentation & Communication Apps
DASH
BOARD
EUROPEAN
HIGH PERFORMANCE
STORAGE &
COMPUTE
FABRICPseudo
GenA
Pseudo
C-CDA
OAI
FAIR
Vendor Neutral Data Services

Waarom doen we dit niet in Nederland?

39
Stichting PAL

Kunnen we GEA toepassen op DATA?

39
How to make Enterprise Coherence explicit?
5 cohesive elements
5 cohesive elements
Level
of
Purpose
Level
of
Design

39
Elements of coherence on level of purpose
Mission
Vision
Core Values
Goals
Strategy
Fundamental purpose of the organisation,
enduringly pursued but never fulfilled
Concise, aspirational statement of how to be
perceived by the world in pursuing its mission
Soul of the organisation, prescribing the
desired behaviour, character and culture
Outcomes that represent the achievement of
the vision
Comprehensive master plan, stating how the
organisation will reach its goals

39
Elements of coherence on design level
Et cetera
Finance
Employees Customer
Org. governance
Chain cooperation
Services
Information provisionCulture
Processes
Perspective
Core concept
Core model
Guiding statement
• Principle
• Policy statement
• Objective
Relevant relationship
Mission
Vision
Core Values
Goals
Strategy

39
Ontwikkel integrale oplossingen
Et cetera
Finance
Employees Customer
Org. governance
Chain cooperation
Services
Information provisionCulture
Processes
Business
issue
Mission
Vision
Core Values
Goals
Strategy

39
Enterprise
level
Level of
Information provision
Level of
Technical infrastructure
Coherence between several layers by recursivity
(technical infrastructure)

39
Enterprise
level
Level of
(Information security)
Level of
Information security

39
Erasmus MC Enterprise Sophia Child Hospital Clinical Genetics Department
Data Assets
Coherence between concern level
and division levels by projection

Coherence between
several concerns and
their alliances by
projectionProcesses
Finance
Employees Burger,
Ondernemer,
Bezoeker
Governance
Chain
cooperation
Alliance
Information
provision
Culture
Smart
Services
Mission
Vision
Core Values
Goals
Strategy
Smart Data
Haven
Rotterdam

39
Enterprise
level
Level of
Level of
Data
Et cetera
Finance
Employees
Customer
Governance
Chain
cooperation
Services
Information
provision
Culture
Processes
Mission
Vision
Core Values
Goals
Strategy
Laws &
regulations
Finance
Employees Technical
infrastructure
Data
Governance
Standardization
Applications
Processes
Information
security
Mission
Vision
Core Values
Goals
Strategy
Etc.
Standards
Governance
board Repositories
Data
governance
Provide
data resources
ICT infrastructure
Applications
& information
services
Policies
Data
processes
Mission
Vision
Core Values
Goals
Strategy
(Data)

Coherence between several layers
by recursivity
Enterprise level
Level of
Level of
Data
Et cetera
Finance
Employees
Customer
Governance
Chain
cooperation
Services
Information
provision
Culture
Processes
Mission
Vision
Core Values
Goals
Strategy
Laws &
regulations
Finance
Employees Technical
infrastructure
Data
Governance
Standardization
Applications
Processes
Information
security
Mission
Vision
Core Values
Goals
Strategy
Etc.
Standards
Governance
board
Data
governance
Provide
data resources
ICT infrastructure
Policies
Data
processes
Mission
Vision
Core Values
Goals
Strategy
Applications
& information
services
Repositories
Repositories,
Policies
& procedures
ICT
infrastructure
Access
Control
Data production,
processing &
analysis
Data
datacollections
datasets
Data
Management &
stewardship
Data usage
Metadata
& datatransfer
Identity,
authorizition,&
security services
Data production
resources
Mission
Vision
Core Values
Goals
Strategy
Provide
computing
resources
Data validation
& transfer
Network
connections Provide
applications
Store &
archive data
Provide
data resources
Publishing &
sharing data
Encryption &
key management
Anonimization &
pseudonimization
& Security
Provide
IT infrastructure
Mission
Vision
Core Values
Goals
Strategy
Level of
Data governance
Level of
Applications & information services

GEA DATA advies: Gartner Magic Q
Abilitytoexecute
Completeness of vision

39
Toegevoegde waarde van GEA
• Mijn werkgebied = ‘data-rentmeesterschap’
• Ik kan kiezen hoe breed ik GEA toepas
• Instap-punt recursief niveau
• Ik kan zingeving van mijn werkgebied in beeld brengen – en
overdragen
• Ik kan makkelijker de synergie (of niet) met andere
organisaties verkennen en benutten
• Ik kan beter samenwerking tot stand brengen
• Ik kan (data) vraagstukken beter oplossen

Voor meer info contact:
peterwalgemoed@carelliance.com
@pwalgemoed

20150918 In control of my healthcare enterprise data using GEA v3

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20150918 In control of my healthcare enterprise data using GEA v3