Navigating Your Health Narrative and Activism
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The document summarizes a panel discussion on health blogging and activism featuring three panelists: Lisa Emrich, a blogger about her experience with multiple sclerosis and rheumatoid arthritis; Jenni Prokopy, founder of a website and forum for young women with chronic illnesses; and Amanda Dolan, an editor at WEGO Health who moderated the discussion. The panel covered topics such as developing an online voice, deciding what health information to share, promoting blogs and sites, blog structure, maintaining fresh content, dealing with difficult issues, and avoiding burnout.
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Navigating Your Health Narrative and Activism
- 2. Our Health Activist Panel Lisa Emrich Multiple Sclerosis Health Activist Blog: Brass and Ivory: Life with Multiple Sclerosis and Rheumatoid Arthritis Twitter: @LisaEmrich Lisa is a Health Activist for the MS and RA communities online. She blogs at Brass and Ivory, writes for HealthCentral, vlogs for How I Fight MS, and advocates for greater disease awareness, better educational tools, and stronger community support online. Lisa will tell the healthcare industry what they are doing right and where there is room for improvement…
- 3. Our Health Activist Panel Jenni Prokopy Fibromyalgia Health Activist Website: ChronicBabe Twitter: @ChronicBabe Jenni is founder and editrix of ChronicBabe.com, an online resource for young women with chronic illness - plus its accompanying forum with nearly 1,000 members. An award-winning writer, speaker, and expert on healthy living, she shares her personal experience - and rallies the expertise of hundreds of others - to help women live beyond their illness and be total Babes.
- 4. Our Health Activist Panel Amanda Dolan Panel Moderator, Editor at WEGO Health Blog: WEGO Health blog Twitter: @APDolan Amanda is the editorial lead of the WEGO Health Blog. Through her writing, she and fellow members of the WEGO Editorial staff work to fulfill WEGO Health’s mission to empower Health Activists to help others.
- 5. So You Have a Health Condition You Want to Talk About Online … NOW WHAT?! #wegowebinar
- 6. Developing, Sharing, and Maintaining Your “Voice” #wegowebinar
- 7. Disclosure: How Much Do You Tell? How Much Do You HAVE To Tell? #wegowebinar
- 8. Promotion in Motion: Getting the Word Out About Your Site! #wegowebinar
- 9. Structuring the Editorial: Information Architecture at its Finest! #wegowebinar
- 10. Keeping Content New, Fresh, Interesting … and Other Adjectives. #wegowebinar
- 11. Keeping the Conversations Positive, and Dealing with Tough Stuff #wegowebinar
- 12. Grappling with “Blogger Burnout” #wegowebinar
- 13. You Asked! We Answer! #wegowebinar
- 14. Thanks! @lisaemrich @chronicbabe @apdolan Continue the Conversation! @wegohealth blog.wegohealth.com Health Bloggers Group