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LHINs, Health Reform and HIV/AIDS Care


     Ontario Society of Physicians in HIV Care
               November 28, 2006

               Bob Gardner, PH.D.
               Director Public Policy
                Wellesley Institute



                 © The Wellesley Institute
                www.wellesleyinstitute.com
Wellesley Institute

• funds community-based research on the relationships
  between health and housing, poverty and income
  distribution, social exclusion and other social and
  economic inequalities
• provides workshops, training and other capacity building
  support to non-profit community groups
• works to identify and advance policy alternatives and
  solutions to pressing issues of urban health
• works in diverse collaborations and partnerships for
  progressive social change
• all of this is geared to addressing the pervasive impact of
  the social determinants of health

                        © The Wellesley Institute
                       www.wellesleyinstitute.com
Unique Hybrid

• lots of policy institutes and think tanks – but few focus on
  SDoH and urban health
• many provide training and capacity building – but not all
  have an explicit goal of rebuilding community capacity
  lost in funding cuts and constraints
• few focus on funding CBR or have an extensive
  community training programme in methods
• no other institute brings all three strands together – all
  focused on SDoH



                         © The Wellesley Institute
                        www.wellesleyinstitute.com
Local Health Integration
                                                             Networks
•   LHINs were seen to be a key part of the overall provincial ‘transformation
    agenda’ unveiled in the fall of 2004
•   Ontario is the last province to develop regional health authorities
•   14 LHINs will control the envelope of funds for regions and will establish
    planning for more integrated organization and delivery of health care
•   basic idea is that the incredibly complex health care system can best be
    planned and coordinated regionally rather than centrally
•   goals of integrated planning and care have a lot of potential, but only if the
    LHINs
     –   really are driven by community needs and priorities
     –   develop effective and responsive governance and community engagement
     –   build on existing networks
     –   foster innovation and then scale up what works across the system
     –   create a system that provides equitable access to a seamless continuum of care
         for all



                                   © The Wellesley Institute
                                  www.wellesleyinstitute.com
Some Critical Limitations


• the LHINs will operate within an overall provincial
  strategy – yet to be developed – and broad direction
  from the Ministry
• some vital elements of the system are not within the
  LHINs mandate:
   –   physicians
   –   primary care, except through CHCs
   –   public health
   –   provincial drugs programmes like ODB and Trillium
• and certain programmes designated as provincial such
  as HIV

                            © The Wellesley Institute
                           www.wellesleyinstitute.com
Outside LHINs’ Formal
                                   Mandates, But Connected

• HIV $ for community-based groups will still flow from the
  Ministry’s AIDS Bureau
• but this will need to be well linked to regional planning
  through the LHINs:
   – the AIDS Bureau and other provincial programmes will be
     moving into a new LHINs Liaison Office
   – at best, this highlights the need for consistent standards and
     provincial level strategy in key areas – and that these strategies
     need to be well coordinated into each LHIN
• the AIDS Bureau initiated community planning in regions
  across the province
   – the goal is that these planners will then work closely with the
     local LHINs to bring HIV/AIDS issue into LHIN planning

                            © The Wellesley Institute
                           www.wellesleyinstitute.com
Beyond Formal Mandates, LHINs
                                   Will Be Important To HIV/AIDS

•   the LHINs will be responsible for many of the institutional settings
    within which HIV care is provided:
     – the HIV clinics within hospitals are funded as part of their global budgets
       and these funds are to flow through the LHINs
     – Community Health Centres will also fall under the LHINs
•   secondly, the LHINs are a critical part of the rapidly changing
    strategic environment for health that will affect every sector:
     – most concretely, they are responsible for the hospitals, CHCs, other
       community providers, mental health, etc that PHAs (people living with
       HIV/AIDS) rely on beyond their primary and specialized HIV care
     – so providers – such as HIV docs and ASOs (AIDS service
       organizations)– will be drawn into referral and coordinating networks
       with the LHINs to support their clients
     – one theme I will emphasize is that it will be better to be proactive in
       defining what coordination and planning is needed from the point of
       view of PHAs and HIV providers, and that you are well positioned to
       take a lead in this

                                © The Wellesley Institute
                               www.wellesleyinstitute.com
LHINs: Uncertain Starts

•   working groups of providers, community representatives and other
    stakeholders worked on initial priorities in late 04, reporting in
    February 2005
•   slow to begin
     –   as Boards and CEOs chosen though spring and summer of 05
     –   no community input and not very diverse/representative
     –   some initial consultations through summer and fall
     –   fuller management teams by late 05
•   significant concerns:
     – uncertainty -- esp over future of smaller community-based service
       providers – would this be restructuring under another name?
     – boundaries – e.g. 5 in GTA, four are mixed urban and rural
     – would LHINs increase private provision of care as CCACs (Community
       Care Access Centres) had done?
     – would they really be representative and accountable to local
       communities?

                              © The Wellesley Institute
                             www.wellesleyinstitute.com
Good First Year

•   all the LHINs have undertaken extensive community consultations:
     – varied a great deal LHIN to LHIN
     – but far more comprehensive and intensive than ever before
     – 6,000 + people and 200 organizations participated in Toronto Central LHIN
•   LHINs undertook research to understand their local environment:
     – population health needs
     – surveying existing local networks and coordinating bodies
•   produced their first Integrated Health Service Plans in the fall – 3 year
    strategic plans
•   key next steps=
     – creating coordinating and planning structures to implement the IHSPs
     – funding will be flowing through the LHINs in fiscal 07-08 and extensive
       discussions are underway on funding frameworks
     – actual flow of $ will be phased
     – a critical part of implementation and funding will be setting up service
       accountability agreements with providers

                                   © The Wellesley Institute
                                  www.wellesleyinstitute.com
Example: Toronto Central
                                                          LHIN
•   IHSP identified major integrated care priorities – mental health,
    seniors, rehabilitation – and building solid foundations – human
    resources, e health, back office integration
•   its first planning assumption was to recognize the importance of
    broader social determinants of health
•   it highlighted other unique features of Toronto’s population:
     –   incredible diversity
     –   pervasive social and economic inequality
     –   concentrations of specific needs – such as HIV
     –   but also concentrations of research, specialized expertise, major
         hospitals and other institutions, community-based providers, and dense
         networks and collaborations to build on



                                © The Wellesley Institute
                               www.wellesleyinstitute.com
Challenges

•   building on a good start in community engagement
    – how to create structures and processes that will embed significant
      community participation in planning and priority setting from now on?
    – how to make boards and other planning bodies more representative?
    – so there is real consumer and local input to the inevitable trade-offs and
      complex priority setting to come
    – more specifically = how to make sure that HIV community is also part of
      this where necessary
•   ensuring community and consumer-driven standards get built into
    performance agreements with providers:
    – what are good standards of culturally competent care?
    – what would a continuum of care look like from consumer’s point of
      view?
    – what does good HIV care in hospitals look like?

                               © The Wellesley Institute
                              www.wellesleyinstitute.com
Challenges II

• how to build social determinants into action:
   – planning tables and facilitating wide collaborations beyond health
   – encouraging innovations in programming that build in SDoH –
     like CHCs
   – acting on SDoH is increasingly impt for HIV as the shape of
     epidemic changes and more marginalized communities face the
     harshest impact
• how to coordinate across LHINs
   – particular challenge in Toronto with 5 LHINs → need cross GTA
     planning table
   – and in areas like HIV/AIDS -- where people come from many
     other LHINs to get specialized care in Toronto

                           © The Wellesley Institute
                          www.wellesleyinstitute.com
Positioning HIV/AIDS Within
                                             Reform Priorities
•   the Province is driving a massive transformation of the overall
    system and is looking for innovation
     – where are the opportunities in this for the HIV movement generally and
       HIV docs specifically?
     – where and how might you get hooked into provincial or LHIN planning?
•   HIV service providers in general and docs and other health care
    providers more specifically are well positioned:
     – you have had a long history of providing care in the most difficult
       circumstances and for people with incredibly complex needs
     – similarly, a long history of pioneering collaborations within health care
       and beyond with community organizations
     – you’ve long led the way in on-the-ground innovation
•   will illustrate how you could position yourselves within a few key
    health reform issues and trends
                                 © The Wellesley Institute
                                www.wellesleyinstitute.com
Positioning II: Key Provincial
                                                     Strategies
•   mental health is top priority for the Province and for every LHIN:
     – HIV care providers have long emphasized the integral connection
       between treating the virus and its impact, and supporting the whole
       person, including mental health
     – have been many innovative care models in HIV and mental health
     – HIV/AIDS providers will want to get linked to mental health planning in
       your local LHINs
•   e health is also a major driver within Ministry strategy and within
    each LHIN:
     – given a defined population with complex needs → could this be an area
       for pilot projects or your hooking in as demonstration sites for wider e
       records or info management projects?
     – you could think bigger and push HIV docs as a pilot in innovative
       knowledge management:
         • HIV community has long history and solid infrastructure for translating
           research into practical knowledge – CATIE and others
         • pose your group as a distributed electronic network to exchange info and
           build up ‘best practices’

                                 © The Wellesley Institute
                                www.wellesleyinstitute.com
Positioning III: Wider
                                                              Planning
•   have been arguing that LHINs will need to develop collaborative and
    planning process beyond their health care sectors if they are to
    really address broader social determinants of health:
     – some of this will be quite practical planning – all LHINs are going to
       need to include public health and other providers beyond their mandate
       in their planning
     – ASOs and other service providers will likely want to be included at such
       broader planning tables as well
     – AIDS providers can argue that they have a long history of innovative
       and effective cross-sectoral collaboration
     – more specifically, you will likely want to ensure that HIV docs are
       involved in any linking of LHINs to primary care initiatives in their
       regions
•   there also needs to be cross-LHIN coordination:
     – the 5 GTA LHINs was mentioned earlier, and a critical area for such
       coordination is HIV/AIDS
                                © The Wellesley Institute
                               www.wellesleyinstitute.com
Positioning IV: Hot Reform
                                                                  Issues
•   wait times has been a huge issue in reform debates:
     –   focus on particular conditions or operations -- danger of this focus at expense of other areas
     –   are their areas where wait times for specialist care or tests are too long for HIV? → idea of
         pushing for pilots to apply lessons learned in other areas to HIV
     –   the advantage to be promoted is that HIV physicians and other providers are already well
         organized and connected
•   chronic care management is also seen as a critical component of overall reform and
    of LHIN strategies:
     –   HIV providers have been leaders in integrating medical and community-based care
     –   again → could position yourselves as pilot project of integrated chronic management of
         complex care needs
     –   probably easiest – and most strategic for you – to make this case in big city LHINs with major
         concentrations of PHAs and HIV care
•   alternative practice models:
     –   you have been discussing this here today
     –   can pose HIV docs and their practices as leaders of innovation that have long involved multi-
         disciplinary teams and connections to non-medical care
     –   could consider emerging models such as Community Family Health Teams




                                        © The Wellesley Institute
                                       www.wellesleyinstitute.com
Positioning V: New
                                                 Provincial Strategy


• finally, the Province is undertaking an ambitious plan to
  develop a new ten year health strategy:
   – all in HIV movement will want to ensure that HIV/AIDS is
     recognized as a priority within the new strategy
   – you can position yourselves as leaders in innovative community-
     grounded primary health care within these strategic discussions
   – you – more than any other physicians – can provide experience
     and insight in primary care, managing rapid change in both
     medical practice and client base, working in innovative
     collaborations, working with community groups, consumer-driven
     and empowered care, and many other crucial issues

                          © The Wellesley Institute
                         www.wellesleyinstitute.com

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LHINs, Health Reform and HIV/AIDS Care

  • 1. LHINs, Health Reform and HIV/AIDS Care Ontario Society of Physicians in HIV Care November 28, 2006 Bob Gardner, PH.D. Director Public Policy Wellesley Institute © The Wellesley Institute www.wellesleyinstitute.com
  • 2. Wellesley Institute • funds community-based research on the relationships between health and housing, poverty and income distribution, social exclusion and other social and economic inequalities • provides workshops, training and other capacity building support to non-profit community groups • works to identify and advance policy alternatives and solutions to pressing issues of urban health • works in diverse collaborations and partnerships for progressive social change • all of this is geared to addressing the pervasive impact of the social determinants of health © The Wellesley Institute www.wellesleyinstitute.com
  • 3. Unique Hybrid • lots of policy institutes and think tanks – but few focus on SDoH and urban health • many provide training and capacity building – but not all have an explicit goal of rebuilding community capacity lost in funding cuts and constraints • few focus on funding CBR or have an extensive community training programme in methods • no other institute brings all three strands together – all focused on SDoH © The Wellesley Institute www.wellesleyinstitute.com
  • 4. Local Health Integration Networks • LHINs were seen to be a key part of the overall provincial ‘transformation agenda’ unveiled in the fall of 2004 • Ontario is the last province to develop regional health authorities • 14 LHINs will control the envelope of funds for regions and will establish planning for more integrated organization and delivery of health care • basic idea is that the incredibly complex health care system can best be planned and coordinated regionally rather than centrally • goals of integrated planning and care have a lot of potential, but only if the LHINs – really are driven by community needs and priorities – develop effective and responsive governance and community engagement – build on existing networks – foster innovation and then scale up what works across the system – create a system that provides equitable access to a seamless continuum of care for all © The Wellesley Institute www.wellesleyinstitute.com
  • 5. Some Critical Limitations • the LHINs will operate within an overall provincial strategy – yet to be developed – and broad direction from the Ministry • some vital elements of the system are not within the LHINs mandate: – physicians – primary care, except through CHCs – public health – provincial drugs programmes like ODB and Trillium • and certain programmes designated as provincial such as HIV © The Wellesley Institute www.wellesleyinstitute.com
  • 6. Outside LHINs’ Formal Mandates, But Connected • HIV $ for community-based groups will still flow from the Ministry’s AIDS Bureau • but this will need to be well linked to regional planning through the LHINs: – the AIDS Bureau and other provincial programmes will be moving into a new LHINs Liaison Office – at best, this highlights the need for consistent standards and provincial level strategy in key areas – and that these strategies need to be well coordinated into each LHIN • the AIDS Bureau initiated community planning in regions across the province – the goal is that these planners will then work closely with the local LHINs to bring HIV/AIDS issue into LHIN planning © The Wellesley Institute www.wellesleyinstitute.com
  • 7. Beyond Formal Mandates, LHINs Will Be Important To HIV/AIDS • the LHINs will be responsible for many of the institutional settings within which HIV care is provided: – the HIV clinics within hospitals are funded as part of their global budgets and these funds are to flow through the LHINs – Community Health Centres will also fall under the LHINs • secondly, the LHINs are a critical part of the rapidly changing strategic environment for health that will affect every sector: – most concretely, they are responsible for the hospitals, CHCs, other community providers, mental health, etc that PHAs (people living with HIV/AIDS) rely on beyond their primary and specialized HIV care – so providers – such as HIV docs and ASOs (AIDS service organizations)– will be drawn into referral and coordinating networks with the LHINs to support their clients – one theme I will emphasize is that it will be better to be proactive in defining what coordination and planning is needed from the point of view of PHAs and HIV providers, and that you are well positioned to take a lead in this © The Wellesley Institute www.wellesleyinstitute.com
  • 8. LHINs: Uncertain Starts • working groups of providers, community representatives and other stakeholders worked on initial priorities in late 04, reporting in February 2005 • slow to begin – as Boards and CEOs chosen though spring and summer of 05 – no community input and not very diverse/representative – some initial consultations through summer and fall – fuller management teams by late 05 • significant concerns: – uncertainty -- esp over future of smaller community-based service providers – would this be restructuring under another name? – boundaries – e.g. 5 in GTA, four are mixed urban and rural – would LHINs increase private provision of care as CCACs (Community Care Access Centres) had done? – would they really be representative and accountable to local communities? © The Wellesley Institute www.wellesleyinstitute.com
  • 9. Good First Year • all the LHINs have undertaken extensive community consultations: – varied a great deal LHIN to LHIN – but far more comprehensive and intensive than ever before – 6,000 + people and 200 organizations participated in Toronto Central LHIN • LHINs undertook research to understand their local environment: – population health needs – surveying existing local networks and coordinating bodies • produced their first Integrated Health Service Plans in the fall – 3 year strategic plans • key next steps= – creating coordinating and planning structures to implement the IHSPs – funding will be flowing through the LHINs in fiscal 07-08 and extensive discussions are underway on funding frameworks – actual flow of $ will be phased – a critical part of implementation and funding will be setting up service accountability agreements with providers © The Wellesley Institute www.wellesleyinstitute.com
  • 10. Example: Toronto Central LHIN • IHSP identified major integrated care priorities – mental health, seniors, rehabilitation – and building solid foundations – human resources, e health, back office integration • its first planning assumption was to recognize the importance of broader social determinants of health • it highlighted other unique features of Toronto’s population: – incredible diversity – pervasive social and economic inequality – concentrations of specific needs – such as HIV – but also concentrations of research, specialized expertise, major hospitals and other institutions, community-based providers, and dense networks and collaborations to build on © The Wellesley Institute www.wellesleyinstitute.com
  • 11. Challenges • building on a good start in community engagement – how to create structures and processes that will embed significant community participation in planning and priority setting from now on? – how to make boards and other planning bodies more representative? – so there is real consumer and local input to the inevitable trade-offs and complex priority setting to come – more specifically = how to make sure that HIV community is also part of this where necessary • ensuring community and consumer-driven standards get built into performance agreements with providers: – what are good standards of culturally competent care? – what would a continuum of care look like from consumer’s point of view? – what does good HIV care in hospitals look like? © The Wellesley Institute www.wellesleyinstitute.com
  • 12. Challenges II • how to build social determinants into action: – planning tables and facilitating wide collaborations beyond health – encouraging innovations in programming that build in SDoH – like CHCs – acting on SDoH is increasingly impt for HIV as the shape of epidemic changes and more marginalized communities face the harshest impact • how to coordinate across LHINs – particular challenge in Toronto with 5 LHINs → need cross GTA planning table – and in areas like HIV/AIDS -- where people come from many other LHINs to get specialized care in Toronto © The Wellesley Institute www.wellesleyinstitute.com
  • 13. Positioning HIV/AIDS Within Reform Priorities • the Province is driving a massive transformation of the overall system and is looking for innovation – where are the opportunities in this for the HIV movement generally and HIV docs specifically? – where and how might you get hooked into provincial or LHIN planning? • HIV service providers in general and docs and other health care providers more specifically are well positioned: – you have had a long history of providing care in the most difficult circumstances and for people with incredibly complex needs – similarly, a long history of pioneering collaborations within health care and beyond with community organizations – you’ve long led the way in on-the-ground innovation • will illustrate how you could position yourselves within a few key health reform issues and trends © The Wellesley Institute www.wellesleyinstitute.com
  • 14. Positioning II: Key Provincial Strategies • mental health is top priority for the Province and for every LHIN: – HIV care providers have long emphasized the integral connection between treating the virus and its impact, and supporting the whole person, including mental health – have been many innovative care models in HIV and mental health – HIV/AIDS providers will want to get linked to mental health planning in your local LHINs • e health is also a major driver within Ministry strategy and within each LHIN: – given a defined population with complex needs → could this be an area for pilot projects or your hooking in as demonstration sites for wider e records or info management projects? – you could think bigger and push HIV docs as a pilot in innovative knowledge management: • HIV community has long history and solid infrastructure for translating research into practical knowledge – CATIE and others • pose your group as a distributed electronic network to exchange info and build up ‘best practices’ © The Wellesley Institute www.wellesleyinstitute.com
  • 15. Positioning III: Wider Planning • have been arguing that LHINs will need to develop collaborative and planning process beyond their health care sectors if they are to really address broader social determinants of health: – some of this will be quite practical planning – all LHINs are going to need to include public health and other providers beyond their mandate in their planning – ASOs and other service providers will likely want to be included at such broader planning tables as well – AIDS providers can argue that they have a long history of innovative and effective cross-sectoral collaboration – more specifically, you will likely want to ensure that HIV docs are involved in any linking of LHINs to primary care initiatives in their regions • there also needs to be cross-LHIN coordination: – the 5 GTA LHINs was mentioned earlier, and a critical area for such coordination is HIV/AIDS © The Wellesley Institute www.wellesleyinstitute.com
  • 16. Positioning IV: Hot Reform Issues • wait times has been a huge issue in reform debates: – focus on particular conditions or operations -- danger of this focus at expense of other areas – are their areas where wait times for specialist care or tests are too long for HIV? → idea of pushing for pilots to apply lessons learned in other areas to HIV – the advantage to be promoted is that HIV physicians and other providers are already well organized and connected • chronic care management is also seen as a critical component of overall reform and of LHIN strategies: – HIV providers have been leaders in integrating medical and community-based care – again → could position yourselves as pilot project of integrated chronic management of complex care needs – probably easiest – and most strategic for you – to make this case in big city LHINs with major concentrations of PHAs and HIV care • alternative practice models: – you have been discussing this here today – can pose HIV docs and their practices as leaders of innovation that have long involved multi- disciplinary teams and connections to non-medical care – could consider emerging models such as Community Family Health Teams © The Wellesley Institute www.wellesleyinstitute.com
  • 17. Positioning V: New Provincial Strategy • finally, the Province is undertaking an ambitious plan to develop a new ten year health strategy: – all in HIV movement will want to ensure that HIV/AIDS is recognized as a priority within the new strategy – you can position yourselves as leaders in innovative community- grounded primary health care within these strategic discussions – you – more than any other physicians – can provide experience and insight in primary care, managing rapid change in both medical practice and client base, working in innovative collaborations, working with community groups, consumer-driven and empowered care, and many other crucial issues © The Wellesley Institute www.wellesleyinstitute.com