A11ylondon the future is deaf
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Keynote presentation at A11y London unconference on 19th September. It illustrates some of the issues and highlights statistics and is a personal perspective on the future is deaf.
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A11ylondon the future is deaf
- 1. The Future is Deaf Alison Smith Disability meets Digital Alison Smith alison@peskypeople.co.uk www.peskypeople.co.uk
- 2. Some of the companies we have challenge around digital accessibility issues with success
- 3. Website | widget | API | Access symbols www.gogenie.org
- 4. UK Statistics: Disability the reality UK (2008) £269.9 Bn Disabled market (2008) £80 Bn Older people (2008) £97 Bn No of Disabled people by age (2008) Older people (2010) £100 Bn+ 0 75 150 225 300 Consumer spend (£billion) Source: Office for Disability Issues - 2012 Legacy for Disabled People: Inclusinve and Accessible Business http:// bit.ly/UGDKaN 77,000 7,000,000 5,000,000 Under 16 16-60 Over 60
- 5. Hearing loss Normal Hearing Mild Deafness 25-39DbDifficulty following Difficulty following Moderate Deafness 40-69Db Hearing Aids Rely a lot on lip Severe Deafness 70-94Db Sign BSL first language language Profound Deafness 95Db+
- 7. The Future is Deaf - we are invisible 70% of over 70s & 1 : 6 of the UK 1 : 10 UK adults 40s of over 50% have population have mild tinnitus some form of hearing loss 45,000 deaf children 800,000 experience severely / temporary hearing profoundly deaf loss 356,000 2m have hearing 1% have combined visual & aids only 1.4m use servere tinitus hearing impairment them regularly Source: Action on Hearing Loss
- 8. A Deafie’s digital life Paul Taylor closed develops TTY captioning [cc ] system / first Text The Jazz Singer first previewed relay system for 1980 Milan 1st *talkie* film US national 1880 deaf people set up first closed 1927 conf on TV captioned TV 1970s 1971 series (USA) 1971 TDD concept was 1876 1964 closed captioning [cc ] developed by James Bell acoustic coupler first previewed Marsters d 2009 invents US national conf on TV deaf dentist + private modem invented by telephone airplane Robert Weitbrecht, collected old deaf physicist 1992 teleprinter machines I received from Social Services 1960> my first amplified telephone, minicom, Mountcastle flashing light system fax machine
- 9. A Deafie’s digital life sent my first first job digital applicati hearing on by 1st aids email[inf NHS Nokia communicator Phonak[ o sent in digital my first iphone used skype for 2012 post on a hearing 9000 built in mincom ATW pay] disk] aids first time >>>> 2009 software 2000 2002 2005 ? 1996 2008 2000 Nokia bought 2012 Orticon communicator 9110i HTC programmed email / fax mobile bluetooth / with wireless to my email / mac Artone neck loop
- 10. 3.9m disabled adults Compared with 3.91 MILLION = 34% of ALL 1 : 10 people have disabled adults non-disabled people NEVER used the [10%] who have internet 1 : 3 people have never used the [up to June 2012] never used the internet internet Digital by Default The 3.9m represents Disabled people are 38% of adults 65 yrs less than 50% of the 3 times more likely + have never used 7.28m adults who to NEVER use the the internet. have never used the internet than non- That’s 2.12m people internet disabled people 2:5 Sources: Arbitrary Constant: http://bit.ly/TlFSXg @rich_watts | Office for National Statistics Internet Access Quarterly Update, 2012 Q2: http://bit.ly/PKXJBC
- 11. 6 June 2012 #subtitlesnow [UK] #CAPTIONthis [USA] 3,113 people were invited by 700 people to take part 13,024 read the posts 1,314 tweets sent reaching 50,836 twitter accounts
- 13. The Future is Deaf - we are invisible 1 : 10 UK adults 70% of over 70s & 1 : 6 of the UK have mild tinnitus 40s of over 50% have population some form of hearing loss 45,000 deaf children experience temporary hearing loss 800,000 severely / profoundly deaf 2m have hearing 1% have 356,000 aids only 1.4m use servere tinitus combined visual & them regularly hearing impairment 5% of TV programmes BSL interpreted 70,000 BSL users 80% subtitled 23,000 Deaf/Blind people 0% online accessible from broadcasters
Notes de l'éditeur
- Hi I’m Alison Smith and this presentation was the keynote at A11yLdn held at City University, London on 19th September 2012. \n\nA pdf friendly version can be viewed on my website [with these notes] at http://www.peskypeople.co.uk\n\nSome of the following slides are discussed regarding the stats are also discussed in detail in a presentation made at Digital Futures (Shropshire Council on 10th September 2012) http://www.slideshare.net/alisonvsmith/accessibility-digital-by-default-presentation-for-digital-futures-2012\n\nI’ve added extra links in the notes for references and sources of information. Check out #a11yldn tweets for all the comments from that day’s event.\nhttps://twitter.com/#!/search/?q=%23a11yLDN&src=hash\n\n
- Pesky People campaigns about digital discrimination through blogging and takes the issues up with companies direct.\n\nThe future is Not Orange: my first blog about being mis-sold a mobile phone from Orange store in Telford Shopping centre which included staff yelling at me. It didn’t work with my digital hearing aids. Radio Shropshire picked it up and I became the main news item on 12 news. Orange cancelled the contract.\n\nOne Call Car Insurance: cancelled a deaf woman’s car insurance bought online after she asked if they had an SMS system for breakdown (they didn’t). They reinstated the car insurance and set up national text messaging service for breakdown following the blog.\n\nIkea installed the induction loop mics at crutch level. That and screwing in the credit card machines resulted in them compensating the complainant with a £2,000 sofa.\n\nNational Digital Inclusion Conference NDI10: refused to book BSL interpreters only offering induction loops and a plantypist typing on a laptop. After a campaign on twitter they did a u-turn. They also agreed with my suggestion to put the BSL interpreters live on the live stream as well as the subtitles. Noone has done this since.\n\nHello Digital 2009: they forgot to book BSL interpreters when they confirmed they were booked. This brought Pesky People into the spotlight and discovered the power of twitter support.\n\nDoctor Who Experience: a visually impaired woman was offered itouch with subtitles on it amongst other issues. Her blog post got a swift response from BBC within 3 days. They put in place all her suggestions and invited her back for a visit. \n\nDWP: continues to be an issue with a Deaf woman complaining that they are still not giving her an email address to contact which is against their policies. Her latest complaint involves a manager making inappropriate comments and questioning the level of her deafness. \n
- Go Genie www.gogenie.org \n\nIt is our flagship project - people want the access information online easily and when you look it’s not only all over the place and hard to find but also with only 1% of websites being accessible how the heck are you able to find it?\n\nThe beauty of Go Genie is that anyone can add information and update it but also offers easy way to find the access information on any venue. \n\nIt relies on crowdsourcing so anyone can add the data, offers short cut links to contact a council, museum, pub and so on. It also allows you to add reviews and videos. \n\nThe research was funded by Arts Council England and the pilot build funded by NESTA. We also won funding from NOKIA to build a mobile app.\n\nWe did 4 days of user experience research with 40 disabled and deaf people and they gave us over 150 different access issues which we want to use to develop it further.\n\nIt’s in beta stage and needs some more work to complete it.\n
- You need to understand both statistics and the issues of digital discrimination. The solutions you will find by working with the very people who are excluded.\n\nThe stats speak for themselves. We are an economic force not to be ignored with a combined market was worth £100billion in 2010. If you look at it from an employment point of view there were 7 million disabled people of working age in 2008. It has been hard to find up to date statistics on this one so if anyone can signpost me that would be great!\n\nBear in mind of that £100billion 1/4 of business is lost to inaccessible websites and services e.g. buildings and customer service.\n\nDeaf people make up 10 million who are deaf and hard of hearing. 70,000 are BSL users.\n
- This slide and the next one is to illustrate the different levels of deafness. Especially as deafness is very much invisible.\n
- This slide illustrates visually what hearing loss means in every day life. If 0 is normal hearing then anything underneath that is lower than the sounds means that person cannot hear. So for example mine is high frequency hearing loss which means I cannot hear water dripping, alarm clocks ringing but I can hear buses. \n
- Going onto the issue of hearing loss.\n\n10 million people have a hearing loss according. Of that 70% are over 70 and those in their in their 40s over 50% have some hearing loss. It’s a big issue that is not addressed with the trend towards video on demand content and the popularity of video content.\n
- This is my timeline. I will have missed landmarks in this but it is to illustrate where technology has developed but then where we are behind from a deaf perspective.\n\n1876 Alexandra Graham Bell invented the telephone http://en.wikipedia.org/wiki/Alexander_Graham_Bell. Bell’s wife Mabel Hubbard http://en.wikipedia.org/wiki/Mabel_Gardiner_Hubbard (and his mother) were both deaf.\n\nBell was one of those who voted in favour of oral education of deaf people and the banning of sign language. http://en.wikipedia.org/wiki/Second_International_Congress_on_Education_of_the_Deaf\n\nFor me personally 1992 was the first time I received an amplified telephone, minicom and the mountcastle flashing light system is connected to the electricity and the lights went off when the door/telephone went off. The first system was bit dangerous as you’d be plunged into darkness. The later system dimmed the lights (which was a relief.\n\n\n
- My digital life can be landmarked by the mobile communications and their developments.\n\nIn 1996 I got my first mobile - the Nokia Communicator 9000 had built in minicom software. It would die of battery power after you made one phone call. The next one Nokia Communicator 9110 you could also send fax, emails text easily etc. Everyone I knew who was deaf had one. (Could say it was the forerunner to the iphone!).\n\nI got my first digital hearing aids in 2000 Access to Work paid for them as they were not available on the NHS. Bearing in mind the frequency used for mobile phones interfered greatly with analogue hearing aids - they would cut them out and create interference like huge buzzing noises. The government knew this but did nothing about the issue. The RNID (Action on Hearing Loss) took the governement to court. That resulted in digital hearing aids being available on the NHS.\n\nThis year for first time I have wireless hearing aids. That is they operate together so if I change the setting on one the other reacts. They are also programmed to work with a receiver (neck loop) that then connects to my iphone and mac via bluetooth. \n\nAs for 2012 onwards what does the future hold?\n
- More stats - this is the latest from Office for National Statistics. The government the *digital by default* you need to understand both statistics and the issues of digital discrimination. The solutions you will find by working with the very people who are excluded.\n\nThe Office for National Statistics Internet Access Quarterly Update just released and these stats are taken from a blog post by Rich Watts and ONS\nArbitrary Constant: http://bit.ly/TlFSXg @rich_watts | Office for National Statistics Internet Access Quarterly Update, 2012 Q2: http://bit.ly/PKXJBC\n\n* 3.9million people have never used the internet\nof that 3.9m that’s 34% of ALL disabled adults. That’s 1 : 3\n* Non disabled people the figures are 1 : 10 that have never used the internet.\n* 38% of adults over 65 have never used the internet - that’s 2.12million people 2: 5 of the population.\n\nShockingly even with all the will in the world the reality is even with the government’s target 80% of those applying for Universal Credit only 17% of those in receipt of Jobseekers allowance apply online. Call Centres can be added barriers with both the cost of 0845 numbers from landlines and mobiles prohibitive and they will be encouraging people to go online to complete the forms.\n\nWhere does that leave people who have no way of getting online? \n\n
- On 6th June we joined forces with #captionthis campaign in the US.\n\nI set up subtitlesnow campaign because the BBC and Arts Council website The Space was deemed an experiment and they refused to make it accessible (no videos have subtitles unless they are by disabled artists).\n\nThe result was setting up a facebook group, blogging and tweeting and on 6th June it really had an impact.\n\nUnfortunately in the UK not ONE broadcaster bothered to respond to improve the provision of subtitles despite 363 tweets, 700 people joining on facebook.\n\nWatch the caption this videos:\nhttp://www.youtube.com/watch?v=0MM2Bwkt82k&feature=youtu.be\nhttp://www.youtube.com/watch?v=EgSrZ-s3MTY&feature=youtu.be\nhttp://www.youtube.com/watch?v=qiP_8gJCNQE\n\n\n
- This is a snapshot of the subtitlesnow scraperwiki set up by Paul Bradshaw - he is a journalist, author, lecturer and founder of Help Me Investigate website.\n\nhttps://scraperwiki.com/scrapers/subtitlesnow_twitter/\n
- Back to those statistics. The increase in visual content online with live streaming of events, the Olympics and Paralympics. The choices of where to watch and when you watch it is immense. I’m stuck with the TV cos none of the online content is accessible. Even NO 10 doesn’t bother to subtitle their interviews, press releases or broadcasts.\n\nThe last two slides illustrate how having automated captions using you tube is unreliable. Open source software like universal subtitles (now called Amara) is one answer. http://www.universalsubtitles.com\n\nTHE FUTURE IS DEAF I imagine a world where we will be wearing glasses with subtitles in front of us, where audiology tests won’t involve pressing a button and knowing when the sound is being made because we can see the audiologist turn on the switch but have the technology embedded in our ears.\n\nThe world wants to make us hearing. Give deaf people a voice and make us visible.\n\n