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Substance
Misuse:
Social
impact of
substance
dependency
An exploration of
substance misuse with
people with Learning
Disabilities.
Title



Substance Misuse: Social impact of substance dependency: An

exploration of substance misuse with people with Learning

Disabilities within the United Kingdom.




                                  i.
Contents                                                    Page

Title                                                        i.

Table of Contents                                            ii.

Abstract                                                     iii.

Introduction                                                  1

Methodology                                                  1,2

Main text                                                 2,3,4,5,6

Conformity and group                                        2,3

Does having a learning disability increase an

individual's vulnerability to misuse substances?           3.4.5

Service provision for people with Learning disabilities

who have substance use issues.

Cost                                                        5,6

Conclusions                                                  6

Recommendations                                              7

Areas for suggested personal development                     7

Bibliography                                              8,9,10,11

Apendix                                                    12 a,b




                                  ii.
Abstract



People with learning disabilities have historically been supported

under the auspices of medical services including long stay specialist

hospitals. Government legislation is advocating people with learning

disabilities have greater social inclusion living in the wider

community. People with learning disabilities can have difficulties

with social rules and interpersonal relationships and can lack the

skills and ability to function within socially acceptable norms.

Evidence suggests that many people with learning disabilities misuse

substances to support their perceived social inclusion and

acceptance. Services available to enable people with learning

disabilities to address their substance misuse are inept in their

service provision.




                                   iii.
Introduction


The aim of this report is to consider the predisposition that people

with learning disabilities may have in relation to substance misuse.



The use of the words ‘learning disability is synonymous with the

terms ‘Mental Handicap’ and ‘Severe Mental Impairment’ that has

been used in Europe. ‘Learning disability’ is used in the UK and as

such this term will be used within this report. Valuing People (2001)



There are numerous substances that can be misused and have

holistic psychological, sociological impact on the individual and the

immediate and wider community. These include illicit, prescription

and more socially acceptable substances such as alcohol and tobacco

and caffeine.



Methodology



The primary intention of this report is to depict the characteristics

of people with Learning disabilities who misuse substances, and the

sociological effects of such misuse, The use of pre-existing

Qualitative, Quantitative and Epidemiological research contained

within journals; published literature; a historical approach would be

                                   1
more advantageous in meeting these aims considering the time

constraints imposed on this report and the diverse learning disability

population.



Main Text


Conformity and group

Historically people with learning disabilities have been segregated

from the wider community. Current government legislation is

advocating changes striving for the empowerment and social inclusion

across all of society for people within the labelled group of having a

learning disability. (Valuing people 2001, Same as You, 2001) (See

appendix 1). The need for social acceptance, interpersonal

relationships is imperative within social construct.



People with learning disabilities have increased social barriers and

issues with conforming to perceived group social influence and

acceptable norms. Asch (1956). Milgram’s (1974) research into

obedience to authority showed that all people are sensitive to

pressures of social influence. As people with learning disabilities are

living within the community they may be exposed to increased social

and expectation factors that could increase the misuse of



                                   2
substances such as alcohol, tobacco and illicit substances to support

their coping ability. The use of substances may be perceived as

supporting social acceptance within their peer group. (Moore &

Polsgrove, 1991, Gress & Boss, 1996, Clarke & Wilson, 1999, Sturmey

et al., 2003).


Within the construct of social care support networks is the power

struggle and the perceived expectation of a duty to care implying

that it is the role of support staff and circles of support to ensure

that the person with a learning disability environmental options are

safe. Restricting individuals access to the wider community and by

that construct restricting the opportunity to substances they may

abuse. Valuing people Now (2007).



Does having a learning disability increase an individual's vulnerability

to misuse substances?



The need for social acceptance, interpersonal relationships is

imperative within social construct. People with learning disabilities

have increased social barriers and issues with conforming to

perceived group social influence and acceptable norms. Asch (1956).



Valuing People (2001) a Department of Health white paper estimated

                                   3
that there are around 210,000 people with profound, severe learning

disabilities within the United Kingdom: consisting of 120,000 people

within working ages and 25,000 within retirement. The numbers of

people with learning disabilities living within the community is

increasing experientially as specialist hospitals are being closed. Our

health our care our say (2006).



Vulnerable people such as people with learning disabilities are twice

as likely to use substances to that of their comparative peer group.

(Brown et al, 2000) (Hymowitz et al, 1997) People with learning

disabilities who use tobacco are also more likely than people who do

not smoke to use illicit substances and drink alcohol. Cosden; Silver

(1999) concluded following studies that people in substance misuse

treatment programs are more likely to have learning disabilities than

the proportionate population. Silver (1999) presented findings that

this percentage could be as high as 60%.



Much of the data that exist on learning disabilities and substance

abuse comes from retrospective studies in which respondents are

requested to remember things that happened earlier. Problems may

arise when the individual also has a learning disability and may not

have the cognitive ability to enable the recollection of accurate



                                        4
information to facilitate retrospective data collection. Moore &

Polsgrove, (1991).



Service provision for people with Learning disabilities who have

substance use issues.



Mainstream services for substance misuse and bespoke services for

people with learning disabilities pre-port to not have the ability to

appropriately support individuals with a learning disability. Lottman,

(1993). Many people subsequently do not receive appropriate

support Lance and Longo (1997). Individuals with learning

disabilities are more likely to have inadequate health care. Our

health our care our say (2006).



Cost



Cessation interventions consistently are the highest cost outlay for

the NHS in relation to the direct treatment of people needing

support addressing the physically consequences from their

substance misuse. Lancaster et al (2000). Over a 12 year period a

half of deaths of vulnerable people receiving cessation support were

attributed to substance misuse. Hurt (1996). People with learning

disabilities however evidentially are excluded from the

                                   5
cessation programmes. Lawn et al., (2002)



Conclusions



The need for social acceptance increases the likelihood that

individuals with learning disabilities under increased social pressures

of living within the wider community experientially expand their

vulnerability to the misuse of substances to facilitate coping

strategies and perceived acceptance.



With the lack of bespoke services to enable people with learning

disabilities to identify their substance misuse were do people with a

reduced level of cognitive ability receive the support they may

require to enable them to address their substance misuse.



If there is continued development of social inclusion for people with

learning disabilities and the population increases within the wider

community as services such as specialist hospitals close without the

support network to enable the development of bespoke services then

it is comparable to consider that the numbers of people with

learning disabilities misusing substances will increase and

subsequently the cost to the NHS is likely to also increase.



                                   6
Recommendations



Identify people with learning disabilities as early as possible.

Support them holistically enabling their ability to develop their

social skill and personal development. By doing so, we may reduce

the likelihood that they will suffer lower self-esteem, social

difficulties that may contribute to the possibility of substance

misuse.


Bespoke services to support people with learning disabilities to

support services to develop appropriate skills as identified.



Areas for suggested future personal development



The process of this report has offered continued personal and

professional development. The ability to be able to formulate and

research a report has enabled the opportunity to consider areas of

social psychology that I had not previously considered. It will

support my continued professional development as a Case advocate

working with people with mental health problems and learning

disabilities. This opportunity continues to highlight the need for a

personal centred holistic approach within social care.



                                   7
Bibliography



Asch, S. E. (1956), ‘Studies of independence and conformity: a

minority of one against a unanimous majority’, Psychological

Monographs, 70.


Brown, S. A., Tapert, S. F., Granholm, E., & Delis, D. C. (2000).

Neurocognitive functioning of adolescents: Effects of protracted

alcohol use. Alcoholism, Clinical and Experimental Research, 24(2),

164-171.



Clarke, J. J. & Wilson, D. N. (1999): Alcohol problems and intellectual

disability.

Journal of Intellectual Disability Research, Vol. 43, 135-139.



Cosden, M. (1999). Substance abuse and learning disabilities:

Theories and findings. Paper presented at the CASA-NCLD
Conference on Substance Abuse and Learning Disabilities, New York,

NY




                                   8
Gress, J. R. & Boss, M. S. (1996): Substance abuse differences

among students receiving special education school services. Child

Psychiatry and Human Development, Vol. 26, 235-246.



Hurt, RD. Offord, KP. Croghan, IT. Et al. (1996) Mortality following

inpatient addictions treatment: role of tobacco use in a community-

based cohort. JAMA 275(14):1097-1103.



Lancaster, T. Stead, L. Silagy, C. Sowden, A. (2000) effectiveness

of Interventions to help people stop smoking: findings from the

Cochrane Library.nBritish Medical Journal. 321 Aug. 355-7



Lance P, Longo M D (1997). Mental health aspects of developmental

disabilities. The Habilitative Mental Healthcare Newsletter, Vol. 16

(4), 61-64.



Lawn, S.J. Pols, R.G. Barber, J.G. (2002). Smoking and Quitting: a

qualitative study with community-living psychiatric clients. Social

Science & Medicine. 54(1):93-104.




                                  9
Lottman, T. (1993): Access to generic substance abuse services for

persons with mental retardation. Journal of Alcohol and Drug

Education, Vol. 39, 41-55.



Milgram, S. (1974), Obedience to Authority; An Experimental View



Moore, D., & Polsgrove, L. (1991). Disabilities, developmental

handicaps, and substance misuse: A review. International Journal of

the Addictions, 26(1), 65-90.


Department of Health (2007) Our Health our Care our Say .London:

Crown.


Department of Health (2001) Same as You, London: Crown.



Sturmey, P., Reyer, H., Lee, R. & Robek, A. (2003): Substance related

disorders in persons with mental retardation. NADD: Kingston, NY.




                                  10
Silver, L. B. (1999). Learning disabilities and attention deficit

hyperactivity disorder: They don't stand alone. Paper presented at
the CASA-NCLD Conference on Substance Abuse and

Learning Disabilities, New York, NY.



Department of Health (2001) Valuing People. London: Crown.



Department of Health (2007) Valuing People Now. London: Crown.




                                   11
Appendix




.
           12

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  • 1. Substance Misuse: Social impact of substance dependency An exploration of substance misuse with people with Learning Disabilities.
  • 2. Title Substance Misuse: Social impact of substance dependency: An exploration of substance misuse with people with Learning Disabilities within the United Kingdom. i.
  • 3. Contents Page Title i. Table of Contents ii. Abstract iii. Introduction 1 Methodology 1,2 Main text 2,3,4,5,6 Conformity and group 2,3 Does having a learning disability increase an individual's vulnerability to misuse substances? 3.4.5 Service provision for people with Learning disabilities who have substance use issues. Cost 5,6 Conclusions 6 Recommendations 7 Areas for suggested personal development 7 Bibliography 8,9,10,11 Apendix 12 a,b ii.
  • 4. Abstract People with learning disabilities have historically been supported under the auspices of medical services including long stay specialist hospitals. Government legislation is advocating people with learning disabilities have greater social inclusion living in the wider community. People with learning disabilities can have difficulties with social rules and interpersonal relationships and can lack the skills and ability to function within socially acceptable norms. Evidence suggests that many people with learning disabilities misuse substances to support their perceived social inclusion and acceptance. Services available to enable people with learning disabilities to address their substance misuse are inept in their service provision. iii.
  • 5. Introduction The aim of this report is to consider the predisposition that people with learning disabilities may have in relation to substance misuse. The use of the words ‘learning disability is synonymous with the terms ‘Mental Handicap’ and ‘Severe Mental Impairment’ that has been used in Europe. ‘Learning disability’ is used in the UK and as such this term will be used within this report. Valuing People (2001) There are numerous substances that can be misused and have holistic psychological, sociological impact on the individual and the immediate and wider community. These include illicit, prescription and more socially acceptable substances such as alcohol and tobacco and caffeine. Methodology The primary intention of this report is to depict the characteristics of people with Learning disabilities who misuse substances, and the sociological effects of such misuse, The use of pre-existing Qualitative, Quantitative and Epidemiological research contained within journals; published literature; a historical approach would be 1
  • 6. more advantageous in meeting these aims considering the time constraints imposed on this report and the diverse learning disability population. Main Text Conformity and group Historically people with learning disabilities have been segregated from the wider community. Current government legislation is advocating changes striving for the empowerment and social inclusion across all of society for people within the labelled group of having a learning disability. (Valuing people 2001, Same as You, 2001) (See appendix 1). The need for social acceptance, interpersonal relationships is imperative within social construct. People with learning disabilities have increased social barriers and issues with conforming to perceived group social influence and acceptable norms. Asch (1956). Milgram’s (1974) research into obedience to authority showed that all people are sensitive to pressures of social influence. As people with learning disabilities are living within the community they may be exposed to increased social and expectation factors that could increase the misuse of 2
  • 7. substances such as alcohol, tobacco and illicit substances to support their coping ability. The use of substances may be perceived as supporting social acceptance within their peer group. (Moore & Polsgrove, 1991, Gress & Boss, 1996, Clarke & Wilson, 1999, Sturmey et al., 2003). Within the construct of social care support networks is the power struggle and the perceived expectation of a duty to care implying that it is the role of support staff and circles of support to ensure that the person with a learning disability environmental options are safe. Restricting individuals access to the wider community and by that construct restricting the opportunity to substances they may abuse. Valuing people Now (2007). Does having a learning disability increase an individual's vulnerability to misuse substances? The need for social acceptance, interpersonal relationships is imperative within social construct. People with learning disabilities have increased social barriers and issues with conforming to perceived group social influence and acceptable norms. Asch (1956). Valuing People (2001) a Department of Health white paper estimated 3
  • 8. that there are around 210,000 people with profound, severe learning disabilities within the United Kingdom: consisting of 120,000 people within working ages and 25,000 within retirement. The numbers of people with learning disabilities living within the community is increasing experientially as specialist hospitals are being closed. Our health our care our say (2006). Vulnerable people such as people with learning disabilities are twice as likely to use substances to that of their comparative peer group. (Brown et al, 2000) (Hymowitz et al, 1997) People with learning disabilities who use tobacco are also more likely than people who do not smoke to use illicit substances and drink alcohol. Cosden; Silver (1999) concluded following studies that people in substance misuse treatment programs are more likely to have learning disabilities than the proportionate population. Silver (1999) presented findings that this percentage could be as high as 60%. Much of the data that exist on learning disabilities and substance abuse comes from retrospective studies in which respondents are requested to remember things that happened earlier. Problems may arise when the individual also has a learning disability and may not have the cognitive ability to enable the recollection of accurate 4
  • 9. information to facilitate retrospective data collection. Moore & Polsgrove, (1991). Service provision for people with Learning disabilities who have substance use issues. Mainstream services for substance misuse and bespoke services for people with learning disabilities pre-port to not have the ability to appropriately support individuals with a learning disability. Lottman, (1993). Many people subsequently do not receive appropriate support Lance and Longo (1997). Individuals with learning disabilities are more likely to have inadequate health care. Our health our care our say (2006). Cost Cessation interventions consistently are the highest cost outlay for the NHS in relation to the direct treatment of people needing support addressing the physically consequences from their substance misuse. Lancaster et al (2000). Over a 12 year period a half of deaths of vulnerable people receiving cessation support were attributed to substance misuse. Hurt (1996). People with learning disabilities however evidentially are excluded from the 5
  • 10. cessation programmes. Lawn et al., (2002) Conclusions The need for social acceptance increases the likelihood that individuals with learning disabilities under increased social pressures of living within the wider community experientially expand their vulnerability to the misuse of substances to facilitate coping strategies and perceived acceptance. With the lack of bespoke services to enable people with learning disabilities to identify their substance misuse were do people with a reduced level of cognitive ability receive the support they may require to enable them to address their substance misuse. If there is continued development of social inclusion for people with learning disabilities and the population increases within the wider community as services such as specialist hospitals close without the support network to enable the development of bespoke services then it is comparable to consider that the numbers of people with learning disabilities misusing substances will increase and subsequently the cost to the NHS is likely to also increase. 6
  • 11. Recommendations Identify people with learning disabilities as early as possible. Support them holistically enabling their ability to develop their social skill and personal development. By doing so, we may reduce the likelihood that they will suffer lower self-esteem, social difficulties that may contribute to the possibility of substance misuse. Bespoke services to support people with learning disabilities to support services to develop appropriate skills as identified. Areas for suggested future personal development The process of this report has offered continued personal and professional development. The ability to be able to formulate and research a report has enabled the opportunity to consider areas of social psychology that I had not previously considered. It will support my continued professional development as a Case advocate working with people with mental health problems and learning disabilities. This opportunity continues to highlight the need for a personal centred holistic approach within social care. 7
  • 12. Bibliography Asch, S. E. (1956), ‘Studies of independence and conformity: a minority of one against a unanimous majority’, Psychological Monographs, 70. Brown, S. A., Tapert, S. F., Granholm, E., & Delis, D. C. (2000). Neurocognitive functioning of adolescents: Effects of protracted alcohol use. Alcoholism, Clinical and Experimental Research, 24(2), 164-171. Clarke, J. J. & Wilson, D. N. (1999): Alcohol problems and intellectual disability. Journal of Intellectual Disability Research, Vol. 43, 135-139. Cosden, M. (1999). Substance abuse and learning disabilities: Theories and findings. Paper presented at the CASA-NCLD Conference on Substance Abuse and Learning Disabilities, New York, NY 8
  • 13. Gress, J. R. & Boss, M. S. (1996): Substance abuse differences among students receiving special education school services. Child Psychiatry and Human Development, Vol. 26, 235-246. Hurt, RD. Offord, KP. Croghan, IT. Et al. (1996) Mortality following inpatient addictions treatment: role of tobacco use in a community- based cohort. JAMA 275(14):1097-1103. Lancaster, T. Stead, L. Silagy, C. Sowden, A. (2000) effectiveness of Interventions to help people stop smoking: findings from the Cochrane Library.nBritish Medical Journal. 321 Aug. 355-7 Lance P, Longo M D (1997). Mental health aspects of developmental disabilities. The Habilitative Mental Healthcare Newsletter, Vol. 16 (4), 61-64. Lawn, S.J. Pols, R.G. Barber, J.G. (2002). Smoking and Quitting: a qualitative study with community-living psychiatric clients. Social Science & Medicine. 54(1):93-104. 9
  • 14. Lottman, T. (1993): Access to generic substance abuse services for persons with mental retardation. Journal of Alcohol and Drug Education, Vol. 39, 41-55. Milgram, S. (1974), Obedience to Authority; An Experimental View Moore, D., & Polsgrove, L. (1991). Disabilities, developmental handicaps, and substance misuse: A review. International Journal of the Addictions, 26(1), 65-90. Department of Health (2007) Our Health our Care our Say .London: Crown. Department of Health (2001) Same as You, London: Crown. Sturmey, P., Reyer, H., Lee, R. & Robek, A. (2003): Substance related disorders in persons with mental retardation. NADD: Kingston, NY. 10
  • 15. Silver, L. B. (1999). Learning disabilities and attention deficit hyperactivity disorder: They don't stand alone. Paper presented at the CASA-NCLD Conference on Substance Abuse and Learning Disabilities, New York, NY. Department of Health (2001) Valuing People. London: Crown. Department of Health (2007) Valuing People Now. London: Crown. 11