3. Objec.ves
Review Neural Tube Defects (NTD’s)
Review medical impact of NTD’s in adolescence
“The most complex congenital malformation
compatible with life.” G. Liptak, MD
Review medical issues
Review psychosocial issues at adolescence
Discuss considerations with family planning
8. Neurosurgical Issues
Hydrocephalus
2 peaks to malfunction (infancy and adolescence)
Signs of shunt malfunction may be insidious
Tethered cord syndrome
Progressive damage to spinal cord which is immobilized
Initial release versus repeat releases
Headaches common
Unknown (35%)*
Shunt blockage (25%)
9. Bladder & Bowel
Urologic: Bowel
Tethered cord changes DIET!
Bladder irritability Medication
Surgical follow up
Increased risk for
bladder cancer
23. Conclusion
NTD’s with life long complications
Education needed
Avoid disenfranchising
Protect and maintain optimal health
Approach Folic Acid from prevention and minimizing of
morbidity
24. Holland Bloorview SB/SCI Team
Coordinator Social Work
Novlette Douglas Gert Montgomery
Nursing Psychology
Elaine Mckay Andrea Snider
Julia L’Abbe Orthopedics
Carolyn Wilson Jim Wright, MD
Occupational Therapy Urology staff
Beth Morgan
Transition
Physiotherapy Dr. Berbrayer
Kim Moody
Kelly Brewer
My gratitude to an
SLP
amazing team!
Sukaina Hameer