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Carolyn	
  D.	
  Cowen	
  
Nancy	
  Cushen	
  White	
  
IDA	
  Oct	
  30,	
  2015	
  	
  
HOT	
  TOPICS	
  	
  
In	
  Dyslexia	
  &	
  Literacy	
  	
  
#DyslexiaCon	
  
©	
  Cowen/Cushen	
  White	
  
Take	
  a	
  Whirlwind	
  Tour	
  of	
  	
  
PART	
  II.	
  	
  
SEE	
  PART	
  I	
  	
  
FOR	
  THE	
  BEGINNING	
  OF	
  
THIS	
  PRESENTATION	
  	
  
DYSLEXIA’S
UPSIDE
DSM5 &DYSLEXIA
DYSLEXIA
DEBATE
TEACHERPREPARATION
LEGISLATION
TOUR GUIDES
©	
  Cowen/Cushen	
  White	
  
Join our
whirlwind tour
of HOT TOPICS
in dyslexia &
literacy
C	
  	
  
5	
  HOT	
  TOPICS	
  	
  
✔	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
1.	
  Dyslexia’s	
  Upside	
  
2.	
  DSM-­‐5	
  &	
  Dyslexia	
  
3.	
  The	
  Dyslexia	
  Debate	
  
4.	
  Teacher	
  Preparation	
  	
  
5.	
  Legislation	
  
1.  Does	
  dyslexia	
  have	
  	
  
	
  	
  	
  	
  	
  upsides?	
  	
  	
  	
  
2.	
  	
  Should	
  DSM-­‐5	
  have	
  	
  	
  
	
  	
  	
  	
  	
  	
  included	
  dyslexia	
  as	
  a	
  	
  
	
  	
  	
  	
  	
  separate	
  diagnosJc	
  	
  	
  
	
  	
  	
  	
  	
  category?	
  	
  	
  
PONDER	
  	
  	
  
✔	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
SHOW	
  OF	
  HANDS	
  	
  
Any	
  clinicians	
  in	
  the	
  room	
  using	
  DSM-­‐5?	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
DSM-­‐5	
  &	
  Dyslexia	
  
What	
  are	
  the	
  implications?	
  	
  
May	
  2012	
  	
   Jan	
  2014	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
What	
  is	
  
DSM-­‐5?	
  	
  
Diagnostic	
  &	
  Statistical	
  
Manual	
  of	
  Mental	
  
Disorders	
  (DSM-­‐5th	
  
Edition)	
  	
  	
  	
  	
  
•	
  Published	
  by	
  American	
  Psychiatric	
  	
  
	
  	
  	
  	
  Association	
  (APA)	
  	
  
•	
  Includes	
  codes	
  for	
  all	
  recognized	
  	
  
	
  	
  	
  	
  mental	
  health	
  disorders	
  
©	
  Cowen/Cushen	
  White	
  
HEADLINES	
  	
  
N	
  	
  
©	
  Cowen/Cushen	
  White	
  
HEADLINES	
  	
  
May	
  2012	
  
Alerted	
  dyslexia	
  
community	
  that	
  	
  
DSM-­‐5	
  might	
  NOT	
  
include	
  proposed	
  	
  
new	
  language	
  
incorporating	
  
“dyslexia”	
  as	
  a	
  
diagnostic	
  category	
  
(Included	
  “Call-­‐To-­‐
Action”	
  petition)	
  	
  	
  	
  	
  	
  
N	
  	
  
Jan	
  2014	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
  
Dr.	
  Tannock’s	
  	
  
Q&A	
  	
  defines	
  and	
  
explains	
  new	
  
DSM-­‐5	
  criteria	
  for	
  
diagnosis	
  of	
  	
  
Specific	
  Learning	
  	
  
Disorder	
  
N	
  	
  
DiagnosJc	
  Criteria	
  	
  
for	
  Specific	
  Learning	
  
Disorder	
  (SLD)?	
  
• 	
  Eliminated	
  IQ-­‐achievement	
  discrepancy	
  as	
  
requirement	
  
•	
  Created	
  overarching	
  category	
  w/	
  “specifiers”	
  	
  
	
  	
  	
  	
  for	
  reading,	
  writing,	
  math	
  difficulties	
  
Dr.	
  Rosemary	
  	
  
Tannock	
  	
  
©	
  Cowen/Cushen	
  White	
  
HEADLINES	
  	
  
•	
  Replaced	
  w/	
  4	
  new	
  criteria—ALL	
  MUST	
  be	
  met	
  
•	
  Designated	
  3	
  levels	
  of	
  severity	
  
N	
  	
  
 OVERARCHING	
  SLD	
  CATEGORY	
  
©	
  Cowen/Cushen	
  White	
  
“Specifiers”	
  detail	
  impairment	
  
in	
  3	
  major	
  domains	
  
HEADLINES	
  	
  
Reading	
  
Word	
  reading	
  accuracy,	
  	
  reading	
  rate	
  or	
  fluency,	
  
reading	
  comprehension	
  
Written	
  expression	
  
	
  Spelling	
  accuracy,	
  	
  grammar	
  and	
  punctuation	
  
	
  accuracy,	
  	
  clarity	
  or	
  organization	
  of	
  written	
  
	
  expression	
  
Math	
  
Number	
  sense,	
  	
  accurate	
  or	
  fluent	
  calculation,	
  
accurate	
  math	
  reasoning	
  
N	
  	
  
 	
  
4	
  NEW	
  CRITERIA	
  REPLACE	
  IQ	
  ACHIEVEMENT	
  
DISCREPANCY	
  REQUIREMENT	
  
©	
  Cowen/Cushen	
  White	
  
Measurement	
  	
  
	
  	
  •	
  Academic	
  skills	
  substantially	
  below	
  	
  
	
  expected	
  for	
  age	
  or	
  …	
  
	
  	
  •	
  Significant	
  interference	
  with	
  academic,	
  	
  
	
  	
  	
  	
  	
  	
  occupational,	
  or	
  daily	
  activities	
  
	
  	
  •	
  Confirmed	
  by	
  standardized	
  achievement	
  	
  
	
  	
  	
  	
  	
  	
  measures	
  and	
  other	
  clinical	
  assessment	
  
HEADLINES	
  	
  
At	
  least	
  1	
  (of	
  6)	
  Symptoms	
  (academic	
  areas)	
  
	
  	
  •	
  Have	
  persisted	
  for	
  at	
  least	
  6	
  months	
  	
  
	
  	
  •	
  Despite	
  targeted	
  instruction	
  
1	
  
2	
  
N	
  	
  
 	
  
4	
  NEW	
  CRITERIA	
  REPLACE	
  IQ	
  ACHIEVEMENT	
  
DISCREPANCY	
  REQUIREMENT	
  
©	
  Cowen/Cushen	
  White	
  
HEADLINES	
  	
  
3	
   Onset	
  during	
  school-­‐age	
  years.	
  (May	
  not	
  
manifest	
  until	
  young	
  adulthood	
  or	
  later—
when	
  academic	
  demands	
  exceed	
  capacity.)	
  
o  Tests	
  under	
  strict	
  time	
  constraints	
  
o  Reading	
  text	
  /	
  complex	
  syntax,	
  grammar	
  
o  Writing	
  complex	
  essays,	
  reports	
  
o  Increasingly	
  heavy	
  academic	
  or	
  
workplace	
  requirements	
  
Learning	
  difficulties	
  not	
  better	
  accounted	
  for	
  
by	
  other	
  conditions,	
  as	
  in	
  previous	
  DSMs.	
  	
  
4	
  
N	
  	
  
TANNOCK	
  SEES	
  	
  
SEVERAL	
  POSITIVE	
  	
  
IMPLICATIONS	
  	
  Dr.	
  Rosemary	
  	
  
Tannock	
  	
  
©	
  Cowen/Cushen	
  White	
  
HEADLINES	
  	
  
1	
   New	
  criteria	
  call	
  for	
  evidence	
  of	
  
symptom	
  persistence	
  and	
  wider	
  array	
  
of	
  data	
  to	
  confirm/quantify	
  low	
  academic	
  
achievement	
  —	
  may	
  encourage	
  educator	
  
-­‐clinician-­‐parent	
  collaboration	
  to	
  
compile	
  formal/informal	
  data	
  
N	
  	
  
TANNOCK	
  SEES	
  	
  
SEVERAL	
  POSITIVE	
  	
  
IMPLICATIONS	
  	
  Dr.	
  Rosemary	
  	
  
Tannock	
  	
  
©	
  Cowen/Cushen	
  White	
  
HEADLINES	
  	
  
2	
   DSM-­‐5	
  	
  “specifiers”	
  characterizing	
  the	
  
range	
  of	
  academic	
  skills	
  affected	
  by	
  
dyslexia	
  may	
  increase	
  awareness	
  that	
  
dyslexia	
  typically	
  encompasses	
  more	
  	
  
than	
  decoding/spelling	
  difficulties	
  	
  
N	
  	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
  
Dr.	
  Rosemary	
  	
  
Tannock	
  	
  
3	
   DSM-­‐5	
  “specifiers”	
  also	
  may	
  build	
  
understanding	
  that	
  increasing	
  learning	
  
demands	
  trigger	
  developmental	
  changes	
  
in	
  SLD	
  symptoms	
  over	
  time	
  
TANNOCK	
  SEES	
  	
  
SEVERAL	
  POSITIVE	
  	
  
IMPLICATIONS	
  	
  
N	
  	
  
TANNOCK	
  SEES	
  	
  
SEVERAL	
  POSITIVE	
  	
  
IMPLICATIONS	
  	
  Dr.	
  Rosemary	
  	
  
Tannock	
  	
  
©	
  Cowen/Cushen	
  White	
  
HEADLINES	
  	
  
Eliminating	
  IQ-­‐achievement-­‐discrepancy	
  
requirement	
  eliminates	
  lengthy/costly	
  
neuropsych.	
  assessment	
  requirement;	
  
encourages	
  evaluators	
  to	
  shift	
  from	
  
assessment	
  for	
  diagnosis	
  to	
  assessment	
  	
  
for	
  intervention	
  
4	
  
N	
  	
  
May	
  2012	
  	
   Jan	
  2014	
  	
  
DSM-­‐5	
  &	
  Dyslexia	
  
What	
  are	
  the	
  implications?	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
!FROM	
  A	
  CLINICIAN’S	
  PERSPECTIVE"	
  
Recognizes	
  unique	
  profile	
  of	
  2e	
  students	
  
Acknowledges	
  effects	
  of	
  increasing	
  	
  
academic	
  demands	
  over	
  time	
  	
  
Notes	
  diminishing	
  returns	
  for	
  use	
  of	
  	
  
certain	
  compensatory	
  strategies	
  
Discourages	
  use	
  of	
  cut-­‐off	
  scores	
  
Encourages	
  use	
  of	
  clinical	
  judgment	
  
1	
  
2	
  
3	
  
4	
  
5	
  
N	
  	
  
5	
  MORE	
  POSITIVE	
  IMPLICATIONS	
  
HIGHLIGHTING	
  INDIVIDUAL	
  
DIFFERENCES	
  	
  
©	
  Cowen/Cushen	
  White	
  
•	
  Dyslexia	
  was	
  not	
  a	
  diagnostic	
  category	
  in	
  	
  
	
  	
  	
  	
  DSM-­‐IV	
  either	
  
©	
  Cowen/Cushen	
  White	
  
TAKE-­‐AWAYS	
  	
  
•	
  Discussion	
  of	
  	
  “specifiers”	
  may	
  increase	
  
	
  	
  	
  	
  opportunities	
  for	
  use	
  of	
  diagnosis	
  to	
  inform	
  	
  
	
  	
  	
  	
  instructional	
  planning	
  	
  
•	
  BUT	
  DSM-­‐5	
  includes	
  IDA	
  definition	
  in	
  	
  
	
  	
  	
  	
  “specifiers”	
  section	
  AND	
  suggests	
  dyslexia	
  	
  
	
  	
  	
  	
  as	
  alternative	
  term	
  for	
  SLD	
  with	
  impairment	
  	
  
	
  	
  	
  	
  in	
  reading	
  	
  	
  
N	
  	
  
•	
  Dyslexia	
  often	
  more	
  than	
  	
  
	
  	
  	
  	
  decoding/spelling	
  difficulties	
  	
  	
  
•	
  Parent-­‐school-­‐psychologist	
  collaboration	
  	
  
	
  can	
  deepen	
  understanding	
  and	
  can	
  inform	
  	
  
	
  instructional	
  planning	
  	
  
•	
  Psychometric	
  data	
  do	
  NOT	
  tell	
  whole	
  story	
  
•	
  	
  Increased	
  demands	
  over	
  	
  
	
  time	
  	
  compound	
  
	
  developmental	
  symptoms	
  	
  	
  
MORE	
  TAKE-­‐AWAYS	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
©	
  Cowen/Cushen	
  White	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  Should	
  DSM-­‐5	
  have	
  included	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  dyslexia	
  as	
  a	
  diagnosJc	
  	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  category?	
  	
  	
  
N	
  	
  
©	
  Cowen/Cushen	
  White	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  Should	
  DSM-­‐5	
  have	
  included	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  dyslexia	
  as	
  a	
  diagnosJc	
  	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  category?	
  	
  	
  
N	
  	
  
DSM-­‐5	
  addresses	
  dyslexia	
  
far	
  more	
  comprehensively	
  
than	
  DSM-­‐IV	
  and	
  far	
  
beaer	
  than	
  iniJally	
  feared
—especially	
  in	
  aaenJon	
  
to	
  individual	
  differences,	
  
encouragement	
  to	
  
collaborate,	
  and	
  use	
  of	
  
mulJple	
  tools	
  for	
  	
  	
  
	
  	
  	
  assessment.	
  
12	
  11	
  
10	
  
©	
  Cowen/Cushen	
  White	
  
Should	
  be	
  11:40	
  	
  
C	
  	
  
5	
  HOT	
  TOPICS	
  	
  
✔	
  	
  
✔	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
1.	
  Dyslexia’s	
  Upside	
  
2.	
  DSM-­‐5	
  &	
  Dyslexia	
  
3.	
  The	
  Dyslexia	
  Debate	
  
4.	
  Teacher	
  Preparation	
  	
  
5.	
  Legislation	
  
1.  Does	
  dyslexia	
  have	
  	
  
	
  	
  	
  	
  	
  upsides?	
  	
  	
  	
  
2.	
  	
  Should	
  DSM-­‐5	
  have	
  	
  	
  
	
  	
  	
  	
  	
  	
  included	
  dyslexia?	
  	
  	
  	
  
3.	
  	
  Is	
  the	
  dyslexia	
  construct	
  	
  
	
  	
  	
  	
  	
  valid?	
  	
  	
  	
  
PONDER	
  	
  	
  
✔	
  	
  
✔	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
SHOW	
  OF	
  HANDS	
  	
  
How	
  many	
  of	
  you	
  have	
  read	
  the	
  book?	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
The	
  Dyslexia	
  Debate	
  
Worth	
  learning	
  about!	
  	
  
April	
  2014	
  	
   June	
  2014	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
(Winter/Spring	
  2014)	
  	
  
Argues	
  	
  
dyslexia	
  NOT	
  	
  
a	
  scientifically	
  
rigorous	
  
construct	
  for	
  
research	
  or	
  
educational/
clinical	
  practice	
  	
  	
  	
  	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
•	
  Does	
  NOT	
  dispute	
  	
  	
  	
  
	
  	
  	
  	
  existence	
  of	
  	
  
	
  	
  	
  	
  biologically-­‐based	
  	
  
	
  	
  	
  	
  reading	
  difficulties	
  	
  
•	
  Proposes	
  generic	
  	
  
	
  	
  	
  	
  term	
  reading	
  	
  
	
  	
  	
  	
  disabilities	
  instead	
  	
  
Drs.	
  Julian	
  Ellioa	
  	
  
&	
  Elena	
  Grigorenko	
  	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Many	
  states	
  	
  
incorporating	
  
“dyslexia”	
  &	
  
IDA-­‐NICHD	
  
definition	
  into	
  
dyslexia	
  laws	
  	
  IDA	
  President	
  
Hal	
  Malchow	
  	
  
IDA	
  RESPONSE	
  
April	
  2014	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
At	
  IDA,	
  we	
  understand	
  
the	
  science	
  behind	
  
reading	
  disorders	
  	
  	
  
Also	
  understand	
  power	
  of	
  common	
  
language	
  &	
  mission/purpose	
  it	
  
provides	
  	
  	
  	
  
IDA	
  RESPONSE	
  CONT.	
  
HEADLINES	
  	
  
IDA	
  President	
  	
  
Hal	
  Malchow	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
IDA	
  RESPONSE	
  CONT.	
  
IDA	
  President	
  	
  
Hal	
  Malchow	
  	
  
…	
  Dyslexia,	
  a	
  beauJful	
  
word.	
  True,	
  describes	
  a	
  
category	
  of	
  learning	
  
disorders.	
  	
  	
  	
  
But,	
  also	
  describes	
  community,	
  body	
  
of	
  knowledge,	
  category	
  of	
  law,	
  more	
  
positive	
  sense	
  of	
  self,	
  belief	
  about	
  
progress	
  we	
  can	
  achieve	
  together.	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
WOLF	
  RESPONSE	
  
Dr.	
  Maryanne	
  	
  
Wolf	
  	
  
June	
  2014	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
SHOW	
  OF	
  HANDS	
  	
  
How	
  many	
  have	
  read	
  the	
  book?	
  
	
  Heard	
  Wolf	
  speak?	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
WOLF	
  RESPONSE	
  
•	
  Much	
  to	
  	
  	
  	
  	
  	
  	
  
	
  	
  	
  	
  learn	
  from	
  	
  
	
  	
  	
  	
  this	
  book!	
  	
  
•	
  Six	
  	
  	
  
	
  	
  	
  	
  insights	
  	
  	
   Dr.	
  Maryanne	
  	
  
Wolf	
  	
  
June	
  2014	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Science’s	
  search	
  for	
  
parsimony	
  has	
  led	
  to	
  	
  	
  
simplistic	
  1-­‐dimensional	
  	
  
explanations	
  w/	
  various	
  
names	
  
History	
  of	
  different	
  explanations	
  and	
  
names	
  of	
  dyslexia	
  arise	
  from	
  the	
  
complexity	
  of	
  the	
  reading	
  circuit	
  
HEADLINES	
  	
  
SIX	
  INSIGHTS	
  
Dr.	
  Maryanne	
  Wolf	
  	
  
2	
  
1	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
The	
  brain	
  can/does	
  
make	
  different	
  	
  
reading	
  circuits!	
  	
  
	
  	
  	
  	
  	
  May	
  be	
  a	
  different	
  reading	
  circuit	
  	
  
in	
  some	
  children	
  that’s	
  genetically	
  
based	
  and	
  that	
  advantages	
  the	
  RIGHT	
  
hemisphere	
  for	
  normally	
  LEFT	
  
hemisphere	
  tasks	
  	
  
HEADLINES	
  	
  
3	
  
©	
  Cowen/Cushen	
  White	
  
SIX	
  INSIGHTS	
  
Dr.	
  Maryanne	
  Wolf	
  	
  
C	
  	
  
All	
  this	
  dynamic	
  
complexity	
  makes	
  	
  	
  	
  	
  
understanding	
  dyslexia	
  	
  
research	
  difficult	
  
	
  	
  	
  	
  (Note:	
  Hence,	
  the	
  challenge	
  with	
  a	
  	
  
	
  	
  	
  	
  	
  scien6fically	
  rigorous	
  construct	
  of	
  	
  	
  
	
  	
  	
  	
  	
  dyslexia)	
  	
  	
  	
  
HEADLINES	
  	
  
4	
  
©	
  Cowen/Cushen	
  White	
  
SIX	
  INSIGHTS	
  
Dr.	
  Maryanne	
  Wolf	
  	
  
C	
  	
  
Grigorenko	
  illuminates	
  	
  
how	
  geneJcs	
  of	
  dyslexia	
  	
  
is	
  connected	
  to	
  structural	
  	
  
&	
  behavioral	
  research	
  
But	
  Wolf	
  differs	
  with	
  authors’	
  
conclusions—she	
  asserts	
  THREE	
  
addiJonal	
  points	
  ….	
  
HEADLINES	
  	
  
5	
  
6	
  
©	
  Cowen/Cushen	
  White	
  
SIX	
  INSIGHTS	
  
Dr.	
  Maryanne	
  Wolf	
  	
  
C	
  	
  
“NOT	
  UP	
  FOR	
  DEBATE”	
  
•	
  	
  Children	
  w/	
  dyslexia	
  are	
  best	
  	
  
	
  	
  	
  	
  	
  served	
  w/	
  diagnosis	
  &	
  	
  
	
  	
  	
  	
  	
  explanation	
  of	
  their	
  reading	
  difficulties	
  
•	
  No	
  one	
  w/	
  dyslexia	
  should	
  feel	
  	
  they	
  are	
  	
  
	
  	
  	
  	
  lazy,	
  less	
  smart!	
  
•	
  That	
  dyslexia’s	
  construct	
  (like	
  reading)	
  	
  
	
  	
  	
  	
  is	
  complex,	
  is	
  no	
  reason	
  to	
  return	
  to	
  	
  
	
  	
  	
  	
  general	
  terms—e.g.,	
  “Reading	
  Disabilities”	
  	
  	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
The	
  Dyslexia	
  Debate	
  
Worth	
  learning	
  about!	
  	
  
April	
  2014	
  	
   June	
  2014	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
The	
  various	
  	
  
hallmark	
  	
  	
  	
  	
  
	
  	
  	
  	
  	
  	
  characterisJcs	
  of	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  dyslexia	
  fall	
  along	
  	
  	
  	
  
	
  	
  	
  	
  	
  conJnuums	
  of	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  severity	
  that	
  are	
  not	
  	
  	
  	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  fixed	
  —	
  can	
  change	
  
	
  	
  	
  	
  	
  	
  across	
  lifespan	
  &	
  
	
  improve	
  especially	
  
w/	
  good	
  teaching.	
  	
  	
  	
  	
  	
  	
  
Dyslexia,	
  like	
  	
  
ADHD,	
  auJsm	
  spectrum	
  
disorder,	
  is	
  LESS	
  a	
  disJnct	
  
syndrome	
  w/	
  clear	
  	
  
diagnosJc	
  markers	
  &	
  	
  
obvious	
  demarcaJons;	
  	
  
MORE	
  a	
  developmental	
  
mulJdimensional-­‐	
  
	
  	
  	
  	
  	
  spectrum	
  condiJon.	
  	
  	
  
TAKE-­‐AWAYS	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Therein	
  lies	
  one	
  
of	
  the	
  great	
  
challenges	
  in	
  
dyslexia’s	
  
construct	
  —	
  thus,	
  in	
  how	
  individuals	
  
with	
  dyslexia	
  are	
  identified	
  and	
  for	
  
whom	
  treatments	
  and	
  resources	
  are	
  
allocated	
  and	
  accommodated	
  are	
  
granted.	
  	
  	
  	
  
MORE	
  TAKE-­‐AWAYS	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
school
Will	
  this	
  debate	
  hurt	
  families	
  
struggling	
  with	
  dyslexia	
  
trying	
  to	
  find	
  appropriate	
  
services	
  in	
  schools?	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
September	
  24,	
  2015:	
  Experts	
  Consider	
  
Abandoning	
  Term	
  Dyslexia—No	
  Consensus	
  
POSTSCRIPT	
  	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
©	
  Cowen/Cushen	
  White	
  
Is	
  the	
  dyslexia	
  construct	
  valid?	
  	
  	
  
C	
  	
  
©	
  Cowen/Cushen	
  White	
  
Is	
  the	
  dyslexia	
  construct	
  valid?	
  	
  	
  
The	
  dyslexia	
  construct	
  is	
  
challenging	
  and	
  complex—
like	
  the	
  developmental,	
  
mulJdimensional-­‐spectrum	
  
condiJon	
  the	
  construct	
  seeks	
  
to	
  capture.	
  That	
  it	
  remains	
  
so	
  difficult	
  lends	
  credibility	
  
to	
  efforts	
  thus	
  far.	
  BUT	
  given	
  
the	
  pace	
  of	
  scienJfic	
  
discovery,	
  it’s	
  reasonable	
  to	
  
think	
  of	
  today’s	
  construct	
  as	
  	
  	
  
	
  	
  	
  	
  a	
  work	
  in	
  progress.	
  	
  
C	
  	
  
12	
  11	
  
10	
  
Should	
  be	
  11:49	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Time	
  to	
  
energize!	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Stand	
  and	
  Clap!!	
  
©	
  Cowen/Cushen	
  White	
  
C	
  	
  
20x/30x/40x	
  softly/vigorously	
  
LEGISLATION
DYSLEXIA’SUPSIDE
TEACHER
PREPARATION
DYSLEXIA
DEBATE
DSM5 &
DYSLEXIA
WHIRLWIND	
  TOUR!	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
C	
  	
  
1.	
  Dyslexia’s	
  Upside	
  
2.	
  DSM5	
  &	
  Dyslexia	
  
3.	
  The	
  Dyslexia	
  Debate	
  
4.	
  Teacher	
  Preparation	
  	
  
5.	
  Legislation	
  
5	
  HOT	
  TOPICS	
  	
  
✔	
  	
  
✔	
  	
  
✔	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
1.  Does	
  dyslexia	
  have	
  	
  
	
  	
  	
  	
  	
  upsides?	
  	
  	
  	
  
2.	
  	
  Should	
  DSM-­‐5	
  have	
  	
  	
  
	
  	
  	
  	
  	
  	
  included	
  dyslexia?	
  	
  	
  	
  
3.	
  	
  Is	
  the	
  dyslexia	
  construct	
  	
  
	
  	
  	
  	
  	
  valid?	
  	
  	
  	
  
4.	
  	
  Are	
  teachers	
  prepared	
  	
  
	
  	
  	
  	
  	
  to	
  teach	
  students	
  with	
  	
  	
  
	
  	
  	
  	
  	
  dyslexia?	
  
PONDER	
  	
  	
  
✔	
  	
  
✔	
  	
  
✔	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
SHOW	
  OF	
  HANDS	
  	
  
How	
  many	
  of	
  you	
  teach	
  reading?	
  	
  
How	
  many	
  of	
  you	
  prepare	
  teachers	
  
to	
  teach	
  reading?	
  	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
July	
  2014	
  	
  June	
  2013	
  	
  
Are	
  teachers	
  being	
  prepared	
  to	
  teach	
  
vulnerable	
  students?	
  	
  
Teacher	
  Prep	
  Reform	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
National	
  Council	
  on	
  
Teacher	
  Quality	
  
(NCTQ)	
  releases	
  
reports	
  on	
  how	
  well	
  
US	
  Schools	
  of	
  Ed.	
  
prepare	
  teachers	
  to	
  
enter	
  classrooms.	
  	
  
hap://www.nctq.org	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
Also	
  released	
  in	
  US	
  
News	
  &	
  World	
  Report.	
  	
  	
  	
  	
  
Reported	
  on	
  1st	
  
edition	
  of	
  NCTQ’s	
  
Teacher	
  Prep	
  Review	
  
evaluating	
  1,100+	
  
colleges/university’s	
  
preparing	
  elementary	
  
&	
  secondary	
  teachers.	
  	
  
June	
  2013	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
Which	
  does	
  best/
weakest	
  job	
  preparing	
  
new	
  teachers?	
  
Examiner	
  also	
  reported	
  	
  
release	
  of	
  2nd	
  edition	
  	
  
of	
  NCTQ’s	
  Teacher	
  	
  
Prep	
  Review.	
  
Neither	
  report	
  positive	
  
(though	
  2nd	
  mentions	
  
early	
  evidence	
  teacher	
  
prep	
  programs	
  making	
  
changes).	
  	
  
July	
  2014	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
  
Both	
  controversial!	
  	
  	
  
N	
  	
  
Teacher	
  PreparaJon	
  	
  
Another	
  Approach	
  
May	
  2012	
   Sept	
  2015	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
Teacher	
  Prep	
  Reform	
  	
  
Two	
  very	
  different	
  	
  
approaches	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
Are	
  teachers	
  being	
  prepared	
  to	
  teach	
  
vulnerable	
  students?	
  	
  
Teacher	
  Prep	
  Reform	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
TAKE-­‐AWAYS	
  	
  
To teach
reading well—
especially to
students who
struggle—
teachers
need deep
content
knowledge
of language
structure
©	
  Cowen/Cushen	
  White	
   N	
  	
  
Teacher	
  prep	
  reform	
  
&	
  targeted	
  PD	
  are	
  	
  
key,	
  but	
  HOT	
  
BUTTON	
  issues	
  that	
  
inflame	
  passions	
  &	
  
get	
  highly	
  politicized.	
  Watch	
  	
  
for	
  these	
  to	
  be	
  even	
  more	
  	
  
contentious	
  &	
  central	
  in	
  	
  
dyslexia/literacy	
  legislation.	
  	
  	
  	
  
Teacher	
  Prep	
  Reform	
  
TAKE-­‐AWAYS	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
To	
  dive	
  more	
  deeply	
  into	
  teacher	
  
preparation	
  and	
  IDA’s	
  Knowledge	
  &	
  
Practice	
  Standards…	
  
Friday,	
  11:45-­‐12:45	
   Friday,	
  2:00-­‐5:00	
  
DEEPER	
  EXPLORATION	
  
N	
  	
  ©	
  Cowen/Cushen	
  White	
  
©	
  Cowen/Cushen	
  White	
  
	
  
	
  
	
  	
  	
  Are	
  teachers	
  prepared	
  to	
  teach	
  	
  	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  students	
  with	
  dyslexia?	
  	
  	
  
N	
  	
  
©	
  Cowen/Cushen	
  White	
  
	
  
	
  
Not	
  yet.	
  	
  
	
  	
  	
  Are	
  teachers	
  prepared	
  to	
  teach	
  	
  	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  students	
  with	
  dyslexia?	
  	
  	
  
N	
  	
  
12	
  11	
  
10	
  
Should	
  be	
  11:58	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
BAIL-­‐OUT	
  PLAN?	
  Vote?	
  	
  
1.	
  Dyslexia’s	
  Upside	
  
2.	
  DSM5	
  &	
  Dyslexia	
  
3.	
  The	
  Dyslexia	
  Debate	
  
4.	
  Teacher	
  Preparation	
  	
  
5.	
  Legislation	
  
5	
  HOT	
  TOPICS	
  	
  
✔	
  	
  
✔	
  	
  
✔	
  	
  
✔	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
1.  Does	
  dyslexia	
  have	
  	
  
	
  	
  	
  	
  	
  upsides?	
  	
  	
  	
  
2.	
  	
  Should	
  DSM-­‐5	
  have	
  	
  	
  
	
  	
  	
  	
  	
  	
  included	
  dyslexia?	
  	
  	
  	
  
3.	
  	
  Is	
  the	
  dyslexia	
  construct	
  	
  
	
  	
  	
  	
  	
  valid?	
  	
  	
  	
  
4.	
  	
  Are	
  teachers	
  prepared	
  	
  
	
  	
  	
  	
  	
  to	
  teach	
  students	
  with	
  	
  	
  
	
  	
  	
  	
  	
  dyslexia?	
  
5.	
  	
  Will	
  “dyslexia	
  	
  
	
  	
  	
  	
  	
  	
  legislaJon”	
  make	
  a	
  	
  
	
  	
  	
  	
  	
  	
  difference?	
  
PONDER	
  	
  	
  
✔	
  	
  
✔	
  	
  
✔	
  	
  
✔	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
LegislaJon:	
  
Not	
  in	
  our	
  
wheelhouse	
  	
  
Looking	
  	
  
for	
  a	
  
legislation-­‐
policy	
  
reporter!	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Dyslexia	
  &	
  Literacy	
  LegislaJon	
  	
  
Levers	
  for	
  change	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
SHOW	
  OF	
  HANDS	
  	
  
How	
  many	
  of	
  you	
  are	
  involved	
  in	
  	
  
state	
  legislative	
  efforts?	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
38	
  States	
  are	
  Reported	
  to	
  Have	
  	
  
Dyslexia	
  LegislaJon	
  Enacted	
  or	
  Underway	
  	
  
Alabama	
  
Arizona	
  
Arkansas	
  
California	
  
Colorado	
  
Connecticut	
  
Florida	
  
Hawaii	
  
Illinois	
  
Indiana	
  
Iowa	
  
Kansas	
  
Kentucky	
  
Louisiana	
  
Maine	
  
Maryland	
  
Massachusetts	
  
Mississippi	
  
Missouri	
  
Nevada	
  
New	
  Hampshire	
  
New	
  Jersey	
  
New	
  Mexico	
  
New	
  York	
  
North	
  Carolina	
  
Ohio	
  
Oklahoma	
  
Oregon	
  
Pennsylvania	
  
Rhode	
  Island	
  
Tennessee	
  
Texas	
  
Utah	
  
Virginia	
  
Washington	
  
West	
  Virginia	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
  
CAUTION:	
  
Not	
  100%	
  
certain	
  
this	
  list	
  is	
  
accurate/
up	
  to	
  date	
  
Wisconsin	
  
Wyoming	
  
C	
  	
  
OH	
  Senate	
  passed	
  	
  
HB	
  96	
  &	
  157	
  Dec.	
  14	
  	
  	
  
Dec.	
  2011	
  	
  
Watch	
  the	
  Bill	
  pass	
  	
  	
  
Ohio	
  Passes	
  Dyslexia	
  LegislaJon	
  	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Ohio,	
  New	
  Jersey,	
  	
  
Wisconsin,	
  South	
  Carolina	
  	
  	
  
Jan	
  	
  2012	
  	
  
Feb	
  	
  2013	
  	
  
Reporting	
  &	
  Mobilizing	
  	
  	
  
Aug	
  	
  2013	
  	
   Mar	
  2014	
  	
  Dec.	
  2011	
  	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Deborah	
  	
  
Lynam	
  	
  
Dr.	
  Gordon	
  
Sherman	
  	
  
Dr.	
  Charloae	
  
Andrist	
  
Elenn	
  
Steinberg	
  
LESSONS:	
  Looking	
  back	
  at	
  lessons	
  from	
  your	
  state’s	
  
dyslexia	
  legislation	
  efforts	
  and	
  ahead	
  at	
  future	
  
challenges	
  and	
  opportunities,	
  what	
  ONE	
  thing	
  is	
  the	
  
most	
  important	
  consideration	
  going	
  forward	
  …	
  or	
  for	
  
those	
  following	
  in	
  your	
  footsteps	
  in	
  other	
  states?	
  	
  
HEADLINES—LESSONS	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Using	
  the	
  IDA-­‐NICHD	
  
definition	
  of	
  dyslexia	
  made	
  
all	
  the	
  difference	
  in	
  NJ.	
  It	
  was	
  
the	
  science-­‐based	
  stepping	
  
stone	
  to	
  everything	
  else	
  .	
  
Deborah	
  	
  
Lynam	
  	
  
Dr.	
  Gordon	
  
Sherman	
  	
  
Legislation	
  is	
  important,	
  but	
  	
  
Impact	
  is	
  in	
  	
  implementation.	
  Building	
  
coalitions	
  is	
  key.	
  Schools,	
  administrators,	
  
teachers	
  need	
  to	
  buy	
  in.	
  Being	
  mandated	
  	
  
is	
  a	
  start;	
  understanding	
  WHY	
  is	
  most	
  
powerful.	
  We’ve	
  a	
  knowledge-­‐practice	
  gap.	
  
HEADLINES—LESSONS	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Too	
  often,	
  as	
  parents	
  we	
  think	
  dyslexia	
  
legislation	
  will	
  fix	
  a	
  broken	
  system.	
  We	
  
cannot	
  se?le	
  for	
  unfunded	
  mandates	
  and	
  
minimal	
  programs	
  to	
  educate	
  teachers.	
  
Make	
  public	
  your	
  quest.	
  Con6nue	
  to	
  push	
  
to	
  get	
  colleges	
  of	
  educa6on	
  to	
  produce	
  
teachers	
  who	
  know	
  how	
  to	
  teach	
  reading.	
  	
  
Dr.	
  Charloae	
  
Andrist	
  
Elenn	
  
Steinberg	
  
It’s	
  all	
  about	
  having	
  a	
  well-­‐placed	
  advocate
—for	
  example,	
  a	
  senator,	
  congressman,	
  or	
  
state	
  school	
  board	
  member	
  of	
  a	
  child	
  with	
  
dyslexia.	
  You	
  must	
  do	
  your	
  homework,	
  
educate,	
  and	
  network,	
  but	
  a	
  strong	
  and	
  
passionate	
  advocate	
  is	
  a	
  must.	
  
HEADLINES—LESSONS	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Deborah	
  	
  
Lynam	
  	
  
Dr.	
  Gordon	
  
Sherman	
  	
  
Dr.	
  Charloae	
  
Andrist	
  
Elenn	
  
Steinberg	
  
Priceless	
  words	
  of	
  wisdom!	
  
HEADLINES—LESSONS	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
State	
  Literacy	
  LegislaJon	
  	
  
LESSONS	
  FROM:	
  
•	
  Colorado	
  
•	
  Connecticut	
  
•	
  Minnesota	
  
literatenaJon.org	
  
RESOURCES	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Model	
  LegislaJon	
  to	
  
•	
  Promote	
  literacy	
  
•	
  Remediate	
  dyslexia	
  	
  	
  
literatenaJon.org	
  Cinthia	
  Coles	
  
Elenn	
  
Steinberg	
  
©	
  Cowen/Cushen	
  White	
  
RESOURCES	
  	
  
C	
  	
  
HANDOUT:	
  LITERATE	
  NATION	
  PUBLCATI0NS	
  
URL	
  for	
  	
  
Literate	
  Nation	
  
Publications	
  	
  
is	
  on	
  	
  
p.	
  5	
  of	
  	
  
handout	
  	
  
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
April	
  2012	
  	
  
June	
  2012	
  	
  
Dyslexia	
  Goes	
  to	
  Congress	
  	
  
May	
  2012	
  	
   Jan.	
  2014	
  	
   July.	
  2014	
  	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
  
April-­‐May	
  201	
  	
  
Sept.	
  2015	
  	
  
Sept.	
  2015	
  	
  
C	
  	
  
HEADLINES	
  	
  
•	
  Chair,	
  	
  
	
  	
  	
  Lamar	
  Smith	
  	
  
•	
  Hon.	
  	
  
	
  	
  	
  Bill	
  Cassidy	
  
•	
  Hon.	
  	
  
	
  	
  	
  Julia	
  Brownley	
  	
  
Sept.	
  2014	
  	
  
©	
  Cowen/Cushen	
  White	
  
2014	
  HEARING	
  	
  
C	
  	
  
Commiaee	
  on	
  Science,	
  Space,	
  Technology	
  
HEADLINES	
  	
  
Bill	
  Cassidy	
  
Commiaee	
  on	
  Science,	
  
Space,	
  Technology	
  
CHAIR	
  	
  
Lamar	
  Smith	
  	
  	
  
BiparJsan	
  	
  
Congressional	
  	
  
Dyslexia	
  Caucus	
  
CO-­‐CHAIRS	
  	
  
Lamar	
  Smith	
  
Julia	
  Brownley	
  	
  	
  	
  
BACKGROUND	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
HEADLINES	
  	
  
2015	
  HEARING	
  	
  
Commiaee	
  on	
  Science,	
  Space,	
  Technology	
  
	
  CHAIR	
  Lamar	
  Smith	
  	
  	
  
•	
  Ms.	
  Barbara	
  Wilson	
  
•	
  Dr.	
  Paula	
  Tallal	
  
•	
  Dr.	
  Rachel	
  Robillard	
  	
  
Dyslexia	
  and	
  the	
  
Need	
  to	
  READ	
  Act:	
  	
  
H.R.	
  3033,	
  
Research	
  
Excellence	
  and	
  
Advancements	
  for	
  
Dyslexia	
  
	
  WITNESSES	
  	
  
Sept.	
  30,	
  2015	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
HEADLINES	
  	
  
READ	
  Act	
  	
  clears	
  committee	
  	
  
with	
  bipartisan	
  support	
  
OCTOBER	
  8,	
  2015	
  	
  	
  
Commiaee	
  on	
  Science,	
  Space,	
  Technology	
  
WOULD FUND R&D
•	
  Early	
  identification	
  
•	
  Professional	
  development	
  for	
  	
  
	
  	
  	
  	
  teachers	
  &	
  administrators	
  
•	
  Curricula	
  development	
  &	
  	
  
	
  	
  	
  	
  evidence-­‐	
  based	
  educational	
  tools	
  
©	
  Cowen/Cushen	
  White	
  
Oct.	
  2015	
  	
  
C	
  	
  
SHOW	
  OF	
  HANDS	
  	
  
Did	
  any	
  of	
  you	
  attend	
  or	
  watch	
  on	
  video?	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
HEADLINES	
  	
  
•	
  House	
  Committee	
  Convenes	
  	
  
	
  	
  	
  	
  Hearing	
  on	
  Dyslexia	
  
•	
  Secretary	
  of	
  Education	
  Issues	
  	
  
	
  	
  	
  	
  Statement	
  on	
  LD,	
  Dyslexia,	
  ADHD	
  	
  
•	
  House	
  Committee	
  Approves	
  	
  
	
  	
  	
  	
  	
  READ	
  Act	
  
•	
  Senate	
  Passes	
  Bipartisan	
  	
  
	
  	
  	
  	
  Resolution	
  on	
  Dyslexia	
  
©	
  Cowen/Cushen	
  White	
  
Oct.	
  2015	
  	
  
C	
  	
  
HEADLINES	
  	
  
Duncan	
  Issues	
  Statement	
  	
  
on	
  LD,	
  Dyslexia	
  &	
  ADHD	
  	
  
“These	
  students	
  
often	
  experience	
  
challenges	
  in	
  
school	
  related	
  to	
  
reading,	
  writing,	
  
mathematics,	
  	
  
and	
  focus,	
  but	
  
these	
  	
  
students	
  	
  
also	
  have	
  	
  
great	
  strengths	
  
and	
  enormous	
  
potential”	
  
OCTOBER	
  5,	
  2015	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Senate	
  Passes	
  BiparJsan	
  	
  
ResoluJon	
  on	
  Dyslexia	
  
HEADLINES	
  	
  
Designating	
  October	
  2015	
  	
  
National	
  Dyslexia	
  Awareness	
  Month	
  	
  
OCTOBER	
  9,	
  2015	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
HEADLINES	
  	
  
©	
  Cowen/Cushen	
  White	
  
•	
  JULY	
  14-­‐15	
  	
  
	
  	
  	
  	
  Dyslexia	
  Hill	
  	
  Day	
  	
  
	
  	
  	
  	
  promoted	
  reform	
  
DC	
  Summer	
  2015—	
  
EvenKul	
  for	
  dyslexia	
  
•	
  JULY	
  16	
  	
  
	
  	
  	
  	
  Senate	
  passed	
  Every	
  Child	
  	
  
	
  	
  	
  	
  Achieves	
  Act	
  (ESEA	
  	
  
	
  	
  	
  	
  Reauthorization)	
  
•	
  JULY	
  31	
  	
  
	
  	
  	
  	
  Dyslexia	
  Caucus	
  	
  
	
  	
  	
  	
  letter	
  to	
  DOE	
  
Sept.	
  2015	
  	
  
C	
  	
  
©	
  Cowen/Cushen	
  White	
  
HEADLINES	
  	
  
April-­‐May	
  2015	
  	
  
“Cassidy	
  Amendments”	
  
on	
  dyslexia	
  defeated	
  
•	
  Introduced	
  2	
  amendments	
  to	
  	
  
	
  	
  	
  	
  	
  NCLB/ESEA	
  	
  reauthorization	
  	
  
	
  	
  	
  	
  	
  bill	
  	
  (Every	
  Child	
  Achieves)	
  	
  
•	
  Related	
  to	
  training	
  to	
  	
  
	
  	
  	
  	
  	
  recognize	
  dyslexia	
  &	
  other	
  	
  
	
  	
  	
  	
  	
  LDs	
  and	
  to	
  ensuring	
  resources	
  	
  
	
  	
  	
  	
  	
  for	
  academic	
  success	
  
•	
  Reasons	
  Cited	
  for	
  Defeat	
  	
  
	
  	
  	
  	
  	
  Unfair	
  to	
  single	
  out	
  one	
  	
  
	
  	
  	
  	
  	
  disability	
  group	
  
C	
  	
  
Sea	
  Change?	
  	
  
Idiom	
  for	
  	
  
broad	
  transformation	
  	
  
(From	
  a	
  phrase	
  in	
  	
  
Shakespeare’s	
  The	
  Tempest)	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Sea	
  Change?	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
SHOW	
  OF	
  HANDS	
  	
  
	
  Members	
  of	
  Decoding	
  Dyslexia?	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Sea	
  Change?	
  	
  
BOSTON	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
LegislaJon	
  can	
  	
  
be	
  an	
  important	
  
lever	
  for	
  change	
  	
  
CHANGE	
  	
  
CAUTION	
  	
  
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
But
Legislation
is only
part of the
equation
EFFECTIVE
INTERVENTIONS
EFFECTIVE
IMPEMENTATION
METHODS
ENABLING
CONTEXTS
INTENDED
OUTCOMES
IMPLEMENTATION SCIENCE
Various
components,
accountabilities,
and shifts are
needed to create
a system that
will support and
sustain effective
programs and
practices
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
IMPLEMENTATION	
  SCIENCE	
  	
  
SystemaJc	
  study	
  of	
  variables	
  
and	
  condiJons	
  that	
  lead	
  to	
  	
  
full	
  and	
  effecJve	
  use	
  of	
  
evidence-­‐based	
  pracJces	
  and	
  
other	
  effecJve	
  innovaJons	
  in	
  
human-­‐service	
  sesngs	
  	
  
HEADLINE	
  	
  
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
But
Legislation
is only
part of the
equation
EFFECTIVE
INTERVENTIONS
EFFECTIVE
IMPEMENTATION
METHODS
ENABLING
CONTEXTS
INTENDED
OUTCOMES
IMPLEMENTATION SCIENCE
Various
components,
accountabilities,
and shifts are
needed to create
a system that
will support and
sustain effective
programs and
practices
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
There	
  is	
  a	
  science	
  to	
  
effecJve	
  reading	
  
instrucJon	
  …	
  AND	
  
there is a science
to effective
implementation
HEADLINE	
  	
  
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
There	
  is	
  a	
  science	
  to	
  implemenJng	
  change	
  	
  
Jan.	
  2015	
  	
  
literatenaJon.org/	
  
libraries/libraries-­‐research/	
  
Spring	
  2015	
  	
  
©	
  Cowen/Cushen	
  White	
  
RESOURCES	
  	
  
C	
  	
  
URLs	
  for	
  Examiner	
  are	
  on	
  p.	
  1	
  	
  	
  
&	
  for	
  Literate	
  Nation	
  are	
  on	
  p.	
  5	
  	
  
HANDOUT	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
To	
  learn	
  more	
  about	
  
implementation	
  science	
  …	
  
Friday,	
  2:00-­‐3:00	
  
DEEPER	
  EXPLORATION	
  
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
To	
  learn	
  more	
  about	
  legislation	
  	
  
issues,	
  get	
  tapes	
  for	
  …	
  
Thursday,	
  
3:00-­‐4:00	
  
Friday,	
  
10:30-­‐11:30	
  
DEEPER	
  EXPLORATION	
  
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
Dyslexia	
  &	
  Literacy	
  LegislaJon	
  	
  
Levers	
  for	
  change	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
TAKE-­‐AWAYS	
  	
  
©	
  Cowen/Cushen	
  White	
  
•	
  To	
  steer	
  clear	
  of	
  avoidable	
  pitfalls	
  and	
  to	
  	
  
	
  	
  	
  	
  	
  help	
  enact	
  effective	
  legislation,	
  parent	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  activists	
  need	
  	
  	
  	
  	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  good	
  info.,	
  	
  	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  resources,	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  and	
  support—	
  	
  	
  	
  	
  	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  e.g.,	
  model	
  	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  legislation	
  
•	
  A	
  strong	
  	
  dyslexia-­‐literacy	
  legislative	
  	
  
	
  	
  	
  	
  	
  movement	
  is	
  underway—driven	
  to	
  	
  
	
  	
  	
  	
  	
  a	
  large	
  degree	
  by	
  parents	
  	
  
	
  	
  	
  	
  	
  mobilizing	
  at	
  grassroots	
  levels	
  	
  
C	
  	
  
TAKE-­‐AWAYS	
  	
  
©	
  Cowen/Cushen	
  White	
  
•	
  Legislation	
  and	
  top-­‐	
  	
  
	
  	
  	
  down	
  mandates	
  often	
  	
  
	
  	
  	
  are	
  necessary,	
  but	
  not	
  	
  
	
  	
  	
  sufficient	
  	
  
C	
  	
  
•	
  Implementation	
  	
  
	
  	
  	
  	
  science	
  is	
  a	
  key	
  	
  
	
  	
  	
  	
  ingredient	
  for	
  	
  
	
  	
  	
  	
  generating	
  effective	
  	
  
	
  	
  	
  	
  and	
  sustainable	
  	
  
	
  	
  	
  	
  change	
  	
  	
  	
  	
  
©	
  Cowen/Cushen	
  White	
  
Will	
  dyslexia-­‐literacy	
  legislaJon	
  	
  	
  	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  make	
  a	
  difference?	
  	
  	
  
C	
  	
  
It	
  can	
  be	
  a	
  powerful	
  lever,	
  
IF	
  it	
  includes	
  core	
  elements	
  
of	
  effecJve	
  legislaJon	
  (e.g.,	
  
Literate	
  NaJon’s	
  model	
  
legislaJon,	
  IDA	
  definiJon),	
  
is	
  grounded	
  in	
  the	
  science	
  
of	
  reading	
  and	
  effecJve	
  
instrucJon	
  (e.g.,	
  IDA’s	
  
KPS),	
  &	
  is	
  combined	
  with	
  	
  
implementaJon	
  science	
  	
  
	
  	
  	
  	
  	
  pracJces	
  	
  	
  
©	
  Cowen/Cushen	
  White	
  
Will	
  dyslexia-­‐literacy	
  legislaJon	
  	
  	
  	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  make	
  a	
  difference?	
  	
  	
  
C	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
10	
  
11	
  12	
  
!	
  
3	
  PARTS	
  
•	
  Aims	
  &	
  	
  
	
  	
  	
  Challenge	
  
•	
  Wrap	
  Up	
  
•	
  Examiner	
  Lens	
  	
  
	
  	
  	
  (5	
  Hot	
  topics)	
  
	
  	
  	
  w/	
  ac6vity	
  at	
  end	
  
	
  	
  	
  of	
  1st	
  Hot	
  Topic	
  
©	
  Cowen/Cushen	
  White	
  
•	
  Lens	
  
	
  	
  	
  Preview	
  
	
  	
  	
  
•	
  Call	
  to	
  	
  
	
  	
  	
  AcJon	
  
•	
  Q&A	
  
•	
  Ground	
  Rules	
  
	
  	
  	
  	
  &	
  Handout	
  
	
  	
  	
  
•	
  Author	
  	
  
	
  	
  	
  Tips	
  
C	
  	
  
•	
  Parent	
  &	
  
	
  	
  	
  Educator	
  	
  
	
  	
  	
  Lenses	
  
	
  	
  	
  w/	
  ac6vity	
  
✔	
  	
  
✔	
  	
  
✔	
  	
  
✔	
  	
  
✔	
  	
  
BEGINNING	
  
15	
  minutes	
  
MIDDLE	
  
95	
  minutes	
  
END	
  
15	
  minutes	
  
We’ve	
  covered	
  	
  
all	
  these	
  topics	
  ✔	
  
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
1.  Does	
  dyslexia	
  have	
  	
  
	
  	
  	
  	
  	
  upsides?	
  	
  	
  	
  
2.	
  	
  Should	
  DSM-­‐5	
  have	
  	
  	
  
	
  	
  	
  	
  	
  	
  included	
  dyslexia?	
  	
  	
  	
  
3.	
  	
  Is	
  the	
  dyslexia	
  construct	
  	
  
	
  	
  	
  	
  	
  valid?	
  	
  	
  	
  
4.	
  	
  Are	
  teachers	
  prepared	
  	
  
	
  	
  	
  	
  	
  to	
  teach	
  students	
  with	
  	
  	
  
	
  	
  	
  	
  	
  dyslexia?	
  
5.	
  	
  Will	
  “dyslexia	
  	
  
	
  	
  	
  	
  	
  	
  legislaJon”	
  make	
  a	
  	
  
	
  	
  	
  	
  	
  	
  difference?	
  
We	
  pondered	
  these	
  5	
  quesJons	
  
✔	
  	
  
✔	
  	
  
✔	
  	
  
✔	
  	
  
✔	
  	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
1.  Does	
  dyslexia	
  have	
  	
  
	
  	
  	
  	
  	
  upsides?	
  	
  
2.	
  	
  Should	
  DSM-­‐5	
  have	
  	
  	
  
	
  	
  	
  	
  	
  	
  included	
  dyslexia	
  	
  as	
  a	
  	
  
	
  	
  	
  	
  	
  	
  diagnosJc	
  category?	
  	
  	
  	
  
©	
  Cowen/Cushen	
  White	
  
It	
  oPen	
  depends	
  on	
  
environmental	
  demands.	
  	
  
DSM-­‐5	
  addresses	
  
dyslexia	
  more	
  
comprehensively	
  than	
  
DSM-­‐IV	
  and	
  more	
  
effec6vely	
  than	
  feared.	
  	
  	
  	
  
RECAP:	
  SHORT	
  ANSWERS	
  	
  	
  
N	
  	
  
3.	
  Is	
  the	
  dyslexia	
  construct	
  	
  	
  
	
  	
  	
  	
  valid?	
  	
  
4.	
  	
  Are	
  teachers	
  prepared	
  	
  
	
  	
  	
  	
  	
  to	
  teach	
  students	
  with	
  	
  	
  
	
  	
  	
  	
  	
  dyslexia?	
  
©	
  Cowen/Cushen	
  White	
  
Yes,	
  but	
  it	
  probably	
  is	
  
a	
  work	
  in	
  progress	
  
that	
  will	
  con6nue	
  to	
  
evolve.	
  	
  	
  	
  
Not	
  yet.	
  
RECAP:	
  SHORT	
  ANSWERS	
  	
  	
  
N	
  	
  
5.	
  	
  Will	
  “dyslexia	
  	
  
	
  	
  	
  	
  	
  	
  legislaJon”	
  make	
  a	
  	
  
	
  	
  	
  	
  	
  	
  difference?	
  
©	
  Cowen/Cushen	
  White	
  
Legisla6on	
  can	
  be	
  a	
  
powerful	
  lever,	
  but	
  it	
  can	
  
disappoint	
  if	
  it	
  does	
  not	
  
incorporate	
  key	
  elements	
  
of	
  model	
  legisla6on,	
  is	
  not	
  
grounded	
  in	
  evidence	
  -­‐
based	
  reading	
  instruc6on,	
  
and	
  is	
  not	
  paired	
  with	
  	
  	
  	
  
	
  	
  implementa6on	
  science	
  
RECAP:	
  SHORT	
  ANSWERS	
  	
  	
  
N	
  	
  
HANDOUT:	
  SHORT	
  ANSWERS	
  
Short	
  answers	
  	
  
are	
  on	
  	
  
p.	
  5	
  of	
  	
  
handout	
  	
  
N	
  	
  ©	
  Cowen/Cushen	
  White	
  
URLs	
  on	
  p.	
  1	
  	
  
•	
  Slides	
  for	
  this	
  	
  
	
  	
  	
  	
  presentation	
  
•	
  To	
  get	
  the	
  	
  
	
  	
  	
  	
  Examiner	
  
•	
  To	
  get	
  to	
  	
  	
  
	
  	
  	
  	
  	
  archives	
  &	
  	
  
	
  	
  	
  	
  	
  Examiner	
  	
  
	
  	
  	
  	
  	
  back	
  issues	
  	
  
	
  	
  	
  	
  	
  mentioned	
  	
  
EXAMINER	
  ARCHIVES	
  
N	
  	
  ©	
  Cowen/Cushen	
  White	
  
Drawing	
  from	
  our	
  
experiences	
  as	
  
•	
  Editors	
  
•	
  Professionals	
  in	
  the	
  	
  
	
  	
  	
  	
  field	
  for	
  decades	
  
©	
  Cowen/Cushen	
  White	
   N	
  	
  
Not necessarily
views of IDA	
  	
  	
  
DISCLAIMER!	
  
Dyslexia’s
Upside
DSM5 &
Dyslexia
Dyslexia
Debate
Teacher Prep
& Dyslexia
Dyslexia
Legislation
DYSLEXIA	
  
LITERACY	
  	
  
LANDSCAPE	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
DYSLEXIA	
  
LITERACY	
  	
  
LANDSCAPE	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
DSM5 &
Dyslexia
Dyslexia’s
Upside
Dyslexia
Debate
Teacher
Prep
Dyslexia
Legislation
Dynamic,	
  converging,	
  colliding	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
ESEA
Reauthorization
Elections
Economy
Pendulum
Swings in
Education
EducationReform
TestingBacklash
Federal
Role in
Education
Federal
Role in
TeacherEducation
Charter
Schools
IDEA
Funding
©	
  Cowen/Cushen	
  White	
   C	
  	
  
You!	
  	
  
There’s	
  another	
  
dynamic	
  force	
  at	
  
work	
  ...	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Examiner	
  	
  
ReporJng	
  	
  
Parent	
  
Stages	
  	
  
Educator	
  
Stages	
  	
  
©	
  Cowen/Cushen	
  White	
  
Why	
  these	
  
additional	
  	
  	
  
lenses	
  	
  
C	
  	
  
•	
  Explore	
  complex	
  	
  
	
  	
  	
  topics	
  shaping	
  the	
  	
  
	
  	
  	
  dyslexia-­‐literacy	
  	
  
	
  	
  	
  landscape	
  	
  
•	
  Get	
  perspectives	
  on	
  	
  
	
  	
  	
  	
  this	
  dynamic	
  	
  terrain	
  	
  
•	
  Inspire	
  you	
  to	
  follow	
  	
  
	
  	
  	
  paths	
  to	
  deeper	
  	
  
	
  	
  	
  exploration	
  	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Why	
  we	
  targeted	
  these	
  aims	
  	
  
We	
  hope	
  
you	
  
feeling	
  
less	
  like	
  
this	
  …	
  	
  	
  	
  
Lost	
  !!	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Empowered	
  	
  
to	
  play	
  a	
  role	
  	
  
and	
  make	
  a	
  
difference	
  as	
  
parents	
  and	
  
educators	
  	
  
©	
  Cowen/Cushen	
  White	
  
…	
  more	
  like	
  this	
  …	
  
C	
  	
  
Less	
  like	
  
this	
  …	
  	
  	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
More	
  	
  
like	
  this	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Why	
  
we	
  got	
  
meta	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
Where	
  you	
  
are	
  on	
  your	
  
path?	
  
Where	
  do	
  
you	
  want	
  	
  
to	
  be?	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
What	
  is	
  your	
  
next	
  step?	
  
THINK	
  ABOUT:	
  What	
  do	
  I	
  need	
  	
  
to	
  do	
  to	
  get	
  from	
  here	
  to	
  there?	
  
HERE	
   THERE	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
The	
  more	
  we	
  understand	
  the	
  dynamic	
  forces	
  at	
  
work	
  on	
  the	
  dyslexia/literacy	
  landscape	
  AND	
  where	
  
we	
  are	
  on	
  our	
  paths	
  as	
  educators	
  and	
  parents	
  …	
  	
  
…	
  the	
  better	
  prepared	
  
we	
  are	
  to	
  help	
  shape	
  
that	
  landscape	
  on	
  
behalf	
  of	
  children	
  with	
  
dyslexia	
  and	
  those	
  at-­‐
risk	
  for	
  reading	
  
difficulties	
  	
  
PREMISE	
  	
   C	
  	
  ©	
  Cowen/Cushen	
  White	
  
3	
  CALLS	
  TO	
  ACTION	
  
1.	
  Share	
  your	
  family’s	
  story	
  
2.	
  Sign	
  Understood.org’s	
  	
  
	
  	
  	
  	
  petition	
  
3.	
  Participate	
  in	
  Dyslexic	
  	
  
	
  	
  	
  	
  Advantage’s	
  Survey	
  
See	
  
HANDOUT	
  
to	
  learn	
  	
  
how	
  to	
  	
  
take	
  these	
  
acJons	
  
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
Why	
  is	
  all	
  
this	
  so	
  
important?	
  	
  
©	
  Cowen/Cushen	
  White	
  
C	
  	
  
These	
  are	
  more	
  than	
  staJsJcs!	
  
NAEP:	
  35%	
  4th	
  graders	
  reading	
  below	
  basic	
  	
  	
  
IDA:	
  Dyslexia	
  affects	
  10	
  -­‐20%	
  	
  	
  
©	
  Cowen/Cushen	
  White	
   C	
  	
  
They	
  are	
  
kids	
  	
  	
   C	
  	
  ©	
  Cowen/Cushen	
  White	
  
•	
  Economic/cost	
  to	
  	
  
	
  	
  	
  	
  society	
  argument	
  
•	
  Civil	
  rights	
  argument	
  
•	
  Unrealized	
  potential/	
  
	
  	
  	
  	
  talent	
  lost	
  to	
  society	
  	
  
	
  	
  	
  	
  argument	
  
GOOD	
  ARGUMENTS	
  
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
Humane	
  argument	
  
Read	
  out	
  loud	
  
together	
  …	
  
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
“Kids	
  in	
  3rd	
  grade	
  	
  
already	
  were	
  emotionally	
  
devastated.	
  	
  
I’d	
  ask	
  them	
  to	
  read	
  
out	
  loud	
  …	
  and	
  saw	
  
fear	
  in	
  their	
  eyes.	
  
By	
  nine	
  years	
  of	
  
age,	
  they’d	
  already	
  
failed.	
  How	
  do	
  we	
  
stop	
  this	
  before	
  	
  
it	
  starts?”	
  
G.	
  Reid	
  Lyon	
  
2013	
  PBIDA	
  
Conference	
  
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
How	
  	
  
do	
  we	
  	
  
STOP	
  	
  	
  this	
  before	
  	
  
it	
  starts?	
  
C	
  	
  ©	
  Cowen/Cushen	
  White	
  
We	
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They	
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our	
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LEGISLATION
DYSLEXIA’SUPSIDE
TEACHER
PREPARATION
DYSLEXIA
DEBATE
DSM5 &
DYSLEXIA
WHIRLWIND	
  TOUR!	
  	
  
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WHIRLWIND	
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10:30-12:30

Hot Topics:
Dyslexia &
Literacy 

10	
  
11	
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•  Examiner

•  Parent

•  Educator 

3 LENSES

1. Dyslexia’s Upside

2. DSM5 & Dyslexia

3. The Dyslexia Debate

4. Teacher Preparation 

5. Legislation

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2 

Activities

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•	
  Dyslexia’s	
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•	
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  &	
  Dyslexia	
  
•	
  Dyslexia	
  Debate	
  
•	
  Teacher	
  Prep	
  &	
  Dyslexia	
  
•	
  Dyslexia	
  Legislation	
  
•	
  And	
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FOR	
  FURTHER	
  READING	
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Also	
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•  scoop.it/t/dyslexia-­‐diablogue-­‐ida-­‐examiner	
  	
  	
  
•  slideshare.net/carolyndcowen	
  	
  
Advancing	
  dialogue	
  and	
  forward	
  	
  
thinking	
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  dyslexia	
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  new	
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COMMUNICATION	
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Power	
  	
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Getting theright helpcan changethe picture!

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Take a Whirlwind Tour of Hot Topics in Dyslexia & Literacy PART 2 (IDA Conference 2015)

  • 1. Carolyn  D.  Cowen   Nancy  Cushen  White   IDA  Oct  30,  2015     HOT  TOPICS     In  Dyslexia  &  Literacy     #DyslexiaCon   ©  Cowen/Cushen  White   Take  a  Whirlwind  Tour  of     PART  II.    
  • 2. SEE  PART  I     FOR  THE  BEGINNING  OF   THIS  PRESENTATION    
  • 3. DYSLEXIA’S UPSIDE DSM5 &DYSLEXIA DYSLEXIA DEBATE TEACHERPREPARATION LEGISLATION TOUR GUIDES ©  Cowen/Cushen  White   Join our whirlwind tour of HOT TOPICS in dyslexia & literacy C    
  • 4. 5  HOT  TOPICS     ✔     ©  Cowen/Cushen  White   N     1.  Dyslexia’s  Upside   2.  DSM-­‐5  &  Dyslexia   3.  The  Dyslexia  Debate   4.  Teacher  Preparation     5.  Legislation  
  • 5. 1.  Does  dyslexia  have              upsides?         2.    Should  DSM-­‐5  have                  included  dyslexia  as  a              separate  diagnosJc                category?       PONDER       ✔     ©  Cowen/Cushen  White   N    
  • 6. SHOW  OF  HANDS     Any  clinicians  in  the  room  using  DSM-­‐5?     ©  Cowen/Cushen  White   N    
  • 7. DSM-­‐5  &  Dyslexia   What  are  the  implications?     May  2012     Jan  2014     ©  Cowen/Cushen  White   N    
  • 8. What  is   DSM-­‐5?     Diagnostic  &  Statistical   Manual  of  Mental   Disorders  (DSM-­‐5th   Edition)           •  Published  by  American  Psychiatric            Association  (APA)     •  Includes  codes  for  all  recognized            mental  health  disorders   ©  Cowen/Cushen  White   HEADLINES     N    
  • 9. ©  Cowen/Cushen  White   HEADLINES     May  2012   Alerted  dyslexia   community  that     DSM-­‐5  might  NOT   include  proposed     new  language   incorporating   “dyslexia”  as  a   diagnostic  category   (Included  “Call-­‐To-­‐ Action”  petition)             N    
  • 10. Jan  2014   HEADLINES     ©  Cowen/Cushen  White   Dr.  Tannock’s     Q&A    defines  and   explains  new   DSM-­‐5  criteria  for   diagnosis  of     Specific  Learning     Disorder   N    
  • 11. DiagnosJc  Criteria     for  Specific  Learning   Disorder  (SLD)?   •  Eliminated  IQ-­‐achievement  discrepancy  as   requirement   •  Created  overarching  category  w/  “specifiers”            for  reading,  writing,  math  difficulties   Dr.  Rosemary     Tannock     ©  Cowen/Cushen  White   HEADLINES     •  Replaced  w/  4  new  criteria—ALL  MUST  be  met   •  Designated  3  levels  of  severity   N    
  • 12.  OVERARCHING  SLD  CATEGORY   ©  Cowen/Cushen  White   “Specifiers”  detail  impairment   in  3  major  domains   HEADLINES     Reading   Word  reading  accuracy,    reading  rate  or  fluency,   reading  comprehension   Written  expression    Spelling  accuracy,    grammar  and  punctuation    accuracy,    clarity  or  organization  of  written    expression   Math   Number  sense,    accurate  or  fluent  calculation,   accurate  math  reasoning   N    
  • 13.     4  NEW  CRITERIA  REPLACE  IQ  ACHIEVEMENT   DISCREPANCY  REQUIREMENT   ©  Cowen/Cushen  White   Measurement        •  Academic  skills  substantially  below      expected  for  age  or  …      •  Significant  interference  with  academic,                occupational,  or  daily  activities      •  Confirmed  by  standardized  achievement                measures  and  other  clinical  assessment   HEADLINES     At  least  1  (of  6)  Symptoms  (academic  areas)      •  Have  persisted  for  at  least  6  months        •  Despite  targeted  instruction   1   2   N    
  • 14.     4  NEW  CRITERIA  REPLACE  IQ  ACHIEVEMENT   DISCREPANCY  REQUIREMENT   ©  Cowen/Cushen  White   HEADLINES     3   Onset  during  school-­‐age  years.  (May  not   manifest  until  young  adulthood  or  later— when  academic  demands  exceed  capacity.)   o  Tests  under  strict  time  constraints   o  Reading  text  /  complex  syntax,  grammar   o  Writing  complex  essays,  reports   o  Increasingly  heavy  academic  or   workplace  requirements   Learning  difficulties  not  better  accounted  for   by  other  conditions,  as  in  previous  DSMs.     4   N    
  • 15. TANNOCK  SEES     SEVERAL  POSITIVE     IMPLICATIONS    Dr.  Rosemary     Tannock     ©  Cowen/Cushen  White   HEADLINES     1   New  criteria  call  for  evidence  of   symptom  persistence  and  wider  array   of  data  to  confirm/quantify  low  academic   achievement  —  may  encourage  educator   -­‐clinician-­‐parent  collaboration  to   compile  formal/informal  data   N    
  • 16. TANNOCK  SEES     SEVERAL  POSITIVE     IMPLICATIONS    Dr.  Rosemary     Tannock     ©  Cowen/Cushen  White   HEADLINES     2   DSM-­‐5    “specifiers”  characterizing  the   range  of  academic  skills  affected  by   dyslexia  may  increase  awareness  that   dyslexia  typically  encompasses  more     than  decoding/spelling  difficulties     N    
  • 17. HEADLINES     ©  Cowen/Cushen  White   Dr.  Rosemary     Tannock     3   DSM-­‐5  “specifiers”  also  may  build   understanding  that  increasing  learning   demands  trigger  developmental  changes   in  SLD  symptoms  over  time   TANNOCK  SEES     SEVERAL  POSITIVE     IMPLICATIONS     N    
  • 18. TANNOCK  SEES     SEVERAL  POSITIVE     IMPLICATIONS    Dr.  Rosemary     Tannock     ©  Cowen/Cushen  White   HEADLINES     Eliminating  IQ-­‐achievement-­‐discrepancy   requirement  eliminates  lengthy/costly   neuropsych.  assessment  requirement;   encourages  evaluators  to  shift  from   assessment  for  diagnosis  to  assessment     for  intervention   4   N    
  • 19. May  2012     Jan  2014     DSM-­‐5  &  Dyslexia   What  are  the  implications?     ©  Cowen/Cushen  White   N    
  • 20. !FROM  A  CLINICIAN’S  PERSPECTIVE"   Recognizes  unique  profile  of  2e  students   Acknowledges  effects  of  increasing     academic  demands  over  time     Notes  diminishing  returns  for  use  of     certain  compensatory  strategies   Discourages  use  of  cut-­‐off  scores   Encourages  use  of  clinical  judgment   1   2   3   4   5   N     5  MORE  POSITIVE  IMPLICATIONS   HIGHLIGHTING  INDIVIDUAL   DIFFERENCES     ©  Cowen/Cushen  White  
  • 21. •  Dyslexia  was  not  a  diagnostic  category  in            DSM-­‐IV  either   ©  Cowen/Cushen  White   TAKE-­‐AWAYS     •  Discussion  of    “specifiers”  may  increase          opportunities  for  use  of  diagnosis  to  inform            instructional  planning     •  BUT  DSM-­‐5  includes  IDA  definition  in            “specifiers”  section  AND  suggests  dyslexia            as  alternative  term  for  SLD  with  impairment            in  reading       N    
  • 22. •  Dyslexia  often  more  than            decoding/spelling  difficulties       •  Parent-­‐school-­‐psychologist  collaboration      can  deepen  understanding  and  can  inform      instructional  planning     •  Psychometric  data  do  NOT  tell  whole  story   •    Increased  demands  over      time    compound    developmental  symptoms       MORE  TAKE-­‐AWAYS     ©  Cowen/Cushen  White   N    
  • 23. ©  Cowen/Cushen  White                    Should  DSM-­‐5  have  included                                        dyslexia  as  a  diagnosJc                                                    category?       N    
  • 24. ©  Cowen/Cushen  White                    Should  DSM-­‐5  have  included                                        dyslexia  as  a  diagnosJc                                                    category?       N     DSM-­‐5  addresses  dyslexia   far  more  comprehensively   than  DSM-­‐IV  and  far   beaer  than  iniJally  feared —especially  in  aaenJon   to  individual  differences,   encouragement  to   collaborate,  and  use  of   mulJple  tools  for            assessment.  
  • 25. 12  11   10   ©  Cowen/Cushen  White   Should  be  11:40     C    
  • 26. 5  HOT  TOPICS     ✔     ✔     ©  Cowen/Cushen  White   C     1.  Dyslexia’s  Upside   2.  DSM-­‐5  &  Dyslexia   3.  The  Dyslexia  Debate   4.  Teacher  Preparation     5.  Legislation  
  • 27. 1.  Does  dyslexia  have              upsides?         2.    Should  DSM-­‐5  have                  included  dyslexia?         3.    Is  the  dyslexia  construct              valid?         PONDER       ✔     ✔     ©  Cowen/Cushen  White   C    
  • 28. SHOW  OF  HANDS     How  many  of  you  have  read  the  book?     ©  Cowen/Cushen  White   C    
  • 29. The  Dyslexia  Debate   Worth  learning  about!     April  2014     June  2014     ©  Cowen/Cushen  White   C    
  • 30. (Winter/Spring  2014)     Argues     dyslexia  NOT     a  scientifically   rigorous   construct  for   research  or   educational/ clinical  practice           HEADLINES     ©  Cowen/Cushen  White   C    
  • 31. •  Does  NOT  dispute                existence  of            biologically-­‐based            reading  difficulties     •  Proposes  generic            term  reading            disabilities  instead     Drs.  Julian  Ellioa     &  Elena  Grigorenko     HEADLINES     ©  Cowen/Cushen  White   C    
  • 32. Many  states     incorporating   “dyslexia”  &   IDA-­‐NICHD   definition  into   dyslexia  laws    IDA  President   Hal  Malchow     IDA  RESPONSE   April  2014   HEADLINES     ©  Cowen/Cushen  White   C    
  • 33. At  IDA,  we  understand   the  science  behind   reading  disorders       Also  understand  power  of  common   language  &  mission/purpose  it   provides         IDA  RESPONSE  CONT.   HEADLINES     IDA  President     Hal  Malchow     ©  Cowen/Cushen  White   C    
  • 34. IDA  RESPONSE  CONT.   IDA  President     Hal  Malchow     …  Dyslexia,  a  beauJful   word.  True,  describes  a   category  of  learning   disorders.         But,  also  describes  community,  body   of  knowledge,  category  of  law,  more   positive  sense  of  self,  belief  about   progress  we  can  achieve  together.   HEADLINES     ©  Cowen/Cushen  White   C    
  • 35. WOLF  RESPONSE   Dr.  Maryanne     Wolf     June  2014   HEADLINES     ©  Cowen/Cushen  White   C    
  • 36. SHOW  OF  HANDS     How  many  have  read  the  book?    Heard  Wolf  speak?     ©  Cowen/Cushen  White   C    
  • 37. WOLF  RESPONSE   •  Much  to                      learn  from            this  book!     •  Six              insights       Dr.  Maryanne     Wolf     June  2014   HEADLINES     ©  Cowen/Cushen  White   C    
  • 38. Science’s  search  for   parsimony  has  led  to       simplistic  1-­‐dimensional     explanations  w/  various   names   History  of  different  explanations  and   names  of  dyslexia  arise  from  the   complexity  of  the  reading  circuit   HEADLINES     SIX  INSIGHTS   Dr.  Maryanne  Wolf     2   1   ©  Cowen/Cushen  White   C    
  • 39. The  brain  can/does   make  different     reading  circuits!              May  be  a  different  reading  circuit     in  some  children  that’s  genetically   based  and  that  advantages  the  RIGHT   hemisphere  for  normally  LEFT   hemisphere  tasks     HEADLINES     3   ©  Cowen/Cushen  White   SIX  INSIGHTS   Dr.  Maryanne  Wolf     C    
  • 40. All  this  dynamic   complexity  makes           understanding  dyslexia     research  difficult          (Note:  Hence,  the  challenge  with  a              scien6fically  rigorous  construct  of                dyslexia)         HEADLINES     4   ©  Cowen/Cushen  White   SIX  INSIGHTS   Dr.  Maryanne  Wolf     C    
  • 41. Grigorenko  illuminates     how  geneJcs  of  dyslexia     is  connected  to  structural     &  behavioral  research   But  Wolf  differs  with  authors’   conclusions—she  asserts  THREE   addiJonal  points  ….   HEADLINES     5   6   ©  Cowen/Cushen  White   SIX  INSIGHTS   Dr.  Maryanne  Wolf     C    
  • 42. “NOT  UP  FOR  DEBATE”   •    Children  w/  dyslexia  are  best              served  w/  diagnosis  &              explanation  of  their  reading  difficulties   •  No  one  w/  dyslexia  should  feel    they  are            lazy,  less  smart!   •  That  dyslexia’s  construct  (like  reading)            is  complex,  is  no  reason  to  return  to            general  terms—e.g.,  “Reading  Disabilities”       HEADLINES     ©  Cowen/Cushen  White   C    
  • 43. The  Dyslexia  Debate   Worth  learning  about!     April  2014     June  2014     ©  Cowen/Cushen  White   C    
  • 44. The  various     hallmark                      characterisJcs  of                        dyslexia  fall  along                  conJnuums  of                              severity  that  are  not                                  fixed  —  can  change              across  lifespan  &    improve  especially   w/  good  teaching.               Dyslexia,  like     ADHD,  auJsm  spectrum   disorder,  is  LESS  a  disJnct   syndrome  w/  clear     diagnosJc  markers  &     obvious  demarcaJons;     MORE  a  developmental   mulJdimensional-­‐            spectrum  condiJon.       TAKE-­‐AWAYS     ©  Cowen/Cushen  White   C    
  • 45. Therein  lies  one   of  the  great   challenges  in   dyslexia’s   construct  —  thus,  in  how  individuals   with  dyslexia  are  identified  and  for   whom  treatments  and  resources  are   allocated  and  accommodated  are   granted.         MORE  TAKE-­‐AWAYS     ©  Cowen/Cushen  White   C    
  • 46. school Will  this  debate  hurt  families   struggling  with  dyslexia   trying  to  find  appropriate   services  in  schools?   ©  Cowen/Cushen  White   C    
  • 47. September  24,  2015:  Experts  Consider   Abandoning  Term  Dyslexia—No  Consensus   POSTSCRIPT       ©  Cowen/Cushen  White   C    
  • 48. ©  Cowen/Cushen  White   Is  the  dyslexia  construct  valid?       C    
  • 49. ©  Cowen/Cushen  White   Is  the  dyslexia  construct  valid?       The  dyslexia  construct  is   challenging  and  complex— like  the  developmental,   mulJdimensional-­‐spectrum   condiJon  the  construct  seeks   to  capture.  That  it  remains   so  difficult  lends  credibility   to  efforts  thus  far.  BUT  given   the  pace  of  scienJfic   discovery,  it’s  reasonable  to   think  of  today’s  construct  as              a  work  in  progress.     C    
  • 50. 12  11   10   Should  be  11:49     ©  Cowen/Cushen  White   C    
  • 51. Time  to   energize!     ©  Cowen/Cushen  White   C    
  • 52. Stand  and  Clap!!   ©  Cowen/Cushen  White   C     20x/30x/40x  softly/vigorously  
  • 55. 1.  Dyslexia’s  Upside   2.  DSM5  &  Dyslexia   3.  The  Dyslexia  Debate   4.  Teacher  Preparation     5.  Legislation   5  HOT  TOPICS     ✔     ✔     ✔     ©  Cowen/Cushen  White   N    
  • 56. 1.  Does  dyslexia  have              upsides?         2.    Should  DSM-­‐5  have                  included  dyslexia?         3.    Is  the  dyslexia  construct              valid?         4.    Are  teachers  prepared              to  teach  students  with                dyslexia?   PONDER       ✔     ✔     ✔     ©  Cowen/Cushen  White   N    
  • 57. SHOW  OF  HANDS     How  many  of  you  teach  reading?     How  many  of  you  prepare  teachers   to  teach  reading?       ©  Cowen/Cushen  White   N    
  • 58. July  2014    June  2013     Are  teachers  being  prepared  to  teach   vulnerable  students?     Teacher  Prep  Reform     ©  Cowen/Cushen  White   N    
  • 59. National  Council  on   Teacher  Quality   (NCTQ)  releases   reports  on  how  well   US  Schools  of  Ed.   prepare  teachers  to   enter  classrooms.     hap://www.nctq.org   HEADLINES     ©  Cowen/Cushen  White   N     Also  released  in  US   News  &  World  Report.          
  • 60. Reported  on  1st   edition  of  NCTQ’s   Teacher  Prep  Review   evaluating  1,100+   colleges/university’s   preparing  elementary   &  secondary  teachers.     June  2013   HEADLINES     ©  Cowen/Cushen  White   N     Which  does  best/ weakest  job  preparing   new  teachers?  
  • 61. Examiner  also  reported     release  of  2nd  edition     of  NCTQ’s  Teacher     Prep  Review.   Neither  report  positive   (though  2nd  mentions   early  evidence  teacher   prep  programs  making   changes).     July  2014   HEADLINES     ©  Cowen/Cushen  White   Both  controversial!       N    
  • 62. Teacher  PreparaJon     Another  Approach   May  2012   Sept  2015   ©  Cowen/Cushen  White   N    
  • 63. Teacher  Prep  Reform     Two  very  different     approaches   HEADLINES     ©  Cowen/Cushen  White   N    
  • 64. Are  teachers  being  prepared  to  teach   vulnerable  students?     Teacher  Prep  Reform     ©  Cowen/Cushen  White   N    
  • 65. TAKE-­‐AWAYS     To teach reading well— especially to students who struggle— teachers need deep content knowledge of language structure ©  Cowen/Cushen  White   N    
  • 66. Teacher  prep  reform   &  targeted  PD  are     key,  but  HOT   BUTTON  issues  that   inflame  passions  &   get  highly  politicized.  Watch     for  these  to  be  even  more     contentious  &  central  in     dyslexia/literacy  legislation.         Teacher  Prep  Reform   TAKE-­‐AWAYS   ©  Cowen/Cushen  White   N    
  • 67. To  dive  more  deeply  into  teacher   preparation  and  IDA’s  Knowledge  &   Practice  Standards…   Friday,  11:45-­‐12:45   Friday,  2:00-­‐5:00   DEEPER  EXPLORATION   N    ©  Cowen/Cushen  White  
  • 68. ©  Cowen/Cushen  White            Are  teachers  prepared  to  teach                                            students  with  dyslexia?       N    
  • 69. ©  Cowen/Cushen  White       Not  yet.          Are  teachers  prepared  to  teach                                            students  with  dyslexia?       N    
  • 70. 12  11   10   Should  be  11:58     ©  Cowen/Cushen  White   C     BAIL-­‐OUT  PLAN?  Vote?    
  • 71. 1.  Dyslexia’s  Upside   2.  DSM5  &  Dyslexia   3.  The  Dyslexia  Debate   4.  Teacher  Preparation     5.  Legislation   5  HOT  TOPICS     ✔     ✔     ✔     ✔     ©  Cowen/Cushen  White   C    
  • 72. 1.  Does  dyslexia  have              upsides?         2.    Should  DSM-­‐5  have                  included  dyslexia?         3.    Is  the  dyslexia  construct              valid?         4.    Are  teachers  prepared              to  teach  students  with                dyslexia?   5.    Will  “dyslexia                legislaJon”  make  a                difference?   PONDER       ✔     ✔     ✔     ✔     ©  Cowen/Cushen  White   C    
  • 73. LegislaJon:   Not  in  our   wheelhouse     Looking     for  a   legislation-­‐ policy   reporter!   ©  Cowen/Cushen  White   C    
  • 74. Dyslexia  &  Literacy  LegislaJon     Levers  for  change     ©  Cowen/Cushen  White   C    
  • 75. SHOW  OF  HANDS     How  many  of  you  are  involved  in     state  legislative  efforts?     ©  Cowen/Cushen  White   C    
  • 76. 38  States  are  Reported  to  Have     Dyslexia  LegislaJon  Enacted  or  Underway     Alabama   Arizona   Arkansas   California   Colorado   Connecticut   Florida   Hawaii   Illinois   Indiana   Iowa   Kansas   Kentucky   Louisiana   Maine   Maryland   Massachusetts   Mississippi   Missouri   Nevada   New  Hampshire   New  Jersey   New  Mexico   New  York   North  Carolina   Ohio   Oklahoma   Oregon   Pennsylvania   Rhode  Island   Tennessee   Texas   Utah   Virginia   Washington   West  Virginia   HEADLINES     ©  Cowen/Cushen  White   CAUTION:   Not  100%   certain   this  list  is   accurate/ up  to  date   Wisconsin   Wyoming   C    
  • 77. OH  Senate  passed     HB  96  &  157  Dec.  14       Dec.  2011     Watch  the  Bill  pass       Ohio  Passes  Dyslexia  LegislaJon     HEADLINES     ©  Cowen/Cushen  White   C    
  • 78. Ohio,  New  Jersey,     Wisconsin,  South  Carolina       Jan    2012     Feb    2013     Reporting  &  Mobilizing       Aug    2013     Mar  2014    Dec.  2011     HEADLINES     ©  Cowen/Cushen  White   C    
  • 79. Deborah     Lynam     Dr.  Gordon   Sherman     Dr.  Charloae   Andrist   Elenn   Steinberg   LESSONS:  Looking  back  at  lessons  from  your  state’s   dyslexia  legislation  efforts  and  ahead  at  future   challenges  and  opportunities,  what  ONE  thing  is  the   most  important  consideration  going  forward  …  or  for   those  following  in  your  footsteps  in  other  states?     HEADLINES—LESSONS     ©  Cowen/Cushen  White   C    
  • 80. Using  the  IDA-­‐NICHD   definition  of  dyslexia  made   all  the  difference  in  NJ.  It  was   the  science-­‐based  stepping   stone  to  everything  else  .   Deborah     Lynam     Dr.  Gordon   Sherman     Legislation  is  important,  but     Impact  is  in    implementation.  Building   coalitions  is  key.  Schools,  administrators,   teachers  need  to  buy  in.  Being  mandated     is  a  start;  understanding  WHY  is  most   powerful.  We’ve  a  knowledge-­‐practice  gap.   HEADLINES—LESSONS     ©  Cowen/Cushen  White   C    
  • 81. Too  often,  as  parents  we  think  dyslexia   legislation  will  fix  a  broken  system.  We   cannot  se?le  for  unfunded  mandates  and   minimal  programs  to  educate  teachers.   Make  public  your  quest.  Con6nue  to  push   to  get  colleges  of  educa6on  to  produce   teachers  who  know  how  to  teach  reading.     Dr.  Charloae   Andrist   Elenn   Steinberg   It’s  all  about  having  a  well-­‐placed  advocate —for  example,  a  senator,  congressman,  or   state  school  board  member  of  a  child  with   dyslexia.  You  must  do  your  homework,   educate,  and  network,  but  a  strong  and   passionate  advocate  is  a  must.   HEADLINES—LESSONS     ©  Cowen/Cushen  White   C    
  • 82. Deborah     Lynam     Dr.  Gordon   Sherman     Dr.  Charloae   Andrist   Elenn   Steinberg   Priceless  words  of  wisdom!   HEADLINES—LESSONS     ©  Cowen/Cushen  White   C    
  • 83. State  Literacy  LegislaJon     LESSONS  FROM:   •  Colorado   •  Connecticut   •  Minnesota   literatenaJon.org   RESOURCES     ©  Cowen/Cushen  White   C    
  • 84. Model  LegislaJon  to   •  Promote  literacy   •  Remediate  dyslexia       literatenaJon.org  Cinthia  Coles   Elenn   Steinberg   ©  Cowen/Cushen  White   RESOURCES     C    
  • 85. HANDOUT:  LITERATE  NATION  PUBLCATI0NS   URL  for     Literate  Nation   Publications     is  on     p.  5  of     handout     C    ©  Cowen/Cushen  White  
  • 86. April  2012     June  2012     Dyslexia  Goes  to  Congress     May  2012     Jan.  2014     July.  2014     HEADLINES     ©  Cowen/Cushen  White   April-­‐May  201     Sept.  2015     Sept.  2015     C    
  • 87. HEADLINES     •  Chair,          Lamar  Smith     •  Hon.          Bill  Cassidy   •  Hon.          Julia  Brownley     Sept.  2014     ©  Cowen/Cushen  White   2014  HEARING     C     Commiaee  on  Science,  Space,  Technology  
  • 88. HEADLINES     Bill  Cassidy   Commiaee  on  Science,   Space,  Technology   CHAIR     Lamar  Smith       BiparJsan     Congressional     Dyslexia  Caucus   CO-­‐CHAIRS     Lamar  Smith   Julia  Brownley         BACKGROUND     ©  Cowen/Cushen  White   C    
  • 89. HEADLINES     2015  HEARING     Commiaee  on  Science,  Space,  Technology    CHAIR  Lamar  Smith       •  Ms.  Barbara  Wilson   •  Dr.  Paula  Tallal   •  Dr.  Rachel  Robillard     Dyslexia  and  the   Need  to  READ  Act:     H.R.  3033,   Research   Excellence  and   Advancements  for   Dyslexia    WITNESSES     Sept.  30,  2015     ©  Cowen/Cushen  White   C    
  • 90. HEADLINES     READ  Act    clears  committee     with  bipartisan  support   OCTOBER  8,  2015       Commiaee  on  Science,  Space,  Technology   WOULD FUND R&D •  Early  identification   •  Professional  development  for            teachers  &  administrators   •  Curricula  development  &            evidence-­‐  based  educational  tools   ©  Cowen/Cushen  White   Oct.  2015     C    
  • 91. SHOW  OF  HANDS     Did  any  of  you  attend  or  watch  on  video?     ©  Cowen/Cushen  White   C    
  • 92. HEADLINES     •  House  Committee  Convenes            Hearing  on  Dyslexia   •  Secretary  of  Education  Issues            Statement  on  LD,  Dyslexia,  ADHD     •  House  Committee  Approves              READ  Act   •  Senate  Passes  Bipartisan            Resolution  on  Dyslexia   ©  Cowen/Cushen  White   Oct.  2015     C    
  • 93. HEADLINES     Duncan  Issues  Statement     on  LD,  Dyslexia  &  ADHD     “These  students   often  experience   challenges  in   school  related  to   reading,  writing,   mathematics,     and  focus,  but   these     students     also  have     great  strengths   and  enormous   potential”   OCTOBER  5,  2015   ©  Cowen/Cushen  White   C    
  • 94. Senate  Passes  BiparJsan     ResoluJon  on  Dyslexia   HEADLINES     Designating  October  2015     National  Dyslexia  Awareness  Month     OCTOBER  9,  2015   ©  Cowen/Cushen  White   C    
  • 95. HEADLINES     ©  Cowen/Cushen  White   •  JULY  14-­‐15            Dyslexia  Hill    Day            promoted  reform   DC  Summer  2015—   EvenKul  for  dyslexia   •  JULY  16            Senate  passed  Every  Child            Achieves  Act  (ESEA            Reauthorization)   •  JULY  31            Dyslexia  Caucus            letter  to  DOE   Sept.  2015     C    
  • 96. ©  Cowen/Cushen  White   HEADLINES     April-­‐May  2015     “Cassidy  Amendments”   on  dyslexia  defeated   •  Introduced  2  amendments  to              NCLB/ESEA    reauthorization              bill    (Every  Child  Achieves)     •  Related  to  training  to              recognize  dyslexia  &  other              LDs  and  to  ensuring  resources              for  academic  success   •  Reasons  Cited  for  Defeat              Unfair  to  single  out  one              disability  group   C    
  • 97. Sea  Change?     Idiom  for     broad  transformation     (From  a  phrase  in     Shakespeare’s  The  Tempest)   ©  Cowen/Cushen  White   C    
  • 98. Sea  Change?     ©  Cowen/Cushen  White   C    
  • 99. SHOW  OF  HANDS      Members  of  Decoding  Dyslexia?     ©  Cowen/Cushen  White   C    
  • 100. Sea  Change?     BOSTON   ©  Cowen/Cushen  White   C    
  • 101. LegislaJon  can     be  an  important   lever  for  change     CHANGE     CAUTION     C    ©  Cowen/Cushen  White  
  • 102. But Legislation is only part of the equation EFFECTIVE INTERVENTIONS EFFECTIVE IMPEMENTATION METHODS ENABLING CONTEXTS INTENDED OUTCOMES IMPLEMENTATION SCIENCE Various components, accountabilities, and shifts are needed to create a system that will support and sustain effective programs and practices C    ©  Cowen/Cushen  White  
  • 103. IMPLEMENTATION  SCIENCE     SystemaJc  study  of  variables   and  condiJons  that  lead  to     full  and  effecJve  use  of   evidence-­‐based  pracJces  and   other  effecJve  innovaJons  in   human-­‐service  sesngs     HEADLINE     C    ©  Cowen/Cushen  White  
  • 104. But Legislation is only part of the equation EFFECTIVE INTERVENTIONS EFFECTIVE IMPEMENTATION METHODS ENABLING CONTEXTS INTENDED OUTCOMES IMPLEMENTATION SCIENCE Various components, accountabilities, and shifts are needed to create a system that will support and sustain effective programs and practices C    ©  Cowen/Cushen  White  
  • 105. There  is  a  science  to   effecJve  reading   instrucJon  …  AND   there is a science to effective implementation HEADLINE     C    ©  Cowen/Cushen  White  
  • 106. There  is  a  science  to  implemenJng  change     Jan.  2015     literatenaJon.org/   libraries/libraries-­‐research/   Spring  2015     ©  Cowen/Cushen  White   RESOURCES     C    
  • 107. URLs  for  Examiner  are  on  p.  1       &  for  Literate  Nation  are  on  p.  5     HANDOUT     ©  Cowen/Cushen  White   C    
  • 108. To  learn  more  about   implementation  science  …   Friday,  2:00-­‐3:00   DEEPER  EXPLORATION   C    ©  Cowen/Cushen  White  
  • 109. To  learn  more  about  legislation     issues,  get  tapes  for  …   Thursday,   3:00-­‐4:00   Friday,   10:30-­‐11:30   DEEPER  EXPLORATION   C    ©  Cowen/Cushen  White  
  • 110. Dyslexia  &  Literacy  LegislaJon     Levers  for  change     ©  Cowen/Cushen  White   C    
  • 111. TAKE-­‐AWAYS     ©  Cowen/Cushen  White   •  To  steer  clear  of  avoidable  pitfalls  and  to              help  enact  effective  legislation,  parent                                                                                                                                activists  need                                                                                                                                        good  info.,                                                                                                                                    resources,                                                                                                                                and  support—                                                                                                                                        e.g.,  model                                                                                                                                legislation   •  A  strong    dyslexia-­‐literacy  legislative              movement  is  underway—driven  to              a  large  degree  by  parents              mobilizing  at  grassroots  levels     C    
  • 112. TAKE-­‐AWAYS     ©  Cowen/Cushen  White   •  Legislation  and  top-­‐          down  mandates  often          are  necessary,  but  not          sufficient     C     •  Implementation            science  is  a  key            ingredient  for            generating  effective            and  sustainable            change          
  • 113. ©  Cowen/Cushen  White   Will  dyslexia-­‐literacy  legislaJon                                          make  a  difference?       C    
  • 114. It  can  be  a  powerful  lever,   IF  it  includes  core  elements   of  effecJve  legislaJon  (e.g.,   Literate  NaJon’s  model   legislaJon,  IDA  definiJon),   is  grounded  in  the  science   of  reading  and  effecJve   instrucJon  (e.g.,  IDA’s   KPS),  &  is  combined  with     implementaJon  science              pracJces       ©  Cowen/Cushen  White   Will  dyslexia-­‐literacy  legislaJon                                          make  a  difference?       C    
  • 115. ©  Cowen/Cushen  White   C     10   11  12   !  
  • 116. 3  PARTS   •  Aims  &          Challenge   •  Wrap  Up   •  Examiner  Lens          (5  Hot  topics)        w/  ac6vity  at  end        of  1st  Hot  Topic   ©  Cowen/Cushen  White   •  Lens        Preview         •  Call  to          AcJon   •  Q&A   •  Ground  Rules          &  Handout         •  Author          Tips   C     •  Parent  &        Educator          Lenses        w/  ac6vity   ✔     ✔     ✔     ✔     ✔     BEGINNING   15  minutes   MIDDLE   95  minutes   END   15  minutes  
  • 117. We’ve  covered     all  these  topics  ✔   C    ©  Cowen/Cushen  White  
  • 118. 1.  Does  dyslexia  have              upsides?         2.    Should  DSM-­‐5  have                  included  dyslexia?         3.    Is  the  dyslexia  construct              valid?         4.    Are  teachers  prepared              to  teach  students  with                dyslexia?   5.    Will  “dyslexia                legislaJon”  make  a                difference?   We  pondered  these  5  quesJons   ✔     ✔     ✔     ✔     ✔     ©  Cowen/Cushen  White   N    
  • 119. 1.  Does  dyslexia  have              upsides?     2.    Should  DSM-­‐5  have                  included  dyslexia    as  a                diagnosJc  category?         ©  Cowen/Cushen  White   It  oPen  depends  on   environmental  demands.     DSM-­‐5  addresses   dyslexia  more   comprehensively  than   DSM-­‐IV  and  more   effec6vely  than  feared.         RECAP:  SHORT  ANSWERS       N    
  • 120. 3.  Is  the  dyslexia  construct              valid?     4.    Are  teachers  prepared              to  teach  students  with                dyslexia?   ©  Cowen/Cushen  White   Yes,  but  it  probably  is   a  work  in  progress   that  will  con6nue  to   evolve.         Not  yet.   RECAP:  SHORT  ANSWERS       N    
  • 121. 5.    Will  “dyslexia                legislaJon”  make  a                difference?   ©  Cowen/Cushen  White   Legisla6on  can  be  a   powerful  lever,  but  it  can   disappoint  if  it  does  not   incorporate  key  elements   of  model  legisla6on,  is  not   grounded  in  evidence  -­‐ based  reading  instruc6on,   and  is  not  paired  with            implementa6on  science   RECAP:  SHORT  ANSWERS       N    
  • 122. HANDOUT:  SHORT  ANSWERS   Short  answers     are  on     p.  5  of     handout     N    ©  Cowen/Cushen  White  
  • 123. URLs  on  p.  1     •  Slides  for  this            presentation   •  To  get  the            Examiner   •  To  get  to                archives  &              Examiner              back  issues              mentioned     EXAMINER  ARCHIVES   N    ©  Cowen/Cushen  White  
  • 124. Drawing  from  our   experiences  as   •  Editors   •  Professionals  in  the            field  for  decades   ©  Cowen/Cushen  White   N     Not necessarily views of IDA       DISCLAIMER!  
  • 125. Dyslexia’s Upside DSM5 & Dyslexia Dyslexia Debate Teacher Prep & Dyslexia Dyslexia Legislation DYSLEXIA   LITERACY     LANDSCAPE     ©  Cowen/Cushen  White   C    
  • 126. DYSLEXIA   LITERACY     LANDSCAPE     ©  Cowen/Cushen  White   C    
  • 129. You!     There’s  another   dynamic  force  at   work  ...   ©  Cowen/Cushen  White   C    
  • 130. Examiner     ReporJng     Parent   Stages     Educator   Stages     ©  Cowen/Cushen  White   Why  these   additional       lenses     C    
  • 131. •  Explore  complex          topics  shaping  the          dyslexia-­‐literacy          landscape     •  Get  perspectives  on            this  dynamic    terrain     •  Inspire  you  to  follow          paths  to  deeper          exploration       ©  Cowen/Cushen  White   C     Why  we  targeted  these  aims    
  • 132. We  hope   you   feeling   less  like   this  …         Lost  !!   ©  Cowen/Cushen  White   C    
  • 133. Empowered     to  play  a  role     and  make  a   difference  as   parents  and   educators     ©  Cowen/Cushen  White   …  more  like  this  …   C    
  • 134. Less  like   this  …         ©  Cowen/Cushen  White   C    
  • 135. More     like  this   ©  Cowen/Cushen  White   C    
  • 136. Why   we  got   meta     ©  Cowen/Cushen  White   C    
  • 137. Where  you   are  on  your   path?   Where  do   you  want     to  be?   ©  Cowen/Cushen  White   C     What  is  your   next  step?  
  • 138. THINK  ABOUT:  What  do  I  need     to  do  to  get  from  here  to  there?   HERE   THERE   ©  Cowen/Cushen  White   C    
  • 139. The  more  we  understand  the  dynamic  forces  at   work  on  the  dyslexia/literacy  landscape  AND  where   we  are  on  our  paths  as  educators  and  parents  …     …  the  better  prepared   we  are  to  help  shape   that  landscape  on   behalf  of  children  with   dyslexia  and  those  at-­‐ risk  for  reading   difficulties     PREMISE     C    ©  Cowen/Cushen  White  
  • 140. 3  CALLS  TO  ACTION   1.  Share  your  family’s  story   2.  Sign  Understood.org’s            petition   3.  Participate  in  Dyslexic            Advantage’s  Survey   See   HANDOUT   to  learn     how  to     take  these   acJons   C    ©  Cowen/Cushen  White  
  • 141. Why  is  all   this  so   important?     ©  Cowen/Cushen  White   C    
  • 142. These  are  more  than  staJsJcs!   NAEP:  35%  4th  graders  reading  below  basic       IDA:  Dyslexia  affects  10  -­‐20%       ©  Cowen/Cushen  White   C    
  • 143. They  are   kids       C    ©  Cowen/Cushen  White  
  • 144. •  Economic/cost  to            society  argument   •  Civil  rights  argument   •  Unrealized  potential/          talent  lost  to  society            argument   GOOD  ARGUMENTS   C    ©  Cowen/Cushen  White  
  • 145. Humane  argument   Read  out  loud   together  …   C    ©  Cowen/Cushen  White  
  • 146. “Kids  in  3rd  grade     already  were  emotionally   devastated.     I’d  ask  them  to  read   out  loud  …  and  saw   fear  in  their  eyes.   By  nine  years  of   age,  they’d  already   failed.  How  do  we   stop  this  before     it  starts?”   G.  Reid  Lyon   2013  PBIDA   Conference   C    ©  Cowen/Cushen  White  
  • 147. How     do  we     STOP      this  before     it  starts?   C    ©  Cowen/Cushen  White  
  • 148. We  each  have  a  role  to  play.     We  each  can  make  a  difference.   C    ©  Cowen/Cushen  White  
  • 149. These  are   ALL  our  kids       C    ©  Cowen/Cushen  White  
  • 150. They  are   our  future   C    ©  Cowen/Cushen  White  
  • 152. WHIRLWIND  TOUR     10:30-12:30 Hot Topics: Dyslexia & Literacy 10   11  12   •  Examiner •  Parent •  Educator 3 LENSES 1. Dyslexia’s Upside 2. DSM5 & Dyslexia 3. The Dyslexia Debate 4. Teacher Preparation 5. Legislation ©  Cowen/Cushen  White   2 Activities N    
  • 153. N     Tips  for  Aspiring  Examiner  Authors   IDA  EXAMINER   HANDOUT  available  up   front  after  session       •  Feature  Writers   •  Contributing  &  Copy            Editors   •  Legislation/Policy                  Reporter   •  Editor  to  help  people            with  dyslexia  tell  their            stories       ©  Cowen/Cushen  White   Interested  in  WriJng  for  the  Examiner?  
  • 154. THANK  YOU!     ©  Cowen/Cushen  White   N    
  • 155. QUESTIONS?     ©  Cowen/Cushen  White   N    
  • 156. IDA Oct 30!!           ©  Cowen/Cushen  White  
  • 157. •  Dyslexia’s  Upside   •  DSM5  &  Dyslexia   •  Dyslexia  Debate   •  Teacher  Prep  &  Dyslexia   •  Dyslexia  Legislation   •  And  more!   FOR  FURTHER  READING  ON     Find  me  on  Twitter:  @cdcowen   Follow  links  to  Examiner     interdys.org  #  “Publications”  Drop-­‐Down  Menu  #   “The  Examiner”  #  Examiner  Webpage:  “Click  here   to  read  articles  from  past  issues       CREDIT/DISCLAIMER:  Images  licensed  from  istock.com  (unless   otherwise  stated).  Images  used  for  illustrative  purposes  only;  any   person  depicted  is  a  model  (unless  otherwise  stated).   ©  Cowen/Cushen  White   Also  see:   •  scoop.it/t/dyslexia-­‐diablogue-­‐ida-­‐examiner       •  slideshare.net/carolyndcowen    
  • 158. Advancing  dialogue  and  forward     thinking  where  dyslexia  and    new  media  intersect.     COMMUNICATION  BY  DESIGN   Power    Mission  with  the  Message   cdcowen@aol.com     Twitter:  @cdcowen   Getting theright helpcan changethe picture! Finish ppt today! ©  Cowen/Cushen  White