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a Special Invitation from the
     REYE’S SYNDROME
In Memory…




Pictured above are just a handful of the precious children who
lost their lives to Reye's Syndrome.
         We say, “No More! Not One More Child!”
                        Stand with us!
                Join us and say, “No More!”
You are Invited
   The National Reye’s Syndrome Foundation invites
   you to join an elite membership whose mission is to
   eradicate the incidence of Reye's Syndrome.
   We invite you to join an elite membership who cares
   about saving children’s lives.
   We invite you to be the Champion of Children we
   know you are.
   We invite you to join us as a Member of the National
   Reye’s Syndrome Foundation.




           Join Us!
   Let’s make history together
       as we eradicate the
          incidence of
      Reye's Syndrome!
From the President’s Desk
                                Dear Donor,
                                The mission of the National Reye’s Syndrome Foundation is to eradicate the
                                incidence of Reye’s Syndrome. We are a registered 501(c)3 charity,
                                established in 1974 as a children’s health advocacy organization.
                                Our mission touches every single child born today. It has to. We absolutely
                                can not allow this disease, which has no cure, to victimize our children! With
                                your help, and with your support, Reye's Syndrome Awareness programs can
Board of Directors:
                                continue forward, and one day we will eradicate this killer of children.
John E. Freudenberger
President                       What is Reye’s Syndrome?
Larry M. Lasky                  Reye’s Syndrome is mysteriously triggered in children after flu, chicken pox,
Vice President                  and other viral infections, seriously affecting the brain and liver. The disease
Robert McKeown                  attacks children between the ages of birth to about 19 years of age.
Treasurer
                                We are not a large organization like the Cancer Society or Diabetes
Terri J. Freudenberger
                                Foundation. We are a small organization with a large goal, who, for 37 years,
Secretary
                                has provided Reye's Syndrome Awareness Programs, Reye's Syndrome
Marianne Piemonte
                                Research, and Counseling and Assistance to families who have suffered the
Aspirin Committee Chair
                                trauma of Reye's Syndrome.
Thomas H. Glick, M.D.
Chairman, Scientific Advisory   The National Reye’s Syndrome Foundation
Board
                                My wife, Terri, and I founded the National Reye’s Syndrome Foundation in
Trustees:                       1974 right after we lost our precious 5 year old daughter to Reye's Syndrome
Barbara A. Bogenschutz          on Palm Sunday in 1973. At the time, we had no idea what Reye's Syndrome
James F. Johnson                was. Many doctors didn’t know what Reye's Syndrome was. Someone had to
Barbara A. Ortiz
                                step up and try to prevent this disease from happening to other children. We
Stephen Pumm
Shirley Rice                    took on that challenge, and to this day, we continue to guide the Foundation
                                in its quest to eradicate the incidence of this horrible children’s disease.
   National Headquarters
     426 N. Lewis Street        In the pages that follow, you will be introduced to some of our Awareness
                                Programs and how they have been life savers. You will learn a bit about our
            PO Box 829
                                history, and our commitment to children.
      Bryan OH 43506
                                Although a small organization, we accomplish great projects year in and year
                                out. We invite you to join us as a donor; as a Champion of Children.
 Toll Free: 1-800-233-7393
                                Every $100.00 you donate reaches 1000 children. How many children’s
    Direct: 419-636-2679
                                lives would you like to save today?
              Email:
nrsf@ReyesSyndrome.Org          As one philosopher stated; “The great use of life is to spend it for something
             Website:           that will outlast it.”
www.ReyesSyndrome.Org              Join us. Help us continue the mission of eradicating Reye's Syndrome.
   blogat.rsgifting.org
  www.KidsCanWin.com
                                John E. Freudenberger
   www.AnniePill.com            President
  ReyesSyndrome.mobi                     Aristotle said, "I did not give it to the man, but to humanity."
   www.RSGifting.Org
Teaching Tweens & Teens the Danger of Self Medicating
My son Michael developed Reyes' Syndrome in 1980, following a bout of
Chicken Pox. I feared Reye’s since several children in our city died from it
that same year, so I was aware, at least, that it existed, through reading
their obituaries. Thank goodness I was. When he began vomiting, I called
our pediatrician, who also had some experience with Reyes. She asked me
to keep a check on him, note symptoms, and call back in several hours. I
did...we went to the ER on the doctor's orders, and hours later, were
transported to St. Christopher's Hospital, 60 miles away. Michael survived.
Today, many parents can learn about Reyes' without the only source being
obituaries. Pediatricians are better informed and the National Reyes'
Syndrome Foundation has done a fine job of educating the public. I
understand there is a push on by the Foundation regarding the issue of
teens and self-medicating. The Foundation’s job is far from over it seems,
and it won't be until every parent is aware of Reye’s and the symptoms.
Valerie McCracken, Easton, PA

Yes, the Foundation has taken on the project to Teach Tweens and Teens the Danger of Self-
Medicating. It is a serious conversation. Desperate emails and phone calls from parents and school
nurses validate the Teen Self-Medicating problems we are seeing more and more of today. 41 percent of
teens mistakenly believe that abuse of OTC medicines is less dangerous than abuse of illegal street
drugs, and most report that prescription drugs are easier to get than illegal drugs!
The best protection we can provide is to talk with our teens and tweens. Educate them. Teach them to
read warning labels, teach them to investigate side-effects, teach them to talk to a parent or a medical
professional before taking that pill, teach them to be cautious.
Someone needs to take this issue in hand and create a program that can reach out to our Tweens &
Teens, and that is just what we are doing.
We are developing a website, in-house, at www.AnniePill.com to provide education and materials to
teens, tweens, parents, school nurses and medical professionals.


                                                             There is still much to be done on this site so
                                                             it becomes appealing to our teens and
                                                             tweens, and we invite you to Champion
                                                             Children by contributing toward the
                                                             development of this site, and or the creation
                                                             and printing cost of brochures and other
                                                             related educational materials to raise
                                                             awareness about this important issue.


                                                                 Display it Proudly:
136,000 Annual School Packages Keeps Kids Safe
Dear NRSF,

I have been a school nurse in southern California for the past 15 years and
it never ceases to amaze me how misinformed some parents are. I still
have to correct students who want to call their parents for aspirin. I also
instruct parents who sometimes tell me that they will bring or have given
their child aspirin. I always use this opportunity as a teaching moment to
remind parents that children under the age of 19 should NEVER take a
product containing aspirin.

Many of our student are not covered by health insurance and do not have
any regular health care. Some of our parents to do not read or understand
English, and some have low cognitive functioning. I just wanted to thank
you for providing Reye's Syndrome information I can hand out and use to
teach from. Thank you.

Nikki Williams, RN
School Nurse,
Westside Union School District, California

You are most welcome, Nikki! We’ve been sending packages of Reye's Syndrome information to schools
for the past 32 years!

The Foundation now contacts more than 136,000 schools across the United States and its Territories
every year with a special Reye's Syndrome Information Package.

Handouts to parents include the information in both English and Spanish, and in easy to read and
understand formats.

We know you work hard to keep your students safe, and we are right in there with you, doing whatever
we can, year in and year out, to protect children!

  Your annual donation of $500.00 or more will help us offset the cost of this
  yearly mailing to 136,000 schools.
  You will know that you have reached millions of families with life saving Reye's
  Syndrome information every year.
  That new plaque on your wall will say it all: You are a Hero; a Champion of
  Children!




                                                                 Display it Proudly:
Too low they build who build below the skies….
                                      I am a family practice physician who cares for infants, children,
                                      adolescents and adults.
                                      Patient education is my number one goal. As I am only able to
                                      spend a small amount of time with patients in comparison to the
                                      rest of their day, I rely heavily on the accurate information that is
                                      available to patient's from outside sources in order for them to
                                      make wise decisions regarding over the counter medications and
                                      supplements.
                                      All day long I find myself recommending the National Reye’s
                                      Syndrome Foundation’s websites at www.ReyesSyndrome.Org, and
                                      the blog at http://blogat.rsgifting.org to parents, grandparents and
                                      caregivers of young children.
                                      Thank you for all you do in assisting me in educating my patients.
                                      Dr. Nancy L. Reye, MD
                                      Indiana University Health, Bloomington, Indiana

Thank YOU Dr. Reye, for helping us spread awareness about Reye's Syndrome!
      YOU,

Education and Awareness are our two most vital areas. To promote both education and awareness the
NRSF has Public Service Announcements, various websites geared to each awareness need and
translate-able into 23 languages, an 800 number, and email so information is freely available 24/7.

We give out Reye's Syndrome DVD’s; ‘Reye's Syndrome, a Real and Present Danger’ and our Medical
Professional’s Reye's Syndrome Learning DVD; ‘Reye's Syndrome and its Mimickers’. We have a
Scientific Advisory Board, all of whom are pioneers and well known doctors in their respective fields of
research and medicine.

We offer brochures, bookmarks, wallet size ‘ingredients to avoid’ cards, blogs, widgets, blidgets, rss
feeds, websites, Facebook pages, all chock full of education and awareness about Reye's Syndrome and
the Teens and Tweens self-medicating issue.

Our print material, and our electronic material, is created in-house. The NRSF works with the FDA, the
CDC, NIH, WHO, and many, many other organizations in creating, educating, and spreading Reye's
Syndrome information and awareness.


          The NRSF does not solicit government funding.

         We rely solely on the generosity of people like you,
                     and corporate sponsorship.

           We invite you to join us and Champion Children!


None goes his way alone:
All that we send into the lives of others comes back onto our own.
Why Support Our Mission to Eradicate Reye's Syndrome?
  Red Willow County Health
                                                         r the
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                      l:
              h Schoo                Scottsdale Community
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                                                                     .
administration.

    Healthcare                                  United Independent School
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    Supply: Dist             sources &          District: Distribution to All
                 ributed dur
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                  Pediatric F
   classes and                irst Aid          disseminate to all campus
                Weekly indi
   classes                  vidual              staff and 40,000+ Students.
To know that one life has breathed easier because you lived
here… This is to have succeeded.


 As the Child Development teacher at the Helen Berube Teen
 Parent Program in Pittsfield, MA, I am thrilled with the
 Reye's Syndrome material we just received. Thank you so
 very much for your prompt response as I want all of our
 young women to receive this valuable information.
 A top priority of our program is to provide our young mothers
 with appropriate information to allow them to become
 proactive for their children as well as for themselves.
 Again, please know how grateful we are for your immediate
 attention.
 Nancy A Peterson
 The Helen Berube Teen Parent Program




                                                My daughter had Reye's Syndrome when
                                                she was 3 years old. She will
                                                graduate from nursing school to
                                                pursue pediatric
                                                nursing. I will
                                                spread this
                                                information
                                                because I know
                                                first hand how
                                                important it is.
                                                Thank you for your
                                                continued efforts
                                                to educate the
                                                masses on this topic.



                              Childrens Resource Network Centers: Thank you so much for
                              assisting us in training care givers and parents about Reye’s.
                              We will continue to inform others through our training
                              classes in hopes that one day all children will have the benefit
                              of early diagnosis leading to positive outcomes.
Accomplishments
2010 Accomplishments:
•   January: The NRSF’s 35 Year Commemorative Book is published and
    shipped to those who have ordered the book. All comments are
    favorable.
•   February: Through the efforts of the NRSF and its Aspirin Committee
    Chairperson, Marianne Piemonte, Proctor & Gamble pulled the
    marketing of their InstaCool Product, which appeared to be targeted
    at teens and young adults. The NRSF designed a NASCAR race car and entered the Toyota "Sponsafy
    Your Ride" Contest.
•   March: Food Lion was contacted and the request was made by the NRSF to remove low dose and
    "children's" aspirin from the baby aisle of their stores. They agreed, and the NRSF is monitoring the
    situation.
•   April: The Spring Newsletter went out. The NRSF's "Sponsafy Your Ride" car came in 76th out of
    more than 10,000 entries, thanks to more than 1000 members, survivors, families and friends
    voting for the car.
•   May: The NRSF holds a Moving Sale fundraiser and raises more than 600.00 the first day. Dr Terry
    Hurst retires as the director of the Lake Park Annual Bowl-A-Thon after more than 30 years of
    guidance and support in the longest running fundraiser for the NRSF. A special letter and plaque
    was given to Dr Hurst and presented to him by Trustee, Marianne Piemonte.
•   June: The 36th Annual Meeting is held June 5th, 2010 at the Washington House Inn in Cedarburg,
    Wisconsin. Board of Directors and Trustees are elected for a 2 year term. A mobile website goes
    online at reyessyndrome.mobi
•   July: Pepsi Refresh Everything Grant application submitted to Teach Tweens and Teens the Dangers
    of Self-Medicating. Registered AnniePill.com Created a YouTube Video; Annie Pill for Refresh
    Everything Pepsi Grant. Opened up www.RSGifting.org the NRSF's new donation / legacy / estate
    information website. Established a presence on LinkedIn, Facebook and Twitter Social Networking
    sites. New Heart-Shaped Logo Lapel Pins were donated to the Foundation by the Jeffrey Lasky
    Foundation and Tim & Cindy Pitterle.
•   August: Pepsi Refresh Everything Grant Application is approved for September voting. People in
    cities across the US rally the votes for the NRSF's Pepsi Refresh Everything Grant; To Teach Tweens
    & Teens the Dangers of Self-Medicating. Registered Kids Can Win.com
•   September: Reye's Syndrome Awareness Month. Voting for Pepsi Refresh Everything Grant; Started
    in 267 place, ended in 182 place. Filed for Indiana Corporate Registration.
•   October: Fall Newsletter went out, including 2011 Membership Drive; Be A Member Add A Member
    Campaign. KidsCanWin.com website developed.
•   November: Created first Blog at blogat.rsgifting.org Created first Widget for Google, Yahoo, MSN and
    other home pages. Created first Blidget for anyone to download and add to their home page. Created
    Facebook Cause: Teach Tweens & Teens the Dangers of Self-Medicating. New Donation Canisters
    are available.
•   December: Re-created our School Download Package to include information about Chicken Pox
    Parties and updated information about Flu medications and added salicylate ingredient cards, and a
    trendier look to the entire school package.
On the Inside of the NRSF
The Inner Workings of the National Reye’s Syndrome Foundation, Inc.
The NRSF is under the direction of a four member volunteer Board of
Directors; a President, Vice President, Treasurer, and Secretary.
There is a seven member volunteer Trustee Board that includes our
Aspirin Chairperson and our Scientific Advisory Board Chairperson.
Our volunteer Scientific Advisory Board consists of seven prestigious
medical doctors and researchers who graciously volunteer their time and expertise.
Both our Medical Director and Legal Counsel volunteer their time and expertise as well.
Everyone who participates with the NRSF volunteers their time and skills.
The Foundation has only one person on payroll, and that is our Administrative Assistant, whose skills in
Office Management, Volunteer Coordinating, Desktop Publishing, Website Design and Management and
Accounting actually saves the NRSF thousands of dollars each year.
Office space for the NRSF is donated, as are ‘overhead’ expenses like electric and Internet access.
97% of all donations to the Foundation are spent on Program Services; Awareness and Education.
3% of donations are spent on Supporting Services like Management and General and Fundraising
expenses. All financial statements and our 990 are available upon request.
As you can see, we take our Program Services very seriously. We understand the power in Education
and Awareness. We know we save young lives.
We invite you to create a Legacy for yourself, and or, your company.
We invite you to get involved with the National Reye’s Syndrome Foundation—a Foundation you can
count on to be responsible for your trust in our mission to eradicate the incidence of Reye's Syndrome.
We invite you to touch the lives of children in your community. In the United States, and around the
world.



We need you.
                              They need you.
We invite you to be a Hero, and Champion
a Cause that Saves Lives….

                                    Join Us
Your Opportunities
Our commitment is to eradicate the incidence of Reye's Syndrome.
We know that with education and awareness about Reye's Syndrome, we can accomplish our mission.
       ♦ Your opportunity is to be a Hero, a Champion, for children.
       ♦ Your opportunity is to be a part of History in eradicating this disease.
       ♦ Your opportunity is to involve yourself, and or, your company in supporting a program that
         benefits children in your community, across the United States, and around the world.




Where Your Donation is Needed
       ♦ Every Year we mail out a postcard to 136,000 schools across the US and its Territories.
School Nurses are directed to a page on the ReyesSyndrome.Org website where they download a
package of Reye's Syndrome information in both English and Spanish.
You might ask why we just don’t use email to remind our School Nurses about downloading this Reye's
Syndrome package. What we have discovered is that School Nurses are moved around through districts,
or they go to work in hospitals or private practice. Email addresses change every year. Schools close and
new ones appear every year. Email in this instance just does not work.
We’ve gotten the cost down to printing a postcard and non-profit postage: $40,000.00 every year.
And, this mailing reaches millions of families with Reye's Syndrome information every year. This
Awareness program is the most powerful tool we have today.


       ♦ Teaching Tweens and Teens the Dangers of Self-Medicating
                                                  Self-
Teens and Tweens are at serious risk of Reye's Syndrome. They take medication without consulting
parents or caregivers, they share medications at school. They do not think to talk to a doctor or other
health professional about their symptoms, they self-diagnose and then self-medicate.
We know how to reach out to this group. We have a plan we know will work. We can incoporate this
issue with our annual school mailing, and provide information to School Nurses as a download from the
ReyesSyndrome.Org website.
We have to reach out to these youngsters where they spend their time; the Internet. We can develop, in-
house, a powerful website that Teens, Tweens, Parents, Nurses and Medical Professionals can use for
education on this self-medicating issue. We will use YouTube, Facebook and the various other social
network sites to spread our message to teens and tweens.
Public Service Announcements would assist in spreading education about this issue quickly.
As with any startup venture, capital needs to be raised to jumpstart the much needed educational and
awareness programs. Estimated cost of this most important project is $150,000.00 Once in place, all
this project would require is maintanance.
Every $100.00 you donate reaches 1000 children.
97% of all donations to the Foundation are spent on Program Services; Awareness and
Education.
3% of donations are spent on Supporting Services like Management, and General Fundraising.

    How many children’s lives would you like to save today?
                                           Membership Form
I accept your invitation to become a Member of the NRSF!
Please enroll me as:                                 Your Comments:
Annual Corporate Sponsor
        $500.00 - Guardian of Children
        $1000.00 - Protector of Children
        $2500.00 - Champion of Children
        $5000.00 - Hero of Children
Annual Private Donor
  $200.00 - Patron Membership
  $500.00 - Benefactor Membership                                ** All donations are tax deductible.
  $1000.00 - Guardian Membership
                                                             I will donate materials; please list what
  $2500.00 - Champion Membership
                                                             you will donate monthly or yearly:
My Company will Participate in Monthly
Fundraisers for Children
     A __ monthly or __ weekly Dress Down day
     A __monthly or __ weekly Raffle
     I will place a NRSF Donation Canister at my site.
     Other:

Your Name


Company Name



Address




Phone

Email



Designated Contact Person

Phone

Email



                            Thank You!
                                &
                            Welcome!
Reach out to me.




                                         Teach me.
                                         Teach Our Teens and
                                         Tweens the Dangers of
                                         Self– Medicating.
                                             I will listen.
Reach out to the children in your Community, across the United States,
and around the world… Educate; Save Young Lives!
         Teach me, because I do not know.
Teach my Mommy
                                             Kids and aspirin products don’t mix!




                      Remind us.
Grandparents as Caregivers
          We’ve forgotten.


                                           Help me keep my baby safe.



   Don’t
breastfeed
 and take
  aspirin                                 Teach Me
 products

                                 and I will listen.
“The great use of life is to spend it for something that will outlast it.”
F        ew will have the greatness to bend history itself; but each of us can work to
         change a small portion of events, and in the total of all those acts will be
         written the history of this generation. -- Robert F. Kennedy

We thank you for taking the time to consider your participation with the
National Reye’s Syndrome Foundation.
Should you have further questions, or require additional
information, please contact us at:
National Reye’s Syndrome Foundation
426 N. Lewis Street
PO Box 829
Bryan, OH 43506
800-233-7393
NRSF@ReyesSyndrome.Org

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Who We are: National Reye's Syndrome Foundation

  • 1. a Special Invitation from the REYE’S SYNDROME
  • 2. In Memory… Pictured above are just a handful of the precious children who lost their lives to Reye's Syndrome. We say, “No More! Not One More Child!” Stand with us! Join us and say, “No More!”
  • 3. You are Invited The National Reye’s Syndrome Foundation invites you to join an elite membership whose mission is to eradicate the incidence of Reye's Syndrome. We invite you to join an elite membership who cares about saving children’s lives. We invite you to be the Champion of Children we know you are. We invite you to join us as a Member of the National Reye’s Syndrome Foundation. Join Us! Let’s make history together as we eradicate the incidence of Reye's Syndrome!
  • 4. From the President’s Desk Dear Donor, The mission of the National Reye’s Syndrome Foundation is to eradicate the incidence of Reye’s Syndrome. We are a registered 501(c)3 charity, established in 1974 as a children’s health advocacy organization. Our mission touches every single child born today. It has to. We absolutely can not allow this disease, which has no cure, to victimize our children! With your help, and with your support, Reye's Syndrome Awareness programs can Board of Directors: continue forward, and one day we will eradicate this killer of children. John E. Freudenberger President What is Reye’s Syndrome? Larry M. Lasky Reye’s Syndrome is mysteriously triggered in children after flu, chicken pox, Vice President and other viral infections, seriously affecting the brain and liver. The disease Robert McKeown attacks children between the ages of birth to about 19 years of age. Treasurer We are not a large organization like the Cancer Society or Diabetes Terri J. Freudenberger Foundation. We are a small organization with a large goal, who, for 37 years, Secretary has provided Reye's Syndrome Awareness Programs, Reye's Syndrome Marianne Piemonte Research, and Counseling and Assistance to families who have suffered the Aspirin Committee Chair trauma of Reye's Syndrome. Thomas H. Glick, M.D. Chairman, Scientific Advisory The National Reye’s Syndrome Foundation Board My wife, Terri, and I founded the National Reye’s Syndrome Foundation in Trustees: 1974 right after we lost our precious 5 year old daughter to Reye's Syndrome Barbara A. Bogenschutz on Palm Sunday in 1973. At the time, we had no idea what Reye's Syndrome James F. Johnson was. Many doctors didn’t know what Reye's Syndrome was. Someone had to Barbara A. Ortiz step up and try to prevent this disease from happening to other children. We Stephen Pumm Shirley Rice took on that challenge, and to this day, we continue to guide the Foundation in its quest to eradicate the incidence of this horrible children’s disease. National Headquarters 426 N. Lewis Street In the pages that follow, you will be introduced to some of our Awareness Programs and how they have been life savers. You will learn a bit about our PO Box 829 history, and our commitment to children. Bryan OH 43506 Although a small organization, we accomplish great projects year in and year out. We invite you to join us as a donor; as a Champion of Children. Toll Free: 1-800-233-7393 Every $100.00 you donate reaches 1000 children. How many children’s Direct: 419-636-2679 lives would you like to save today? Email: nrsf@ReyesSyndrome.Org As one philosopher stated; “The great use of life is to spend it for something Website: that will outlast it.” www.ReyesSyndrome.Org Join us. Help us continue the mission of eradicating Reye's Syndrome. blogat.rsgifting.org www.KidsCanWin.com John E. Freudenberger www.AnniePill.com President ReyesSyndrome.mobi Aristotle said, "I did not give it to the man, but to humanity." www.RSGifting.Org
  • 5. Teaching Tweens & Teens the Danger of Self Medicating My son Michael developed Reyes' Syndrome in 1980, following a bout of Chicken Pox. I feared Reye’s since several children in our city died from it that same year, so I was aware, at least, that it existed, through reading their obituaries. Thank goodness I was. When he began vomiting, I called our pediatrician, who also had some experience with Reyes. She asked me to keep a check on him, note symptoms, and call back in several hours. I did...we went to the ER on the doctor's orders, and hours later, were transported to St. Christopher's Hospital, 60 miles away. Michael survived. Today, many parents can learn about Reyes' without the only source being obituaries. Pediatricians are better informed and the National Reyes' Syndrome Foundation has done a fine job of educating the public. I understand there is a push on by the Foundation regarding the issue of teens and self-medicating. The Foundation’s job is far from over it seems, and it won't be until every parent is aware of Reye’s and the symptoms. Valerie McCracken, Easton, PA Yes, the Foundation has taken on the project to Teach Tweens and Teens the Danger of Self- Medicating. It is a serious conversation. Desperate emails and phone calls from parents and school nurses validate the Teen Self-Medicating problems we are seeing more and more of today. 41 percent of teens mistakenly believe that abuse of OTC medicines is less dangerous than abuse of illegal street drugs, and most report that prescription drugs are easier to get than illegal drugs! The best protection we can provide is to talk with our teens and tweens. Educate them. Teach them to read warning labels, teach them to investigate side-effects, teach them to talk to a parent or a medical professional before taking that pill, teach them to be cautious. Someone needs to take this issue in hand and create a program that can reach out to our Tweens & Teens, and that is just what we are doing. We are developing a website, in-house, at www.AnniePill.com to provide education and materials to teens, tweens, parents, school nurses and medical professionals. There is still much to be done on this site so it becomes appealing to our teens and tweens, and we invite you to Champion Children by contributing toward the development of this site, and or the creation and printing cost of brochures and other related educational materials to raise awareness about this important issue. Display it Proudly:
  • 6. 136,000 Annual School Packages Keeps Kids Safe Dear NRSF, I have been a school nurse in southern California for the past 15 years and it never ceases to amaze me how misinformed some parents are. I still have to correct students who want to call their parents for aspirin. I also instruct parents who sometimes tell me that they will bring or have given their child aspirin. I always use this opportunity as a teaching moment to remind parents that children under the age of 19 should NEVER take a product containing aspirin. Many of our student are not covered by health insurance and do not have any regular health care. Some of our parents to do not read or understand English, and some have low cognitive functioning. I just wanted to thank you for providing Reye's Syndrome information I can hand out and use to teach from. Thank you. Nikki Williams, RN School Nurse, Westside Union School District, California You are most welcome, Nikki! We’ve been sending packages of Reye's Syndrome information to schools for the past 32 years! The Foundation now contacts more than 136,000 schools across the United States and its Territories every year with a special Reye's Syndrome Information Package. Handouts to parents include the information in both English and Spanish, and in easy to read and understand formats. We know you work hard to keep your students safe, and we are right in there with you, doing whatever we can, year in and year out, to protect children! Your annual donation of $500.00 or more will help us offset the cost of this yearly mailing to 136,000 schools. You will know that you have reached millions of families with life saving Reye's Syndrome information every year. That new plaque on your wall will say it all: You are a Hero; a Champion of Children! Display it Proudly:
  • 7. Too low they build who build below the skies…. I am a family practice physician who cares for infants, children, adolescents and adults. Patient education is my number one goal. As I am only able to spend a small amount of time with patients in comparison to the rest of their day, I rely heavily on the accurate information that is available to patient's from outside sources in order for them to make wise decisions regarding over the counter medications and supplements. All day long I find myself recommending the National Reye’s Syndrome Foundation’s websites at www.ReyesSyndrome.Org, and the blog at http://blogat.rsgifting.org to parents, grandparents and caregivers of young children. Thank you for all you do in assisting me in educating my patients. Dr. Nancy L. Reye, MD Indiana University Health, Bloomington, Indiana Thank YOU Dr. Reye, for helping us spread awareness about Reye's Syndrome! YOU, Education and Awareness are our two most vital areas. To promote both education and awareness the NRSF has Public Service Announcements, various websites geared to each awareness need and translate-able into 23 languages, an 800 number, and email so information is freely available 24/7. We give out Reye's Syndrome DVD’s; ‘Reye's Syndrome, a Real and Present Danger’ and our Medical Professional’s Reye's Syndrome Learning DVD; ‘Reye's Syndrome and its Mimickers’. We have a Scientific Advisory Board, all of whom are pioneers and well known doctors in their respective fields of research and medicine. We offer brochures, bookmarks, wallet size ‘ingredients to avoid’ cards, blogs, widgets, blidgets, rss feeds, websites, Facebook pages, all chock full of education and awareness about Reye's Syndrome and the Teens and Tweens self-medicating issue. Our print material, and our electronic material, is created in-house. The NRSF works with the FDA, the CDC, NIH, WHO, and many, many other organizations in creating, educating, and spreading Reye's Syndrome information and awareness. The NRSF does not solicit government funding. We rely solely on the generosity of people like you, and corporate sponsorship. We invite you to join us and Champion Children! None goes his way alone: All that we send into the lives of others comes back onto our own.
  • 8. Why Support Our Mission to Eradicate Reye's Syndrome? Red Willow County Health r the Department: We are a hool fo health department that rk Sc on to New Yo ibuti distributes the Reye's Distr es Deaf: 's famili syndrome form to parents nt stude after the varicella vaccine le is administered to their Midd l ett ve Bart I ha Newton Fall ol: your s Elementary S cho li ed on y School: Di ys re disp la stribution to alwa e to g incoming ki ndergarten web pag ainin cont parents at ucts kindergarten prod for my readiness sc irin ome reening and asp o bec ur parent meet ent s wh Yo ing. stud ver. wi th fe been ill s ge ha ful. Shelby High School:I used we b pa urce reso your website for v ery ! k you instructional purposes today Than and my students found it Center for Employment Training/ useful and interesting, not Brighton Center: Hand-outs to mention shocking!!! during lecture to 50+ Students. l: h Schoo Scottsdale Community Carra bec Hig informa tion College: Distribution us ed your I I have you.... years . Thank ls to nursing students for 20 dividua ind many in during Reye’s Syndrome still f on abou t ayne, ed educati presentation. : Fort W that ne irin spital Case Reye's and asp Dup ont Ho to ER, bution Distri cs IN, diatri rs, Pe Normandy School Manage District: Distributed Colle with a Presentation to 5,200 ge Pr on ed ep El ucati ement Students. I am a nursing ng th ary S immun e Hmo chool izati ng Co : Wo supervisor and I would like poten ons a mmuni rking tial nd ca ty on to present to my nurses this chick re of en po kids x out after effort to practice safe OTC break a . administration. Healthcare United Independent School Education Re Supply: Dist sources & District: Distribution to All ributed dur Universal or ing Nursing Staff so they can Pediatric F classes and irst Aid disseminate to all campus Weekly indi classes vidual staff and 40,000+ Students.
  • 9. To know that one life has breathed easier because you lived here… This is to have succeeded. As the Child Development teacher at the Helen Berube Teen Parent Program in Pittsfield, MA, I am thrilled with the Reye's Syndrome material we just received. Thank you so very much for your prompt response as I want all of our young women to receive this valuable information. A top priority of our program is to provide our young mothers with appropriate information to allow them to become proactive for their children as well as for themselves. Again, please know how grateful we are for your immediate attention. Nancy A Peterson The Helen Berube Teen Parent Program My daughter had Reye's Syndrome when she was 3 years old. She will graduate from nursing school to pursue pediatric nursing. I will spread this information because I know first hand how important it is. Thank you for your continued efforts to educate the masses on this topic. Childrens Resource Network Centers: Thank you so much for assisting us in training care givers and parents about Reye’s. We will continue to inform others through our training classes in hopes that one day all children will have the benefit of early diagnosis leading to positive outcomes.
  • 10. Accomplishments 2010 Accomplishments: • January: The NRSF’s 35 Year Commemorative Book is published and shipped to those who have ordered the book. All comments are favorable. • February: Through the efforts of the NRSF and its Aspirin Committee Chairperson, Marianne Piemonte, Proctor & Gamble pulled the marketing of their InstaCool Product, which appeared to be targeted at teens and young adults. The NRSF designed a NASCAR race car and entered the Toyota "Sponsafy Your Ride" Contest. • March: Food Lion was contacted and the request was made by the NRSF to remove low dose and "children's" aspirin from the baby aisle of their stores. They agreed, and the NRSF is monitoring the situation. • April: The Spring Newsletter went out. The NRSF's "Sponsafy Your Ride" car came in 76th out of more than 10,000 entries, thanks to more than 1000 members, survivors, families and friends voting for the car. • May: The NRSF holds a Moving Sale fundraiser and raises more than 600.00 the first day. Dr Terry Hurst retires as the director of the Lake Park Annual Bowl-A-Thon after more than 30 years of guidance and support in the longest running fundraiser for the NRSF. A special letter and plaque was given to Dr Hurst and presented to him by Trustee, Marianne Piemonte. • June: The 36th Annual Meeting is held June 5th, 2010 at the Washington House Inn in Cedarburg, Wisconsin. Board of Directors and Trustees are elected for a 2 year term. A mobile website goes online at reyessyndrome.mobi • July: Pepsi Refresh Everything Grant application submitted to Teach Tweens and Teens the Dangers of Self-Medicating. Registered AnniePill.com Created a YouTube Video; Annie Pill for Refresh Everything Pepsi Grant. Opened up www.RSGifting.org the NRSF's new donation / legacy / estate information website. Established a presence on LinkedIn, Facebook and Twitter Social Networking sites. New Heart-Shaped Logo Lapel Pins were donated to the Foundation by the Jeffrey Lasky Foundation and Tim & Cindy Pitterle. • August: Pepsi Refresh Everything Grant Application is approved for September voting. People in cities across the US rally the votes for the NRSF's Pepsi Refresh Everything Grant; To Teach Tweens & Teens the Dangers of Self-Medicating. Registered Kids Can Win.com • September: Reye's Syndrome Awareness Month. Voting for Pepsi Refresh Everything Grant; Started in 267 place, ended in 182 place. Filed for Indiana Corporate Registration. • October: Fall Newsletter went out, including 2011 Membership Drive; Be A Member Add A Member Campaign. KidsCanWin.com website developed. • November: Created first Blog at blogat.rsgifting.org Created first Widget for Google, Yahoo, MSN and other home pages. Created first Blidget for anyone to download and add to their home page. Created Facebook Cause: Teach Tweens & Teens the Dangers of Self-Medicating. New Donation Canisters are available. • December: Re-created our School Download Package to include information about Chicken Pox Parties and updated information about Flu medications and added salicylate ingredient cards, and a trendier look to the entire school package.
  • 11. On the Inside of the NRSF The Inner Workings of the National Reye’s Syndrome Foundation, Inc. The NRSF is under the direction of a four member volunteer Board of Directors; a President, Vice President, Treasurer, and Secretary. There is a seven member volunteer Trustee Board that includes our Aspirin Chairperson and our Scientific Advisory Board Chairperson. Our volunteer Scientific Advisory Board consists of seven prestigious medical doctors and researchers who graciously volunteer their time and expertise. Both our Medical Director and Legal Counsel volunteer their time and expertise as well. Everyone who participates with the NRSF volunteers their time and skills. The Foundation has only one person on payroll, and that is our Administrative Assistant, whose skills in Office Management, Volunteer Coordinating, Desktop Publishing, Website Design and Management and Accounting actually saves the NRSF thousands of dollars each year. Office space for the NRSF is donated, as are ‘overhead’ expenses like electric and Internet access. 97% of all donations to the Foundation are spent on Program Services; Awareness and Education. 3% of donations are spent on Supporting Services like Management and General and Fundraising expenses. All financial statements and our 990 are available upon request. As you can see, we take our Program Services very seriously. We understand the power in Education and Awareness. We know we save young lives. We invite you to create a Legacy for yourself, and or, your company. We invite you to get involved with the National Reye’s Syndrome Foundation—a Foundation you can count on to be responsible for your trust in our mission to eradicate the incidence of Reye's Syndrome. We invite you to touch the lives of children in your community. In the United States, and around the world. We need you. They need you. We invite you to be a Hero, and Champion a Cause that Saves Lives…. Join Us
  • 12. Your Opportunities Our commitment is to eradicate the incidence of Reye's Syndrome. We know that with education and awareness about Reye's Syndrome, we can accomplish our mission. ♦ Your opportunity is to be a Hero, a Champion, for children. ♦ Your opportunity is to be a part of History in eradicating this disease. ♦ Your opportunity is to involve yourself, and or, your company in supporting a program that benefits children in your community, across the United States, and around the world. Where Your Donation is Needed ♦ Every Year we mail out a postcard to 136,000 schools across the US and its Territories. School Nurses are directed to a page on the ReyesSyndrome.Org website where they download a package of Reye's Syndrome information in both English and Spanish. You might ask why we just don’t use email to remind our School Nurses about downloading this Reye's Syndrome package. What we have discovered is that School Nurses are moved around through districts, or they go to work in hospitals or private practice. Email addresses change every year. Schools close and new ones appear every year. Email in this instance just does not work. We’ve gotten the cost down to printing a postcard and non-profit postage: $40,000.00 every year. And, this mailing reaches millions of families with Reye's Syndrome information every year. This Awareness program is the most powerful tool we have today. ♦ Teaching Tweens and Teens the Dangers of Self-Medicating Self- Teens and Tweens are at serious risk of Reye's Syndrome. They take medication without consulting parents or caregivers, they share medications at school. They do not think to talk to a doctor or other health professional about their symptoms, they self-diagnose and then self-medicate. We know how to reach out to this group. We have a plan we know will work. We can incoporate this issue with our annual school mailing, and provide information to School Nurses as a download from the ReyesSyndrome.Org website. We have to reach out to these youngsters where they spend their time; the Internet. We can develop, in- house, a powerful website that Teens, Tweens, Parents, Nurses and Medical Professionals can use for education on this self-medicating issue. We will use YouTube, Facebook and the various other social network sites to spread our message to teens and tweens. Public Service Announcements would assist in spreading education about this issue quickly. As with any startup venture, capital needs to be raised to jumpstart the much needed educational and awareness programs. Estimated cost of this most important project is $150,000.00 Once in place, all this project would require is maintanance.
  • 13. Every $100.00 you donate reaches 1000 children. 97% of all donations to the Foundation are spent on Program Services; Awareness and Education. 3% of donations are spent on Supporting Services like Management, and General Fundraising. How many children’s lives would you like to save today? Membership Form I accept your invitation to become a Member of the NRSF! Please enroll me as: Your Comments: Annual Corporate Sponsor $500.00 - Guardian of Children $1000.00 - Protector of Children $2500.00 - Champion of Children $5000.00 - Hero of Children Annual Private Donor $200.00 - Patron Membership $500.00 - Benefactor Membership ** All donations are tax deductible. $1000.00 - Guardian Membership I will donate materials; please list what $2500.00 - Champion Membership you will donate monthly or yearly: My Company will Participate in Monthly Fundraisers for Children A __ monthly or __ weekly Dress Down day A __monthly or __ weekly Raffle I will place a NRSF Donation Canister at my site. Other: Your Name Company Name Address Phone Email Designated Contact Person Phone Email Thank You! & Welcome!
  • 14. Reach out to me. Teach me. Teach Our Teens and Tweens the Dangers of Self– Medicating. I will listen. Reach out to the children in your Community, across the United States, and around the world… Educate; Save Young Lives! Teach me, because I do not know.
  • 15. Teach my Mommy Kids and aspirin products don’t mix! Remind us. Grandparents as Caregivers We’ve forgotten. Help me keep my baby safe. Don’t breastfeed and take aspirin Teach Me products and I will listen. “The great use of life is to spend it for something that will outlast it.”
  • 16. F ew will have the greatness to bend history itself; but each of us can work to change a small portion of events, and in the total of all those acts will be written the history of this generation. -- Robert F. Kennedy We thank you for taking the time to consider your participation with the National Reye’s Syndrome Foundation. Should you have further questions, or require additional information, please contact us at: National Reye’s Syndrome Foundation 426 N. Lewis Street PO Box 829 Bryan, OH 43506 800-233-7393 NRSF@ReyesSyndrome.Org