Finding a treatment for Niemann Pick Type C will provide hope not only to Aaditya Ravi Dasgupta and Tasneem Tankiwala in India but to many others like Addi and Cassi Hempel, Gabrielle Laverde and Peyton and Kayla Hadley in US, Husein Taher in Tanzania, South Africa, Roy Green in UK and so many more kids, teens and adults all over the world and in India that have not been diagnosed yet due to the cost and complexity of the diagnostic process. You can leave a wish for Aaditya (http://addiandcassi.com/guestbook) or for more information go to: www.HopeforAaditya.org

1. INTRA-CRANIAL STEM CELL TRANSPLANT FOR NPC POSSIBILITY OF CURE FOR NIEMANN PICK TYPE C DISEASE

17. Mediscan-Chennai with Dr Sujatha and Dr Srinivasan

18. Harvesting

19. Stempeutics-Manipal Hospital Bangalore Meeting with Dr Karthik and Dr Vijay Sharma

20. Clean Room

21. Frozen Stem Cells

24. The first Intra-cranial stem cell Transplant for Niemann-Pick Type C disease Some of the hair on Aaditya’s head was removed and the 40 million mesenchymal stem cells were injected with a special 4 prong needle into eight areas of his brain through two, three inch cuts.

27. Observations cont…. 24 th Dec. 2008 : Last night Aadi kept lifting his right hand ( which he has seldom been using ) all the way up straight. He is looking much better. Suresh has resumed his physioyherapy yesterday. Anita , Farru and family left today and though they did not say bye he knew all along and even shed a few tears. 25 th Dec. 2008 : yesterday evening Aaditya kept getting small jerks, no full fledged seizures though. When we were giving him a hot water bath in the evening he felt good and was straightening out his body. He was holding the bar and almost standing on his own. I was only supporting him at his waist. After his bath, I massaged the ayurveda oil and the physiotherapist, Suresh came and made him do his exercise. He slept well and looked comfortable.

30. Hope for Aaditya brings Hope to all NPC kids and kids with other Neurogdegenerative diseases

31. Hope is the thing with feathers, That perches in the soul, And sings the tune--without the words, And never stops at all…. Emily Dickinson www.HopeforAaditya.org