Describes how patient genetic data will cause health records to evolve into biological domains. Suggests genomes could disrupt current information flows on the web - with human beings moving from user accounts to nodes on the network with real time consent.

1. The Internet of Human Beings
July 30, 2013 | California
Biological Domains
& Big Data
Alice Rathjen, CEO, Founder DNA Guide
Alice Rathjen © 2013 -
How Genetic Data Will Force Health Records To Evolve

2. 20232013
Research Institutes
Government IDs / Passports
Electronic Health Records
Biometric Access/ E-Commerce
Ancestry
Online Identity Services
Citizen Science
Patient Advocacy Sites
Non-Govt. Health Organizations
Disaster Response / Epidemics
Gaming (DNA avatars)
2 Billion Genomes in 10 Years
Will Transform Information Flows of the Web
Estimates by Alice Rathjen © 2013 - Potential Sources for Biological Domain Registrars

3. The Current
Web
The Future
Web
Mobile Internet
of
Things
Search
E
Commerce
Social
Biological
Network -
Internet of
Human
Beings
The Old Web
Solving Health Care IT for the Future Web
Health Records Evolve Into Biological Domains
Exponential Growth in Data from the Body
Alice Rathjen © 2013 -

4. What Happens Once Genetic Data
is Added to a Health Record?
Health
Record
Genetic
Dataset
“Sticky”
Universal
Health
Record
Alice Rathjen © 2013 -

5. Health Data Becomes Identifiable
Big Data = Big Liability
Health
Record
Genetic
Dataset
De-
identified
Data
De-Identified
Data
Alice Rathjen © 2013 -

6. Solution : Health IT Network =
Biological Domain Registrar
Health
Record
Genetic
Dataset
Portable
Patient Health
Record
(patient picks
trusted
registrar)
Alice Rathjen © 2013 -
Real Time Consent

7. Future Health Record
Human = Node On The Network
Biometric
Map of the Body
Map of the Genome
Lifestyle, Environment
Patient Centric Bi-Directional Information Flow
Alice Rathjen © 2013 -

8. Mobile/Visual Maps of Body & Genome
 Information Organized
by Location & Time
 Patient Raw Data
Stored Separately
 Dynamic Interpretation
& Reports
 Easy Adoption
 Needs to be able to
Scale Indefinitely
Alice Rathjen © 2013 -

9. Dynamic Health Information Quality Rating
Quality of Science
Medical Utility
Viewing Risk
(Graded) A,B,C,D,F
W = Withdrawn , I = Incomplete(by Scientific Community)
(by Health Care Providers/ Payers)
E = Everyone
PG = Physician Guidance
R = Restricted
(Medical Ethics, Counselor)
Category Rating
(Five Star Rating)
(i.e.Movie Rating)
Alice Rathjen © 2013 -

10. Exponential
Growth
Patient Data
• Imaging
• Remote Sensors
• Cancer Tumor Analysis
• Drug Response
• Disease Risk
• Carrier Testing
• Life Style
• Environment
Alice Rathjen © 2013 -

11. User Accounts Biological Domains
Old Big Data vs. New Big Data
just data JUST DATA
Alice Rathjen © 2013 -

12. The Internet of Human Beings
July 30, 2013 | Sebastopol, California
Biological Domains & Big Data
Alice Rathjen, CEO, Founder DNA Guide
Patient Health Information with Real Time Consent
Alice Rathjen © 2013 -