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Kids and Teens With Mental Health Disorders…
          Barriers to Spiritual Growth
                       Stephen Grcevich, MD
              President, Board of Directors, Key Ministry

Clinical Assistant Professor of Psychiatry, Northeast Ohio Medical University
        Senior Clinical Instructor, Child and Adolescent Psychiatry
           Case Western Reserve University School of Medicine


                   Faith and Disability Symposium
            St. Peter’s United Methodist Church, Katy TX
                          October 13, 2012
Learning Objectives:

  Identify obstacles to spiritual growth when kids
   have common mental health disorders…ADHD,
   anxiety disorders, mood disorders and autism
   spectrum disorders
  Explore ideas for promoting inclusion of kids and
   teens with mental illness and their families at
   church
  Discuss strategies for parents/caregivers to
   promote spiritual growth at home when kids
   struggle with mental illness
What do we know?
    22% of U.S. children entering first grade meet criteria for at
     least one mental health disorder
    9.5% of U.S. children between ages 4-17 (5.4 million) have
     been diagnosed with ADHD…2.7 million U.S. kids regularly
     take ADHD medication (more common in 11-17 year-olds)
    8% of teens ages 13-18 have anxiety disorders, most with
     onset around age 6 (only 18% have received treatment)
    13% of U.S. kids have at least one developmental disorder
    One child in 88 in U.S. has an autism spectrum disorder
Carter, AS et al. J. Am Acad. Child Adolesc Psychiatry 2010;49(7): 686-698
http://www.cdc.gov/ncbddd/adhd/data.html
http://www.nimh.nih.gov/health/publications/anxiety-disorders-in-children-and-adolescents/index.shtml
Boulet, SL, Boyle CA, Schieve, LA. Arch Pediatr Adolesc Med. 2009;163(1):19-26.
http://www.cdc.gov/ncbddd/autism/data.html
“It is our culture that disables.”

“When one is disabled, the problem is not really
that they have impairments and social skill
deficits. The issue at stake is that they live in an
‘ableist’ culture that rarely affords them the
space or opportunity to make their unique
contribution to society and does not lift up the
value of choosing them as friends.”

Ben Conner…Amplifying Our Witness (2012)




          Can a disability be a disability in some, but not all
          environments?
The barriers to church participation are different for
kids with mental illnesses and their families!
Do our ministry environments and strategies for helping
kids grow spiritually work if they have mental illness?

An individual with a disability is
defined as a person who has a
mental or physical impairment that
substantially limits one or more
major life activities, a record of
such impairment, or is regarded as
having such an impairment.

Americans With Disabilities Act (1990)

If a mental or physical impairment
substantially limits a person’s
ability to pursue spiritual growth
and participate in a local church, is
that person “disabled?”
Common barriers to church participation and
spiritual growth in kids with mental illness…

    Lack capacity for emotional, behavioral self-regulation
    Vulnerability to misinterpret risks in environment
    Differences in sensory processing
    Differences in language processing, communication
     skills (including non-verbal, social communication)
    Cognitive rigidity
    Past negative experiences of church
    Family stress, isolation
    Parents with “issues”
What is ADHD?:
    ADHD is a neurodevelopmental disorder
     characterized by an age-inappropriate degree of
     inattentiveness and disorganization, and in some, but
     not all instances, impulsivity and hyperactivity
Executive functioning as the fundamental
difference in persons with ADHD?
    Executive functions describe a set of cognitive abilities
     involved in controlling and regulating other abilities and
     behaviors.
    Necessary in initiating goal-directed behavior, regulating
     emotions, delaying gratification, planning future
     behavior.
    Children with weaknesses in executive functioning have
     more difficulty foreseeing outcomes of behavior,
     adapting to new situations.
    Executive functions…behavioral inhibition, verbal and
     nonverbal working memory, emotional self-regulation,
     reconstitution
Hathaway WL, Barkley RA. J Psychol Christianity 2003, 22(2) 101-114
ADHD: Core differences…difficulties with attention,
   executive functioning


                 Child            Teenager

Weekend
Worship:




Church
Activities:



Spiritual
Disciplines



Growing in
faith at home:
ADHD: Core differences…difficulties with attention,
   executive functioning


                 Child                                   Teenager

Weekend          Difficulty sitting in worship service   Sleep problems impact AM church attendance
Worship:         Attention depends on interest,          They need reminders to come
                 relevance                               Communication needs to be crisp, engaging
                 Environments too stimulating, too
                 unstructured for many with ADHD
Church           May retain information better in        May be better if “doing while talking”
Activities:      small group situations                  More difficulty avoiding negative influences
                 Parents need to be copied on            Time management may affect attendance
                 information meant for home
Spiritual        More difficulty praying quietly         Prone to seek peak religious experiences
Disciplines      More difficulty with Scripture          Roller-coaster spirituality
                 memorization?                           Inconsistent with spiritual disciplines
                 Better with active disciplines          Break Scripture into smaller parts
Growing in       Kids with ADHD may learn better         Expose teens to service opportunities
faith at home:   1:1 with parents                        Share personal experiences with them
                                                         Encourage spiritual relationships outside home
How are kids with anxiety disorders
different from their peers?
  They misperceive the level of threat, danger in
   their environment
  They think too much…eventually to the point
   that academic performance, family functioning,
   friendships, extracurricular activities are
   compromised…rumination, perseveration,
   indecisiveness, perfectionism
Anxiety Disorders: Core difference…predisposed to
   misinterpret risk in immediate environment, new situations


                 Child            Teenager

Weekend
Worship:



Church
Activities:


Spiritual
Disciplines



Growing in
faith at home:
Anxiety Disorders: Core difference…predisposed to
   misinterpret risk in immediate environment, new situations


                 Child                                   Teenager

Weekend          Difficulty separating from parents      Reluctant to attend without friends
Worship:         Visiting church challenging             Uncomfortable with attention of group
                                                         Transitions between age-group ministries difficult


Church           Reluctant to read Scripture out loud,   Disclosure in small groups challenging
Activities:      participate actively, avoid plays,      New, unfamiliar places, experiences may be
                 performances                            threatening…retreats, mission trips

Spiritual        Prone to misperceive who God is…        More prone to ritualism
Disciplines      Prayer, process of confession in        Common obsessions- doubting salvation, sinning
                 some traditions challenging             against one’s will
                                                         Group disciplines more challenging

Growing in       Parents can model faith, practicing     Parents can sensitively expose teens to new
faith at home:   disciplines as a positive coping        spiritual experiences
                 strategy
Tips for church staff and volunteers:
Kids with anxiety
    Look for kids from established families in worship
     with parents
    Greeters watch for problems when “drop-offs” occur
    Have a quiet place to meet with kids/parents in
     distress
    Leaders can watch for kids who are alone
    Offer to meet with parents when a child’s anxiety
     appears to interfere with ministry participation
    Anxiety generally decreases with experience
     (exposure)
    Potential areas of giftedness: administration,
     organization, sensitivity to others
How are kids and teens with Asperger’s
Disorder different?
  Difficulties with reciprocal social interactions and
   restricted patterns of interests or activities
  Normal language development (in contrast to
   other kids with autism)
  Typically, average to high intelligence
Asperger’s Disorder: Core difference…difficulty with
   reciprocal social interactions, restricted pattern of
   interests, activities

                 Child            Teenager
Weekend
Worship:



Church
Activities:



Spiritual
Disciplines



Growing in
faith at home:
Asperger’s Disorder: Core difference…difficulty with
   reciprocal social interactions, restricted pattern of
   interests, activities

                 Child                                 Teenager
Weekend          Sensory integration may be            More difficulty navigating social aspects of church
Worship:         problematic…bright lights, loud
                 music can cause distress              Less likely to be invited to church (few friends)


Church           Transitions, social expectations in   Difficulty picking up social cues in small groups,
Activities:      church environments problematic       Very sensitive to teasing/rejection by peers,
                                                       Negative perceptions of church difficult to change
                 May be easily irritated by peers
Spiritual        May be less sensitive to needs of     Reluctant to experiment with new spiritual
Disciplines      others, prone to mechanical           practices, disciplines, prone to legalism, avoidant
                 spirituality                          of group disciplines


Growing in       Parents may struggle to engage        Difficulty engaging in family service experiences
faith at home:   child in spiritual discussions
                                                       Conflicts around church attendance may follow
                 Difficulty with abstract concepts     negative experiences
Tips for church staff and volunteers:
Kids with Asperger’s Disorder
  Be aware of sensory stimulation in ministry
   environments
  Partial/reverse inclusion an option

  May do better when serving alongside adults

  Provide opportunities to rehearse new
   situations, environments
  Disability awareness important in student
   ministry
  Tap into areas of potential giftedness
General principles of ministry with
families of kids with mental illnesses…
    You don’t need to create a “program” for effective
     ministry
    Kids with issues don’t think of themselves as “disabled”
     or “special needs”…nor do most parents
    Most kids won’t need “buddies”
    Win…Whenever a child with a disability or their family
     member experiences a meaningful connection with a
     local church
Four things your church can do to
reach families of “kids with issues”
  You can’t wait for them to come…Church-based
   or relational respite care, offer support services,
   access for support groups
  Train your children’s/youth staff and volunteers
   on strategies to help them have positive
   experiences at church
  Consider your ministry environments

  Include kids and families in activities your

   church leadership has found most helpful to
   spiritual growth
What Have We Learned?

    Kids with mental illnesses can be welcomed into church
     activities without having to establish stand-alone
     programs or “buddy systems”
    The way we do church often presents impediments to
     church attendance and spiritual growth in kids with
     mental illnesses and their families
    Family ministry approaches may be especially important
     among kids with more unique processing,
     communication, social interaction
    Families of kids with mental illnesses may represent the
     ultimate “low-hanging fruit” for evangelism, outreach
Additional Resources:
    Resource page on ADHD and spiritual development (includes video from Dr. Russ
     Barkley)
     http://drgrcevich.wordpress.com/teaching-series-adhd-and-spiritual-development/
    Resource page on anxiety and spiritual development
     http://drgrcevich.wordpress.com/resource-page-anxiety-and-spiritual-development/
    Resource page on Asperger’s Disorder and spiritual development (includes video of
     2012 Children’s Ministry Web Summit presentation)
     http://drgrcevich.wordpress.com/resource-page-anxiety-and-spiritual-development/
    Resource page on Pediatric Bipolar Disorder (includes link to 2010 Grand Rounds
     presentation at Children’s Hospital Medical Center of Akron)
     http://drgrcevich.wordpress.com/pediatric-bipolar-disorder-a-guide-for-childrens-and-
     youth-pastors-and-volunteers/
    The Mission Field Next Door (2011 Inclusion Fusion presentation with Katie
     Wetherbee) http://youtu.be/PshzmYircCo
Provides FREE training,
consultation, resources and
support to help churches serve,
welcome and include families of
kids with hidden disabilities
Stay in Touch!
Key Ministry Website: http://www.keyministry.org


Church4EveryChild…Steve’s Key Ministry Blog: http://drgrcevich.wordpress.com
Diving For Pearls…Katie Wetherbee’s Blog: http://katiewetherbee.wordpress.com
A Reckless Pursuit…Harmony Hensley’s Blog: http://arecklesspursuit.wordpress.com



             http://www.facebook.com/drgrcevich
             http://www.facebook.com/pages/Key-Ministry/116940088329098


              http://twitter.com/#!/drgrcevich
              http://twitter.com/#!/KeyMinistry
Questions?
Additional Slides
How might ADHD affect one’s spiritual life?


Children/teens:                              Adults:

    Inhibition: sitting through a worship       Can I use the computer without
     service                                      viewing pornography?
    Nonverbal working memory:                   Forgetting to register my kids for the
     remembering my Bible when it’s time          weekend retreat
     to leave for church                         The ability to memorize and meditate
    Verbal working memory: the ability to        quietly upon Scripture
     pray silently                               I scream and yell at my spouse and
    Emotional self-regulation:                   my kids, overreact when imposing
     immediately react negatively to              discipline
     demands from authority                      Difficulty applying Biblical truths,
    Planning, problem-solving: I’m not           wisdom in daily life
     going to youth group on Sunday night
     because my homework’s not done.
Problems with internalization of faith
arising from ADHD:
     Persons with ADHD may have more difficulty
      maintaining a spiritually disciplined life
     May have more difficulty meditating quietly upon God
     More prone to give up on Bible study when it becomes
      tedious
     More difficulty delaying immediate gratification for
      long-term spiritual outcomes


     Hathaway WL, Barkley RA. J Psychol Christianity 2003, 22(2) 101-114
Problems with stability of spiritual
     growth arising from ADHD:
    Greater vulnerability to negative environmental influences
    More likely to have intense spiritual experiences at VBS,
     camp, mission trips that fade when spiritual context is gone
    More prone to “roller-coaster” spirituality
    Miss out on volunteer, service opportunities if perceived as
     undisciplined, disorganized
    Drawn to religious contexts that are more participatory,
     action-oriented, relational

      Hathaway WL, Barkley RA. J Psychol Christianity 2003, 22(2) 101-114
Challenges presented to the church by
     persons with ADHD:
    Style of worship…engaging, but not overstimulating
     best
    Kids, some adults find worship environments as
     unpleasant
    Church staff lack training, experience with kids with
     ADHD
    Church environments less structured than school
    Parents choose not to use, or physicians encourage
     discontinuation of effective medication on weekends
    Many church activities occur when medication has
     worn off or rebound is occurring
What advantages might ADHD provide
a follower of Christ?
    Willingness to take chances for God
    May be very energized by topics or ministry
     activities that capture the imagination
    May be very effective in ministry teams when others
     have complimentary organizational skills
    Ability to engage others may help in sharing the
     Gospel
    Good at scanning environment for trends
    Is ADHD over-represented among senior pastors?
Ministry strategies for persons with ADHD:
Environments

Children/teens:                         Adults:

    Registration/sign-in needs to be       Is signage, direction clear?
     orderly
                                            Use of music, technology
    Staffing for transition times
     before/after services                  Physical environment
                                             shouldn’t become a
    Use of color, lighting
                                             distraction
    Engaging, not overwhelming
                                            Flexibility in dress code
    Communication strategies…
     reinforce key point(s)                 Simplicity in communication
    Use of touch, nonverbal cues
    Family worship experiences
     geared to kids?
Ministry strategies for persons with ADHD:
Discipleship

Children/teens:                       Adults:

    Church and parents as                Connecting them with others in
     partners in teaching kids             the church especially important
     about God                            Break Scripture into smaller,
    They’ll learn and retain more         manageable parts
     in 1:1, small group situations       Small groups offer multiple
    Ministry resources need to be         accountability partners
     sent directly to parents             Where can they be involved in
    Where can they be involved            meaningful service?
     in meaningful service?               You have to remind them if you
                                           want them to come
What can I do to help someone I love
with ADHD come to faith, grow in faith?

My child:                              My spouse, sibling, friend:

    Spend time with your child            Invite them to church (or
     one on one or as a family              remind them to come)
     praying together, studying the        Go with them to a church
     Bible together                         where they’re more likely to
    Make Jesus, Scripture                  have a positive experience
     interesting by sharing from           Pray, study the Bible, serve
     your experiences                       with them
    Seek opportunities for your           Connect them to others in the
     child to serve in ways that fit        church who will accept them,
     their talents, gifts                   follow up with them
    Attend church regularly
ADHD: Core differences…difficulties with attention,
   executive functioning


                 Child                                   Teenager

Weekend          Difficulty sitting in worship service   Sleep problems impact AM church attendance
Worship:         Attention depends on interest,          They need reminders to come
                 relevance                               Communication needs to be crisp, engaging
                 Environments too stimulating, too
                 unstructured for many with ADHD
Church           May retain information better in        May be better if “doing while talking”
Activities:      small group situations                  More difficulty avoiding negative influences
                 Parents need to be copied on            Time management may affect attendance
                 information meant for home
Spiritual        More difficulty praying quietly         Prone to seek peak religious experiences
Disciplines      More difficulty with Scripture          Roller-coaster spirituality
                 memorization?                           Inconsistent with spiritual disciplines
                 Better with active disciplines          Break Scripture into smaller parts
Growing in       Kids with ADHD may learn better         Expose teens to service opportunities
faith at home:   1:1 with parents                        Share personal experiences with them
                                                         Encourage spiritual relationships outside home
Specific Anxiety Disorders in Children,
Adolescents:
     Note: Kids may experience different manifestations of anxiety
     as they progress through developmental stages
    Separation Anxiety Disorder
    Specific Phobia
    Generalized Anxiety Disorder
    Social Anxiety Disorder
    Panic Disorder
    Obsessive-Compulsive Disorder
    Selective Mutism
J Am Acad Child Adolesc Psychiatry, 2007;46(2):267-283
Anxiety Disorders: Core difference…predisposed to
   misinterpret risk in immediate environment, new situations


                 Child                                   Teenager

Weekend          Difficulty separating from parents      Reluctant to attend without friends
Worship:         Visiting church challenging             Uncomfortable with attention of group
                                                         Transitions between age-group ministries difficult


Church           Reluctant to read Scripture out loud,   Disclosure in small groups challenging
Activities:      participate actively, avoid plays,      New, unfamiliar places, experiences may be
                 performances                            threatening…retreats, mission trips

Spiritual        Prone to misperceive who God is…        More prone to ritualism
Disciplines      Prayer, process of confession in        Common obsessions- doubting salvation, sinning
                 some traditions challenging             against one’s will
                                                         Group disciplines more challenging

Growing in       Parents can model faith, practicing     Parents can sensitively expose teens to new
faith at home:   disciplines as a positive coping        spiritual experiences
                 strategy
Kids With Asperger’s Disorder:

  Severe, sustained impairment in social
   interactions…
  Restricted, repetitive patters of behavior,
   interests and activities
  Clinically significant impairment in social,

   academic, family functioning
  No delays in language development

  No delays in cognitive development…often
   have above-average to superior IQ
Some observations…
    God created all of us as unique human beings…more
     kids in this generation are being diagnosed with autism
     spectrum disorders and other social disabilities…
     accident?
    Churches are social institutions…we promote fellowship,
     discipleship…Where does that leave people who
     struggle with relationships?
    Church environments operate under “The Reverse
     80/20 Principle”
    Jesus and the lost sheep…He pursues the “one” while
     protecting the “99”
Issues seen in kids with Asperger’s
Disorder:
    Intense preoccupation with topics, objects takes on an
     odd or unusual quality
    May struggle with motor skills, coordination
    Difficulty with pragmatic language, differences in
     intonation, pace, volume, pitch (monotonal)…difficulty
     with implied meaning, figurative speech
    Difficulties identifying with experiences of others
    More likely to experience issues with attention,
     organization, obsessive thoughts than peers
    More likely to experience sensory processing issues
The Scope of the Problem:

    Prevalence of autism spectrum disorders (ASDs) in
     U.S. ranges from one in 80 to one in 240
    4-5X more boys than girls diagnosed with an ASD
    The majority (59%) of children with ASDs don’t
     have an intellectual disability
    Kids with Asperger’s are more likely to be targets of
     bullying, have more difficulty coping with bullying


     Source: http://www.cdc.gov/ncbddd/autism/data.html
Barriers for kids with Asperger’s/PDD/
social disabilities at church…
    Getting parents to bring them to church
    Church environments don’t play to their strengths…
     change in daily routine, unfamiliar people,
     transitions, sensory issues, physical activity
    Uneven development complicates program
     placement
    Very resistant to placement in “special needs”
     ministry
    Experience of “Christian kids” at school
Applying family-based ministry model when kids
have Asperger’s/PDD/Social Disabilities…

    Parent as the “expert” to individualize strategies to
     promote spiritual development
    Coming alongside vs. “equipping”
    Defining your “win”…Whenever a child/family with a
     disability connects in a meaningful way with their larger
     family in Christ through the ministries of a local church
    Church as a shared family experience?
    Spiritual disciplines as routines…(establishing rhythm)
    Creating a place to experience an intentionally safe and
     supportive community
Tips for church staff and volunteers:
Kids with Asperger’s/PDD/social disabilities
  Consider impact of sensory stimulation in
   ministry environments
  Partial inclusion an option

  Consider service opportunities alongside adults

  Provide opportunities to rehearse new
   situations, environments
  Promote disability awareness in children’s,
   student ministry
  Identify areas of potential giftedness
Hypothetical strategies for promoting
spiritual growth…
    Tangible acts of service, modeled by parents, family
     members, other adults
    Assuming identified role at church
    Role of electronic media in presenting Jesus in an
     engaging way?
    Online ministry as strategy for overcoming barriers to
     live participation in church?
The “relationship” issue…

    Kids with Asperger’s/social disabilities have some
     capacity to grasp relationships
    There’s more than one spiritual pathway…intellectual,
     activist, servant, contemplative, worship and creation…
     in addition to the relational pathway
    “Give as much of yourself as you can to as much of God
     as you can know.”
Asperger’s Disorder: Core difference…difficulty with
   reciprocal social interactions, restricted pattern of
   interests, activities

                 Child                                 Teenager
Weekend          Sensory integration may be            More difficulty navigating social aspects of church
Worship:         problematic…bright lights, loud
                 music can cause distress              Less likely to be invited to church (few friends)


Church           Transitions, social expectations in   Difficulty picking up social cues in small groups,
Activities:      church environments problematic       Very sensitive to teasing/rejection by peers,
                                                       Negative perceptions of church difficult to change
                 May be easily irritated by peers
Spiritual        May be less sensitive to needs of     Reluctant to experiment with new spiritual
Disciplines      others, prone to very mechanical      practices, disciplines, prone to legalism, avoidant
                 spirituality                          of group disciplines


Growing in       Parents may struggle to engage        Difficulty engaging in family service experiences
faith at home:   child in spiritual discussions
                                                       Conflicts around church attendance may follow
                 Difficulty with abstract concepts     negative experiences
Final thoughts…

    Kids who are less neurotypical are likely to require more
     individualized approaches to spiritual growth
    Allow parents to take the lead…come alongside families
     by providing resources, ideas
    Identify their strengths/gifts/talents and give them
     opportunities to use them
    Many kids with social disabilities are desperate for
     friends, acceptance. What better place to find them,
     especially the Ultimate Friend…Jesus-than church?

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Kids and Teens With Mental Health Disorders…Barriers to Spiritual Growth

  • 1. Kids and Teens With Mental Health Disorders… Barriers to Spiritual Growth Stephen Grcevich, MD President, Board of Directors, Key Ministry Clinical Assistant Professor of Psychiatry, Northeast Ohio Medical University Senior Clinical Instructor, Child and Adolescent Psychiatry Case Western Reserve University School of Medicine Faith and Disability Symposium St. Peter’s United Methodist Church, Katy TX October 13, 2012
  • 2. Learning Objectives:   Identify obstacles to spiritual growth when kids have common mental health disorders…ADHD, anxiety disorders, mood disorders and autism spectrum disorders   Explore ideas for promoting inclusion of kids and teens with mental illness and their families at church   Discuss strategies for parents/caregivers to promote spiritual growth at home when kids struggle with mental illness
  • 3. What do we know?   22% of U.S. children entering first grade meet criteria for at least one mental health disorder   9.5% of U.S. children between ages 4-17 (5.4 million) have been diagnosed with ADHD…2.7 million U.S. kids regularly take ADHD medication (more common in 11-17 year-olds)   8% of teens ages 13-18 have anxiety disorders, most with onset around age 6 (only 18% have received treatment)   13% of U.S. kids have at least one developmental disorder   One child in 88 in U.S. has an autism spectrum disorder Carter, AS et al. J. Am Acad. Child Adolesc Psychiatry 2010;49(7): 686-698 http://www.cdc.gov/ncbddd/adhd/data.html http://www.nimh.nih.gov/health/publications/anxiety-disorders-in-children-and-adolescents/index.shtml Boulet, SL, Boyle CA, Schieve, LA. Arch Pediatr Adolesc Med. 2009;163(1):19-26. http://www.cdc.gov/ncbddd/autism/data.html
  • 4. “It is our culture that disables.” “When one is disabled, the problem is not really that they have impairments and social skill deficits. The issue at stake is that they live in an ‘ableist’ culture that rarely affords them the space or opportunity to make their unique contribution to society and does not lift up the value of choosing them as friends.” Ben Conner…Amplifying Our Witness (2012) Can a disability be a disability in some, but not all environments?
  • 5. The barriers to church participation are different for kids with mental illnesses and their families!
  • 6. Do our ministry environments and strategies for helping kids grow spiritually work if they have mental illness? An individual with a disability is defined as a person who has a mental or physical impairment that substantially limits one or more major life activities, a record of such impairment, or is regarded as having such an impairment. Americans With Disabilities Act (1990) If a mental or physical impairment substantially limits a person’s ability to pursue spiritual growth and participate in a local church, is that person “disabled?”
  • 7. Common barriers to church participation and spiritual growth in kids with mental illness…   Lack capacity for emotional, behavioral self-regulation   Vulnerability to misinterpret risks in environment   Differences in sensory processing   Differences in language processing, communication skills (including non-verbal, social communication)   Cognitive rigidity   Past negative experiences of church   Family stress, isolation   Parents with “issues”
  • 8. What is ADHD?:   ADHD is a neurodevelopmental disorder characterized by an age-inappropriate degree of inattentiveness and disorganization, and in some, but not all instances, impulsivity and hyperactivity
  • 9. Executive functioning as the fundamental difference in persons with ADHD?   Executive functions describe a set of cognitive abilities involved in controlling and regulating other abilities and behaviors.   Necessary in initiating goal-directed behavior, regulating emotions, delaying gratification, planning future behavior.   Children with weaknesses in executive functioning have more difficulty foreseeing outcomes of behavior, adapting to new situations.   Executive functions…behavioral inhibition, verbal and nonverbal working memory, emotional self-regulation, reconstitution Hathaway WL, Barkley RA. J Psychol Christianity 2003, 22(2) 101-114
  • 10. ADHD: Core differences…difficulties with attention, executive functioning Child Teenager Weekend Worship: Church Activities: Spiritual Disciplines Growing in faith at home:
  • 11. ADHD: Core differences…difficulties with attention, executive functioning Child Teenager Weekend Difficulty sitting in worship service Sleep problems impact AM church attendance Worship: Attention depends on interest, They need reminders to come relevance Communication needs to be crisp, engaging Environments too stimulating, too unstructured for many with ADHD Church May retain information better in May be better if “doing while talking” Activities: small group situations More difficulty avoiding negative influences Parents need to be copied on Time management may affect attendance information meant for home Spiritual More difficulty praying quietly Prone to seek peak religious experiences Disciplines More difficulty with Scripture Roller-coaster spirituality memorization? Inconsistent with spiritual disciplines Better with active disciplines Break Scripture into smaller parts Growing in Kids with ADHD may learn better Expose teens to service opportunities faith at home: 1:1 with parents Share personal experiences with them Encourage spiritual relationships outside home
  • 12. How are kids with anxiety disorders different from their peers?   They misperceive the level of threat, danger in their environment   They think too much…eventually to the point that academic performance, family functioning, friendships, extracurricular activities are compromised…rumination, perseveration, indecisiveness, perfectionism
  • 13. Anxiety Disorders: Core difference…predisposed to misinterpret risk in immediate environment, new situations Child Teenager Weekend Worship: Church Activities: Spiritual Disciplines Growing in faith at home:
  • 14. Anxiety Disorders: Core difference…predisposed to misinterpret risk in immediate environment, new situations Child Teenager Weekend Difficulty separating from parents Reluctant to attend without friends Worship: Visiting church challenging Uncomfortable with attention of group Transitions between age-group ministries difficult Church Reluctant to read Scripture out loud, Disclosure in small groups challenging Activities: participate actively, avoid plays, New, unfamiliar places, experiences may be performances threatening…retreats, mission trips Spiritual Prone to misperceive who God is… More prone to ritualism Disciplines Prayer, process of confession in Common obsessions- doubting salvation, sinning some traditions challenging against one’s will Group disciplines more challenging Growing in Parents can model faith, practicing Parents can sensitively expose teens to new faith at home: disciplines as a positive coping spiritual experiences strategy
  • 15. Tips for church staff and volunteers: Kids with anxiety   Look for kids from established families in worship with parents   Greeters watch for problems when “drop-offs” occur   Have a quiet place to meet with kids/parents in distress   Leaders can watch for kids who are alone   Offer to meet with parents when a child’s anxiety appears to interfere with ministry participation   Anxiety generally decreases with experience (exposure)   Potential areas of giftedness: administration, organization, sensitivity to others
  • 16. How are kids and teens with Asperger’s Disorder different?   Difficulties with reciprocal social interactions and restricted patterns of interests or activities   Normal language development (in contrast to other kids with autism)   Typically, average to high intelligence
  • 17. Asperger’s Disorder: Core difference…difficulty with reciprocal social interactions, restricted pattern of interests, activities Child Teenager Weekend Worship: Church Activities: Spiritual Disciplines Growing in faith at home:
  • 18. Asperger’s Disorder: Core difference…difficulty with reciprocal social interactions, restricted pattern of interests, activities Child Teenager Weekend Sensory integration may be More difficulty navigating social aspects of church Worship: problematic…bright lights, loud music can cause distress Less likely to be invited to church (few friends) Church Transitions, social expectations in Difficulty picking up social cues in small groups, Activities: church environments problematic Very sensitive to teasing/rejection by peers, Negative perceptions of church difficult to change May be easily irritated by peers Spiritual May be less sensitive to needs of Reluctant to experiment with new spiritual Disciplines others, prone to mechanical practices, disciplines, prone to legalism, avoidant spirituality of group disciplines Growing in Parents may struggle to engage Difficulty engaging in family service experiences faith at home: child in spiritual discussions Conflicts around church attendance may follow Difficulty with abstract concepts negative experiences
  • 19. Tips for church staff and volunteers: Kids with Asperger’s Disorder   Be aware of sensory stimulation in ministry environments   Partial/reverse inclusion an option   May do better when serving alongside adults   Provide opportunities to rehearse new situations, environments   Disability awareness important in student ministry   Tap into areas of potential giftedness
  • 20. General principles of ministry with families of kids with mental illnesses…   You don’t need to create a “program” for effective ministry   Kids with issues don’t think of themselves as “disabled” or “special needs”…nor do most parents   Most kids won’t need “buddies”   Win…Whenever a child with a disability or their family member experiences a meaningful connection with a local church
  • 21. Four things your church can do to reach families of “kids with issues”   You can’t wait for them to come…Church-based or relational respite care, offer support services, access for support groups   Train your children’s/youth staff and volunteers on strategies to help them have positive experiences at church   Consider your ministry environments   Include kids and families in activities your church leadership has found most helpful to spiritual growth
  • 22. What Have We Learned?   Kids with mental illnesses can be welcomed into church activities without having to establish stand-alone programs or “buddy systems”   The way we do church often presents impediments to church attendance and spiritual growth in kids with mental illnesses and their families   Family ministry approaches may be especially important among kids with more unique processing, communication, social interaction   Families of kids with mental illnesses may represent the ultimate “low-hanging fruit” for evangelism, outreach
  • 23. Additional Resources:   Resource page on ADHD and spiritual development (includes video from Dr. Russ Barkley) http://drgrcevich.wordpress.com/teaching-series-adhd-and-spiritual-development/   Resource page on anxiety and spiritual development http://drgrcevich.wordpress.com/resource-page-anxiety-and-spiritual-development/   Resource page on Asperger’s Disorder and spiritual development (includes video of 2012 Children’s Ministry Web Summit presentation) http://drgrcevich.wordpress.com/resource-page-anxiety-and-spiritual-development/   Resource page on Pediatric Bipolar Disorder (includes link to 2010 Grand Rounds presentation at Children’s Hospital Medical Center of Akron) http://drgrcevich.wordpress.com/pediatric-bipolar-disorder-a-guide-for-childrens-and- youth-pastors-and-volunteers/   The Mission Field Next Door (2011 Inclusion Fusion presentation with Katie Wetherbee) http://youtu.be/PshzmYircCo
  • 24. Provides FREE training, consultation, resources and support to help churches serve, welcome and include families of kids with hidden disabilities
  • 25. Stay in Touch! Key Ministry Website: http://www.keyministry.org Church4EveryChild…Steve’s Key Ministry Blog: http://drgrcevich.wordpress.com Diving For Pearls…Katie Wetherbee’s Blog: http://katiewetherbee.wordpress.com A Reckless Pursuit…Harmony Hensley’s Blog: http://arecklesspursuit.wordpress.com http://www.facebook.com/drgrcevich http://www.facebook.com/pages/Key-Ministry/116940088329098 http://twitter.com/#!/drgrcevich http://twitter.com/#!/KeyMinistry
  • 28. How might ADHD affect one’s spiritual life? Children/teens: Adults:   Inhibition: sitting through a worship   Can I use the computer without service viewing pornography?   Nonverbal working memory:   Forgetting to register my kids for the remembering my Bible when it’s time weekend retreat to leave for church   The ability to memorize and meditate   Verbal working memory: the ability to quietly upon Scripture pray silently   I scream and yell at my spouse and   Emotional self-regulation: my kids, overreact when imposing immediately react negatively to discipline demands from authority   Difficulty applying Biblical truths,   Planning, problem-solving: I’m not wisdom in daily life going to youth group on Sunday night because my homework’s not done.
  • 29. Problems with internalization of faith arising from ADHD:   Persons with ADHD may have more difficulty maintaining a spiritually disciplined life   May have more difficulty meditating quietly upon God   More prone to give up on Bible study when it becomes tedious   More difficulty delaying immediate gratification for long-term spiritual outcomes Hathaway WL, Barkley RA. J Psychol Christianity 2003, 22(2) 101-114
  • 30. Problems with stability of spiritual growth arising from ADHD:   Greater vulnerability to negative environmental influences   More likely to have intense spiritual experiences at VBS, camp, mission trips that fade when spiritual context is gone   More prone to “roller-coaster” spirituality   Miss out on volunteer, service opportunities if perceived as undisciplined, disorganized   Drawn to religious contexts that are more participatory, action-oriented, relational Hathaway WL, Barkley RA. J Psychol Christianity 2003, 22(2) 101-114
  • 31. Challenges presented to the church by persons with ADHD:   Style of worship…engaging, but not overstimulating best   Kids, some adults find worship environments as unpleasant   Church staff lack training, experience with kids with ADHD   Church environments less structured than school   Parents choose not to use, or physicians encourage discontinuation of effective medication on weekends   Many church activities occur when medication has worn off or rebound is occurring
  • 32. What advantages might ADHD provide a follower of Christ?   Willingness to take chances for God   May be very energized by topics or ministry activities that capture the imagination   May be very effective in ministry teams when others have complimentary organizational skills   Ability to engage others may help in sharing the Gospel   Good at scanning environment for trends   Is ADHD over-represented among senior pastors?
  • 33. Ministry strategies for persons with ADHD: Environments Children/teens: Adults:   Registration/sign-in needs to be   Is signage, direction clear? orderly   Use of music, technology   Staffing for transition times before/after services   Physical environment shouldn’t become a   Use of color, lighting distraction   Engaging, not overwhelming   Flexibility in dress code   Communication strategies… reinforce key point(s)   Simplicity in communication   Use of touch, nonverbal cues   Family worship experiences geared to kids?
  • 34. Ministry strategies for persons with ADHD: Discipleship Children/teens: Adults:   Church and parents as   Connecting them with others in partners in teaching kids the church especially important about God   Break Scripture into smaller,   They’ll learn and retain more manageable parts in 1:1, small group situations   Small groups offer multiple   Ministry resources need to be accountability partners sent directly to parents   Where can they be involved in   Where can they be involved meaningful service? in meaningful service?   You have to remind them if you want them to come
  • 35. What can I do to help someone I love with ADHD come to faith, grow in faith? My child: My spouse, sibling, friend:   Spend time with your child   Invite them to church (or one on one or as a family remind them to come) praying together, studying the   Go with them to a church Bible together where they’re more likely to   Make Jesus, Scripture have a positive experience interesting by sharing from   Pray, study the Bible, serve your experiences with them   Seek opportunities for your   Connect them to others in the child to serve in ways that fit church who will accept them, their talents, gifts follow up with them   Attend church regularly
  • 36. ADHD: Core differences…difficulties with attention, executive functioning Child Teenager Weekend Difficulty sitting in worship service Sleep problems impact AM church attendance Worship: Attention depends on interest, They need reminders to come relevance Communication needs to be crisp, engaging Environments too stimulating, too unstructured for many with ADHD Church May retain information better in May be better if “doing while talking” Activities: small group situations More difficulty avoiding negative influences Parents need to be copied on Time management may affect attendance information meant for home Spiritual More difficulty praying quietly Prone to seek peak religious experiences Disciplines More difficulty with Scripture Roller-coaster spirituality memorization? Inconsistent with spiritual disciplines Better with active disciplines Break Scripture into smaller parts Growing in Kids with ADHD may learn better Expose teens to service opportunities faith at home: 1:1 with parents Share personal experiences with them Encourage spiritual relationships outside home
  • 37. Specific Anxiety Disorders in Children, Adolescents: Note: Kids may experience different manifestations of anxiety as they progress through developmental stages   Separation Anxiety Disorder   Specific Phobia   Generalized Anxiety Disorder   Social Anxiety Disorder   Panic Disorder   Obsessive-Compulsive Disorder   Selective Mutism J Am Acad Child Adolesc Psychiatry, 2007;46(2):267-283
  • 38. Anxiety Disorders: Core difference…predisposed to misinterpret risk in immediate environment, new situations Child Teenager Weekend Difficulty separating from parents Reluctant to attend without friends Worship: Visiting church challenging Uncomfortable with attention of group Transitions between age-group ministries difficult Church Reluctant to read Scripture out loud, Disclosure in small groups challenging Activities: participate actively, avoid plays, New, unfamiliar places, experiences may be performances threatening…retreats, mission trips Spiritual Prone to misperceive who God is… More prone to ritualism Disciplines Prayer, process of confession in Common obsessions- doubting salvation, sinning some traditions challenging against one’s will Group disciplines more challenging Growing in Parents can model faith, practicing Parents can sensitively expose teens to new faith at home: disciplines as a positive coping spiritual experiences strategy
  • 39. Kids With Asperger’s Disorder:   Severe, sustained impairment in social interactions…   Restricted, repetitive patters of behavior, interests and activities   Clinically significant impairment in social, academic, family functioning   No delays in language development   No delays in cognitive development…often have above-average to superior IQ
  • 40. Some observations…   God created all of us as unique human beings…more kids in this generation are being diagnosed with autism spectrum disorders and other social disabilities… accident?   Churches are social institutions…we promote fellowship, discipleship…Where does that leave people who struggle with relationships?   Church environments operate under “The Reverse 80/20 Principle”   Jesus and the lost sheep…He pursues the “one” while protecting the “99”
  • 41. Issues seen in kids with Asperger’s Disorder:   Intense preoccupation with topics, objects takes on an odd or unusual quality   May struggle with motor skills, coordination   Difficulty with pragmatic language, differences in intonation, pace, volume, pitch (monotonal)…difficulty with implied meaning, figurative speech   Difficulties identifying with experiences of others   More likely to experience issues with attention, organization, obsessive thoughts than peers   More likely to experience sensory processing issues
  • 42. The Scope of the Problem:   Prevalence of autism spectrum disorders (ASDs) in U.S. ranges from one in 80 to one in 240   4-5X more boys than girls diagnosed with an ASD   The majority (59%) of children with ASDs don’t have an intellectual disability   Kids with Asperger’s are more likely to be targets of bullying, have more difficulty coping with bullying Source: http://www.cdc.gov/ncbddd/autism/data.html
  • 43. Barriers for kids with Asperger’s/PDD/ social disabilities at church…   Getting parents to bring them to church   Church environments don’t play to their strengths… change in daily routine, unfamiliar people, transitions, sensory issues, physical activity   Uneven development complicates program placement   Very resistant to placement in “special needs” ministry   Experience of “Christian kids” at school
  • 44. Applying family-based ministry model when kids have Asperger’s/PDD/Social Disabilities…   Parent as the “expert” to individualize strategies to promote spiritual development   Coming alongside vs. “equipping”   Defining your “win”…Whenever a child/family with a disability connects in a meaningful way with their larger family in Christ through the ministries of a local church   Church as a shared family experience?   Spiritual disciplines as routines…(establishing rhythm)   Creating a place to experience an intentionally safe and supportive community
  • 45. Tips for church staff and volunteers: Kids with Asperger’s/PDD/social disabilities   Consider impact of sensory stimulation in ministry environments   Partial inclusion an option   Consider service opportunities alongside adults   Provide opportunities to rehearse new situations, environments   Promote disability awareness in children’s, student ministry   Identify areas of potential giftedness
  • 46. Hypothetical strategies for promoting spiritual growth…   Tangible acts of service, modeled by parents, family members, other adults   Assuming identified role at church   Role of electronic media in presenting Jesus in an engaging way?   Online ministry as strategy for overcoming barriers to live participation in church?
  • 47. The “relationship” issue…   Kids with Asperger’s/social disabilities have some capacity to grasp relationships   There’s more than one spiritual pathway…intellectual, activist, servant, contemplative, worship and creation… in addition to the relational pathway   “Give as much of yourself as you can to as much of God as you can know.”
  • 48. Asperger’s Disorder: Core difference…difficulty with reciprocal social interactions, restricted pattern of interests, activities Child Teenager Weekend Sensory integration may be More difficulty navigating social aspects of church Worship: problematic…bright lights, loud music can cause distress Less likely to be invited to church (few friends) Church Transitions, social expectations in Difficulty picking up social cues in small groups, Activities: church environments problematic Very sensitive to teasing/rejection by peers, Negative perceptions of church difficult to change May be easily irritated by peers Spiritual May be less sensitive to needs of Reluctant to experiment with new spiritual Disciplines others, prone to very mechanical practices, disciplines, prone to legalism, avoidant spirituality of group disciplines Growing in Parents may struggle to engage Difficulty engaging in family service experiences faith at home: child in spiritual discussions Conflicts around church attendance may follow Difficulty with abstract concepts negative experiences
  • 49. Final thoughts…   Kids who are less neurotypical are likely to require more individualized approaches to spiritual growth   Allow parents to take the lead…come alongside families by providing resources, ideas   Identify their strengths/gifts/talents and give them opportunities to use them   Many kids with social disabilities are desperate for friends, acceptance. What better place to find them, especially the Ultimate Friend…Jesus-than church?

Notes de l'éditeur

  1. Barriers to kids with mental illnesses attending church are far more subtle than those faced by persons with physical disabilities. Church staff and volunteers might anticipate ministry environments that will present impediments with a better understanding of these conditions.
  2. Key concept: Many kids (and adults) may struggle…or thrive depending upon the external demands placed upon them by their environment at any given moment. Some might do well in one church and not another, depending upon the specifics of the environment.Example…Six year old boy referred by special education department of local public school system. Very little self-control. Parents chief complaint…”We can’t go anywhere with him”…yet they attend church weekly. How?“We sit in the first row…he and his brother like to dance to the praise band. When the music’s over, they take the kids out and keep them so busy, he does OK.”
  3. How kids with ADHD might struggle with weekend worship, participation in other church activities, spiritual development and in attempts to grow faith at home.
  4. Kids with ADHD often have PARENTS with ADHD. The odds that any given child of a parent being treated for ADHD will have ADHD themselves is around 50/50.
  5. How kids with anxiety disorders might struggle with weekend worship, participation in other church activities, spiritual development and in attempts to grow faith at home.
  6. How kids with Asperger’s Disorder might struggle with weekend worship, participation in other church activities, spiritual development and in attempts to grow faith at home.