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Dr Erinma Ochu, Engagement Fellow
Life Sciences, University of Manchester
Citizen Science:
Approaches, Opportunities & Insights for biomedical research
Definitions/ Approaches
Citizen Science
Usually unpaid individuals & interest groups contributing to
scientific experiments
• Crowdsourced science
– Complex problem, wisdom & power of crowd to create,
analyse, collect datasets – mainly research benefits
• Co-design (or extreme citizen science)
– Public participate in setting research question(s), methods
and/ or analysis to address social need
• DIYBIO – network of hobbyists & biohackers DIY, hack, open
source ethos to labs, equipment, methods
• Variations – Citizen Science with co-design & crowdsourcing
elements
1. Research Questions
2. Methods
3. Data
analysis
4. Dissemination
Influencing research
Early Citizen Science
Agnes PocklesCharles Darwin
@citizenbrains
www.thegreatbrainexperiment.com
Crowdsourcing Neuroscience
@eye_wire
http://eyewire.org
Citizen Science - Insights, opportunities and approaches for biomedical research
See end slide for resources links
Citizen Science - Insights, opportunities and approaches for biomedical research
1. New Research
Questions
2. Novel Methods
3. Creating
datasets
4. New cultural experiences
Public Engagement
HOOKED!
Albinomosquito:
www.albinomosquito.com/
Publications & Resources
• Guide to Citizen Science: http://www.ukeof.org.uk/documents/guide-to-
citizen-science.pdf
• Centre for Social Justice, Durham Ethical Guidance:
http://www.dur.ac.uk/beacon/socialjustice/ethics_consultation/
• Making is Connecting: the social meaning of connectivity, from DIY
and knitting to YouTube and Web 2.0. Polity Press 2011
http://www.makingisconnecting.org
• Beyond research in the wild: citizen-led research as a model for
innovation in the digital economy:
http://www.de2012.org/sites/default/files/digitalfutures2012papers/Papers/S
ession1BTalesofEngagement/Whittle_etal_BeyondRitW.pdf
• Regional development in health and social services in the UK: ‘edge effects’ and
sustainable change in welfare organisations (1995)
erinma.ochu@manchester.ac.uk

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Citizen Science - Insights, opportunities and approaches for biomedical research

  • 1. Dr Erinma Ochu, Engagement Fellow Life Sciences, University of Manchester Citizen Science: Approaches, Opportunities & Insights for biomedical research
  • 2. Definitions/ Approaches Citizen Science Usually unpaid individuals & interest groups contributing to scientific experiments • Crowdsourced science – Complex problem, wisdom & power of crowd to create, analyse, collect datasets – mainly research benefits • Co-design (or extreme citizen science) – Public participate in setting research question(s), methods and/ or analysis to address social need • DIYBIO – network of hobbyists & biohackers DIY, hack, open source ethos to labs, equipment, methods • Variations – Citizen Science with co-design & crowdsourcing elements
  • 3. 1. Research Questions 2. Methods 3. Data analysis 4. Dissemination Influencing research
  • 4. Early Citizen Science Agnes PocklesCharles Darwin
  • 7. See end slide for resources links
  • 9. 1. New Research Questions 2. Novel Methods 3. Creating datasets 4. New cultural experiences Public Engagement
  • 11. Publications & Resources • Guide to Citizen Science: http://www.ukeof.org.uk/documents/guide-to- citizen-science.pdf • Centre for Social Justice, Durham Ethical Guidance: http://www.dur.ac.uk/beacon/socialjustice/ethics_consultation/ • Making is Connecting: the social meaning of connectivity, from DIY and knitting to YouTube and Web 2.0. Polity Press 2011 http://www.makingisconnecting.org • Beyond research in the wild: citizen-led research as a model for innovation in the digital economy: http://www.de2012.org/sites/default/files/digitalfutures2012papers/Papers/S ession1BTalesofEngagement/Whittle_etal_BeyondRitW.pdf • Regional development in health and social services in the UK: ‘edge effects’ and sustainable change in welfare organisations (1995)

Notes de l'éditeur

  1. Wellcome Trust Engagement Fellow based in FLS at the University of Manchester exploring how the public can influence biomedical. Going to introduce briefly the approaches, opportunities and insights and well as considering the wider societal impact of citizen science and further the field of public engagement with biomedical research
  2. A modern term but an old practice. Gentlemen scientists of 20th Darwin & Agnes PocklesSurface TensionEver blown bubbles from a soap solution? The shape of the bubble is because of a phenomenon called surface tension, which happens where water meets air. The soap in the bubble reduces the surface tension, allowing the water bubble to last for sometime without breaking. It is very important at the kitchen sink. If you use too little soap, the water will not remove the oil sticking to the dirt. If you use too much, you’ll have to keep buying soap! The right balance was discovered by a German woman – Agnes Pockels.Letter to RayleighIn 1891, the famous British physicist Lord Rayleigh received a letter in German. When he had it translated, he found that it mentioned some astonishing experiments. The writer, Agnes Pockels, had devised a simple device, consisting of a tin trough, with a movable strip of tin on top.
  3. Complex problem benefits from power & wisdom of the crowd to solve it collectivelyContributes to neuroscienceresearch & players have funEyewire – play a game to map the brainWellcome Trust Centre for Neuroimaging – Help Neuroscience research while playing fun games on your smart phone22,000 users and 100,000 datasets@citizenbrains
  4. Catalyst – Patchworks – insert movie
  5. If you’re thinking about developing your own citizen science project, these two guides are a great place to start…
  6. Innovation at the edge
  7. Three projects in which I hope to explore the possibilities, social & scientific value, new research questions, new research methods, generating new datasets, new cultural experiences