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CEREBRAL PALSY AWARENESS WORKSHOP HELD ON 2nd MARCH 2016 AT NICE
VIEW MEDICAL CLINIC
The cerebral palsy awareness workshop was held on 2nd
march 2016. This event was used as a
benchmarkforraising awareness on the magnitude of cerebral palsy
cases within Msambweni, Matuga and LungaLungasub counties as
well asmobilize the communityonthe currentinterventionsavailable
i.e. occupational therapy, orthopedic technology, hand therapy,
nutritional counseling,school placement and vocational habilitation.
During the event we received 18 pieces of occupational therapy
equipment that will be distributed to our outreach rehabilitation
clinics in LungaLunga, Shimoni and Kikoneni. We fabricated60 hand
rehabilitation splints for 40 patients
OUR OBJECTIVES WERE:
1. Provide therapeutic
interventionsforchildrensuffering
from various disabling conditions
2. Embrace teamwork and
consultation while tackling issues related to disability
3. Understanding various pediatric neurodevelopmental
disorders in children
4. Tackling emotional and psychological issues affecting
mothers and other caretakers of children living with
disability
5. Training mothers and other care takers on both
instrumental andbasicactivitiesof dailyliving i.e. feeding,
toileting, grooming, mobility and communication
6. Integrationof the disabledchildwithinthe community and
school
SERIES OF ACTIVITIES
1. Introduction on cerebral palsy, its causes, prevention,
complications and treatment modalities available
2. Hand therapy assessments and fabrication of functional
hand splints
3. Nutritional counselingandassessments,Plumpy’Nutswere
provided to malnourished children
4. Educational assessment and referral to either mainstream
schools or special schools.
Familieswaitingfortreatment
BasetTitaniumvolunteers
settingupequipment
5. Presentation from orthopedic technology department on the importance of assistive devices
6. Handing over of the 18 occupational therapy equipments from base titanium base team
7. Parents’ group discussions and sharing of experiences
REPORTING SHEET
ACTIVITY REPORT (NUMBERS)
1. Evaluations
77 evaluations done: 73 cerebral palsy, 1 hydrocephalus, 1
multiple congenital deformities, 1 delayed developmental
milestones and 1 myasthenia gravis.
2. Presentation
- Introduction to cerebral palsy/ complications and
management
- School assessment and placement
- Hand therapist assessment
- Nutritional counseling and assessment
- Demonstrations on the use of occupational therapy
equipment
- Presentation by Christine from base titanium on
their continued support
- Orthopedic technology presentation on the
importance of assistive devices
3. Splinting
50 children assessed for splinting
45 patients recommended for splint prescription
40 patients benefitted from splints fabricated usingorfit
4. Education school assessment
20 children with CP assessed for school placement, 12
referred to normal schools while 8 were referred to special
school
5. Parent training
90 care takers trained on splint fitting, feeding and toileting
6. Nutritionist
47 assessed and counseled
Plumpy’Nuts provided to 35 kids
12 referrals toMCRH for further treatment
7. Hand therapist
50 assessments
45 patients for hand splinting
40 benefitted from functional splints (60 splints fabricated)
5 patients missed out
8. Orthopedic assessments
30 assessments
14 patients needed KAFOS
9 Patients needed AFOS
5 patients for thoraco-lumbar corsets
2 patients for arch support
A therapist demonstrating to patients on how to use the standing aid
Pictorial
Pictorial
Patients with custom made hand splints produced during the workshop
Patients with cerebral palsy who received custommade splints for
their contracted hands. The parents were also trained in the useof
those splints and of courseon how to do exercises to increasethe
mobility of their children at home.
Appreciation
We want to appreciate our sponsors for making this exercise a success:
- Nice View medical clinic provided lunch, beverages, conference hall and printing services.
- Base Titanium provideduswith facilitators’ allowances, fare for parents and caretakers and 18
occupational therapy equipment.
- Our appreciation also goes to Dr. Stan, who found a sponsor, the Henri Servais Foundation, to
provide us with splinting material (2 sheets of 3.2 mm Orfit, 1 sheet of 2.4 mm Orfit, a roll of
Velcro hook and loop.
- We also appreciate Base Titanium for giving us 1 sheet 3.2 mm to compliment what we had.
Through this we were able tofabricate over 60 splints for 40 patients.
RECOMMENDATIONS
1. More workshops should be rolled out in all sub counties within Kwale county to increase
awareness and defeat retrogressive practices and notions on disabilities
2. Its convenient to pay parents cash instead of using the mobile money transfer for the fare
re- imbursements
3. Having a public address system will increase effectiveness and reduce boredom
4. Having charts and projectors will make it easier for parents to learn
5. We need more establishment of special school which should factor in occupational
therapist, physiotherapists, orthopedic technologists and special education experts
6. Establishment of vocational habilitation centers within Kwale County to increase
accessibility.
7. Provision of hand therapy services should be given a priority
8. Formation of support groups should be encouraged among parents and care takers of
children with cerebral palsy.
9.
List of patients and care takers who turned up for the workshop
CHILD CARE TAKER RESIDENCE DIAGNOSIS
GRACE KIOKO ESTER KATENGE MAGODI CP
RACHAEL NYAMAI SARAH MLEGWA KIKONENI CP
HAMISSHUNGI MWANAMKASI TIWI CP
ASHANASSORO ASHA HUSSEIN MUNJE CP
PETER NZIOKI MARY KUNIVA KINONDO CP
BENJAMIN KIMEU REBECCA MAGODI MYSTEMIAGARI
GABRIEL MUSYOKI JOSEPHINE MBATHA KIKONENI CP
AMINAHAMIS BI ZUME OMAR FIKIRINI CP
JAMES MULI ROSE SILA MAFISINI CP
MTENDEMKALA IRINE KATANA VANGA CP
KASSIMSHEE KHADIJA KASSIM VANGA CP
KAVULI AGNES MARRAMULWA ESHU CP
SAUDABAHATI PESAMWINYI SHIMONI CP
ALI KASSIM MWANAMKASI ALI SHIMONI CP
MOHAMED MALIK FATUMA MALIK SHIMONI CP
ABDALLASALIM MWANASHA ALI MATUGA DS
ALI SALIM BINTI MOHAMED MATUGA CP
HUSSEIN KIMETE NASRA HUSSEIN SHIMONI CP
OMAR ABDALLA ALI MWACHAMANGA KITEJE CP
PAUL MWATELE NGUNACHITI MWANGULU CP
REHEMAJUMA MWANAULUJUMA KIKONENI CP
REHEMAHAMIS KIKONENI
SIAJABUMAKAME MWANAISHA OMAR ZIGIRA HYDROCEPHALY
VINCEPAUL KEZZIAWAITHERA UKUNDA DMS
MWANAISHAHAMZA ALI SALIM TIWI CP
FATUMASALIM TIWI
NYAMAICHIRO CHIZICHIRORO DZOMBO CP
ALI ABDALLA FATUMA RASHID MILALANI DS
BILALI OMAR OMAR KSSIM MUNJE CP
LATIFAJUMA MWANAISHA OMAR UKUNDA CP
SAUMU OMAR UKUNDA
THUWAIBABAKARI FALIME SULEIMAN UKUNDA CP
MWANAISHAJUMA JUMAABDALLA UKUNDA CP
SALIMJAMALI MWANAJUMASALIM KINGWEDE CP
JUMASHEE FATUMAABDALLA LIKONI CP
ISSAIDD MWENESIDARUSI FUNZI CP
MWANAMKUURIZIKI RIZIKI ALI MSAMBWENI CP
MWANAKOMBOMOHD MEJUMAAJUMA MAKONGENI CP
OMAR SHABAN MWANASILI OMAR MAKONGENI CP
SALIMBAKARI SALIMBAKARI SHIMONI CP
HASSAN AMADI AMINACHINDORO KIGOMBERO CP
SWALEHNGARA CHALAMEMKULA TWAKA CP
CHARIFUJEFFA MWANAKOMBOBECHARO KIGOMBERO CP
MWENDEMWEDWA MAKOBE 0790764118 CP
BAHATIHAWADHI MEMAABDALLA SHIMONI CP
MUTUANGUNGU ESTHER WANZA MANYATTA CP
RIZIKISALIM MEJUMAA OMAR TIWI CP
HAMISMWALIMU FATUMADZAME BOMANI CP
PROSPER KIVATI NAOMI KIVATI MWANANYAMALA CP
MULAHATSALIM ASHA OMAR MAJORENI MULTIPLE
CONGENITAL
DEFORMITIES
MESALIMU RAMA MWANAKOMBO ALI UKUNDA CP
JUMAJUMA ASHAJUMA UKUNDA CP
SAID ANGORE MWANAMIS OMAR LUNGALUNGA CP
VICK DANIEL SHELALA UKUNDA CP
MARIUM OMAR MERASHIDSALIM MAGANYAKULO CP
ZAKARIASAIDI MWANASHAALFANI TIWI CP
BARAKA YUSUF YUSUF BAYA VINGUJINI CP
ELIZABETH KWIYA VINGUJINI
BERITA JANE WAWUDA UKUNDA CP
ESBORNKINUTHIA JACINTA WANJIKU UKUNDA CP
LEON BABU SAUMUABDALLA KONA YA SHIMONI CP
FATIAIDD MISHIABDALLA SHIMONI CP
MWAMBUA JAMES ANNA MUENI MAFISINI CP
ANNA MUENI MAFISINI
ANNE ANNA MUENI MAFISINI CP
DAUDISALIM MWANARUSISALIM KOMBANI
HAMADHAMIS HALIMA JUMA UKUNDA CP
NOHAMALKI ALMAS BAKARI UKUNDA CP
JAMAL SUBIRA HALIMA HASSAN FINGIRIKA CP
REHEMA RAMA MWANAMISKHALIFA FINGIRIKA CP
PHILPMUNGAI LEAH STEVEN RAMISI CP
GEORGE ABURA ELIZABETH MSOKE UKUNDA CP
HAFSAMOHD MWAKAMWASERE KOMBANI CP
PREPARED BY: GEOFFREY MOMANYI MORIASI,
OCCUPATIONAL THERAPIST MSAMBWENI REFERRAL HOSPITAL
gmoriasi@gmail.com +254-724770337

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compressed report

  • 1. CEREBRAL PALSY AWARENESS WORKSHOP HELD ON 2nd MARCH 2016 AT NICE VIEW MEDICAL CLINIC The cerebral palsy awareness workshop was held on 2nd march 2016. This event was used as a benchmarkforraising awareness on the magnitude of cerebral palsy cases within Msambweni, Matuga and LungaLungasub counties as well asmobilize the communityonthe currentinterventionsavailable i.e. occupational therapy, orthopedic technology, hand therapy, nutritional counseling,school placement and vocational habilitation. During the event we received 18 pieces of occupational therapy equipment that will be distributed to our outreach rehabilitation clinics in LungaLunga, Shimoni and Kikoneni. We fabricated60 hand rehabilitation splints for 40 patients OUR OBJECTIVES WERE: 1. Provide therapeutic interventionsforchildrensuffering from various disabling conditions 2. Embrace teamwork and consultation while tackling issues related to disability 3. Understanding various pediatric neurodevelopmental disorders in children 4. Tackling emotional and psychological issues affecting mothers and other caretakers of children living with disability 5. Training mothers and other care takers on both instrumental andbasicactivitiesof dailyliving i.e. feeding, toileting, grooming, mobility and communication 6. Integrationof the disabledchildwithinthe community and school SERIES OF ACTIVITIES 1. Introduction on cerebral palsy, its causes, prevention, complications and treatment modalities available 2. Hand therapy assessments and fabrication of functional hand splints 3. Nutritional counselingandassessments,Plumpy’Nutswere provided to malnourished children 4. Educational assessment and referral to either mainstream schools or special schools. Familieswaitingfortreatment BasetTitaniumvolunteers settingupequipment
  • 2. 5. Presentation from orthopedic technology department on the importance of assistive devices 6. Handing over of the 18 occupational therapy equipments from base titanium base team 7. Parents’ group discussions and sharing of experiences REPORTING SHEET ACTIVITY REPORT (NUMBERS) 1. Evaluations 77 evaluations done: 73 cerebral palsy, 1 hydrocephalus, 1 multiple congenital deformities, 1 delayed developmental milestones and 1 myasthenia gravis. 2. Presentation - Introduction to cerebral palsy/ complications and management - School assessment and placement - Hand therapist assessment - Nutritional counseling and assessment - Demonstrations on the use of occupational therapy equipment - Presentation by Christine from base titanium on their continued support - Orthopedic technology presentation on the importance of assistive devices 3. Splinting 50 children assessed for splinting 45 patients recommended for splint prescription 40 patients benefitted from splints fabricated usingorfit 4. Education school assessment 20 children with CP assessed for school placement, 12 referred to normal schools while 8 were referred to special school 5. Parent training 90 care takers trained on splint fitting, feeding and toileting 6. Nutritionist 47 assessed and counseled Plumpy’Nuts provided to 35 kids 12 referrals toMCRH for further treatment 7. Hand therapist 50 assessments 45 patients for hand splinting 40 benefitted from functional splints (60 splints fabricated) 5 patients missed out 8. Orthopedic assessments 30 assessments 14 patients needed KAFOS 9 Patients needed AFOS 5 patients for thoraco-lumbar corsets 2 patients for arch support A therapist demonstrating to patients on how to use the standing aid Pictorial
  • 3. Pictorial Patients with custom made hand splints produced during the workshop Patients with cerebral palsy who received custommade splints for their contracted hands. The parents were also trained in the useof those splints and of courseon how to do exercises to increasethe mobility of their children at home.
  • 4. Appreciation We want to appreciate our sponsors for making this exercise a success: - Nice View medical clinic provided lunch, beverages, conference hall and printing services. - Base Titanium provideduswith facilitators’ allowances, fare for parents and caretakers and 18 occupational therapy equipment. - Our appreciation also goes to Dr. Stan, who found a sponsor, the Henri Servais Foundation, to provide us with splinting material (2 sheets of 3.2 mm Orfit, 1 sheet of 2.4 mm Orfit, a roll of Velcro hook and loop. - We also appreciate Base Titanium for giving us 1 sheet 3.2 mm to compliment what we had. Through this we were able tofabricate over 60 splints for 40 patients. RECOMMENDATIONS 1. More workshops should be rolled out in all sub counties within Kwale county to increase awareness and defeat retrogressive practices and notions on disabilities 2. Its convenient to pay parents cash instead of using the mobile money transfer for the fare re- imbursements 3. Having a public address system will increase effectiveness and reduce boredom 4. Having charts and projectors will make it easier for parents to learn 5. We need more establishment of special school which should factor in occupational therapist, physiotherapists, orthopedic technologists and special education experts 6. Establishment of vocational habilitation centers within Kwale County to increase accessibility. 7. Provision of hand therapy services should be given a priority 8. Formation of support groups should be encouraged among parents and care takers of children with cerebral palsy. 9. List of patients and care takers who turned up for the workshop CHILD CARE TAKER RESIDENCE DIAGNOSIS GRACE KIOKO ESTER KATENGE MAGODI CP RACHAEL NYAMAI SARAH MLEGWA KIKONENI CP HAMISSHUNGI MWANAMKASI TIWI CP ASHANASSORO ASHA HUSSEIN MUNJE CP PETER NZIOKI MARY KUNIVA KINONDO CP BENJAMIN KIMEU REBECCA MAGODI MYSTEMIAGARI GABRIEL MUSYOKI JOSEPHINE MBATHA KIKONENI CP AMINAHAMIS BI ZUME OMAR FIKIRINI CP JAMES MULI ROSE SILA MAFISINI CP
  • 5. MTENDEMKALA IRINE KATANA VANGA CP KASSIMSHEE KHADIJA KASSIM VANGA CP KAVULI AGNES MARRAMULWA ESHU CP SAUDABAHATI PESAMWINYI SHIMONI CP ALI KASSIM MWANAMKASI ALI SHIMONI CP MOHAMED MALIK FATUMA MALIK SHIMONI CP ABDALLASALIM MWANASHA ALI MATUGA DS ALI SALIM BINTI MOHAMED MATUGA CP HUSSEIN KIMETE NASRA HUSSEIN SHIMONI CP OMAR ABDALLA ALI MWACHAMANGA KITEJE CP PAUL MWATELE NGUNACHITI MWANGULU CP REHEMAJUMA MWANAULUJUMA KIKONENI CP REHEMAHAMIS KIKONENI SIAJABUMAKAME MWANAISHA OMAR ZIGIRA HYDROCEPHALY VINCEPAUL KEZZIAWAITHERA UKUNDA DMS MWANAISHAHAMZA ALI SALIM TIWI CP FATUMASALIM TIWI NYAMAICHIRO CHIZICHIRORO DZOMBO CP ALI ABDALLA FATUMA RASHID MILALANI DS BILALI OMAR OMAR KSSIM MUNJE CP LATIFAJUMA MWANAISHA OMAR UKUNDA CP SAUMU OMAR UKUNDA THUWAIBABAKARI FALIME SULEIMAN UKUNDA CP MWANAISHAJUMA JUMAABDALLA UKUNDA CP SALIMJAMALI MWANAJUMASALIM KINGWEDE CP JUMASHEE FATUMAABDALLA LIKONI CP ISSAIDD MWENESIDARUSI FUNZI CP MWANAMKUURIZIKI RIZIKI ALI MSAMBWENI CP MWANAKOMBOMOHD MEJUMAAJUMA MAKONGENI CP OMAR SHABAN MWANASILI OMAR MAKONGENI CP SALIMBAKARI SALIMBAKARI SHIMONI CP HASSAN AMADI AMINACHINDORO KIGOMBERO CP SWALEHNGARA CHALAMEMKULA TWAKA CP CHARIFUJEFFA MWANAKOMBOBECHARO KIGOMBERO CP MWENDEMWEDWA MAKOBE 0790764118 CP BAHATIHAWADHI MEMAABDALLA SHIMONI CP MUTUANGUNGU ESTHER WANZA MANYATTA CP RIZIKISALIM MEJUMAA OMAR TIWI CP HAMISMWALIMU FATUMADZAME BOMANI CP PROSPER KIVATI NAOMI KIVATI MWANANYAMALA CP MULAHATSALIM ASHA OMAR MAJORENI MULTIPLE CONGENITAL DEFORMITIES MESALIMU RAMA MWANAKOMBO ALI UKUNDA CP JUMAJUMA ASHAJUMA UKUNDA CP SAID ANGORE MWANAMIS OMAR LUNGALUNGA CP
  • 6. VICK DANIEL SHELALA UKUNDA CP MARIUM OMAR MERASHIDSALIM MAGANYAKULO CP ZAKARIASAIDI MWANASHAALFANI TIWI CP BARAKA YUSUF YUSUF BAYA VINGUJINI CP ELIZABETH KWIYA VINGUJINI BERITA JANE WAWUDA UKUNDA CP ESBORNKINUTHIA JACINTA WANJIKU UKUNDA CP LEON BABU SAUMUABDALLA KONA YA SHIMONI CP FATIAIDD MISHIABDALLA SHIMONI CP MWAMBUA JAMES ANNA MUENI MAFISINI CP ANNA MUENI MAFISINI ANNE ANNA MUENI MAFISINI CP DAUDISALIM MWANARUSISALIM KOMBANI HAMADHAMIS HALIMA JUMA UKUNDA CP NOHAMALKI ALMAS BAKARI UKUNDA CP JAMAL SUBIRA HALIMA HASSAN FINGIRIKA CP REHEMA RAMA MWANAMISKHALIFA FINGIRIKA CP PHILPMUNGAI LEAH STEVEN RAMISI CP GEORGE ABURA ELIZABETH MSOKE UKUNDA CP HAFSAMOHD MWAKAMWASERE KOMBANI CP PREPARED BY: GEOFFREY MOMANYI MORIASI, OCCUPATIONAL THERAPIST MSAMBWENI REFERRAL HOSPITAL gmoriasi@gmail.com +254-724770337