1. GET YOUR GIRL POWER ON!
the power of girls to cure rett syndrome
Girl Power sm
2 Cure
www.girlpower2cure.org
Girl Power 2 Cure, Inc.
121 Avenue of Two Rivers
Rumson, NJ 07760
732.747.2068
contact@girlpower2cure.org

2. About Us
Girl Power 2 Cure, Inc. is a 501c3 nonprofit
Power
organization dedicated to raising awareness and
Girl tm funds for treatments and a cure for Rett Syndrome,
Cure
a devastating neurological disorder that almost
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exclusively affects girls. We are all about
harnessing the spirit of girls as volunteers, as
mentors, and as a power of positive change in their
communities in support of their fellow girlfriends
“Warrior” Moms! who are suffering from Rett Syndrome.
Ingrid Harding, mother of Sarah, her Kelly Butler is our Program Director and
8-year-old daughter with Rett is at the heart of communicating with
Syndrome, founded Girl Power 2 Cure, Rett Syndrome families and organizing
Inc. in May 2006. She wanted to find a all of our events. Her daughter Brooklyn
way to engage young girls with their is four years old and was diagnosed
special needs peers after watching with Rett Syndrome shortly after her
wonderful bonds form between her second birthday.
own daughter and her classmates in
school. Prior to Girl Power 2 Cure, Inc., Kelly was
the Associate Director of Admission at
Ingrid hopes Girl Power 2 Cure, Inc. will Trine University (formally Tri-State
bring mainstream awareness of Rett University). Kelly works from her home
Syndrome and help raise the millions in Indiana where she resides with her
of dollars it will take to cure hundreds husband Charlie and daughter
of thousands of suffering girls. Brooklyn.
Ingrid is also the co-founder and a
Trustee of the Rett Syndrome Research Funds raised through Girl Power
partners:
Trust. 2 Cure events benefit the Rett
Syndrome Research Trust which
Prior to Girl Power 2 Cure, Inc., Ingrid
was CEO & Program Director for committed $2.4 million towards
PlayhouseRadio.com, an online research in 2008, more than any
children’s music station. other Rett Syndrome
organization in the world.
Ingrid works from her home in New
Jersey with her husband Peter and
three children: Pierce (11), Sarah (8)
and Gretchen (6).
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Girl Power 2 Cure, Inc. |121 Avenue of Two Rivers | Rumson, NJ 07760 | 732.747.2068 | contact@girlpower2cure.org | Tax # 20-8011668

3. About Rett Syndrome
WHAT IS RETT SYNDROME?
> Debilitating neurological disorder that predominantly affects females.
> The most physically disabling of the autism spectrum disorders.
> The leading genetic cause of severe impairment in girls - most cannot speak,
walk or use their hands.
> As prevalent as Cystic Fibrosis, ALS and Huntington's. There are close to half a million
girls and women battling Rett Syndrome worldwide.
> Another little girl is born with Rett Syndrome every 90 minutes.
> Symptoms include seizures, severe digestive problems, extreme anxiety, Parkinsonian
tremors, impaired cardiac and circulatory function, scoliosis, and disordered breathing.
BELIEVE IN THE CURE - WE ARE CLOSE
Rett Syndrome may hold the
There are just a handful of disorders that only a ect females. While
breast cancer is the most prevalent, Rett Syndrome is the leading key to a cure for millions of
cause of severe neurological impairment in females, a ecting another people suffering from dozens
little girl every 90 minutes. of disabilities.
Condemned to an entire lifetime of struggles, these girls are born
normal only to be robbed of their ability to speak, walk, crawl, or use “We hope that Rett Syndrome
their hands between the ages of one and two. They depend on
others for every part of their day. Complications include seizures, will be one of the first
sudden death in their sleep and scoliosis. childhood neurological
diseases to be cured. A
Today, there is no cure, but Rett Syndrome is CURABLE! Research has
recently proven this syndrome is completely reversible in mice. successful treatment for Rett
Amidst the mass confusion going on within their central nervous Syndrome could potentially
systems, these girls are smart, strong, and waiting patiently for us to
unlock the door to their recovery. lead the way to treatments
for millions of other sufferers
Not only will this research help hundreds of thousands of girls and of pediatric
women worldwide, but the ndings have a direct impact on research
on Autism, schizophrenia, bipolar disorder, Alzheimer's and many neurodevelopmental
other neurological disorders. disorders.”
In essence, our girls may hold the key to a cure for millions of people
su ering from dozens of problems. -- Dr. Omar Khwaja, MD PhD
Medical Director Rett Syndrome Program
Their cure is a HUGE cure! Children’s Hospital Boston
Girl Power 2 Cure, Inc. |121 Avenue of Two Rivers | Rumson, NJ 07760 | 732.747.2068 | contact@girlpower2cure.org | Tax # 20-8011668

4. Our website...
Girl Central. Girl Power tm
2 Cure
The Girl Power 2 Cure website is where both Rett families
and other girls within their communities can come to learn
about Rett Syndrome. We offer unique resources for Rett www.girlpower2cure.org
girls as well as reach out to girls’ organizations to involve
them with service projects and other volunteer efforts.
NDROME
FIGHT RETT SY
Girl Power
2 tm
Cure
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Ingrid Harding knows Real Girl Power. She has it, her daughter Sarah and all
girls with Rett Syndrome have it. They live it. The tireless battle she is waging
to cure Rett is the kind of story any journalist would be honored to tell, a story
which reminds us all that with certainty and hard work, we can change the
world.
Terry Schaefer
Former Producer
NBC TODAY SHOW
Girl Power 2 Cure, Inc. |121 Avenue of Two Rivers | Rumson, NJ 07760 | 732.747.2068 | contact@girlpower2cure.org | Tax # 20-8011668

5. Our family resource...
Family Central. THE EVERYTHING RETT SITE
RettGirl! is Girl Power 2 Cure’s latest
addition. Visitors to www.rettgirl.org will
find a centralized resource and referral site
for helping their daughter’s cope with Rett
Syndrome. Everything from wheelchairs
rett girl org
and orthotics, to helpful websites and
therapy recommendations!
Girl Power 2 Cure, Inc. |121 Avenue of Two Rivers | Rumson, NJ 07760 | 732.747.2068 | contact@girlpower2cure.org | Tax # 20-8011668

6. Dress Up 2 Cure
Our Annual Fund Raiser!
Dress Up 2 Cure is an annual national campaign taking place on April Fools' Day and
throughout the month of April (Autism Awareness Month) to raise money for Rett
Syndrome Research.
Families who have daughters with Rett Syndrome head up teams. Each of their team
members raise money for their team by getting dressed up silly or hosting an event: Casual
Work Days, tea parties, luncheons, bake sales, craft parties.... the works!
Schools participate by encouraging students to dress up for a donation of spare change.
proceeds
benefit Re
tt Syndrom
e research
I SUPPO
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TEAM S T
AVANN
AH
click to
chip in!
2009
Girl Power 2 Cure, Inc. |121 Avenue of Two Rivers | Rumson, NJ 07760 | 732.747.2068 | contact@girlpower2cure.org | Tax # 20-8011668