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The
             People First
                    2011
               Manifesto




We want to work with you
What is All Wales People First?

                            All Wales People First is the United Voice
                                of Self – Advocacy Groups and all
                           People with Learning Disabilities in Wales.

                          It Shares Knowledge and Information to
                        Achieve Equal Rights and a Positive Image.


All Wales People First…..
   collects people’s news and views
   shares information
   finds out what is going on around the country
   finds out what is important in people’s lives
   campaigns to improve the lives of people with learning disabilities
   puts people in touch with each other from all over Wales
   helps groups to be touch with the National Government for Wales
   supports self advocacy groups to get going and keep going


    All Wales People First is a member led company, limited by
    guarantee, registered in March 2009.


    Our values are embedded in the People First Manifesto 2010, in the
    United Nations Convention on the Rights of Persons with Disabilities,
    the Human Rights Act and the Social Model of Disability.

    All Wales People First is unique in Wales in that it is the only national
    organisation that solely represents the voice of men and women
    with a learning disability.
                                                                           2
The key statements for our vision are:


To make sure that all people with learning disabilities have a voice
 in spite of the difficult economic future we face.



To make our voices stronger by building on leadership skills and by
 being supported to become partners in change.



To make our voices heard by engaging with decision makers and
 driving forward our rights.



To make our communities stronger by linking with other
 organisations that will help us achieve the things that matter
 to us.



To make the organisation stronger by working differently,
 efficiently and creatively.




                                                                  3
The People First 2011 Manifesto

Wales should be proud that we led the way supporting
people with learning disabilities.




                    The All Wales Strategy set standards
                    that everyone else followed. We want
                    to help you carry on this great work.




                   Wales has signed up to the social
                   model of disability.
  introduction




                   We want to work with the you to make
                   sure that we keep moving forward and
                   never go back.


                                                            4
The People First 2011 Manifesto

We really are the experts in how we need to be
supported.

                    If you let social workers run our lives,
                    we are over supported, never
                    allowed to take the risks that
                    everyone else does. This costs you a
                    fortune and holds us back from the
                    lives we want.

                   Let us plan our own lives, and we
                   guarantee we’ll save you money,
                   we’ll have better lives and be part of
                   our Welsh communities.

                   People with learning disabilities living
                   at home as our parents get older
                   become carers.

                    The Assembly Health and Social Care
                    Minister needs to ensure we are
  planning




                    included in the Carers Strategy for
                    Wales.

                   The Minister should actively support
                   direct payments and individual
                   budgets for people with learning
                   disabilities.                               5
The People First 2011 Manifesto

When we have good support and housing we are
more confident, happy and able to get on with our
lives.

                          Wales is again leading the way with
                          new qualifications for social care
                          staff.




                          We want to be part of everyone's
                          course showing them what the
 housing and support




                          Social Model of Disability means for
                          us living in a modern Wales.




                          Work with the Care Council for Wales
                          to set social model training by
                          people with learning disabilities into
                          the new Qualifications and Credit
                          Framework.




                                                                   6
The People First 2011 Manifesto

Free bus passes in Wales have transformed our lives.




                    Help us make the most of this
                    freedom by including people with
                    learning disabilities in regeneration
                    plans and regional development
                    plans.


                    We want to be part of Wales
                    economy, if we have jobs we need
                    less social and health services.
                    Help us to help you save money
                    across Wales.


                    Include people with learning
                    disabilities when you write regional
                    development plans.
 transport




                    Include people with learning
                    disabilities when you develop public
                    transport across Wales, especially in
                    rural areas.

                                                            7
The People First 2011 Manifesto

Its 2011, we’re adults, we’re in relationships, we’re
getting married, we’re having sex, just like everyone
else does.

                     Help us teach social workers, nurses,
                     doctors and support staff how to
                     support us and we can look after
                     ourselves and our families.

                     The best way of protecting people
                     isn't by removing our human rights, it’s
                     by making sure we are well informed,
                     confident members of society.

                     We can be great parents when you
                     give us the right support.

                     The Health Minister needs to ensure
                     that there is a Family Information
  relationships




                     Service and Family Crisis Centre in
                     every part of Wales with a plan to
                     work with people with learning
                     disabilities.

                     All schools in Wales should have a
                     clear plan to include people with
                     learning disabilities in sex education
                     and parenting classes.
                                                              8
The People First 2011 Manifesto

The annual health check is another fantastic way that
Wales supports people with learning disability.


                    We want to work with you to make
                    sure the health checks are equally
                    good for everyone in Wales.


                    We want you to make sure that health
                    services include us in prevention
                    programmes like well woman, well
                    man, and family planning clinics.


                    The best way to make this happen is
                    to change the way doctors see us.


                    We can help you deliver social model
                    training for new doctors being trained
                    in Wales.
  health




                    The Health Minister should work with
                    Wales’ universities to ensure we are
                    part of training Wales’ new doctors
                    and nurses.
                                                           9
The People First 2011 Manifesto

We want to be part of the solution for Wales not part of
the problem.

                        So many of us want to work and do
                        more for our communities.


                        If we have full lives we become more
                        independent, we don't use services as
                        much and we give back, instead of just
                        using services.
  work and education




                        The Assembly’s Youth Volunteering
                        scheme has been a great way for us
                        gain peer support in the community.



                        The Education Minister should ensure
                        that we have access to adult literacy
                        and numeracy classes across Wales.



                        When the Minister for Economic
                        Development writes support strategies
                        for small businesses he should include
                        people with learning disabilities.
                                                                 10
The People First 2011 Manifesto

People First is the only voice for people with learning
disabilities run by people with learning disabilities.

                      The Welsh Assembly has given
                      People First groups across Wales
                      support and guidance to develop
                      and grow.


                      You can help us to help you by
                      ensuring we are funded into the
                      future.


                      The Assembly should provide People
                      First with funding that is independent
                      of service commissioners and
                      providers.
  self advocacy




                      All Assembly Ministers should ensure
                      that People First locally and
                      nationally are funded as providers of
                      training.


                      The Local Government Minister
                      should ensure that authorities fund
                      People First as service monitoring
                      and development consultants.
                                                               11
The People First 2011 Manifesto


Growing up into adults is hard enough for anyone.
Its much harder for us.

                      Becoming young adults means
                      leaving home, getting our own
                      place and starting out on our own
                      lives.


                      Too many of us can’t take that first
                      step and we are stuck at home.
                      This makes life hard for everyone.


                      With a little support we can make
                      the first step and get ready to move
                      on to independence.
  young people




                      The Assembly needs to ensure our
                      voices are heard in young peoples’
                      groups across Wales.


                      The Assembly Minister should ensure
                      that there is enough social housing
                      for everyone and housing
                      associations provide short stay and
                      support to move on to independence.

                                                             12
The People First 2011 Manifesto


Most communities in Wales are caring supportive and
friendly but not always.

                   Living with a disability in Wales can
                   still be hard.


                   People don’t always respect us or
                   treat us fairly.


                   When you’re different to other people
                   you stand out and sometimes this makes
                   you an easy target.


                   We want to help build positive
                   supportive communities in Wales,
                   fit for everyone to live in.
   community




                   The social justice and Local
                   Government Minister should include
                   people with learning disabilities in
                   community safety and cohesion
                   initiatives.


                                                           13
What people say
Some people do
                 n’t need 24 hou
much time and                   r support. Ther
                 money being sp                 e’s too
rather than lett                ent on ‘prepari
                ing them have a                 ng’ people
                                 go and get on w
                                                 ith it.

                                                                  bilities.
                                            ith and w ithout disa
                                                                     u’re
                          ix w ith people w g disability label; yo
               If you m             the learnin munity.
               You h  aven’t got       r own com
                just a ci tizen in you

We want support that is individual to us.
We want personal support, someone to talk to,
help with money – support that is flexible.
                                                                ears.
                                                      for four y rough
                                              my Mum              h
                                look ing after h the day and all t
                     I’ve been her all throug
                               er                  h.
                     I look aft ’s getting too muc
                                . It
                      the night
   My life’s been m
                     essed up and I do
   help to look after                  n’t get any
                      my Mum; there’s
                                        no support.

                                                 n the
                        r transp  ort. It gets i
         We need bette        at we want
                                           to lead.
                      ives th
         way of the l
                      Transport is the main issue in Ceredigion.
                      Transport’s alright in big cities. But in rural
                      areas you can’t get home, even if you can get out!
  I can use the
                 bu
  every month ses and we go clubbing
               . We look aft                 in Cardiff
  new friends,               er each othe
               old friends,               r. We meet
                            have a gossip
                                          .

                                                  ry bad.
                                 netw orks are ve t to do training,
                     Transport           a big effor          ransport.
                        u hav e to make           ecause of t
                     Yo                 leisure b
                     emplo  yment and
                                                                              14
They didn’t want us
                            to live together.
       They said ‘you can’t
                            have sex’.

                                                          , so I was
                                        us sharing a bed
                      They didn’t like       e was living dow
                                                               nstairs.
                                        nd h
                      living upstairs a
 We want child
               ren. I’ve got lo
 and I do know                  ads of experien
                what to do but                  ce
 I’m worried th                  people think I
                ey will be taken                don’t.
                                  off us later.

      The obstacle is staff not believing we can do it.
I wish my daughte
                   r was living with m
I asked for suppo                        e now.
                  rt quite soon after
I got some suppor                      I became pregnan
                  t well after the ba                   t.
                                      by was born.

                                           s centre
           There needs to be a family crisi
           where people can go for help.
 One of my
            fr
 after their iends thought abou
            babies we            t
                      re taken a suicide
                                way.


                      I had to go through a Police check
                      to be in my relationship.
   We want
              se
   with it. I x education BEF
             had an e             ORE we
                      xperienc
                               e in colle have to deal
                                         ge. I got
                                                   scared.

                                                                     e real or
                                                       ther these ar sses
                                          e risks, whe            eir bo
                     e too s cared to tak           es wrong, th
             Staff ar                    mething go
             not; they th ink that if so
                           hem.
             will blame t
                                                                                 15
My condit
          ion was dia
Health Fai             gn
           r. It wasn’ osed at Swansea Peo
                      t picked up             p
                                  at the Hea le First’s
                                            lth Check.


                                              pport worker.
  I want the do ctor to talk to me not my su
                                        e to see the doctor
  They ha ve no understanding. I’d lik
                                check.
  I want to see for my health


  When I w
               ent into h
  distance                o
             from me. spital, the nurses
 but not t              T                 k
            o me. Th hey chatted to th ept their
 disabiliti            ey                eo
            es as if th treat people with ther patients
                       ey are a n        learning
                                  obody.


                                                                e offer
                                                         . And w eople
                                                isability
                               ut Lea   rning D n what we do. P around
                 e nu rses abo                 ed i
                                      et involv rses get their h
                                                                 eads
       h tr aine            real ly g
We teac s nurses. They                    elps nu
        nt                  wa  y that h s.
placeme bers train in a                  pert
        m                    re the ex
First me Disability. We a
         g
 Learnin
                    The nur
                            se
                   just thou s said about us:
                            ght they           ‘W
                                     were a b e
                                              it odd          .’

                                               en I lived
                       dgeting in college. Wh a week.
          learned bu                        enner
We  never                 mon  ey. I got a t          move out.
            id n’t see my      y money   when I did
at home I d       mad with m
            went
But then I

                                                                          16
good,
                     ng my educa   tion wasn’t very
    When I was you           r write. I can’t r
                                               ead or write
                      read o
    I didn’t learn to
                        have I got?
    no w; what chance
                   People
                           wi
                   go to co th learning di
                           u               sa
                  They ca rses through j bilities are hav
                           n             ob                in
                  read an ’t even get star Seekers Allow g to
                          d write         ted bec
                                  .              ause th ance.
                                                        ey can’
                                                                t
                                                          imes people
                     SAME is not go   od enough; somet
 reating people the                                    ntly in order to
T
                   bilities have to be treated differe
with learning disa
be equal.
            They bung
                       u
            don’t reco s down on the lower
                      gn                        b
            made prog ise our achievemen racket; they
                      ress towar              ts. I think
                                 ds being c               we’ve
                                            itizens.


Advocacy helps us to live independently at the end of the day.
If the money stopped for self advocacy, parents would take control
of our lives again. People would just stay in the house all day.


                                                           and
                                                conf idence there
                                    ut w ith our he time and ife
                      help ed us o things all t day to day l
           Fi rst has e learn new n. It makes
   People dence. W              o lear
         en
   indep things we       need t
                                le.
    are still     isable d peop
    easie r for d
                   It make
                           s us less
                   we need           de
                           fewer se pendent on serv
                                     rvices.        ices;

                                                                          17
People Fir
                   st
       their voice is our life. It helps p
                   and speak               eo
       communit              out. We’re ple to find
                 ies and go               p
                            out and ab art of our
                                        out in it.


                                                    who’s still living
I know a young person    with a learning disability
                                                        l day. She
                          or k, so she stays at home al
with her parents. They w                                   e’s not
                          Serv ices think she’s OK but sh
cleans and cooks. Social                       ing a job.
getting out into he r community or even find


      My Mum u
                   sed to wond
      cope but I l             er
                  ove living in how I’d
                               dependentl
                                         y.


                                            metimes my
            Some people call me names; so
                                              blic say it.
            friends say it and the general pu

     Peopl
           e com
    of the       e out
           day a       of sch
                 nd tak       ool at
                        e the        the en
                              Mick.         d


                                               ssue.
                                 ust is a big i u can trust.
                   orta nt and tr you that yo              eed
     g sa fe is imp eople around           ow w  ell. We n
Bein         o have p nd us that we kn we know.
            t
You need eople arou                       hat
            p                   munity t
 We need things in the com
            d
 shops an
                                                                         18
Contact details


                    All Wales People First
                    Stebonheath Terrace
                    Stebonheath Centre
                    Llanelli
                    SA15 1NE

       Telephone: 01554 784905

   E-mail address: info@allwalespeople1st.co.uk

         Website:   www.allwalespeople1st.co.uk

       Facebook:



      Notes to media and press:
      All Wales People First National Council Members are
      available for interview and comment on any issues
      arising from the Manifesto for TV, Radio and Press from
      Monday 4th April and throughout the election period.



                                                                19
The People First 2011 Manifesto

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Awpf manifesto

  • 1. The People First 2011 Manifesto We want to work with you
  • 2. What is All Wales People First? All Wales People First is the United Voice of Self – Advocacy Groups and all People with Learning Disabilities in Wales. It Shares Knowledge and Information to Achieve Equal Rights and a Positive Image. All Wales People First…..  collects people’s news and views  shares information  finds out what is going on around the country  finds out what is important in people’s lives  campaigns to improve the lives of people with learning disabilities  puts people in touch with each other from all over Wales  helps groups to be touch with the National Government for Wales  supports self advocacy groups to get going and keep going All Wales People First is a member led company, limited by guarantee, registered in March 2009. Our values are embedded in the People First Manifesto 2010, in the United Nations Convention on the Rights of Persons with Disabilities, the Human Rights Act and the Social Model of Disability. All Wales People First is unique in Wales in that it is the only national organisation that solely represents the voice of men and women with a learning disability. 2
  • 3. The key statements for our vision are: To make sure that all people with learning disabilities have a voice in spite of the difficult economic future we face. To make our voices stronger by building on leadership skills and by being supported to become partners in change. To make our voices heard by engaging with decision makers and driving forward our rights. To make our communities stronger by linking with other organisations that will help us achieve the things that matter to us. To make the organisation stronger by working differently, efficiently and creatively. 3
  • 4. The People First 2011 Manifesto Wales should be proud that we led the way supporting people with learning disabilities. The All Wales Strategy set standards that everyone else followed. We want to help you carry on this great work. Wales has signed up to the social model of disability. introduction We want to work with the you to make sure that we keep moving forward and never go back. 4
  • 5. The People First 2011 Manifesto We really are the experts in how we need to be supported. If you let social workers run our lives, we are over supported, never allowed to take the risks that everyone else does. This costs you a fortune and holds us back from the lives we want. Let us plan our own lives, and we guarantee we’ll save you money, we’ll have better lives and be part of our Welsh communities. People with learning disabilities living at home as our parents get older become carers. The Assembly Health and Social Care Minister needs to ensure we are planning included in the Carers Strategy for Wales. The Minister should actively support direct payments and individual budgets for people with learning disabilities. 5
  • 6. The People First 2011 Manifesto When we have good support and housing we are more confident, happy and able to get on with our lives. Wales is again leading the way with new qualifications for social care staff. We want to be part of everyone's course showing them what the housing and support Social Model of Disability means for us living in a modern Wales. Work with the Care Council for Wales to set social model training by people with learning disabilities into the new Qualifications and Credit Framework. 6
  • 7. The People First 2011 Manifesto Free bus passes in Wales have transformed our lives. Help us make the most of this freedom by including people with learning disabilities in regeneration plans and regional development plans. We want to be part of Wales economy, if we have jobs we need less social and health services. Help us to help you save money across Wales. Include people with learning disabilities when you write regional development plans. transport Include people with learning disabilities when you develop public transport across Wales, especially in rural areas. 7
  • 8. The People First 2011 Manifesto Its 2011, we’re adults, we’re in relationships, we’re getting married, we’re having sex, just like everyone else does. Help us teach social workers, nurses, doctors and support staff how to support us and we can look after ourselves and our families. The best way of protecting people isn't by removing our human rights, it’s by making sure we are well informed, confident members of society. We can be great parents when you give us the right support. The Health Minister needs to ensure that there is a Family Information relationships Service and Family Crisis Centre in every part of Wales with a plan to work with people with learning disabilities. All schools in Wales should have a clear plan to include people with learning disabilities in sex education and parenting classes. 8
  • 9. The People First 2011 Manifesto The annual health check is another fantastic way that Wales supports people with learning disability. We want to work with you to make sure the health checks are equally good for everyone in Wales. We want you to make sure that health services include us in prevention programmes like well woman, well man, and family planning clinics. The best way to make this happen is to change the way doctors see us. We can help you deliver social model training for new doctors being trained in Wales. health The Health Minister should work with Wales’ universities to ensure we are part of training Wales’ new doctors and nurses. 9
  • 10. The People First 2011 Manifesto We want to be part of the solution for Wales not part of the problem. So many of us want to work and do more for our communities. If we have full lives we become more independent, we don't use services as much and we give back, instead of just using services. work and education The Assembly’s Youth Volunteering scheme has been a great way for us gain peer support in the community. The Education Minister should ensure that we have access to adult literacy and numeracy classes across Wales. When the Minister for Economic Development writes support strategies for small businesses he should include people with learning disabilities. 10
  • 11. The People First 2011 Manifesto People First is the only voice for people with learning disabilities run by people with learning disabilities. The Welsh Assembly has given People First groups across Wales support and guidance to develop and grow. You can help us to help you by ensuring we are funded into the future. The Assembly should provide People First with funding that is independent of service commissioners and providers. self advocacy All Assembly Ministers should ensure that People First locally and nationally are funded as providers of training. The Local Government Minister should ensure that authorities fund People First as service monitoring and development consultants. 11
  • 12. The People First 2011 Manifesto Growing up into adults is hard enough for anyone. Its much harder for us. Becoming young adults means leaving home, getting our own place and starting out on our own lives. Too many of us can’t take that first step and we are stuck at home. This makes life hard for everyone. With a little support we can make the first step and get ready to move on to independence. young people The Assembly needs to ensure our voices are heard in young peoples’ groups across Wales. The Assembly Minister should ensure that there is enough social housing for everyone and housing associations provide short stay and support to move on to independence. 12
  • 13. The People First 2011 Manifesto Most communities in Wales are caring supportive and friendly but not always. Living with a disability in Wales can still be hard. People don’t always respect us or treat us fairly. When you’re different to other people you stand out and sometimes this makes you an easy target. We want to help build positive supportive communities in Wales, fit for everyone to live in. community The social justice and Local Government Minister should include people with learning disabilities in community safety and cohesion initiatives. 13
  • 14. What people say Some people do n’t need 24 hou much time and r support. Ther money being sp e’s too rather than lett ent on ‘prepari ing them have a ng’ people go and get on w ith it. bilities. ith and w ithout disa u’re ix w ith people w g disability label; yo If you m the learnin munity. You h aven’t got r own com just a ci tizen in you We want support that is individual to us. We want personal support, someone to talk to, help with money – support that is flexible. ears. for four y rough my Mum h look ing after h the day and all t I’ve been her all throug er h. I look aft ’s getting too muc . It the night My life’s been m essed up and I do help to look after n’t get any my Mum; there’s no support. n the r transp ort. It gets i We need bette at we want to lead. ives th way of the l Transport is the main issue in Ceredigion. Transport’s alright in big cities. But in rural areas you can’t get home, even if you can get out! I can use the bu every month ses and we go clubbing . We look aft in Cardiff new friends, er each othe old friends, r. We meet have a gossip . ry bad. netw orks are ve t to do training, Transport a big effor ransport. u hav e to make ecause of t Yo leisure b emplo yment and 14
  • 15. They didn’t want us to live together. They said ‘you can’t have sex’. , so I was us sharing a bed They didn’t like e was living dow nstairs. nd h living upstairs a We want child ren. I’ve got lo and I do know ads of experien what to do but ce I’m worried th people think I ey will be taken don’t. off us later. The obstacle is staff not believing we can do it. I wish my daughte r was living with m I asked for suppo e now. rt quite soon after I got some suppor I became pregnan t well after the ba t. by was born. s centre There needs to be a family crisi where people can go for help. One of my fr after their iends thought abou babies we t re taken a suicide way. I had to go through a Police check to be in my relationship. We want se with it. I x education BEF had an e ORE we xperienc e in colle have to deal ge. I got scared. e real or ther these ar sses e risks, whe eir bo e too s cared to tak es wrong, th Staff ar mething go not; they th ink that if so hem. will blame t 15
  • 16. My condit ion was dia Health Fai gn r. It wasn’ osed at Swansea Peo t picked up p at the Hea le First’s lth Check. pport worker. I want the do ctor to talk to me not my su e to see the doctor They ha ve no understanding. I’d lik check. I want to see for my health When I w ent into h distance o from me. spital, the nurses but not t T k o me. Th hey chatted to th ept their disabiliti ey eo es as if th treat people with ther patients ey are a n learning obody. e offer . And w eople isability ut Lea rning D n what we do. P around e nu rses abo ed i et involv rses get their h eads h tr aine real ly g We teac s nurses. They elps nu nt wa y that h s. placeme bers train in a pert m re the ex First me Disability. We a g Learnin The nur se just thou s said about us: ght they ‘W were a b e it odd .’ en I lived dgeting in college. Wh a week. learned bu enner We never mon ey. I got a t move out. id n’t see my y money when I did at home I d mad with m went But then I 16
  • 17. good, ng my educa tion wasn’t very When I was you r write. I can’t r ead or write read o I didn’t learn to have I got? no w; what chance People wi go to co th learning di u sa They ca rses through j bilities are hav n ob in read an ’t even get star Seekers Allow g to d write ted bec . ause th ance. ey can’ t imes people SAME is not go od enough; somet reating people the ntly in order to T bilities have to be treated differe with learning disa be equal. They bung u don’t reco s down on the lower gn b made prog ise our achievemen racket; they ress towar ts. I think ds being c we’ve itizens. Advocacy helps us to live independently at the end of the day. If the money stopped for self advocacy, parents would take control of our lives again. People would just stay in the house all day. and conf idence there ut w ith our he time and ife help ed us o things all t day to day l Fi rst has e learn new n. It makes People dence. W o lear en indep things we need t le. are still isable d peop easie r for d It make s us less we need de fewer se pendent on serv rvices. ices; 17
  • 18. People Fir st their voice is our life. It helps p and speak eo communit out. We’re ple to find ies and go p out and ab art of our out in it. who’s still living I know a young person with a learning disability l day. She or k, so she stays at home al with her parents. They w e’s not Serv ices think she’s OK but sh cleans and cooks. Social ing a job. getting out into he r community or even find My Mum u sed to wond cope but I l er ove living in how I’d dependentl y. metimes my Some people call me names; so blic say it. friends say it and the general pu Peopl e com of the e out day a of sch nd tak ool at e the the en Mick. d ssue. ust is a big i u can trust. orta nt and tr you that yo eed g sa fe is imp eople around ow w ell. We n Bein o have p nd us that we kn we know. t You need eople arou hat p munity t We need things in the com d shops an 18
  • 19. Contact details All Wales People First Stebonheath Terrace Stebonheath Centre Llanelli SA15 1NE Telephone: 01554 784905 E-mail address: info@allwalespeople1st.co.uk Website: www.allwalespeople1st.co.uk Facebook: Notes to media and press: All Wales People First National Council Members are available for interview and comment on any issues arising from the Manifesto for TV, Radio and Press from Monday 4th April and throughout the election period. 19
  • 20. The People First 2011 Manifesto