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1 CANTEEN ANNUAL REPORT 2009                        Meet Kieran, 17
                                                                     years old, Siblin
                                                                                       g
                                                    Member – his sist
                                                                      er Asha was diag
                                                                                       nosed
                                                    with cancer when
                                                                      she was 14

            “When Asha got sick it was like a rollercoaster,
            a mixed bag of emotions. I was by myself a lot of the time. My
            parents were supportive but they were caught up with what Asha
            was going through. I spent a fair bit of time at home doing my
            own thing: trying to cook food, walking the dog; and I was
            worried about my sister and parents. Without CanTeen I
            would be lost.”
                                                                                                                              abOut us                                                Our VisiOn
                                                                                                                              CAnTeen is The AusTRAliAn                               BRing TogeTheR All young
                                                                                                                              oRgAnisATion FoR young                                  people living wiTh CAnCeR
                                                                                                                              people living wiTh CAnCeR.


                                                                                                                                                                                      Our missiOn
                                                                                                                              CanTeen’s mission is to support,
                                                                                                                              develop and empower young people
                                                                                                                              living with cancer. we do this by
                                                                                                                              providing an Australia-wide peer                        To suppoRT, develop And
                                                                                                                              support network for 12-24 year-olds                     empoweR young people living
                                                                                     Kieran
                                                                                                                              including*:                                             wiTh CAnCeR
                                                                                            “When
                                                                                  they told me I had                          •	 Patients – young people who have
                                                               cancer I just started crying. I was                               been diagnosed with cancer,
                                                confused, and I didn’t know what was going on, because
                                       nothing like that had ever happened to me before. I was only 14.
                                                                                                                              •	 Siblings & Offspring – young
                                                                                                                                 people who have an immediate
                                                                                                                                                                                      Our Values
                                       At first they thought I had appendicitis. Like, nine out of ten
                                       times that is what it would be. I really wish it had been that!
                                                                                                                                 family member (brother or sister,                    we suppoRT, develop And
                                                                                                                                 parent or primary carer) who has                     empoweR ThRough:
                                       The cancer treatment was pretty intense. I lost my hair. And I
                                                                                                                                 been diagnosed with cancer, and
                                       lost so much weight, I was bony. I was really pale and I was                                                                                   •	   Respect and integrity
                                       always tired.                                                                          •	 Bereaved Siblings & Offspring
                                                                                                                                                                                      •	   pride and accountability
                                       The best support in the end was CanTeen, and meeting all these                            – young people who had an
                                                                                                                                 immediate family member who                          •	   Teamwork and inclusiveness
                                       amazing people. I am a much stronger person now, and I certainly
                                       don’t take anything for granted.”                                                         died from cancer.                                    •	   Flexibility and initiative
                                                                                                                              we provide members with a place                         •	   understanding and compassion
                                                                                                                              where they can simply be young                          •	   inspiration and encouragement
                                                                                                                              people, away from the daily                             •	   positivity and celebration

                                                                                                                                                                                                                           Contents
                                                                                                                              pressures of living with cancer in the
                                                                                                                              hospital or at home.

  HOw Canteen empOwers its members                                                                                            Through a wide range of camps
                                                                                                                              and programs, CanTeen encourages                                                             About us
                                                                                                                                                                                                                                             t
                                                                                                                                                                                                                                                           3
                                                                                                                                                                                                                                                           4
  CAnTeen hAs heAps oF gReAT peeR suppoRT                         •	 Recreation days give members a chance to get together
                                                                                                                              members to share their experiences,                                                          From the Presiden
                                                                                                                              make great friends…and of course,                                                                                             6
  pRogRAms FoR memBeRs. They’Re All held in                          in a more casual way, by doing things like go-karting,
                                                                                                                              have fun!                                                                                    From the CEO
  FAnTAsTiC venues ARound AusTRAliA. wiTh                            bowling or just going to the movies.                                                                                                                                                   8
  eveRyThing FRom week-long CAmps To shoRTeR,                                                                                                                                                                              MAC
                                                                  on all our programs, young people can let their hair down                                                                                                                               10
  moRe FoCused pRogRAms, TheRe’s someThing To                     (or wear a CanTeen bandanna!) and have some fun. our                                                                                                     The Board
  suiT eveRyone…                                                                                                                                                                                                                                           12
                                                                  programs are designed to encourage members to share                                                                                                      National Outcomes
  •	 general programs such as weekend camps and                   their stories, develop new skills and support each other.                                                                                                                                16
     week-long programs, give members a break from the                                                                        * young people who don’t quite fit these descriptions                                        Division Outcomes
                                                                                                                              might still be able to join – contact us for more                                                                     omes 21
     pressures of living with cancer.                                                                                         information.                                                                                  Fundraising Outc
  •	 Focused programs are there to help members with                                                                                                                                                                                                       26
                                                                                                                              CanTeen is a company limited by guarantee.
                                                                                                                                                                                                                            Finance Summary
     specific	issues	they	may	be	facing.	For	example,	Good                                                                    our ABn is 77 052 040 516 and we are registered
     Grief addresses issues surrounding grief and loss, and                                                                   for gsT.
     Healthy Living is designed to educate members in                                                                         The company is also an income Tax exempt Charity
     strategies for stress relief and improved quality of life.                                                               and a deductible gift Recipient.




                                                                                                                                                                                                                                      CanTeen Annual Report 2009 – 3
1 MESSAGES




   FrOm tHe president: LOOKING BACK




                                                  It	has	definitely	been	another	exciting	and	eventful	year	      been distributed and that is just the start of things to come!   of course, a topic that has been on everyone’s lips over
                                                  for CanTeen, incorporating a plethora of amazing camps          The development of the siblings resource is well under           the few months is that of the potential merger between
                                                  and activities, fantastic fundraisers and other valuable        way, along with the new member guide. These resources,           CanTeen and Camp Quality. it has been fantastic to see
                                                  developments in the journey towards creating better             produced	due	to	a	considerable	need	identified	in	our	           how passionate CanTeen members are about CanTeen,
                                                  outcomes for young people living with cancer.                   research, are developed in consultation with our members         and while it has now been decided that the proposed
                                                                                                                  and will help to make life easier for so many young              merger will not go ahead, we are looking forward to
                                                               CanTeen’s wide range of recreational
                                                                                                                  people living with cancer. with timely access to relevant        building on this passion for the organisation as we begin a
                                                               and educational camps and activities has
                                                                                                                  information, individuals are better empowered to deal            new phase of development for CanTeen.
                                                               continued to grow and evolve. This program
                                                                                                                  with the challenges they face in their cancer journey.
                                                               evolution stems from the research CanTeen
                                                               has conducted into the needs of young people       Taking on this ambitious challenge of research (or the
                                                               living with cancer, and from the vital input       results that it has uncovered) has propelled CanTeen in a
                                                               and feedback from CanTeen’s members. The           range of exciting directions. The evolution of our programs
                                                               continued development of our programs helps        and the development of our information resources,
                                                                                                                                                                                   Juli Anderson
                                                               to ensure that we are working strongly towards     including Now What…?, are some examples of these new
                                                                                                                                                                                   National President
                                                               our mission of supporting, developing and          directions but there are many others as well; all working
                                 Juli Anderson                 empowering young people living with cancer         towards improving the lives of young people living with
                                 National                      and helping create the best possible outcomes      cancer all around Australia.
                                 President and    for our current and future members.
                                 Sibling Member                                                                   speaking of all around Australia, CanTeen has increased
                                                  our program calendar this year started out with a brilliant     its focus on delivering services to those in need in regional
                                                  National	Camp	in	WA	(for	the	first	time	in	eight	years).	The	   areas. we have had greater numbers of regional
                                                  trip to Rottnest island and the jet-boat rides provided by      members attending our camps and activities and more
                                                  Rottnest express were a real highlight of the camp!             staff and members visiting regional areas to run programs
                                                                                                                  and	raise	awareness.	The	addition	of	our	first	NT	based	
                                                  This was also the second year in which we ran our new
                                                                                                                  staff member is another important development in
                                                  national leadership program – this time with a harry
                                                                                                                  reaching those in the wider areas of Australia.
                                                  potter theme! it was so inspiring to see young leaders
                                                  within CanTeen, from all around the country, come together      our research team has continued to share the research
                                                  to share ideas, develop new skills and have important input     findings	both	nationally	and	internationally,	raising	
                                                  into our organisation.                                          important awareness. Their collaboration with other
                                                                                                                  organisations is also helping too.
                                                  our national TeenLink training was once again a great
                                                  success, with over 50 members involved. The Teenlink            development of our new website is well under way! A
                                                  program is an integral part of developing and maintaining       member advisory group has been closely involved in this
                                                  CanTeen’s peer support network.                                 project and it will be ready for release later this year. The
                                                                                                                  new website will be another way in which we are trying to
                                                  The Now What...? offspring resource has been a massive
                                                                                                                  improve access to information.
                                                  success. 5000 copies of this written resource have already




4 – CanTeen Annual Report 2009                                                                                                                                                                                       CanTeen Annual Report 2009 – 5
1 MESSAGES




   FrOm tHe CeO: LOOKING fOrwArd




                                 The OuTCOmeS JOurNey CONTINueS!                                  how the Federal – and additional CanTeen fundraising –             with the launch of new services like Now What...? and
                                                                                                  money will be best spent.                                          the ongoing advocacy for a new model of care for AyA
                                 we reported last year that our major research project                                                                               patients.
                                 looking at the needs of young people living with cancer –        in the year to come this work will start to bear tangible fruit.
                                 patients, siblings, offspring and bereaved – was completed,      Starting	around	August	2009,	we	will	finalise	agreements	          in the current economic environment, this ever increasing
                                 and that a next step was the development of a statement          with states and Territories about local AyA service delivery       demand for and range of services is particularly
                                        of outcomes for young people living with cancer.          plans. watch out for some great news and announcements             challenging for CanTeen. now, more than ever, we depend
                                        This	was	finalised	in	the	past	year	and	you	can	read	     from around this time.                                             on our donors and supporters, corporate partners, partners
                                        about it on page 14.                                                                                                         in	the	health	and	other	not-for-profit	sectors,	volunteers	and	
                                                                                                  There is an important need that arises from this work.
                                                                                                                                                                     others. our sincere thanks to all of you for your support over
                                        This framework lays the foundations for a rigorous        over the next three years we need major donors that can
                                                                                                                                                                     the past year.
                                        outcomes-focused, evidence-based approach to all          contribute to the establishment cost of one or more of the
                                        that we do in the future. in the coming year, we will     proposed AyA cancer services. in total, we aim to raise            To our staff and members, thanks for your outstanding
                                        develop a framework for evaluation of all of our          $15m to match the Federal government’s contribution,               efforts in yet another huge year. looking forward, we face
                  Dr Andrew             programs and services, linking them to the outcomes       and	this	task	has	been	made	more	difficult	by	the	global	          some testing times as we expand our vision for what we can
                  Young, CEO            framework we have completed. The outcomes                 economic circumstances. if you might be able to help, i would      achieve together. i know that our passion for the cause will
                                        framework	will	also	drive	identification	of	gaps	in	      be delighted to discuss this with you in more detail.              stand	firm.
                                        existing services and future program development, as                                                                         To the mAC and Board, thank you for your continued vision
                                        well as helping us identify issues for advocacy in the
                                                                                                  2009/10 – A New PhASe
                                                                                                                                                                     and, in particular this year, hard work as we continue to
                                        future.                                                   As Juli mentioned, we have recently completed a                    build for the future. A special thanks to departing directors
                                                                                                  consultation process examining the potential for a                 Amanda and Jason.
                                 ImPrOvING CANCer ServICeS fOr AyAS –                             merger with Camp Quality, deciding instead to focus on
                                 frOm AdvOCACy TO ACTION                                          opportunities to create a better world for children and            Finally, my thanks to our president of the past year, Juli
                                                                                                  young people living with cancer through collaboration. At          Anderson, who has the reins at a challenging time! Thanks
                                 it feels like a long journey for us since we presented to a
                                                                                                  the	same	time,	CanTeen	is	nearing	the	end	of	a	five	year	          for the positive approach and bright smiles along the way.
                                 2005 Federal senate Committee inquiry on cancer services,
                                 laying out our case for new cancer services for adolescents      process of implementing a strategic direction we established
                                 and young adults with cancer. in late 2007, the incoming         late in 2004.
                                 Federal government committed $15m funding for this               it is now a great time for CanTeen to focus our energies
                                 purpose and in the same year we worked with Cancer               on developing the next stage of our development. during
                                 Australia to write the national service delivery Framework       the	coming	financial	year	we	will	commence	this	process,	
                                 for AyA cancer, which will guide the establishment of future     building on the passions and ideas generated through the
                                 services.                                                        merger consultation process, and on our research evidence          Andrew young
                                 In	the	2008/09	year,	the	first	payment	from	the	Federal	         and recently completed statement of outcomes framework.            Chief Executive Officer
                                 Government	falls	due,	and	as	the	CanTeen	financial	year	         IN CLOSING
                                 ended	we	were	in	the	final	stages	of	development	of	a	
                                 comprehensive implementation plan for this funding. we’ve        it has been another huge year for the organisation, with
                                 also been in discussions with all states and Territories about   continued growth in membership and programs along




6 – CanTeen Annual Report 2009                                                                                                                                                                           CanTeen Annual Report 2009 – 7
“CanTeen is unlike any o
1 CORPORATE GOvERNANCE


                                                                                                                                                                                  Ther
                                                                                                                                                         CanCer organisaTion.”
   member adVisOry COunCil (maC)                                                                                                                                                                                     kellie Atkinson, patient me
                                                                                                                                                                                                                                                 mber


   emPOwerING memBerS, deveLOPING LeAderS                                                                                        other things. one suggestion that
                                                                                                                                 came up was that the mAC should
   in The seCond hAlF oF CAlendAR yeAR 2008                                                                                      have a suggestion box at national
   The mAC weRe: AmAndA ByCRoFT (sA&nT), Juli                                                                                    Camps. if members had concerns
   AndeRson (hunTeR & noRTheRn nsw), ChRis                                                                                       or suggestions about CanTeen, they
   Bond (ACT & souTheRn nsw), JAson gARRiCk                                                                                      could write them down and put them
   (Qld), kylie lewis (viC), philippA ZuCChi (TAs),                                                                              in the box for the mAC to review at
   kevin pRokop (sydney & CenTRAl nsw) And                                                                                       each meeting. The mAC has used
   Annie sChmiTZ (wA).                                                                                                           this method of feedback and
                                                                                                                                 suggestions on national programs
   After the division elections Alex valero joined the mAC
   team from (sA&nT) and Amanda left the team when her
                                                                                                                                 this year.
                                                                                                                                 Another idea from the suggestion
                                                                                                                                                                           empOwering yOung peOple
   term on the Board ended.
                                                                                                                                 box was to have more member input         CanTeen empowers its members           represent the membership in a
   After the 2008 Agm, Juli Anderson was elected into                                                                            into our brand. The mAC came up           (young people living with cancer) in   division Committee. The Committee
   the	National	President	role	as	Josh	Hogan	had	finished	                             Meet the MAC                              with a competition for members to         the governance of the organisation
                                                                                (Member Advi
                                                                                                                                                                                                                  meets regularly to oversee the
   serving his term. since then, Juli has been steering                                      sory Coun                           design a CanTeen bandanna to go           at all levels. The purpose and
                                                                                                         cil)                                                                                                     planning of programs and activities
   the mAC ship, and to her credit, has shown outstanding                                                                        on sale at the 2009 national              powers of CanTeen and our              within the division.
   leadership and growth throughout her term. Juli came                                                                          Bandanna day. There were a lot            governance structures (including
   into the national president role with the idea of the         and	what	we	have	finished.	The	MAC	has	implemented	a	           of quality entries but only one winner,                                          each division also elects one
                                                                                                                                                                           division Committees, member
   whole mAC running the show as a unit, not just one person     newsletter to members and staff aiming to go out once           yuemei lim of wA, designed the                                                   member to sit on the member
                                                                                                                                                                           Advisory Council and Board) are
   facilitating the group. so under Juli, each mAC member        every two months. it outlines our progress throughout the       winning bandanna which is available                                              Advisory Council (mAC). The mAC
                                                                                                                                                                           described in our Constitution, which
   has been accountable for running agenda items and also        year and highlights important updates in the CanTeen            to view at the CanTeen website                                                   represents CanTeen’s membership
                                                                                                                                                                           can be obtained from CanTeen’s
   championing (solo or in twos) a mAC goal that they report     world. expect these to continue into next year.                 (www.canteen.org.au).                                                            nationally, participates in strategy
                                                                                                                                                                           National	Office	or	our	website	–	
   on every meeting. The mAC also changed the way in which       in an effort to keep CanTeen as nationally consistent as                                                  www.canteen.org.au.                    setting with the Board and makes
   we report on our divisions from a statistical approach to a                                                                   now with the big issue of the                                                    recommendations to the Board on
                                                                 possible, the mAC has started using a reporting system so       proposed merger between CanTeen
   vibe, values and feelings method, and use it to discuss how                                                                                                             in empowering members in               key policy and program areas.
                                                                 all division committees are getting the same communication      and Camp Quality you might be
   our divisions and personal roles are going. The mAC has                                                                                                                 governance throughout CanTeen,         The mAC also elects 5 suitable
                                                                 from the mAC at the same time.                                  thinking, ‘where has our mAC been?’.
   also agreed to regularly meet with their division manager                                                                                                               we ensure that the operations of       candidates from the mAC to serve
   for a monthly performance appraisal, which is then shared     once again the shooting star award was up for grabs at          The mAC was involved/consulted            the organisation continue to focus     on the Board of directors each
   at every mAC meeting.                                         national Camp 09 in wA, inaugurated in 2004 in memory           throughout the whole process and          on the needs of young people           year.
                                                                 of member kelly Johnson. This award is given to the             had many teleconferences around           living with cancer.
   CanTeen	has	identified	that	a	new	resource	was	needed	        member who the mAC feels best displays the values and           the issue! Also the mAC was present                                              CanTeen’s Board of directors
   to help new members navigate through CanTeen and the          vibe of CanTeen. molly hennekam (sA&nT) deserved the            at the workshops with Camp Quality        Through participation in these         consists	of	five	current	CanTeen	
   mAC took this on as part of our goals for 2009. ideas for     award this year and gave a teary acceptance speech.             collecting as much information as we      key roles, CanTeen members also        member directors and four
   the guide were streamed from division committees and the                                                                      could to relay back to the division       develop deep leadership skills and     ‘Associate directors’ – volunteers
   mAC. The mAC has been consulting with staff throughout        in recent times the mAC and member directors have               Committees. Two mAC members,              experience for the future. CanTeen     who bring relevant expertise to the
   the process on how it should look and feel. expect the        identified	the	need	for	development	and	skills	in	the	areas	    kylie and Jason, represented the          conducts leadership training and       Board. our Constitution requires
   finished	product	to	be	available	this	year!                   of national/vice president and Board member roles.              members on the Cross pollination          development for members in these       that our president and vice-
                                                                 leading up to elections, there is now an annual training        sub committee, while Juli and Chris       roles.
   The	MAC	has	identified	that	it	is	important	to	be	visible	    workshop held by CanTeen for our leaders. it is used to                                                                                          president are CanTeen members,
   throughout our membership and to keep our members                                                                             represented the members on the            we support young people living         and that all votes of the Board
                                                                 further develop division presidents and for them to gain a      steering Committee of the proposed
   informed on what we are doing                                 better understanding of what is expected from their roles                                                 with cancer through geographical       include a majority of member
                                                                                                                                 merger. it just wouldn’t be CanTeen if    divisions throughout Australia;        votes. CanTeen’s membership elect
                                                                 and sessions.                                                   there wasn’t member representation        every two years the members in         Associate directors at the Annual
                                                                 in 2009, the mAC is happy to announce that divisional           at all levels.                                                                   general meeting who serve two-
                                                                                                                                                                           each division elect members and
                                                                 vice presidents will also be invited to this year’s workshop.                                             Friends (volunteer supporters) to      year terms on a rolling cycle.
                                                                                                                                              Chris Bond (ACT&snsw)
                                                                 last year the mAC sent out a survey to division Committees
                                                                 about how they thought we could improve our role amongst

                             Meet Melissa and Michelle,
                             Offspring Members
8 – CanTeen Annual Report 2009                                                                                                                                                                                               CanTeen Annual Report 2009 – 9
1 CORPORATE GOvERNANCE STRUCTURES




   tHe bOard                                                                                                                                                                                     Member Directors                                 Eligible    Attended

                                                                                                                                                                                                 Juli Anderson (President from August 08)              11          11
   in 2008/09 The BoARd ConTinued To FoCus on The sTRATegiC oppoRTuniTies FACing CAnTeen –                                          PreSIdeNT & memBer dIreCTOr                                  Joshua Hogan (President till August 08)                4           4
   ReseARCh, developmenT oF FuTuRe seRviCes And AdvoCACy – while ConTinuing To moniToR                                                                                                           Amanda Bycroft (Vice President from August 08)        11           9
   oRgAnisATion peRFoRmAnCe And Risks. The BoARd Also ConsideRed The meRiTs And Risks                                                                                                            Marisa Burgess (Vice President till August 08)         4           4
   AssoCiATed wiTh A pRoposed volunTARy meRgeR wiTh CAmp QuAliTy.                                                                                                                                Chris Bond (appointed August 08)                       7           7
                                                                                                                                                                                                 Kevin Prokop (appointed August 08))                    7           7
                                                                                                                                                                                                 Joson Garrick (appointed August 08)                    7           7
   reSeArCh                                                         and	areas	of	risk	specific	to	that	field.
                                                                                                                                                                                                 Oliver Brown (term ended August 08)                    4           4
   Building on research conducted in the prior year, the Board      •	 The finance, Governance and risk Sub-Committee
   this year approved CanTeen’s newly developed statement              comprises geoff scott (chair), kevin prokop and Jason
                                                                       Garrick,	and	takes	responsibility	for	financial	processes	                                                                Associate Directors                              Eligible    Attended
   of outcomes for young people living with cancer. This
   framework (see page 14) will be the basis for development           and	procedures	as	well	as	reviewing	CanTeen’s	finances.	
                                                                       In	addition	to	finance-related	risks,	the	sub-committee	                                                                  Geoff Scott (Treasurer/Secretary)                     11          10
   of evaluation frameworks in the coming year and will guide
                                                                       takes responsibility for risks not explicitly covered by     Juli Anderson                                                Graham Childs                                         11           9
   the development of future services and advocacy initiatives.
                                                                       the other committees.                                        hunter & northern mAC, president                             Anne Senner                                           11          10
                                                                                                                                                                                                 Geoff Thompson                                        11           9
   AdvOCACy                                                         •	 The People and Performance Sub-Committee comprises           sibling member
   2007/08 saw the development of the national service                 graham Childs (chair), Juli Anderson, Amanda Bycroft
                                                                       and Jason garrick. The committee takes responsibility for    memBer dIreCTOrS
   delivery Framework in conjunction with Cancer Australia,
   and the Federal government’s commitment of $15m                     policies and risks relating to staff and volunteers, staff
   towards AyA Cancer Centres. in 2008/09 the Board                    remuneration and other rewards.
   continued to focus on this issue, overseeing the development     •	 The ethics and young People Sub-Committee comprises
   of detailed plans for implementation of AyA cancer                  Anne senner (chair), Amanda Bycroft and Chris Bond,
   services in negotiation with states and Territories.                and takes responsibility for management and mitigation
                                                                       of risks relating to members, from overseeing of member
   PrOPOSed merGer wITh CAmP QuALITy                                   safety on programs, to ethics of member participation in
                                                                       research and other CanTeen activities.
   The Board evaluated at a high level the potential that a
   merger with Camp Quality might allow the organisation to         wOrKING PArTIeS
   deliver even greater impact for young people living with
   cancer in Australia. in late February 2009, the CanTeen          in addition to the three permanent sub-committees, the          Amanda Bycroft            Chris Bond                      Jason garrick             kevin prokop
   Board resolved that this question should be examined in          Board has currently established two working parties             sA&nT mAC, vice president ACT & southern nsw mAC          Qld mAC                   sydney & Central mAC
   consultation with the membership during calendar year            around priority development issues.                             Bereaved offspring member patient member                  Bereaved offspring member Bereaved offspring member
   2009 and announcements to this effect were made in April.        •	 The Advocacy Sub-Committee comprises Ceo Andrew
                                                                       young (chair), Board members Anne senner, Juli               ASSOCIATe dIreCTOrS
   rISK mANAGemeNT ANd BOArd                                           Anderson, Amanda Bycroft and kevin prokop, as well
   SuB-COmmITTeeS                                                      as other members, staff and volunteers. The Advocacy
   CanTeen’s risk management framework incorporates                    Committee has two roles: overseeing CanTeen’s
   ongoing reviews of risks in three priority categories:              participation in advocating for Adolescent and young
   ethics & young people; Finance, governance & Risk;                  Adult Cancer Centres in Australia and overseeing the
   and people & performance. permanent sub-Committees                  development of CanTeen’s organisational competency in
   of the Board oversee risks in each area, making                     advocacy generally.
   recommendations to the Board.                                    •	 The Partnerships and Profile Sub-Committee comprises
                                                                       geoff Thompson (chair), Chris Bond and kevin prokop,
   each sub-Committee includes CanTeen member directors                as well as other members, staff and volunteers. it is
   and	Associate	Directors	with	expertise	in	the	field,	plus	the	      charged with making recommendations to the Board in          graham Childs               Anne senner                   geoff Thompson                             geoff scott
   Ceo or other senior manager/s responsible for the day-to-           priority areas of fundraising through major partnerships     managment Consultant        Clinical nurse Consultant –   Chartered Accountant                       Chartered Accountant
   day management of these areas. each committee spends                and	raising	the	organisation’s	profile.                                                  paediatrics, Bone marrow
   time outside of Board meetings to consider reports, policies
                                                                                                                                                                Transplants and oncology



10 – CanTeen Annual Report 2009                                                                                                                                                                                                             CanTeen Annual Report 2009 – 11
1 NATIONAL REPORT




   natiOnal OutCOmes
   This yeAR we AgAin hAd ThRee FAnTAsTiC nATionAl pRogRAms – nATionAl CAmp, nATionAl leAdeRship                                members has overseen the project and provided valuable         that has
   And CommiTTee TRAining And nATionAl Teenlink TRAining. FoR The FiRsT Time in Close To A deCAde                               feedback on every aspect of the website.                       been                            Camp Activities
   nATionAl CAmp wenT wesT! seT AT An old QuARAnTine sTATion neAR FReemAnTle, The CAmp wAs                                                                                                     made up
   ATTended By neARly 100 memBeRs who enJoyed siX dAys oF A ‘sTep BACk in Time 09’ Theme-pACked                                 first NT staff member coming soon!                             until now and are looking forward to being able to
   wA AdvenTuRe. The highlighT wAs undouBTedly A dAy TRip To RoTTnesT islAnd in A CAnTeen                                       one of the most exciting developments for this year is the     report on the implementation of new and improved services
   BRAnded BoAT, ThAnks To The TeRRiFiC suppoRT oF ouR pARTneRs RoTTnesT eXpRess.                                               planned	opening	for	mid	2009	of	our	first	ever	Northern	       for young people with cancer over the next year.
                                                                                                                                Territory	office.	Over	the	last	year	we	have	really	been	
   PrOGrAmS                                                      the amazing Teenlinkers is really showing in the new faces                                                                    reSeArCh
                                                                                                                                heightening our efforts in the Territory to try and increase
                                                                 appearing at camps and events.
   The national leadership and Committee Training took on a                                                                     our	profile	and	provide	a	greater	level	of	service	to	our	     The development of our Statement of Outcomes and
   whole new life this year with a harry potter style ‘CanTeen   Now What...? resource for Siblings                             members there. The result of this hard work and some           evaluation
   and the Chamber of leadership secrets’. members were                                                                         terrific	community	support	(including	a	$40k	donation	         Following on from our needs research, this year saw the
   welcomed to ‘hogwarts’ in the Blue mountains where they       last year we launched a free resource (and a supporting        by the darwin international Airport) has resulted in the
                                                                 website) for young people whose parents had been                                                                              development of our Statement of Outcomes that CanTeen
   worked hard to learn new skills, share insights and set                                                                      appointment of a dedicated program worker who will be          seeks to facilitate for all young people living with cancer.
   goals for the year ahead. A similarly dedicated group         diagnosed	with	cancer.	We	used	our	research	findings	          based out of darwin. watch out nT here we come!!
                                                                 and member input to guide what areas this group wanted                                                                        (see	next	page).	This	is	a	significant	step	forward	for	
   of members attended Teenlink training in may, and also                                                                                                                                      the organisation as it allows for the clear guidance of
   worked hard at developing new skills. These ‘Teenlinkers’     more information about. Called Now What...? it was so          AdvOCACy
                                                                 successful, that we had to reprint! This year we followed                                                                     our program and service delivery, informs our research
   will now (as part of their role) meet potential new                                                                          our quest for specialised adolescent and young adult           agenda and also allows for clear communication with
   members and ensure they do not feel so isolated. A big        the same process and published a version for siblings
                                                                                                                                cancer services continues to move forward. At the end of the   stakeholders about what we are seeking to achieve as an
   part of the skills Teenlinkers learn is how to connect and    offering practical information, ideas and tips. it has the
                                                                                                                                financial	year,	we	were	nearing	completion	of	the	National	    organisation.
   provide support to young people who are just beginning        same look and feel, and early indications are that it
                                                                                                                                implementation plan which would form the basis of a Funding
   their cancer journey. They do amazing work.                   will be just as successful. we have had really positive                                                                       Based on the outcomes Framework, this year also saw the
                                                                                                                                Agreement with the Federal department of health and
                                                                 feedback from health professionals about how relieved                                                                         first	steps	in	developing	a	comprehensive	framework	and	
                                                                                                                                Ageing for the release of the $15m funding committed by the
                                                                                  they feel to have a credible and ‘young                                                                      toolkit for evaluating our programs and services. we have
                                                                                                                                Commonwealth. The plan set out our proposed management
                                                                                  person friendly’ resource to refer to. work                                                                  completed a scoping study and consultation exercise that
                                                                                                                                structure to oversee the funding and to execute agreements
                                                                                  has now begun on the next book in the                                                                        outlines recommendations for appropriate approaches and
                                                                                                                                under the new AyA Fund. The Agreeement with the
                                                                                  series to support young people who are                                                                       successful design, implementation and usage of monitoring
                                                                                                                                         Commonwealth will be in place by 30 June 2009.
                                                                                  bereaved.                                                                                                    and evaluation within CanTeen. our newly established
                                                                                                                                             we had received initial proposals from the        evaluation working party will continue this work over the
                                                                                developing a new online space                                 state jurisdictions about how they might use     coming year.
                                                                                  despite the great new member                                  their part of the $15m and had initiated
                                                                                  numbers, we are aware that                                     discussions about potential national
                                                                                  there are still many more                                       projects (from websites to
                                                                                  young people out there going                                    professional development
                                                                                  through a cancer experience,                                    for AyA health professionals
                                                                                  without	the	benefit	of	                                         to a needs assessment tool).
                                                                                  information and support. This                                   These will be developed in
                                                             National             knowledge has been the driver                                  detail and approved once
                                                             Leadership           in CanTeen’s efforts this year                               the Agreement is in place.
                                                             Camp, 2009           to build a new safe online space                                   our continued thanks
   record New member Numbers                                                   where young people can not only                                        go to the many health
   we have continued to build on the successes of recent                       find	the	information	and	support	they	                                  professionals, department
   years and set another record in the number of young           need, but also create a community that is not limited                                  officers,	CanTeen	
   people joining up to become members of CanTeen. it is         by geography. The content will be generated by the                                      members, staff and
   great	to	see	that	all	the	hard	work	in	refining	referral	     young people themselves. due to be launched in late                                     volunteers who have
   processes, communicating with health professionals            2009, the website will be the result of an extensive                                   provided their support
   (including through our new e-newsletter CANnection), and      consultation process with not just our own members, but                                for this cause. we are
   the time and energy put in by our dedicated staff and         also the broader community. A steering committee of our                               delighted with the progress
                                                                                                                                                                                                             National Summer Camp, 2009



12 – CanTeen Annual Report 2009                                                                                                                                                                                                  CanTeen Annual Report 2009 – 13
1 NATIONAL REPORT




   natiOnal OutCOmes
   CONTINued

   working Towards more Individualised Service Provision
   – development of Needs measures
   Following on from our research into understanding the
   needs of each of our member groups we are developing
   a self-report needs measure for young people who have                                                      PSyChOLOGICAL
   a parent with cancer and another for young people who                                                      weLLBeING
   have a sibling with cancer. These measures will greatly                                                     All yplwC experience
   assist the initial assessment process when young people                                                                                                                    eduCATION &
                                                                                                               optimal psychological
   join CanTeen, allowing for more accurate, individualised                                                                                                                   wOrK
   service provision. The needs measures will also be used for   heALThCAre                                    wellbeing
                                                                                                                                                                              All yplwC successfully
   ongoing monitoring of our young people to ensure we are       PrOvISION                                                                                                    navigate their
   meeting their needs and to evaluate our effectiveness at      All yplwC are
   doing this over time.                                                                                                                                                      education and work
                                                                 empowered through                                                                                            paths
   Through	this	research	we	are	also	interested	in	finding	      age-appropriate
   out what other factors might affect young people’s needs,     communication and
   such as family and psychological functioning. we hope to
   increase understanding among health care professionals
                                                                 information about cancer
   and service providers of the issues faced by young people     and treatments. young
   who have a parent or sibling with cancer. This project is     people with cancer
                                                                                                                                                                                       reSPITe &
   a collaboration between the university of sydney and          experience optimal
   CanTeen, with the offspring needs measure research being      medical outcomes                       experience optimal wellbeing and                                               reCreATION
   supported through a grant by beyondblue.                                                             resilience throughout their cancer journey                                      All	YPLWC	benefit	from	
   Involvement with Cancer Australia                                                                                                                                                    time-out to enjoy being
   and Contribution to research                                                                                                                                                         a young person
   in partnership with beyondblue and the starlight Children’s
   Foundation, CanTeen is co-funding a research priority
   through Cancer Australia’s priority-driven Collaborative      dAILy LIvING
   Cancer Research scheme (pdCCRs) on the issue addressing       All yplwC effectively cope with                                 PerSONAL reLATIONShIPS
   the unmet psychosocial needs and psychological distress       the practicalities of daily living                              All	YPLWC	benefit	from	effective	
   of young people living with cancer and their parents.                                                                         personal relationships
   This exciting partnership was the result of a workshop
   initiated	by	CanTeen,	bringing	together	other	non-profit	
   organizations to discuss the possibility of co-funding AyA
   cancer research through the pdCCRs. with the support of
   Cancer Australia, this gathering has now been established
   as a yearly AyA cancer research roundtable meeting
                                                                                                                                                                C TO AChIeve ThIS.
   running adjacent to the Cancer Australia round table
                                                                                                      CANTeeN’S mISSION IS TO SuPPOrT, deveLOP ANd emPOwer yPLw
   meeting.
   we have continued to contribute to the knowledge of
   others in the research and health sectors about the needs
   of young people living with cancer. Approximately 13
   national and international conference presentations have
   taken place including the hosting of a symposium at the 8th                                        The high-level model shown above summarises six outcomes “domains” including an overall statement of the outcome for
   international Conference on grief and Bereavement.                                                 each domain. The next level of detail articulates 29 individual outcomes in these six domains – you can see the detailed
                                                                                                      version on our website (look for the research section under “About us” or by contacting CanTeen).



14 – CanTeen Annual Report 2009                                                                                                                                                                      CanTeen Annual Report 2009 – 15
1 DIvISION REPORTS




   diVisiOn OutCOmes
   CAnTeen suppoRTs young people ThRoughouT AusTRAliA FRom eighT divisions, wiTh ABouT 40                                         a few of the many standouts which included: western              we offered members a record number of places for
   sTAFF in ToTAl. eACh division woRks wiTh The memBeRship oF CAnTeen in TheiR Region.                                            newcastle suburbs leagues Club; masonic lodge; Rotary            programs and even with the member growth, which has
   CAnTeen’s divisions ARe ResponsiBle FoR developing And mAnAging The wide ARRAy oF pRogRAms                                     Club newcastle; Bub orlandi & Tony Carrol memorial surf          doubled,	we	still	filled	every	place.	
   And ACTiviTies FoR memBeRs, whilsT Also pRomoTing CAnTeen wiThin The loCAl CommuniTy. divi-                                    Contest; seaside Tennis Classic and stan Bendall’s Charity
                                                                                                                                                                                                   2008	saw	some	Program	firsts	in	QLD.	Gender	Specific	
   sions Also pARTiCipATe in nATionAl FundRAising evenTs, suCh As nATionAl BAndAnnA dAy, Along                                    golf day. Thanks also to the ongoing corporate support of
                                                                                                                                                                                                   Camps,	our	first	Division	Camp	in	far	North	QLD	and	
   wiTh loCAl FundRAiseRs, inCluding Fun Runs And golF dAys.                                                                      eraring energy, united mineworkers Federation and The
                                                                                                                                                                                                   a north Qld members only Camp. All were hugely
   heRe is A BRieF highlighT FRom eACh oF ouR divisions:                                                                          good guys.
                                                                                                                                                                                                   successful with the north Qld programs providing greater
                                                                                                                                  Finally, a big thank you to all of the individuals and           access for our many regional members who often have to
   ACT & SOuTherN NSw                                            2008/09 was once                                                                                                 organisations    fly	hours	to	attend	Camps	in	South	QLD.	
                                                                 again another                                                                                                     that
   2008/09 provided the ACT & southern nsw division with                                                                                                                                           ‘sunday Arvo Chill out’ sessions were also new to
                                                                 important chapter in                                                                                              supported
   a huge array of specialised member programs, recreation                                                                                                                                         the division, making use of the fantastic new Brisbane
                                                                 the ACT & southern                                                                                                hunter &
   events, and fundraising opportunities and of course,                                                                                                                                            members room. This relaxed program has a focus on
                                                                 nsw division. we                                                                                                  northern
   national Bandanna day. This certainly kept members,                                                                                                                                             providing the opportunity for members to socialise
                                                                 all look forward to                                                                                              nsw division
   staff, volunteers and those in the community who support us                                                                                                                                     without the formal structure of a program, but still with
                                                                 an exciting year                                                                                                 throughout
   very, very busy.                                                                                                                                                                                the subtle support of staff and volunteers. These ‘sessions’
                                                                 ahead, where we will                                                                                             the year. This
   member programs for this year’s calendar took into            continue to strive to                                                                                                             are	popular	and	a	non-threatening	first	program	for	
                                                                                                                                                                                  success would
   account the needs of CanTeen’s young people and ensured       meet the needs of                                                                                                                 new members in particular. in 2008/09 Qld division
                                                                                                                                                                                  not have
   that they were always at the centre of our planning. with     CanTeen’s members                                                                                                                 membership grew to123.
                                                                                                                                                                                  been possible
   this in mind, we were able to offer a greater variety of      and constantly look at                                                                                           without you      we would like to thank some individuals for their incredible
   specialised	programs	such	as	our	Gender	Specific	Program	     how we can do things                                                                                            and we look       contribution in 2008/09 and include: Chris and gary
   for girls, ‘girl power’, over 18 Recreation events and        better, therefore                                                                                               forward to        wheelan-doyle, who donated $20k for the refurbishment
   healthy living program, just to name a few. once again,       improving services                                                                                              working with      of the new members room; southern Cross Transit who
   CanTeen staff worked enthusiastically throughout the year     for young people                                                                                                you again         provide all transport to and from Camps free of charge in
                                    and were rewarded with       living with cancer.                                                                                             in the year       the big CanTeen Bus; mcConnell – dowell for a wonderful
                                     an increase in member                                                                                                                      ahead.             surprise donation of $50k the Qld division golf day
                                     numbers on programs and     huNTer &                                                                                                                                  Committee; peter hilan from RACQ; The Tabol of
                                    membership, welcoming 71     NOrTherN                   National Summer Camp, 2009                                                                                      nolidge; The mustang Club; The Townsville good
                                    young people to the ACT      NSw                                                                                                                                        guys and of course our fantastic volunteers.
                                    & southern nsw division.
                                    programs and events had      2008/09 has seen hunter & northern nsw division enjoy                                                                                     SA&NT
                                    an exciting fresh energy     another year of solid growth. our membership increased
                                    with those new to CanTeen    by 60 with 117 members attending at least one program.                                                                            The past year has been a period of innovation
                                    and those experienced,       The action packed calendar saw h&n division hold eight                                                                            and growth for the sA&nT division. in true
                                    enjoying	the	benefits	of	    overnight programs, including two combined good grief                                                                              CanTeen style, the division has maintained a
                                   peer support, sharing their   and healthy living programs, two new member Camps,                                                                                 crowded program calendar, offering 12 camps,
                                   stories and experiences.      a good grief Bereaved program, Committee Training                                                                                  and	a	significant	25	Recreation	Days	–	half	of	
                                                                 and both winter and spring Camps. Combined with four                                                                               which were tailored programs such as over 18’s,
                                   we would like to thank our                                                                                                                                        new members and regional based activities.
                                                                 national programs, h&n division members were offered
                                   generous volunteers who                                                                                                                                           These	specific	programs	were	planned	in	
                                                                 more than 345 program places.
                                  offer their time, skills and                                                                                                                 Peer Suppor           collaboration with the key membership groups,
                                                                                                                                                                                           t
                                  expertise to assist CanTeen    It	was	also	a	successful	year	financially	with	strong	support	                                                in action             enabling the division to reach 118 Active
                                  in providing fantastic         for national Bandanna day, particularly in regional                                                                                 members. with a strong focus on developing
                                  workshops and support,         areas, including Armidale, Coffs harbour, Tamworth, port                                                                     strong referral pathways, delivering high quality
                                  and are a valuable part of     macquarie, Cessnock, greenhills and gosford. hunter &            QueeNSLANd                                              programs and offering meaningful members involvement,
                                      ensuring we are able to    Northern	NSW	Division	also	benefited	from	the	support	of	                                                                the past year has been a great success for our division,
                                                                                                                                  2008/09 was a big year in Qld, and as in all things,
                                      run successful programs    some amazing individuals and organisations. Just to name                                                                 with a lot of hard work paying dividend.
                                                                                                                                  we experienced some triumphs and some challenges.
                                      for our young people.
National Summer Camp, 2009


16 – CanTeen Annual Report 2009                                                                                                                                                                                                      CanTeen Annual Report 2009 – 17
1 DIvISION REPORTS




   diVisiOn OutCOmes CONTINued
   with so many program highlights and memories to choose             A special mention must also go to all of our wonderful               TASmANIA                                                       needs. victoria
   from, some exceptional moments include: taking a charter           volunteers, who generously donate their time, energy and                                                                            and Tasmania
   plane full of members to melbourne for a Crows mystery             skills. Thank you!!!                                                 The Tasmania division enjoyed another fantastic year           divisions
   Flight adventure of a lifetime; facilitating two very successful                                                                        defined	by	Membership	growth	and	strong	Member	                continued to work
   tailor-made	gender	specific	programs;	and	lastly,	running	         SydNey & CeNTrAL NSw                                                 participation.                                                 in partnership
   our leadership Camp, ‘Canlead’, which included substantial         The 2008/09 year was yet again successful for the sydney             during 2008/09 our programs offered opportunities for          to deliver joint
   member facilitation and involvement.                               & Central nsw division. The division had 103 new members             253 members from across the state, with 70 members             programs to
                                                                      join and had 100 active members within the division.                 attending at least one program during the year. we have        the membership
   Over	the	past	six	months,	significant	developments	have	
                                                                                                                                           also welcomed an additional 25 new members, with 92%           and increased
   taken place to improve the services we offer young people          The division delivered 10 Recreation days and nine overnight         attending at least one program since joining CanTeen.          opportunity for
   living with cancer in the northern Territory (nT). darwin          Camps, and participated in three national programs during                                                                           peer support.
   Airport	committed	to	funding	CanTeen’s	first	ever	NT	              the year. This included              the introduction of new         The division delivered a winter ski Camp at Thredbo,
                                                                                                                                                                                                          177 members
   based staff position, lasting for a period of 12 months. The       programs and                            trialing a Category          and hosted a shared male Camp and summer Camp with
                                                                                                                                                                                                          attended at least
   Programs	Officer	position	will	begin	in	August	2009	with	          program                                    in the division. All      the victorian division in Tasmania. Tasmanian members
                                                                                                                                                                                                          one program
   a focus on facilitating Territory based support programs,                                                         members attended      also had the opportunity to participate in the following
                                                                                                                                                                                                          within the year,
   whilst increasing public awareness                                                                                the one program,      programs hosted by the victorian division: good grief
                                                                                                                                                                                                          with 88 members
   of CanTeen’s services, and in                                                                                     but were split        Retreat; girls Camp; over 18 Camp; and ‘leaders Take
                                                                                                                                                                                                          attending more than
   turn, maximising the number                                                                                   into their category       Action’ Camp.
                                                                                                                                                                                                          two programs. The
   of young people CanTeen                                                                                   groups with each group        Tasmanian members also participated in national Camp,          overall membership
   is able to support.                                                                                  participating in recreational      Teen link Training, national Committee Training and the        attended 406 times
   without the amazing                                                                              activities	and	specific	educational	   Agm and Fundraising dinner.                                    on various programs.
   support and generosity of                                                                   sessions to meet their needs. we
                                                                                          also worked in conjunction with the ACT          eight Recreation days were also enjoyed by our members,        overnight programs
   local businesses and individuals,
                                                                                      &	Southern	NSW	Division	and	held	our	first	          which included a variety of activities such as horse riding,   included: good grief; National Summer Camp, 2009
   we could not continue to offer
                                                                                       ever	Good	Grief	Program	specifically	for	           four wheel driving, laser games, ten pin bowling and a         ‘leaders Take Action’
   such a wide range of programs
                                                                                          Bereaved members. it was a great success,        Christmas party. Five new member dinners and Café              Camp; over 18 Camp in Anglesea; winter Camp; gender
   and services to our members. our
                                                                                              with members responding positively to        Crawls were also enjoyed by Tas members.                       Specific	Camps	for	both	male	and	females;	Summer	Camp	
   largest division based fundraiser,
                                                                                                  the program. we also continued                                                                          themed ‘The place to Be’ in northern Tasmania with 95
   the City~Bay Fun Run, continued to                                                                                                      in July, we also welcomed the new staff position of part
                                                                                                      to	deliver	our	Gender	Specific	                                                                     young people attending; national Camp in wA; Teenlink
   be a success, raising over $56k from                                                                                                    time	Recreation	Officer	to	the	Division.		The	introduction	
                                                                                                            programs, healthy living,                                                                     training in sydney; national Committee training and
   more than 600 participants. Thank                                                                                                       of this position has contributed markedly to our overall
                                                                                                              winter Camp, summer                                                                         Fundraising dinner in sydney.
   you to our major event sponsors,                                                                                                        growth and success as a division.
   Brooks, sAFm, subway, nAB and                                                                              Camp and new member                                                                         other popular days are: grand prix experience; new
                                                                                                              Camps along with all of      The past year has also seen increased community support
   5 star digital.                                                                                                                                                                                        members days; over 18 events; AFl medallion Club seats
                                                                                                          our Recreation days.             for the Tasmania division, with a greater number of
   Thanks also to our division sponsors:                                                                                                   independent fundraisers, improved national Bandanna            to all etihad stadium games (entire season); air shows;
   ernst & young and orange education                                           it was another successful year for the division in         day sales and awareness, and growing volunteer numbers         Bowl-A-Rama; and many more exciting activities.
   for their wonderful on-going support, as                                     regard to fundraising, and our thanks go to The            obtained during 2008/09. CanTeen Tasmania would                victoria would like to say thanks for all the support from
   well as national Jet, Corvette Club of sA,                                   good guys, sydney water, and merck, sharp                  like to thank all the schools, clubs, businesses and every     our community, businesses, individuals, clubs, schools and
   Blackwood golf Club and lions Club of                                        and dohme for their efforts during the year. A big         individual who has provided their time and support to          volunteers. Also, thank you to daimler Chrysler Fs, who
   port lincoln for their valuable contributions.                               thanks to all of the individuals and companies that        CanTeen Tasmania – our continued success would not be          provided CanTeen members with a charity box AFl
   special thanks to Australian executor                                         also supported the division during the year; it is        possible without all of you.                                   medallion Club membership for a three year period at
   Trustees for their ongoing                                                     much appreciated. we are looking forward to                                                                             a cost of $150k. A special thank you to Ron and helen
   generous support.                                                              working with all of our members, staff, volunteers       vICTOrIA                                                       Cuthburt, CanTeen victoria Ambassadors, for another
                                                                                                             and supporters in the
                                                                                                                                           it has been a strong year for growth in membership             successful eildon Boat Club auction raising $40k.
                                                                                    Meet Anna, 13            upcoming year.
                                                                                                                                           and specialist programs in the victoria division. 104          A special thanks to John shore, CanTeen Ambassador,
                                                                                   yrs old. Her                                            new members joined the division and enjoyed an action          for his generous support of CanTeen at many events.
                                                                                   mum has cancer
                                                                                                                                           packed calendar of programs to meet our membership




18 – CanTeen Annual Report 2009                                                                                                                                                                                                             CanTeen Annual Report 2009 – 19
Annual Report Final Lr
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Annual Report Final Lr

  • 1.
  • 2. 1 CANTEEN ANNUAL REPORT 2009 Meet Kieran, 17 years old, Siblin g Member – his sist er Asha was diag nosed with cancer when she was 14 “When Asha got sick it was like a rollercoaster, a mixed bag of emotions. I was by myself a lot of the time. My parents were supportive but they were caught up with what Asha was going through. I spent a fair bit of time at home doing my own thing: trying to cook food, walking the dog; and I was worried about my sister and parents. Without CanTeen I would be lost.” abOut us Our VisiOn CAnTeen is The AusTRAliAn BRing TogeTheR All young oRgAnisATion FoR young people living wiTh CAnCeR people living wiTh CAnCeR. Our missiOn CanTeen’s mission is to support, develop and empower young people living with cancer. we do this by providing an Australia-wide peer To suppoRT, develop And support network for 12-24 year-olds empoweR young people living Kieran including*: wiTh CAnCeR “When they told me I had • Patients – young people who have cancer I just started crying. I was been diagnosed with cancer, confused, and I didn’t know what was going on, because nothing like that had ever happened to me before. I was only 14. • Siblings & Offspring – young people who have an immediate Our Values At first they thought I had appendicitis. Like, nine out of ten times that is what it would be. I really wish it had been that! family member (brother or sister, we suppoRT, develop And parent or primary carer) who has empoweR ThRough: The cancer treatment was pretty intense. I lost my hair. And I been diagnosed with cancer, and lost so much weight, I was bony. I was really pale and I was • Respect and integrity always tired. • Bereaved Siblings & Offspring • pride and accountability The best support in the end was CanTeen, and meeting all these – young people who had an immediate family member who • Teamwork and inclusiveness amazing people. I am a much stronger person now, and I certainly don’t take anything for granted.” died from cancer. • Flexibility and initiative we provide members with a place • understanding and compassion where they can simply be young • inspiration and encouragement people, away from the daily • positivity and celebration Contents pressures of living with cancer in the hospital or at home. HOw Canteen empOwers its members Through a wide range of camps and programs, CanTeen encourages About us t 3 4 CAnTeen hAs heAps oF gReAT peeR suppoRT • Recreation days give members a chance to get together members to share their experiences, From the Presiden make great friends…and of course, 6 pRogRAms FoR memBeRs. They’Re All held in in a more casual way, by doing things like go-karting, have fun! From the CEO FAnTAsTiC venues ARound AusTRAliA. wiTh bowling or just going to the movies. 8 eveRyThing FRom week-long CAmps To shoRTeR, MAC on all our programs, young people can let their hair down 10 moRe FoCused pRogRAms, TheRe’s someThing To (or wear a CanTeen bandanna!) and have some fun. our The Board suiT eveRyone… 12 programs are designed to encourage members to share National Outcomes • general programs such as weekend camps and their stories, develop new skills and support each other. 16 week-long programs, give members a break from the * young people who don’t quite fit these descriptions Division Outcomes might still be able to join – contact us for more omes 21 pressures of living with cancer. information. Fundraising Outc • Focused programs are there to help members with 26 CanTeen is a company limited by guarantee. Finance Summary specific issues they may be facing. For example, Good our ABn is 77 052 040 516 and we are registered Grief addresses issues surrounding grief and loss, and for gsT. Healthy Living is designed to educate members in The company is also an income Tax exempt Charity strategies for stress relief and improved quality of life. and a deductible gift Recipient. CanTeen Annual Report 2009 – 3
  • 3. 1 MESSAGES FrOm tHe president: LOOKING BACK It has definitely been another exciting and eventful year been distributed and that is just the start of things to come! of course, a topic that has been on everyone’s lips over for CanTeen, incorporating a plethora of amazing camps The development of the siblings resource is well under the few months is that of the potential merger between and activities, fantastic fundraisers and other valuable way, along with the new member guide. These resources, CanTeen and Camp Quality. it has been fantastic to see developments in the journey towards creating better produced due to a considerable need identified in our how passionate CanTeen members are about CanTeen, outcomes for young people living with cancer. research, are developed in consultation with our members and while it has now been decided that the proposed and will help to make life easier for so many young merger will not go ahead, we are looking forward to CanTeen’s wide range of recreational people living with cancer. with timely access to relevant building on this passion for the organisation as we begin a and educational camps and activities has information, individuals are better empowered to deal new phase of development for CanTeen. continued to grow and evolve. This program with the challenges they face in their cancer journey. evolution stems from the research CanTeen has conducted into the needs of young people Taking on this ambitious challenge of research (or the living with cancer, and from the vital input results that it has uncovered) has propelled CanTeen in a and feedback from CanTeen’s members. The range of exciting directions. The evolution of our programs continued development of our programs helps and the development of our information resources, Juli Anderson to ensure that we are working strongly towards including Now What…?, are some examples of these new National President our mission of supporting, developing and directions but there are many others as well; all working Juli Anderson empowering young people living with cancer towards improving the lives of young people living with National and helping create the best possible outcomes cancer all around Australia. President and for our current and future members. Sibling Member speaking of all around Australia, CanTeen has increased our program calendar this year started out with a brilliant its focus on delivering services to those in need in regional National Camp in WA (for the first time in eight years). The areas. we have had greater numbers of regional trip to Rottnest island and the jet-boat rides provided by members attending our camps and activities and more Rottnest express were a real highlight of the camp! staff and members visiting regional areas to run programs and raise awareness. The addition of our first NT based This was also the second year in which we ran our new staff member is another important development in national leadership program – this time with a harry reaching those in the wider areas of Australia. potter theme! it was so inspiring to see young leaders within CanTeen, from all around the country, come together our research team has continued to share the research to share ideas, develop new skills and have important input findings both nationally and internationally, raising into our organisation. important awareness. Their collaboration with other organisations is also helping too. our national TeenLink training was once again a great success, with over 50 members involved. The Teenlink development of our new website is well under way! A program is an integral part of developing and maintaining member advisory group has been closely involved in this CanTeen’s peer support network. project and it will be ready for release later this year. The new website will be another way in which we are trying to The Now What...? offspring resource has been a massive improve access to information. success. 5000 copies of this written resource have already 4 – CanTeen Annual Report 2009 CanTeen Annual Report 2009 – 5
  • 4. 1 MESSAGES FrOm tHe CeO: LOOKING fOrwArd The OuTCOmeS JOurNey CONTINueS! how the Federal – and additional CanTeen fundraising – with the launch of new services like Now What...? and money will be best spent. the ongoing advocacy for a new model of care for AyA we reported last year that our major research project patients. looking at the needs of young people living with cancer – in the year to come this work will start to bear tangible fruit. patients, siblings, offspring and bereaved – was completed, Starting around August 2009, we will finalise agreements in the current economic environment, this ever increasing and that a next step was the development of a statement with states and Territories about local AyA service delivery demand for and range of services is particularly of outcomes for young people living with cancer. plans. watch out for some great news and announcements challenging for CanTeen. now, more than ever, we depend This was finalised in the past year and you can read from around this time. on our donors and supporters, corporate partners, partners about it on page 14. in the health and other not-for-profit sectors, volunteers and There is an important need that arises from this work. others. our sincere thanks to all of you for your support over This framework lays the foundations for a rigorous over the next three years we need major donors that can the past year. outcomes-focused, evidence-based approach to all contribute to the establishment cost of one or more of the that we do in the future. in the coming year, we will proposed AyA cancer services. in total, we aim to raise To our staff and members, thanks for your outstanding develop a framework for evaluation of all of our $15m to match the Federal government’s contribution, efforts in yet another huge year. looking forward, we face Dr Andrew programs and services, linking them to the outcomes and this task has been made more difficult by the global some testing times as we expand our vision for what we can Young, CEO framework we have completed. The outcomes economic circumstances. if you might be able to help, i would achieve together. i know that our passion for the cause will framework will also drive identification of gaps in be delighted to discuss this with you in more detail. stand firm. existing services and future program development, as To the mAC and Board, thank you for your continued vision well as helping us identify issues for advocacy in the 2009/10 – A New PhASe and, in particular this year, hard work as we continue to future. As Juli mentioned, we have recently completed a build for the future. A special thanks to departing directors consultation process examining the potential for a Amanda and Jason. ImPrOvING CANCer ServICeS fOr AyAS – merger with Camp Quality, deciding instead to focus on frOm AdvOCACy TO ACTION opportunities to create a better world for children and Finally, my thanks to our president of the past year, Juli young people living with cancer through collaboration. At Anderson, who has the reins at a challenging time! Thanks it feels like a long journey for us since we presented to a the same time, CanTeen is nearing the end of a five year for the positive approach and bright smiles along the way. 2005 Federal senate Committee inquiry on cancer services, laying out our case for new cancer services for adolescents process of implementing a strategic direction we established and young adults with cancer. in late 2007, the incoming late in 2004. Federal government committed $15m funding for this it is now a great time for CanTeen to focus our energies purpose and in the same year we worked with Cancer on developing the next stage of our development. during Australia to write the national service delivery Framework the coming financial year we will commence this process, for AyA cancer, which will guide the establishment of future building on the passions and ideas generated through the services. merger consultation process, and on our research evidence Andrew young In the 2008/09 year, the first payment from the Federal and recently completed statement of outcomes framework. Chief Executive Officer Government falls due, and as the CanTeen financial year IN CLOSING ended we were in the final stages of development of a comprehensive implementation plan for this funding. we’ve it has been another huge year for the organisation, with also been in discussions with all states and Territories about continued growth in membership and programs along 6 – CanTeen Annual Report 2009 CanTeen Annual Report 2009 – 7
  • 5. “CanTeen is unlike any o 1 CORPORATE GOvERNANCE Ther CanCer organisaTion.” member adVisOry COunCil (maC) kellie Atkinson, patient me mber emPOwerING memBerS, deveLOPING LeAderS other things. one suggestion that came up was that the mAC should in The seCond hAlF oF CAlendAR yeAR 2008 have a suggestion box at national The mAC weRe: AmAndA ByCRoFT (sA&nT), Juli Camps. if members had concerns AndeRson (hunTeR & noRTheRn nsw), ChRis or suggestions about CanTeen, they Bond (ACT & souTheRn nsw), JAson gARRiCk could write them down and put them (Qld), kylie lewis (viC), philippA ZuCChi (TAs), in the box for the mAC to review at kevin pRokop (sydney & CenTRAl nsw) And each meeting. The mAC has used Annie sChmiTZ (wA). this method of feedback and suggestions on national programs After the division elections Alex valero joined the mAC team from (sA&nT) and Amanda left the team when her this year. Another idea from the suggestion empOwering yOung peOple term on the Board ended. box was to have more member input CanTeen empowers its members represent the membership in a After the 2008 Agm, Juli Anderson was elected into into our brand. The mAC came up (young people living with cancer) in division Committee. The Committee the National President role as Josh Hogan had finished Meet the MAC with a competition for members to the governance of the organisation (Member Advi meets regularly to oversee the serving his term. since then, Juli has been steering sory Coun design a CanTeen bandanna to go at all levels. The purpose and cil) planning of programs and activities the mAC ship, and to her credit, has shown outstanding on sale at the 2009 national powers of CanTeen and our within the division. leadership and growth throughout her term. Juli came Bandanna day. There were a lot governance structures (including into the national president role with the idea of the and what we have finished. The MAC has implemented a of quality entries but only one winner, each division also elects one division Committees, member whole mAC running the show as a unit, not just one person newsletter to members and staff aiming to go out once yuemei lim of wA, designed the member to sit on the member Advisory Council and Board) are facilitating the group. so under Juli, each mAC member every two months. it outlines our progress throughout the winning bandanna which is available Advisory Council (mAC). The mAC described in our Constitution, which has been accountable for running agenda items and also year and highlights important updates in the CanTeen to view at the CanTeen website represents CanTeen’s membership can be obtained from CanTeen’s championing (solo or in twos) a mAC goal that they report world. expect these to continue into next year. (www.canteen.org.au). nationally, participates in strategy National Office or our website – on every meeting. The mAC also changed the way in which in an effort to keep CanTeen as nationally consistent as www.canteen.org.au. setting with the Board and makes we report on our divisions from a statistical approach to a now with the big issue of the recommendations to the Board on possible, the mAC has started using a reporting system so proposed merger between CanTeen vibe, values and feelings method, and use it to discuss how in empowering members in key policy and program areas. all division committees are getting the same communication and Camp Quality you might be our divisions and personal roles are going. The mAC has governance throughout CanTeen, The mAC also elects 5 suitable from the mAC at the same time. thinking, ‘where has our mAC been?’. also agreed to regularly meet with their division manager we ensure that the operations of candidates from the mAC to serve for a monthly performance appraisal, which is then shared once again the shooting star award was up for grabs at The mAC was involved/consulted the organisation continue to focus on the Board of directors each at every mAC meeting. national Camp 09 in wA, inaugurated in 2004 in memory throughout the whole process and on the needs of young people year. of member kelly Johnson. This award is given to the had many teleconferences around living with cancer. CanTeen has identified that a new resource was needed member who the mAC feels best displays the values and the issue! Also the mAC was present CanTeen’s Board of directors to help new members navigate through CanTeen and the vibe of CanTeen. molly hennekam (sA&nT) deserved the at the workshops with Camp Quality Through participation in these consists of five current CanTeen mAC took this on as part of our goals for 2009. ideas for award this year and gave a teary acceptance speech. collecting as much information as we key roles, CanTeen members also member directors and four the guide were streamed from division committees and the could to relay back to the division develop deep leadership skills and ‘Associate directors’ – volunteers mAC. The mAC has been consulting with staff throughout in recent times the mAC and member directors have Committees. Two mAC members, experience for the future. CanTeen who bring relevant expertise to the the process on how it should look and feel. expect the identified the need for development and skills in the areas kylie and Jason, represented the conducts leadership training and Board. our Constitution requires finished product to be available this year! of national/vice president and Board member roles. members on the Cross pollination development for members in these that our president and vice- leading up to elections, there is now an annual training sub committee, while Juli and Chris roles. The MAC has identified that it is important to be visible workshop held by CanTeen for our leaders. it is used to president are CanTeen members, throughout our membership and to keep our members represented the members on the we support young people living and that all votes of the Board further develop division presidents and for them to gain a steering Committee of the proposed informed on what we are doing better understanding of what is expected from their roles with cancer through geographical include a majority of member merger. it just wouldn’t be CanTeen if divisions throughout Australia; votes. CanTeen’s membership elect and sessions. there wasn’t member representation every two years the members in Associate directors at the Annual in 2009, the mAC is happy to announce that divisional at all levels. general meeting who serve two- each division elect members and vice presidents will also be invited to this year’s workshop. Friends (volunteer supporters) to year terms on a rolling cycle. Chris Bond (ACT&snsw) last year the mAC sent out a survey to division Committees about how they thought we could improve our role amongst Meet Melissa and Michelle, Offspring Members 8 – CanTeen Annual Report 2009 CanTeen Annual Report 2009 – 9
  • 6. 1 CORPORATE GOvERNANCE STRUCTURES tHe bOard Member Directors Eligible Attended Juli Anderson (President from August 08) 11 11 in 2008/09 The BoARd ConTinued To FoCus on The sTRATegiC oppoRTuniTies FACing CAnTeen – PreSIdeNT & memBer dIreCTOr Joshua Hogan (President till August 08) 4 4 ReseARCh, developmenT oF FuTuRe seRviCes And AdvoCACy – while ConTinuing To moniToR Amanda Bycroft (Vice President from August 08) 11 9 oRgAnisATion peRFoRmAnCe And Risks. The BoARd Also ConsideRed The meRiTs And Risks Marisa Burgess (Vice President till August 08) 4 4 AssoCiATed wiTh A pRoposed volunTARy meRgeR wiTh CAmp QuAliTy. Chris Bond (appointed August 08) 7 7 Kevin Prokop (appointed August 08)) 7 7 Joson Garrick (appointed August 08) 7 7 reSeArCh and areas of risk specific to that field. Oliver Brown (term ended August 08) 4 4 Building on research conducted in the prior year, the Board • The finance, Governance and risk Sub-Committee this year approved CanTeen’s newly developed statement comprises geoff scott (chair), kevin prokop and Jason Garrick, and takes responsibility for financial processes Associate Directors Eligible Attended of outcomes for young people living with cancer. This framework (see page 14) will be the basis for development and procedures as well as reviewing CanTeen’s finances. In addition to finance-related risks, the sub-committee Geoff Scott (Treasurer/Secretary) 11 10 of evaluation frameworks in the coming year and will guide takes responsibility for risks not explicitly covered by Juli Anderson Graham Childs 11 9 the development of future services and advocacy initiatives. the other committees. hunter & northern mAC, president Anne Senner 11 10 Geoff Thompson 11 9 AdvOCACy • The People and Performance Sub-Committee comprises sibling member 2007/08 saw the development of the national service graham Childs (chair), Juli Anderson, Amanda Bycroft and Jason garrick. The committee takes responsibility for memBer dIreCTOrS delivery Framework in conjunction with Cancer Australia, and the Federal government’s commitment of $15m policies and risks relating to staff and volunteers, staff towards AyA Cancer Centres. in 2008/09 the Board remuneration and other rewards. continued to focus on this issue, overseeing the development • The ethics and young People Sub-Committee comprises of detailed plans for implementation of AyA cancer Anne senner (chair), Amanda Bycroft and Chris Bond, services in negotiation with states and Territories. and takes responsibility for management and mitigation of risks relating to members, from overseeing of member PrOPOSed merGer wITh CAmP QuALITy safety on programs, to ethics of member participation in research and other CanTeen activities. The Board evaluated at a high level the potential that a merger with Camp Quality might allow the organisation to wOrKING PArTIeS deliver even greater impact for young people living with cancer in Australia. in late February 2009, the CanTeen in addition to the three permanent sub-committees, the Amanda Bycroft Chris Bond Jason garrick kevin prokop Board resolved that this question should be examined in Board has currently established two working parties sA&nT mAC, vice president ACT & southern nsw mAC Qld mAC sydney & Central mAC consultation with the membership during calendar year around priority development issues. Bereaved offspring member patient member Bereaved offspring member Bereaved offspring member 2009 and announcements to this effect were made in April. • The Advocacy Sub-Committee comprises Ceo Andrew young (chair), Board members Anne senner, Juli ASSOCIATe dIreCTOrS rISK mANAGemeNT ANd BOArd Anderson, Amanda Bycroft and kevin prokop, as well SuB-COmmITTeeS as other members, staff and volunteers. The Advocacy CanTeen’s risk management framework incorporates Committee has two roles: overseeing CanTeen’s ongoing reviews of risks in three priority categories: participation in advocating for Adolescent and young ethics & young people; Finance, governance & Risk; Adult Cancer Centres in Australia and overseeing the and people & performance. permanent sub-Committees development of CanTeen’s organisational competency in of the Board oversee risks in each area, making advocacy generally. recommendations to the Board. • The Partnerships and Profile Sub-Committee comprises geoff Thompson (chair), Chris Bond and kevin prokop, each sub-Committee includes CanTeen member directors as well as other members, staff and volunteers. it is and Associate Directors with expertise in the field, plus the charged with making recommendations to the Board in graham Childs Anne senner geoff Thompson geoff scott Ceo or other senior manager/s responsible for the day-to- priority areas of fundraising through major partnerships managment Consultant Clinical nurse Consultant – Chartered Accountant Chartered Accountant day management of these areas. each committee spends and raising the organisation’s profile. paediatrics, Bone marrow time outside of Board meetings to consider reports, policies Transplants and oncology 10 – CanTeen Annual Report 2009 CanTeen Annual Report 2009 – 11
  • 7. 1 NATIONAL REPORT natiOnal OutCOmes This yeAR we AgAin hAd ThRee FAnTAsTiC nATionAl pRogRAms – nATionAl CAmp, nATionAl leAdeRship members has overseen the project and provided valuable that has And CommiTTee TRAining And nATionAl Teenlink TRAining. FoR The FiRsT Time in Close To A deCAde feedback on every aspect of the website. been Camp Activities nATionAl CAmp wenT wesT! seT AT An old QuARAnTine sTATion neAR FReemAnTle, The CAmp wAs made up ATTended By neARly 100 memBeRs who enJoyed siX dAys oF A ‘sTep BACk in Time 09’ Theme-pACked first NT staff member coming soon! until now and are looking forward to being able to wA AdvenTuRe. The highlighT wAs undouBTedly A dAy TRip To RoTTnesT islAnd in A CAnTeen one of the most exciting developments for this year is the report on the implementation of new and improved services BRAnded BoAT, ThAnks To The TeRRiFiC suppoRT oF ouR pARTneRs RoTTnesT eXpRess. planned opening for mid 2009 of our first ever Northern for young people with cancer over the next year. Territory office. Over the last year we have really been PrOGrAmS the amazing Teenlinkers is really showing in the new faces reSeArCh heightening our efforts in the Territory to try and increase appearing at camps and events. The national leadership and Committee Training took on a our profile and provide a greater level of service to our The development of our Statement of Outcomes and whole new life this year with a harry potter style ‘CanTeen Now What...? resource for Siblings members there. The result of this hard work and some evaluation and the Chamber of leadership secrets’. members were terrific community support (including a $40k donation Following on from our needs research, this year saw the welcomed to ‘hogwarts’ in the Blue mountains where they last year we launched a free resource (and a supporting by the darwin international Airport) has resulted in the website) for young people whose parents had been development of our Statement of Outcomes that CanTeen worked hard to learn new skills, share insights and set appointment of a dedicated program worker who will be seeks to facilitate for all young people living with cancer. goals for the year ahead. A similarly dedicated group diagnosed with cancer. We used our research findings based out of darwin. watch out nT here we come!! and member input to guide what areas this group wanted (see next page). This is a significant step forward for of members attended Teenlink training in may, and also the organisation as it allows for the clear guidance of worked hard at developing new skills. These ‘Teenlinkers’ more information about. Called Now What...? it was so AdvOCACy successful, that we had to reprint! This year we followed our program and service delivery, informs our research will now (as part of their role) meet potential new our quest for specialised adolescent and young adult agenda and also allows for clear communication with members and ensure they do not feel so isolated. A big the same process and published a version for siblings cancer services continues to move forward. At the end of the stakeholders about what we are seeking to achieve as an part of the skills Teenlinkers learn is how to connect and offering practical information, ideas and tips. it has the financial year, we were nearing completion of the National organisation. provide support to young people who are just beginning same look and feel, and early indications are that it implementation plan which would form the basis of a Funding their cancer journey. They do amazing work. will be just as successful. we have had really positive Based on the outcomes Framework, this year also saw the Agreement with the Federal department of health and feedback from health professionals about how relieved first steps in developing a comprehensive framework and Ageing for the release of the $15m funding committed by the they feel to have a credible and ‘young toolkit for evaluating our programs and services. we have Commonwealth. The plan set out our proposed management person friendly’ resource to refer to. work completed a scoping study and consultation exercise that structure to oversee the funding and to execute agreements has now begun on the next book in the outlines recommendations for appropriate approaches and under the new AyA Fund. The Agreeement with the series to support young people who are successful design, implementation and usage of monitoring Commonwealth will be in place by 30 June 2009. bereaved. and evaluation within CanTeen. our newly established we had received initial proposals from the evaluation working party will continue this work over the developing a new online space state jurisdictions about how they might use coming year. despite the great new member their part of the $15m and had initiated numbers, we are aware that discussions about potential national there are still many more projects (from websites to young people out there going professional development through a cancer experience, for AyA health professionals without the benefit of to a needs assessment tool). information and support. This These will be developed in National knowledge has been the driver detail and approved once Leadership in CanTeen’s efforts this year the Agreement is in place. Camp, 2009 to build a new safe online space our continued thanks record New member Numbers where young people can not only go to the many health we have continued to build on the successes of recent find the information and support they professionals, department years and set another record in the number of young need, but also create a community that is not limited officers, CanTeen people joining up to become members of CanTeen. it is by geography. The content will be generated by the members, staff and great to see that all the hard work in refining referral young people themselves. due to be launched in late volunteers who have processes, communicating with health professionals 2009, the website will be the result of an extensive provided their support (including through our new e-newsletter CANnection), and consultation process with not just our own members, but for this cause. we are the time and energy put in by our dedicated staff and also the broader community. A steering committee of our delighted with the progress National Summer Camp, 2009 12 – CanTeen Annual Report 2009 CanTeen Annual Report 2009 – 13
  • 8. 1 NATIONAL REPORT natiOnal OutCOmes CONTINued working Towards more Individualised Service Provision – development of Needs measures Following on from our research into understanding the needs of each of our member groups we are developing a self-report needs measure for young people who have PSyChOLOGICAL a parent with cancer and another for young people who weLLBeING have a sibling with cancer. These measures will greatly All yplwC experience assist the initial assessment process when young people eduCATION & optimal psychological join CanTeen, allowing for more accurate, individualised wOrK service provision. The needs measures will also be used for heALThCAre wellbeing All yplwC successfully ongoing monitoring of our young people to ensure we are PrOvISION navigate their meeting their needs and to evaluate our effectiveness at All yplwC are doing this over time. education and work empowered through paths Through this research we are also interested in finding age-appropriate out what other factors might affect young people’s needs, communication and such as family and psychological functioning. we hope to increase understanding among health care professionals information about cancer and service providers of the issues faced by young people and treatments. young who have a parent or sibling with cancer. This project is people with cancer reSPITe & a collaboration between the university of sydney and experience optimal CanTeen, with the offspring needs measure research being medical outcomes experience optimal wellbeing and reCreATION supported through a grant by beyondblue. resilience throughout their cancer journey All YPLWC benefit from Involvement with Cancer Australia time-out to enjoy being and Contribution to research a young person in partnership with beyondblue and the starlight Children’s Foundation, CanTeen is co-funding a research priority through Cancer Australia’s priority-driven Collaborative dAILy LIvING Cancer Research scheme (pdCCRs) on the issue addressing All yplwC effectively cope with PerSONAL reLATIONShIPS the unmet psychosocial needs and psychological distress the practicalities of daily living All YPLWC benefit from effective of young people living with cancer and their parents. personal relationships This exciting partnership was the result of a workshop initiated by CanTeen, bringing together other non-profit organizations to discuss the possibility of co-funding AyA cancer research through the pdCCRs. with the support of Cancer Australia, this gathering has now been established as a yearly AyA cancer research roundtable meeting C TO AChIeve ThIS. running adjacent to the Cancer Australia round table CANTeeN’S mISSION IS TO SuPPOrT, deveLOP ANd emPOwer yPLw meeting. we have continued to contribute to the knowledge of others in the research and health sectors about the needs of young people living with cancer. Approximately 13 national and international conference presentations have taken place including the hosting of a symposium at the 8th The high-level model shown above summarises six outcomes “domains” including an overall statement of the outcome for international Conference on grief and Bereavement. each domain. The next level of detail articulates 29 individual outcomes in these six domains – you can see the detailed version on our website (look for the research section under “About us” or by contacting CanTeen). 14 – CanTeen Annual Report 2009 CanTeen Annual Report 2009 – 15
  • 9. 1 DIvISION REPORTS diVisiOn OutCOmes CAnTeen suppoRTs young people ThRoughouT AusTRAliA FRom eighT divisions, wiTh ABouT 40 a few of the many standouts which included: western we offered members a record number of places for sTAFF in ToTAl. eACh division woRks wiTh The memBeRship oF CAnTeen in TheiR Region. newcastle suburbs leagues Club; masonic lodge; Rotary programs and even with the member growth, which has CAnTeen’s divisions ARe ResponsiBle FoR developing And mAnAging The wide ARRAy oF pRogRAms Club newcastle; Bub orlandi & Tony Carrol memorial surf doubled, we still filled every place. And ACTiviTies FoR memBeRs, whilsT Also pRomoTing CAnTeen wiThin The loCAl CommuniTy. divi- Contest; seaside Tennis Classic and stan Bendall’s Charity 2008 saw some Program firsts in QLD. Gender Specific sions Also pARTiCipATe in nATionAl FundRAising evenTs, suCh As nATionAl BAndAnnA dAy, Along golf day. Thanks also to the ongoing corporate support of Camps, our first Division Camp in far North QLD and wiTh loCAl FundRAiseRs, inCluding Fun Runs And golF dAys. eraring energy, united mineworkers Federation and The a north Qld members only Camp. All were hugely heRe is A BRieF highlighT FRom eACh oF ouR divisions: good guys. successful with the north Qld programs providing greater Finally, a big thank you to all of the individuals and access for our many regional members who often have to ACT & SOuTherN NSw 2008/09 was once organisations fly hours to attend Camps in South QLD. again another that 2008/09 provided the ACT & southern nsw division with ‘sunday Arvo Chill out’ sessions were also new to important chapter in supported a huge array of specialised member programs, recreation the division, making use of the fantastic new Brisbane the ACT & southern hunter & events, and fundraising opportunities and of course, members room. This relaxed program has a focus on nsw division. we northern national Bandanna day. This certainly kept members, providing the opportunity for members to socialise all look forward to nsw division staff, volunteers and those in the community who support us without the formal structure of a program, but still with an exciting year throughout very, very busy. the subtle support of staff and volunteers. These ‘sessions’ ahead, where we will the year. This member programs for this year’s calendar took into continue to strive to are popular and a non-threatening first program for success would account the needs of CanTeen’s young people and ensured meet the needs of new members in particular. in 2008/09 Qld division not have that they were always at the centre of our planning. with CanTeen’s members membership grew to123. been possible this in mind, we were able to offer a greater variety of and constantly look at without you we would like to thank some individuals for their incredible specialised programs such as our Gender Specific Program how we can do things and we look contribution in 2008/09 and include: Chris and gary for girls, ‘girl power’, over 18 Recreation events and better, therefore forward to wheelan-doyle, who donated $20k for the refurbishment healthy living program, just to name a few. once again, improving services working with of the new members room; southern Cross Transit who CanTeen staff worked enthusiastically throughout the year for young people you again provide all transport to and from Camps free of charge in and were rewarded with living with cancer. in the year the big CanTeen Bus; mcConnell – dowell for a wonderful an increase in member ahead. surprise donation of $50k the Qld division golf day numbers on programs and huNTer & Committee; peter hilan from RACQ; The Tabol of membership, welcoming 71 NOrTherN National Summer Camp, 2009 nolidge; The mustang Club; The Townsville good young people to the ACT NSw guys and of course our fantastic volunteers. & southern nsw division. programs and events had 2008/09 has seen hunter & northern nsw division enjoy SA&NT an exciting fresh energy another year of solid growth. our membership increased with those new to CanTeen by 60 with 117 members attending at least one program. The past year has been a period of innovation and those experienced, The action packed calendar saw h&n division hold eight and growth for the sA&nT division. in true enjoying the benefits of overnight programs, including two combined good grief CanTeen style, the division has maintained a peer support, sharing their and healthy living programs, two new member Camps, crowded program calendar, offering 12 camps, stories and experiences. a good grief Bereaved program, Committee Training and a significant 25 Recreation Days – half of and both winter and spring Camps. Combined with four which were tailored programs such as over 18’s, we would like to thank our new members and regional based activities. national programs, h&n division members were offered generous volunteers who These specific programs were planned in more than 345 program places. offer their time, skills and Peer Suppor collaboration with the key membership groups, t expertise to assist CanTeen It was also a successful year financially with strong support in action enabling the division to reach 118 Active in providing fantastic for national Bandanna day, particularly in regional members. with a strong focus on developing workshops and support, areas, including Armidale, Coffs harbour, Tamworth, port strong referral pathways, delivering high quality and are a valuable part of macquarie, Cessnock, greenhills and gosford. hunter & QueeNSLANd programs and offering meaningful members involvement, ensuring we are able to Northern NSW Division also benefited from the support of the past year has been a great success for our division, 2008/09 was a big year in Qld, and as in all things, run successful programs some amazing individuals and organisations. Just to name with a lot of hard work paying dividend. we experienced some triumphs and some challenges. for our young people. National Summer Camp, 2009 16 – CanTeen Annual Report 2009 CanTeen Annual Report 2009 – 17
  • 10. 1 DIvISION REPORTS diVisiOn OutCOmes CONTINued with so many program highlights and memories to choose A special mention must also go to all of our wonderful TASmANIA needs. victoria from, some exceptional moments include: taking a charter volunteers, who generously donate their time, energy and and Tasmania plane full of members to melbourne for a Crows mystery skills. Thank you!!! The Tasmania division enjoyed another fantastic year divisions Flight adventure of a lifetime; facilitating two very successful defined by Membership growth and strong Member continued to work tailor-made gender specific programs; and lastly, running SydNey & CeNTrAL NSw participation. in partnership our leadership Camp, ‘Canlead’, which included substantial The 2008/09 year was yet again successful for the sydney during 2008/09 our programs offered opportunities for to deliver joint member facilitation and involvement. & Central nsw division. The division had 103 new members 253 members from across the state, with 70 members programs to join and had 100 active members within the division. attending at least one program during the year. we have the membership Over the past six months, significant developments have also welcomed an additional 25 new members, with 92% and increased taken place to improve the services we offer young people The division delivered 10 Recreation days and nine overnight attending at least one program since joining CanTeen. opportunity for living with cancer in the northern Territory (nT). darwin Camps, and participated in three national programs during peer support. Airport committed to funding CanTeen’s first ever NT the year. This included the introduction of new The division delivered a winter ski Camp at Thredbo, 177 members based staff position, lasting for a period of 12 months. The programs and trialing a Category and hosted a shared male Camp and summer Camp with attended at least Programs Officer position will begin in August 2009 with program in the division. All the victorian division in Tasmania. Tasmanian members one program a focus on facilitating Territory based support programs, members attended also had the opportunity to participate in the following within the year, whilst increasing public awareness the one program, programs hosted by the victorian division: good grief with 88 members of CanTeen’s services, and in but were split Retreat; girls Camp; over 18 Camp; and ‘leaders Take attending more than turn, maximising the number into their category Action’ Camp. two programs. The of young people CanTeen groups with each group Tasmanian members also participated in national Camp, overall membership is able to support. participating in recreational Teen link Training, national Committee Training and the attended 406 times without the amazing activities and specific educational Agm and Fundraising dinner. on various programs. support and generosity of sessions to meet their needs. we also worked in conjunction with the ACT eight Recreation days were also enjoyed by our members, overnight programs local businesses and individuals, & Southern NSW Division and held our first which included a variety of activities such as horse riding, included: good grief; National Summer Camp, 2009 we could not continue to offer ever Good Grief Program specifically for four wheel driving, laser games, ten pin bowling and a ‘leaders Take Action’ such a wide range of programs Bereaved members. it was a great success, Christmas party. Five new member dinners and Café Camp; over 18 Camp in Anglesea; winter Camp; gender and services to our members. our with members responding positively to Crawls were also enjoyed by Tas members. Specific Camps for both male and females; Summer Camp largest division based fundraiser, the program. we also continued themed ‘The place to Be’ in northern Tasmania with 95 the City~Bay Fun Run, continued to in July, we also welcomed the new staff position of part to deliver our Gender Specific young people attending; national Camp in wA; Teenlink be a success, raising over $56k from time Recreation Officer to the Division. The introduction programs, healthy living, training in sydney; national Committee training and more than 600 participants. Thank of this position has contributed markedly to our overall winter Camp, summer Fundraising dinner in sydney. you to our major event sponsors, growth and success as a division. Brooks, sAFm, subway, nAB and Camp and new member other popular days are: grand prix experience; new Camps along with all of The past year has also seen increased community support 5 star digital. members days; over 18 events; AFl medallion Club seats our Recreation days. for the Tasmania division, with a greater number of Thanks also to our division sponsors: independent fundraisers, improved national Bandanna to all etihad stadium games (entire season); air shows; ernst & young and orange education it was another successful year for the division in day sales and awareness, and growing volunteer numbers Bowl-A-Rama; and many more exciting activities. for their wonderful on-going support, as regard to fundraising, and our thanks go to The obtained during 2008/09. CanTeen Tasmania would victoria would like to say thanks for all the support from well as national Jet, Corvette Club of sA, good guys, sydney water, and merck, sharp like to thank all the schools, clubs, businesses and every our community, businesses, individuals, clubs, schools and Blackwood golf Club and lions Club of and dohme for their efforts during the year. A big individual who has provided their time and support to volunteers. Also, thank you to daimler Chrysler Fs, who port lincoln for their valuable contributions. thanks to all of the individuals and companies that CanTeen Tasmania – our continued success would not be provided CanTeen members with a charity box AFl special thanks to Australian executor also supported the division during the year; it is possible without all of you. medallion Club membership for a three year period at Trustees for their ongoing much appreciated. we are looking forward to a cost of $150k. A special thank you to Ron and helen generous support. working with all of our members, staff, volunteers vICTOrIA Cuthburt, CanTeen victoria Ambassadors, for another and supporters in the it has been a strong year for growth in membership successful eildon Boat Club auction raising $40k. Meet Anna, 13 upcoming year. and specialist programs in the victoria division. 104 A special thanks to John shore, CanTeen Ambassador, yrs old. Her new members joined the division and enjoyed an action for his generous support of CanTeen at many events. mum has cancer packed calendar of programs to meet our membership 18 – CanTeen Annual Report 2009 CanTeen Annual Report 2009 – 19