This study will examine the barriers that prevent minority elders from participating in research, particularly those studies that involve collection of biomarkers. Minority elders face health disparities but are underrepresented in research. As a consequence, research results are potentially non-generalizable to older, minority adults.

1. Developing New Paradigms
for the Recruitment of
Minority Elders Using CBPR
Gerardo Moreno MD MSHS, Catherine Sarkisian MD, MSHS,
Laura Trejo MPP, Carol Mangione MD, MSPH,
1
Community Engagement Research Program (CERP)/CTSI meeting
October 18, 2012
CHIME/RCMAR  Community Liaison Core  chime.ucla.edu

2. Research Question
• What do minority seniors believe about
collection of biological data?
• What barriers would there be to participating
in this type of research i.e., being interested in
participating/providing informed
consent/returning for follow-up studies?
• How can we increase participation in research
and improve the quality of the experience for
minority seniors?

3. Methods
Partners
LA CAPRA - Laura Trejo (LA City Dept of Aging)
RCMAR/CHIME
Center for Biodemography and Population Health
Review Literature
Qualitative Study
o Semi-structured stakeholder interviews
• Leaders in aging community (n=10), snow-ball sampling
o Focus groups
• English (n=3) and Spanish (n = 3)
• One hour, at senior centers

4. Outcomes
Increase the scientific knowledge of the most
effective protocols for recruiting, enrolling, and
retaining minority seniors into research studies
utilizing biological markers of health
• Community stakeholder engagement
(metric: conduct interviews)
• Community engagement of older minority
adults (metric: conduct focus groups)

5. Outcomes
Disseminate best practices identified
• metric: community conferences, academic
workshops, peer-reviewed reports, and
present in national scientific meetings

6. CERP aims addressed
CERP Aim 3
Strengthen Community infrastructure for
sustainable partnered research
CERP Aim 4
Drive innovation in community engagement
that accelerates the volume and impact of
partnered research in diverse communities

7. Progress to date and timeline
Aug – Sept
2012
Oct – Nov
2012
Dec 2012 Jan 2013 Feb 2013 Mar – Sept
2013
IRB application
Approved
Final qualitative
interview guide
Conduct
stakeholder
interviews
(con’d)
Conduct Focus
(con’d)
Final codebook Submit results
to peer
reviewed
journal
Review
biomarker
protocols at
UCLA & review
literature
Continue
Identifying
leaders in aging
community
Begin analysis of
interview
transcripts
Complete
analysis of
interview
transcripts
Complete
analysis of
group
transcripts
Disseminate
best practices
(regional,
community,
scientific
meetings)
Drafted
interview
guides
Conduct
stakeholder
interviews
Finalize
qualitative focus
group guide
Develop initial
code book for
focus groups
Quantitative
date report
Technical report
Feedback from
LA CAPRA
(presentation)
Draft qualitative
focus group guide
Conduct Focus Transcribe Focus
Groups
Outline plan for
manuscripts
Additional
analysis
Identify key
stakeholders
Begin analysis of
group
transcripts
Distribute
quantitative
data reports
Present at
national RCMAR
meeting

8. Added value from CTSI Funding
CHIME/RCMAR funded
 Community Liaison Core to conduct focus
groups
 Dissemination through RCMAR national
community
CERP CTSI enhancement
 Research assistant
 Key stakeholder interviews
 Strong and meaningful community participation
• Support for community’s time
 National dissemination through CTSI network

9. Next Steps
• Complete key stakeholder interviews
• Plan for focus group discussions
• Dissemination of best practices to community
and academic investigators