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Joyce Lee, MD, MPH
Twitter: @joyclee
Social Media & Academic Medicine:
Dangerous Liaisons?
Ok, that was a
provocative title to
get your attention
The real title of
the talk is:
“10 Reasons why
you should
consider using
social media”
My Disclosure:
I am currently Social Media Editor
for JAMA Pediatrics
But first, what is
social media?
Social Media
Web-based and mobile technologies
used to turn communication into
interactive dialogue between
organizations, communities, and
individuals
Social
Media
What is Twitter?
It’s a microblogging
platform,
a place to have a
conversation
How do you use
Twitter?
First, set up your profile:
Who are you?
What do you care about?
An Unengaging Profile
“Who is this egghead?”
An Engaging Profile
(s/p a social media intervention)
Show people what you care about
and how to learn more about you
To tweet,
hit this button
Tweet
You only have 140 characters
to say something
Tweet
Share something that you think
is interesting
Tweet
Include a link to provide more
comprehensive information
Use a link shortener to save space
Use #hashtags
#Hashtags are used by the community
to label groups and topics
#mhealth = mobile health
Follow individuals on Twitter; and
they can also follow you.
Use mentions to reach out to
specific individuals
Retweet someone else’s tweet
Retweets are like citations
“RT”- A reposting of someone else’s tweet
“MT” – A reposting and modification of
someone else’s tweet
“H/T” – “Hat tip” to recognize the source of
information you found
So now you know
how to use
Social Media,
but why would
a doctor use it?
You don’t feel like tweeting your
morning breakfast
You’re not Miley Cyrus
You have better things to do than
put your math skills on display
Neither are you mother monster
(Lady Gaga)
You don’t make cakes to
resemble the papers that you
publish
You are not a celebrity doctor
Plus, haven’t you heard that
“social media and medicine
is a dangerous mix”?
60% of US medical schools reported incidents of
students posting unprofessional online content
13% reported violations of patient confidentiality
52% reported student use of profanity
48% reported frankly discriminatory language
39% reported depiction of intoxication
28% reported sexually suggestive material
JAMA, 2012
“Professionalism and social
media can be an uneasy mix...”
BMJ, 2012
but there are a few principles
to follow as a physician
on social media
If you have a personal account, separate
it from your professional one
	
  	
  	
  
Dr. Joyce Lee
Associate Professor
by day
Lady Gaga
by night
“Don’t Lie, Don’t Pry

Don’t Cheat, Can’t Delete

Don’t Steal, Don’t Reveal”
Follow the 12-word Social
Media Policy from the Mayo
Clinic
Remember HIPAA!
-Dave Ekrem
http://bit.ly/1349R9M
Don’t talk about patients,
even in general terms
If you wouldn’t say it in an
elevator, don’t say it online
Why should you consider
taking the plunge?
First:
To follow movements and
people that can help inform
your work/research
I follow the Quantified Self Movement
since I am interested in Mobile Technology
Mood Tracker
Heart Rate
Recorder
GPS Logger
Sleep Monitor
Calorie
Counter
Pedometer
I follow the hashtag: #quantifiedself
I followed the Quantified Self Conference
hashtag to learn the highlights: #qs2012
I engage in real-time conversations through
a Tweetchat: #qschat
Wow, quantified self already has a
curated guide of 500+ tracking tools!
Super useful for my research
And I discovered Eli
from Notch.me,
who is teaching me
a ton about user
research,
motivational
visualizations and
email campaigns
Because I follow #dataviz people,
I found this meetup
and stumbled upon d3,
a powerful visualization tool
d3 is what we will be using to create
web-based visual dashboards for our
mobile technology work
Check out this first prototype
There are many more to come!
http://goo.gl/NWjwdw
Google “Healthcare Hashtag Project” to
find hashtags, conferences, tweetchats
of interest to you
Also, consider following some of the
great curators, like Patricia Anderson
who tweets and blogs
Because of her, I found this great
article about #mhealth uses of urine
Which led to my discovery of
“extreme” uses of #mhealth, which I
may not want to replicate
http://goo.gl/glTqJ1
Second:
To crowdsource solutions
to your research problems
and find collaborators
I asked @pfanderson this
question on Twitter
She asked the question on the #hcsm
tweetchat and used Storify to curate
the content so that I could have real-
world examples for my talk
Here is an example of the traditional
way to seek help: Go Local
They kindly responded….
But when I downloaded the app I
wasn’t sure what this meant
So I tried colleagues
on Twitter instead
And they responded in
less than 45 minutes
Because of Twitter, I was able to
connect with Deb Estrin
Which lead to grant submissions, &…
Where I met Margie Morris, PhD,
Clinical Psychologist and Senior Researcher at
Intel, who visited me while in the Bay Area
And then introduced me to Wendy Ju, PhD
Director of the Stanford Design Research Lab,
with whom I am collaborating on design research
and designing innovative mobile interfaces
Attending the invite-only Computing
Community Consortium Meeting (NIH/NSF)
Third:
To provide you with
information to help with your
traditional research endeavors
We could not have written this
paper with Pubmed alone
the cycle of publishing is too slow to
have relevant real-time information
compared with
With
I follow @MobiHealthNews on Twitter,
whose site gave us the relevant
information we needed
Fourth:
To provide you with tools to
help with your traditional
research endeavors
11:23 AM
11:41 AM
11:49 AM
12:07 PM
With social media, the task
took less than 1 hour!
(It would have been
30 hours to do by hand)
Is an amazing and generous
community of individuals
always willing to help
As you can see,
Fifth:
To translate your research
Check out this blog post:
http://goo.gl/STmMDQ
“Research (by two blogging economists at the
World Bank) suggests that academic papers
cited by bloggers are far more likely to be
downloaded. Blogging economists are
regarded more highly than non-bloggers with
the same publishing record.”
An increasing number of scholars
are on Twitter, leading to…
Guidance on
And guidance on how to
cite a Tweet
Sixth:
Unexpected Networking
I met @DCDelMonte virtually
through @DoctorNatasha,
who I know virtually
And you can even meet
people in your own institution!
Shortly after following our Chief
Information Officer
@sgschade on Twitter
She followed me
I was invited
to speak at a
Design
Conference
(an MD at a
design
conference?)
•  Media Interviews
•  Workshop Presentations
•  Lecture Invitations
•  Committee Invitations
•  Grant Opportunities
•  Dissemination
Vineet Arora talks about
“Twitter to Tenure: 7 ways social media
advances my career”
@FutureDocs
@aaronecarroll is often cited by
Paul Krugman
Seventh:
To create new
opportunities for education
and engagement
The editor in chief is
now tweeting
The monthly clinical case
challenge
Is now on Twitter
And creates a conversation
There are Journal Clubs
happening exclusively on Twitter,
like @iurojc who call themselves
the Uro-Twitterati
Eighth:
To be part of a larger dynamic
and real-time conversation that
can lead to new ways of
approaching clinical care and
research
I witnessed the most amazing
example of use of mobile
technology and social media
by following @HugoOC,
a heroic patient advocate
http://goo.gl/PPNpYq
Ninth:
Your Patients
To share insights with your
patients before they arrive to
clinic, so that you can start the
conversation in a different place…
Check out @SeattleMamaDoc and
@DoctorNatasha
To learn from your patients
I learn so much about diabetes from the
Diabetes Online Community (DOC)
myglu.org
Glucose Sensor + Flovent = Rash-free?
iSeismometer iPhone app + CGM
on nightstand = effective alarm
To understand the needs of the patient
community & connect patients with
online peer support
“The diabetes online community may
serve many communication purposes,
but at the core, it’s built for connecting
people to people…Social media has
saved lives in the diabetes community.
It has helped people who are struggling
with their diabetes to take control and
improve their health”
-Kerri Sparling
We will fail in our mission to perform
important and relevant research and to
improve clinical care, if we do not:
Tenth, finally,
a personal story
My kids have multiple severe
food allergies, with reactions
leading to anaphylaxis and trips
to the ER
See the allergy action plan that
we were given, in serious need of
a design makeover
How was I going to communicate this
to the teacher in a face to face
encounter lasting <30 sec?
Riskbites.org
@science2020
Inspired by other social media
teaching tools, my son B and I put
together allergy videos to teach
his caregivers
The first week of
school his teacher
broadcast it during
announcements to the
entire school of 700+
students & 40 teachers
Design Workshop
Then @dennisjboyle of IDEO
showed it to 60+ Health Tech
Entreprenuers/Clinicians/
Researchers at the
Then @SeattleMamaDoc posted a blog
about it and tweeted it to her 10,000+
Twitter Followers
And then
@SusannahFox wrote
a blog post about it
and tweeted it to her
10,000+ Twitter
Followers
Now that’s the power of social media:
The lessons of a 6 year old boy
propagating through the
twitterverse
I now write the URL for B’s blog on
all the school forms
http://ihavefoodallergies.tumblr.com
Social Media is not going away
Questions?
@joyclee
http://www.doctorasdesigner.com
Thanks to: Hyoung O. Lee, MD, Heeja Lee, E, B, & S,
Valerie Castle, MD, Sarah Clark, MPH, Matthew Davis, MD,
MAPP, Gary Freed, MD, MPH, James Gurney, PhD, William
Herman, MD, MPH, Ram Menon, MD, Paul Wise, MD, MPH,
Patricia Anderson & the DOC
NIDDK K08DK082386

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