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The world of equal opportunities – for every child!



     Innovative approaches to working with children with disabilities and their families:
                        Kyrgyzstan and international experience.

                               Focus – children with intellectual disabilities.

                                   Bishkek, Kyrgyz Republic, 1-3 March 2011



Tuesday, 1 March
09.00-09.45        Registration.

10.00-11.00        OPENING SESSION
                   Chair: Marina Sokolova, Handicap International Russia
                           Roza Otunbaeva, President of the Kyrgyz Republic
                           Aigul Ryskulova, Minister of Social Protection
                           Valerie Amato, HealthProm CEO
                           Kumar Bekbolotov, Soros Foundation – Kyrgyzstan executive director
                           Dr. Kurt Vagner, GIZ (German Society for International Cooperation) regional director
                           Violeta Dimoska, PORAKA general secretary

                   Children with disabilities. Personal view.
                   Aigerim Bohobekova, young member of ARDI, Kyrgyzstan

11.00-11.45        PLENARY SESSION 1
                   Current situation with child disability issues in Kyrgyzstan, government policies and
                   systems
                   Chair: Marina Sokolova, Handicap International Russia
                   Protecting rights of disabled people - Kyrgyz legislation
                           Dastan Bekeshev, Member of KG Parliament
                   Education and child disability in Kyrgyzstan
                          Saltanat Mambetova, Ministry of Education and Science, KG
                   Social protection of children with disabilities and their families in KG
                           Aigul Ryskulova, Minister of Social Protection, KG
                   Q&A
11.45-13.00        PLENARY SESSION 2
                   Current situation with child disability issues in Kyrgyzstan and Central Asia, research
                   and practice
                   Chair: Gulnara Derbisheva, Institute for Social Politics, Kyrgyzstan

                   Working in partnership to improve health and well-being of vulnerable children and
                   women in Central Asia
                         Tanya Buynovskaya, HealthProm, UK
                   Early development of children with disabilities in day care centre and at home,
                   experience of ARDI and Shoola Kol Day Centres in Bishkek and in Bokonbaevo
                           Tamara Balkibekova, ARDI, Bishkek, Kyrgyzstan
                           Antonina Lee, Shoola Kol, Bokonbaevo, Kyrgyzstan


                   Access to basic services for children with intellectual disabilities in Kyrgyzstan
                         Edward Winter, Eurasia Foundation Central Asia

                   Overview of education policy towards children with special needs.
                          Valentin Deichman, Soros Foundation Kyrgyzstan
                   Children with disabilities in Kyrgyz closed institutions
                          Youth Advocacy Group, Kyrgyzstan

                                                                                                                   1
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Q&A

13.00-14.00       LUNCH

14.00-15.30       PLENARY SESSION 3
                  Good practices in countries
                  Chair: Jonathan Watkins, HealthProm, UK
                  Role of the NGO sector in supporting families of children with disabilities
                          Dr Vasilka Dimoska, PORAKA, Macedonia
                  Implementation of early intervention programmes in post-Soviet countries -
                  methodology and practice
                        Ineta Kursietе, Latvian Portage Association, Latvia
                  Kazakhstan model of providing complex services of children with intellectual
                  disabilities
                           Maira Suleeva, “Kenes”, Kazkhstan
                  The introduction of family-centred model of early intervention in the state system of
                  support for disabled children in Russia and the CIS: the activities of Downside Up,
                  Russia
                          Natalia Rigina, Downside Up, Moscow, Russia

                  Listening to what parents want and need. Tajikistan Experience
                          Rachel Tainsh, HealthProm, Tajikistan-UK

                  Q&A
15.30-16.00       Coffee break

16.00-17.30       SMALL GROUP SESSION 1

                  Section 1. Inclusive Education (in the conference hall)
                         Kyle Zimmerly, Crosslink International, Kyrgyzstan
                         Galina Bosikova, Yrayim boarding school, Kyrgyzstan
                         Iva Boneva, Centre for Inclusive Education, Bulgaria
                         Cholpon Eralieva, Special needs school No 30, Bishkek, Kyrgyzstan

                  Section 2. Role of NGOs in supporting families (in the conference hall)
                         Dr Vasilka Dimoska, PORAKA, Macedonia
                         Ineta Kursiete, Latvian Portage Association, Latvia
                         Anara Ismailova, ICCO, Kyrgyzstan
                                                                              nd
                  Section 3. Focus on Intellectual Disabilities (yellow room, 2 floor)
                         Lola Nasredinova, Kishti day centre, Tajikistan
                         Natalia Rigina, Downside Up, Russia
                         Kanat Mambetaliev, Special Olympic, Kyrgyzstan

                  Section 4. Community based services and support to families of children with
                                             nd
                  disabilities (blue room, 2 floor)
                           Irina Oganesyan, Armenia
                           Vlado Krstovski, PORAKA, Macedonia
                           Chynara Bakova

17.30- 18.00      SMALL GROUP FEEDBACK




                                                                                                          2
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Wednesday, 2 March
09.00-10.30       PLENARY SESSION 4
                  Supporting families
                  Chair: Dr.Vasilka Dimoska, PORAKA, Macedonia

                  Child disability and social exclusion in CIS countries- mechanisms and instruments for
                  change.
                          Alfredas Zabieta, GIZ, Germany
                  Small Steps Forward. From first diagnosis to writing a book: one parent’s experience
                  of helping children with special needs.
                          Sarah Newman, Author, UK
                  Network as an instrument of protecting rights and interests of children with disabilities
                  and their families.
                         Yuri Kats, Inter-regional association "Dostoinstvo i Pravo", Russia
                  The organization of psycho-pedagogical and medico-social support for persons with
                  severe and multiple disabilities in Pskov.
                         Andrey Tsaryov, Centre for Curative Pedagogics, Russia
                  Integrated approaches to resolving disability issues. Handicap Int'l experience in
                  providing support to persons with intellectual and multiple disabilities in Russia.
                          Marina Sokolova, Handicap International
                  Q&A

10.30-10.45       Coffee break

10.45-12.00       SMALL GROUP SESSION 2

                  Section 1. De-institutionalisation of children with disabilities and creating alternative
                  community based services. (in the conference hall)
                         Nasiba Inoyatova, Kishti Centre, Tajikistan
                         Miryana Tsvetanova, De Passerel, Bulgaria
                         Elisabeth Harden, STLI, Kyrgyzstan

                  Section 2. Advocacy, lobbying and awareness building work. (in the conference hall)
                         Ashot Mkrtchyan, “Skarp rehabilitation centre”, Armenia
                         Rakhat Shakirova, Blagodat, Kyrgyzstan
                         Amanda Merritt, STLI, Kyrgyzstan

                  Section 3. Developing effective networks to protect the rights of children with
                                                 nd
                  disabilities. (yellow room, 2 floor)
                           Juri Kats, “Dostoinstvo i Pravo”, Russia
                           PORAKA, Macedonia
                           People with disabilities protection network, Kyrgyzstan

                  Section 4. Day centre for children with disabilities as a mechanism to provide better
                                                    nd
                  support to families. (blue room, 2 floor)
                         Cecile Roland, Handicap International, Tajikistan
                         Kamka Zhasanova, Association of disabled children of Astana, Kazakhstan
                         Igor Shelike, Umut-Nadezhda, Kyrgyzstan
                         Zhyldyz Turdugulova, Nur Bala, Beknuru, Tenir Koldo, Kyrgyzstan

12.00- 13.00      LUNCH

13.00-15.30       SMALL GROUP SESSION 3
                  Master classes and practical presentations

                  13.00 – 14.20                               14.30 – 15.30
                  International experiences                   Kyrgyzstan experience




                                                                                                              3
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Section 1. (in the conference hall)        Section 1/2. (in the conference hall)
                  Strategies for helping your child's        Art Therapy for users of psychiatric services
                  development in the home.                   and their carers
                          Sarah Newman, SCARF, UK                   Aigul Kyzalakova, Kyrgyzstan

                  Section 2. (in the conference hall)        Section 2/2. (in the conference hall)
                  Prevention of childhood                    Individual approach and using BoardMaker
                  disability and social orphans: the         Plus in development of children with
                  contribution of non-governmental           (icl.intellectual) disabilities
                  sector in an interdisciplinary approach             Saltanat Torobekova, ARDI, Kyrgyzstan
                  to providing health and social services.
                          Natalia Rigina, Downside Up,
                          Russia
                                               nd                                          nd
                  Section 3. (yellow room, 2 floor)          Section 3/2. (yellow room, 2 floor)
                  The method of forward and backward         Computer technology for teaching children
                  chain for teaching children with           with disabilities.
                  intellectual disabilities how to self-             Larisa Kuznetsova, Smail.kg,
                  service and communication                          Kyrgyzstan
                  system through images exchange.
                           Lola Nasretdinova, Kishti,
                           Tajikistan
                                          nd                                          nd
                  Section 4. (blue room, 2 floor)            Section 4/2. (blue room, 2 floor)
                  The organization of psycho-                Model of Integrated multidisciplinary
                  pedagogical and medico-social              approach to children with mental and
                  support for persons with severe and        learning disabilities in KG
                  multiple disabilities in Pskov.                    Tamara Topilskaya, Psycho technology
                          Andrey Tsaryov, Centre for                 centre, Bishkek
                          Curative Pedagogics, Russia

15.30-16.00       Coffee-break

16.00-17.00       SMALL GROUP SESSION 4
                  Master Classes and presentations.

                  Section 1. (in the conference hall)
                  The effect of infant massage for neurological and intellectual development of babies.
                          Cornelia Hewitt, Project on disabled children in KR, Switzerland

                  Section 2. (in the conference hall)
                  New media in promoting NGOs. How to open own blog.
                         Bektour Iskender, Kloop.kg, and Door media, Kyrgyzstan
                                               nd
                  Section 3. (yellow room, 2 floor)
                  1) Sensory Room, 2) Issyk-Kul – the shore of hope
                         1) Gulnara Amakulova, Bishkek City Rehabilitation Centre, Kyrgyzstan
                         2) Olga Djabrailova, Obereg rehabilitation centre, Kyrgyzstan
                                           nd
                  Section 4. (blue room, 2 floor)
                  Income generating activities and sustainability
                         Eurasia Foundation CA, Kyrgyzstan
                         Suren Magakyan, PAROS, Armenia
                         Larisa Kuznetsova, Smail.kg, Kyrgyzstan (Social taxi)

17.00-18.00       SMALL GROUP FEEDBACK
                  Suggesting topics for discussion for next day small group sessions.




                                                                                                              4
www.kelechek.kg
Thursday, 3 March
09.00-10.00         PLENARY SESSION 5
                    Children with disabilities' issues: moving forward
                    Chair: Marina Sokolova, Handicap International

                    Business and NGOs. Ways of cooperation.
                          Kubanychbek Sheyitov, Rotary Club President
                          Bermet Omurkanova, Rotary Club manager

                    UN convention on the rights of persons with disabilities. Why is it needed for KR?
                          Tolkunbek Isakov, local council MP, "Providing legal help to persons with disabilities"
                          NGO
                    Legal mechanisms of protecting children with disabilities and their families.
                           Seinep Dyikanbaeva, ARDI, Kyrgyzstan

                    Supporting children with intellectual disabilities through empowering parent-led NGOs
                    in Talas oblast.
                            Azat Israilov, HealthProm Kyrgyzstan

                    Joint working and parent support (establishing support mechanisms).
                           Amanda Merritt, STLI, Kyrgyzstan
                    Forming Network of parent-led organizations in Kyrgyzstan
                          Tamara Zhumabekova, ARDI


                    Q&A
10.00-11.00         SMALL GROUP SESSION 5
                    Small Group Discussions
                    Section 1. (in the conference hall)
                           (Topic to be defined at the end of the second day)

                    Section 2. (in the conference hall)
                           (Topic to be defined at the end of the second day)
                                               nd
                    Section 3. (yellow room, 2 floor)
                           (Topic to be defined at the end of the second day)
                                             nd
                    Section 4. (blue room, 2 floor)
                    Recommendations by the previous conferences: mechanisms of control and
                    implementation.
                           EFCA, Persons with disabilities protection network, Soros Foundation - Kyrgyzstan
11.00- 11.30        Coffee break

11.30-12.30         PRESENTATIONS OF RECOMMENDATIONS/ DISCUSSIONS FEEDBACK
                    RECOMMENDATIONS

12.30-13.00         SUMMING UP
                    Chair – Marina Sokolova, Handicap International


13.00-13.20         CLOSING CEREMONY
                          HealthProm
                          Soros Foundation – Kyrgyzstan
                          The Ministry of Social Protection
                          Government Agencies and NGOs

                    Concert by ARDI, Shoola Kol and “Umut-Nadezhda” children

                    GENERAL PHOTO

14.00               Lunch



                                                                                                                    5
www.kelechek.kg

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The programme of the international conference on child disability issues

  • 1. The world of equal opportunities – for every child! Innovative approaches to working with children with disabilities and their families: Kyrgyzstan and international experience. Focus – children with intellectual disabilities. Bishkek, Kyrgyz Republic, 1-3 March 2011 Tuesday, 1 March 09.00-09.45 Registration. 10.00-11.00 OPENING SESSION Chair: Marina Sokolova, Handicap International Russia Roza Otunbaeva, President of the Kyrgyz Republic Aigul Ryskulova, Minister of Social Protection Valerie Amato, HealthProm CEO Kumar Bekbolotov, Soros Foundation – Kyrgyzstan executive director Dr. Kurt Vagner, GIZ (German Society for International Cooperation) regional director Violeta Dimoska, PORAKA general secretary Children with disabilities. Personal view. Aigerim Bohobekova, young member of ARDI, Kyrgyzstan 11.00-11.45 PLENARY SESSION 1 Current situation with child disability issues in Kyrgyzstan, government policies and systems Chair: Marina Sokolova, Handicap International Russia Protecting rights of disabled people - Kyrgyz legislation Dastan Bekeshev, Member of KG Parliament Education and child disability in Kyrgyzstan Saltanat Mambetova, Ministry of Education and Science, KG Social protection of children with disabilities and their families in KG Aigul Ryskulova, Minister of Social Protection, KG Q&A 11.45-13.00 PLENARY SESSION 2 Current situation with child disability issues in Kyrgyzstan and Central Asia, research and practice Chair: Gulnara Derbisheva, Institute for Social Politics, Kyrgyzstan Working in partnership to improve health and well-being of vulnerable children and women in Central Asia Tanya Buynovskaya, HealthProm, UK Early development of children with disabilities in day care centre and at home, experience of ARDI and Shoola Kol Day Centres in Bishkek and in Bokonbaevo Tamara Balkibekova, ARDI, Bishkek, Kyrgyzstan Antonina Lee, Shoola Kol, Bokonbaevo, Kyrgyzstan Access to basic services for children with intellectual disabilities in Kyrgyzstan Edward Winter, Eurasia Foundation Central Asia Overview of education policy towards children with special needs. Valentin Deichman, Soros Foundation Kyrgyzstan Children with disabilities in Kyrgyz closed institutions Youth Advocacy Group, Kyrgyzstan 1 www.kelechek.kg
  • 2. Q&A 13.00-14.00 LUNCH 14.00-15.30 PLENARY SESSION 3 Good practices in countries Chair: Jonathan Watkins, HealthProm, UK Role of the NGO sector in supporting families of children with disabilities Dr Vasilka Dimoska, PORAKA, Macedonia Implementation of early intervention programmes in post-Soviet countries - methodology and practice Ineta Kursietе, Latvian Portage Association, Latvia Kazakhstan model of providing complex services of children with intellectual disabilities Maira Suleeva, “Kenes”, Kazkhstan The introduction of family-centred model of early intervention in the state system of support for disabled children in Russia and the CIS: the activities of Downside Up, Russia Natalia Rigina, Downside Up, Moscow, Russia Listening to what parents want and need. Tajikistan Experience Rachel Tainsh, HealthProm, Tajikistan-UK Q&A 15.30-16.00 Coffee break 16.00-17.30 SMALL GROUP SESSION 1 Section 1. Inclusive Education (in the conference hall) Kyle Zimmerly, Crosslink International, Kyrgyzstan Galina Bosikova, Yrayim boarding school, Kyrgyzstan Iva Boneva, Centre for Inclusive Education, Bulgaria Cholpon Eralieva, Special needs school No 30, Bishkek, Kyrgyzstan Section 2. Role of NGOs in supporting families (in the conference hall) Dr Vasilka Dimoska, PORAKA, Macedonia Ineta Kursiete, Latvian Portage Association, Latvia Anara Ismailova, ICCO, Kyrgyzstan nd Section 3. Focus on Intellectual Disabilities (yellow room, 2 floor) Lola Nasredinova, Kishti day centre, Tajikistan Natalia Rigina, Downside Up, Russia Kanat Mambetaliev, Special Olympic, Kyrgyzstan Section 4. Community based services and support to families of children with nd disabilities (blue room, 2 floor) Irina Oganesyan, Armenia Vlado Krstovski, PORAKA, Macedonia Chynara Bakova 17.30- 18.00 SMALL GROUP FEEDBACK 2 www.kelechek.kg
  • 3. Wednesday, 2 March 09.00-10.30 PLENARY SESSION 4 Supporting families Chair: Dr.Vasilka Dimoska, PORAKA, Macedonia Child disability and social exclusion in CIS countries- mechanisms and instruments for change. Alfredas Zabieta, GIZ, Germany Small Steps Forward. From first diagnosis to writing a book: one parent’s experience of helping children with special needs. Sarah Newman, Author, UK Network as an instrument of protecting rights and interests of children with disabilities and their families. Yuri Kats, Inter-regional association "Dostoinstvo i Pravo", Russia The organization of psycho-pedagogical and medico-social support for persons with severe and multiple disabilities in Pskov. Andrey Tsaryov, Centre for Curative Pedagogics, Russia Integrated approaches to resolving disability issues. Handicap Int'l experience in providing support to persons with intellectual and multiple disabilities in Russia. Marina Sokolova, Handicap International Q&A 10.30-10.45 Coffee break 10.45-12.00 SMALL GROUP SESSION 2 Section 1. De-institutionalisation of children with disabilities and creating alternative community based services. (in the conference hall) Nasiba Inoyatova, Kishti Centre, Tajikistan Miryana Tsvetanova, De Passerel, Bulgaria Elisabeth Harden, STLI, Kyrgyzstan Section 2. Advocacy, lobbying and awareness building work. (in the conference hall) Ashot Mkrtchyan, “Skarp rehabilitation centre”, Armenia Rakhat Shakirova, Blagodat, Kyrgyzstan Amanda Merritt, STLI, Kyrgyzstan Section 3. Developing effective networks to protect the rights of children with nd disabilities. (yellow room, 2 floor) Juri Kats, “Dostoinstvo i Pravo”, Russia PORAKA, Macedonia People with disabilities protection network, Kyrgyzstan Section 4. Day centre for children with disabilities as a mechanism to provide better nd support to families. (blue room, 2 floor) Cecile Roland, Handicap International, Tajikistan Kamka Zhasanova, Association of disabled children of Astana, Kazakhstan Igor Shelike, Umut-Nadezhda, Kyrgyzstan Zhyldyz Turdugulova, Nur Bala, Beknuru, Tenir Koldo, Kyrgyzstan 12.00- 13.00 LUNCH 13.00-15.30 SMALL GROUP SESSION 3 Master classes and practical presentations 13.00 – 14.20 14.30 – 15.30 International experiences Kyrgyzstan experience 3 www.kelechek.kg
  • 4. Section 1. (in the conference hall) Section 1/2. (in the conference hall) Strategies for helping your child's Art Therapy for users of psychiatric services development in the home. and their carers Sarah Newman, SCARF, UK Aigul Kyzalakova, Kyrgyzstan Section 2. (in the conference hall) Section 2/2. (in the conference hall) Prevention of childhood Individual approach and using BoardMaker disability and social orphans: the Plus in development of children with contribution of non-governmental (icl.intellectual) disabilities sector in an interdisciplinary approach Saltanat Torobekova, ARDI, Kyrgyzstan to providing health and social services. Natalia Rigina, Downside Up, Russia nd nd Section 3. (yellow room, 2 floor) Section 3/2. (yellow room, 2 floor) The method of forward and backward Computer technology for teaching children chain for teaching children with with disabilities. intellectual disabilities how to self- Larisa Kuznetsova, Smail.kg, service and communication Kyrgyzstan system through images exchange. Lola Nasretdinova, Kishti, Tajikistan nd nd Section 4. (blue room, 2 floor) Section 4/2. (blue room, 2 floor) The organization of psycho- Model of Integrated multidisciplinary pedagogical and medico-social approach to children with mental and support for persons with severe and learning disabilities in KG multiple disabilities in Pskov. Tamara Topilskaya, Psycho technology Andrey Tsaryov, Centre for centre, Bishkek Curative Pedagogics, Russia 15.30-16.00 Coffee-break 16.00-17.00 SMALL GROUP SESSION 4 Master Classes and presentations. Section 1. (in the conference hall) The effect of infant massage for neurological and intellectual development of babies. Cornelia Hewitt, Project on disabled children in KR, Switzerland Section 2. (in the conference hall) New media in promoting NGOs. How to open own blog. Bektour Iskender, Kloop.kg, and Door media, Kyrgyzstan nd Section 3. (yellow room, 2 floor) 1) Sensory Room, 2) Issyk-Kul – the shore of hope 1) Gulnara Amakulova, Bishkek City Rehabilitation Centre, Kyrgyzstan 2) Olga Djabrailova, Obereg rehabilitation centre, Kyrgyzstan nd Section 4. (blue room, 2 floor) Income generating activities and sustainability Eurasia Foundation CA, Kyrgyzstan Suren Magakyan, PAROS, Armenia Larisa Kuznetsova, Smail.kg, Kyrgyzstan (Social taxi) 17.00-18.00 SMALL GROUP FEEDBACK Suggesting topics for discussion for next day small group sessions. 4 www.kelechek.kg
  • 5. Thursday, 3 March 09.00-10.00 PLENARY SESSION 5 Children with disabilities' issues: moving forward Chair: Marina Sokolova, Handicap International Business and NGOs. Ways of cooperation. Kubanychbek Sheyitov, Rotary Club President Bermet Omurkanova, Rotary Club manager UN convention on the rights of persons with disabilities. Why is it needed for KR? Tolkunbek Isakov, local council MP, "Providing legal help to persons with disabilities" NGO Legal mechanisms of protecting children with disabilities and their families. Seinep Dyikanbaeva, ARDI, Kyrgyzstan Supporting children with intellectual disabilities through empowering parent-led NGOs in Talas oblast. Azat Israilov, HealthProm Kyrgyzstan Joint working and parent support (establishing support mechanisms). Amanda Merritt, STLI, Kyrgyzstan Forming Network of parent-led organizations in Kyrgyzstan Tamara Zhumabekova, ARDI Q&A 10.00-11.00 SMALL GROUP SESSION 5 Small Group Discussions Section 1. (in the conference hall) (Topic to be defined at the end of the second day) Section 2. (in the conference hall) (Topic to be defined at the end of the second day) nd Section 3. (yellow room, 2 floor) (Topic to be defined at the end of the second day) nd Section 4. (blue room, 2 floor) Recommendations by the previous conferences: mechanisms of control and implementation. EFCA, Persons with disabilities protection network, Soros Foundation - Kyrgyzstan 11.00- 11.30 Coffee break 11.30-12.30 PRESENTATIONS OF RECOMMENDATIONS/ DISCUSSIONS FEEDBACK RECOMMENDATIONS 12.30-13.00 SUMMING UP Chair – Marina Sokolova, Handicap International 13.00-13.20 CLOSING CEREMONY HealthProm Soros Foundation – Kyrgyzstan The Ministry of Social Protection Government Agencies and NGOs Concert by ARDI, Shoola Kol and “Umut-Nadezhda” children GENERAL PHOTO 14.00 Lunch 5 www.kelechek.kg