The programme of the international conference on child disability issues
1. The world of equal opportunities – for every child!
Innovative approaches to working with children with disabilities and their families:
Kyrgyzstan and international experience.
Focus – children with intellectual disabilities.
Bishkek, Kyrgyz Republic, 1-3 March 2011
Tuesday, 1 March
09.00-09.45 Registration.
10.00-11.00 OPENING SESSION
Chair: Marina Sokolova, Handicap International Russia
Roza Otunbaeva, President of the Kyrgyz Republic
Aigul Ryskulova, Minister of Social Protection
Valerie Amato, HealthProm CEO
Kumar Bekbolotov, Soros Foundation – Kyrgyzstan executive director
Dr. Kurt Vagner, GIZ (German Society for International Cooperation) regional director
Violeta Dimoska, PORAKA general secretary
Children with disabilities. Personal view.
Aigerim Bohobekova, young member of ARDI, Kyrgyzstan
11.00-11.45 PLENARY SESSION 1
Current situation with child disability issues in Kyrgyzstan, government policies and
systems
Chair: Marina Sokolova, Handicap International Russia
Protecting rights of disabled people - Kyrgyz legislation
Dastan Bekeshev, Member of KG Parliament
Education and child disability in Kyrgyzstan
Saltanat Mambetova, Ministry of Education and Science, KG
Social protection of children with disabilities and their families in KG
Aigul Ryskulova, Minister of Social Protection, KG
Q&A
11.45-13.00 PLENARY SESSION 2
Current situation with child disability issues in Kyrgyzstan and Central Asia, research
and practice
Chair: Gulnara Derbisheva, Institute for Social Politics, Kyrgyzstan
Working in partnership to improve health and well-being of vulnerable children and
women in Central Asia
Tanya Buynovskaya, HealthProm, UK
Early development of children with disabilities in day care centre and at home,
experience of ARDI and Shoola Kol Day Centres in Bishkek and in Bokonbaevo
Tamara Balkibekova, ARDI, Bishkek, Kyrgyzstan
Antonina Lee, Shoola Kol, Bokonbaevo, Kyrgyzstan
Access to basic services for children with intellectual disabilities in Kyrgyzstan
Edward Winter, Eurasia Foundation Central Asia
Overview of education policy towards children with special needs.
Valentin Deichman, Soros Foundation Kyrgyzstan
Children with disabilities in Kyrgyz closed institutions
Youth Advocacy Group, Kyrgyzstan
1
www.kelechek.kg
2. Q&A
13.00-14.00 LUNCH
14.00-15.30 PLENARY SESSION 3
Good practices in countries
Chair: Jonathan Watkins, HealthProm, UK
Role of the NGO sector in supporting families of children with disabilities
Dr Vasilka Dimoska, PORAKA, Macedonia
Implementation of early intervention programmes in post-Soviet countries -
methodology and practice
Ineta Kursietе, Latvian Portage Association, Latvia
Kazakhstan model of providing complex services of children with intellectual
disabilities
Maira Suleeva, “Kenes”, Kazkhstan
The introduction of family-centred model of early intervention in the state system of
support for disabled children in Russia and the CIS: the activities of Downside Up,
Russia
Natalia Rigina, Downside Up, Moscow, Russia
Listening to what parents want and need. Tajikistan Experience
Rachel Tainsh, HealthProm, Tajikistan-UK
Q&A
15.30-16.00 Coffee break
16.00-17.30 SMALL GROUP SESSION 1
Section 1. Inclusive Education (in the conference hall)
Kyle Zimmerly, Crosslink International, Kyrgyzstan
Galina Bosikova, Yrayim boarding school, Kyrgyzstan
Iva Boneva, Centre for Inclusive Education, Bulgaria
Cholpon Eralieva, Special needs school No 30, Bishkek, Kyrgyzstan
Section 2. Role of NGOs in supporting families (in the conference hall)
Dr Vasilka Dimoska, PORAKA, Macedonia
Ineta Kursiete, Latvian Portage Association, Latvia
Anara Ismailova, ICCO, Kyrgyzstan
nd
Section 3. Focus on Intellectual Disabilities (yellow room, 2 floor)
Lola Nasredinova, Kishti day centre, Tajikistan
Natalia Rigina, Downside Up, Russia
Kanat Mambetaliev, Special Olympic, Kyrgyzstan
Section 4. Community based services and support to families of children with
nd
disabilities (blue room, 2 floor)
Irina Oganesyan, Armenia
Vlado Krstovski, PORAKA, Macedonia
Chynara Bakova
17.30- 18.00 SMALL GROUP FEEDBACK
2
www.kelechek.kg
3. Wednesday, 2 March
09.00-10.30 PLENARY SESSION 4
Supporting families
Chair: Dr.Vasilka Dimoska, PORAKA, Macedonia
Child disability and social exclusion in CIS countries- mechanisms and instruments for
change.
Alfredas Zabieta, GIZ, Germany
Small Steps Forward. From first diagnosis to writing a book: one parent’s experience
of helping children with special needs.
Sarah Newman, Author, UK
Network as an instrument of protecting rights and interests of children with disabilities
and their families.
Yuri Kats, Inter-regional association "Dostoinstvo i Pravo", Russia
The organization of psycho-pedagogical and medico-social support for persons with
severe and multiple disabilities in Pskov.
Andrey Tsaryov, Centre for Curative Pedagogics, Russia
Integrated approaches to resolving disability issues. Handicap Int'l experience in
providing support to persons with intellectual and multiple disabilities in Russia.
Marina Sokolova, Handicap International
Q&A
10.30-10.45 Coffee break
10.45-12.00 SMALL GROUP SESSION 2
Section 1. De-institutionalisation of children with disabilities and creating alternative
community based services. (in the conference hall)
Nasiba Inoyatova, Kishti Centre, Tajikistan
Miryana Tsvetanova, De Passerel, Bulgaria
Elisabeth Harden, STLI, Kyrgyzstan
Section 2. Advocacy, lobbying and awareness building work. (in the conference hall)
Ashot Mkrtchyan, “Skarp rehabilitation centre”, Armenia
Rakhat Shakirova, Blagodat, Kyrgyzstan
Amanda Merritt, STLI, Kyrgyzstan
Section 3. Developing effective networks to protect the rights of children with
nd
disabilities. (yellow room, 2 floor)
Juri Kats, “Dostoinstvo i Pravo”, Russia
PORAKA, Macedonia
People with disabilities protection network, Kyrgyzstan
Section 4. Day centre for children with disabilities as a mechanism to provide better
nd
support to families. (blue room, 2 floor)
Cecile Roland, Handicap International, Tajikistan
Kamka Zhasanova, Association of disabled children of Astana, Kazakhstan
Igor Shelike, Umut-Nadezhda, Kyrgyzstan
Zhyldyz Turdugulova, Nur Bala, Beknuru, Tenir Koldo, Kyrgyzstan
12.00- 13.00 LUNCH
13.00-15.30 SMALL GROUP SESSION 3
Master classes and practical presentations
13.00 – 14.20 14.30 – 15.30
International experiences Kyrgyzstan experience
3
www.kelechek.kg
4. Section 1. (in the conference hall) Section 1/2. (in the conference hall)
Strategies for helping your child's Art Therapy for users of psychiatric services
development in the home. and their carers
Sarah Newman, SCARF, UK Aigul Kyzalakova, Kyrgyzstan
Section 2. (in the conference hall) Section 2/2. (in the conference hall)
Prevention of childhood Individual approach and using BoardMaker
disability and social orphans: the Plus in development of children with
contribution of non-governmental (icl.intellectual) disabilities
sector in an interdisciplinary approach Saltanat Torobekova, ARDI, Kyrgyzstan
to providing health and social services.
Natalia Rigina, Downside Up,
Russia
nd nd
Section 3. (yellow room, 2 floor) Section 3/2. (yellow room, 2 floor)
The method of forward and backward Computer technology for teaching children
chain for teaching children with with disabilities.
intellectual disabilities how to self- Larisa Kuznetsova, Smail.kg,
service and communication Kyrgyzstan
system through images exchange.
Lola Nasretdinova, Kishti,
Tajikistan
nd nd
Section 4. (blue room, 2 floor) Section 4/2. (blue room, 2 floor)
The organization of psycho- Model of Integrated multidisciplinary
pedagogical and medico-social approach to children with mental and
support for persons with severe and learning disabilities in KG
multiple disabilities in Pskov. Tamara Topilskaya, Psycho technology
Andrey Tsaryov, Centre for centre, Bishkek
Curative Pedagogics, Russia
15.30-16.00 Coffee-break
16.00-17.00 SMALL GROUP SESSION 4
Master Classes and presentations.
Section 1. (in the conference hall)
The effect of infant massage for neurological and intellectual development of babies.
Cornelia Hewitt, Project on disabled children in KR, Switzerland
Section 2. (in the conference hall)
New media in promoting NGOs. How to open own blog.
Bektour Iskender, Kloop.kg, and Door media, Kyrgyzstan
nd
Section 3. (yellow room, 2 floor)
1) Sensory Room, 2) Issyk-Kul – the shore of hope
1) Gulnara Amakulova, Bishkek City Rehabilitation Centre, Kyrgyzstan
2) Olga Djabrailova, Obereg rehabilitation centre, Kyrgyzstan
nd
Section 4. (blue room, 2 floor)
Income generating activities and sustainability
Eurasia Foundation CA, Kyrgyzstan
Suren Magakyan, PAROS, Armenia
Larisa Kuznetsova, Smail.kg, Kyrgyzstan (Social taxi)
17.00-18.00 SMALL GROUP FEEDBACK
Suggesting topics for discussion for next day small group sessions.
4
www.kelechek.kg
5. Thursday, 3 March
09.00-10.00 PLENARY SESSION 5
Children with disabilities' issues: moving forward
Chair: Marina Sokolova, Handicap International
Business and NGOs. Ways of cooperation.
Kubanychbek Sheyitov, Rotary Club President
Bermet Omurkanova, Rotary Club manager
UN convention on the rights of persons with disabilities. Why is it needed for KR?
Tolkunbek Isakov, local council MP, "Providing legal help to persons with disabilities"
NGO
Legal mechanisms of protecting children with disabilities and their families.
Seinep Dyikanbaeva, ARDI, Kyrgyzstan
Supporting children with intellectual disabilities through empowering parent-led NGOs
in Talas oblast.
Azat Israilov, HealthProm Kyrgyzstan
Joint working and parent support (establishing support mechanisms).
Amanda Merritt, STLI, Kyrgyzstan
Forming Network of parent-led organizations in Kyrgyzstan
Tamara Zhumabekova, ARDI
Q&A
10.00-11.00 SMALL GROUP SESSION 5
Small Group Discussions
Section 1. (in the conference hall)
(Topic to be defined at the end of the second day)
Section 2. (in the conference hall)
(Topic to be defined at the end of the second day)
nd
Section 3. (yellow room, 2 floor)
(Topic to be defined at the end of the second day)
nd
Section 4. (blue room, 2 floor)
Recommendations by the previous conferences: mechanisms of control and
implementation.
EFCA, Persons with disabilities protection network, Soros Foundation - Kyrgyzstan
11.00- 11.30 Coffee break
11.30-12.30 PRESENTATIONS OF RECOMMENDATIONS/ DISCUSSIONS FEEDBACK
RECOMMENDATIONS
12.30-13.00 SUMMING UP
Chair – Marina Sokolova, Handicap International
13.00-13.20 CLOSING CEREMONY
HealthProm
Soros Foundation – Kyrgyzstan
The Ministry of Social Protection
Government Agencies and NGOs
Concert by ARDI, Shoola Kol and “Umut-Nadezhda” children
GENERAL PHOTO
14.00 Lunch
5
www.kelechek.kg