1. The Individual Formerly Known As Patient
TIFKAP
Prof dr Jan A.M. Kremer, Radboud University Nijmegen Medical Centre
@JKNL #IVFworldwide j.kremer@obgyn.umcn.nl

2. Inspiration

3. Inspiration 1: Clayton Christensen
• Sustaining innovations make good
things better
• Disruptive innovations make things
more affordable and simple
• Disruptive innovations are not good for
current organizations, but are good for
mankind

4. Inspiration 2: Clay Shirky
• The power of organizing without
organizations
• Spectacular developments of internet
2.0 and its social consequences
• Web 2.0 is a platform of virtual
communication & participation
• Consumers are the new producers in
agile and fluent networks

5. Inspiration 3: Prince
• The Artist Formerly Known As Prince
(TAFKAP)
• Patient comes from the Latin word
Patientia: patience, suffering, endurance
• The Individual Formerly Known As
Patient (TIFKAP)

6. How did I get involved?
• Gynaecologist (1996)
• Reproductive Medicine
• IVF team Nijmegen
• 1 of 6 couples
• 16.000 IVF treatments
• 1 of 38 children

7. Heyendael Castle, 2001

8. What do you think of our IVF care?

9. Patient
centredness

10. From paradigm shift to dream

11. Patient-centredness
• Being respectful of and responsive to individual patient
preferences, needs and values; and ensuring that patient
values guide all clinical decisions. (Institute of Medicine, 2001)
• One of the dimensions of Quality of Care:
1. Safety 4. Timeliness
2. Effectiveness 5. Equity of access
3. Efficiency 6. Patient centeredness

12. Patient-centredness research in Nijmegen
• Stress and IVF Chris Verhaak, Jesper Smeenk
• Online prevention of stress/anxiety Angelique van Dongen
• Shared decision making in SET/DET Arno van Peperstraten
• Guideline implementation Selma Mourad
• Guideline development Elvira den Breejen
• Patient education via wiki’s Tom van de Belt
• Patient-centredness questionnaire NL Inge van Empel
• Patient-centredness questionnaire EU Eline Dancet
• Patient-centredness improvement Dana Huppelschoten
• Virtual IVF Clinic Wouter Tuil
• Health Communities Annemijn Aarts

13. Virtual IVF Clinic
1. General information 1.0
interviews, education leaflets, PDA
2. Personal Health Record (PHR)
test results, pictures, letters, reports
3. Communication
chat and forum (P2D & P2P)

15. Evaluation Virtual IVF Clinic
• 9 years successful
• > 4000 patients online,
• > 100.000 forum items
• Patients are the motor of this innovation
• More trust, less complaints, better culture
• Less consultations, marketing benefits, prizes

16. Next step: Health Social Networks
• We have organized Healthcare from
the institution of the provider
• We should organize Healthcare from
the network of the patient
• MijnZorgNet (MyCareNet): the social
network of Dutch healthcare

17. Connect patients and professionals
1. Private health communities
Communities of a professional team with their
patients (members-only)
1. Personal health commuties
Community of the patient (personal information
and communication about this information)

21. Modern medicine
The new doctor:
• from god to guide
• from host to guest (Don Berwick)
The new patient:
• from passive object to active subject
• from patient to person (TIFKAP) The Individual Formerly
Known As Patient
The new healthcare organization:
• from better/expensive, to simple/affordable
• from physical centre to virtual community

22. In conclusion
• Modern patients are changing from passive objectives to
active subjects.
• Helped by the new possibilities of Web 2.0, they grow
into the role of co-producers of their own care.
• We should anticipate on these developments and invest
in web tools that can really help these TIFKAP’s.

23. We are quite disappointed …how static & top-down.
in your website: no As modern care
blogs, no wikis, no consumers, we want more
twitter, no PHR, no HC, no than just being treated!
PHC…

24. The Individual Formerly Known As Patient
TIFKAP
Prof dr Jan A.M. Kremer, Radboud University Nijmegen Medical Centre
@JKNL #IVFworldwide j.kremer@obgyn.umcn.nl