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Social Media and the
Evolution of Medical
  Professionalism

    Matthew Katz, MD

      April 19, 2012
Disclosures
• Doctor at Radiation Oncology Associates, PA
  - Practice in MA, NH


• Volunteer for
  - American Society of Radiation Oncology
  - Massachusetts Medical Society
  - Mayo Clinic Center for Social Media

•Financial disclosures:
  - Consultant for clinical trial, Augmenix, Inc.
Overview

• Definition
• Challenge of social media
• Risks and benefits
• Current guidelines
• Redefining professionalism
What is a professional?


• Professional:
  – “conforming to the technical or ethical standards
    of a profession”
  – “participating for gain or livelihood in an activity
    or field of endeavor often engaged in by
    amateurs”



                           Merriam-Webster.com, accessed 9/19/11
Social Media are
          Communication Tools
• Global reach
• Easy access
• Little technical expertise needed
• Immediate impact
• Dynamic content


                             Wikipedia, http://bit.ly/mZcwaH
                              accessed 9/17/2011
Social Media
• Presents perplexing challenge
• Transforming the way we interact
• Patients online for healthcare beyond the exam
  room
Facebook: 845 million and growing




                        via Infographicslab.com
via pleaseenjoy.com
Risks of Social Media
• Reputation
  – Expertise
  – Patient satisfaction

• Medicolegal
• Patient harm
  – Privacy violation
  – Damage to doctor-patient relationship

• Boundaries
  • Blurring of personal and professional spheres
Reputation in Health 2.0
Medical Professionalism
• Survey of U.S. medical school deans
   – 60% of respondents confirmed medical students posted
     unprofessional online content
      • Profanity/discriminatory ~50%
      • Sexually suggestive/intoxication ~40%
   – Only 38% had social media policy in place
• Study of U Florida medical students/residents
   – 44% had Facebook account
   – 83% posted personal information, 70% had photos with
     alcohol
                                   Chretien et al, JAMA 2009
                                   Thompson et al, J Gen Intern Med 2008
Medicolegal Risks
• Disclosure of patient information
   – Statutory risk
   – Common law risk
• “Friending” patients
   – Established
   – Non-established
• Surfing social media sites of established patients
• Physician as employer: social media risks
• Malpractice & risk management

                         Terry Wall, ASTRO Annual Meeting 2011
Medical Blogs: Privacy and Marketing




                   Lagu et al, J Gen Intern Med 2008
Why Risk Getting Involved?
Risk of Non-Participation:
    Who will interact with patients?

• Pharmaceutical companies
• Insurance companies

• Health-oriented social networks
• Self-help/advocacy groups
PatientsLikeMe
• Established initially to
  help patients with ALS

• >100,000 people with
  500+ conditions

• Patients can include a
  lot of health data




                             PatientsLikeMe.com, accessed 9/4/2011
Platform or Researcher?
• PatientsLikeMe has published 15 peer-reviewed
  articles researching its own community
• J Med Internet Res 2010 12(2):e19
   – “As an internal research project without external sponsors, and with no
     anticipated adverse consequences for participation, institutional review
     board (IRB) approval was not sought for this project.”

• Also published in Nature Biotechnology, Eur J
  Neurology
   – no comment on any IRB review
What harms may come?
          • ? Breach of
          trust/privacy

          • Purchasers of data
          may not report
          potential health
          risks/benefits to users

          •"We're a business, and
          the reality is that
          someone came in and
          stole from us,” Jamie
          Heywood
               Wall Street Journal, 10/12/2010
Anorexia and the Internet

• Medical evidence
   – Body image distortion
   – Increased morbidity and mortality


• Pre-internet: Isolating, hidden disease
Pro-Ana: “Support” Groups
Pro-ana websites
• 12% of adolescent girls, 5% boys have looked at
  them

• “Tips and tricks” include:
   – Caloric restriction/dieting (29%)
   – Distraction (14%)
   – Lying (11%)




                               Custers et al, Eur Eat Disord Rev 2009
                               Harshbarger et al, Int J Eat Disord 2009
Benefits of Social Media
• Collaboration
   – Conducting research
   – Clinical guidelines
   – Donations for cancer care
• Connect with patients, others
   – Market your organization
   – Enhance therapeutic relationship
   – Share your research
• Education
   – Patients
   – Colleagues, CME
• Reputation Management
Collaborative Research with Amateurs




“Gamers produced an accurate model of the
enzyme in just three weeks”
                           Yahoo!News, 9/18/2011
Education
Reputation: We are public figures
• UK survey of 953 respondents in general public
• Professionalism based upon
   – clinician
   – workmanship
   – citizen
• Respondents expected doctors to be:
   –   confident
   –   reliable
   –   composed
   –   accountable
   –   dedicated
                             Chandratilake et al, Clin Med 2010
Reputation Management




Non-anonymous handle of @subatomicdoc affects search engines
Digital Professionalism:
        Where do we want to go?

• Guidelines

• Historical perspective
American Medical Association
• Patient privacy and confidentiality must be maintained in all
  environments, including online

• Monitor own Internet presence to ensure personal and
  professional information is accurate and appropriate

• Maintain appropriate boundaries of the patient-physician
  relationship in accordance with professional ethical
  guidelines

• Confront medical colleagues that post unprofessional
  content
• Actions online and content posted may negatively affect
  their reputations among patients and colleagues and can
  undermine public trust in the medical profession
                                                     Adopted 11/2010
Posted 6/20/2011
World Health Organization
We are not on Medicine 2.0
Evolution of Healers
 v.   Era         Example    Divine   Healer/W Knowledge Scientific
                                      ounded             Method
                                      Dyad

1.0   Prehistoric Shaman       +         +
2.0   400 B.C.    Galen        +         +          +
3.0   18th-19th c. Virchow               +          +         +
4.0   20th c.     Osler                             +         +



            In 2011, v4.0 is a century old
V 3.0: Medicine in 19th century
1846     Ether for anesthesia for H&N surgery
1858     Virchow’s Cellular Pathology
1859     Darwin’s On the Origin of Species
1860s    Claude Bernard  Experimental medicine
1870s    Pasteur  Germ theory, anthrax vaccine
1895     Roentgen’s discovery of x-ray
1899     Aspirin
V 4.0: Flexner Report (1911)
• Medical school education
  – 4 years
  – Merged into university
  – Standardized quality

• Implications for professionalism
  – Scientific method and knowledge trump caring
  – Marginalized other approaches
Reimaging Digital Professionalism
Medicine 5.0
v.   Era           Example Divine Healer/W Knowledge Scientific
                                  ounded             Method
                                  Dyad

1.0 Prehistoric    Shaman     +       +
2.0 400 B.C.       Galen      +       +          +
3.0 18th-19th c.   Virchow            +          +         +
4.0 20th           Osler                         +         +
5.0 21st             ?                +          +         +


Professional = an interactive intermediary in health
Ethos of Digital Professionalism
• Traditional
  – Autonomy
  – Beneficence
  – Justice

• New
  – Integrity
  – Connectedness
Integrity & Connectedness
• Integrity
     Being ‘whole’
     Honesty
     Transparency of intent
     Willingness to change


• Connectedness
     Centered on relationships
     Links professionalism to how we interact
     De-emphasizes knowledge, expertise
     Challenges notion of objectivity
M.D. = Master Dilettante
• Talented at absorbing salient information


• Integrating practical information and applying it


• Free from need for ‘complete’ knowledge
   – Able to take diverse data, synthesize it


• Focus on education,care for patient and caregivers
   – Values
   – Understanding = listening to each other
Oath of Maimonides

“May the love for my art actuate me at all
 times… Grant me the strength, time and
opportunity always to correct what I have
  acquired, always to extend its domain”
Social media can extend our domain
• We are healers and teachers

• Professionalism must evolve to adapt

• Failure risks becoming irrelevant

• Re-embrace millennia tradition of
   caring
Merci

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Dr matthew katz_médias_sociaux_19_avril_2012

  • 1. Social Media and the Evolution of Medical Professionalism Matthew Katz, MD April 19, 2012
  • 2. Disclosures • Doctor at Radiation Oncology Associates, PA - Practice in MA, NH • Volunteer for - American Society of Radiation Oncology - Massachusetts Medical Society - Mayo Clinic Center for Social Media •Financial disclosures: - Consultant for clinical trial, Augmenix, Inc.
  • 3. Overview • Definition • Challenge of social media • Risks and benefits • Current guidelines • Redefining professionalism
  • 4. What is a professional? • Professional: – “conforming to the technical or ethical standards of a profession” – “participating for gain or livelihood in an activity or field of endeavor often engaged in by amateurs” Merriam-Webster.com, accessed 9/19/11
  • 5.
  • 6.
  • 7. Social Media are Communication Tools • Global reach • Easy access • Little technical expertise needed • Immediate impact • Dynamic content Wikipedia, http://bit.ly/mZcwaH accessed 9/17/2011
  • 8. Social Media • Presents perplexing challenge • Transforming the way we interact • Patients online for healthcare beyond the exam room
  • 9. Facebook: 845 million and growing via Infographicslab.com
  • 11. Risks of Social Media • Reputation – Expertise – Patient satisfaction • Medicolegal • Patient harm – Privacy violation – Damage to doctor-patient relationship • Boundaries • Blurring of personal and professional spheres
  • 13. Medical Professionalism • Survey of U.S. medical school deans – 60% of respondents confirmed medical students posted unprofessional online content • Profanity/discriminatory ~50% • Sexually suggestive/intoxication ~40% – Only 38% had social media policy in place • Study of U Florida medical students/residents – 44% had Facebook account – 83% posted personal information, 70% had photos with alcohol Chretien et al, JAMA 2009 Thompson et al, J Gen Intern Med 2008
  • 14. Medicolegal Risks • Disclosure of patient information – Statutory risk – Common law risk • “Friending” patients – Established – Non-established • Surfing social media sites of established patients • Physician as employer: social media risks • Malpractice & risk management Terry Wall, ASTRO Annual Meeting 2011
  • 15. Medical Blogs: Privacy and Marketing Lagu et al, J Gen Intern Med 2008
  • 16. Why Risk Getting Involved?
  • 17. Risk of Non-Participation: Who will interact with patients? • Pharmaceutical companies • Insurance companies • Health-oriented social networks • Self-help/advocacy groups
  • 18. PatientsLikeMe • Established initially to help patients with ALS • >100,000 people with 500+ conditions • Patients can include a lot of health data PatientsLikeMe.com, accessed 9/4/2011
  • 19. Platform or Researcher? • PatientsLikeMe has published 15 peer-reviewed articles researching its own community • J Med Internet Res 2010 12(2):e19 – “As an internal research project without external sponsors, and with no anticipated adverse consequences for participation, institutional review board (IRB) approval was not sought for this project.” • Also published in Nature Biotechnology, Eur J Neurology – no comment on any IRB review
  • 20. What harms may come? • ? Breach of trust/privacy • Purchasers of data may not report potential health risks/benefits to users •"We're a business, and the reality is that someone came in and stole from us,” Jamie Heywood Wall Street Journal, 10/12/2010
  • 21. Anorexia and the Internet • Medical evidence – Body image distortion – Increased morbidity and mortality • Pre-internet: Isolating, hidden disease
  • 23. Pro-ana websites • 12% of adolescent girls, 5% boys have looked at them • “Tips and tricks” include: – Caloric restriction/dieting (29%) – Distraction (14%) – Lying (11%) Custers et al, Eur Eat Disord Rev 2009 Harshbarger et al, Int J Eat Disord 2009
  • 24. Benefits of Social Media • Collaboration – Conducting research – Clinical guidelines – Donations for cancer care • Connect with patients, others – Market your organization – Enhance therapeutic relationship – Share your research • Education – Patients – Colleagues, CME • Reputation Management
  • 25. Collaborative Research with Amateurs “Gamers produced an accurate model of the enzyme in just three weeks” Yahoo!News, 9/18/2011
  • 26.
  • 28.
  • 29. Reputation: We are public figures • UK survey of 953 respondents in general public • Professionalism based upon – clinician – workmanship – citizen • Respondents expected doctors to be: – confident – reliable – composed – accountable – dedicated Chandratilake et al, Clin Med 2010
  • 30. Reputation Management Non-anonymous handle of @subatomicdoc affects search engines
  • 31. Digital Professionalism: Where do we want to go? • Guidelines • Historical perspective
  • 32. American Medical Association • Patient privacy and confidentiality must be maintained in all environments, including online • Monitor own Internet presence to ensure personal and professional information is accurate and appropriate • Maintain appropriate boundaries of the patient-physician relationship in accordance with professional ethical guidelines • Confront medical colleagues that post unprofessional content • Actions online and content posted may negatively affect their reputations among patients and colleagues and can undermine public trust in the medical profession Adopted 11/2010
  • 35.
  • 36. We are not on Medicine 2.0
  • 37. Evolution of Healers v. Era Example Divine Healer/W Knowledge Scientific ounded Method Dyad 1.0 Prehistoric Shaman + + 2.0 400 B.C. Galen + + + 3.0 18th-19th c. Virchow + + + 4.0 20th c. Osler + + In 2011, v4.0 is a century old
  • 38. V 3.0: Medicine in 19th century 1846 Ether for anesthesia for H&N surgery 1858 Virchow’s Cellular Pathology 1859 Darwin’s On the Origin of Species 1860s Claude Bernard  Experimental medicine 1870s Pasteur  Germ theory, anthrax vaccine 1895 Roentgen’s discovery of x-ray 1899 Aspirin
  • 39. V 4.0: Flexner Report (1911) • Medical school education – 4 years – Merged into university – Standardized quality • Implications for professionalism – Scientific method and knowledge trump caring – Marginalized other approaches
  • 41. Medicine 5.0 v. Era Example Divine Healer/W Knowledge Scientific ounded Method Dyad 1.0 Prehistoric Shaman + + 2.0 400 B.C. Galen + + + 3.0 18th-19th c. Virchow + + + 4.0 20th Osler + + 5.0 21st ? + + + Professional = an interactive intermediary in health
  • 42. Ethos of Digital Professionalism • Traditional – Autonomy – Beneficence – Justice • New – Integrity – Connectedness
  • 43. Integrity & Connectedness • Integrity  Being ‘whole’  Honesty  Transparency of intent  Willingness to change • Connectedness  Centered on relationships  Links professionalism to how we interact  De-emphasizes knowledge, expertise  Challenges notion of objectivity
  • 44. M.D. = Master Dilettante • Talented at absorbing salient information • Integrating practical information and applying it • Free from need for ‘complete’ knowledge – Able to take diverse data, synthesize it • Focus on education,care for patient and caregivers – Values – Understanding = listening to each other
  • 45. Oath of Maimonides “May the love for my art actuate me at all times… Grant me the strength, time and opportunity always to correct what I have acquired, always to extend its domain”
  • 46. Social media can extend our domain • We are healers and teachers • Professionalism must evolve to adapt • Failure risks becoming irrelevant • Re-embrace millennia tradition of caring
  • 47. Merci