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Self-Management      MISSOURI’S SUSTAINABILITY TOOLKIT
Education Programs
     for People with
 Chronic Conditions
Purpose
                                         The primary purpose of this document is to guide providers of self-management
                                         education (SME) chronic condition programs in efforts to assure high-quality
                                         services are available over the long-term. The development of sustainable
                                         operations does not occur by chance; rather, it involves strategy and planning
                                         to create the necessary organizational infrastructure and community support.
                                         This guide is a synthesis of practical experience and evidence-based strategies
                                         to help SME providers achieve sustainability. It provides a process for exploring
                                         critical issues in 10 key planning areas: revenue, marketing, referral networking,
                                         competition, service operations, evaluation, organizational support, community
                                         support, advocacy, and resource linkages. This document is designed to assist
                                         SME providers in the development of a Growth Action Plan, a brief plan written to
                                         clearly communicate prioritized strategies for sustaining its SME efforts.




2    Missouri’s Sustainability Toolkit
Table of Contents
Sustainability of Self-Management
Education Programs................................................................4

Key Planning Areas.................................................................6

       Revenue................................................................................7

       Marketing........................................................................... 10

       Referral Network................................................................. 14

       Competition........................................................................ 19

       Service Operation...............................................................22

       Evaluation........................................................................... 26

       Organizational Support....................................................... 28

       Community Support............................................................. 32

       Advocacy...........................................................................34

       Resource Linkages. ..............................................................36
                        .

Creating a Growth Action Plan...........................................38

Getting Involved with State-Level Priorities. ....................40
                                            .

Summary................................................................................. 42

Growth Action Plan Worksheet..........................................44                                Published March 31, 2012



                                                                                      SME Programs for People with Chronic Conditions    3
Sustainability of
                                                 Self-Management
                                               Education Programs
                                         Improving the health and well-being of individuals and families involves
                                         changing health-related behaviors. For people with chronic conditions,
                                         self-management education (SME) is a critical part of a solution to optimize
                                         health. Medical services and medications work best in conjunction with self-
                                         management skills and behaviors. Missouri has made considerable progress
                                         by increasing the capacity and reach of SME services, especially for people
                                         with arthritis. However, the future is uncertain. The viability of SME services will
                                         depend on the creativity and leadership of local providers. It will also depend
                                         on state-wide activities coordinated by organizations such as the Chronic
                                         Disease and Health Promotion Unit of the Missouri Department of Health and
                                         Senior Services, as well as non-profit advocacy organizations.



                                            Capacity:       (n.) the facility          Chronic conditions –
                                            or power to produce, perform, or           such as arthritis, asthma, diabetes,
                                            deploy (Merriam-Webster)                   high cholesterol, and high blood
                                                                                       pressure – are conditions that
                                                                                       affect the health of an individual
                                                                                       on a regular basis or over a long
                                                                                       period of time




4    Missouri’s Sustainability Toolkit
What is Sustainability?                                            A Successful Experience
The working definition of sustainability for this document is:     Since 1995, the Missouri Arthritis and Osteoporosis Program
A community’s ongoing capacity and resolve to work together        (MAOP) has promoted and invested in a self-management
to establish, advance, and maintain support for people with        education (SME) workshop called the Chronic Disease Self-
chronic conditions to improve health and quality of life through   Management Program (CDSMP), which was developed by
self-management skills. Sustainability is not just about achiev-   Stanford University’s Patient Education Research Center.
ing public health goals; it involves creating and building         CDSMP has been endorsed as an evidence-based intervention
momentum to maintain community-wide change by organizing           by the Centers for Disease Control and Prevention (CDC).
and maximizing community assets and resources. Thus, sus-          Using a group-based process that emphasizes goal-setting,
tainability planning requires an approach that involves many       CDSMP lets participants learn self-management techniques
stakeholders who understand and can elevate the importance         from peer-teaching over six weekly sessions. Since 1985,
of self-management education across the health system. It is       MAOP has provided SME interventions focused on physical
recommended that self-management education (SME) provid-           activity, behavior, and care for chronic conditions, including
ers review the meaning of “sustainability” and tailor it to meet   arthritis. MAOP is one of many Missouri organizations that
local needs and expectations.                                      promote SME programs in communities around the state.


Value of Self-Management
Education
Self-management education (SME) programs aim to empower                                       Evidence-based
individuals with chronic conditions to take control of health
                                                                                              intervention – program
                                                                                              which is backed by research and
and improve quality of life. These programs are designed                                      data as being effective
to support and enhance existing medical treatments and the
physician-patient relationship. While the format and methods
may vary, SME usually provides individuals with knowledge
and skills in an effort to improve quality of life by:

•	 addressing psychosocial problems such as frustration, pain,
   fatigue, social isolation etc.
•	 starting or maintaining physical activity/exercise
•	 adhering to a prescribed medication regimen
•	 communicating health concerns effectively with health care
   professionals, family, and friends
•	 optimizing nutrition and/or change eating habits
•	 developing problem-solving skills and
•	 setting personal health improvement goals.

SME has been proven to work well for individuals with differ-
ent chronic conditions. In addition to favorable health outcomes
for participants, SME helps to decrease excess health care
utilization related to emergency room visits, hospitalizations,
and outpatient visits.




                                                                            SME Programs for People with Chronic Conditions    5
Key Planning
                                                                        Areas
                                         Planning is an essential activity for developing a sustainable self-management (SME)
                                         program. Each of the 10 key planning areas described in this document present possible
                                         strategies for a community-specific Growth Action Plan. There are planning questions
                                         for each strategy to guide discussion among stakeholders and support decision-
                                         making. The process for developing a complete Growth Action Plan will include all 10
                                         of the key planning areas, but will not necessarily address each one in full detail. The
                                         relative importance of some key planning areas will vary by SME provider, as history,
                                         current resources, and community needs also differ. The Worksheet at the end of this
                                         toolkit can be used to help select and prioritize strategies for a Growth Action Plan.


                                           Growth Action Plan: (n.) a                      Stakeholders: (n.) individuals
                                           brief written document for communicating        who are involved in or affected by a
                                           priorities to sustain self-management           course of action (Merriam-Webster)
                                           education (SME) services offered by
                                           providers (Missouri’s Sustainability Toolkit)




6    Missouri’s Sustainability Toolkit
Revenue
Revenue is required to pay for professional staff, marketing, and other direct expenses
related to successful SME programs. Diversification of revenue can increase the stability
and sustainability of SME programs. A comprehensive Growth Action Plan will address
these strategies which seek to create an ongoing and diversified stream of revenue.




 1. Service Fee Schedule                                                                Questions:
      Establish a fee schedule for services which can be used for charging              a.	 What are the downsides of offering
      for program participation. A fee schedule communicates the fees on                    services for free?
      a per-unit basis for available SME services/programs. It is important             b.	 How much does it cost to provide
      to recognize the association between price and perceived value when                   services to one participant?
                                                                                        c.	 What is the market value for your
      setting fees. Pricing also needs to reflect the actual cost of service
                                                                                            services (i.e., price a participant is
      provision. Sustainable practices cannot offer services below cost for an
                                                                                            willing to pay)?
      extended period of time.                                                          d.	 How should, or does, your fee
                                                                                            schedule vary depending on payer?




 2. Discounts and Deals                                                                 Questions:
      A discount or special deal can maintain the perception of quality                 a.	 To what degree can your
      while actually lowering the price for the buyer. Participation in                     organization discount its fees to
      program services can be encouraged by the use of vouchers, coupons,                   attract and retain participants?
      promotions, and scholarships; such discounts also assure services are             b.	 How will discounts or promotions
                                                                                            increase utilization of your
      affordable for participants. Discounts and deals may permit services
                                                                                            services?
      to be available for no charge to some participants. It is important for
                                                                                        c.	 Who, or what organization, can
      SME providers to consider discounting in the context of a fee schedule                provide subsidies or other deals to
      and community needs. A mix of funding sources may allow an SME                        increase the affordability of your
      provider to offer discounts and deals.                                                services?




                                  Referral                  Service                   Organizational
        Revenue                                                                                                      Advocacy
                                  Network                   Operations                Support


         Marketing               Competition                Evaluation                Community                      Resource 
                                                                                      Support                        Linkages

                                                                            SME Programs for People with Chronic Conditions    7
Key Planning Areas
Revenue continued
  3. Competitive Grant Application                                                    Questions:
       In response to the burden of chronic conditions, public and private funding    a.	 How can you improve your access
       agencies invest in prevention and management strategies, including SME.            to information about RFPs?
       SME providers can lead or partner with others to write for grants of all       b.	 Who can assist you with grant
       sizes. Grant-funded projects enhance SME program capacity and elevate              writing (e.g., internal resource,
                                                                                          contractor, other partner)?
       awareness of SME services within the community and organization. There
                                                                                      c.	 To what degree does your
       are many opportunities through state and national requests for proposals
                                                                                          organization have the capacity
       (RFPs) to obtain financial support for SME services. While these grants            and know-how to apply for
       are highly competitive, proposal development can be a valuable activity            competitive grants?
       for building new partnerships with SME stakeholders. It is necessary to        d.	 How can you assure all
       connect with people, websites, and grant writing resources that provide            requirements of the RFP are met?
       up-to-date information about open RFPs.                                        e.	 How do you assess your
                                                                                          probability of success for RFPs
                                                                                          under consideration?




  4. Grant Partner or Subcontractor                                                   Questions:
       For many SME providers the best opportunity for new grant funding              a.	 Who is receiving or seeking grant
       is through collaboration. The SME provider can be a partner (aka,                  funding for chronic conditions
       subcontractor) to an organization with considerable grantsmanship                  prevention and management in
       experience (e.g., university or non-profit) which can lead the application         your area?
                                                                                      b.	 Who are the leaders of chronic
       effort. To enhance the application, it is necessary for an SME provider
                                                                                          conditions research at nearby
       to develop and maintain relationships with such organizations well in
                                                                                          universities or non-profits?
       advance of RFP announcements.                                                  c.	 How can SME services be worked
                                                                                          into current grant funding already
                                                                                          in place in your community?
                                                                                      d.	 How can your SME services be
                                                                                          featured in collaborative grant
                                                                                          applications that focus on medical
                                                                                          care access, health behaviors, or
                                                                                          community development?




                                     Referral                 Service                Organizational
          Revenue                                                                                                Advocacy
                                     Network                  Operations             Support


           Marketing                Competition               Evaluation             Community                   Resource 
                                                                                     Support                     Linkages

8    Missouri’s Sustainability Toolkit
In-kind: (adj.) consisting of something (as goods or
           commodities) other than money (Merriam-Webster)



5. Local Foundations                                                                  Questions:
  Given the social and economic value of SME programs to communities,                 a.	 Who are the leaders of local
  local foundations (e.g., charitable trusts, hospital foundations) may offer             foundations in your area?
  funding or in-kind support for program activities. In comparison to                 b.	 How can you establish linkages to
  national or state grantors, local foundations often work closely with grant             local foundations?
                                                                                      c.	 What part of SME programming is
  recipients to define a fundable project without a structured RFP process.
                                                                                          a local foundation likely to support?
  For example, an SME provider could approach a local foundation with a
  project to expand reach of services in the community.




6. Service Contracts                                                                  Questions:
  SME delivers value to health care organizations, health insurance                   a.	 Who are the potential customers
  companies, and employers by providing support for cost-saving efforts                   for a service contract?
  related to chronic conditions. This value can be recognized in a service            b.	 How are services packaged and
  contract that allows direct billing to the sponsor (e.g., health plan) for              priced for this line of business?
                                                                                      c.	 Who can introduce you to
  services rendered by an SME provider. For example, a large employer
                                                                                          potential customers?
  could contract with an SME provider for individual or group services
                                                                                      d.	 To what degree is your
  for its employees, dependents, and/or retirees. Similarly, a health                     organization capable of
  insurance company could offer the services of an SME provider to its                    supporting the development
  members. Negotiated reimbursement rates may depend on volume and                        and implementation of service
  exclusivity terms of the service agreement.                                             contracts?




7. Charitable Contributions                                                           Questions:
  SME is a community service worthy of philanthropic support from                     a.	 Who can assist your organization
  individuals and corporations. It is necessary to develop a fundraising                  with a fundraising strategy?
  strategy with specific activities and revenue goals. Consider including an          b.	 Who is on your “short-list” of
  annual donation solicitation campaign or estate giving program, as well as              individuals or corporations likely to
                                                                                          provide charitable contributions or
  sponsorable events like a dinner/auction, appreciation luncheon for staff
                                                                                          sponsorships?
  and participants, golf tournament, walk, etc. Program alumni and families
                                                                                      c.	 What is unique and appealing about
  are potential donors and volunteers for supporting fundraising activities. In           SME to your potential donors?
  addition to generating revenue, fundraising activities should increase              d.	 How do you maintain regular
  awareness of program goals and services. Featuring alumni success                       contact with program alumni?
  stories during fundraising activities is highly recommended.



          Alumni: (n.) a person (alumnus) or group of people (alumni) who is
          a former member of a specific program or activity (Merriam-Webster)




                                                                          SME Programs for People with Chronic Conditions    9
Key Planning Areas
Marketing
In the context of this plan, the primary purpose of marketing activities is recruitment of
SME program participants. It is important to recognize that related marketing activities
can also be used to build stakeholder support, raise awareness, solicit new partners, etc.
A comprehensive Growth Action Plan will address the following strategies which seek to
create coordinated marketing efforts with clear and measurable goals.




  1.	Key Messages                                                                  Questions:
       Consistent messaging is essential to any marketing effort. SME              a.	 What are a few key messages that
       providers must establish the key messages that will be promoted in              potential participants need to know
       all communication materials, discussions with community members,                about you?
       and internal stakeholders. Well-developed key messages have four            b.	 How can you assure key messages
                                                                                       are understood and used by staff
       important features: believable, concise, optimistically beneficial, and
                                                                                       and volunteers?
       able to compel action.
                                                                                   c.	 How will you test key messages
                                                                                       with stakeholders and potential
                                                                                       participants?
                                                                                   d.	 To what extent are your key
                                                                                       messages tailored to different
                                                                                       audiences?




  2.	Collateral Materials                                                          Questions:
       Printed and/or electronic collateral materials provide a vehicle through    a.	 What types of collateral materials
       which key messages are communicated. The process of developing                  are needed?
       these materials is critical to refining and clarifying the key messages     b.	 Who can assist with graphic
       and developing a lasting brand for an SME program. Brochures,                   design?
                                                                                   c.	 How will collateral materials
       posters, flyers, and websites are some of the most common collateral
                                                                                       be used?
       materials used.




                                     Referral                Service              Organizational
          Revenue                                                                                              Advocacy
                                     Network                 Operations           Support


           Marketing                Competition              Evaluation           Community                   Resource 
                                                                                  Support                     Linkages

10    Missouri’s Sustainability Toolkit
3.	Presentations and Community Forums                                                  Questions:
  Being available to community groups (e.g., religious organizations, civic            a.	 Which community organizations
  groups, business associations) for presentations about health care and                   involve people who are likely to
  related topics can be an excellent way to build relationships with potential             have chronic conditions?
  participants and deliver key messages to the community. These presentations          b.	 What types of educational
                                                                                           presentations would appeal to
  can be integrated into established meetings or organized as a special event.
                                                                                           the community?
  While the main topic of the presentation can be tailored to the audience’s
                                                                                       c.	 How many participants can be
  needs, it is important that all presentations are used to promote benefits of            recruited from community-based
  SME services and provide opportunities                                                   presentations?
  for program enrollment.




4.	Earned Media                                                                        Questions:
  While large scale advertising campaigns can be expensive and not                     a.	 How will you build relationships
  possible in many areas, earned media opportunities are almost always                     with journalists and broadcasters?
  available. Earned media differs from advertising because it is not paid              b.	 Which success stories do you want
  for and it has a higher level of credibility. Local newspapers, magazines,               to share?
                                                                                       c.	 Who can provide assistance with
  radio, and television stations are often looking for local stories. Personal
                                                                                           news releases?
  interest stories, with testimony from program participants, are preferred
  by media outlets. These stories can be very powerful in engaging people
  to join an SME program. Promoting a series of stories about people who
  have successfully completed the SME program can help
  showcase the benefits of SME.




5.	Social Media                                                                        Questions:
  There are a number of social media channels (e.g., Facebook, LinkedIn)               a.	 What are your goals for using social
  available to reach people with chronic conditions as well as friends and                 media?
  family. The development of successful and worthwhile social media strategy           b.	 How do you measure success of
  involves much more than the creation of a Facebook page. First, goals for                social media activity?
                                                                                       c.	 How can you leverage relationships
  using social media need to be established. Second, social media tools may be
                                                                                           with organizations that have
  free or low-cost, but successful social media strategies require considerable
                                                                                           successfully used social media in
  investment of time and effort to build the network, keep the content fresh,              your community?
  etc. It is not always necessary to create new social media channels for a
  message; instead, linking to existing channels can be equally powerful in
  connecting with an audience.




                                                                          SME Programs for People with Chronic Conditions    11
Key Planning Areas
Marketing continued
  6.	Open House                                                                         Questions:
       Many people like to “try before they buy.” Some SME providers have               a.	 How will an open house be
       found that potential participants are more likely to get involved in an SME          promoted to the community?
       program if there is no expectation of commitment in order to get started.        b.	 What are your expectations for an
       Thus, an open house (aka, ‘session zero’) can be offered so participants             open house in terms of participant
                                                                                            recruitment?
       can get a feel for what is involved in a complete SME program. It may be
       useful to offer open houses at regular times during the month so referral
       partners know the schedule.




  7.	 Word-of-Mouth Campaign                                                            Questions:
       One of the most powerful marketing strategies is word-of-mouth                   a.	 What are your past participants
       campaigning. People who have successfully completed the workshops can                telling others about the program?
       be ambassadors in the community and can be instrumental in promoting             b.	 How can you teach past
       the workshops. It is recommended that current and past participants                  participants to carry key messages
                                                                                            about the program?
       be involved in the recruitment of new participants, especially as these
                                                                                        c.	 What is preventing you from
       ambassadors can serve as inspiration to new participants. For example,
                                                                                            having ‘ambassadors’ in the
       current and past participants can provide names and addresses of friends             community?
       who could benefit from SME services in order to build an organizational
       database for direct mail. Or, current and past participants can be part of an
       effort to personally invite (via telephone, email, social networks, one-on-
       one meetings, presentations, etc.) people who may need SME services. It is
       important to tap social networks of participants who have found benefit in a
       program and want to describe the benefits
       to others.



          Ambassador: (n.) an authorized or unofficial
          representative or messenger (Merriam-Webster)




                                     Referral                Service                   Organizational
          Revenue                                                                                                  Advocacy
                                     Network                 Operations                Support


           Marketing                Competition              Evaluation                Community                   Resource 
                                                                                       Support                     Linkages

12    Missouri’s Sustainability Toolkit
8.	Branding                                                                            Questions:
  A brand is the idea or image of a specific product or service that connects          a.	 What does your SME program
  with consumers. Branding allows prospective participants to perceive an                  stand for?
  SME program as the only solution to a personal problem. In the case of               b.	 How will you determine what
  chronic condition management, successful branding of an SME program                      impression your program is making
                                                                                           on the minds of past and potential
  can imply an individual cannot live well without program services. While
                                                                                           participants?
  branding may incorporate a logo or name, it is really about the SME
                                                                                       c.	 How could your program benefit
  program’s “personality” and the promises it makes to the community. The                  from having a brand of its own?
  brand is what a program stands for and is known for. If it is difficult for a        d.	 To what degree is your program’s
  provider to define a brand for an SME program provided, it may                           identity linked to another brand
  be difficult for participants to define the brand too.                                   (e.g., sponsoring organization)?




9.	Public Service Announcements                                                        Questions:
  Public service announcements (PSA) are free advertisements, usually                  a.	 What is the process for creating
  on radio and television intended to change the public interest by raising                and airing a PSA?
  awareness of an issue and affecting public attitudes. PSAs may be useful             b.	 How will you measure the success
  in educating the community about the need for SME in successful chronic                  of a PSA?
                                                                                       c.	 What specific action is your PSA
  condition management.
                                                                                           trying to motivate?




10.	Point of Sale Promotions                                                           Questions:
  Potential participants make many purchases related to chronic condition              a.	 What types of products and services
  management, including prescription medications and physician services.                   do people with chronic conditions
  Signage, flyers, posters, handouts, etc. can be used to promote SME where                purchase?
  such purchases are made. For example, pharmacies can affix a promotional             b.	 How can you form an alliance to
  flyer for SME services to prescriptions for medications that treat a chronic             make point of sale promotions
  conditions like arthritis, diabetes, or high blood pressure. This point of sale          possible?
  promotion targets specific populations that will likely benefit from SME
  services. It is recommended a point of sale promotion be focused and time-
  limited (i.e., 2-4 weeks) to evaluate its performance
  before expanding broadly.




                                                                          SME Programs for People with Chronic Conditions    13
Key Planning Areas
Referral Network
A solid network of partners may be the most valuable and cost-effective way for recruiting
participants and creating a sustainable enterprise over the long-term. A successful network
of partners includes those who understand the value of the program and have invested
resources in program development and implementation. These individuals have bought
into the philosophy of the program and truly believe in the value and concept of SME.
A comprehensive Growth Action Plan will address the following strategies which seek to
create and maintain a referral network.


  1.	Identify Prospective Partners                                                    Questions:
       Partners can help identify new and creative ways to implement SME,             a.	 Who has regular access to people
       including how to reach participants. It is highly recommended that                 who would benefit from your SME
       all SME providers regularly study community trends and identify                    services?
       prospective partners who can refer clients, patients, or customers.            b.	 What are your recruitment goals
                                                                                          for adding new partners to your
                                                                                          referral network?
                                                                                      c.	 How do you develop a list of
                                                                                          prospective partners?
                                                                                      d.	 What is your plan to approach
                                                                                          prospective partners and invite
                                                                                          them to be a collaborative partner,
                                                                                          specifically making referrals to
                                                                                          your organization?




  2.	Formalize Partnership Agreements                                                 Questions:
       Partnerships develop in a variety of ways and take many forms. Some            a.	 What are your expectations of
       partnerships develop informally with various partners coming together              referral network partners?
       because of perceived or actual opportunities, beneficial combination           b.	 What can referral network partners
       of resources, or shared common interest. Many SME providers utilize                expect from your organization?
                                                                                      c.	 Who, within or outside of your
       informal partnerships to establish a referral network. Sometimes partnership
                                                                                          organization, can draft an
       development is more structured and one partner invites another to join
                                                                                          agreement or memorandum of
       an alliance or cause. An effective referral network may be established in          understanding for formalizing
       this manner as well. The development of an agreement or memorandum                 partnership agreements?
       of understanding between SME providers and partners can assist in
       communicating roles and expectations of belonging to the referral network.


                                                                                         Memorandum of
                                                                                         Understanding: (n.)
                                                                                         a document that describes the
                                                                                         general principles of agreement
                                                                                         between parties, but does not
                                                                                         amount to a substantive contract
                                                                                         (Collins English Dictionary)


14    Missouri’s Sustainability Toolkit
3.	Referral Intake Process                                                            Questions:
  It is critical that a smooth hand-off occurs between a referral partner and an      a.	 How can your organization assure
  SME provider. No participant should be lost in this process. SME providers              that all referrals are both contacted
  should implement a process which assists potential participants in reaching             directly and offered options for
  the SME service. There are many options for tools to support the process,               receiving SME services?
                                                                                      b.	 How can your current referral
  such as paper forms, a dedicated phone line, a website, a referral intake
                                                                                          intake process be improved?
  database, etc. By collecting referral source information from all participants,
                                                                                      c.	 Who is responsible for
  SME providers can report back to these partners the volume and                          coordinating partnership referrals?
  timing of referrals received.




4.	Offer Partnership Tiers                                                            Questions:
  Consider developing levels of partnership that recognize varying                    a.	 How would partnership tiers work
  commitments and contributions to the SME program. The concept of                        for your SME program?
  creating tiers (e.g., bronze, silver, gold) can encourage partners to reach for     b.	 What are the advantages and
  a higher level. Tiering can also help engage new partners who may need the              disadvantages to offering
                                                                                          partnership tiers?
  direct experience of working with an SME program before increasing their
  level of involvement with program delivery or number of referrals.




5.	Public Recognition                                                                 a.	 What are the best ways to
                                                                                           recognize the contributions your
  It is recommended that SME providers publicly recognize referral network                 referral partners make to your
  partners. This recognition can raise awareness in the community about                    SME program?
  other goods and services provided and help partners achieve broader                 b.	 How can your SME generate
  business objectives. It may be beneficial to draw special attention to those             public recognition for network
                                                                                           partners?
  partners who direct large numbers of participants to an SME program.
                                                                                      c. 	 How can public recognition help
  Public recognition shows appreciation for partners who refer more
                                                                                           network partners achieve their
  participants, and encourages continued referrals.                                        primary business goals?




                               Referral                  Service                    Organizational
     Revenue                                                                                                       Advocacy
                               Network                   Operations                 Support


     Marketing                Competition                Evaluation                 Community                      Resource 
                                                                                    Support                        Linkages

                                                                         SME Programs for People with Chronic Conditions    15
Key Planning Areas
Referral Network continued
  6.	Assess Needs of Partners                                                         Questions:
       Do not presume to know what results partners want from SME program             a.	 What is the best way to gather
       involvement; ask what specific results are sought, and ask often. The              information from partners about
       process of soliciting input from current and potential partners can build          their expectations of the SME
       trust and give partners a sense of ownership. Consider meeting with                program?
                                                                                      b.	 How will you involve referral
       partners one-on-one 2-4 times per year or hosting referral partner meetings
                                                                                          network partners in the strategic
       which are organized for the sole purpose of listening to partner feedback
                                                                                          planning for SME programs?
       and needs.




  7.	 Provide Feedback                                                                Questions:
       Many individuals and organizations have a vested interest in the well-         a.	 What information do your referral
       being of a participant referred to an SME program. By providing feedback           network partners want about the
       about the status of the referral (e.g., participant started the program), a        people they have referred to an
       sense of appreciation for the referral is reinforced and future referrals          SME program?
                                                                                      b.	 What information are you able to
       are encouraged. Providing feedback about specific participants, while
                                                                                          share freely? Are there limitations
       adhering to privacy protection policies, can help maintain a valuable, open
                                                                                          on certain information that can be
       communication channel with referral network partners.                              shared?
                                                                                      c.	 How should feedback reports be
                                                                                          communicated?




                                     Referral               Service                  Organizational
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8.	Leadership                                                                       Questions:
  It takes leadership to coordinate and facilitate activities and communication     a.	 Who will be responsible for adding
  related to developing the partnerships that make up a referral network.               new individuals and organizations
  It is recommended that SME providers identify 1-2 people who will be                  to the network of referral partners?
  responsible for referral network development. Leadership positions need           b.	 How will the partnership foster
                                                                                        respect, trust, inclusiveness, and
  to be given specific, measurable goals for adding new partners and driving
                                                                                        openness?
  growth in participant volume via referral network partners.




                                                                       SME Programs for People with Chronic Conditions    17
Key Planning Areas
Competition
SME is a consumer service business. Successful businesses have a clear understanding of what
customers want and need as well as how other businesses (aka, competition) are addressing
those wants and needs. It is necessary for SME service providers to regularly assess the
market, specifically the competition for SME services. It is important to critically assess whether
perceived competition is real. Making assumptions about what competitors are doing can lead
to poor decision-making. A comprehensive Growth Action Plan will develop its strategy for
sustainability in the context of current and forecasted market competition.


  1.	Local Competitor Identification                                                  Questions:
       While collaboration and coordination is critical to optimize the limited       a.	 What organizations in your area
       resources available for SME, competitive forces exist in every market.             offer services similar to yours?
       Successful SME providers know who the players are and how these                b.	 How will you assess which
       competitors’ actions shape the health care market, especially in terms of          services participants view as being
                                                                                          equivalent to yours?
       chronic conditions prevention and management. While organizations may
                                                                                      c.	 Which services do your referral
       function with selfless intentions, competition still exists between them
                                                                                          partners view as being similar to
       – typically for scarce resources (e.g., funding, staff, volunteers) and the        yours?
       loyalty of consumers with chronic conditions.                                  d.	 What evidence is available to
                                                                                          suggest there is unmet need for
                                                                                          SME services?




  2.	New Entrants                                                                     Questions:
       Identifying local competitors should include more than just existing           a.	 What organizations could benefit
       competitors. A thorough competition assessment also identifies                     from offering SME services? What
       organizations that may begin offering SME services through                         is preventing them from offering the
       partnerships, acquisition, or building new programs.                               services now?
                                                                                      b.	 Who do you anticipate offering SME
                                                                                          services in the next 5 years? Why?
                                                                                      c.	 Which organizations are interested
                                                                                          in building loyalty or relationships
                                                                                          with people with chronic conditions?




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3.	Services Available Outside the Market                                            Questions:
  Many people travel great distances for health care services, especially           a.	 How are you addressing
  specialist physician services for treating chronic conditions. The internet           competition coming from outside
  provides an immeasurable number of options for people to learn self-                  your market?
  management skills and receive support (e.g., online communities). Some            b.	 To what degree is the internet
                                                                                        (e.g., websites) assisting potential
  health plans offer telephonic health coaching or nurse care managers for
                                                                                        or current participants?
  people with chronic conditions. To some degree, there is competition from
                                                                                    c.	 How will the internet influence
  SME services coming from beyond the traditionally-defined geographic                  demand for SME service in the
  market boundaries. It is important to understand the strengths and                    future?
  weaknesses of these competitive forces and the potential effect on demand
  for SME services offered by your organization.




4.	Competitor Objectives and Strategies                                             Questions:
  Knowledge of a competitor’s objectives facilitates a better prediction of         a.	 How are your competitors
  the competitor’s reaction to changes in the market (e.g., reimbursement).             investing in programs and services
  For example, a competitor that is focused on reaching short-term financial            for people with chronic conditions?
  goals might not be willing to spend much money responding to competitive          b.	 What are the size and nature of
                                                                                        investments in SME services by
  attacks by another organization seeking to recruit (and gain market share)
                                                                                        competitors?
  of SME participants. Since the stated strategy of competitors may differ
                                                                                    c.	 What are the high-priority
  from actual activities, one of the best ways to determine true strategy is            objectives of competing
  to follow how funds are directed, including hiring practices, promotional             organizations?
  campaigns, capital expenditures, strategic partnerships, and mergers/
  acquisitions.




5.	Competitor Resources and Capabilities                                            Questions:
  A competitor’s resources and capabilities determine its ability to                a.	 What unique or special resources
  respond effectively to threats or changes in the market. A competitor’s               do competitors have?
  capabilities can be analyzed according to its strengths and weaknesses in         b.	 What differentiates competitors
  various functional areas, as is done in a SWOT (strengths, weaknesses,                from your organization?
                                                                                    c.	 Which competitors have financial
  opportunities, threats) analysis. Strengths and weaknesses are often found
                                                                                        strength?
  internal to an organization, while opportunities and threats are external
                                                                                    d.	 Which competitors are nimble and
  factors. It is important to evaluate each competitor’s ability and speed to           able to change most quickly when
  increase capabilities in certain areas, such as SME programs.                         opportunities arise?
                                                                                    e.	 To what degree are competitors
                                                                                        using their resources and
                                                                                        capabilities to repress growth of
                                                                                        SME services?

                                                                       SME Programs for People with Chronic Conditions    19
Key Planning Areas
Competition continued
  6.	Competitor Forecast Profile                                                          Questions:
       Information from an analysis of the competitor’s objectives, strategy, and         a.	 What are the potential offensive
       capabilities can be synthesized into a profile of possible moves that might            and defensive moves of leading
       be made by the competitor, which would affect SME services in the market.              competitors?
       The competitor forecast profile can be useful in planning and projecting           b.	 To what degree will competitors be
                                                                                              taking participants away from your
       future demand and capacity needs for SME services.
                                                                                              programs?




  7.	 Collaboration with Competitors                                                      Questions:
       A competitor can be converted to a collaborator. There may be opportunities        a.	 Under what terms would you
       to cross-refer participants between programs that are managed by                       refer participants to another
       competitors within a community. Many people with chronic conditions need               SME provider?
       additional or ongoing support which could be provided through a number of          b.	 How would you structure an
                                                                                              informal or formal alliance with
       organizations. Working in collaboration with a competitor may help reduce
                                                                                              a competitor?
       cost of new participant acquisition, increase participation rates, and meet the
       needs of more people.




  8.	Reduce Competition                                                                   Questions:
       Competition can lead to spreading limited resources so thin that all               a.	 How can SME service providers
       organizations struggle and are at-risk for closure. Consider developing                be consolidated?
       strategies to reduce the competition for program participants and                  b.	 Which SME providers in the
       related community resources.                                                           area should be considered for
                                                                                              acquisition?




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SME Programs for People with Chronic Conditions    21
Key Planning Areas
Service Operations
SME operations depend on the availability of trained people dedicated to the well-being
of people with chronic conditions. A stable group of leaders and trainers, as well as
an evidence-based SME curriculum, are fundamental to sustainable service delivery. A
comprehensive Growth Action Plan will address the following strategies which seek to
create reliable, high-quality service for all participants.




  1.	Master Trainers                                                                  Questions:
       An organization who has developed an SME program will often train a            a.	 How many master trainers exist in
       group of master trainers at a regional or state level to help build program        your community or region for an
       delivery capacity. Researching the number of existing master trainers and          SME program?
       where master trainers are located within an area can help save time and        b.	 How many master trainers do you
                                                                                          need trained in your community
       money. Determining the number of trained individuals to meet community
                                                                                          or region to meet SME program
       needs can guide plans for future leader trainings and course offerings.
                                                                                          needs?
       Typically, SME program master trainers are trained to provide leader           c.	 How do you identify which existing
       trainings as well as participant courses. Master trainers are necessary for        SME leaders may be good master
       leader development. Identifying strong individuals as master trainers,             trainers?
       which may include current program leaders, can help with retention of          d.	 Which individuals in your
       future leaders and program sustainability.                                         community or region would be
                                                                                          effective as an SME master trainer?




  2.	Leader Identification                                                            Questions:
       In order to develop a diverse pool of leaders and trainers for an SME          a.	 Which individuals in your
       program, it is necessary to identify individuals and/or organizations              community would be a good match
       within the community who have goals that are well-aligned with the                 for SME leadership?
       SME program. Pairing a health care professional with an individual             b.	 How will you approach
                                                                                          organizations in your community
       with a chronic condition to lead SME services has been shown to be an
                                                                                          who serve a similar population to
       effective tactic. Consider tapping program alumni to become leaders who
                                                                                          identify potential leaders?
       participate in service delivery.                                               c.	 How will you invite health care
                                                                                          professionals in your community to
                                                                                          be part of the SME program?




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3.	Leader Training                                                                      Questions:
  Most evidence-based programs have a specific curriculum for leader                    a.	 What steps are needed to hold your
  trainings as well as program delivery to participants. Once program leaders               SME program leader trainings?
  are identified, it is important for a master trainer and co-trainer to consider       b.	 How many leaders do you need
  the logistics for hosting leader trainings (e.g., identification of an accessible         trained in your community to meet
                                                                                            the needs of each SME program?
  training space, training marketing, leader registration process, training
                                                                                        c.	 To what extent do your leader
  materials). Leader trainings are an important aspect of building capacity for
                                                                                            trainings meet the needs of future
  service operations.                                                                       leaders of SME programs?




4.	Leader Retention                                                                     Questions:
  Identification of strong leaders coupled with a positive training experience          a.	 In what ways will you show
  (and successful implementation of the SME program) helps to increase                      appreciation to and/or provide
  leader retention. Frequent logistical and technical support, communication,               recognition for leaders?
  and opportunities to network with other leaders provide leader support.               b.	 How do you incentivize individuals
                                                                                            to participate at different levels of
  Recognition and appreciation of SME program leaders’ time and dedication
                                                                                            the program, such as becoming a
  to the program are highly valuable tools for leader retention.
                                                                                            leader?
                                                                                        c.	 What levels of support do you
                                                                                            provide to leaders of SME
                                                                                            programs?




5.	Menu of Service Options                                                              Questions:
  Offering a menu of SME services can help attract participants and                     a.	 To what degree does your service
  increase the likelihood that community needs are met. While having too                    menu need to be expanded or
  many programs may overwhelm or confuse the audience, a menu allows                        reduced?
  participants to exercise a choice. Choice can be a powerful way of engaging           b.	 How can you assure services
                                                                                            are offered at regular intervals
  participants in the SME process. It is important to offer services consistently
                                                                                            throughout the year?
  (e.g., courses) at accessible locations throughout the community.
                                                                                        c.	 What mix of different evidence-
                                                                                            based programs would best serve
                                                                                            the needs of your community?




                                                                           SME Programs for People with Chronic Conditions    23
Key Planning Areas
Service Operations continued

  6.	Consistent Course Offerings                                                             Questions:
       A sustainable program will have consistent course offerings at a                      a.	 What courses are already
       recognizable location in the community. Networking with other course                      occurring in your community and
       leaders in the area can help maintain this consistent delivery, create a                  where are they located?
       leadership pool, and implement the SME program at multiple locations                  b.	 Who could help coordinate
                                                                                                 consistent course offerings at the
       throughout a greater region. Frequent course offerings of the same program
                                                                                                 same location?
       can help balance the number of participants while maintaining SME
                                                                                             c.	 How can you best market
       program recommended attendance guidelines. It can be easier to market                     consistent course offerings?
       courses that are offered consistently.




  7.	 Quality Assurance and Fidelity                                                         Questions:
       Research on the effectiveness of an SME program has been used to                      a.	 How are existing tools used to
       designate the curriculum as an evidence-based program. Maintaining the                    demonstrate fidelity?
       fidelity, or adherence to curriculum by leaders, is essential for service             b.	 Who will implement fidelity
       consistency and, in turn, its long-term sustainability. Since modification of             assessments?
                                                                                             c.	 How can training be used to
       an evidence-based program by adding or deleting components can diminish
                                                                                                 increase fidelity by program
       its efficacy, some SME programs have fidelity guidelines to assist in
                                                                                                 leaders?
       monitoring fidelity and restricting program use to those SME providers that           d.	 What processes are in place to
       can measure and assure fidelity.                                                          assure program service quality
                                                                                                 is achieved?



         Efficacy: (n.) the power to produce             Fidelity: (n.) the quality or state
         an effect (Merriam-Webster)                     of being faithful; accuracy in details or
                                                         exactness (Merriam-Webster)




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SME Programs for People with Chronic Conditions    25
Key Planning Areas
Evaluation
Collecting data from an SME program assists with program planning, assessing program
effectiveness, reporting outcomes, and, most importantly, driving quality improvement.
A comprehensive Growth Action Plan will address the following strategies which seek to
create a culture of data-driven quality improvement.




  1.	Case for Data Collection                                                           Questions:
       When implementing an evidence-based program, data collection may                 a.	 What data collection requirements
       be required by specific revenue sources, but is generally a good practice            exist for your SME program?
       for program sustainability. The determination of necessary and desired           b.	 Which data assessment tools meet
       program outcomes is important in designing an SME program data                       your organization’s needs?
                                                                                        c.	 Where can you research if current
       collection assessment. SME program information is frequently collected
                                                                                            assessment tools or analysis
       through the creation or utilization of previously established data assessment
                                                                                            resources are readily available
       tools. Some funders or SME program developers require data assessment                (e.g., other SME providers, state or
       and may have an established tool or a list of required information to be             regional license holder, funder)?
       collected by developing an assessment. Specific organizational goals             d.	 What questions are you trying to
       established can be measured using data collection tools. Data collection             answer through data collection?
       is not always necessary and can be non-productive if a goal for collecting
       data is not clearly stated. Contracting with data analysis organizations or
       individuals may be a good option if data
       collection is appropriate and/or required.




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2.	Data Collection Methods                                                           Questions:
  Establishing desired outcomes and identifying data analysts are two early          a.	 Which methods of data collection
  steps in a data collection process. Multiple methods of data collection                are appropriate for your SME
  exist; it is important to choose a method that matches organization goals,             program?
  the SME program, and desired goals or outcomes. Regardless of the                  b.	 How will you partner with other
                                                                                         organizations providing your SME
  method chosen for data collection, information gathered on evidence-based
                                                                                         program to report data collected?
  programs is typically reported to the SME license holder organization
                                                                                     c.	 How will you communicate data
  within the state or region. Communicating with SME partners is vital to                methods chosen to the rest of your
  ensuring all necessary data is reported, and to reduce dual                            organization/partners?
  data collection.




3.	Program Evaluation                                                                Questions:
  After collecting data, there is an opportunity for internal or contracted data     a.	 Who will you seek out to assist
  analysts to evaluate outcomes. SME license holder organizations may have               with program evaluation?
  existing data systems or other methods for evaluating data and producing           b.	 What methods of evaluation does
  data-based materials. If a program is evidence-based, there may not be                 an SME license holder or other
                                                                                         partner currently use?
  a need for additional data evaluation. However, evaluation materials can
                                                                                     c.	 How will you communicate
  be a great resource for demonstrating the usefulness and efficacy of an
                                                                                         information from evaluation
  SME program to a community. Program evaluation reports can also be an                  reports to SME partners and your
  effective application tool when applying for additional                                community?
  revenue sources.




4.	Communicating Outcomes                                                            Questions:
  Once data is gathered and the SME program is evaluated, the final step is          a.	 What reports have been created
  utilizing the information. Information gathered can assist SME providers               from data collected?
  with future program planning. For example, data evaluation can identify            b.	 What can you highlight from the
  in which areas courses are needed, but are not yet offered. Sharing SME                reports that will be impactful to
                                                                                         your audience?
  program outcomes with community partners and citizens, including
                                                                                     c.	 How can you use information
  legislators, can raise program awareness. Multiple methods exist for
                                                                                         gathered in future program
  disseminating data reports, including electronic posting, printed materials,           planning?
  and e-mail sharing. To share collected information, consider hosting a             d.	 With whom will you share
  community forum or holding a partner meeting.                                          information?
                                                                                     e.	 Which method(s) will you use to
                                                                                         disseminate data reports?




                                                                        SME Programs for People with Chronic Conditions    27
Key Planning Areas
Organizational Support
Organizational supports include the culture, practice, and leadership within the company
(or non-profit agency) in which an SME operates. When organizational supports are ideal,
high-level leadership (e.g., health system CEO, health agency director) is committed to and
visibly-involved in the SME program. Committed, involved leadership can monitor progress
and assist in facilitating new partnerships. It is absolutely essential to build and maintain
organizational support to achieve a sustainable business. It is important to realize that even
the best organizational support decays when left unattended. A comprehensive Growth
Action Plan will address the following strategies which seek to increase support from within
the organization that the SME program operates.



  1.	Statement of Organizational Alignment                                            Questions:
       Support from high-level leadership for SME programs will increase if           a.	 How does the SME program
       there is clear evidence that it makes sound business sense. Top leaders            contribute directly to the stated
       and other key stakeholders in an organization need to see SME as an                organizational mission and goals?
       essential strategy in improving the health outcomes for those with chronic     b.	 Which leaders in the organization
                                                                                          would benefit from a better
       conditions. It needs to be readily apparent in a clearly communicated
                                                                                          understanding of the value of SME
       way there is a perceived high return on investment from SME programs
                                                                                          services?
       for the sponsoring organization. It is recommended that SME providers          c.	 To what degree does the
       develop a brief statement of organizational alignment which clarifies the          SME program help the larger
       contributions of SME services to the broader mission and strategic goals of        organization grow revenue or
       the sponsoring organization.                                                       reduce overall costs?




  2.	Champions                                                                        Questions:
       The support of an influential leader or stakeholder from the sponsoring        a.	 Who are prospective champions
       organization can be very valuable in gaining buy-in across your                    within your organization?
       organization. Committed champions can be instrumental in securing              b.	 What is your plan to recruit
       and sustaining funding as well as other kinds of support.                          internal champions?
                                                                                      c.	 What are you asking of the
                                                                                          people who are your program’s
                                                                                          champions?




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3.	Clarify Roles and Organization Structure                                         Questions:
  There needs to be an internal team responsible for the various                    a.	 To what degree do team
  implementation tasks of the SME program. Some SME programs may                        members understand how they
  struggle due to lack of clarity in the roles and organizational structure in          can contribute to growth and
  which staff, partners, volunteers, and others work. It is highly recommended          sustainability of the program?
                                                                                    b.	 How does the current
  all people involved with the SME program understand current roles
                                                                                        organizational structure meet the
  as well as specific ways to contribute for the growth and sustainability
                                                                                        anticipated needs of SME program
  of the program.                                                                       operations in the future?




4.	Patient Care Team Integration                                                    Questions:
  For SME programs that are based in health care systems, organizational            a.	 What role does SME have on patient
  support may be enhanced through integration with patient care teams.                  care teams at your organization?
  There is considerable variability in what constitutes a patient care team.        b.	 To what degree is SME part of
  In some organizations it includes both clinical providers and non-clinical            routine primary care? Discharge
                                                                                        planning?
  support staff; other organizations include family members. Regardless
                                                                                    c.	 What are the advantages and
  of the model, a well-functioning team serving the best interests of a
                                                                                        disadvantages of including SME
  person with chronic conditions should include SME programming. It is                  providers on patient care teams?
  recommended that SME providers explore ways to become full members                d.	 Who should be approached to
  of patient care teams and participate in the planning                                 explore new ways for including SME
  and coordination of services.                                                         providers on patient care teams?




5.	Volunteer Management                                                             Questions:
  Many SME programs depend on volunteers for service delivery and/or                a.	 What are the opportunities for
  program administration. Building and maintaining a base of committed                  your SME program to incorporate
  volunteers takes work. Volunteers must be invited, assessed for good fit,             volunteer service into its model of
  trained, assigned work duties, and thanked. Although there is considerable            service delivery?
                                                                                    b.	 How do you assure the volunteer
  effort involved, volunteers add to the sustainability of an SME program
                                                                                        experience is enriching and
  in many ways, such as overall cost reduction and ongoing community
                                                                                        encourages a long-term relationship
  involvement.                                                                          with the program?
                                                                                    c.	 What are your plans to minimize a
                                                                                        potential loss of volunteers?
                                                                                    d.	 What are the skills and personal
                                                                                        attributes needed to recruit and
                                                                                        successfully manage a group of
                                                                                        volunteers?

                                                                       SME Programs for People with Chronic Conditions    29
Key Planning Areas
Organizational Support continued
  6.	Succession Planning                                                                Questions:
       Sustainability is fragile when SME program leadership hinges on one              a.	 How is your organization cultivating
       person. If, or when, the leader leaves, the program is placed at risk. In            leadership for the future?
       order to assure the long-term viability of an SME program, leadership            b.	 What are the opportunities for
       development and succession planning must be dealt with proactively.                  growth and development of staff and
                                                                                            volunteers?
       Having the support of another individual, including organization
                                                                                        c.	 How can you assure program
       administrators, can be beneficial when considering succession planning.
                                                                                            survival if the current leader were to
                                                                                            suddenly depart?




  7.	 Participant Advisory Council                                                      Questions:
       It is critical for a person with a chronic condition to be very involved         a.	 To what degree are SME program
       in self-care. Participant input is essential for improving SME practices,            participants involved in leadership?
       policies, and overall service delivery. A participant advisory council is one    b.	 What are the best ways to
       way to incorporate participant input into the planning and evaluation of             incorporate the guidance of
                                                                                            participants in planning and
       SME services.
                                                                                            evaluation?




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30    Missouri’s Sustainability Toolkit
8.	Staff Training and Education                                                      Questions:
  Within health care systems and public health agencies, there are many              a.	 What are the specific training and
  staff that care for people with chronic conditions. SME providers can play             education needs related to chronic
  a vital role in staff training and education, especially in terms of quality           conditions?
  assurance, risk management, and care coordination. Through workshops,              b.	 How can your SME program
                                                                                         staff address these training and
  presentations, etc., SME providers can expand program relevance and
                                                                                         education needs?
  utility, thereby generating wider and deeper support for their services.
                                                                                     c.	 To what degree can funding be
  The referral network may also be expanded through staff training and                   secured for your program’s work in
  education.                                                                             staff training and education?
                                                                                     d.	 What are your first steps to
                                                                                         offering a training program to staff
                                                                                         employed by your health system or
                                                                                         public health agency?




                                                                        SME Programs for People with Chronic Conditions    31
Key Planning Areas
Community Support
Sustainability involves creating and building momentum to maintain community-wide
change by organizing and maximizing community assets and resources. The cultivation
of community support may take time, but the development of such support can be
planned. A comprehensive Growth Action Plan will address the following areas that
can contribute to broad and influential support across the community.




  1.	Advisory Council                                                                    Questions:
       Establish a formal group of community members for advising SME                    a.	 Who are the chronic conditions
       program leadership and staff about operations and strategies for growth.              experts in your area?
       In addition to expanding access to subject matter expertise, an advisory          b.	 What are the best ways to establish
       council can help set priorities and maintain accountability for key goals.            an advisory council?
                                                                                         c.	 What are your expectations for
                                                                                             advisory council members?
                                                                                         d.	 Who can assist with the formation
                                                                                             of an advisory council?




  2.	Community Health Coalition Participation                                            Questions:
       A community coalition is an alliance of stakeholders with a shared interest       a.	 Which health coalitions in your
       in health improvement, specifically for prevention or management of chronic           area are focused on the needs of
       conditions. Effective coalitions mobilize diverse talents, resources, and             people with chronic conditions?
       strategies; limit duplication of strategies and services; and work as vehicles    b.	 How do coalitions in your area
                                                                                             support SME services?
       for exchanging knowledge and ideas. The coalition may be focused on one
                                                                                         c.	 What are your plans to link your
       or more chronic condition(s). Active participation in coalition activities,
                                                                                             organization into established or
       especially in a leadership role, helps raise awareness of SME services and            new coalitions?
       helps connect SME to other health programs and services. The development
       of a community health coalition should be explored if an effective one does
       not currently exist.




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Missouri Sustainability Toolkit

  • 1. Self-Management MISSOURI’S SUSTAINABILITY TOOLKIT Education Programs for People with Chronic Conditions
  • 2. Purpose The primary purpose of this document is to guide providers of self-management education (SME) chronic condition programs in efforts to assure high-quality services are available over the long-term. The development of sustainable operations does not occur by chance; rather, it involves strategy and planning to create the necessary organizational infrastructure and community support. This guide is a synthesis of practical experience and evidence-based strategies to help SME providers achieve sustainability. It provides a process for exploring critical issues in 10 key planning areas: revenue, marketing, referral networking, competition, service operations, evaluation, organizational support, community support, advocacy, and resource linkages. This document is designed to assist SME providers in the development of a Growth Action Plan, a brief plan written to clearly communicate prioritized strategies for sustaining its SME efforts. 2    Missouri’s Sustainability Toolkit
  • 3. Table of Contents Sustainability of Self-Management Education Programs................................................................4 Key Planning Areas.................................................................6 Revenue................................................................................7 Marketing........................................................................... 10 Referral Network................................................................. 14 Competition........................................................................ 19 Service Operation...............................................................22 Evaluation........................................................................... 26 Organizational Support....................................................... 28 Community Support............................................................. 32 Advocacy...........................................................................34 Resource Linkages. ..............................................................36 . Creating a Growth Action Plan...........................................38 Getting Involved with State-Level Priorities. ....................40 . Summary................................................................................. 42 Growth Action Plan Worksheet..........................................44 Published March 31, 2012 SME Programs for People with Chronic Conditions    3
  • 4. Sustainability of Self-Management Education Programs Improving the health and well-being of individuals and families involves changing health-related behaviors. For people with chronic conditions, self-management education (SME) is a critical part of a solution to optimize health. Medical services and medications work best in conjunction with self- management skills and behaviors. Missouri has made considerable progress by increasing the capacity and reach of SME services, especially for people with arthritis. However, the future is uncertain. The viability of SME services will depend on the creativity and leadership of local providers. It will also depend on state-wide activities coordinated by organizations such as the Chronic Disease and Health Promotion Unit of the Missouri Department of Health and Senior Services, as well as non-profit advocacy organizations. Capacity: (n.) the facility Chronic conditions – or power to produce, perform, or such as arthritis, asthma, diabetes, deploy (Merriam-Webster) high cholesterol, and high blood pressure – are conditions that affect the health of an individual on a regular basis or over a long period of time 4    Missouri’s Sustainability Toolkit
  • 5. What is Sustainability? A Successful Experience The working definition of sustainability for this document is: Since 1995, the Missouri Arthritis and Osteoporosis Program A community’s ongoing capacity and resolve to work together (MAOP) has promoted and invested in a self-management to establish, advance, and maintain support for people with education (SME) workshop called the Chronic Disease Self- chronic conditions to improve health and quality of life through Management Program (CDSMP), which was developed by self-management skills. Sustainability is not just about achiev- Stanford University’s Patient Education Research Center. ing public health goals; it involves creating and building CDSMP has been endorsed as an evidence-based intervention momentum to maintain community-wide change by organizing by the Centers for Disease Control and Prevention (CDC). and maximizing community assets and resources. Thus, sus- Using a group-based process that emphasizes goal-setting, tainability planning requires an approach that involves many CDSMP lets participants learn self-management techniques stakeholders who understand and can elevate the importance from peer-teaching over six weekly sessions. Since 1985, of self-management education across the health system. It is MAOP has provided SME interventions focused on physical recommended that self-management education (SME) provid- activity, behavior, and care for chronic conditions, including ers review the meaning of “sustainability” and tailor it to meet arthritis. MAOP is one of many Missouri organizations that local needs and expectations. promote SME programs in communities around the state. Value of Self-Management Education Self-management education (SME) programs aim to empower Evidence-based individuals with chronic conditions to take control of health intervention – program which is backed by research and and improve quality of life. These programs are designed data as being effective to support and enhance existing medical treatments and the physician-patient relationship. While the format and methods may vary, SME usually provides individuals with knowledge and skills in an effort to improve quality of life by: • addressing psychosocial problems such as frustration, pain, fatigue, social isolation etc. • starting or maintaining physical activity/exercise • adhering to a prescribed medication regimen • communicating health concerns effectively with health care professionals, family, and friends • optimizing nutrition and/or change eating habits • developing problem-solving skills and • setting personal health improvement goals. SME has been proven to work well for individuals with differ- ent chronic conditions. In addition to favorable health outcomes for participants, SME helps to decrease excess health care utilization related to emergency room visits, hospitalizations, and outpatient visits. SME Programs for People with Chronic Conditions    5
  • 6. Key Planning Areas Planning is an essential activity for developing a sustainable self-management (SME) program. Each of the 10 key planning areas described in this document present possible strategies for a community-specific Growth Action Plan. There are planning questions for each strategy to guide discussion among stakeholders and support decision- making. The process for developing a complete Growth Action Plan will include all 10 of the key planning areas, but will not necessarily address each one in full detail. The relative importance of some key planning areas will vary by SME provider, as history, current resources, and community needs also differ. The Worksheet at the end of this toolkit can be used to help select and prioritize strategies for a Growth Action Plan. Growth Action Plan: (n.) a Stakeholders: (n.) individuals brief written document for communicating who are involved in or affected by a priorities to sustain self-management course of action (Merriam-Webster) education (SME) services offered by providers (Missouri’s Sustainability Toolkit) 6    Missouri’s Sustainability Toolkit
  • 7. Revenue Revenue is required to pay for professional staff, marketing, and other direct expenses related to successful SME programs. Diversification of revenue can increase the stability and sustainability of SME programs. A comprehensive Growth Action Plan will address these strategies which seek to create an ongoing and diversified stream of revenue. 1. Service Fee Schedule Questions: Establish a fee schedule for services which can be used for charging a. What are the downsides of offering for program participation. A fee schedule communicates the fees on services for free? a per-unit basis for available SME services/programs. It is important b. How much does it cost to provide to recognize the association between price and perceived value when services to one participant? c. What is the market value for your setting fees. Pricing also needs to reflect the actual cost of service services (i.e., price a participant is provision. Sustainable practices cannot offer services below cost for an willing to pay)? extended period of time. d. How should, or does, your fee schedule vary depending on payer? 2. Discounts and Deals Questions: A discount or special deal can maintain the perception of quality a. To what degree can your while actually lowering the price for the buyer. Participation in organization discount its fees to program services can be encouraged by the use of vouchers, coupons, attract and retain participants? promotions, and scholarships; such discounts also assure services are b. How will discounts or promotions increase utilization of your affordable for participants. Discounts and deals may permit services services? to be available for no charge to some participants. It is important for c. Who, or what organization, can SME providers to consider discounting in the context of a fee schedule provide subsidies or other deals to and community needs. A mix of funding sources may allow an SME increase the affordability of your provider to offer discounts and deals. services? Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages SME Programs for People with Chronic Conditions    7
  • 8. Key Planning Areas Revenue continued 3. Competitive Grant Application Questions: In response to the burden of chronic conditions, public and private funding a. How can you improve your access agencies invest in prevention and management strategies, including SME. to information about RFPs? SME providers can lead or partner with others to write for grants of all b. Who can assist you with grant sizes. Grant-funded projects enhance SME program capacity and elevate writing (e.g., internal resource, contractor, other partner)? awareness of SME services within the community and organization. There c. To what degree does your are many opportunities through state and national requests for proposals organization have the capacity (RFPs) to obtain financial support for SME services. While these grants and know-how to apply for are highly competitive, proposal development can be a valuable activity competitive grants? for building new partnerships with SME stakeholders. It is necessary to d. How can you assure all connect with people, websites, and grant writing resources that provide requirements of the RFP are met? up-to-date information about open RFPs. e. How do you assess your probability of success for RFPs under consideration? 4. Grant Partner or Subcontractor Questions: For many SME providers the best opportunity for new grant funding a. Who is receiving or seeking grant is through collaboration. The SME provider can be a partner (aka, funding for chronic conditions subcontractor) to an organization with considerable grantsmanship prevention and management in experience (e.g., university or non-profit) which can lead the application your area? b. Who are the leaders of chronic effort. To enhance the application, it is necessary for an SME provider conditions research at nearby to develop and maintain relationships with such organizations well in universities or non-profits? advance of RFP announcements. c. How can SME services be worked into current grant funding already in place in your community? d. How can your SME services be featured in collaborative grant applications that focus on medical care access, health behaviors, or community development? Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages 8    Missouri’s Sustainability Toolkit
  • 9. In-kind: (adj.) consisting of something (as goods or commodities) other than money (Merriam-Webster) 5. Local Foundations Questions: Given the social and economic value of SME programs to communities, a. Who are the leaders of local local foundations (e.g., charitable trusts, hospital foundations) may offer foundations in your area? funding or in-kind support for program activities. In comparison to b. How can you establish linkages to national or state grantors, local foundations often work closely with grant local foundations? c. What part of SME programming is recipients to define a fundable project without a structured RFP process. a local foundation likely to support? For example, an SME provider could approach a local foundation with a project to expand reach of services in the community. 6. Service Contracts Questions: SME delivers value to health care organizations, health insurance a. Who are the potential customers companies, and employers by providing support for cost-saving efforts for a service contract? related to chronic conditions. This value can be recognized in a service b. How are services packaged and contract that allows direct billing to the sponsor (e.g., health plan) for priced for this line of business? c. Who can introduce you to services rendered by an SME provider. For example, a large employer potential customers? could contract with an SME provider for individual or group services d. To what degree is your for its employees, dependents, and/or retirees. Similarly, a health organization capable of insurance company could offer the services of an SME provider to its supporting the development members. Negotiated reimbursement rates may depend on volume and and implementation of service exclusivity terms of the service agreement. contracts? 7. Charitable Contributions Questions: SME is a community service worthy of philanthropic support from a. Who can assist your organization individuals and corporations. It is necessary to develop a fundraising with a fundraising strategy? strategy with specific activities and revenue goals. Consider including an b. Who is on your “short-list” of annual donation solicitation campaign or estate giving program, as well as individuals or corporations likely to provide charitable contributions or sponsorable events like a dinner/auction, appreciation luncheon for staff sponsorships? and participants, golf tournament, walk, etc. Program alumni and families c. What is unique and appealing about are potential donors and volunteers for supporting fundraising activities. In SME to your potential donors? addition to generating revenue, fundraising activities should increase d. How do you maintain regular awareness of program goals and services. Featuring alumni success contact with program alumni? stories during fundraising activities is highly recommended. Alumni: (n.) a person (alumnus) or group of people (alumni) who is a former member of a specific program or activity (Merriam-Webster) SME Programs for People with Chronic Conditions    9
  • 10. Key Planning Areas Marketing In the context of this plan, the primary purpose of marketing activities is recruitment of SME program participants. It is important to recognize that related marketing activities can also be used to build stakeholder support, raise awareness, solicit new partners, etc. A comprehensive Growth Action Plan will address the following strategies which seek to create coordinated marketing efforts with clear and measurable goals. 1. Key Messages Questions: Consistent messaging is essential to any marketing effort. SME a. What are a few key messages that providers must establish the key messages that will be promoted in potential participants need to know all communication materials, discussions with community members, about you? and internal stakeholders. Well-developed key messages have four b. How can you assure key messages are understood and used by staff important features: believable, concise, optimistically beneficial, and and volunteers? able to compel action. c. How will you test key messages with stakeholders and potential participants? d. To what extent are your key messages tailored to different audiences? 2. Collateral Materials Questions: Printed and/or electronic collateral materials provide a vehicle through a. What types of collateral materials which key messages are communicated. The process of developing are needed? these materials is critical to refining and clarifying the key messages b. Who can assist with graphic and developing a lasting brand for an SME program. Brochures, design? c. How will collateral materials posters, flyers, and websites are some of the most common collateral be used? materials used. Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages 10    Missouri’s Sustainability Toolkit
  • 11. 3. Presentations and Community Forums Questions: Being available to community groups (e.g., religious organizations, civic a. Which community organizations groups, business associations) for presentations about health care and involve people who are likely to related topics can be an excellent way to build relationships with potential have chronic conditions? participants and deliver key messages to the community. These presentations b. What types of educational presentations would appeal to can be integrated into established meetings or organized as a special event. the community? While the main topic of the presentation can be tailored to the audience’s c. How many participants can be needs, it is important that all presentations are used to promote benefits of recruited from community-based SME services and provide opportunities presentations? for program enrollment. 4. Earned Media Questions: While large scale advertising campaigns can be expensive and not a. How will you build relationships possible in many areas, earned media opportunities are almost always with journalists and broadcasters? available. Earned media differs from advertising because it is not paid b. Which success stories do you want for and it has a higher level of credibility. Local newspapers, magazines, to share? c. Who can provide assistance with radio, and television stations are often looking for local stories. Personal news releases? interest stories, with testimony from program participants, are preferred by media outlets. These stories can be very powerful in engaging people to join an SME program. Promoting a series of stories about people who have successfully completed the SME program can help showcase the benefits of SME. 5. Social Media Questions: There are a number of social media channels (e.g., Facebook, LinkedIn) a. What are your goals for using social available to reach people with chronic conditions as well as friends and media? family. The development of successful and worthwhile social media strategy b. How do you measure success of involves much more than the creation of a Facebook page. First, goals for social media activity? c. How can you leverage relationships using social media need to be established. Second, social media tools may be with organizations that have free or low-cost, but successful social media strategies require considerable successfully used social media in investment of time and effort to build the network, keep the content fresh, your community? etc. It is not always necessary to create new social media channels for a message; instead, linking to existing channels can be equally powerful in connecting with an audience. SME Programs for People with Chronic Conditions    11
  • 12. Key Planning Areas Marketing continued 6. Open House Questions: Many people like to “try before they buy.” Some SME providers have a. How will an open house be found that potential participants are more likely to get involved in an SME promoted to the community? program if there is no expectation of commitment in order to get started. b. What are your expectations for an Thus, an open house (aka, ‘session zero’) can be offered so participants open house in terms of participant recruitment? can get a feel for what is involved in a complete SME program. It may be useful to offer open houses at regular times during the month so referral partners know the schedule. 7. Word-of-Mouth Campaign Questions: One of the most powerful marketing strategies is word-of-mouth a. What are your past participants campaigning. People who have successfully completed the workshops can telling others about the program? be ambassadors in the community and can be instrumental in promoting b. How can you teach past the workshops. It is recommended that current and past participants participants to carry key messages about the program? be involved in the recruitment of new participants, especially as these c. What is preventing you from ambassadors can serve as inspiration to new participants. For example, having ‘ambassadors’ in the current and past participants can provide names and addresses of friends community? who could benefit from SME services in order to build an organizational database for direct mail. Or, current and past participants can be part of an effort to personally invite (via telephone, email, social networks, one-on- one meetings, presentations, etc.) people who may need SME services. It is important to tap social networks of participants who have found benefit in a program and want to describe the benefits to others. Ambassador: (n.) an authorized or unofficial representative or messenger (Merriam-Webster) Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages 12    Missouri’s Sustainability Toolkit
  • 13. 8. Branding Questions: A brand is the idea or image of a specific product or service that connects a. What does your SME program with consumers. Branding allows prospective participants to perceive an stand for? SME program as the only solution to a personal problem. In the case of b. How will you determine what chronic condition management, successful branding of an SME program impression your program is making on the minds of past and potential can imply an individual cannot live well without program services. While participants? branding may incorporate a logo or name, it is really about the SME c. How could your program benefit program’s “personality” and the promises it makes to the community. The from having a brand of its own? brand is what a program stands for and is known for. If it is difficult for a d. To what degree is your program’s provider to define a brand for an SME program provided, it may identity linked to another brand be difficult for participants to define the brand too. (e.g., sponsoring organization)? 9. Public Service Announcements Questions: Public service announcements (PSA) are free advertisements, usually a. What is the process for creating on radio and television intended to change the public interest by raising and airing a PSA? awareness of an issue and affecting public attitudes. PSAs may be useful b. How will you measure the success in educating the community about the need for SME in successful chronic of a PSA? c. What specific action is your PSA condition management. trying to motivate? 10. Point of Sale Promotions Questions: Potential participants make many purchases related to chronic condition a. What types of products and services management, including prescription medications and physician services. do people with chronic conditions Signage, flyers, posters, handouts, etc. can be used to promote SME where purchase? such purchases are made. For example, pharmacies can affix a promotional b. How can you form an alliance to flyer for SME services to prescriptions for medications that treat a chronic make point of sale promotions conditions like arthritis, diabetes, or high blood pressure. This point of sale possible? promotion targets specific populations that will likely benefit from SME services. It is recommended a point of sale promotion be focused and time- limited (i.e., 2-4 weeks) to evaluate its performance before expanding broadly. SME Programs for People with Chronic Conditions    13
  • 14. Key Planning Areas Referral Network A solid network of partners may be the most valuable and cost-effective way for recruiting participants and creating a sustainable enterprise over the long-term. A successful network of partners includes those who understand the value of the program and have invested resources in program development and implementation. These individuals have bought into the philosophy of the program and truly believe in the value and concept of SME. A comprehensive Growth Action Plan will address the following strategies which seek to create and maintain a referral network. 1. Identify Prospective Partners Questions: Partners can help identify new and creative ways to implement SME, a. Who has regular access to people including how to reach participants. It is highly recommended that who would benefit from your SME all SME providers regularly study community trends and identify services? prospective partners who can refer clients, patients, or customers. b. What are your recruitment goals for adding new partners to your referral network? c. How do you develop a list of prospective partners? d. What is your plan to approach prospective partners and invite them to be a collaborative partner, specifically making referrals to your organization? 2. Formalize Partnership Agreements Questions: Partnerships develop in a variety of ways and take many forms. Some a. What are your expectations of partnerships develop informally with various partners coming together referral network partners? because of perceived or actual opportunities, beneficial combination b. What can referral network partners of resources, or shared common interest. Many SME providers utilize expect from your organization? c. Who, within or outside of your informal partnerships to establish a referral network. Sometimes partnership organization, can draft an development is more structured and one partner invites another to join agreement or memorandum of an alliance or cause. An effective referral network may be established in understanding for formalizing this manner as well. The development of an agreement or memorandum partnership agreements? of understanding between SME providers and partners can assist in communicating roles and expectations of belonging to the referral network. Memorandum of Understanding: (n.) a document that describes the general principles of agreement between parties, but does not amount to a substantive contract (Collins English Dictionary) 14    Missouri’s Sustainability Toolkit
  • 15. 3. Referral Intake Process Questions: It is critical that a smooth hand-off occurs between a referral partner and an a. How can your organization assure SME provider. No participant should be lost in this process. SME providers that all referrals are both contacted should implement a process which assists potential participants in reaching directly and offered options for the SME service. There are many options for tools to support the process, receiving SME services? b. How can your current referral such as paper forms, a dedicated phone line, a website, a referral intake intake process be improved? database, etc. By collecting referral source information from all participants, c. Who is responsible for SME providers can report back to these partners the volume and coordinating partnership referrals? timing of referrals received. 4. Offer Partnership Tiers Questions: Consider developing levels of partnership that recognize varying a. How would partnership tiers work commitments and contributions to the SME program. The concept of for your SME program? creating tiers (e.g., bronze, silver, gold) can encourage partners to reach for b. What are the advantages and a higher level. Tiering can also help engage new partners who may need the disadvantages to offering partnership tiers? direct experience of working with an SME program before increasing their level of involvement with program delivery or number of referrals. 5. Public Recognition a. What are the best ways to recognize the contributions your It is recommended that SME providers publicly recognize referral network referral partners make to your partners. This recognition can raise awareness in the community about SME program? other goods and services provided and help partners achieve broader b. How can your SME generate business objectives. It may be beneficial to draw special attention to those public recognition for network partners? partners who direct large numbers of participants to an SME program. c. How can public recognition help Public recognition shows appreciation for partners who refer more network partners achieve their participants, and encourages continued referrals. primary business goals? Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages SME Programs for People with Chronic Conditions    15
  • 16. Key Planning Areas Referral Network continued 6. Assess Needs of Partners Questions: Do not presume to know what results partners want from SME program a. What is the best way to gather involvement; ask what specific results are sought, and ask often. The information from partners about process of soliciting input from current and potential partners can build their expectations of the SME trust and give partners a sense of ownership. Consider meeting with program? b. How will you involve referral partners one-on-one 2-4 times per year or hosting referral partner meetings network partners in the strategic which are organized for the sole purpose of listening to partner feedback planning for SME programs? and needs. 7. Provide Feedback Questions: Many individuals and organizations have a vested interest in the well- a. What information do your referral being of a participant referred to an SME program. By providing feedback network partners want about the about the status of the referral (e.g., participant started the program), a people they have referred to an sense of appreciation for the referral is reinforced and future referrals SME program? b. What information are you able to are encouraged. Providing feedback about specific participants, while share freely? Are there limitations adhering to privacy protection policies, can help maintain a valuable, open on certain information that can be communication channel with referral network partners. shared? c. How should feedback reports be communicated? Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages 16    Missouri’s Sustainability Toolkit
  • 17. 8. Leadership Questions: It takes leadership to coordinate and facilitate activities and communication a. Who will be responsible for adding related to developing the partnerships that make up a referral network. new individuals and organizations It is recommended that SME providers identify 1-2 people who will be to the network of referral partners? responsible for referral network development. Leadership positions need b. How will the partnership foster respect, trust, inclusiveness, and to be given specific, measurable goals for adding new partners and driving openness? growth in participant volume via referral network partners. SME Programs for People with Chronic Conditions    17
  • 18. Key Planning Areas Competition SME is a consumer service business. Successful businesses have a clear understanding of what customers want and need as well as how other businesses (aka, competition) are addressing those wants and needs. It is necessary for SME service providers to regularly assess the market, specifically the competition for SME services. It is important to critically assess whether perceived competition is real. Making assumptions about what competitors are doing can lead to poor decision-making. A comprehensive Growth Action Plan will develop its strategy for sustainability in the context of current and forecasted market competition. 1. Local Competitor Identification Questions: While collaboration and coordination is critical to optimize the limited a. What organizations in your area resources available for SME, competitive forces exist in every market. offer services similar to yours? Successful SME providers know who the players are and how these b. How will you assess which competitors’ actions shape the health care market, especially in terms of services participants view as being equivalent to yours? chronic conditions prevention and management. While organizations may c. Which services do your referral function with selfless intentions, competition still exists between them partners view as being similar to – typically for scarce resources (e.g., funding, staff, volunteers) and the yours? loyalty of consumers with chronic conditions. d. What evidence is available to suggest there is unmet need for SME services? 2. New Entrants Questions: Identifying local competitors should include more than just existing a. What organizations could benefit competitors. A thorough competition assessment also identifies from offering SME services? What organizations that may begin offering SME services through is preventing them from offering the partnerships, acquisition, or building new programs. services now? b. Who do you anticipate offering SME services in the next 5 years? Why? c. Which organizations are interested in building loyalty or relationships with people with chronic conditions? Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages 18    Missouri’s Sustainability Toolkit
  • 19. 3. Services Available Outside the Market Questions: Many people travel great distances for health care services, especially a. How are you addressing specialist physician services for treating chronic conditions. The internet competition coming from outside provides an immeasurable number of options for people to learn self- your market? management skills and receive support (e.g., online communities). Some b. To what degree is the internet (e.g., websites) assisting potential health plans offer telephonic health coaching or nurse care managers for or current participants? people with chronic conditions. To some degree, there is competition from c. How will the internet influence SME services coming from beyond the traditionally-defined geographic demand for SME service in the market boundaries. It is important to understand the strengths and future? weaknesses of these competitive forces and the potential effect on demand for SME services offered by your organization. 4. Competitor Objectives and Strategies Questions: Knowledge of a competitor’s objectives facilitates a better prediction of a. How are your competitors the competitor’s reaction to changes in the market (e.g., reimbursement). investing in programs and services For example, a competitor that is focused on reaching short-term financial for people with chronic conditions? goals might not be willing to spend much money responding to competitive b. What are the size and nature of investments in SME services by attacks by another organization seeking to recruit (and gain market share) competitors? of SME participants. Since the stated strategy of competitors may differ c. What are the high-priority from actual activities, one of the best ways to determine true strategy is objectives of competing to follow how funds are directed, including hiring practices, promotional organizations? campaigns, capital expenditures, strategic partnerships, and mergers/ acquisitions. 5. Competitor Resources and Capabilities Questions: A competitor’s resources and capabilities determine its ability to a. What unique or special resources respond effectively to threats or changes in the market. A competitor’s do competitors have? capabilities can be analyzed according to its strengths and weaknesses in b. What differentiates competitors various functional areas, as is done in a SWOT (strengths, weaknesses, from your organization? c. Which competitors have financial opportunities, threats) analysis. Strengths and weaknesses are often found strength? internal to an organization, while opportunities and threats are external d. Which competitors are nimble and factors. It is important to evaluate each competitor’s ability and speed to able to change most quickly when increase capabilities in certain areas, such as SME programs. opportunities arise? e. To what degree are competitors using their resources and capabilities to repress growth of SME services? SME Programs for People with Chronic Conditions    19
  • 20. Key Planning Areas Competition continued 6. Competitor Forecast Profile Questions: Information from an analysis of the competitor’s objectives, strategy, and a. What are the potential offensive capabilities can be synthesized into a profile of possible moves that might and defensive moves of leading be made by the competitor, which would affect SME services in the market. competitors? The competitor forecast profile can be useful in planning and projecting b. To what degree will competitors be taking participants away from your future demand and capacity needs for SME services. programs? 7. Collaboration with Competitors Questions: A competitor can be converted to a collaborator. There may be opportunities a. Under what terms would you to cross-refer participants between programs that are managed by refer participants to another competitors within a community. Many people with chronic conditions need SME provider? additional or ongoing support which could be provided through a number of b. How would you structure an informal or formal alliance with organizations. Working in collaboration with a competitor may help reduce a competitor? cost of new participant acquisition, increase participation rates, and meet the needs of more people. 8. Reduce Competition Questions: Competition can lead to spreading limited resources so thin that all a. How can SME service providers organizations struggle and are at-risk for closure. Consider developing be consolidated? strategies to reduce the competition for program participants and b. Which SME providers in the related community resources. area should be considered for acquisition? Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages 20    Missouri’s Sustainability Toolkit
  • 21. SME Programs for People with Chronic Conditions    21
  • 22. Key Planning Areas Service Operations SME operations depend on the availability of trained people dedicated to the well-being of people with chronic conditions. A stable group of leaders and trainers, as well as an evidence-based SME curriculum, are fundamental to sustainable service delivery. A comprehensive Growth Action Plan will address the following strategies which seek to create reliable, high-quality service for all participants. 1. Master Trainers Questions: An organization who has developed an SME program will often train a a. How many master trainers exist in group of master trainers at a regional or state level to help build program your community or region for an delivery capacity. Researching the number of existing master trainers and SME program? where master trainers are located within an area can help save time and b. How many master trainers do you need trained in your community money. Determining the number of trained individuals to meet community or region to meet SME program needs can guide plans for future leader trainings and course offerings. needs? Typically, SME program master trainers are trained to provide leader c. How do you identify which existing trainings as well as participant courses. Master trainers are necessary for SME leaders may be good master leader development. Identifying strong individuals as master trainers, trainers? which may include current program leaders, can help with retention of d. Which individuals in your future leaders and program sustainability. community or region would be effective as an SME master trainer? 2. Leader Identification Questions: In order to develop a diverse pool of leaders and trainers for an SME a. Which individuals in your program, it is necessary to identify individuals and/or organizations community would be a good match within the community who have goals that are well-aligned with the for SME leadership? SME program. Pairing a health care professional with an individual b. How will you approach organizations in your community with a chronic condition to lead SME services has been shown to be an who serve a similar population to effective tactic. Consider tapping program alumni to become leaders who identify potential leaders? participate in service delivery. c. How will you invite health care professionals in your community to be part of the SME program? Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages 22    Missouri’s Sustainability Toolkit
  • 23. 3. Leader Training Questions: Most evidence-based programs have a specific curriculum for leader a. What steps are needed to hold your trainings as well as program delivery to participants. Once program leaders SME program leader trainings? are identified, it is important for a master trainer and co-trainer to consider b. How many leaders do you need the logistics for hosting leader trainings (e.g., identification of an accessible trained in your community to meet the needs of each SME program? training space, training marketing, leader registration process, training c. To what extent do your leader materials). Leader trainings are an important aspect of building capacity for trainings meet the needs of future service operations. leaders of SME programs? 4. Leader Retention Questions: Identification of strong leaders coupled with a positive training experience a. In what ways will you show (and successful implementation of the SME program) helps to increase appreciation to and/or provide leader retention. Frequent logistical and technical support, communication, recognition for leaders? and opportunities to network with other leaders provide leader support. b. How do you incentivize individuals to participate at different levels of Recognition and appreciation of SME program leaders’ time and dedication the program, such as becoming a to the program are highly valuable tools for leader retention. leader? c. What levels of support do you provide to leaders of SME programs? 5. Menu of Service Options Questions: Offering a menu of SME services can help attract participants and a. To what degree does your service increase the likelihood that community needs are met. While having too menu need to be expanded or many programs may overwhelm or confuse the audience, a menu allows reduced? participants to exercise a choice. Choice can be a powerful way of engaging b. How can you assure services are offered at regular intervals participants in the SME process. It is important to offer services consistently throughout the year? (e.g., courses) at accessible locations throughout the community. c. What mix of different evidence- based programs would best serve the needs of your community? SME Programs for People with Chronic Conditions    23
  • 24. Key Planning Areas Service Operations continued 6. Consistent Course Offerings Questions: A sustainable program will have consistent course offerings at a a. What courses are already recognizable location in the community. Networking with other course occurring in your community and leaders in the area can help maintain this consistent delivery, create a where are they located? leadership pool, and implement the SME program at multiple locations b. Who could help coordinate consistent course offerings at the throughout a greater region. Frequent course offerings of the same program same location? can help balance the number of participants while maintaining SME c. How can you best market program recommended attendance guidelines. It can be easier to market consistent course offerings? courses that are offered consistently. 7. Quality Assurance and Fidelity Questions: Research on the effectiveness of an SME program has been used to a. How are existing tools used to designate the curriculum as an evidence-based program. Maintaining the demonstrate fidelity? fidelity, or adherence to curriculum by leaders, is essential for service b. Who will implement fidelity consistency and, in turn, its long-term sustainability. Since modification of assessments? c. How can training be used to an evidence-based program by adding or deleting components can diminish increase fidelity by program its efficacy, some SME programs have fidelity guidelines to assist in leaders? monitoring fidelity and restricting program use to those SME providers that d. What processes are in place to can measure and assure fidelity. assure program service quality is achieved? Efficacy: (n.) the power to produce Fidelity: (n.) the quality or state an effect (Merriam-Webster) of being faithful; accuracy in details or exactness (Merriam-Webster) Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages 24    Missouri’s Sustainability Toolkit
  • 25. SME Programs for People with Chronic Conditions    25
  • 26. Key Planning Areas Evaluation Collecting data from an SME program assists with program planning, assessing program effectiveness, reporting outcomes, and, most importantly, driving quality improvement. A comprehensive Growth Action Plan will address the following strategies which seek to create a culture of data-driven quality improvement. 1. Case for Data Collection Questions: When implementing an evidence-based program, data collection may a. What data collection requirements be required by specific revenue sources, but is generally a good practice exist for your SME program? for program sustainability. The determination of necessary and desired b. Which data assessment tools meet program outcomes is important in designing an SME program data your organization’s needs? c. Where can you research if current collection assessment. SME program information is frequently collected assessment tools or analysis through the creation or utilization of previously established data assessment resources are readily available tools. Some funders or SME program developers require data assessment (e.g., other SME providers, state or and may have an established tool or a list of required information to be regional license holder, funder)? collected by developing an assessment. Specific organizational goals d. What questions are you trying to established can be measured using data collection tools. Data collection answer through data collection? is not always necessary and can be non-productive if a goal for collecting data is not clearly stated. Contracting with data analysis organizations or individuals may be a good option if data collection is appropriate and/or required. Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages 26    Missouri’s Sustainability Toolkit
  • 27. 2. Data Collection Methods Questions: Establishing desired outcomes and identifying data analysts are two early a. Which methods of data collection steps in a data collection process. Multiple methods of data collection are appropriate for your SME exist; it is important to choose a method that matches organization goals, program? the SME program, and desired goals or outcomes. Regardless of the b. How will you partner with other organizations providing your SME method chosen for data collection, information gathered on evidence-based program to report data collected? programs is typically reported to the SME license holder organization c. How will you communicate data within the state or region. Communicating with SME partners is vital to methods chosen to the rest of your ensuring all necessary data is reported, and to reduce dual organization/partners? data collection. 3. Program Evaluation Questions: After collecting data, there is an opportunity for internal or contracted data a. Who will you seek out to assist analysts to evaluate outcomes. SME license holder organizations may have with program evaluation? existing data systems or other methods for evaluating data and producing b. What methods of evaluation does data-based materials. If a program is evidence-based, there may not be an SME license holder or other partner currently use? a need for additional data evaluation. However, evaluation materials can c. How will you communicate be a great resource for demonstrating the usefulness and efficacy of an information from evaluation SME program to a community. Program evaluation reports can also be an reports to SME partners and your effective application tool when applying for additional community? revenue sources. 4. Communicating Outcomes Questions: Once data is gathered and the SME program is evaluated, the final step is a. What reports have been created utilizing the information. Information gathered can assist SME providers from data collected? with future program planning. For example, data evaluation can identify b. What can you highlight from the in which areas courses are needed, but are not yet offered. Sharing SME reports that will be impactful to your audience? program outcomes with community partners and citizens, including c. How can you use information legislators, can raise program awareness. Multiple methods exist for gathered in future program disseminating data reports, including electronic posting, printed materials, planning? and e-mail sharing. To share collected information, consider hosting a d. With whom will you share community forum or holding a partner meeting. information? e. Which method(s) will you use to disseminate data reports? SME Programs for People with Chronic Conditions    27
  • 28. Key Planning Areas Organizational Support Organizational supports include the culture, practice, and leadership within the company (or non-profit agency) in which an SME operates. When organizational supports are ideal, high-level leadership (e.g., health system CEO, health agency director) is committed to and visibly-involved in the SME program. Committed, involved leadership can monitor progress and assist in facilitating new partnerships. It is absolutely essential to build and maintain organizational support to achieve a sustainable business. It is important to realize that even the best organizational support decays when left unattended. A comprehensive Growth Action Plan will address the following strategies which seek to increase support from within the organization that the SME program operates. 1. Statement of Organizational Alignment Questions: Support from high-level leadership for SME programs will increase if a. How does the SME program there is clear evidence that it makes sound business sense. Top leaders contribute directly to the stated and other key stakeholders in an organization need to see SME as an organizational mission and goals? essential strategy in improving the health outcomes for those with chronic b. Which leaders in the organization would benefit from a better conditions. It needs to be readily apparent in a clearly communicated understanding of the value of SME way there is a perceived high return on investment from SME programs services? for the sponsoring organization. It is recommended that SME providers c. To what degree does the develop a brief statement of organizational alignment which clarifies the SME program help the larger contributions of SME services to the broader mission and strategic goals of organization grow revenue or the sponsoring organization. reduce overall costs? 2. Champions Questions: The support of an influential leader or stakeholder from the sponsoring a. Who are prospective champions organization can be very valuable in gaining buy-in across your within your organization? organization. Committed champions can be instrumental in securing b. What is your plan to recruit and sustaining funding as well as other kinds of support. internal champions? c. What are you asking of the people who are your program’s champions? Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages 28    Missouri’s Sustainability Toolkit
  • 29. 3. Clarify Roles and Organization Structure Questions: There needs to be an internal team responsible for the various a. To what degree do team implementation tasks of the SME program. Some SME programs may members understand how they struggle due to lack of clarity in the roles and organizational structure in can contribute to growth and which staff, partners, volunteers, and others work. It is highly recommended sustainability of the program? b. How does the current all people involved with the SME program understand current roles organizational structure meet the as well as specific ways to contribute for the growth and sustainability anticipated needs of SME program of the program. operations in the future? 4. Patient Care Team Integration Questions: For SME programs that are based in health care systems, organizational a. What role does SME have on patient support may be enhanced through integration with patient care teams. care teams at your organization? There is considerable variability in what constitutes a patient care team. b. To what degree is SME part of In some organizations it includes both clinical providers and non-clinical routine primary care? Discharge planning? support staff; other organizations include family members. Regardless c. What are the advantages and of the model, a well-functioning team serving the best interests of a disadvantages of including SME person with chronic conditions should include SME programming. It is providers on patient care teams? recommended that SME providers explore ways to become full members d. Who should be approached to of patient care teams and participate in the planning explore new ways for including SME and coordination of services. providers on patient care teams? 5. Volunteer Management Questions: Many SME programs depend on volunteers for service delivery and/or a. What are the opportunities for program administration. Building and maintaining a base of committed your SME program to incorporate volunteers takes work. Volunteers must be invited, assessed for good fit, volunteer service into its model of trained, assigned work duties, and thanked. Although there is considerable service delivery? b. How do you assure the volunteer effort involved, volunteers add to the sustainability of an SME program experience is enriching and in many ways, such as overall cost reduction and ongoing community encourages a long-term relationship involvement. with the program? c. What are your plans to minimize a potential loss of volunteers? d. What are the skills and personal attributes needed to recruit and successfully manage a group of volunteers? SME Programs for People with Chronic Conditions    29
  • 30. Key Planning Areas Organizational Support continued 6. Succession Planning Questions: Sustainability is fragile when SME program leadership hinges on one a. How is your organization cultivating person. If, or when, the leader leaves, the program is placed at risk. In leadership for the future? order to assure the long-term viability of an SME program, leadership b. What are the opportunities for development and succession planning must be dealt with proactively. growth and development of staff and volunteers? Having the support of another individual, including organization c. How can you assure program administrators, can be beneficial when considering succession planning. survival if the current leader were to suddenly depart? 7. Participant Advisory Council Questions: It is critical for a person with a chronic condition to be very involved a. To what degree are SME program in self-care. Participant input is essential for improving SME practices, participants involved in leadership? policies, and overall service delivery. A participant advisory council is one b. What are the best ways to way to incorporate participant input into the planning and evaluation of incorporate the guidance of participants in planning and SME services. evaluation? Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages 30    Missouri’s Sustainability Toolkit
  • 31. 8. Staff Training and Education Questions: Within health care systems and public health agencies, there are many a. What are the specific training and staff that care for people with chronic conditions. SME providers can play education needs related to chronic a vital role in staff training and education, especially in terms of quality conditions? assurance, risk management, and care coordination. Through workshops, b. How can your SME program staff address these training and presentations, etc., SME providers can expand program relevance and education needs? utility, thereby generating wider and deeper support for their services. c. To what degree can funding be The referral network may also be expanded through staff training and secured for your program’s work in education. staff training and education? d. What are your first steps to offering a training program to staff employed by your health system or public health agency? SME Programs for People with Chronic Conditions    31
  • 32. Key Planning Areas Community Support Sustainability involves creating and building momentum to maintain community-wide change by organizing and maximizing community assets and resources. The cultivation of community support may take time, but the development of such support can be planned. A comprehensive Growth Action Plan will address the following areas that can contribute to broad and influential support across the community. 1. Advisory Council Questions: Establish a formal group of community members for advising SME a. Who are the chronic conditions program leadership and staff about operations and strategies for growth. experts in your area? In addition to expanding access to subject matter expertise, an advisory b. What are the best ways to establish council can help set priorities and maintain accountability for key goals. an advisory council? c. What are your expectations for advisory council members? d. Who can assist with the formation of an advisory council? 2. Community Health Coalition Participation Questions: A community coalition is an alliance of stakeholders with a shared interest a. Which health coalitions in your in health improvement, specifically for prevention or management of chronic area are focused on the needs of conditions. Effective coalitions mobilize diverse talents, resources, and people with chronic conditions? strategies; limit duplication of strategies and services; and work as vehicles b. How do coalitions in your area support SME services? for exchanging knowledge and ideas. The coalition may be focused on one c. What are your plans to link your or more chronic condition(s). Active participation in coalition activities, organization into established or especially in a leadership role, helps raise awareness of SME services and new coalitions? helps connect SME to other health programs and services. The development of a community health coalition should be explored if an effective one does not currently exist. Referral   Service  Organizational Revenue Advocacy Network Operations Support Marketing Competition Evaluation Community  Resource  Support Linkages 32    Missouri’s Sustainability Toolkit