Anna Aistrich 25.3.2015 Viikki - Breast cancer survivors peer support groups
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Health educator Anna Aistrich, MPH, about using MealLogger to empower women recovering from breast cancer surgery.
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Anna Aistrich 25.3.2015 Viikki - Breast cancer survivors peer support groups
- 1. Mobile peer support groups for breast cancer survivors Anna Aistrich, MPH Consultant Wellness Foundry
- 2. Siskojen Siskot/Super Sisters • MealLogger (ML) peer support group for breast cancer survivors aimed at: – improving physical condition following treatment – weight loss and/or – dietary reform with emphasis on cancer relapse prevention • In 2012, six (6) women recruited from a large, general Facebook support group for breast cancer survivors • Moderated by a health educator, a breast cancer survivor herself • After 6 weeks, members completed an online survey.
- 3. Participant Feedback • How much did participation in the group inspire/motivate you to try to eat more healthfully? A lot: 83% , Somewhat: 17% • Do you feel that participating in a ML group is a good way to support breast cancer survivors in their continued recovery? 100% 17% 33% 17% 33% For how long would you like to continue participating in the group? 3 months 4-6 months 6-12 months Over 12 months
- 4. Highlights • Inspiration/motivation: new meal ideas or tips; peer pressure and/or support to make healthy choices; encouragement and positive feedback from the moderator and peers; knowing that they were “all in the same boat” with respect to their breast cancer recovery • Visual element: being able to see and evaluate what they eat; ease of comparing meals with others • Mindfulness: being more aware of food choices as a result of photographing and sharing them; realizing how often one “eat[s] without thinking” • Better meal rhythm: process of photographing and logging meals helped cut down on snacking and encouraged more regular meals; easy to recall when last meal was eaten and when to plan to eat next
- 5. Conclusions • ML peer support group proved to be a successful way to help breast cancer survivors achieve desired dietary changes, while also receiving peer support for their ongoing recovery. • The virtual forum allowed members to interact much more frequently than meeting in person. • Group created the opportunity to give and receive nearly instantaneous feedback and support. • Many were so pleased with the outcomes that they wanted to continue the group until they feel the changes have become truly permanent.
Notes de l'éditeur
- A ML peer support group was formed to help breast cancer survivors motivate each other in achieving their nutritional goals while also providing mutual, emotional encouragement for their general recovery. Although most of the members had interacted with one another in the large forum, few of them knew one another personally. Only half of the members were located in the same geographic area. However, via the more intimate ML group, members were able to support each other by giving tips about certain foods or product brands, sharing meal ideas and providing encouragement when someone was struggling. An online survey was created to document members experiences and learn about their preferences and suggestions for improvement.
- As a breast cancer survivor herself, the moderator was able to understand the sources of members’ stress and their reasons for less healthy choices. This intimate understanding allowed her to give the most appropriate comments regarding food choices as well as general emotional support. These interactions are the basis of the motivation that the group members found so necessary and helpful in achieving changes.