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Diet and autistic spectrum
                                   disorder

        utistic spectrum disorders (ASDs) are            timetables detailing when and where to eat

A       common developmental disorders that
        affect the way a person communicates
and relates to people around them. ASDs
                                                         and what will be eaten, or visual schedules
                                                         detailing behaviour expected at meal time,
                                                         or foods to be tried at a meal time.
include autism, pervasive development                    Individuals with ASD often respond
disorder not otherwise specified (PDD-NOS)               better to visual instructions - i.e. writing,
and Asperger's syndrome, and are complex,                picture symbols, photos, signing - rather
lifelong disorders.                                      than verbal
  This sheet briefly summarises two of the most          Getting help with underlying medical issues
common dietary concerns in ASD - extreme                 that may be making eating problems worse
faddy eating and using diet as a treatment for           - including dental or gut problems, such
ASD, and highlights that although many useful            as painful teeth or constipation;
behavioural strategies exist to help with                changing medications that are
extreme faddy eating, there is limited evidence          known to reduce appetite; and
for the use of diet as a treatment for ASD.              help with physical difficulties
Extreme faddy eating                                     eating or swallowing from speech and
People with ASD may have any one or a                    language, occupational or
number of the following problems with eating a           physiotherapists
varied diet, which can lead to them being                Identifying an individual's specific
extremely faddy eaters:                                  anxieties, and devising a slow step-
  Being very distressed at trying any new                by-step programme for overcoming them,
  foods                                                  including creating a calm, comfortable
  Having a strong preference for foods of a              eating environment
  particular colour such as only ever eating             Being imaginative in finding things to
  red foods                                              motivate more varied eating e.g. devising a
  Only accepting processed foods with                    board game where specific squares
  familiar packaging, and rejecting favourite            instruct to try a different food, writing
  foods when the packaging changes                       special stories about eating, keeping a
  Distress in some meal time environments                visual list of foods liked, and foods to
  such as if it is too noisy, too bright, or if they     try next.
  can smell other foods                                Diet as a treatment for ASD
  Only eating food that is presented in a                Although 'diets' are a popular treatment
  consistent way such as always on the same            for ASD, particularly advocated by
  plate                                                alternative nutritional practitioners, there is
Many individuals with these eating problems            a lack of consistent and good quality
seem to live healthily on what seems like an           scientific evidence.
                unhealthily restricted diet. If a        Therefore, no particular diets are
                person's diet is causing health        recommended across the board for the
                problems such as constipation,         treatment of ASD.
                weight loss, poor growth,                A minority of individuals with ASD do
                obesity, or nutrient deficiencies,     seem to find that their specific behaviour
                a Registered Dietitian can             or bowel problems improve with some
assess the adequacy of the diet and advise             dietary changes, but there are no blood
appropriately.                                         or other clinical tests that can reliably
                                                       indicate which dietary changes could be
 Strategies which may help with selective              helpful to individuals.
eating include:                                          The following is a brief overview of
  Making mealtimes predictable by having a             six of the most common
  structured eating routine, using visual              dietary 'treatments'.
Exclusion diets or food avoidance
1. Gluten-free and casein-free (GFCF) diet
Involves: Avoiding gluten - a protein contained in wheat, barley and rye, and a similar protein in
oats. Bread, pizza, pasta, pastry, biscuits, some breakfast cereals, and some processed foods
contain gluten. Plus avoiding casein - a protein in cow's milk and similar proteins in goat's and
sheep's milk. Yogurt, cheese, butter, some margarines, ice-cream, milk chocolate, biscuits, and
some processed products contain casein.
The theory: People with ASD have a gut which is abnormally 'leaky', creating an intolerance to
these proteins which affects mental function, and influences behaviour.
The evidence: Well-respected independent reviews of the evidence have found the evidence
inconclusive. There is evidence that supports and refutes the use of this diet.
2. Exclusion of food additives
Involves: Avoiding a wide range of food additives, which commonly include colourings (E100-
E199), the flavour enhancer monosodium glutamate (MSG, E621), the sweetener aspartame
(E951), flavourings (not given E-numbers), benzoate preservatives (E210-219) and caffeine.
The theory: That people with ASD are intolerant to these additives, which affects their behaviour.
The evidence: There is no evidence that people with ASD should avoid food additives. All food
additives are regulated by the government for safe use in the UK, but some people show
intolerance to individual or groups of food additives numbers.
3. Exclusion of phenolic compounds and foods high in salicylates
Involves: Exclusion of a wide range of foods including cheese, chocolate, tomatoes, oranges,
bananas, yeast extract, some food colourings and many other fruits and vegetables.
The theory: That some individuals lack the enzymes needed to break down compounds in these
foods, affecting symptoms of ASD.
The evidence: There is no evidence to suggest that avoiding these foods is beneficial.
4. Yeast-free diet
Involves: There is no standard 'yeast free' diet, but it often excludes natural and refined sugars
(including fruit), fermented foods such as breads, vinegar, alcohol, cheese, soy sauce, coffee and
processed meats.
The theory: Eating less yeast and sugar reduces the growth of yeasts in the gut, which in theory
make the gut more leaky and make an individual suffer from intolerances.
The evidence: Yeast overgrowth in the gut is usually treated by prescribed medications, and there
is no evidence that eating less sugar and dietary yeasts (which are not the same as gut yeasts)
helps.
Supplements
5. High doses of vitamin B6 and magnesium
The theory: Individuals with ASD have an abnormal vitamin B6
metabolism, and so need high doses to correct this.
The evidence: There is some weak evidence for improvement in ASD behaviour
following high doses of vitamin B6 and magnesium, but well respected independent
reviews of the evidence have found the evidence inconclusive.
6. Fish oil and other fat supplements rich in omega 3 fats
The theory: Omega 3 fats improve cell membranes in the brain, and improve some aspects of
brain function.
The evidence: There is some evidence that omega 3 fat supplements improve other
neurodevelopmental disorders such as mood disorders, learning difficulties and developmental
coordination disorder, but none specifically for ASD. There are no studies showing whether longer
term use of fish oils maintains these changes, or carries any health risks not yet identified. More
studies are needed to see whether these effects are greater than achieved by eating a healthy diet
containing fish as recommended for the general population.
The drawbacks of using diet as a treatment for ASD
  Although the perception is that dietary change is much safer than the use of medications,
  excluding foods without making sure the diet stays balanced can cause dietary deficiencies,
  weight loss and poor growth. The risks increase as more foods are excluded, and children who
  are extreme faddy eaters can be at high risk of having an inadequate diet.
  Taking individual vitamins or minerals at high doses can sometimes be harmful. The levels of
  vitamin B6 recommended are often above the recommended upper safe dose. These levels
  have been linked to nerve damage in a small number of people, and there is a particular risk
  that some individuals with ASD do not feel pain or aren't able to communicate that they are
  feeling pain, so would not recognise the tingling which could warn of nerve damage.
  For individuals who find change very upsetting, dietary changes may be hard to achieve,
  even slight changes such as taking capsules.
  Supplements and dietary changes can be costly.

It is always best to discuss treatment changes with a doctor.
                   The role of a Registered Dietitian in diet and ASD
                          Registered Dietitians can provide tailored, holistic advice and support
                     on achieving a healthy, balanced diet including the use of vitamins and
                       minerals to supplement a diet if needed, and can support individuals with
                          ASD who decide to try diet as a treatment. Registered Dietitians work
                           in the NHS and privately, liaising with other health and education
                           professionals where needed.
                           Ask your family doctor for a referral to a local dietitian or find a
                           freelance dietitian in your area through www.dietitiansunlimited.co.uk.



For more information about ASD: National Autistic Society www.nas.org.uk

To find a private dietitian: www.dietitiansunlimited.co.uk

For Government advice on the recommended and safe doses of vitamins and minerals:
www.eatwell.gov.uk

Further information about diet and ASD visit www.nutritionnutrition.com


Written by Zoe Connor, specialist paediatric dietitian, on behalf of Dietitians' Autistic Spectrum
Interest Group (DASIG)
                          This Food Fact sheet is a public service of The British Dietetic Association
                             intended for information only. It is not a substitute for proper medical
                          diagnosis or dietary advice given by a Registered Dietitian (RD). To check
                                   that your dietitian is Registered check www.hpc-uk.org.
                                 Other Food Fact sheets are available from www.bda.uk.com.
                                                    © BDA September 2006

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Diet & autistic spectrum disorder

  • 1. Diet and autistic spectrum disorder utistic spectrum disorders (ASDs) are timetables detailing when and where to eat A common developmental disorders that affect the way a person communicates and relates to people around them. ASDs and what will be eaten, or visual schedules detailing behaviour expected at meal time, or foods to be tried at a meal time. include autism, pervasive development Individuals with ASD often respond disorder not otherwise specified (PDD-NOS) better to visual instructions - i.e. writing, and Asperger's syndrome, and are complex, picture symbols, photos, signing - rather lifelong disorders. than verbal This sheet briefly summarises two of the most Getting help with underlying medical issues common dietary concerns in ASD - extreme that may be making eating problems worse faddy eating and using diet as a treatment for - including dental or gut problems, such ASD, and highlights that although many useful as painful teeth or constipation; behavioural strategies exist to help with changing medications that are extreme faddy eating, there is limited evidence known to reduce appetite; and for the use of diet as a treatment for ASD. help with physical difficulties Extreme faddy eating eating or swallowing from speech and People with ASD may have any one or a language, occupational or number of the following problems with eating a physiotherapists varied diet, which can lead to them being Identifying an individual's specific extremely faddy eaters: anxieties, and devising a slow step- Being very distressed at trying any new by-step programme for overcoming them, foods including creating a calm, comfortable Having a strong preference for foods of a eating environment particular colour such as only ever eating Being imaginative in finding things to red foods motivate more varied eating e.g. devising a Only accepting processed foods with board game where specific squares familiar packaging, and rejecting favourite instruct to try a different food, writing foods when the packaging changes special stories about eating, keeping a Distress in some meal time environments visual list of foods liked, and foods to such as if it is too noisy, too bright, or if they try next. can smell other foods Diet as a treatment for ASD Only eating food that is presented in a Although 'diets' are a popular treatment consistent way such as always on the same for ASD, particularly advocated by plate alternative nutritional practitioners, there is Many individuals with these eating problems a lack of consistent and good quality seem to live healthily on what seems like an scientific evidence. unhealthily restricted diet. If a Therefore, no particular diets are person's diet is causing health recommended across the board for the problems such as constipation, treatment of ASD. weight loss, poor growth, A minority of individuals with ASD do obesity, or nutrient deficiencies, seem to find that their specific behaviour a Registered Dietitian can or bowel problems improve with some assess the adequacy of the diet and advise dietary changes, but there are no blood appropriately. or other clinical tests that can reliably indicate which dietary changes could be Strategies which may help with selective helpful to individuals. eating include: The following is a brief overview of Making mealtimes predictable by having a six of the most common structured eating routine, using visual dietary 'treatments'.
  • 2. Exclusion diets or food avoidance 1. Gluten-free and casein-free (GFCF) diet Involves: Avoiding gluten - a protein contained in wheat, barley and rye, and a similar protein in oats. Bread, pizza, pasta, pastry, biscuits, some breakfast cereals, and some processed foods contain gluten. Plus avoiding casein - a protein in cow's milk and similar proteins in goat's and sheep's milk. Yogurt, cheese, butter, some margarines, ice-cream, milk chocolate, biscuits, and some processed products contain casein. The theory: People with ASD have a gut which is abnormally 'leaky', creating an intolerance to these proteins which affects mental function, and influences behaviour. The evidence: Well-respected independent reviews of the evidence have found the evidence inconclusive. There is evidence that supports and refutes the use of this diet. 2. Exclusion of food additives Involves: Avoiding a wide range of food additives, which commonly include colourings (E100- E199), the flavour enhancer monosodium glutamate (MSG, E621), the sweetener aspartame (E951), flavourings (not given E-numbers), benzoate preservatives (E210-219) and caffeine. The theory: That people with ASD are intolerant to these additives, which affects their behaviour. The evidence: There is no evidence that people with ASD should avoid food additives. All food additives are regulated by the government for safe use in the UK, but some people show intolerance to individual or groups of food additives numbers. 3. Exclusion of phenolic compounds and foods high in salicylates Involves: Exclusion of a wide range of foods including cheese, chocolate, tomatoes, oranges, bananas, yeast extract, some food colourings and many other fruits and vegetables. The theory: That some individuals lack the enzymes needed to break down compounds in these foods, affecting symptoms of ASD. The evidence: There is no evidence to suggest that avoiding these foods is beneficial. 4. Yeast-free diet Involves: There is no standard 'yeast free' diet, but it often excludes natural and refined sugars (including fruit), fermented foods such as breads, vinegar, alcohol, cheese, soy sauce, coffee and processed meats. The theory: Eating less yeast and sugar reduces the growth of yeasts in the gut, which in theory make the gut more leaky and make an individual suffer from intolerances. The evidence: Yeast overgrowth in the gut is usually treated by prescribed medications, and there is no evidence that eating less sugar and dietary yeasts (which are not the same as gut yeasts) helps. Supplements 5. High doses of vitamin B6 and magnesium The theory: Individuals with ASD have an abnormal vitamin B6 metabolism, and so need high doses to correct this. The evidence: There is some weak evidence for improvement in ASD behaviour following high doses of vitamin B6 and magnesium, but well respected independent reviews of the evidence have found the evidence inconclusive. 6. Fish oil and other fat supplements rich in omega 3 fats The theory: Omega 3 fats improve cell membranes in the brain, and improve some aspects of brain function. The evidence: There is some evidence that omega 3 fat supplements improve other neurodevelopmental disorders such as mood disorders, learning difficulties and developmental coordination disorder, but none specifically for ASD. There are no studies showing whether longer term use of fish oils maintains these changes, or carries any health risks not yet identified. More studies are needed to see whether these effects are greater than achieved by eating a healthy diet containing fish as recommended for the general population.
  • 3. The drawbacks of using diet as a treatment for ASD Although the perception is that dietary change is much safer than the use of medications, excluding foods without making sure the diet stays balanced can cause dietary deficiencies, weight loss and poor growth. The risks increase as more foods are excluded, and children who are extreme faddy eaters can be at high risk of having an inadequate diet. Taking individual vitamins or minerals at high doses can sometimes be harmful. The levels of vitamin B6 recommended are often above the recommended upper safe dose. These levels have been linked to nerve damage in a small number of people, and there is a particular risk that some individuals with ASD do not feel pain or aren't able to communicate that they are feeling pain, so would not recognise the tingling which could warn of nerve damage. For individuals who find change very upsetting, dietary changes may be hard to achieve, even slight changes such as taking capsules. Supplements and dietary changes can be costly. It is always best to discuss treatment changes with a doctor. The role of a Registered Dietitian in diet and ASD Registered Dietitians can provide tailored, holistic advice and support on achieving a healthy, balanced diet including the use of vitamins and minerals to supplement a diet if needed, and can support individuals with ASD who decide to try diet as a treatment. Registered Dietitians work in the NHS and privately, liaising with other health and education professionals where needed. Ask your family doctor for a referral to a local dietitian or find a freelance dietitian in your area through www.dietitiansunlimited.co.uk. For more information about ASD: National Autistic Society www.nas.org.uk To find a private dietitian: www.dietitiansunlimited.co.uk For Government advice on the recommended and safe doses of vitamins and minerals: www.eatwell.gov.uk Further information about diet and ASD visit www.nutritionnutrition.com Written by Zoe Connor, specialist paediatric dietitian, on behalf of Dietitians' Autistic Spectrum Interest Group (DASIG) This Food Fact sheet is a public service of The British Dietetic Association intended for information only. It is not a substitute for proper medical diagnosis or dietary advice given by a Registered Dietitian (RD). To check that your dietitian is Registered check www.hpc-uk.org. Other Food Fact sheets are available from www.bda.uk.com. © BDA September 2006