Design and development of a WEB APPLICATION EXPLOITING the WEB OF DATA for the CREATION, MANAGEMENT and REUSE of PERSONAL HOSPITALIZATION RECORDS

1. PHARMAPersonal HospitAlizAtionRecordsMAnagement InterDataNet - info@interdatanet.org Maria Chiara Pettenati, Lucia Ciofi, Lorenzo Bianchi, Ernesto Iadanza, Stefano Turchi, Riccardo Billero, Franco Pirri and Dino Giuli May 3 2011

2. Telematics Lab, Electronics and TelecommunicationsDept@University of Firenze, IT Ing. Maria Chiara Pettenati Ing. Lucia Ciofi Ing. Lorenzo Bianchi Ing. Ernesto Iadanza Ing. Stefano Turchi Ing. Riccardo Billero Prof. Franco Pirri PhD Program in Telematics and Information Society telematicsys.det.unifi.it Prof. Giuli

3. PHARMA objectives 3 Design and development of a WEB APPLICATION EXPLOITING the WEB OF DATA for the CREATION, MANAGEMENT and REUSE of PERSONAL HOSPITALIZATION RECORDS

4. Background 4 Web of Documents evolves in the Web of Data Reuse of information fragments via the Web Reuse of Personal Private Information on a Web-wide scale poses problems of security and privacy and limits the widespread diffusion of e-government applications

5. Objectives Design a develop a e-health application on top of a Web of Data infrastructure allowing the distributed management of Hospitalization Records Demonstrate its validity and applicability in a security and privacy safe way on a Web scale thus paving the way for its wider reuse in the more general Personal Health Record (PHR). 5

6. Project Steps 6 Design and development of the application for the management of hospitalization records on top of a Web of Data infrastructure (InterDataNet) Analysis of the hospitalization record Integrated Therapeutic Chart (ITC) Definition of a the hospitalization record conceptual model Analysis and definition of the application workflow Use cases and sequence diagrams Application implementation Design and development of the GUI Design and development of the interconnection with the IterDataNet infrastructure Use Cases validation in real settings

7. Hospitalization Records vs Personal Health Record 7

8. A complete and accurate summary of the health and medical history of an individual by gathering data from many sources and making this information accessible online to anyone who has the necessary electronic credentials to view the information. Personal Health Record (PHR) 8 PHR

9. A complete and accurate summary gathering all the personal data and meaningful clinical information related to a patient and to a single hospitalization episode (Italian Health Ministry, 1992). Hospitalization Records (HR) 9 HR PHR

10. Hospitalization Records vs Personal Health Record 10 PHR HR

11. Is an internal communication tool aimed at integrating into a single documentall the information related to the therapeutictreatments of an hospitalizedpatient. Management of ClinicalRisk Unit, TuscanyRegion , 2005 (G.R. n. 267 16-04-2007) Integrated Therapeutic Chart (ITC) (in Italian: SchedaTerapeuticaUnica - STU) 11

12. PHR vs Hospitalization Record vs STU 12 PHR HR STU

13. Definition of a the hospitalization records conceptual model 1/3 13 PHR Personal HospitalizationRecords

14. Definition of a the hospitalization records conceptual model 2/3 14 HR Hospitalization Record

15. Definition of a the hospitalization records conceptual model 3/3 15 ITC IntegratedTherapeutic Chart

16. Collaborating on the Hospitalization Record 1/2 HR Hospitalization Record Nurse administersdrug MedicalDoctorprescribes a treatment Radiologist X-rays the patient 16

17. Collaborating on the Hospitalization Record 2/2 17 Doctor Nurse HTTP URI of the patient HR HTTP URI of the patient HR HR Hospitalization Record 17

18. 18 The doctors logs in with his credentials and looks for a specific patient

19. 19 The doctor looks for the patient’s current Hospitalization Record

20. 20 The doctor looks for the patient’s current Integrated Therapeutic Chart

21. 21 The doctor prescribes a treatment on the Integrated Therapeutic Chart and digitally signs the prescription

22. 22 The nurse administers the treatment and digitally signs the Integrated Therapeutic Chart

23. PHARMA – the application Is a Firefox plugin Is a Web application exploiting the services offered by the InterDataNet middleware security, privacy, versioning, replica, provenance, licensing Allows asynchronous collaboration between different distributed actors in the hospital Data are structured into documents Hospitalization records, integrated therapeutic charts Data are on the Web Identified by HTTP URI Reusable and manageable through HTTP operations (GET,PUT,POST,DELETE) 23

24. InterDataNet InterDatanetis an extension of the Web aiming to realize the Web of Data to allowcollaboration and reuse of complex information resourcesstructuredintodocuments 24

25. 25 Is a four layer architecture The top layer manages data structured into documents and offers APIs to Applications. The bottom layers provide a Web resource abstraction for every single data to be reused. The intermediate layers provide further collaboration-enabling services (versioning and replica management.)

26. PHARMA application infrastructure

27. InterDataNetfeatures General-purpose approach to data integration and interoperability Based on a flexible Information Model (IDN-IM) Hinging around the use of «documents» Enables collaboration through sharing of structured documents Provides infrastructural services to support workflows development Scalable at a Web level Provides configurable replication and versioning services Supports privacy, provenance and security

28. PHARMA’s architecture 28 Hospital Department LAN PHARMA Proxy Other Hospital Departments LANs PHARMA Client Internet IDN Stack IDN Stack

30. Tuscany Regional standard Integrated Therapeutic Chart (ITC)

31. Definition of a the hospitalization record conceptual model

32. Analysis and definition of the application workflow

33. Use cases and sequence diagrams

34. Application implementation

35. Design and development of the GUI Design and development of the interconnection with the infrastructure Use Cases validation in real settings

36. Pilots Industrialization Research Directions

37. PHARMAPersonal HospitAlizAtionRecordsMAnagement info@interdatanet.org Maria Chiara Pettenati, Lucia Ciofi, Lorenzo Bianchi, Ernesto Iadanza, Stefano Turchi, Riccardo Billero, Franco Pirri and Dino Giuli May 3 2011