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A Methodology for Quantitative Measurement of Quality and Comprehensiveness of a Research Data Repository   (IDR Snapshot) Vojtech Huser MD PhD
Acknowledgement ,[object Object],[object Object],[object Object],[object Object],[object Object],marshfieldclinic.org/birc
Agenda ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],marshfieldclinic.org/birc
[object Object],[object Object],Background marshfieldclinic.org/birc Background Hersh  BMC Medical Informatics and Decision Making  (2009) 9:24 doi:10.1186/1472-6947-9-24
[object Object],[object Object],Background marshfieldclinic.org/birc Background Hersh  BMC Medical Informatics and Decision Making  (2009) 9:24 doi:10.1186/1472-6947-9-24
Introduction ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],marshfieldclinic.org/birc Frueh FW. Back to the future: why randomized controlled trials cannot be the answer to pharmacogenomics and personalized medicine.  Pharmacogenomics  2009;10(7):1077-81. TRIAD
SHRINE: Query federation example ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],marshfieldclinic.org/birc
Motivation ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],linkedin.com/in/vojtechhuser
Measure ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],linkedin.com/in/vojtechhuser
Data Structures (VDW) linkedin.com/in/vojtechhuser
Data Structures (i2b2) linkedin.com/in/vojtechhuser
Data Structures (HealthFlow) linkedin.com/in/vojtechhuser healthcareworkflow.wordpress.com
Data structures (data schemas) ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Event table (IDR Snapshot v1) code.google.com/p/IDRSnapshot (Event-DOB) + ‘3000-01-01’
Results ,[object Object],[object Object],[object Object],code.google.com/p/IDRSnapshot
Code code.google.com/p/IDRSnapshot
Code code.google.com/p/IDRSnapshot
Code code.google.com/p/IDRSnapshot
Cross institution comparison code.google.com/p/IDRSnapshot
Monitoring code.google.com/p/IDRSnapshot
What’s in it for me? ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],code.google.com/p/IDRSnapshot IRB note: aggregate numbers
Future work ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],code.google.com/p/IDRSnapshot
Thank you ,[object Object],[object Object],[object Object],[object Object],[object Object]

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Vojtech huser-data-warehouse-evaluation-2010-04-idr-snapshot014c

Notes de l'éditeur

  1. open Tset
  2. Completeness. Modeling all relevant performance factors to provide a holistic measurement of the concept. Concision. A calculation that is as simple and straightfoward as possible, making it understandable and logical to users. Measurability. Using direct performance data rather than relying too heavily on proxies or subjective measures. And from a practical perspective, if you can’t reliably gather valid data, the exercise is futile. Independence. The components of the measure need to be independent so that variation in one component doesn’t directly drive another.
  3. Completeness. Modeling all relevant performance factors to provide a holistic measurement of the concept. Concision. A calculation that is as simple and straightfoward as possible, making it understandable and logical to users. Measurability. Using direct performance data rather than relying too heavily on proxies or subjective measures. And from a practical perspective, if you can’t reliably gather valid data, the exercise is futile. Independence. The components of the measure need to be independent so that variation in one component doesn’t directly drive another.
  4. Completeness. Modeling all relevant performance factors to provide a holistic measurement of the concept. Concision. A calculation that is as simple and straightfoward as possible, making it understandable and logical to users. Measurability. Using direct performance data rather than relying too heavily on proxies or subjective measures. And from a practical perspective, if you can’t reliably gather valid data, the exercise is futile. Independence. The components of the measure need to be independent so that variation in one component doesn’t directly drive another.
  5. Completeness. Modeling all relevant performance factors to provide a holistic measurement of the concept. Concision. A calculation that is as simple and straightfoward as possible, making it understandable and logical to users. Measurability. Using direct performance data rather than relying too heavily on proxies or subjective measures. And from a practical perspective, if you can’t reliably gather valid data, the exercise is futile. Independence. The components of the measure need to be independent so that variation in one component doesn’t directly drive another.
  6. Completeness. Modeling all relevant performance factors to provide a holistic measurement of the concept. Concision. A calculation that is as simple and straightfoward as possible, making it understandable and logical to users. Measurability. Using direct performance data rather than relying too heavily on proxies or subjective measures. And from a practical perspective, if you can’t reliably gather valid data, the exercise is futile. Independence. The components of the measure need to be independent so that variation in one component doesn’t directly drive another.