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EHR-Qᵀᴺ Polska 2012




                          EHR Qualities
                      Semantic Interoperability
                             Privacy
                                            (Lodz, 29 November 2012)




                                                 Gerard Freriks
Gerard Freriks. ERS B.V.                             © ERS 2012
"It's the economy, stupid"

•   Slight variation of the phrase "The economy, stupid"
    which James Carville had coined
    as a campaign strategist of Bill Clinton's successful 1992 presidential
    campaign
    against sitting president George H. W. Bush.

•   Carville's original phrase was meant for
    the internal audience of Clinton's campaign workers
    as one of the three messages to focus on,
    the other two messages being:

•   "Change vs. more of the same"
    and

•   "Don't forget health care"


                                                                              2
                                 © ERS 2012
MIE2012-Village of the Future




                                3
             © ERS 2012
MIE2012-Village of the Future
• Point on the horizon
–All must communicate
–Now and in the future
–How? It is the semantics stupid!
                  Blue Line




                                    4
                  © ERS 2012
Topics
-   What is the EHR?
-   Semantic Interoperability
    the Semantic Interoperability Stack

-   Data and Information: Interoperability
    Privacy
-   Standards for Semantic Interoperability
-   International Developments
-   National/regional Governance
    Quality Assurance

-   Conclusions


                                  © ERS 2012
© ERS 2012
I- Bakery


                                                    Kitchen
             Instructions   Ingredients   Moulds              Oven   Pastry
                                                   machines




                                                                              7
© ERS B.V.
I- Bakery
                                                          Kitchen
             Instructions   Ingredients      Moulds                   Oven     Pastry
                                                         machines




               Rules        Information   Presentation   Software   Hardware   EHR




                                                                                        8
© ERS B.V.
I- Bakery
                                                          Kitchen
             Instructions   Ingredients      Moulds                   Oven     Pastry
                                                         machines




               Rules        Information   Presentation   Software   Hardware   EHR



                                                                                        9
© ERS B.V.
Instruction    Ingredients      Moulds           Kitchen tools     Oven     Pastry




 Rules        Information    Presentation        Software        Hardware   EHR

                                                                                  10
                                    © ERS 2012
EHR




SemanticHealthNet Dipak Kalra


        © ERS 2012
EHR




SemanticHealthNet Dipak Kalra

           © ERS 2012
EHR and Privacy
                         ACL
                                 Trust
                         ACL

                     Flexibility
It is the Semantics stupid!
                         ACL




                                 Patient Mandate
     ACL        ACL        ACL
                                   Author and
                                    Patient
                                   controlled

                                         13
            © ERS 2012
Health Information Security




      450.000 records not secured
      Names, Date of Birth, addresses, telephone
       numbers, Patient ID, Governmental ID

                                                   14
© ERS B.V.
Health Information Security




      What is needed:
         –Deploy top to bottom in each organisation
             – ISO 27799:2008 Health informatics
               Information security management in health using ISO/IEC 27002

         –Treat health software and the development of it
          as a medical device
         –Deploy 13606 EHR Communication              15
© ERS B.V.
Health Information Security




      CEN/ISO 13606 EHR Communication
         –No patient identifiable data in the Record
         –Each data object carries the Patient Mandate
          (who has access to what kind of data)
                                                         16
© ERS B.V.
13606-4 Patient Mandate

      CEN/ISO 13606-4 TS: Security


             –is a profile of the

               • ISO 22600

               • Privilege Management and Access Control


                                                           17
© ERS B.V.
13606-4 Patient Mandate




                                       18
© ERS B.V.
13606-4 Patient Mandate




                                       19
© ERS B.V.
13606-4 Patient Mandate




                                       20
© ERS B.V.
13606-4 Patient Mandate




                                       21
© ERS B.V.
13606-4 Patient Mandate




                                       22
© ERS B.V.
13606-4 Patient Mandate




                                       23
© ERS B.V.
Semantic
   Interoperability
        Stack
          Common
          Trusted
          Facilities




Semantic Interoperability
            © ERS 2012
Semantic
   Interoperability
        Stack      HL7
                  EHR
                 v3, CDA
                 Extract
                   RIM




                Common
                Facilities



Documentation                   Documentation
  Archiving                       Archiving

Semantic Interoperability
                                                25
                   © ERS 2012
Semantic
       Interoperability
            Stack
Semantic Interoperability Levels




                                   Semantic Stack


                                            26
                     © ERS 2012
Semantic
       Interoperability
            Stack
Semantic Interoperability Levels
FP7-SemanticHealth Project




                                   27
                     © ERS 2012
Standards
Enterprise          CEN/tc251
               System of Concepts for       EHR-systems
viewpoint
                 Continuity of Care
                                            using
Information                                 HL7
                     CEN/tc251
viewpoint        EN13606 EHRcom
                  Information Bus           All viewpoints
Computation                                 programmed in
viewpoint         CEN/tc251 Health          one system or
              Health Information Services
                      Architecture          message
Engineering
viewpoint

Technical
viewpoint

                         © ERS 2012
Standards
                Message based    Archetype based
                 EHR-systems      EHR-systems
Production of
                  1-3 years          Minutes
  message

IHE process       1-2 years            nil
Programming       1-2 years            nil

  Roll Out         1 year              nil
   Total           YEARS            MINUTES




                    © ERS 2012
CEN/ISO13606
        Standard
Reference Model
Archetype Object Model
Term List
Patient Mandate
EHR-extract exchange



                   © ERS 2012
CEN/ISO13606
        Standard Coding systems
                             Archetypes
                              Templates
                                 Rules
                           Patient mandates

EN13606-2                      Tools

                              Software
EN13606-1                      Tools
                              Services


              © ERS 2012
CEN/ISO13606
  Standard




     © ERS 2012
Semantic
          Interoperability Stack
                                 Model for Knowledge      Encyclopedia

SNOMED
WHO
Loinc                            Model of Meaning         Dictionary




SIAMS                            Models of General Use    Generic Phrases


CEN/ISO 13606-3                  Models of Specific Use   Specific Phrases
CEN/ISO 13606-2


CEN/ISO 13606-1                  Models of Archiving      ‘Syntax’



                                 Models of Storage        Database Schema


                                                                33
                    © ERS 2012
International
             Developments
-       Renewal CEN/ISO 13606
-       Integration of 13606 with:
    -       System of Concepts for Continuity of Care (ContSys CEN/ISO 13940)

    -       Health Information Services Architecture (HISA CEN/ISO 12967)

-       Harmonisation with HL7 CDA
-       FP7 SemanticHealthNet
        (make 13606, CDA, coding systems and ontologies work together)
        http://www.eurorec.org/RD/SemanticHealthNet.cfm

-       Clinical Information Modeling Initiative
        http://informatics.mayo.edu/CIMI/index.php/Main_Page


-       New FP7 2013 call:
    -       epSOS EU-USA, Semantic Interoperability EU-USA, ...




                                                 © ERS 2012
International
Developments




      © ERS 2012
International
Developments




      © ERS 2012
International
Developments




      © ERS 2012
International
Developments




      © ERS 2012
(Inter-)National Governance

                                                        INFOstructure
                                                            Direction

                                                     Healthcare
                                                                          Patients




                                                                                                                                               Stanardisation organisations
                                                                                                                   Ontology / Coding systems
                                                                                     Clinical Information Models
                                                     Providers
             (Inter-) National Project
Government




                                                        Local Communities
                                          Insurers




                                                         Re-Users of data

                                                           IT- Vendors

                                                        Quality Assurance
                                                             © ERS 2012
(Inter-)National Governance

                                                                   Direction

                   (Inter-) National Project
                                                          Healthcare




                                                                                               Clinical Information
                                                                                    Patients




                                                                                               Ontology / Coding
                                                          Providers




                                                                                                 Stanardisation
                                                                                                  organisations
      Government




                                                                                                     systems
                                               Insurers
                                                              Local Communities




                                                                                                      Models
                                                                Re-Users of data

                                                               IT- Vendors
                                                               Quality Assurance

• Essential elements
 –All actors co-operating in their natural role
 –Direction based on expertise, knowledge and authority. Not too much money.
 –One standing (virtual) organisation)
 –With ongoing secured funding. The INFOstructure is not a one time project.
                                                                       © ERS 2012
(Inter-)National Governance

                                                                      Direction

                      (Inter-) National Project
                                                             Healthcare




                                                                                              Clinical Information
                                                                                   Patients




                                                                                              Ontology / Coding
                                                             Providers




                                                                                                Stanardisation
                                                                                                 organisations
         Government




                                                                                                    systems
                                                  Insurers       Local Communities




                                                                                                     Models
                                                                   Re-Users of data

                                                                  IT- Vendors
                                                                  Quality Assurance

                                                                    INFOSTRUCTURE
–Production, Maintenance, Publication of all semantic interoperability artefacts is very
resource intensive (money and expertise)
–Even big countries can not create a full Semantic Stack on their own
–European countries (and more) had better co-operate and provide jointly the
resources needed
                                                                      © ERS 2012
(Inter-)National Governance

                                                                       Direction


                       (Inter-) National Project
                                                              Healthcare




                                                                                               Clinical Information
                                                                                    Patients




                                                                                               Ontology / Coding
                                                              Providers




                                                                                                 Stanardisation
                                                                                                  organisations
          Government




                                                                                                     systems
                                                   Insurers       Local Communities




                                                                                                      Models
                                                                    Re-Users of data

                                                                   IT- Vendors
                                                                   Quality Assurance

                                                                    INFOSTRUCTURE
Ongoing projects
–SemanticHealthNet (SHN)
–Clinical Information Modeling Initiative (CIMI)
–...
                                                                       © ERS 2012
(Inter-)National Governance

                                                             Direction


             (Inter-) National Project
                                                    Healthcare




                                                                                     Clinical Information
                                                                          Patients




                                                                                     Ontology / Coding
                                                    Providers




                                                                                       Stanardisation
                                                                                        organisations
Government




                                                                                           systems
                                         Insurers       Local Communities




                                                                                            Models
                                                          Re-Users of data

                                                         IT- Vendors
                                                         Quality Assurance




                                                             © ERS 2012
Conclusions
1. No semantic interoperability without the
   Semantic Stack
2. Base standards, Coding systems and
   Ontologies constitute the Semantic Stack
3. Using Base Standards
   profiles/archetypes/templates
   define the clinical statements
4. The Patient Mandate is an integral part
   of Interoperability

                  © ERS 2012
Conclusions

5. International co-operation is shaping up
6. International, European and
   National/Regional Governance structures
   will be set up




                  © ERS 2012

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EHR Qualities Semantic Interoperability Privacy - Gerard Freriks

  • 1. EHR-Qᵀᴺ Polska 2012 EHR Qualities Semantic Interoperability Privacy (Lodz, 29 November 2012) Gerard Freriks Gerard Freriks. ERS B.V. © ERS 2012
  • 2. "It's the economy, stupid" • Slight variation of the phrase "The economy, stupid" which James Carville had coined as a campaign strategist of Bill Clinton's successful 1992 presidential campaign against sitting president George H. W. Bush. • Carville's original phrase was meant for the internal audience of Clinton's campaign workers as one of the three messages to focus on, the other two messages being: • "Change vs. more of the same" and • "Don't forget health care" 2 © ERS 2012
  • 3. MIE2012-Village of the Future 3 © ERS 2012
  • 4. MIE2012-Village of the Future • Point on the horizon –All must communicate –Now and in the future –How? It is the semantics stupid! Blue Line 4 © ERS 2012
  • 5. Topics - What is the EHR? - Semantic Interoperability the Semantic Interoperability Stack - Data and Information: Interoperability Privacy - Standards for Semantic Interoperability - International Developments - National/regional Governance Quality Assurance - Conclusions © ERS 2012
  • 7. I- Bakery Kitchen Instructions Ingredients Moulds Oven Pastry machines 7 © ERS B.V.
  • 8. I- Bakery Kitchen Instructions Ingredients Moulds Oven Pastry machines Rules Information Presentation Software Hardware EHR 8 © ERS B.V.
  • 9. I- Bakery Kitchen Instructions Ingredients Moulds Oven Pastry machines Rules Information Presentation Software Hardware EHR 9 © ERS B.V.
  • 10. Instruction Ingredients Moulds Kitchen tools Oven Pastry Rules Information Presentation Software Hardware EHR 10 © ERS 2012
  • 13. EHR and Privacy ACL Trust ACL Flexibility It is the Semantics stupid! ACL Patient Mandate ACL ACL ACL Author and Patient controlled 13 © ERS 2012
  • 14. Health Information Security 450.000 records not secured Names, Date of Birth, addresses, telephone numbers, Patient ID, Governmental ID 14 © ERS B.V.
  • 15. Health Information Security What is needed: –Deploy top to bottom in each organisation – ISO 27799:2008 Health informatics Information security management in health using ISO/IEC 27002 –Treat health software and the development of it as a medical device –Deploy 13606 EHR Communication 15 © ERS B.V.
  • 16. Health Information Security CEN/ISO 13606 EHR Communication –No patient identifiable data in the Record –Each data object carries the Patient Mandate (who has access to what kind of data) 16 © ERS B.V.
  • 17. 13606-4 Patient Mandate CEN/ISO 13606-4 TS: Security –is a profile of the • ISO 22600 • Privilege Management and Access Control 17 © ERS B.V.
  • 18. 13606-4 Patient Mandate 18 © ERS B.V.
  • 19. 13606-4 Patient Mandate 19 © ERS B.V.
  • 20. 13606-4 Patient Mandate 20 © ERS B.V.
  • 21. 13606-4 Patient Mandate 21 © ERS B.V.
  • 22. 13606-4 Patient Mandate 22 © ERS B.V.
  • 23. 13606-4 Patient Mandate 23 © ERS B.V.
  • 24. Semantic Interoperability Stack Common Trusted Facilities Semantic Interoperability © ERS 2012
  • 25. Semantic Interoperability Stack HL7 EHR v3, CDA Extract RIM Common Facilities Documentation Documentation Archiving Archiving Semantic Interoperability 25 © ERS 2012
  • 26. Semantic Interoperability Stack Semantic Interoperability Levels Semantic Stack 26 © ERS 2012
  • 27. Semantic Interoperability Stack Semantic Interoperability Levels FP7-SemanticHealth Project 27 © ERS 2012
  • 28. Standards Enterprise CEN/tc251 System of Concepts for EHR-systems viewpoint Continuity of Care using Information HL7 CEN/tc251 viewpoint EN13606 EHRcom Information Bus All viewpoints Computation programmed in viewpoint CEN/tc251 Health one system or Health Information Services Architecture message Engineering viewpoint Technical viewpoint © ERS 2012
  • 29. Standards Message based Archetype based EHR-systems EHR-systems Production of 1-3 years Minutes message IHE process 1-2 years nil Programming 1-2 years nil Roll Out 1 year nil Total YEARS MINUTES © ERS 2012
  • 30. CEN/ISO13606 Standard Reference Model Archetype Object Model Term List Patient Mandate EHR-extract exchange © ERS 2012
  • 31. CEN/ISO13606 Standard Coding systems Archetypes Templates Rules Patient mandates EN13606-2 Tools Software EN13606-1 Tools Services © ERS 2012
  • 32. CEN/ISO13606 Standard © ERS 2012
  • 33. Semantic Interoperability Stack Model for Knowledge Encyclopedia SNOMED WHO Loinc Model of Meaning Dictionary SIAMS Models of General Use Generic Phrases CEN/ISO 13606-3 Models of Specific Use Specific Phrases CEN/ISO 13606-2 CEN/ISO 13606-1 Models of Archiving ‘Syntax’ Models of Storage Database Schema 33 © ERS 2012
  • 34. International Developments - Renewal CEN/ISO 13606 - Integration of 13606 with: - System of Concepts for Continuity of Care (ContSys CEN/ISO 13940) - Health Information Services Architecture (HISA CEN/ISO 12967) - Harmonisation with HL7 CDA - FP7 SemanticHealthNet (make 13606, CDA, coding systems and ontologies work together) http://www.eurorec.org/RD/SemanticHealthNet.cfm - Clinical Information Modeling Initiative http://informatics.mayo.edu/CIMI/index.php/Main_Page - New FP7 2013 call: - epSOS EU-USA, Semantic Interoperability EU-USA, ... © ERS 2012
  • 39. (Inter-)National Governance INFOstructure Direction Healthcare Patients Stanardisation organisations Ontology / Coding systems Clinical Information Models Providers (Inter-) National Project Government Local Communities Insurers Re-Users of data IT- Vendors Quality Assurance © ERS 2012
  • 40. (Inter-)National Governance Direction (Inter-) National Project Healthcare Clinical Information Patients Ontology / Coding Providers Stanardisation organisations Government systems Insurers Local Communities Models Re-Users of data IT- Vendors Quality Assurance • Essential elements –All actors co-operating in their natural role –Direction based on expertise, knowledge and authority. Not too much money. –One standing (virtual) organisation) –With ongoing secured funding. The INFOstructure is not a one time project. © ERS 2012
  • 41. (Inter-)National Governance Direction (Inter-) National Project Healthcare Clinical Information Patients Ontology / Coding Providers Stanardisation organisations Government systems Insurers Local Communities Models Re-Users of data IT- Vendors Quality Assurance INFOSTRUCTURE –Production, Maintenance, Publication of all semantic interoperability artefacts is very resource intensive (money and expertise) –Even big countries can not create a full Semantic Stack on their own –European countries (and more) had better co-operate and provide jointly the resources needed © ERS 2012
  • 42. (Inter-)National Governance Direction (Inter-) National Project Healthcare Clinical Information Patients Ontology / Coding Providers Stanardisation organisations Government systems Insurers Local Communities Models Re-Users of data IT- Vendors Quality Assurance INFOSTRUCTURE Ongoing projects –SemanticHealthNet (SHN) –Clinical Information Modeling Initiative (CIMI) –... © ERS 2012
  • 43. (Inter-)National Governance Direction (Inter-) National Project Healthcare Clinical Information Patients Ontology / Coding Providers Stanardisation organisations Government systems Insurers Local Communities Models Re-Users of data IT- Vendors Quality Assurance © ERS 2012
  • 44. Conclusions 1. No semantic interoperability without the Semantic Stack 2. Base standards, Coding systems and Ontologies constitute the Semantic Stack 3. Using Base Standards profiles/archetypes/templates define the clinical statements 4. The Patient Mandate is an integral part of Interoperability © ERS 2012
  • 45. Conclusions 5. International co-operation is shaping up 6. International, European and National/Regional Governance structures will be set up © ERS 2012