The document provides background on legal services and human rights related to HIV/AIDS management in Indonesia. It identifies key legal issues such as discrimination, restrictive marriage and inheritance laws, and human rights violations. Gaps in current responses are assessed, including the need for sustainable legal services tailored to key populations' needs. Recommendations include designing services based on research, advocacy to reform discriminatory laws, and training for legal professionals, police and communities.
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HIV & Law Indonesia - Back Ground Paper Aug ust 2009
1. Legal Services & Human Rights
in the Management of
HIV & AIDS in Indonesia
Background Paper
for the
National Stakeholder Meeting on HIV & Law
Jakarta, Indonesia
19 August 2009
3. PREFACE
Since the first identified case of HIV in Indonesia in 1987, there has been a growing
awareness of the importance of law in the prevention and management of HIV and AIDS.
Key legal issues associated with HIV in Indonesia include discrimination and
stigmatization, legal protection for people living with HIV (such as HIV positive
employees), criminalization of commercial sex work and commercial sex venues,
regulatory protection for health workers and confidentiality in HIV testing. Additionally,
since 2000, there has been increased focus upon the relationship between injecting drug
use and HIV in Indonesia. Legal issues associated with injecting drug use arise as a result
of discrimination and human rights abuse by police and by authorities within the penal
system, discrimination by healthcare providers, (implied or actual) regulatory restrictions
associated with the possession of injecting equipment or syringes, restricted access to
methadone treatment and a weak legal framework regulating drug related research
ethics.
In order for legal systems to support the prevention and management of HIV and AIDS in
Indonesia, people living with HIV must be protected from human rights abuses and be
made aware of their legal rights, the broader community must be made aware of the
legal rights of people living with HIV, and the rights of people living with HIV must be
formally protected and enforced.
On 19 August, 2009, representatives from the National AIDS Commission (NAC),
Indonesian legal aid organizations, injecting drug user communities, sex worker
communities, lesbian, gay, bisexual and transgender (LGBT) communities and HIV
support groups came together to contribute to assessment and planning processes on
HIV and the law in Indonesia (the Stakeholder Meeting).
The objectives of the Stakeholder Meeting were to:
identify priority legal issues and legal protection needs associated with HIV;
identify possible partners and provinces for a project to strengthen and expand HIV-
related legal services in Indonesia; and
define the next steps to be taken in developing a HIV-related legal services project.
This report is a revised version of the background notes prepared for Stakeholder
Meeting.
Technical and financial support for the Stakeholder Meeting was provided by the
International Development Law Organization (IDLO).
Contents:
1. Situation analysis: HIV-related legal issues in Indonesia
2. Response analysis: the legislative environment in Indonesia
3. Assessment of the gaps in current and proposed responses to HIV
4. Recommendations for a pilot project on HIV-related legal services
Annexes:
1. Activities implemented by participants
3
4. 1. Situation Analysis: HIV-Related Legal Issues in Indonesia
Evidence indicates that people living with HIV and communities vulnerable to HIV
infection (specifically, injecting drug users (IDUs), sex workers, men who have sex
with men (MSM) and transgender people (waria) (together, Key Populations)), face
human rights violations in many facets of their lives. Commonly encountered human
rights violations are detailed below.
Arrest, Imprisonment and Detention – Key Populations and people living with
HIV report experiencing arrest, imprisonment and detention without due process, as
well as physical and psychological abuse during detention.
IDUs in particular, report discrimination and psychological abuse within the law
enforcement and penal systems. The latter often involves being accused of immoral
and socially aberrant behaviour. The criminalization of drug use and harsh
sentencing regulations for drug related offences under the Indonesian Criminal Code
results in high rates of imprisonment for IDUs. This in turn increases the vulnerability
of IDUs to HIV infection (the rates of HIV in Indonesian prisons are
disproportionately high).
Marriage and Inheritance – Key Populations and people living with HIV report
being subject to restrictive marriage and inheritance laws. Specifically, there are
marriage laws in place in some regions of Indonesia that prohibit marriage between
HIV positive and HIV negative persons and restrict LGBT persons from marrying or
living with their partners. There also are inheritance laws in place in some regions of
Indonesia that preclude people living with HIV from receiving or bestowing property.
Stigma and Discrimination - Key Populations and people living with HIV report
experiencing stigma and discrimination on the basis of their actual or perceived HIV
status, sexual orientation, gender, involvement in the commercial sex industry
and/or use of illegal drugs both in the broader community and within the healthcare
system.
Employment and Labor Issues - Key Populations and people living with HIV face
discrimination and stigma in the workplace, this results in reduced employment
opportunities.
Domestic Violence – Women within Key Populations and women and children living
with HIV are disproportionately vulnerable to domestic violence. Notably, women
within Key Populations and women living with HIV face gender inequity issues in
addition to HIV-related legal issues.
4
5. 2. Response Analysis: The Legislative Environment in Indonesia
Law focused HIV initiatives have taken steps to address the legal issues described
above and protect the rights of Key Populations and people living with HIV. Efforts
have focused on socializing information about HIV, encouraging public and political
dialogue on HIV, providing law and human rights training and advocating for law
reform. A summary of activities implemented by Participants to date is included at
Annex 1.
This section considers the current legislative environment in Indonesia.
The Health Bill – At the time of the Stakeholder Meeting, HIV activists were in the
process of lobbying for the inclusion of HIV-focused legal protections in the Health
Bill. Previous national Health legislation (Law Number 23 of 1997 regarding Health)
failed to specifically refer to HIV, even within the context of clauses referring to
infectious disease or diseases which may affect a high number of patients and/or
cause a heavy death toll. 1
The Bill for the Prevention and Management of Dangerous Diseases - In mid-
2004, the Indonesian Forum of Parliamentarians on Population and Development
began preparing a draft Bill on HIV and AIDS Management. This Bill was expected to
address all matters related to the prevention and management of HIV however; in
light of the urgent need to respond to SARS, Avian Flu (H5N1) and Swine Flu
(H1N1), the draft Bill formulation team broadened the scope of the Bill and changed
the title of the Bill to The Bill for the Prevention and Management of Dangerous
Diseases. At the time of the Stakeholder Meeting, the Bill had not been finalised.
The Law on Human Rights - In 1999 Indonesia passed human rights legislation
(Law Number 39 of 1999 regarding Human Rights). This law creates two categories
of human rights violations; ordinary human rights violations and severe human
rights violations.
Ordinary human rights violations refers to the actions of persons or groups of
persons (including the state), whether intentional or negligent, which reduce,
hinder, limit or revoke human rights guaranteed by law. Ordinary human rights
violations may take the form of:
Stigmatization - the casting out of a person or group of persons by giving
them certain labels or names.
Discrimination - the limitation, harassment or exile of a person or group of
persons based (directly or indirectly) upon their religion, race, ethnic group,
social status, economic status, gender, language or political belief; which
leads to a reduction of fundamental freedoms, whether individually or
collectively, in the areas of politics, economics, society, culture or other
aspects of life.
Torture - every intentional act, performed in order to obtain a confession or
information, leading to a person’s severe pain or suffering, whether physical,
mental or spiritual.
1
Note, Indonesia has in place a legal framework which regulates the prevention of infectious diseases
(Law Number 4 of 1984 regarding an epidemic of infection disease, Government Regulation Number: 40 of
1991 regarding the Management of Infectious Diseases and the Ministry of Health Regulation Number 560
/Menkes/ VII/ 1989 regarding particular diseases which can cause epidemics). HIV and AIDS are not
specified within this framework. Indonesia is still in the process of questioning the need to regulate
specifically for HIV, AIDS or sexually transmitted diseases (STDs).
5
6. Severe human rights violations refers to genocide crimes (every act committed
with the intention of destroying or eliminating an entire or part of a
people/nation, ethnic race, religious group) and crimes against humanity (an act
committed as part of a broad or systemic attack aimed directly at civilians,
including murder, elimination or slavery).
Provincial and District Regulations (PERDA) – In 1999, the Habibie government
instigated a policy of decentralisation (Otonomi Daerah) and passed two laws
granting significant regional authority to Indonesia’s provincial and district level
governments.
The Department of Justice and Human Rights, in cooperation with UNDP, has issued
a Practical Guidebook for Understanding the Design of Regional Regulations. This
guidebook is credited as a key tool in supporting regional community welfare via
provincial and district regulation (Peraturan Daerah, or PERDA). PERDA:
function as policy instruments, effectively implementing regional and district level
autonomy;
allow national laws to be implemented at provincial and district level (note
however, that PERDA adhere to rules of legislative hierarchy and cannot
contravene higher/national laws); and
allow provincial and district governments to enact laws specifically relevant to
their provinces or districts, respectively.
Indonesia currently has nine Provinces and 20 Districts with PERDA regarding the
prevention and management of HIV. These PERDA are designed to support the aims
of the National Prevention and Management of HIV & AIDS Strategy 2007–20102 and
are intended to guarantee regional/district budgets for HIV initiatives. These PERDA
are yet to be effectively implemented and enforced.
Supportive Policy - The following national policies support the existing HIV-legal
framework:
the Minister of Manpower and Transportation Regulation Number 68 of 2004
regarding AIDS in the Workplace;
the Coordinating Minister for the People’s Welfare Regulation Number 02 of 2007
regarding Sterile Syringe Needle Services; and
the National Strategy for HIV and AIDS Management in Prisons.
Law Reform – Law reform activities supporting the prevention and management of
HIV in Indonesia include reform of the Narcotics Law, the Psychotropic Law, the
Amendment to the Health Law and the Establishment of Law for the Public Health
System.
Advocacy - HIV and law related advocacy work in Indonesia to date has included:
advocacy initiatives in support of HIV-focussed PERDA;
activities to push for increased government funding and budgets for HIV;
advocacy efforts to reduce stigma and discrimination;
2
The aims of the National Prevention and Management of HIV & AIDS Strategy 2007–2010
include preventing and reducing HIV infection, improving the quality of life of people living
with HIV and reducing the socio-economic impact of HIV upon individuals, families and the
community.
6
7. advocacy work to campaign for the rights of drug users after arrest; and
the promotion of rehabilitation sentences rather than jail sentences for drug
users.
Empowerment and Capacity Building - Several non-governmental organisations
have supported HIV prevention and management strategies through community
empowerment and capacity building training focusing on human rights.
International Conventions and Treaties – In 2006 Indonesia acceded to the
International Covenant on Civil and Political Rights, the Optional Protocol to the
Covenant on Civil and Political Rights and the International Covenant on Economic,
Social and Cultural Rights.
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8. 3. Assessment of the Gaps in Current and Proposed Responses to HIV
The response to HIV-related legal services to date has taken a problem based
approach. A preferable approach would be to focus on establishing ongoing and
sustainable legal services for Key Populations and people living with HIV.
Participants at the Stakeholder Meeting considered the following five questions in
respect of current and proposed responses to HIV:
What form should legal services take; taking into account the needs of Key
Populations and people living with HIV?
What type of community training is required to support HIV-related legal
services/the prevention and management of HIV?
What kind of advocacy activities must be undertaken to reform laws and
regulations that hinder the prevention and management of HIV?
Who should be engaged in building a strong network for the prevention and
management of HIV in Indonesia?
What steps should be taken to develop a pilot project for HIV-related legal
services?
Participants’ responses to these questions are summarized below.
Legal Services – What form should legal services take; taking into account the
needs of Key Populations and people living with HIV?
Participants agreed that legal services should be designed and developed on the
basis of Key Population research and needs assessments. It was suggested that any
research or needs assessment studies be conducted in conjunction with information
sessions to ensure a baseline understanding of HIV-related legal issues.
Participants observed the need for accessible, free of charge legal services for Key
Populations and people living with HIV.
Participants recognized the importance of recording, monitoring and evaluating
activities and projects implemented (for example documentation of human rights
violations recorded by victim networks).
Participants noted the need for an in-depth review of HIV-related law and policy in
order to create a solid understanding of the current legislative and policy
environment. From this base, key stakeholders can advocate for law and policy
reform and push for modifications to legal policy.
Experience indicates that in addition to the provision of legal services and activities
designed to strengthen the capacity of Key Populations and people living with HIV;
HIV prevention and management must be supported by broader education and
awareness raising. It is important that law enforcement agencies, professional legal
associations, members of parliament and government, religious leaders and key
public figures are made aware of HIV-related legal issues.
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9. Community Training – What type of community training is required to support
HIV-related legal services/the prevention and management of HIV?
Participants agreed that community training must be done in partnership and in
collaboration with the community. The following topics were considered potential
subject areas for community training:
HIV and AIDS generally;
the psychosocial issues associated with HIV;
drug abuse and addiction;
sexual orientation and gender; and
human rights.
Participants considered that the following suite of community focused activities could
boost the effectiveness of HIV-related legal services:
the provision of legal training to paralegals to support HIV-related legal
services;
the identification and development of a network of legal service providers;
the recruitment of experts (such as retired lecturers, police, prosecutors and
judges) as part of an alliance;
the investigation, documentation and analysis of human rights violation cases;
the development of advocacy capacity within Key Populations and community
groups; and
the delivery of joint training activities for lawyers and the police on HIV and on
harm reduction.
Advocacy Activities - What kind of advocacy activities must be undertaken to
reform laws and regulations that hinder the prevention and management of HIV?
Participants agreed upon the value of advocacy activities in complementing and
supporting HIV-related legal services. Specifically, advocacy activities should be
designed to target laws and policies which impinge upon the rights of Key
Populations and people living with HIV. A key part of this advocacy strategy would be
to provide advocacy training for Key Populations and people living with HIV; thus
supporting and empowering these groups to become agents for the change they wish
to create.
Participants considered the following activities to be important in supporting
advocacy efforts:
awareness raising in respect of the rule of law and anti-corruption training; and
community involvement in legal processes and advocacy activities.
Stakeholders, Affiliates and Collaborations – Who should be engaged in building
a strong network for the prevention and management of HIV in Indonesia?
Participants considered the following institutions, bodies and organisations to be key
players in the prevention and management of HIV:
government agencies, specifically the Department of Health, the Department of
Justice and Human Rights;
the Supreme Court of Indonesia;
9
10. legal aid institutions such as IKADIN (Ikatan Advocad Indonesia), PERADIN
(Persatuan Advocad Seluruh Indonesia) AAI (Asosiasi Advocad Indonesia) and
PBHI (Persatuan Bantuan Hukum Indonesia);
law enforcement apparatus such as the police force, judges and prosecutors;
the Attorney General;
higher education institutions and universities;
the media & journalists;
political parties and politicians;
professional health organizations such as IDI (Ikatan Dokter Indonesia) and
IAKMI (Ikatan Alumni Kesehatan Masyarakat Indonesia) and professional
psychologists bodies;
non-government organizations;
the NAC; and
committed individuals, community leaders and/or religious figures.
Participants emphasized the media’s capacity to shape public perceptions and ability
to play a valuable role in socializing issues related to HIV. Media engagement on
HIV-related issues also allows for dissemination of evidence of human rights
violations. Awareness raising and socialization of these ideas may support advocacy
efforts.
Planning for the Pilot Project – What steps should be taken to develop a pilot
project for HIV-related legal services?
Participants determined that:
a needs assessment should be conducted (prior to determining the eligible
institutions to contribute to the pilot project);
priorities for the pilot project should be areas with operating legal aid networks
and areas with high HIV infection rates;
the community should be involved in designing and implementing the pilot
project;
there should be clear and transparent decision making processes and
coordination within the pilot project implementing agency.
the pilot project implementing agency should have existing strong internal and
external networks and should have approximately three year’s experience in HIV
issues;
the pilot project implementing agency should have access to an adequate number
of lawyers and paralegals;
the pilot project implementing agency should have internal monitoring and
evaluation systems in place, should keep financial records and should undergo
regular audits.
10
11. 4. Recommendations for a Pilot Project on HIV-related Legal Services
Participants at the Stakeholder Meeting made the following recommendations to the
NAC and IDLO (respectively):
the NAC’s National Strategy for 2010 – 2014 should clearly set out the role of
legal services in HIV prevention and management; and
IDLO should establish a pilot project in Jakarta to provide HIV-related legal
services for Key Populations and people living with HIV. The pilot project should
utilise existing community legal aid resources, counseling and information
services, to support persons navigating the formal justice system.
11
12. Annex 1: Activities Implemented by Participants
No Name/Organization Activities Implemented
1 Sudiro Husodo - Advocacy activities for the police force (starting with East Java Regional Police and moving to
the sub-district (Kecamatan) police stations), specifically campaigning for harm reduction
programs such as the provision of sterile syringes.
- Workshop training and socialization of the harm reduction approach (for stakeholders and
police force).
- Supporting arrested IDUs.
- Legal support for the staff of PERWAKOS (Surabaya Transvestite Union - Persatuan Waria Kota
Surabaya) who died as a result of arrest; support was provided until the case was before
PROPAM.
- Delivery of a workshop for critiquing Regional Regulation Number 9 of 1999 regarding Security
and Order.
2 Rudi Sinyo - Legal aid for IDUs in East Java.
East Java Action (EJA) - Documentation of human rights violations against IDUs in East Java.
3 Agung Nugraha - Providing legal aid in handling children including teenagers suspected of using/distributing
Surabaya Children Crisis narcotics, psychotropics and addictive substances (NAPZA).
Centre (SCCC) / - Conducting education and legal training for IDU (PENASUN) community.
LBH Anak Surabaya - Cooperating with EJA for legal support for IDU community.
4 Denny Septiviant, SH / - Providing legal aid for IDUs in Central Java.
PBHI Central Java - Documentation of human rights violations against IDUs in Central Java.
5 Yvonne Sibuea / - Providing 24 hour legal consultation hotline service.
PERFORMA - Legal support both litigation and non-litigation.
- Paralegal training
- Case investigation training.
- Documentation of human rights violations in five cities in Central Java.
- Researching the negative impact of imprisonment and the rehabilitation needs amongst IDUs.
6 Eusebius Purwadi - Conducting social analysis training.
PKNI and LBH Makasar - Collecting and compiling data related to people living with HIV.
- Socialization of relevant ideas to NGO groups.
7 Heni Astuti Suparman - Coordinating with Reproductive Health Centre and AIDS working groups to discuss issues facing
Lawyer / KPA Merauke HIV positive sex workers active in the prostitution district of Merauke.
8 Sefnat Lobwaer - Advocacy related to Regional Regulation Draft for Health Development in Papua.
- Advocacy related to the policy of the Merauke District Regional General Hospital regarding the
treatment of HIV positive women during labor.
9 Ricky Gunawan/ LBH - Public empowerment and legal aid (both litigation and non-litigation services) especially for IDU
Masyarakat communities.
- Support and information for IDU communities allowing them to gain an understanding of
relevant law and advocate for themselves and their community.
12
13. - Legal empowerment through law and human rights education for communities.
- The development and training of paralegals to provide legal service functions and provide ‘legal
first aid’ for cases; training facilitates paralegals to become the ‘eyes and ears’ of LBH
Masyarakat in their respective communities.
10 Humpry Jhony Wacanno - Providing legal aid in the form of case support for accused IDUs who are sentenced to
rehabilitation by the Court.
- Paralegal training.
11 Heru Widarsah - Advocacy against policies which violate the rights of HIV positive people.
JOTHI – Lampung - Building critical thinking amongst people living with HIV regarding policies in place and those
about to be passed into law.
12 Aslam - Advocacy for the awareness of IDUs’ rights.
Kalimantan Timur - Socialization of the idea that IDU are victims not criminals.
13 Elvina Harahap - Compiling and documenting human rights violation data in all JOTHI coordination areas.
- Assembling a Regional Regulations Composition Guidebook.
- Assisting the formation of Regional Regulations.
- Documenting the availability of ARVs for advocacy for the right to health.
- Providing legal advice services.
14 Rido Triawan - Drug policy reform activities.
- Lobbying to Republic of Indonesia People’s Representatives Council (Dewan Perwakilan Rakyat
RI – DPR RI) and hearing with DPR-RI members.
- Participatory discussions with Legal Aid groups.
- Participatory discussions with NAPZA users/victims regarding Narcotics Draft Bill.
- Paralegal training for NAPZA communities.
- Negotiation and training on public speaking.
15 Patri Handojo/ - Building a legal support network for users of narcotics and dangerous substances in Java and
HCPI Bali.
16 Siradj Okta - Providing legal aid for people living with HIV.
- Documentation of human rights violations against people living with HIV.
- People living with HIV empowerment training.
17 Asmin Fransiska / - Preparing a draft Bill for alternative narcotics.
ICDPR - Composing an academic paper regarding narcotics policies.
- Implementing training for human rights, the right to health and the criminal code/ the court
system in Indonesia.
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