2. Just the facts NMDP registry: 7 million total Caucasian: 73% Hispanic/Latino: 10% African American: 8% Asian/API: 7% Multi Race: 3% American Indian: 1% 75% of Asian/API patients who need a bone marrow transplant do NOT get a lifesaving transplant
3. Thank youAPAMSA members for your effort! ! ! Together we can recruit and expand the National Bone Marrow Registry to help patients find a life saving bone marrow match.
4. Registrant Eligibility Between age of 18-60 Be in overall good health and meet medical guidelines (see packet) Live in the United States. Have they already joined?
5. Committed potential donor We are responsible for making sure that the potential donor is fully committed at registration. Registrants who match and later refuse to donate do MORE HARM than good for the patients and their families.
6. INFORM the potential donor The potential donor must understand the entire process. They must be aware of: What it means to register How long they will be listed in the registry Understanding what will happen if they match Knowing the 2 ways to donate Knowing their obligations at the time of match
7. Donor is unsure? Try to address any and all of the donor’s questions or issues with the process. Refer them to www.marrow.org or call 1 (800) MARROW2 for available materials in Chinese, Korean, Tagalog, Spanish, and Vietnamese. Remind the potential donor that they have many opportunities to join the registry when they feel ready. AGAIN, it is important that we register committed donors!
8. Begin Registration Process Have the potential donor read the INSERT in the consent form. Have a representative be present to answer any questions they may have.
9. Make sure to place a large whiteBARCODE on the top right corner of the page. The same barcode number will be used for the entire packet.
10. Fill out all information on this page. If the registrant does not want to give his/her social security number, ask for a driver’s license number and 2 completely different contactsNOT at the same permanent address as the registrant. Affix a large whiteBARCODE on this page.
11. Employer and spouse information is optional. 1st and 2nd contact must allhave DIFFERENT addresses than the registrants and from each other. They cannot be living at the same place. This is very important!
12. Make sure the registrant answers “YES” to Q1 and Q2. Check the “NO” to Q3-Q9 regarding their health. Refer to the NMDP medical guide or onsite coordinator if the registrant answers “YES” to any problems with their health.
15. IMPORTANT!!! Double check the following before moving on: Name Birth Date Address/phone number Driver’s License or Social Security Address & phone number 2 contacts with different addresses Full understanding of the health questionaire Signature
16. Donor ID card:Give card to the registrant Affix a small white BARCODE on the card. GIVE CARD to the registrant. Make sure that the donor knows to update their information when they move. Update at: www.BeTheMatch.org/update or at 1(800) Marrow2 Donor ID Card is a handy reminder of their commitment to helping someone in need.
17. Buccal Cheek Swabs TOTAL: 4 cotton tipped swabs Put the PINK labels on each swab Tell the registrant to: use 1 swab to brush one corner of their cheek for 10 seconds Put the used swab into the foam slits in the buccal card Repeat with each individual swab at a different corner of the mouth It is IMPORTANT that the swabs are not CONTAMINATED by someone touching the tip. Swab should only touch the registrant’s cheek.
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19. Affix a small whiteBARCODE onto the envelop and seal the envelop
20. Leftover labels Original labels 2 large white barcodes (registration form) 2 small white barcodes (Donor ID card, envelop) 4 pink barcodes (buccal swabs)
21. Checklist Put everything together inside the form to return to the NMDP office: Completed forms with barcodes Buccal swab envelop with barcode Unused barcode labels
22. Reminders REGISTER your drive for the APAMSA “1000 Cranes for HOPE” national campaign via email at marrow@apamsa.org with the following info: Date, time, location, contact person, organization (A3M, Cammy Lee, Be the Match) APAMSA will also be holding an online bone marrow drive beginning MARCH 1st – MAY 30th with registration fee waved if you use the code “SWAB4APAMSA” at http://join.marrow.org/SWAB4APAMSA.
