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What is the
New York State Autism
Insurance Law?

On November 1, 2011, New York State
Governor Andrew Cuomo signed a law requiring health
insurance providers to offer coverage for the diagnosis and
treatment of autism spectrum disorders (ASD).
1
BACKGROUND
2013
STATE AUTISM INSURANCE REFORM
INITIATIVE MAP

KEY:
Green = Enacted law
Red = States with endorsed bill
Yellow = States working on bill in 2013
Blue = States not currently pursuing legislation
Source: www.autismspeaks.org

2
BACKGROUND
• New York is the 29th state to require autism
insurance coverage.
• The law took effect on November 1, 2012.
• The law applies to health insurance policies
and contracts issued, renewed and modified
on or after this date.

Source: www.autismvotes.org

3
State

STATE-BASED AUTISM
INSURANCE REFORM

Indiana
South Carolina
Texas
Arizona
Louisiana
Florida
Pennsylvania
Illinois
New Mexico
Montana
Nevada
Colorado
Connecticut

Year
Enacted
2001
2007
2007
2008
2008
2008
2008
2008
2009
2009
2009
2009
2009

Wisconsin
New Jersey

2009
2009

State
Population
6,483,802
4,625,364
25,145,561
6,392,017
4,533,372
18,801,310
12,702,379
12,830,632
2,059,179
989,415
2,700,551
5,029,196
3,574,097

Annual Dollar Cap

None
$50K
None
$50K: 0-8, $25K: 9-16
$36K ($144K lifetime)
$36K ($200K lifetime)
$36K
$36K
$36K ($200K lifetime)
$50K: 0-8, $20K: 9-18
$36K
$34K: 0-8, $12K: 9-19
$50K: 0-8, $35K: 9-12,
$25K: 13-14
5,686,986 $50K for 4 yrs, $25K after
8,791,894 $36K
Source: www.autismspeaks.org

Age
Cap
None
16
<10
16/17
<17
<18
<21
<21
19/22
18
18/22
<20
<15

State
E’ees
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes

Small
Group?
Yes
No
No
No
No
No
No
Yes
Yes
Yes
Yes
Yes
Yes

None
21

Yes
Yes

Yes
Yes
4
State

STATE-BASED AUTISM
INSURANCE REFORM

New York

Year
Enacted
2010
2010
2010
2010
2010
2010
2010
2010
2011
2011
2011
2011
2011

California

2011

Maine
Kentucky
Kansas
Iowa
Vermont
Missouri
New Hampshire
Massachusetts
Arkansas
West Virginia
Virginia
Rhode Island

State
Population
1,328,361
4,339,367
2,853,118
3,046,355
625,741
5,988,927
1,316,470
6,547,629
2,915,918
1,852,994
8,001,024
1,052,567
19,378,102

Annual Dollar Cap

$36K
$50K:0-7, $1K/mo:7-21
$36K:0-7, $27K:8-19
$36K
None
$40K
$36K:0-12, $72K:13-21
None
$50K
$30K for 3yrs; $24K up to 18
$35K
$32K
$45K

37,253,956 None

Age
Cap
<6
1-21
<19
<21
1 ½-6
19
21
None
<18
3-18
2-6
15
None

State
Small
E’ees Group?
Yes
Yes
Yes
Yes
Yes only No
Yes only No
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
No
Yes
Yes

None

No

No

Since original publication of this data, five additional states including the District of Columbia (DC) have enacted similar legislation bringing the total to 34 states plus the DC .

Source: www.autismspeaks.org

5
WHAT ARE THE FACTS?
60,000 individuals are estimated to
have ASD in NYS
30,000 children (under 19)
Source: www.dfs.ny.gov
www.governor.ny.gov

6
WHAT IS NOT COVERED?
• Services provided to individuals eligible for
Office of Persons With Developmental
Disabilities (OPWDD) services through an
Individualized Service Plan (ISP).
• Department of Health early intervention
program through an Individual Family
Service Plan (IFSP).
• Preschool and school age special education
programs under the NYS Department of
Education through an Individualized
Education Program (IEP).
7
WHAT IS COVERED?
• Requires health providers to offer medically
necessary coverage for the screening, diagnosis,
and treatment of ASD including:
 Behavior Health Treatment including Applied Behavior
Analysis(ABA)
 Pharmacy Care (if the policy covers other prescription
drugs)
 Psychiatric Care
 Psychological Care
 Related Services
 Assistive Communication Devices

• Provides coverage for up to $45,000 per year
for ABA provided or supervised by a Board
Certified Behavior Analyst (BCBA).

8
WHAT ARE THE FACTS?
• There are no age caps or visit caps that
apply solely to ASD.
• Allows deductibles, co-pays, co-insurance,
care management, utilization review, and
external appeals.
• Services must be prescribed by a physician
or psychologist.

9
WHAT ARE THE FACTS?
• The law prohibits an insurance company
from terminating coverage solely
because the individual has been
diagnosed with or has received
treatment for ASD.
• The law applies ONLY to state-regulated
insurance plans.

10
NY CONSUMER PROTECTIONS
THROUGH DEPARTMENT OF
FINANCIAL SERVICES
http://www.dfs.ny.gov/insurance/extapp/extappqa.htm

• External appeals for medical necessity,
experimental/investigational, clinical trial, rare disease
treatment or certain out-of-network denials.
• Department of Financial Services Consumer Assistance
Unit is available to investigate any complaint you may
have against your health plan. You can submit your
complaint to the Department of Financial Services
Consumer Assistance Unit using the Online Consumer
Complaint Form.
For more information on how to file a consumer complaint please call 1-800-342-3736

11
THANK YOU FOR COMING!
We invite you to stay informed by
visiting our website at
www.AndersonCares.org

12

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Autism Insurance PowerPoint Presentation

  • 1. What is the New York State Autism Insurance Law? On November 1, 2011, New York State Governor Andrew Cuomo signed a law requiring health insurance providers to offer coverage for the diagnosis and treatment of autism spectrum disorders (ASD). 1
  • 2. BACKGROUND 2013 STATE AUTISM INSURANCE REFORM INITIATIVE MAP KEY: Green = Enacted law Red = States with endorsed bill Yellow = States working on bill in 2013 Blue = States not currently pursuing legislation Source: www.autismspeaks.org 2
  • 3. BACKGROUND • New York is the 29th state to require autism insurance coverage. • The law took effect on November 1, 2012. • The law applies to health insurance policies and contracts issued, renewed and modified on or after this date. Source: www.autismvotes.org 3
  • 4. State STATE-BASED AUTISM INSURANCE REFORM Indiana South Carolina Texas Arizona Louisiana Florida Pennsylvania Illinois New Mexico Montana Nevada Colorado Connecticut Year Enacted 2001 2007 2007 2008 2008 2008 2008 2008 2009 2009 2009 2009 2009 Wisconsin New Jersey 2009 2009 State Population 6,483,802 4,625,364 25,145,561 6,392,017 4,533,372 18,801,310 12,702,379 12,830,632 2,059,179 989,415 2,700,551 5,029,196 3,574,097 Annual Dollar Cap None $50K None $50K: 0-8, $25K: 9-16 $36K ($144K lifetime) $36K ($200K lifetime) $36K $36K $36K ($200K lifetime) $50K: 0-8, $20K: 9-18 $36K $34K: 0-8, $12K: 9-19 $50K: 0-8, $35K: 9-12, $25K: 13-14 5,686,986 $50K for 4 yrs, $25K after 8,791,894 $36K Source: www.autismspeaks.org Age Cap None 16 <10 16/17 <17 <18 <21 <21 19/22 18 18/22 <20 <15 State E’ees Yes Yes No Yes Yes Yes Yes Yes No Yes Yes Yes Yes Small Group? Yes No No No No No No Yes Yes Yes Yes Yes Yes None 21 Yes Yes Yes Yes 4
  • 5. State STATE-BASED AUTISM INSURANCE REFORM New York Year Enacted 2010 2010 2010 2010 2010 2010 2010 2010 2011 2011 2011 2011 2011 California 2011 Maine Kentucky Kansas Iowa Vermont Missouri New Hampshire Massachusetts Arkansas West Virginia Virginia Rhode Island State Population 1,328,361 4,339,367 2,853,118 3,046,355 625,741 5,988,927 1,316,470 6,547,629 2,915,918 1,852,994 8,001,024 1,052,567 19,378,102 Annual Dollar Cap $36K $50K:0-7, $1K/mo:7-21 $36K:0-7, $27K:8-19 $36K None $40K $36K:0-12, $72K:13-21 None $50K $30K for 3yrs; $24K up to 18 $35K $32K $45K 37,253,956 None Age Cap <6 1-21 <19 <21 1 ½-6 19 21 None <18 3-18 2-6 15 None State Small E’ees Group? Yes Yes Yes Yes Yes only No Yes only No Yes Yes Yes Yes Yes Yes Yes Yes Yes No Yes Yes Yes No Yes No Yes Yes None No No Since original publication of this data, five additional states including the District of Columbia (DC) have enacted similar legislation bringing the total to 34 states plus the DC . Source: www.autismspeaks.org 5
  • 6. WHAT ARE THE FACTS? 60,000 individuals are estimated to have ASD in NYS 30,000 children (under 19) Source: www.dfs.ny.gov www.governor.ny.gov 6
  • 7. WHAT IS NOT COVERED? • Services provided to individuals eligible for Office of Persons With Developmental Disabilities (OPWDD) services through an Individualized Service Plan (ISP). • Department of Health early intervention program through an Individual Family Service Plan (IFSP). • Preschool and school age special education programs under the NYS Department of Education through an Individualized Education Program (IEP). 7
  • 8. WHAT IS COVERED? • Requires health providers to offer medically necessary coverage for the screening, diagnosis, and treatment of ASD including:  Behavior Health Treatment including Applied Behavior Analysis(ABA)  Pharmacy Care (if the policy covers other prescription drugs)  Psychiatric Care  Psychological Care  Related Services  Assistive Communication Devices • Provides coverage for up to $45,000 per year for ABA provided or supervised by a Board Certified Behavior Analyst (BCBA). 8
  • 9. WHAT ARE THE FACTS? • There are no age caps or visit caps that apply solely to ASD. • Allows deductibles, co-pays, co-insurance, care management, utilization review, and external appeals. • Services must be prescribed by a physician or psychologist. 9
  • 10. WHAT ARE THE FACTS? • The law prohibits an insurance company from terminating coverage solely because the individual has been diagnosed with or has received treatment for ASD. • The law applies ONLY to state-regulated insurance plans. 10
  • 11. NY CONSUMER PROTECTIONS THROUGH DEPARTMENT OF FINANCIAL SERVICES http://www.dfs.ny.gov/insurance/extapp/extappqa.htm • External appeals for medical necessity, experimental/investigational, clinical trial, rare disease treatment or certain out-of-network denials. • Department of Financial Services Consumer Assistance Unit is available to investigate any complaint you may have against your health plan. You can submit your complaint to the Department of Financial Services Consumer Assistance Unit using the Online Consumer Complaint Form. For more information on how to file a consumer complaint please call 1-800-342-3736 11
  • 12. THANK YOU FOR COMING! We invite you to stay informed by visiting our website at www.AndersonCares.org 12