The document summarizes a home visiting summit that took place in September 2012. It discusses:
1) The Act Early Ambassador project, a collaborative effort between CDC, HRSA, and AUCD to advance CDC's "Learn the Signs. Act Early." program to improve early identification of developmental disabilities.
2) An overview of the summit which included reviewing the importance of early identification of developmental delays, an overview of the "Learn the Signs. Act Early." campaign and materials, and a case study on early signs of autism.
3) A brief history of CDC's National Center on Birth Defects and Developmental Disabilities and the "Learn the Signs. Act Early." initiative to
1. SC Home Visiting Summit
September 2012
Jane Witowski
Acknowledgment
The Act Early Ambassador project is a collaborative effort of the Centers for Disease Control and
Prevention (CDC), Health Resources and Services Administration (HRSA) and Association of
University Centers on Disabilities (AUCD) to advance CDC’s “Learn the Signs. Act Early.” program
to improve early identification of developmental disabilities. The project is funded by CDC and
HRSA.
www.cdc.gov/ActEarly
3. Session Overview
• Review the importance of early
identification of developmental
delays and early action.
• Take a look at LTSAE campaign,
messages and materials.
• Case study on the early warning
signs of Autism.
5. Brief History
• 2000 Children’s Health Act
established National Center on
Birth Defects and Developmental
Disabilities (NCBDDD) at the CDC
• 2001 NCBDDD created
Div of Birth Defects and DD
Div of Human Dev & Disability
Div of Blood Disorders
6. NCBCDD Mission
• Promote the health of
babies, children and adults
and enhance potential for
full, productive living
• 1 in 33 babies – birth defects
leading cause of infant death
• 500,000 children diagnosed with dev
disabilities-usually after school entry
7. Brief History
• 2002 Cooperative agreements
with AUCD and MCH
• 2005 LTSAE campaign begins
• 2007-2010 Act Early Summits
regional
meetings
55 teams, 900 people
8. Brief History
• 2008- present
Act Early State Teams
45 states
• 2011- present
Act Early Ambassador Program
state liaison to CDC’s LTSAE
9. Act Early Initiative
• State and national partners
work to improve early
childhood systems in each state
by:
1. enhancing collaborative
efforts to improve screening
and referral to early
intervention services.
2. developing tools and
resources to help states analyze
and measure their system.
10. Act Early Ambassadors
• Represent the Act Early
initiative
• Promote LTSAE campaign,
messages and strategies
• Develop network of state
leaders to expand the LTSAE
reach
• Support the Act Early team
• Promote ACT curriculum
12. True or False?
• About 17% of all children will
experience some kind of
developmental delay?
• Most children with a
developmental delay are identified
before entering school.
• In the US, about 1 in 110 children
has an Autism Spectrum Disorder.
• Children usually grow out of a
developmental delay.
14. Campaign Mission
• To improve early identification
of children with Autism and
other developmental
disabilities so children and
families can get the services
and support they need as soon
as possible.
16. Research& Evaluation
• Improve campaign materials
and implementation activities
and increase our understanding
of the factors that influence
early identification and referral
Currently Funded Research
Helping Family Practitioners Improve Screening
Early ID and service connection among low-
income, low literacy urban parents
Reaching families at risk for child maltreatment
Benchmarks for Early Screening and Testing
Building Community Capacity for LTSAE
17. SC Act Early Team
• State level team of agency leaders led
by David Rotholz, PhD, Director, CDR,
USCSOM
• Mission: improve quality of life for
children, youth and adults with ASD
and their families.
• Action Plan: Roadmap to
developmental services, training for
master clinicians to enhance
competencies among pediatricians.
18. Health Education
• Promote awareness of
developmental milestones
• Importance of tracking each
child’s development
• Importance of acting early if
there are concerns
19. Campaign Tools
• Target audience: parents,
health care providers, early
educators
• Research-based, easily
accessible, customizable and
free
• Variety of languages
• www.cdc/actearly
• www.cdc/pronto
• 1-800-CDC-INFO
More than 5,500 infants die each year because of birth defects. CDC and partners working to change these figures. Much of the work of the NCBDDD focuses on protecting people who are especially vulnerable to health risks—including children. The early years of life—birth to 5– are critical to a child’s development.
These partnerships helped to strengthen the national capacity to carry out public health activities. Regional summits build upon and initiated new relationship among key stakeholders in the field, provided forums to share important information and served as catalysts for the development of state teams. State leaders received technical assistance from AUCD, MCH and CDC to develop state action plans for improving early identification of Autism and other DD.
10 ambassadors 2011- 15 ambassadors this year South Carolina is well represented this year- Walt Jenner from MUSC who is education and outreach officer for the SC Ausitm and Developmental Disabilites Monitoring Program (ASSM) at MUSC selected to serve as ambassador to other states ADDM networks. These groups responsible for providing information to the CDC to assist with determining prevalence numbers.
True- Sometimes you will see a range of 15-20%, but AAP uses 17%. False- Sad, but true. Despite improvements in routine developmental screening, only 30% of children are identified prior to school entry. Every year, more than a million children with unidentified disabilities enter school with learning and health issues that put them far behind their peers and have a lasting, negative effect on their ability to meet their full potential. False-new prevalence data release earlier this year indicates that 1 in 88 children has ASD- in SC, it’s 1 in 90 with boys about 4 times more likely than girls to have the diagnosis…average age of diagnosis is between 4 and 4 ½ years. African American children are diagnoses with ASD at later ages and Hispanic children are less likely to diagnosed at all. False- developmental delays are not things that children grow out of- so it’s vital that we all learn the signs of delays and help to identify children as early as possible so intervention can begin and children can reach full potential.
Research projects address information need of parents, health care providers, and early educators to improve early identification in populations with health disparities. Also research about how to reach special populations with campaign messages and how to improve systems that identify and serve children with developmental delays.
AE team works to improve awareness on asd prevallence and the importance of screening and early referral Diagnostic and intervention efforts are implemented effectively in timely manner consistent with appropriate professional and evidence-based practice Information about services is easily available to families Services are provided by competent personnel at a high level of quality and Cross system collaboration is seamless and ongoing evaluation of effectiveness of services.
Video is about 4 minutes long-English only Learn how to look for developmental milestones and what to do if you’re worried about your child’s development or think there’s a problem.
anyone who works with young children is in a position to make valuable observations about a child’s development