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Confronting Science: African American
 Perceptions of Science and Medical
              Research

       Missouri History Museum
       Black History Month series
           Dr. Danielle N. Lee
Ethics

Several ethical issues are broached in the
narrative.

What ethical dilemmas were revealed to
you?
7 Major Ethical Themes
1.   Consent and Informed consent
2.   Privacy
3.   Benevolent Deception
4.   Vulnerable subjects
5.   Blind Objectivity
6.   Capitalistic Urges
7.   Game changers
Consent & Informed consent


• What does consent mean to you? Would
  others agree?
    • Chapter 3. Diagnosis and Treatment
    • Chapter 12. The Storm
Privacy


• Why does privacy matter? Who does it really
  protect?
     • Chapter 14. Helen Lane
Vulnerable subjects


• Who are vulnerable subjects? How can we
  become less vulnerable?
     • Chapter 6. Lady’s on the phone
Blind objectivity


• How does this defense resulted in
  greater/prolonged mistrust of scientists by the
  community?
     • Chapter 7. The Death and Life of Cell Culture
     • Chapter 12. The Storm
Capitalistic urges


• Everyone seemed to benefit from HeLa cells,
  except the Lacks family. Can anything be done
  to correct this?
     • Chapter 13. The HeLa Factory
     • Chapter 11. The Devil of Pain Itself
The Game Changer


• Do today’s codes of ethics and laws protect
  patients and families today? How do you feel
  about science/medical/pharmaceutical
  research?
     • Chapter 17. Illegal, Immoral, and Deplorable
Next in the Confronting Science Series:
                 Accessibility
Tuesday, February 22, 2011

Contact me:
Danielle N. Lee
dnlee5@ymail.com
Twitter: @DNLee5
•   Urban Science Adventures! © Exploring & discovering nature in urban places
    http://urban-science.blogspot.com

•   SouthernPlaylisticEvolutionMusic       Evolutionary science remixed with phat beats
    http://hiphopevolution.southernfriedscience.com

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Confronting Science Part 1/3 - ETHICS: African American Perceptions of Science & Medical Research

  • 1. Confronting Science: African American Perceptions of Science and Medical Research Missouri History Museum Black History Month series Dr. Danielle N. Lee
  • 2. Ethics Several ethical issues are broached in the narrative. What ethical dilemmas were revealed to you?
  • 3. 7 Major Ethical Themes 1. Consent and Informed consent 2. Privacy 3. Benevolent Deception 4. Vulnerable subjects 5. Blind Objectivity 6. Capitalistic Urges 7. Game changers
  • 4. Consent & Informed consent • What does consent mean to you? Would others agree? • Chapter 3. Diagnosis and Treatment • Chapter 12. The Storm
  • 5. Privacy • Why does privacy matter? Who does it really protect? • Chapter 14. Helen Lane
  • 6. Vulnerable subjects • Who are vulnerable subjects? How can we become less vulnerable? • Chapter 6. Lady’s on the phone
  • 7. Blind objectivity • How does this defense resulted in greater/prolonged mistrust of scientists by the community? • Chapter 7. The Death and Life of Cell Culture • Chapter 12. The Storm
  • 8. Capitalistic urges • Everyone seemed to benefit from HeLa cells, except the Lacks family. Can anything be done to correct this? • Chapter 13. The HeLa Factory • Chapter 11. The Devil of Pain Itself
  • 9. The Game Changer • Do today’s codes of ethics and laws protect patients and families today? How do you feel about science/medical/pharmaceutical research? • Chapter 17. Illegal, Immoral, and Deplorable
  • 10. Next in the Confronting Science Series: Accessibility Tuesday, February 22, 2011 Contact me: Danielle N. Lee dnlee5@ymail.com Twitter: @DNLee5 • Urban Science Adventures! © Exploring & discovering nature in urban places http://urban-science.blogspot.com • SouthernPlaylisticEvolutionMusic Evolutionary science remixed with phat beats http://hiphopevolution.southernfriedscience.com