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What’s a patient fund?             January the 7th, 20132013 FundMyMedicalResearch.org – http://twitter.com/FundMyMR      ...
Usual dynamics of funding by patientorganizations Collect first then invest Cost of operation is not segregated from fundi...
What if?  Patient knew exactly what they’re funding  Cost of operation would be segregated from project money  from the mo...
The problem of funding thetranslational research gap Turning bench research into clinical research Going from public to pr...
How a patient fund can help filling thegap? Patients can donate from everywhere in the world   The most promising solution...
The dynamics of a patient fund                                                             INVESTMENT                     ...
What’s new about it? Funds can only accumulate once they’ve been invested at least once in a meaningful project   Think of...
What’s in it for patients? Patients won’t see their money back, but… Patients can control where their money goes Patients ...
What is Fund My Medical Research? Fund My Medical Research is a non-profit organization registered under French Law with b...
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What is a Patient Fund?

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This presentation explains the concept of Patient Fund, a new way for patients to finance medical research and control their donations using the principles of crowdfunding.

Publié dans : Santé & Médecine
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What is a Patient Fund?

  1. 1. What’s a patient fund? January the 7th, 20132013 FundMyMedicalResearch.org – http://twitter.com/FundMyMR CC BY-NC-ND
  2. 2. Usual dynamics of funding by patientorganizations Collect first then invest Cost of operation is not segregated from funding of projects Needs to manage a project flow matching the donation flow: If good projects are rarer, money stacks up on organization accounts, or less good projects are funded If good projects are plenty, some good projects have to wait for next year collection cycle 2012 FundMyMedicalResearch.org – http://twitter.com/FundMyMR 2013 CC BY-NC-ND
  3. 3. What if? Patient knew exactly what they’re funding Cost of operation would be segregated from project money from the moment donation is collected⇒ let’s experiment a patient fund • Projects are invested in via crowdfunding (donation to the patient org who invests in a startup) • Explicit portion of donations is given for organization’s costs (e.g. 12%-20%), and main portion is exclusively affected to projects financing 2012 FundMyMedicalResearch.org – http://twitter.com/FundMyMR 2013 CC BY-NC-ND
  4. 4. The problem of funding thetranslational research gap Turning bench research into clinical research Going from public to private research Forming a biotech needing funds to turn IP into a tested drug that have less than 10% chances ending on the market how it is funded today Non-profit funding done by government and philanthropic institutions For-profit funding done by BAs or VCs seeking a positive financial return, but within acceptable risk boundaries ..but lacks sufficient investors with a long horizon and ability to take high-risk 2012 FundMyMedicalResearch.org – http://twitter.com/FundMyMR 2013 CC BY-NC-ND
  5. 5. How a patient fund can help filling thegap? Patients can donate from everywhere in the world The most promising solutions for a cure can be financed wherever they are developed Today, all national regulations make it impossible to invest directly in biotechs around the world, but it’s possible to pool donations at a global level then invest Patients can invest where financiers don’t see a big market opportunity Orphan diseases Repurposing of generic drugs Patients can take long positions Patients are impatient for a cure, but patient with financial returns 2012 FundMyMedicalResearch.org – http://twitter.com/FundMyMR 2013 CC BY-NC-ND
  6. 6. The dynamics of a patient fund INVESTMENT Project ACME ACME Biotech funding shares ACME Biotech Donation for ACME project Patient organization DONATION Patient fund Innov Biotech RE-INVESTMENT Clinical trialsDonors Financing Operations Principal +/- Financing Return Operations 1 out of 10 on the market 2012 FundMyMedicalResearch.org – http://twitter.com/FundMyMR 2013 CC BY-NC-ND
  7. 7. What’s new about it? Funds can only accumulate once they’ve been invested at least once in a meaningful project Think of it as the opposite of an endowment (in a patient fund, principal is always invested in projects) Donors keep control of the money that has returned Think of it as Kiva applied to investment in biotechs 2012 FundMyMedicalResearch.org – http://twitter.com/FundMyMR 2013 CC BY-NC-ND
  8. 8. What’s in it for patients? Patients won’t see their money back, but… Patients can control where their money goes Patients can be updated of progresses (investors usually get more information than grant providers) Patients can start having their voice heard during the development cycle Patients can grow their financial impact, and say, over time 2012 FundMyMedicalResearch.org – http://twitter.com/FundMyMR 2013 CC BY-NC-ND
  9. 9. What is Fund My Medical Research? Fund My Medical Research is a non-profit organization registered under French Law with by-laws established to make it operate as a Patient Fund Fund My Medical Research intends to quickly operate as a federation of local chapters operating under similar by-laws who will be able to invest in local biotechs, in accordance with local national laws Fund My Medical Research is promoting the use of Patient Funds by any patient organization around the world to speed-up medical research globally http://www.fundmymedicalresearch.org Follow us on Twitter at http://twitter.com/FundMyMR Contact us at contact@fundmymedicalresearch.org 2012 FundMyMedicalResearch.org – http://twitter.com/FundMyMR 2013 CC BY-NC-ND

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