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HDC Webinar Series
Introduced by Dwayne Spradlin, CEO, Health Data Consortium
The HHS Health Data Initiative (HDI)
Strategy & Execution Plan
Damon Davis, U.S. Department of Health and Human Services
Health care is a
$2.8T industry in
the U.S., 18% of
our GDP and
growing
We are now living in a
health care system where
data is driving change
Payment reform
Data is changing…
Individual health interaction
Treatment @ the point of care
In the Beginning…
In 2010 - 40 entrepreneurs around a table, 25 datasets, 90 day
challenge… First Datapalooza!
3 Years later… Health Datapalooza IV - 2,000+ people
HealthData.gov has over 1,000 datasets cataloged
Disruption is happening - we see companies springing up led by
entrepreneurs who know nothing about healthcare
Improve health, health care and delivery
of human services by harnessing the
power of data and fostering a culture of
innovative uses of data in public and
private sector institutions, communities,
research groups and policy making arenas
LAST 3 YEARS FOCUSED ON LIBERATING DATA
Changed the default setting for
data from closed to open
OPEN DATA EXECUTION PLAN 5 GOALS:
Advancing HealthData.gov site
Highlighting departmental assets that support achieving
HHS strategic initiatives
Educating new and existing, internal and external
participants
Implementing administration and departmental
policies that foster openness
Enabling and incentivizing the health data ecosystem
• Improving metadata quality for better usability
• Area of the platform for non-HHS data
• Obtain future funding
• User feedback loops for better usability
• Developing and publicizing the ability to store and host HHS data
• Improve sort and search
11U.S. Dept of Health & Human Services
• Draft a working definition for “Strategically Relevant Data Assets” (SRDA)
and generate a list of those HHS data assets
• Further drive the department’s culture change toward data openness
• Work with each HHS division on external outreach to broad as well as
targeted specific ecosystem participants about the availability and potential
creative uses of HHS public data sources
• Increase the traffic to Healthdata.gov as the discovery zone for federal &
state health & human services data
12U.S. Dept of Health & Human Services
• Spotlighting the value of openly available health data to health care
transformations
• Increasing the percentage of machine readable data assets
• Continuing and expanding external outreach
• Develop use cases and an internal marketing approach to enhance
workforce engagement and continue the culture shift toward an
understanding of and appreciation for open data
• Insert the tenets of the HDI into IDEA Lab programs
13U.S. Dept of Health & Human Services
• Continue to publicize the availability of the data and draw attention to
uses of the data in the transformation of health, healthcare, and the
delivery of human services
• Seek new ways to engage entrepreneurs who may use the data as fuel for
their business
• Develop relationships and support the needs of federal and non-federal
data projects, data enclaves, repositories, and innovation test beds for
more powerful analytic capabilities
14U.S. Dept of Health & Human Services
• HDI Charter to institutionalize the Health Data Initiative
• Implement the Open Data Policy M13-
Asset
• Draft plans to address the impacts of the Holdren Memo on Increasing
Access to the Results of Federally Funded Scientific Research
• Clarifying the relationship of the Open Data Policy, Holdren Memo, and
Executive Order for the implications of each individually and as contrasted
with each other
15U.S. Dept of Health & Human Services
WE NEED YOUR HELP
Help us disrupt the health care
ecosystem
• Tell us what data you want to use
• Help us define a strategically
relevant data set
• Share your data with us
• Tell us how you are using health
data
Help us disrupt the health care
ecosystem
• Tell us what data you want to use
• Help us define a strategically
relevant data set
• Share your data with us
• Tell us how you are using health
data
WE NEED YOUR HELP
Help us disrupt the health care
ecosystem
• Tell us what data you want to use
• Help us define a strategically
relevant data set
• Share your data with us
• Tell us how you are using health
data
WE NEED YOUR HELP
Help us disrupt the health care
ecosystem
• Tell us what data you want to use
• Help us define a strategically
relevant data set
• Share your data with us
• Tell us how you are using health
data
WE NEED YOUR HELP
MORE INFORMATION
On the web at HealthData.gov d
Follow us on Twitter @HealthDatagov
Me: @DamonLDavis

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HDC Webinar on HHS Health Data Initiative Strategy & Execution Plan

  • 1. HDC Webinar Series Introduced by Dwayne Spradlin, CEO, Health Data Consortium The HHS Health Data Initiative (HDI) Strategy & Execution Plan Damon Davis, U.S. Department of Health and Human Services
  • 2.
  • 3. Health care is a $2.8T industry in the U.S., 18% of our GDP and growing
  • 4. We are now living in a health care system where data is driving change
  • 5. Payment reform Data is changing… Individual health interaction Treatment @ the point of care
  • 6. In the Beginning… In 2010 - 40 entrepreneurs around a table, 25 datasets, 90 day challenge… First Datapalooza! 3 Years later… Health Datapalooza IV - 2,000+ people HealthData.gov has over 1,000 datasets cataloged Disruption is happening - we see companies springing up led by entrepreneurs who know nothing about healthcare
  • 7.
  • 8. Improve health, health care and delivery of human services by harnessing the power of data and fostering a culture of innovative uses of data in public and private sector institutions, communities, research groups and policy making arenas
  • 9. LAST 3 YEARS FOCUSED ON LIBERATING DATA Changed the default setting for data from closed to open
  • 10. OPEN DATA EXECUTION PLAN 5 GOALS: Advancing HealthData.gov site Highlighting departmental assets that support achieving HHS strategic initiatives Educating new and existing, internal and external participants Implementing administration and departmental policies that foster openness Enabling and incentivizing the health data ecosystem
  • 11. • Improving metadata quality for better usability • Area of the platform for non-HHS data • Obtain future funding • User feedback loops for better usability • Developing and publicizing the ability to store and host HHS data • Improve sort and search 11U.S. Dept of Health & Human Services
  • 12. • Draft a working definition for “Strategically Relevant Data Assets” (SRDA) and generate a list of those HHS data assets • Further drive the department’s culture change toward data openness • Work with each HHS division on external outreach to broad as well as targeted specific ecosystem participants about the availability and potential creative uses of HHS public data sources • Increase the traffic to Healthdata.gov as the discovery zone for federal & state health & human services data 12U.S. Dept of Health & Human Services
  • 13. • Spotlighting the value of openly available health data to health care transformations • Increasing the percentage of machine readable data assets • Continuing and expanding external outreach • Develop use cases and an internal marketing approach to enhance workforce engagement and continue the culture shift toward an understanding of and appreciation for open data • Insert the tenets of the HDI into IDEA Lab programs 13U.S. Dept of Health & Human Services
  • 14. • Continue to publicize the availability of the data and draw attention to uses of the data in the transformation of health, healthcare, and the delivery of human services • Seek new ways to engage entrepreneurs who may use the data as fuel for their business • Develop relationships and support the needs of federal and non-federal data projects, data enclaves, repositories, and innovation test beds for more powerful analytic capabilities 14U.S. Dept of Health & Human Services
  • 15. • HDI Charter to institutionalize the Health Data Initiative • Implement the Open Data Policy M13- Asset • Draft plans to address the impacts of the Holdren Memo on Increasing Access to the Results of Federally Funded Scientific Research • Clarifying the relationship of the Open Data Policy, Holdren Memo, and Executive Order for the implications of each individually and as contrasted with each other 15U.S. Dept of Health & Human Services
  • 16.
  • 17.
  • 18. WE NEED YOUR HELP Help us disrupt the health care ecosystem • Tell us what data you want to use • Help us define a strategically relevant data set • Share your data with us • Tell us how you are using health data
  • 19. Help us disrupt the health care ecosystem • Tell us what data you want to use • Help us define a strategically relevant data set • Share your data with us • Tell us how you are using health data WE NEED YOUR HELP
  • 20. Help us disrupt the health care ecosystem • Tell us what data you want to use • Help us define a strategically relevant data set • Share your data with us • Tell us how you are using health data WE NEED YOUR HELP
  • 21. Help us disrupt the health care ecosystem • Tell us what data you want to use • Help us define a strategically relevant data set • Share your data with us • Tell us how you are using health data WE NEED YOUR HELP
  • 22. MORE INFORMATION On the web at HealthData.gov d Follow us on Twitter @HealthDatagov Me: @DamonLDavis