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Patient aspects: A review of
  58 Danish HTA reports
    HTAi – Bilbao, June 25th 2012

    Helle Ploug Hansen, Ph.D., Mag.Scient., R.N.
     Anne Lee, Christian Balslev van Randwijk
                 Institute of Public Health
              University of Southern Denmark
                 hphansen@health.sdu.dk


                                                   1
Focus and attention
There is an increasing focus on designing health services
as “patient focused”
This includes:
 involvement of patients in their own care
 involvement of patients and citizens in decisions about
   healthcare services
This attention is reflected in a growing focus on patient
aspects and patient involvement in health technology HTA,
and not least on how this focus might be strengthened.

                                                            2
A review
 A review on the inclusion of patient and/or organizational
  aspects in HTA reports published by INATHA members
  2000–05 showed a great variation in relation to explicit
  inclusion of the aspects to be assessed as well as in how
  the aspects were addressed.

 Based on the results from this review, an interest
  emerged for reviewing the Danish HTAs in relation to how
  these reports have addressed patient aspects.

                                                           3
In Denmark
• A long tradition for conducting HTAs within a
  framework of four key elements: (i) technology,
  (ii) patient, (iii) organization, and (iv) economy.

• In the Danish Handbook of HTA, it is stated that
  the patient element must focus on patient aspects,
  such as patient perspectives, needs, experiences,
  preferences, and/or acceptance of a given
  technology.
                                                        4
The purpose is to
• present results from a study of how ‘the
  patient’ has been assessed in Danish HTA
  reports

• contribute to the ongoing international
  debates concerning patient perspectives and
  patient involvement in HTA

                                             5
We
read 58 Danish HTA reports published from
1999 to 2010
systematically focused on:
the inclusion of patient aspects
the methods used to generate data
if and how clinical recommendations
  concerning patient aspects were drawn
                                            6
Secondary research
• While all the reports included some kind of literature
  search, there was a considerable variation in relation to
  how the authors presented and discussed their choice of
  search, the purpose and perspectives of the study.
• In 12 reports (21 %), a systematic literature search was
  included specifically for the patient aspects.
• In one report, a systematic literature search was included
  but the databases used were not presented.
• In 29 reports (50 %), a collective systematic literature
  search was included.

                                                               7
Primary research
• In thirty-four (59 %) of the reports, primary data were
  generated.
• Sixteen of these reports (47 %) used quantitative
  methods.
• Thirteen (38 %) used qualitative methods.
• Five reports (15 %) used both kinds of methods.
• Of the 24 reports that did not produce primary data,
  twenty-two (92 %) relied on literature reviews.


                                                            8
Summary of the results I
• 51 reports had a separate chapter about patient aspects.
• Of the remaining 7 reports, 2 stood out. Here, the authors argued
  that because of their theoretical approach, patients aspects was
  incorporated in other elements of the report.
• In one of these 2 reports, theories of knowledge and knowledge
  production were used to illustrate the ward round at a hospital as a
  production of knowledge, aimed at managing the diagnostic and
  therapeutic work.
• In the other report, actor-network theories were used to understand
  certain aspects of poly-pharmacologic treatment of type 2 diabetes.
  Here, patient aspects were integrated in the elements of technology
  and organization.
• The remaining 5 reports did not specify reasons for not having a
  separate chapter for patient aspects.
                                                                         9
Summary of the results II
• 54 reports stated the objectives and/or research questions.
• All reports included literature reviews.
• Medical and HTA databases were the most used.
• More than half of the reports included primary research,
  either quantitative or qualitative methods, a few both.
• Some mentioned the importance of including patient
  aspects in daily clinical practice.
• Others provided ideas on how to improve information or
  recommended changes in healthcare practices.


                                                            10
Inclusion of empirical data and
         methods used




                                  11
Patient aspects included in the
concluding part of the reports




                                  12
Conclusions
• Danish HTA reports do, to some extent, include patient
  aspects in the assessment and in the final conclusions of
  the reports.
• If health policy and decision making is to be patient-
  focused, it is important that HTAs in the future integrate
  patient aspects in recommendations of HTA.
• Further improvement in assessments of patient aspects, in
  relation to use and description of methodologies and
  theoretical considerations, will assist producing the
  relevant evidence for these recommendations.

                                                           13

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Patient aspects: A review of 58 Danish HTA reports

  • 1. Patient aspects: A review of 58 Danish HTA reports HTAi – Bilbao, June 25th 2012 Helle Ploug Hansen, Ph.D., Mag.Scient., R.N. Anne Lee, Christian Balslev van Randwijk Institute of Public Health University of Southern Denmark hphansen@health.sdu.dk 1
  • 2. Focus and attention There is an increasing focus on designing health services as “patient focused” This includes:  involvement of patients in their own care  involvement of patients and citizens in decisions about healthcare services This attention is reflected in a growing focus on patient aspects and patient involvement in health technology HTA, and not least on how this focus might be strengthened. 2
  • 3. A review  A review on the inclusion of patient and/or organizational aspects in HTA reports published by INATHA members 2000–05 showed a great variation in relation to explicit inclusion of the aspects to be assessed as well as in how the aspects were addressed.  Based on the results from this review, an interest emerged for reviewing the Danish HTAs in relation to how these reports have addressed patient aspects. 3
  • 4. In Denmark • A long tradition for conducting HTAs within a framework of four key elements: (i) technology, (ii) patient, (iii) organization, and (iv) economy. • In the Danish Handbook of HTA, it is stated that the patient element must focus on patient aspects, such as patient perspectives, needs, experiences, preferences, and/or acceptance of a given technology. 4
  • 5. The purpose is to • present results from a study of how ‘the patient’ has been assessed in Danish HTA reports • contribute to the ongoing international debates concerning patient perspectives and patient involvement in HTA 5
  • 6. We read 58 Danish HTA reports published from 1999 to 2010 systematically focused on: the inclusion of patient aspects the methods used to generate data if and how clinical recommendations concerning patient aspects were drawn 6
  • 7. Secondary research • While all the reports included some kind of literature search, there was a considerable variation in relation to how the authors presented and discussed their choice of search, the purpose and perspectives of the study. • In 12 reports (21 %), a systematic literature search was included specifically for the patient aspects. • In one report, a systematic literature search was included but the databases used were not presented. • In 29 reports (50 %), a collective systematic literature search was included. 7
  • 8. Primary research • In thirty-four (59 %) of the reports, primary data were generated. • Sixteen of these reports (47 %) used quantitative methods. • Thirteen (38 %) used qualitative methods. • Five reports (15 %) used both kinds of methods. • Of the 24 reports that did not produce primary data, twenty-two (92 %) relied on literature reviews. 8
  • 9. Summary of the results I • 51 reports had a separate chapter about patient aspects. • Of the remaining 7 reports, 2 stood out. Here, the authors argued that because of their theoretical approach, patients aspects was incorporated in other elements of the report. • In one of these 2 reports, theories of knowledge and knowledge production were used to illustrate the ward round at a hospital as a production of knowledge, aimed at managing the diagnostic and therapeutic work. • In the other report, actor-network theories were used to understand certain aspects of poly-pharmacologic treatment of type 2 diabetes. Here, patient aspects were integrated in the elements of technology and organization. • The remaining 5 reports did not specify reasons for not having a separate chapter for patient aspects. 9
  • 10. Summary of the results II • 54 reports stated the objectives and/or research questions. • All reports included literature reviews. • Medical and HTA databases were the most used. • More than half of the reports included primary research, either quantitative or qualitative methods, a few both. • Some mentioned the importance of including patient aspects in daily clinical practice. • Others provided ideas on how to improve information or recommended changes in healthcare practices. 10
  • 11. Inclusion of empirical data and methods used 11
  • 12. Patient aspects included in the concluding part of the reports 12
  • 13. Conclusions • Danish HTA reports do, to some extent, include patient aspects in the assessment and in the final conclusions of the reports. • If health policy and decision making is to be patient- focused, it is important that HTAs in the future integrate patient aspects in recommendations of HTA. • Further improvement in assessments of patient aspects, in relation to use and description of methodologies and theoretical considerations, will assist producing the relevant evidence for these recommendations. 13