This document discusses trends in digital health and patient engagement from 2010. It highlights opportunities for mobile health apps, social media usage by patients and providers, and the need for pharmaceutical companies to understand engaged "e-patients". It also profiles "e-Patient Dave" and his story of using online resources to actively manage his stage IV cancer and collaborate with his care team. He advocates that empowered, engaged patients can help improve healthcare outcomes and systems.

1. Laugh, Sing, and Eat Like a Pig E-Patient Connections 2010

3. Revisiting 2010 Trends: How Did We Do? Regulatory Bodies & 21st Century Value Add Beyond the Pill Technology for Reps Mobile Health Apps  CRM Multidisciplinary Solution Teams Data & Intelligence Patient & HCP Online Usage Embracement of Piloting Technology & Marketing Challenges Social Media

4. Value Add Beyond the Pill

5. Defining Value Add Beyond the Pill Our Definition: Increasing the value proposition of the pharma brand by helping patients become more engaged in their health.

6. Answering the Patient Need Need for Blended Support

8. Integration of Wireless Health Devices

9. Practical Examples: Discussion Tomorrow 1 2

11. 2011: Blend of Technologies Wireless Health Devices User Monitoring Interfaces Next Generation of Patient Support Programs

12. Where to Start?

14. Consistency of presentation across devices

15. Potential FDA 510k territory

18. The Incidental Finding Routine shoulder x-ray, Jan. 2, 2007 “Your shoulder will be fine … but there’s something in your lung” The shadow was a golf-ball size tumor: kidney cancer that had spread throughout the body

19. “Textbook” Stage IV,Grade 4Renal CellCarcinoma My lesions matched this illustration of Stage 4 RCC on Proleukin.com, with many more. Median survival time was 24 weeks after diagnosis; I was on the way out.

20. E-Patient Activity 1 An e-Patient online:Researching my condition

21. Laugh!

22. Sing!

23. Eat Like a Pig!

24. An e-Patient online:“My doctor prescribed ACOR”(Community of my patient peers)

25. An e-Patient online:My own social support network(CaringBridge.org - family and friends - journal & guestbook)

26. An e-Patient online: Reading (and sharing) my hospital data online

27. Finally, a Symptom (6 weeks post-x-ray)

28. Baseline: 39x43 mm 50 weeks: 20x12 mm Surgery and Interleukin worked.Target Lesion 1 – Left Upper Lobe

29. Booyea!

30. Pay it forward.Start a blog, to teach.

31. e-Patients.net founderTom Ferguson MD 1944-2006 Doc Tom said,“e-Patients are Equipped Engaged Empowered Enabled”

34. Me? An indicator of the future?? Who’s getting online: 1989: Me (CompuServe sysop) 2009: 83% of US adults (Pew) Who’s romancing online: 1999: I met my wife (Match.com) 2009: One in eight weddingsin the U.S. met online Honeymoon in Paris, a year later

35. A lot’s changedin 11 months. Since e-Patient Connections October 2009

37. The meme is booming.Google hit counts tell the story ?

38. The meme is booming.Google hit counts tell the story The meme is booming.Google hit counts tell the story

39. 2010: World Domination begins May: World Congress on IT, Amsterdam June: Health 2.0 Paris July: 56 page supplement in Diario Medico November: Medicine 2.0, Holland

41. 56 page supplement “The new health and the new patients of Web 2.0”

43. Conferences with significant patient participation 2010 e-Patient Connections Medicine 2.0 Health 2.0 Paris (April) Health 2.0 DC (June) Health 2.0 SF (October)(with stipend) Institute for Healthcare Improvement Forum (December) (with stipend) 2009 Medicine 2.0 e-Patient Connections

44. External Drivers of Patient & Family Engagement OpenNotes project Robert Wood Johnson Foundation US$40 billion in incentives to encourage EMR adoption “Meaningful Use” rules require proving patient and family engagement Long term impact: 2011 to 2015

45. Two major Health Affairs articles on Kaiser results from patient engagement 2009 2004 – 2007: total office visits -26% Primary office visits -25.3% Specialty care office visits -21.5% Scheduled telephone visits increased eightfold July 2010 – use of EMR by chronics yields: 2 to 6.5 point improvements in glycemic, cholesterol and blood pressure screening and control.

46. Evidence:Engaged patients do better.

47. This will drive $ incentivesfor behavior change.

48. Will you be involved?

49. Will you know how it works?

50. Will you know how to engage patientsand help them change behavior?

51. It’s real.We’re talking.

52. Cluetrain Manifesto, 1999: “Markets are Conversations” The old marketing funnel: (Graphics by Forrester) Social media makes it multivariate and non-linear

57. Don’t be clueless.Jump in.

58. You can no longer say that doctors are distant and patients are passive or that healthcare is failing.

59. One patient’s true story:How an Empowered Patient Beat Stage IV Cancer(and what healthcare can learn from it) “e-Patient Dave” deBronkart @ePatientDave e-Patient Connections 2010 Book signings in the Klick Pharma booth

60. Thank You Digital Strategy • Experience Design • Data & Technology • Online Media klickpharma.com| 1 877 885 9957